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Kathy~

What is uncertainty exposure for OCD? Sorry, I am new so I don't have a very good understanding of everything.

Kathy Hammes <kathyh@...> wrote:

Hi :I am not a doc, just another OCD mom. The SSRI which are typically usedfor OCD medications, have a relatively benign side effect profile. Fromwhat I have learned the side effects disappear after the medications arediscontinued. Having said that, of course many of these meds arerelatively new on the market so very long term side effects are not yetreported. Taking meds for OCD can be part of uncertainty exposure for OCD,don't you think?Perhaps you can discuss this with your child's psychiatrist. Good luck,take care, aloha, Kathy (H)At 05:34 PM 09/07/2000 -0700, you wrote:Are there any long term side effects to the medications that they use?And how long do they stay on the medication? You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at http://www.egoups.com/group/ . Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . Kathy

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Hi Kathy,

I'm doing better so far today. Sorry to burden you yesterday.

Actually I just got this doctor's name off a list I got from OCDhelp but it says only OCD for this doctor and E & RP and CBT so I figure she's got it all. If anyone lives in the LA?Orange CTY area of CA. though who has some suggestions I'd appreciate it. I was given the name of a Dr. in San Diego but that seems too far.

Terry

Re: Intro.

HI Terry:If you have good refs from other parents that this therapist will be able to help with OCD make sure you put your name on their waiting list right now. Two months may seem like ages, but you will be surprised how fast the time will drag by. It took me over a year to get Steve set up with the right doc. Good luck, take care, aloha, Kathy (H)kathyh@...

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Terry~

How far away is UCLA from you? They are doing a study right now on OCD in Children. Ian didn't qualify cuz it is for 5 and over. He would get treatment there for free perhaps! Here are some numbers to try:

(310) 825-0122 (UCLA Child Disorder Clinic)

Be persistent with UCLA when you get someone in charge instead of the receptionist it makes all the difference in the world!

I am also being helped by Dr. Tarlow in LA she is with the Center of Anxiety Management dept at UCLA. Let me know if you have any luck with this...if not I will try to get you some more info. Joy (Ventura CA)

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Oh my God, thank you Joy. I will look into it right away.

Ucla is far but not too far for this situation. I feel like you're my guardian angel.

Love ya,

Terry

RE: Intro.

Terry~

How far away is UCLA from you? They are doing a study right now on OCD in Children. Ian didn't qualify cuz it is for 5 and over. He would get treatment there for free perhaps! Here are some numbers to try:

(310) 825-0122 (UCLA Child Disorder Clinic)

Be persistent with UCLA when you get someone in charge instead of the receptionist it makes all the difference in the world!

I am also being helped by Dr. Tarlow in LA she is with the Center of Anxiety Management dept at UCLA. Let me know if you have any luck with this...if not I will try to get you some more info. Joy (Ventura CA)You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at http://www.egoups.com/group/ . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

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HI :

Sorry for using jargon and not explaining properly.

The best sole treatment for OCD is a form of cognitive behavior

therapy (CBT) called exposure and response prevention (E & RP).

This includes facing fears, i.e. exposure e.g. touching contaminated

object and not performing rituals/response e.g. washing hands to

decontaminate.

A very typical problem in OCD is dealing with uncertainty.

Sufferers want to be 100% or more (;-))) certain of things. This is

impossible. So exposing someone to uncertainty and having them stop

their response, e.g. tapping a majic number of times to reduce anxiety

that they can't be 100+% certain is part of treating OCD for those whose

symptoms include doubting/uncertainty.

HOpe this helps, I am still working on my understanding of OCD, there is

so much to learn and so much yet to be discovered. When I started I

knew nothing, I didn't even realize that Steve's behaviors were related

to mental illness, we thought he was trying to bug us, and boy was he

successful! Take care, aloha, Kathy (H)

kathyh@...

At 09:32 AM 09/08/2000 -0700, you wrote:

My

Groups |

Main Page |

Start

a new group!

