Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Welcome... you're in the right place. There are many conditions (candida, auto-immune disorders, allergies, etc...) that are caused by our diets and environments. I'm new on this journey too. I just had the thought... I kinda feel like I'm on the " Island of Misfit Toys " like in the old Christmas cartoon, along with the rest of you. And this is part of our ticket back to the kids and happiness! > > Hi all, > > I'm a 39 year old Chinese American woman. I live in Brooklyn, NY with > my husband of 13 years and our 2.5 year old daughter and 5.5 year old > doggie. I have been struggling with debilitating pain and RA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi Lixuan, Welcome to the group. This is not only a support group, but its a healing group as well. So first, make sure to read the articles you received when you first joined the group. It outlines Bee's diet. This diet not only fights candida, it is also a healing diet for many different disorders. I myself suffered from fibromyalgia and since starting this diet, my fibromyalgia symptoms have diappeared. Additionally, after you read the getting started articles, you may also want to read the information under the file called C) Arthritis & Candida It will help you understand how Candida relates to Rheumatoid arthritis, and I think after reading you will see why Bees diet is so helpful for so many people. Again welcome to the group. Jecca > > I'm a 39 year old Chinese American woman. I live in Brooklyn, NY with my husband of 13 years and our 2.5 year old daughter and 5.5 year old doggie. I have been struggling with debilitating pain and RA for over a year. I haven't found a doctor that I like, nor medications that really work. I also haven't found a support group for RA in the NY area. Someone recommended this group to me. I don't know if I fit in but I'm really hoping to have someone to talk to, to share experiences with and to give each other support. It feels very isolating and lonely with this disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 CLL and rheumatoid arthritis are not really cousins, but may both be derived from the same cell type. The CD5+ B cells are typically very infrequent in the healthy adult population. They are expanded in all rheumatologic diseases and are the leukemic cells in CLL. Rheumatoid arthritis, and most rheumatologic diseases, are autoimmune in nature. CLL cells are known for making autoreactive antibodies. These are not the antibodies produced in autoimmune hemolytic anemias or ITP, but just react with many autoantigens. Rick Furman, MD Rheumatoid Arthritis > and Dr. Furman, > Somewhere I read that rheumatoid arthritis and CLL are related (like > cousins). Can you tell me if this is true and what makes them related. > Thanks, > R. > W & W Stage 0 > Atipical CLL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 I hear you, my back stuff started in my late 20's early 30's with the occasional spasm, throwing it out so to speak. Once I hit 40 it just got worse, and now its every am waking up stiff and walking like enstein and in pain and yes it feels like arthritis... Ive been tested for RA, so its not that, could be Osteo, who the hell knows, its not like I played a professional sport- just waitressing through college and than nursing after that.... did me in. Ill be 45 this month, and I know how you feel- some days worse than others, and when its cold and damp- just forget it, stiff as a board. I used to be so active, ran, biked, lifted weights, now I just walk the dog- I guess I should be grateful I can still do that. Your not alone. RN in DC Rheumatoid arthritis Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation????) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 in NH Stress surely seems to make me 'hurt' more, I know just enough to tell myself, " It is all in the Mind, Vince " ; my success is not always painfully obvious, but I never quit trying. My diagnosis did include several auto-immune problems, including rheumatoid arthritis, especially of my left hip. That was called elective surgery until I slipped on ice one year ago and pulverized my femur. I received a new, high-tech-cement leg-bone and a hip replacement. The ball and socket of my hip were said to be polished smooth as marble, but fixing this was not a legitimate 'use of funds' until I stumbled into the 'pulverized femur plan'. Joking aside, my wonderful surgeons took advantage of the situation on-the-fly, as I slept. What wonderful people that helped me. It takes just one decision maker to 'do the right thing'. I never got angry or upset when it was my hip, but I can not make the same claim when I read: " ... at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation???? " . My pop is 91, with excellent medical insurance and yet the new laws, just passed, would allow federal discrimination guidelines to prohibit medical procedures for everyone over 55, even with excellent insurance. That statement from you drained me of energy; I had to wait and think before I responded. I believe I can empathize with your stress elevation by such ugly discrimination against your mother. I hope you are able to use the system to beat the system, and win that battle; assume you will win, I will too. Best wishes & Positive Thoughts! Vince On Wed, Mar 11, 2009 at 6:52 PM, cathy mccarthy <bbhorsetack@...