Prayers

[Guest guest]

In a message dated 5/27/99 9:38:51 PM Eastern Daylight Time,

ranlin@... writes:

<<

Is there a quicker way to post than having to log in to the member center

all of the time? >>

\

,

Good luck with your hybaric treatment. You will be in my thought and

prayers. Please update us on your progress. There is a quicker way to

posts. I just hit reply to any message and erase the subject and put in my

subject.

Good luck,

[Guest guest]

--- ranlin@... wrote:

> From: ranlin@...

>

> Hi Eveeryone,

> I am leaving on Saturday for Baltimore for the

> Chamber treatment. I am a little anxious about

> getting a hard herkzs. Please keep me in you

> prayers while I am gone and I will let you know how

> it all went when I get home. You are all in my

> prayers....May God Bless you all with better

> health.... G.

> Is there a quicker way to post than having to log

> in to the member center all of the time?

>

> -

I will say an extra prayer for you this weekend. I say a prayer for all

of us every night and I know that someday our prayers will be answered.

Hope all goes well. Let us know.

L

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[Guest guest]

Hi ,

Good luck you have my prayers, as does everyone on this list. How long

will you be gone? I hope you see this before you go. Do you have a place

to stay? As for posting, there is no need to go to the member center, ever,

unless you want to search the archives, and I haven't been able to do that

yet myself! All you have to do is hit the reply button on your mail program

when you are reading the post you want to respond to. If you want to post a

new message, just address it to Lyme-aidonelist.

{{{{{{Huge Supportive Hugs}}}}}

Marta

>From: ranlin@...

>

>Hi Eveeryone,

> I am leaving on Saturday for Baltimore for the Chamber treatment. I am

a little anxious about getting a hard herkzs. Please keep me in you prayers

while I am gone and I will let you know how it all went when I get home.

You are all in my prayers....May God Bless you all with better

health.... G.

> Is there a quicker way to post than having to log in to the member center

all of the time?

>

[Guest guest]

In a message dated 5/28/99 2:48:10 AM, lclott@... writes:

<< -

I will say an extra prayer for you this weekend. I say a prayer for all

of us every night and I know that someday our prayers will be answered.

Hope all goes well. Let us know.

L >>

, I pray for all of us every night as well. The powere of prayer is an

extrodinary thing. feel better-Val

[Guest guest]

Thanks Marta,

I am leaving tomorrow. I feel horrible and am dreading the trip. But

hopefully good things wwill come out of it. My doctor just put me back on

Mephron for the sweats and creepy crawling sensations all over my body.

They drive me nuts. I get these crawling feelings all over. They raise up

on my skin in patches. They look like goose bumps but in all different

places about the size of a nickles. It make me very worried that this is a

symptom other than lyme. Trying to get a skin test to see if it will whow

them anything.......Plus I hae streaks of rash on my body where ever my skin

touchs together and gets warm........I just worry that I have something

else, even though I have all of the lyme symptoms. And to top it all off, I

a have been bed ridden since they took away my I.V. Other than that , I am

haing a GREAT day....haaa. Love G.

Re: [Lyme-aid] Prayers

>From: " J & M McCoy " <mlmccoy@...>

>

>Hi ,

> Good luck you have my prayers, as does everyone on this list. How long

>will you be gone? I hope you see this before you go. Do you have a place

>to stay? As for posting, there is no need to go to the member center,

ever,

>unless you want to search the archives, and I haven't been able to do that

>yet myself! All you have to do is hit the reply button on your mail

program

>when you are reading the post you want to respond to. If you want to post

a

>new message, just address it to Lyme-aidonelist.

>{{{{{{Huge Supportive Hugs}}}}}

>Marta

>

>

>>From: ranlin@...

>>

>>Hi Eveeryone,

>> I am leaving on Saturday for Baltimore for the Chamber treatment. I am

>a little anxious about getting a hard herkzs. Please keep me in you

prayers

>while I am gone and I will let you know how it all went when I get home.

>You are all in my prayers....May God Bless you all with better

>health.... G.

>> Is there a quicker way to post than having to log in to the member

center

>all of the time?

>>

>

>

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[Guest guest]

Thanks ...we all need each other to battle this..who knows, a cure

could happen at any time.. G

Re: [Lyme-aid] Prayers

>From: lc lott <lclott@...>

>

>

>

>--- ranlin@... wrote:

>> From: ranlin@...

>>

>> Hi Eveeryone,

>> I am leaving on Saturday for Baltimore for the

>> Chamber treatment. I am a little anxious about

>> getting a hard herkzs. Please keep me in you

>> prayers while I am gone and I will let you know how

>> it all went when I get home. You are all in my

>> prayers....May God Bless you all with better

>> health.... G.

