Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 But the question was is Ridalin liver friendly? Someone mentioned her husband is taking it for fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 oops. After reading all the messages in order, I see the Ridalin question was already answered. " Never mind. " Tree But the question was is Ridalin liver friendly? Someone mentioned her husband is taking it for fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 I hear some of you say that the thyroid can cause sleeplessness. And it seems most heppers aren't sleeping long periods. Yet tired. I am tired all the time. The thyroid changes and doses don't affect it. I figure it's the Hep. But as tired as I am, I can't get to sleep without help. I'm down to the lowest dose that works.........7.5 mgs. Restoril. I had started with 60 mgs., but trying not to put too much bad stuff in me, I've gotten down to 7.5. It turns off the lights behind my eyelids. And makes me not notice any little residual itches that the Actigall doesn't remove. But I still have this wacky schedule I'm stuck on. No matter when I take the Restoril, I still don't go to sleep before 6 am! Sometimes 8am. But I sleep well! So I sleep all day. I wish I could change that but when I try, it just backfires and I end up on a worse schedule! At least I'm up when the kids come home from school. They just don't see much on the weekends! Sick and tired of being sick and tired............but sleeping well....... Luv, Simone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 Dear Simone, I've had problems with insomnia for years, plus I'm a natural born night-owl. I once read an article about how to change your sleep habits. It said if you wanted to be able to fall asleep at an earlier hour than you are used to that you should start staying awake for one hour LATER each day(i.e. 7;00am instead of 6:00am, then 8:00am, etc.), until you work yourself around the clock to the hour you want to go to sleep at on a regular basis. I didn't actually try it myself, but who knows, maybe it would work! Claudine >From: Skandalyze@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Fatigue >Date: Thu, 3 Feb 2000 22:10:22 EST > >I hear some of you say that the thyroid can cause sleeplessness. >And it seems most heppers aren't sleeping long periods. Yet tired. >I am tired all the time. The thyroid changes and doses don't affect it. I >figure it's the Hep. But as tired as I am, I can't get to sleep without >help. I'm down to the lowest dose that works.........7.5 mgs. Restoril. I >had started with 60 mgs., but trying not to put too much bad stuff in me, >I've gotten down to 7.5. It turns off the lights behind my eyelids. And >makes me not notice any little residual itches that the Actigall doesn't >remove. But I still have this wacky schedule I'm stuck on. No matter when >I >take the Restoril, I still don't go to sleep before 6 am! Sometimes 8am. >But I sleep well! So I sleep all day. I wish I could change that but when >I >try, it just backfires and I end up on a worse schedule! >At least I'm up when the kids come home from school. They just don't see >much on the weekends! >Sick and tired of being sick and tired............but sleeping well....... >Luv, Simone ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 Greg Hart <hartg@...> wrote: > So, what about fatigue? Some have suggested that training free > throws in fatigued condition is good, some say not? Is the fatigue > after a heavy lifting workout the same as the fatigue after 48 > minutes of basketball? Does one have an effect on learning and/or > performance? I don't think post-lifting fatigue resembles in-game fatigue much at all. No amount of basketball makes your arms rubbery, and lifting before basketball practice shouldn't leave your heart still pounding in your chest. I'd expect a basketball player shooting a freethrow to face issues more like what a biathlete faces; he needs to bring his breathing and heartrate back under control after vigorous exertion. Matt Madsen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 My husband has Hep C, and there are times when just going to the grocery store makes him feel like he has run a marathon. The fatigue is not in your head, and any doctor who knows anything about the virus knows flu-like symptoms and exhaustion are a couple of its symptoms. Tree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 In a message dated 1/17/01 12:23:54 PM Pacific Standard Time, @... writes: My doctor tends to dismiss my complaints about tiredness. Dear Russ, Are you currently on any type of treatment? I know with combo that it is pretty much common knowledge that fatigue can be one of the worst and most pervasive side effects. Fatigue is also a hallmark symptom of HepC itself. Many of us were diagnosed as depressed due to our fatigue from hepC. That is horrible that your doc dismisses your complaints. Has he/she had your red blood cell count checked? Mine dropped during my first month of combo and I still have shortness of breath sometimes. (Like any time that I move faster than a snail or try to carry something.) Maybe your doc just doesn't know how to treat your fatigue and rather than admit that...he simply dismisses it. I'm not taking any medicine for the fatigue but I know that others on this list have told me about various medications that can help if your red blood cells go down too low. Your doc really should be paying attention to your fatigue...some people have to have their Ribavirin dose lowered due to dangerously low red blood cells. Hope this helps. Hugs, Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 I my self