>wrote: > Rheumatoid arthritis and stress... Good golly I am in a lot of pain > lately. Did the gosh darn arthritis thing settle in my spine as well??? AND > I have been in alot of stress. (My Mom might have to have surgery on her her > heart. (Valves not working properly, at 83, and in very excellent shape for > her age, medicare has to decide if she is worth the operation????) My back > has been messed up for a long time. Could " stress " kick in with this new > pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. > next week and still looking for a new neuro guy... (thank you for Doc > Glasiers(?) name). How many of you have been told your underlying problem is > arthritis??? > > Mine was caused by swelling of the spinal cord, simply put. Something you > have a one in three million chances of getting.... lucky me.... But this > pain level today is like " the old days " , very high. I thought I was past > that stage!!!! I am 50... too old for this crap. I have had tis since 1990, > it stole my life. Back pain is a ****** I do not care what caused it. NOBODY > understands. We look so " normal... " akkkkk. > > in NH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Remember thet Rheumatoid arthritis and the typical osteoarthritis are very different things. Normal arthritis occurs with aging and loss of cartilage associated with aging.Osteoarthritis is common in the spine and knees. Â Bones tend to rub on each other and create bone spurs as well. Â Rheumatoid is an autoimmune disease that can happen at a younger age and is very different than the arthritis due to aging. It occurs when the body stops recognizin certain cells as it's own and decides to start attcking itself. Â --- From: cathy mccarthy <bbhorsetack@...> Subject: Rheumatoid arthritis spinal problems Date: Wednesday, March 11, 2009, 7:52 PM Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation??? ?) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Another way to describe RA.....it is a systemic disease that affects all organs not just your joints. I have RA and due to the inflammation my normal body temp is 99.6-101....do many people confuse the 2 and will say they have rheumatoid and after speaking to them for a few minutes it becomes apparent that they are confused and suffer from osteo.... Deb RN From: spinal problems [mailto:spinal problems ] On Behalf Of Babbitt Sent: Thursday, March 12, 2009 7:38 AM spinal problems Subject: Re: Rheumatoid arthritis Remember thet Rheumatoid arthritis and the typical osteoarthritis are very different things. Normal arthritis occurs with aging and loss of cartilage associated with aging.Osteoarthritis is common in the spine and knees. Bones tend to rub on each other and create bone spurs as well. Rheumatoid is an autoimmune disease that can happen at a younger age and is very different than the arthritis due to aging. It occurs when the body stops recognizin certain cells as it's own and decides to start attcking itself. --- From: cathy mccarthy <bbhorsetack@... <mailto:bbhorsetack%40roadrunner.com> > Subject: Rheumatoid arthritis spinal problems <mailto:spinal problems%40> Date: Wednesday, March 11, 2009, 7:52 PM Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation??? ?) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 That's a better way of saying it yes..thanks Deb. From: cathy mccarthy <bbhorsetack@ roadrunner. com <mailto:bbhorsetack %40roadrunner. com> > Subject: Rheumatoid arthritis spinedisorderssuppo rtgroup@gro ups.com <mailto:spinedisord erssupportgroup% 40groups. com> Date: Wednesday, March 11, 2009, 7:52 PM Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation??? ?) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Just want to say how lucky we are to have you two gals on this support site: Deb, you guys are very helpful and I always look forward to reading your emails because I know you both have something informative to say! As well as supportive. Happy almost spring day! RN in DC Rheumatoid arthritis spinedisorderssuppo rtgroup@gro ups.com <mailto:spinedisord erssupportgroup% 40groups. com> Date: Wednesday, March 11, 2009, 7:52 PM Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation??? ?) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 , You are too kind! Hope you are having a pain free day! --- From: cathy mccarthy <bbhorsetack@ roadrunner. com <mailto:bbhorsetack %40roadrunner. com> > Subject: Rheumatoid arthritis spinedisorderssuppo rtgroup@gro ups.com <mailto:spinedisord erssupportgroup% 40groups. com> Date: Wednesday, March 11, 2009, 7:52 PM Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation??? ?) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 I agree with you Deb, it is very important if you are having arthritis problems to get a confirmation on which one you really have. I was having so much trouble with arthritis, this is what I did, I just wanted to know for sure which it was.  Bama,  The dog has seldom been successful in pulling man up to its level of sagacity, but man has frequently dragged the dog down to his. Thurber                                                                             ________________________________ From: Debra <i_ownaberner@...> spinal problems Sent: Thursday, March 12, 2009 8:29:36 AM Subject: RE: Rheumatoid arthritis Another way to describe RA.....it is a systemic disease that affects all organs not just your joints. I have RA and due to the inflammation my normal body temp is 99.6-101.... do many people confuse the 2 and will say they have rheumatoid and after speaking to them for a few minutes it becomes apparent that they are confused and suffer from osteo.... Deb RN From: spinedisorderssuppo rtgroup@gro ups.com [mailto:spinedisorderssuppo rtgroup@gro ups.com] On Behalf Of Babbitt Sent: Thursday, March 12, 2009 7:38 AM spinedisorderssuppo rtgroup@gro ups.com Subject: Re: Rheumatoid arthritis Remember thet Rheumatoid arthritis and the typical osteoarthritis are very different things. Normal arthritis occurs with aging and loss of cartilage associated with aging.Osteoarthriti s is common in the spine and knees. Bones tend to rub on each other and create bone spurs as well. Rheumatoid is an autoimmune disease that can happen at a younger age and is very different than the arthritis due to aging. It occurs when the body stops recognizin certain cells as it's own and decides to start attcking itself. --- From: cathy mccarthy <bbhorsetack@ roadrunner. com <mailto:bbhorsetack %40roadrunner. com> > Subject: Rheumatoid arthritis spinedisorderssuppo rtgroup@gro ups.com <mailto:spinedisord erssupportgroup% 40groups. com> Date: Wednesday, March 11, 2009, 7:52 PM Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation??? ?) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy.... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50.... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 I look forward to reading their post, very informative, and professional. Thanks ladies, I wouldn't know what to do without ya'll  Bama,  The dog has seldom been successful in pulling man up to its level of sagacity, but man has frequently dragged the dog down to his. Thurber                                                                             ________________________________ From: " wendy.tom@... " <wendy.tom@...> spinal problems ; spinal problems Sent: Thursday, March 12, 2009 8:46:48 AM Subject: RE: Rheumatoid arthritis Just want to say how lucky we are to have you two gals on this support site: Deb, you guys are very helpful and I always look forward to reading your emails because I know you both have something informative to say! As well as supportive. Happy almost spring day! RN in DC Rheumatoid arthritis spinedisorderssuppo rtgroup@gro ups.com <mailto:spinedisord erssupportgroup% 40groups. com> Date: Wednesday, March 11, 2009, 7:52 PM Rheumatoid arthritis and stress... Good golly I am in a lot of pain lately. Did the gosh darn arthritis thing settle in my spine as well??? AND I have been in alot of stress. (My Mom might have to have surgery on her her heart. (Valves not working properly, at 83, and in very excellent shape for her age, medicare has to decide if she is worth the operation??? ?) My back has been messed up for a long time. Could " stress " kick in with this new pain level???? I dunno. ALL my joints are on fire!!! Have a pain Doc appt. next week and still looking for a new neuro guy... (thank you for Doc Glasiers(?) name). How many of you have been told your underlying problem is arthritis??? Mine was caused by swelling of the spinal cord, simply put. Something you have a one in three million chances of getting.... lucky me.... But this pain level today is like " the old days " , very high. I thought I was past that stage!!!! I am 50... too old for this crap. I have had tis since 1990, it stole my life. Back pain is a ****** I do not care what caused it. NOBODY understands. We look so " normal... " akkkkk. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Hi, Sally from Australia here. I was diagnosed with RA about five years ago (I'm 62) and I've been able to manage the disease with the help of good diet and supplements and no medication. I've been on Bee's health program for the past six months and I feel that most of the inflammation has gone now. So her program has really helped. I'm pretty sure that if I stick to it, I won't have any major problems with RA again. It is so good to feel that I'm in control! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2009 Report Share Posted July 4, 2009 > > Wondering if anyone has experience with improving RA or sciatica on this > diet. Also, would a food rotation diet be helpful, just with the approved > foods? I have read that arthritis can be caused by food allergies. +++Hi . Rheumatoid arthritis and other forms of arthritis are caused by toxins - see this article: http://www.healingnaturallybybee.com/articles/arth1.php There is no such thing as being allergic to good unadulterated foods from Mother Nature, since our bodies are designed to consume them. However, good healing foods, herbs and spices will cause healing reactions, which is a good thing. See this article about what allergies actually ARE: http://www.healingnaturallybybee.com/articles/heal11.php http://www.healingnaturallybybee.com/articles/menu4_1.php All the best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Consider it changed :-) -- Re: Rheutoid arthritis I can't believe that there has been 15 responses to this thread and no one has bothered to change the spelling. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Doug, This site may be of interest to you. I don't remember if I sent it to you or not. yo can use the search feature to explore other topics of interest. http://mdheal.org/leakygut.htm Joan Jane the itching seems to be worse at night and is the itching related to rheumatoid arthritis? I have it in both hands but it is worse in the left. I still think it could be a supplement I am reacting to but have not identified. What makes me wonder if it is still candida related is sometimes it seems I feel it more a period after I have eaten. Today it has been red and swollen but no itching during the day. Doug _________________________________________________________________ Hotmail: Trusted email with powerful SPAM protection. http://clk.atdmt.com/GBL/go/177141665/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Joan, thanks I'll look it over. I am also experimenting with eliminating foods or supplements and wonder if even cocunut oil might be doing something to me regarding the rh. arthritis. Doug From: Joan Dwyer <rosegardenstudio@...> Subject: RE: Rheumatoid arthritis candidiasis Date: Friday, January 1, 2010, 11:01 AM  Doug, This site may be of interest to you. I don't remember if I sent it to you or not. yo can use the search feature to explore other topics of interest. http://mdheal. org/leakygut. htm Joan Jane the itching seems to be worse at night and is the itching related to rheumatoid arthritis? I have it in both hands but it is worse in the left. I still think it could be a supplement I am reacting to but have not identified. What makes me wonder if it is still candida related is sometimes it seems I feel it more a period after I have eaten. Today it has been red and swollen but no itching during the day. Doug ____________ _________ _________ _________ _________ _________ _ Hotmail: Trusted email with powerful SPAM protection. http://clk.atdmt. com/GBL/go/ 177141665/ direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 I agree with Jane about the differences between Osteo and Rheumatoid symptoms and treatment options. I have been suffering with RA since my son was born(12 years). No family history at all. I always suspected that I got something from the hospital as I had a preemie and I was in antepartum and in NICU for 5 months due to many complications for the baby and myself. I did pore over abstracts burning the midnight oil several years to find a way to get an answer for my RA. I did everything to keep the inflammation down. I did start Enbrel shots when it came out hence within an year of my son's birth in 1998 I started feeling better. My joints and fingers look great in Xray even now like that of a normal person. I recently went to my MD Naturopath who did a blood test on me as he suspected that I may have Mycoplasma. I do not have Lyme disease but the doctor said that my CD-57 and Mycoplasma P. was borderline high. He put me on Minocycline, a mild dose antibiotic which he said will start working by bringing the levels of bacteria down. After 6 months he said he will review to see how my body is doing. He said that between the 2 evils Minocycline is better than Enbrel. And, I could get of the med in a year or so depending on how my body is behaving. I normally hate allopathic drugs and this was hard to take but things have changed for me. I am pain-free within 1 month now. I am able to handle almost any foods including allergens like Wheat, dairy and sugar. I suspect with RA one has a severe leaky gut. I have ordered an Ayurvedic equivalent of Minocycline called Septilin from Himalaya Pharmacy in India which I plan to start once it arrives. You need to get the formulation from India and not the one made locally here to get the full benefit. My doctor asked me to start that along with Minocycline and taper off the antibiotic later. There are articles about RA and Minocycline on the web. shanthi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Shanthi, did all your finger swellling go away? Mine must be related to lyme or candida as I am 63 and up until a month ago did not have this. Doug From: Shanthi <shanthi_jayk@...