Kathy~

What is uncertainty exposure for OCD? Sorry, I am new so I don't

have a very good understanding of everything.

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Kathy~

Boy am I learning alot from this list. And I have only been on it for a couple of days. My son, in the last 6-9 months, has had extreme difficulty making decisions. He keeps asking us "What would you do if you were me?" The question was driving me crazy and still is, but now it would appear that this could be another symptom of OCD???? He is so worried about saying or doing the "wrong" thing.

Kathy Hammes <kathyh@...> wrote:

HI :Sorry for using jargon and not explaining properly.The best sole treatment for OCD is a form of cognitive behavior therapy (CBT) called exposure and response prevention (E & RP). This includes facing fears, i.e. exposure e.g. touching contaminated object and not performing rituals/response e.g. washing hands to decontaminate. A very typical problem in OCD is dealing with uncertainty. Sufferers want to be 100% or more (;-))) certain of things. This is impossible. So exposing someone to uncertainty and having them stop their response, e.g. tapping a majic number of times to reduce anxiety that they can't be 100+% certain is part of treating OCD for those whose symptoms include doubting/uncertainty.HOpe this helps, I am still working on my understanding of OCD, there is so much to learn and so much yet to be discovered. When I started I knew nothing, I didn't even realize that Steve's behaviors were related to mental illness, we thought he was trying to bug us, and boy was he successful! Take care, aloha, Kathy (H)kathyh@...At 09:32 AM 09/08/2000 -0700, you wrote:

My Groups | Main Page | Start a new group! Kathy~What is uncertainty exposure for OCD? Sorry, I am new so I don't have a very good understanding of everything.You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at http://www.egoups.com/group/ . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

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Hi :

One thing OCD has taught me is that when I think something might be OCD it

almost always is. OCD has been called " the Doubting Disease " by the

French. Also typically OCD sufferers readily feel hyper-responsible for

problems. These are some of the thought errors they make that can be

corrected/addressed by CBT.

OCD has a nasty way of sneaking into every aspect of a sufferer's life and

in particular attacking that which is most dear to them. So typically

their obsessions involved their loved ones, their favorite activities and

things that usually give us pleasure in life, e.g. eating, sex, their

faith, socializing, exercise,etc.

What typically happens is that we reassure our kids with OCD and this does

not help them in the long run. To get better they have to face their fears

and when we tell them all is okay re: their unreasonable fears we

unwittingly reinforce that these fears are somehow reasonable. This only

makes their obsessions worse. We have to learn to " boss back " OCD and not

provide this reassurance and this can lead to conflict and meltdowns which

are enough to try even the most determined parent.

We have found joking in a respectful way about the fears (a form of

paradoxical therapy) helps Steve to refocus and see his fears are

unreasonable without making things escalate too much. Humor helps us all

lighten up. Take care, aloha, kathy (H)

kathyh@...

At 10:47 PM 09/08/2000 -0700, you wrote:

athy~

Boy am I learning alot from this list. And I have only been on it for a

couple of days. My son, in the last 6-9 months, has had extreme difficulty

making decisions. He keeps asking us " What would you do if you were me? "

The question was driving me crazy and still is, but now it would appear

that this could be another symptom of OCD???? He is so worried about

saying or doing the " wrong " thing.

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Hi :

One thing OCD has taught me is that when I think something might be OCD it

almost always is. OCD has been called " the Doubting Disease " by the

French. Also typically OCD sufferers readily feel hyper-responsible for

problems. These are some of the thought errors they make that can be

corrected/addressed by CBT.

OCD has a nasty way of sneaking into every aspect of a sufferer's life and

in particular attacking that which is most dear to them. So typically

their obsessions involved their loved ones, their favorite activities and

things that usually give us pleasure in life, e.g. eating, sex, their

faith, socializing, exercise,etc.