>> Is there a quicker way to post than having to log

>> in to the member center all of the time?

>>

>> -

>I will say an extra prayer for you this weekend. I say a prayer for all

>of us every night and I know that someday our prayers will be answered.

>

>Hope all goes well. Let us know.

> L

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>>

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>_________________________________________________________

>

[Guest guest]

Hi G.,

Good luck in Baltimore this weekend. I will be thinking of you.

Take Care, Joan

[Guest guest]

Thanks ,

I am leaving tomorrow morning. Not feeling at all up to the trip. But

necessary. I must have a brain loaded with lyme, not to be able to figure

out responding on the list. Or a new subject.........Dah....Hugs... G.

Re: [Lyme-aid] Prayers

>From: Prinny328@...

>

>In a message dated 5/27/99 9:38:51 PM Eastern Daylight Time,

>ranlin@... writes:

>

><<

> Is there a quicker way to post than having to log in to the member

center

>all of the time? >>

>\

>

>,

>Good luck with your hybaric treatment. You will be in my thought and

>prayers. Please update us on your progress. There is a quicker way to

>posts. I just hit reply to any message and erase the subject and put in my

>subject.

>

>Good luck,

>

>

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[Guest guest]

Hi ,

I tested positive for HME. Human Monocytic Ehrlichiosis, and had a lot

of skin symptoms itching, patches of rashes, etc. Were you ever tested for

that? I know that the only cure for that is doxycycline, have you been on

that? I sure hope the HBO treatment is helpful to you, I don't know many

people who have done this, so I can't give you any advice. Make sure you

tell them of all the meds you are on, let us know when you get back.....how

long will you be gone, should I put you on no mail status?

Hugs,

Marta

>From: " Girard " <ranlin@...>

>

>Thanks Marta,

> I am leaving tomorrow. I feel horrible and am dreading the trip. But

>hopefully good things wwill come out of it. My doctor just put me back on

>Mephron for the sweats and creepy crawling sensations all over my body.

>They drive me nuts. I get these crawling feelings all over. They raise up

>on my skin in patches. They look like goose bumps but in all different

>places about the size of a nickles. It make me very worried that this is a

>symptom other than lyme. Trying to get a skin test to see if it will whow

>them anything.......Plus I hae streaks of rash on my body where ever my

skin

>touchs together and gets warm........I just worry that I have something

>else, even though I have all of the lyme symptoms. And to top it all off,

I

>a have been bed ridden since they took away my I.V. Other than that , I am

>haing a GREAT day....haaa. Love G.

>--

[Guest guest]

--- ValP74@... wrote:

> From: ValP74@...

>

>

> In a message dated 5/28/99 2:48:10 AM,

> lclott@... writes:

>

> << -

> I will say an extra prayer for you this weekend. I

> say a prayer for all

> of us every night and I know that someday our

> prayers will be answered.

>

> Hope all goes well. Let us know.

> L >>

>

> , I pray for all of us every night as well. The

> powere of prayer is an

> extrodinary thing. feel better-Val

>

> Val-

Sometimes I think prayers are the only chance we have. At least God

knows we arent all crazy.

L

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_________________________________________________________

[Guest guest]

Hi . I'm new to the group, but wanted to let you know that I had those

bumps all over my hands after my initial bite 12 years ago. No one new what

they were, including me since we didn't know anything about Lyme in

Rochester, NY, but I was treated with a 10 day course of antibiotics and

predisone. I get them again now when I have a Herx. I also had a terrible

time with the rash you speak about, although I have less and less trouble

with it since I have been treated for yeast. Are you on any yeast treatment?

Peace, Helen

[Guest guest]

No disrespect to God, but I cannot wait till I leave this life and he

reveals to me what HE was thinking when HE created ticks. I am sure HE had

a good reason....one of life's great mysteries to me.

Marta

>From: lc lott <lclott@...>

>

>

>> Val-

>Sometimes I think prayers are the only chance we have. At least God

>knows we arent all crazy.

> L

>

[Guest guest]

this rash/itchy. i have had eczema, just slightly on face, neck for EVER

(20 years). is this HME a tick thing? caused by LD?

>From: " J & M McCoy " <mlmccoy@...>

>

>Hi ,

> I tested positive for HME. Human Monocytic Ehrlichiosis, and had a lot

>of skin symptoms itching, patches of rashes, etc. Were you ever tested for

>that? I know that the only cure for that is doxycycline, have you been on

>that? I sure hope the HBO treatment is helpful to you, I don't know many

>people who have done this, so I can't give you any advice. Make sure you

>tell them of all the meds you are on, let us know when you get back.....how

>long will you be gone, should I put you on no mail status?