> Subject: Re: Rheumatoid Arthritis candidiasis Date: Friday, January 1, 2010, 2:05 PM  I agree with Jane about the differences between Osteo and Rheumatoid symptoms and treatment options. I have been suffering with RA since my son was born(12 years). No family history at all. I always suspected that I got something from the hospital as I had a preemie and I was in antepartum and in NICU for 5 months due to many complications for the baby and myself. I did pore over abstracts burning the midnight oil several years to find a way to get an answer for my RA. I did everything to keep the inflammation down. I did start Enbrel shots when it came out hence within an year of my son's birth in 1998 I started feeling better. My joints and fingers look great in Xray even now like that of a normal person. I recently went to my MD Naturopath who did a blood test on me as he suspected that I may have Mycoplasma. I do not have Lyme disease but the doctor said that my CD-57 and Mycoplasma P. was borderline high. He put me on Minocycline, a mild dose antibiotic which he said will start working by bringing the levels of bacteria down. After 6 months he said he will review to see how my body is doing. He said that between the 2 evils Minocycline is better than Enbrel. And, I could get of the med in a year or so depending on how my body is behaving. I normally hate allopathic drugs and this was hard to take but things have changed for me. I am pain-free within 1 month now. I am able to handle almost any foods including allergens like Wheat, dairy and sugar. I suspect with RA one has a severe leaky gut. I have ordered an Ayurvedic equivalent of Minocycline called Septilin from Himalaya Pharmacy in India which I plan to start once it arrives. You need to get the formulation from India and not the one made locally here to get the full benefit. My doctor asked me to start that along with Minocycline and taper off the antibiotic later. There are articles about RA and Minocycline on the web. shanthi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Doug- my itching seems to be related to the inflammation. Since you do take herbs for the Lyme, it could be a separate issue from the swelling. I certainly feel for you since it is a constant guessing game. Diet is huge with RA and most autoimmune disorders (really just about everything can be related back to it, huh?). When I took gluten out, all my hand issues went away (2 1/2 yrs ago). I was floored at the difference. Even now, with the pain that has come back it does get worse if I have even a bite of gluten. I have also noticed symptoms worsening with corn and sugar as well. I thought that I had handled these foods well before, but now know that the whole leaky gut/Candida thing played a major role in all of this. Even though I have felt better in some ways (no longer bedridden 1/2 the time), in other ways I continue to have new symptoms pop up. Mostly with my hands. I am 46 and this time last year my hands were only a slight problem. I have been amazed at how fast some of these things come on. One of my latest additions in these funny bumps (I am guessing nodules) on my wrists and the back of my left hand. From what I can figure out, they are like little hernias of synovial fluid and they really freak me out. I think they call them ganglions and this has been even more incentive to stay the course for a good diet! Jane -- Re: Rheutoid arthritis Jane, thank you verymuch and I need to process what you have said and make some decisions. I am trying to figure whether my issue may be not lyme but something I have added to my total regimen. I have been on the cystine for a month. I am going to drop that for a week and see if that has an impact. I would like to stay in touch with you on this, thanks Doug .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 This is interesting, Shanthi. My daughter (age 9) is positive for Mycoplasma P and every year she has pneumonia. We are at the end of this year's bout these last couple of weeks. When I realized last year that she was positive for this at age 5, I started to wonder if this was a large part of the problem. I went on to read Garth Nicholson's stuff as well as Dr. Brown's info, but could not do the Mino due to breastfeeding my youngest. So this past week as my daughter is recovering once again, my hand and arm pain is worse. We did manage to avoid antibiotics for her this year and even avoided the constant albuterol in the nebulizer. Instead the combo of nebulized molecular silver with hydrogen peroxide worked pretty well (Respiratory Support from World Health Mall). We also did Proboost Thymic Protein A, 10,000 IU D3, olive leaf, LDM-100 and extra