What typically happens is that we reassure our kids with OCD and this does

not help them in the long run. To get better they have to face their fears

and when we tell them all is okay re: their unreasonable fears we

unwittingly reinforce that these fears are somehow reasonable. This only

makes their obsessions worse. We have to learn to " boss back " OCD and not

provide this reassurance and this can lead to conflict and meltdowns which

are enough to try even the most determined parent.

We have found joking in a respectful way about the fears (a form of

paradoxical therapy) helps Steve to refocus and see his fears are

unreasonable without making things escalate too much. Humor helps us all

lighten up. Take care, aloha, kathy (H)

kathyh@...

At 10:47 PM 09/08/2000 -0700, you wrote:

athy~

Boy am I learning alot from this list. And I have only been on it for a

couple of days. My son, in the last 6-9 months, has had extreme difficulty

making decisions. He keeps asking us " What would you do if you were me? "

The question was driving me crazy and still is, but now it would appear

that this could be another symptom of OCD???? He is so worried about

saying or doing the " wrong " thing.

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Hi everyone. I have been lurking here forever and finally decided to " go

public " . My name is Dana. I am a friend of Sara (with the hurt back!!!), and

she invited me here months ago. I started my second " official " challenge

Sept. 4th. I want this to be my best challenge yet. I may be asking a lot of

questions, so please bear with me.

Thanks,

Dana

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,

Hi, this is a little late, but I haven't had much time to check email lately.

Just wanted to write a quick note about your email. We have an 8yr old

daughter who has very similar symptoms. She was diagnosed at 3yrs old with

ocd. The sock & shoe thing is still a problem, but w/ medication & therapy

it's not as bad. Some days are worse than others. She actually has trouble

with all her clothes!!! She began having even more troubling symptoms a

little over a year ago & she has also been diagnosed with bipolar. She is

taking depakote sprinkles, risperdal, & celaxa. She is better now than she

has been since it all started over 5 years ago. We would get a little better

for a few weeks or sometimes months, then it would seem to all come back

again. I know " it " will never all " go away " , but it should get where she

can live as close to " normal " as possible. I wish you well at your appt.

Please email with any info that you would like to share or any questions. I

KNOW how hard it is!!!!!!! Nobody else can understand except for those of us

that have lived it 24/7!!!

Hope to hear from you,

Wanda

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Wanda~

Thank you so much for the email. It is so nice to find people who understand my situation. It is hard for friends and family to understand because they don't see what we (my husband and I) see. I think that my parents think I am overreacting and I have learned a hard lesson about who to tell what I think is going on. I told a close friend and all of a sudden everything that my son does is somehow related to OCD and anxiety. I want him to live a mostly normal life and this can't be done if other people are labeling him constantly.

swmbrown@... wrote:

,Hi, this is a little late, but I haven't had much time to check email lately. Just wanted to write a quick note about your email. We have an 8yr old daughter who has very similar symptoms. She was diagnosed at 3yrs old with ocd. The sock & shoe thing is still a problem, but w/ medication & therapy it's not as bad. Some days are worse than others. She actually has trouble with all her clothes!!! She began having even more troubling symptoms a little over a year ago & she has also been diagnosed with bipolar. She is taking depakote sprinkles, risperdal, & celaxa. She is better now than she has been since it all started over 5 years ago. We would get a little better for a few weeks or sometimes months, then it would seem to all come back again. I know "it" will never all "go away", but it should get where she can live as close to "normal" as possible. I wish you well at your appt. Please email with any info that you would like to share or any questions. I KNOW how hard it is!!!!!!! Nobody else can understand except for those of us that have lived it 24/7!!! Hope to hear from you, WandaYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

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Oh, one

more thing. Based on A LOT of

research and personal feelings, we have decided not to vaccinate. J

-----Original

Message-----

From: Dawn Rice

[mailto:dawn@...]

Sent: Monday, March 05, 2001 11:19

AM

'Vaccinationsegroups'

Subject: Intro.