>Hugs,

>Marta

>

>

>>From: " Girard " <ranlin@...>

>>

>>Thanks Marta,

>> I am leaving tomorrow. I feel horrible and am dreading the trip. But

>>hopefully good things wwill come out of it. My doctor just put me back on

>>Mephron for the sweats and creepy crawling sensations all over my body.

>>They drive me nuts. I get these crawling feelings all over. They raise up

>>on my skin in patches. They look like goose bumps but in all different

>>places about the size of a nickles. It make me very worried that this is a

>>symptom other than lyme. Trying to get a skin test to see if it will whow

>>them anything.......Plus I hae streaks of rash on my body where ever my

>skin

>>touchs together and gets warm........I just worry that I have something

>>else, even though I have all of the lyme symptoms. And to top it all off,

>I

>>a have been bed ridden since they took away my I.V. Other than that , I am

>>haing a GREAT day....haaa. Love G.

>>--

>

>

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MimiAnne's Specialty Coffee

(540) 980-6464

93 W. Main Street

Pulaski, VA 24301

[Guest guest]

In a message dated 99-05-29 02:19:25 EDT, you write:

<< Val-

Sometimes I think prayers are the only chance we have. At least God

knows we arent all crazy.

L >>

, I know what you mean. Even though I can't understand why this is

happening I kow we are in God's hands and he can make a dfference. I do

believe that. By the way how do you feel. Do you ever feel a little better

and than worse again since starting the IV. -Val

[Guest guest]

--- J & M McCoy <mlmccoy@...> wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> No disrespect to God, but I cannot wait till I leave

> this life and he

> reveals to me what HE was thinking when HE created

> ticks. I am sure HE had

> a good reason....one of life's great mysteries to

> me.

> Marta

>

>

Marta-

I guess that is a point. Never thought of it that way.

I guess while we are asking Him questions we could ask why He created

Ins. Cos. and egotistical docs too.

LOL. Would love to know the answer to that one!

Take care

Hugs,

L

> Join a new list today!

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_________________________________________________________

[Guest guest]

Hi ,

HME, Human Monocytic Ehrlichiosis is a tick disease, a rickettsia, not a

spirochete, it can be fatal if untreated. The treatment is doxycycline. The

rickettsia eat your white blood cells. I was notified by the State of NJ

Dept of Health, that I tested positive for that. My doctor thought I had

HGE too, which is another tick disease, Human Granulocytic Ehrlichiosis.

(Hope my spelling is right.) There are many tick diseases that you can get

from the bite of one tick, Babesia, Rocky Mountain Spotted fever and

Tularemia...again not sure of spelling. Forschner covers all of them

in her book, " Everything you Need to Know about Lyme disease and other tick

borne diseases, " This book is a must have for anyone with Lyme disease.

Hugs,

Marta

>From: mimianne@...

>

>this rash/itchy. i have had eczema, just slightly on face, neck for EVER

>(20 years). is this HME a tick thing? caused by LD?

>

>

[Guest guest]

In a message dated 99-05-30 06:10:46 EDT, you write:

<< Val-

I am doing the up and down thing right now. It is my 3rd week of the IV

Rocephin and I have a few good days followed by a few really bad ones.

When I first started it the pain in my back and knees went away almost

completely. That has returned and is going full tilt right now. Also

the fatigue is better for a day or so and then I can hardly get out of

bed for the next 2. Really feel like a yo-yo. How are you doing?

L >>

, You could be my clone by that discription. I have pretty much the exact

same life right now. The fevers for the most part have subsided they go up to

99 usually at night. I feel pretty good for a day or two, even have my wits

about me and everything and then boom I am exhausted with headaches and

feeling lousy for a few days. It is totally weird. If I take a hot bath I am

completely wiped out for the whole day. don't know if it is a good thing or a

bad thing. I also noticed if I drink hot tea that my headaches get really bad

and I am in a lot of pain. Dont know what that is either. A common symptom I

have is getting itching only on my thighs that lasts for about an hour and

comes every three weeks or so. Yesterday it was itching like crazy and I got

these small patches of red bumbs on my legs and little bruises. I can't even

think to analyse it anymore I just look to God for support and help. I need

the energy source of a much higher power to get through this. I am in my

fifth week of IV and my third week of Mepron/Zithro so I don't even know what

is doing what if anything is working at all. LOL Oh I forgot were you ever

tested for babesia? Hope you are feeling better keep me posted God Bless You!