also experience a lot of fatigue in sparadic dose's. I do not know if it's from the hep or something else, but it is more than I have ever had. Hang in there. MARK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Russ, My doc is the same, when I was on Rebetron he contributed the fatigue to that, now that it's been a few months without it he just shrugs his shoulders!! What do we have to do to convince them????!!!?? Sherry What are your experiences of fatigue. My doctor tends to dismiss my complaints about tiredness. What does anybody else think? Russ new e-mail address This letter is to all on my mailing list. I just want to let you know that I will be using the following e-mail address for all my e-mail. goldylocksNJ@... Thank you, Terri ________________________________________________________________________ ________________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 HI , IS HE IN TREATMENT? MY BOYFRIEND WAS DOING TREATMENT AND IT ABOUT KILLED HIM . HE WAS UNRESPONSIVE AND TAKEN OFF TREATMENT . THE VIRUS CANT BE WORSE THAN THE TREATMENT!! DEB Re: Fatigue > My husband has Hep C, and there are times when just going to the grocery > store makes him feel like he has run a marathon. The fatigue is not in your > head, and any doctor who knows anything about the virus knows flu-like > symptoms and exhaustion are a couple of its symptoms. Tree > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 No, he has decided against the treatment for that very reason (making you feel worse), and the number of people who stay in remission once treatment stops is too few, in his opinion, to go through it. Tree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 hi..... how long has he had the virus? Is he working now? we are trying to work thru emotional issues as well as the physical too....... any help? deb Re: Fatigue > No, he has decided against the treatment for that very reason (making you > feel worse), and the number of people who stay in remission once treatment > stops is too few, in his opinion, to go through it. Tree > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 hi , this is deb again..... im wondering if hes had a biopsy , and what his viral count and ALT. number is? thanks Re: Fatigue > No, he has decided against the treatment for that very reason (making you > feel worse), and the number of people who stay in remission once treatment > stops is too few, in his opinion, to go through it. Tree > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 deb, He estimates he's had the virus since the 70's. He's 50 now. And no he's not working, but that is not entirely because of the of the virus. (There are other issues here too.) I guess my advice is make the best of the good times and patiently wait out the bad days/weeks/months. We know another couple and the husband also has Hep C. They've had a dishwasher in the box waiting for about a month for him to feel good enough to install it. It's just something they've accepted. Tree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 deb, yes he had a biopsy 2 yrs ago and it showed some cirrhosis (I never spell that correctly). His count has been as high as 2 million, but the dr says he's nowhere near transplant time. He would be considered " stage 1 " he said. Tree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Tree.... you did a great job on cirrhosis.... wish it was as easy to treat as to spell... sorry i have been very much out of touch, but have been reading.... I wish all of you as good a new year as possible... Merril Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 In a message dated 3/19/01 6:54:22 PM Pacific Standard Time, alleypat@... writes: > hey! 6 more weeks of treatment!!! yippeeee...as easy as I think I've had it, > I'll be glad to be done. > > Thats so great . did it seem like a year ? That looks so daunting , a year. > I keep hoping the way time flies , it will feel like a few months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 In a message dated 3/19/01 6:54:22 PM Pacific Standard Time, alleypat@... writes: > hey! 6 more weeks of treatment!!! yippeeee...as easy as I think I've had it, > I'll be glad to be done. > > Thats so great . did it seem like a year ? That looks so daunting , a year. > I keep hoping the way time flies , it will feel like a few months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 hahah for sure! the oatmeal analogy was great I likened the fatigue to walking against the surf - the sand pulling at your feet one way, the waves pushing and pulling against you and your body wanting to do something else entirely. But then if nobody has fought against a strong tide, it's kinda lost haha hey! 6 more weeks of treatment!!! yippeeee...as easy as I think I've had it, I'll be glad to be done. / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 hahah for sure! the oatmeal analogy was great I likened the fatigue to walking against the surf - the sand pulling at your feet one way, the waves pushing and pulling against you and your body wanting to do something else entirely. But then if nobody has fought against a strong tide, it's kinda lost haha hey! 6 more weeks of treatment!!! yippeeee...as easy as I think I've had it, I'll be glad to be done. / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 It seemed like FOREVER when I started. But then you get into a routine and time just passes and you don't realize it. At first you are busy getting your frequent labs done, then you settle into a routine and keep busy. I was working at the time so that certainly helped keep my mind off counting the seconds haha. / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 