I am Dawn, mother to Kailey (21 months), who has never been

vaccinated. I

am married to Doug (almost 3 years) and we are expecting Austin (baby #2)

on

July 1st. (He won't be vaccinated either) Other information about

us, we

practice

Alternative Parenting, (FB,BF,GD,Baby Wearing, natural medicines, plan to

homeschool.) The information has been abundant on this list as of

yet, and

it is great to have such a wonderful support system.

That's about it. Oh, we live in San Marcos, CA. (north of San Diego)

Dawn

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Hi dawn, welcome to the list. :)

I'm (23, husband is Tim (25), and our son is Maxwell (11 mos). I

am due w/ #2 in October. Maxwell was vaxed until his 9 mos.

appointment. About a week later I came upon some info regarding

vaccinations and made the decision NOT to vax him anymore and not to

vax the new baby.

We practiced the family bed until recently. All 3 of us were losing

sleep and it wasn't a happy and relaxing thing, so we had to teach Max

to put himself to sleep in his own bed. It was rough the first few

nights, but it has worked out well. :) Max is bf and the new baby will

also be bf. I have not weaned Max yet, I will let him decide. I have a

feeling I'm going to end up tandem nursing. :)

~

San , Texas

--- Dawn Rice <dawn@...> wrote:

> I am Dawn, mother to Kailey (21 months), who has never been

> vaccinated. I

__________________________________________________

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Hi Dawn,

Welcome to the list....I am quite new too.

I have a 21 month old girl aswell! Her name is RUBY.

She is my only child at the moment and is, up to now, vaccinated.

She will not be having the MMR and I am considering not vaccinating

for anything else.

Sue, mum to Ruby (21 months),

Wales, U.K.

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Welcome to the list.

I am thinking strongly about homeschooling myself, right now my son is in day care, but I hope to stay home one day..............

Chelly

San Diego, CA

Mommy to Trenton 8/19/99 - No Shots!

"Time may be a great healer, but it's a lousy beautician."

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>Since I'm not experienced at the whole fasting and

cleansing regime, I'm trying to work my way gently into

to this and not shock my system too much. Any

recommedations?

,

Welcome! a book that helped me a lot was The Self Healing Cookbook by

a . It's about a macrobiotic diet (which may be hard for some,

but it's very healthy). So if you're ready for a big change this may be the

answer. It's basically eating a lot of grains, fruits and veggies that are

in season, and lots of other things. Go to http://www.macrobiotics.org/ for

some info. if you're interested. Oh by the way, in the back of the book

there's different body cleanses offered that are very gentle, but effective.

Hope this helps.

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Hi

welcome! I've not been real active out here for a while, but I wanted to

jump back in, extend a welcome and say that this is a great group with a lot

of helpful and caring people in it.

I agree it can be overwhelming at first because there is just SO much

information out there and so many different products. One thing I would keep

in mind is that any step in a cleansing direction is a helpful and positive

one. In other words - you don't need to do it all at once. :)

Regarding the gallstones, there is a very economical cleanse that you can do

that can actually be completed in a short period of time. I was diagnosed

with gallstones last October WITH the recommendation of scheduling surgery as

soon as possible. I started doing the cleansing instead and here we are more

than 6 months later with my gallbladder intact. There are a lot of

variations of this cleanse, but two of the most commonly used ones (from what

I've seen) are found at these sites:

www.relfe.com

www.curezone.com

Since I've done the cleanse both ways and have done it a number of times, I

would be glad to attempt to answer any questions you might have. There is

also a cleanse group specifically about gallstones

(gallstones ). It might be helpful to look through the

archives out at that group or the testimonials to get an idea of what

successes people have had with doing these cleanses. I will actually be

doing another one this Friday, so would be glad to post about it if that

would be helpful.

I will just add that while some of the products are pricey, there are some

potential dietary changes that you might be able to make (depending on what

you're doing now) that could possibly give you a start to your cleansing

before taking any products. That's my personal bias, I guess <grin>, I'd

rather not take products if I can accomplish something through dietary

changes. However, there are some excellent products out there for when you

may choose to go in that direction.