C. This time she is recovering much faster than previous years. I do feel that all we are doing is beating the numbers back down until next time. I would be very interested in which site you ordered the Septilin from I see quite a few of them. Thank you so much for posting this and I hope this works for you! Jane -- Re: Rheumatoid Arthritis I agree with Jane about the differences between Osteo and Rheumatoid symptoms and treatment options. I have been suffering with RA since my son was born(12 years). No family history at all. I always suspected that I got something from the hospital as I had a preemie and I was in antepartum and in NICU for 5 months due to many complications for the baby and myself. I did pore over abstracts burning the midnight oil several years to find a way to get an answer for my RA. I did everything to keep the inflammation down. I did start Enbrel shots when it came out hence within an year of my son's birth in 1998 I started feeling better. My joints and fingers look great in Xray even now like that of a normal person. I recently went to my MD Naturopath who did a blood test on me as he suspected that I may have Mycoplasma. I do not have Lyme disease but the doctor said that my CD-57 and Mycoplasma P. was borderline high. He put me on Minocycline, a mild dose antibiotic which he said will start working by bringing the levels of bacteria down. After 6 months he said he will review to see how my body is doing. He said that between the 2 evils Minocycline is better than Enbrel. And, I could get of the med in a year or so depending on how my body is behaving. I normally hate allopathic drugs and this was hard to take but things have changed for me. I am pain-free within 1 month now. I am able to handle almost any foods including allergens like Wheat, dairy and sugar. I suspect with RA one has a severe leaky gut. I have ordered an Ayurvedic equivalent of Minocycline called Septilin from Himalaya Pharmacy in India which I plan to start once it arrives. You need to get the formulation from India and not the one made locally here to get the full benefit. My doctor asked me to start that along with Minocycline and taper off the antibiotic later. There are articles about RA and Minocycline on the web. shanthi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Jane, someone posted that this might be dermatitis. Dermatitis can cause reddness, itching and even the swellling. I am going to try a web suggested mix of olive oil and baking soda and see if that helps. It sounds like yours is a mess. Before I went to bed I read something that itching could be from two liver diseases or even bladder cancer. While I have no proof of such a link it made my itchy night seem even worse. I will look into the gluten, although I think I don't consume any now. Doug From: Jane <GreenEcoBean@ cox.net> Subject: Re: Rheutoid arthritis candidiasis Date: Thursday, December 31, 2009, 1:20 PM Doug - I can certainly relate to what you are saying. It is very overwhelming to deal with all of this and to learn what is right for you. I have been working on healing my kids as well as myself and you would think that after almost 10 years of it, that I would get it. It has been the most frustrating journey of my life, but one that I intend to have success with before I croak! I know with my son (the one that I have been working on the longest), dropping the most recent addition is the first thing I try as well. Also keep in mind that a lot of these symptoms crop up down the road no matter what you are currently doing. When my fingers first started swelling I hadn't changed anything other than the implementation of the full (Cowden) Lyme protocol about a month before. The swelling also seemed to ebb and flow as well. I could never connect it to anything other than the next step in my ever growing list of problems. Does your inflammation happen mostly at night or is it all day as well? With Rheumatoid, usually the swelling is at night and gets better during the day or " with movement. " Rheumatoid is also usually symmetrical, but not always. Jane -- Re: Rheutoid arthritis Jane, thank you verymuch and I need to process what you have said and make some decisions. I am trying to figure whether my issue may be not lyme but something I have added to my total regimen. I have been on the cystine for a month. I am going to drop that for a week and see if that has an impact. I would like to stay in touch with you on this, thanks Doug .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Well, common triggers for RA are vegetables from the nightshade family. And then in a lot of people gluten, corn, dairy and sugar. I also seem to get more symptoms from shellfish. So whether this is really just due to leaky gut (which is what I believe) and it depends on what a person is sensitive too or these are just the common ones that most react to, not sure. So the possibility you have recently become sensitive to another food, is something to pay attention to as well maybe. Jane -- Re: Rheutoid arthritis Jane, thank you verymuch and I need to process what you have said and make some decisions. I am trying to figure whether my issue may be not lyme but something I have added to my total regimen. I have been on the cystine for a month. I am going to drop that for a week and see if that has an impact. I would like to stay in touch with you on this, thanks Doug .