-Val

[Guest guest]

In a message dated 5/31/99 10:36:53 PM, lclott@... writes:

<<Its like a knife being shoved thru

my head. Usually goes away if I take a cold shower and lay in front of

a fan. I think my LLD did test me for Babesia and it was neg. Cant

swear to that right now tho. Like I said the fog is thick. I had a few

good hours a couple days ago and did manage to get the house cleaned up

which was badly in need of some serious attention. And i am slowly

working on the laundry but it is now at a standstill as I think I

either overdid it or am just back to the bad day thing.

Hope you are doing well.

Hugs,

L>>

am with you on the fan idea. If I get by a fan or Ac the headache will

clear up in minutes it is really strange. the heat is definatley making the

headaches worse. I don't thin this is part of a herx becasue the quick chance

in temp wouldn't really make a difference if the toxins were all dying off. I

am still feeling the same on and off and stuff. I am stil worse however than

I was before this IV. By the way how long have you had Lyme? Feel better-Val

[Guest guest]

--- ValP74@... wrote:

> From: ValP74@...

>

> In a message dated 99-05-30 06:10:46 EDT, you write:

>

>

> , You could be my clone by that discription. I

> have pretty much the exact

> same life right now. The fevers for the most part

> have subsided they go up to

> 99 usually at night. I feel pretty good for a day or

> two, even have my wits

> about me and everything and then boom I am

> exhausted with headaches and

> feeling lousy for a few days. It is totally weird.

> If I take a hot bath I am

> completely wiped out for the whole day. don't know

> if it is a good thing or a

> bad thing. I also noticed if I drink hot tea that my

> headaches get really bad

> and I am in a lot of pain. Dont know what that is

> either. A common symptom I

> have is getting itching only on my thighs that lasts

> Oh

> I forgot were you ever

> tested for babesia? Hope you are feeling better keep

> me posted God Bless You!

> -Val

> Val-

I know what you mean about the hot bath. I am having a hard time with

the heat and humidity here. Cant seem to get the fog to lift. LOL I get

a bad headache if I get really hot. Its like a knife being shoved thru

my head. Usually goes away if I take a cold shower and lay in front of

a fan. I think my LLD did test me for Babesia and it was neg. Cant

swear to that right now tho. Like I said the fog is thick. I had a few

good hours a couple days ago and did manage to get the house cleaned up

which was badly in need of some serious attention. And i am slowly

working on the laundry but it is now at a standstill as I think I

either overdid it or am just back to the bad day thing.

Hope you are doing well.

Hugs,

L

>

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_________________________________________________________

[Guest guest]

--- ValP74@... wrote:

> From: ValP74@...

>

>

> In a message dated 5/31/99 10:36:53 PM,

> lclott@... writes:

>

> <<Its like a knife being shoved thru

> my head. Usually goes away if I take a cold shower

> and lay in front of

> a fan. I think my LLD did test me for Babesia and it

> was neg. Cant

> swear to that right now tho. Like I said the fog is

> thick. I had a few

> good hours a couple days ago and did manage to get

> the house cleaned up

> which was badly in need of some serious attention.

> And i am slowly

> working on the laundry but it is now at a standstill

> as I think I

> either overdid it or am just back to the bad day

> thing.

> Hope you are doing well.

> Hugs,

> L>>

>

> am with you on the fan idea. If I get by a fan

> or Ac the headache will

> clear up in minutes it is really strange. the heat

> is definatley making the

> headaches worse. I don't thin this is part of a herx

> becasue the quick chance

> in temp wouldn't really make a difference if the

> toxins were all dying off. I

> am still feeling the same on and off and stuff. I am

> stil worse however than

> I was before this IV. By the way how long have you

> had Lyme? Feel better-Val

>

> Val-

Its really hard to say how long Ive had Lyme. I was treated back in

1994 after a rash on my leg and severe joint pain as well as fatigue

and flu symptoms. The ID doc that treated me that time gave me a months

worth of Doxy and when all the sympotoms went away in that time said I

was " cured " . So now I dont know if it is a reoccurance from 94 or a

reinfection from July of 98 when I had a rash on my neck and then

developed all of my current symptoms. My LLD thinks it is a reinfection

and that what I had in 94 was possibly something different or I was

treated early enough that that is why my symptoms resolved so fast. I

didnt start treatment this time until May of this yaer so it was almost

a year of letting things get worse and now its that much harder to

treat. By the way the same ID guy I saw in 94 told me that it wasnt

Lyme this time and sent me on my way to U of MI where they really blew

it.

How about you? How long have you had it and how long did it take to get

a dx?

L

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_________________________________________________________

[Guest guest]

If I had a heart attack on the steps of U of Mi please take me anywhere else

on earth!!!!!!!!