The archives of this group might be helpful for you in that respect, to get

an idea of what others have used and their experiences with them. However,

each body is different and results really vary. Since the archives have

zillions of messages in them and it can be a bit of a challenge to wade

through them, you can always feel free to post what you're thinking of using

and ask if anyone has any personal experience with them. One thing I've

noticed is that when people find something that works for them, they seem to

be very willing to give public testimony to it. :)

Personally, I've been very successful with some of the products by Dr.

Schulze (American Botanicals Pharmacy). If you'd like to add them to

the list of what you're looking at, you can find his " Patient Handbook " at <A

HREF= " http://www.learnhealth.org/patient/ " >

http://www.learnhealth.org/patient/</A>. There's information about Dr. Schulze

as well as the different formulas. I've used a number of them and think

they're great. (And no, I'm not a 'distributor', so my recommendation is

without personal gain.)

Well, this has gotten wordy, but I hope something within all that might be of

help to you.

Now...what does s.a.h.m. stand for?? :)

wishing you wellness,

rachel

hopkins@... writes:

> FiestaI found this list during my research on cleansing and detoxification.

> A recent diagnosis of gall stones (no recommendation of surgery at this

> time) and other health problems started me on the search.

> Right now I'm trying to sort out all the info. and decide where to begin!

> It's a bit overwhelming. And since I'm a SAHM of 4, I'd like to do a

> cleanse that is thorough but economical. Some of the recommended formulas

> are bit pricey.

> I look forward to gaining more info. from your experiences.

> H.

>

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Hi --you need T3. I actually used Armour thyroid for gall bladder

attacks and they gradually went away. More info on medicines with T3 at

www.thyroid.about.com

> I am so pleased to find this group! As well as having

> hypothyroidism, I have just recently been looking at ways to cleanse

> and detox my body, which led me to this list.

> A little about myself:

> Five years ago I was diagnosed with Hashimoto's Thyroiditis. My TSH

> was 32 at that time. I took Synthroid until about 6 months ago, when

> my dr. switched me to Levoxyl. It seems that over the past five

> years, I have not been able to maintain a constant TSH level. I have

> found that the optimum level for me is around .5. Currently I'm

> taking 1.25 mcg. of Levoxyl, but I feel like especially the last 6-9

> mos. that I've been on a roller coaster with my TSH level TOO LOW

> (.03), then Too High (5). At the last check my TSH was 1.5 - better

> but not best! Right now I feel like the roller coaster ride is

> catching up with me - extremely fatigued, insomnia, joint pain,

> headaches.

> About 6 wks. ago I began taking Prevacid for acid reflux. In an

> effort to find the cause, discoved by ultra sound that I have a

> couple of gallstones. This lead me on a search for a non-surgical

> approach to curing the gallstones, which eventually led me here. :o)

> I've read sooooo much that I'm feeling a little overwhelmed at this

> point! Where to start?? I have so many bad eating habits!

> (Fortunately I'm not a smoker and I don't consume alcoholic

> beverages!) Since I'm not experienced at the whole fasting and

> cleansing regime, I'm trying to work my way gently into to this and

> not shock my system too much. Any recommedations?

> I like what I've read about the Ultimate Fast by Larry Clapp (version

> of Master Cleanse), but the products to go with it are expensive so I

> want to find something more economical. I'd definitely appreciate

> suggestions in this area.

> Thanks for reading all the details! I look forward to learning from

> you and sharing what I've learned.

> H.

> (central Missouri)

>

>

>

>

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Thanks for that confirmation! Exactly what I was thinking after everything that

I've read. My body may not be converting the T4 properly. I see my dr. this

week and I'm going to bring up adding T3.

Re: Intro.

Hi --you need T3. I actually used Armour thyroid for gall bladder

attacks and they gradually went away. More info on medicines with T3 at

www.thyroid.about.com

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, thank you for the warm welcome, and the helpful advice. I've

already read some of the posts in the archives, and have found them very

helpful.