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 The mild silver protein by Invive eliminated mycoplasma using IV method . Just Google these terms and you'll find the video of this woman named . If you can't find it , reply back and I'll find it for you by doing same inquiries. Re: Rheumatoid Arthritis I agree with Jane about the differences between Osteo and Rheumatoid symptoms and treatment options. I have been suffering with RA since my son was born(12 years). No family history at all. I always suspected that I got something from the hospital as I had a preemie and I was in antepartum and in NICU for 5 months due to many complications for the baby and myself. I did pore over abstracts burning the midnight oil several years to find a way to get an answer for my RA. I did everything to keep the inflammation down. I did start Enbrel shots when it came out hence within an year of my son's birth in 1998 I started feeling better. My joints and fingers look great in Xray even now like that of a normal person. I recently went to my MD Naturopath who did a blood test on me as he suspected that I may have Mycoplasma. I do not have Lyme disease but the doctor said that my CD-57 and Mycoplasma P. was borderline high. He put me on Minocycline, a mild dose antibiotic which he said will start working by bringing the levels of bacteria down. After 6 months he said he will review to see how my body is doing. He said that between the 2 evils Minocycline is better than Enbrel. And, I could get of the med in a year or so depending on how my body is behaving. I normally hate allopathic drugs and this was hard to take but things have changed for me. I am pain-free within 1 month now. I am able to handle almost any foods including allergens like Wheat, dairy and sugar. I suspect with RA one has a severe leaky gut. I have ordered an Ayurvedic equivalent of Minocycline called Septilin from Himalaya Pharmacy in India which I plan to start once it arrives. You need to get the formulation from India and not the one made locally here to get the full benefit. My doctor asked me to start that along with Minocycline and taper off the antibiotic later. There are articles about RA and Minocycline on the web. shanthi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 I ordered Septilin through a friend who is now traveling in India. I was told that the formulation here is not potent or is not the same. If you know anybody who is traveling to India it is best to get it from there. It is sold in pharmacies in India which sells Ayurvedic medicines alongside Allopathic drugs. You can get for a fourth of its price advertised here. Jane, there is no website for such pharmacies. I called them over the phone and asked them if they had it and sent an email to my friend to buy them. Remember, with luggage restrictions now one cannot bring a lot hence I have ordered a six month supply for now. With regard to Doug's question about swelling of fingers - I used to get swelling the first couple of years after diagnosis, since I started Enbrel 11 years ago the swelling went away. Since Enbrel is a biological I tried to do the shots PRN and tolerated some pain in my joints as I had developed a good pain threshold over the years. The moment I had to drag myself out of the bed I would reach for Enbrel. Now with Minocycline I dont have to do that anymore. I am taking the antibiotic 3x a week. Initially it was making me feel light-headed but my body is getting better adjusted now. Also,I started going to the Chiropractor simultaneously who fixed some past issues with my ankle, knee etc. This has helped me tremendously as I am able to sleep through the nights without tossing and turning. I am sure RA sufferers will understand what I mean. An important thing my MD said is that I should not touch sugar in any form when I am on the drug as it will create a major candida issue. I have a cheated a few times during the holidays and paid for it. I am able to tolerate dairy which is my worst allergen. I ate shellfish on New Year's eve which is my next worst allergen and I did fine. My doctor said that fruits were ok. I have eaten quite a few fruits since I started the med and I did just fine.The one that tipped the balance was tasting chocolate cake that I baked for my kid's sleep-over. Â With self-control I hope in a year or so my immune system will get stronger and overcome the invader. Quote Link to comment Share on other sites More sharing options...
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