Sorry

Bev

[Guest guest]

ValP74@... wrote:

>

> From: ValP74@...

>

> In a message dated 5/31/99 10:36:53 PM, lclott@... writes:

>

> <<Its like a knife being shoved thru

> my head. Usually goes away if I take a cold shower and lay in front of

> a fan. I think my LLD did test me for Babesia and it was neg. Cant

> swear to that right now tho. Like I said the fog is thick. I had a few

> good hours a couple days ago and did manage to get the house cleaned up

> which was badly in need of some serious attention. And i am slowly

> working on the laundry but it is now at a standstill as I think I

> either overdid it or am just back to the bad day thing.

> Hope you are doing well.

> Hugs,

> L>>

>

> am with you on the fan idea. If I get by a fan or Ac the headache will

> clear up in minutes it is really strange. the heat is definatley making the

> headaches worse. I don't thin this is part of a herx becasue the quick chance

> in temp wouldn't really make a difference if the toxins were all dying off. I

> am still feeling the same on and off and stuff. I am stil worse however than

> I was before this IV. By the way how long have you had Lyme? Feel better-Val

>

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Hi Val, I'm new to Lyme-aid, tho I post and read sci.med. and lymenet

ngs. My sister (w/Lyme) has terrible headaches...I'm going to tell her

about the fan/ac idea. I'm also on IVs (starting my 13th week). Most

of my physical stuff resolved on orals - low doses at that. My

psychiatric symptoms were for the first 10 weeks worse then before IVs,

tho my sleep disorder (couldn't sleep for long) resolved and most of my

tingling,numb and twitching has resolved on IV, too. It wasn't til

about the 11th week that the psychiatric (depression, mental agitation

and mild anxiety) noticeably improved. I'm on these IVs for the long

haul. Nice to meet you, Judy - noah@...

[Guest guest]

In a message dated 6/1/99 1:56:54 AM, lclott@... writes:

<< So now I dont know if it is a reoccurance from 94 or a

reinfection from July of 98 when I had a rash on my neck and then

developed all of my current symptoms. My LLD thinks it is a reinfection >>

, did all of your symptoms stay away from 94-98? If so, i would think tht

this is a new infection based on you rash in 98. If you stayed symptoms free

for four years chances are you were luckily cured the first time. I can't

believe you couldn't get treated even with the rash by the same doc who once

treated you befor. tht is insane.

I have had Lyme since 93. I went for 8 months of different doctors before

getting a diagnosis. I went on IV therapy (Rocephin) and got 90% better and

went back to college thinking everything would be fine. I relapsed again in

94 went on bicilliln shots got better once again. I relapsed again about once

every year but always got better within a month and was fine. Unfortunately

this last relapse in july of 98 has put me out and I still can't get control

of it. I have been on so many things since last year and nothing seems to be

taking care of it. I was on bicillin shots before this IV and was about

50-70% better depending on the day. With this IV I am so much worse. I am

also on Mepron/Zithro now for the babesia and that isn't doing anything

either. However it is strange that every other time I improved I never had a

classic herx reaction. This time I have gotten worse and had fevers and

chills and stuff but it isn't consistent and it isn't getting better. I don't

know what to think anymore but I continue to search for answers everyday.

feel better-Val

[Guest guest]

--- B56G@... wrote:

> From: B56G@...

>

> If I had a heart attack on the steps of U of Mi

> please take me anywhere else

> on earth!!!!!!!!

>

> Sorry

>

> Bev

>

> Bev-

Im with you!!!

L

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[Guest guest]

Hi Judy,

Welcome to the list, so glad you found us. I am so happy you are doing

well on the IV. Looking forward to hearing more about your treatment and

Lyme history, sad to hear your sister has Lyme too, but at least you can

commiserate with each other, not all family members can understand what we

go through, hope the headache remedy works for her.

Hugs,

Marta

-

>From: noah williams <noah@...>

>

>

>

>Hi Val, I'm new to , tho I post and read sci.med. and lymenet

>ngs. My sister (w/Lyme) has terrible headaches...I'm going to tell her

>about the fan/ac idea. I'm also on IVs (starting my 13th week). Most

>of my physical stuff resolved on orals - low doses at that. My

>psychiatric symptoms were for the first 10 weeks worse then before IVs,

>tho my sleep disorder (couldn't sleep for long) resolved and most of my

>tingling,numb and twitching has resolved on IV, too. It wasn't til

>about the 11th week that the psychiatric (depression, mental agitation

>and mild anxiety) noticeably improved. I'm on these IVs for the long

>haul. Nice to meet you, Judy - noah@...

>

>