One immediate step that I've taken in increasing my water intake. I've been

very bad about not drinking enough water, and too much soda. So, as you

said, I'm taking one positive step at a time....dietary changes are next on

the list.

I've found a gallbladder cleanse that I will try, but everything that I've

read indicates it would be most beneficial to begin with colon cleanse.

Right?

To answer your question SAHM= stay-at -home-mom. :o)

Thanks again,

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In a message dated 5/14/2002 8:13:58 PM Pacific Daylight Time,

hopkins@... writes:

> Exactly what I was thinking after everything that I've read. My body may

> not be converting the T4 properly. I see my dr. this week and I'm going to

> bring up adding T3.

>

There's a whole treatment protocol for folks who're not converting T4

properly. It's called <A HREF= " www.wilsonsthyroidsyndrome.com " >'s Thyroid

Syndrome</A>. I've been getting treatment

for it for the last eight-nine months or so and the results as far as my

returning to health and fitness are nothing short of miraculous when compared

to the decades of drudgery and exhaustion I've been through on other

medicines or no medicines becasue my normal TSH test would convince doctors I

" couldn't really " be sick!

in LA

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In a message dated 5/15/2002 10:19:02 AM Pacific Daylight Time,

john.codling@... writes:

> I feel I may have this, as I have all the symptoms of HYpo but my blood

> tests are fine. Would this show up on a blood test as a low T3 level ? Or

> can you still have these feelings with normal range blood test.

>

,

I'm not so sure what the blood tests would run on anyone else but my current

doc, the one who told me about 's, ran one blood test on me when we

first started treatment. It showed my T3 levels were slightly elevated. But

by then I'd read everything I could get my hands on about WTS and I countered

with, " I thought the whole idea of 's Treatment was to RAISE T3 levels

even more, so why should my blood test suddenly matter now? " Doc let me go

ahead with the treatment and fortunately for me, b/c I'm getting my life back

at last! The last two days my average daily body temp has finally climbed to

98.6 for the first time since I was in my teens, I'm sure. (I'm 52.) I have

never felt SO good in my body EVER! I felt so happy, so at ease, so mobile,

so free to exercise or walk or stay awake, that I felt like pinching myself

to make sure I wasn't dreaming! What a relief to finally be getting well! I

wish you the same opportunity.

in LA

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, thank you for that information. I couldn't get to the website but I

looked up " 's Syndrome " in The Thyroid Solution by Dr. Arem. I'm not sure

from what I've read if it would apply to me since I've been diagnosed with

Hashimoto's ... I'm looking into it.

H.

Re: Intro.

There's a whole treatment protocol for folks who're not converting T4

properly. It's called <A HREF= " www.wilsonsthyroidsyndrome.com " >'s

Thyroid Syndrome</A>. I've been getting treatment

for it for the last eight-nine months or so and the results as far as my

returning to health and fitness are nothing short of miraculous when compared

to the decades of drudgery and exhaustion I've been through on other

medicines or no medicines becasue my normal TSH test would convince doctors I

" couldn't really " be sick!

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All,

I feel I may have this, as I have all the symptoms of HYpo but my blood tests

are fine. Would this show up on a blood test as a low T3 level ? Or can you

still have these feelings with normal range blood test.

many thanks

]

C UK

up

> Exactly what I was thinking after everything that I've read. My body may

> not be converting the T4 properly. I see my dr. this week and I'm going to

> bring up adding T3.

>

There's a whole treatment protocol for folks who're not converting T4

properly. It's called <A HREF= " www.wilsonsthyroidsyndrome.com " >'s Thyroid

Syndrome</A>. I've been getting treatment

for it for the last eight-nine months or so and the results as far as my

returning to health and fitness are nothing short of miraculous when compared

to the decades of drudgery and exhaustion I've been through on other

medicines or no medicines becasue my normal TSH test would convince doctors I

" couldn't really " be sick!

in LA

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