It seemed like FOREVER when I started. But then you get into a routine and time just passes and you don't realize it. At first you are busy getting your frequent labs done, then you settle into a routine and keep busy. I was working at the time so that certainly helped keep my mind off counting the seconds haha. / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Hi, I am . I have Cirhosis. I cannot sleep either, that is why I am up now, 1:30 am. I sleep for 2 hrs at most and can't go back to sleep for hrs. I am lucky to get 5 hrs total. I just wake up for no reason. You're right, people don't understand, and say be active in day time and maybe you can sleep. It has nothing to do with that, I am very tired, and then in the day, its hard to work full time, without feeling awful. I am always weak and tired. I itch at night also, which is a sympton. I dread the night time. I feel like going somewhere, to pass the time until it is daylight, and there are other people awake. This is every single night and it is so frustrating, sometimes, I just cry because I don't know what to do and my head hurts from no sleep. Believe me I understand.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Hi Greg, I'm interested in other's responses too as I suffer from the same problem. I have tried over 8 different medications designed to help me sleep at night, but none seem to help. I find that I am EXTREMELY fatigued around 8-11 AM. Even my doctors don't seem to understand. I also have a stage 4 sleep disorder. Even when I do sleep, I can't figure out if I'm asleep or awake (if that makes any sense). I also remember all my dreams which means I'm not getting any deep sleep. I feel like a zombie most of the time. I also get mad at people when they just tell me to go to bed and sleep OR just relax and clear your mind and you'll go to sleep. It doesn't work that way. Some days I can fall asleep at midnight others I'm up until 6 AM. My body doesn't seem to be on any schedule. And when I'm awake I'm useless because I'm too tired to do anything. Other than medication, I would be interested to know if anybody else had this problem and was able to overcome it. What works? I think I've tried most everything from taking a hot bath to eating a tsp of peanut butter (someone told me it's supposed to make you sleep). I'd be willing to try almost anything. With being ill, it is like a viscious circle. The illness disrupts my sleep and lack of sleep makes my illness worse. Just can't win. Joining Greg in his frustration... Debbie (Tommy's MOm) > [Original Message] > From: <kgreg777@...> > <liver problems > > Date: 8/18/01 10:15:47 PM > Subject: [ ] fatigue > > hello everyone, > I know i am not the only one with a problem with fatigue and not being able > to sleep.I am having a hard time getting through to other people that the > fatigue is something I deal with everyday.they can't seem to understand why i > cannot just go to bed and sleep for 8 hours and get up ready to go and tackle > the day.It just doesnt work that way,and i am getting a little tired and > pissed of trying to make someone understand who just wont accept the facts.so > i thought i might print some responses from people with that problem and it > might help if they realize im not the only one.anyway i dont know what else > to do,it is really frustrating!!!!!!!!!!!!!!!! please help. > oh by the way my sleep intervals are about 2 hrs of sleep then up until > whenever then another 2 hrs. and so on and different day to day. > > Greg > --- Debra Henry --- debbiehenry@... --- Make every day count!. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2001 Report Share Posted August 19, 2001 Greg, I know how you feel about the fatigue. i also have it in the same way that you described. To bad we all can't get together and hang out at night. I am up and down all night long every night. I have the itch very bad and take Atarax for it and that still does not help me sleep. I nap often during the day.i feel that is all I do anymore is not. not sleep.And the itch is not like any other itch. when i bump my arm or something i feel i have upset the gods and then i itch in that spot and then it spread all over. trust me it is hell. i only hope we can all find a cure for at least the itch HEIDI > liver problems kgreg777@...: Sat, 18 Aug 2001 22:15:32 EDT >Reply- > [ ] fatigue >hello everyone, >I know i am not the only one with a problem with fatigue and not being able >to sleep.I am having a hard time getting through to other people that the >fatigue is something I deal with everyday.they can't seem to understand why i >cannot just go to bed and sleep for 8 hours and get up ready to go and tackle >the day.It just doesnt work that way,and i am getting a little tired and >pissed of trying to make someone understand who just wont accept the facts.so >i thought i might print some responses from people with that problem and it >might help if they realize im not the only one.anyway i dont know what else >to do,it is really frustrating!!!!!!!!!!!!!!!! please help. >oh by the way my sleep intervals are about 2 hrs of sleep then up until >whenever then another 2 hrs. and so on and different day to day. > >Greg >I just wanted to thank everyone who sent advice and words of encouragement. >Both were greatly appreciated. > >I'm sorry about last night. was staying at my Mom's and when she >called about 's toe I lost it. Too much to handle in one day I guess. >Anyway thanks. Zachary seems fine today, thank God. > >Lori ('s Mom) > > Quote Link to comment Share on other sites More sharing options...
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