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My LLMD told me that tinnitus might not resolve, even after successful treatment

with ABXs. Mine has become worse over the last couple months (I stopped ABXs

in mid-July after a year). As it crescendos it brings on a host of neuro

symptoms and fatigue. I get pressure and itching in my inner ears when it gets

bad.

I think it's one of the most common symptoms of neuro Lyme.

[ ] Re: 's story & questions

Date: Sunday, December 19, 2010, 6:24 AM

>

> The only treatment experience that ever affected my tinnitus was the use of a

PEMF machine.

people report the most diverse treatments for getting rid of tinnitus; but

reality is that despite lots of research, there is NO proven treatment. Usually

the problem will disappear or decrease over time, irrespective of what you do.

While there are no proven treatments, there are quite a few proven causes for

tinnitus (e.g. certain drugs).

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>

> I get pressure and itching in my inner ears when it gets bad.

Do you also get this weird effect where your eardrums (?) will pulse, as if you

are standing in a high speed elevator and the pressure is building up in the

ear? At first I thought this was an effect of blood pressure or maybe the large

trigeminus nerve on the inner ear, but the beating frequency is different from

my heart rate. I read somewhere that it can be caused by (permanent) damage to

the inner ear, as a result of infection/inflammation.

Just after my ABX course the effect was really bad, it also caused a feeling of

choking. My MD doesn't know what it is. While my tinnitus is mostly gone

nowadays, the pressure effect on the eardrums still comes and goes (possibly

gets worse when I feel bad or stressed).

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> This is great . My husband has tinnitus and he, as you know, is not a

believer in EHS.

Tinnitus DOES seem to be related to the mobilization of toxins. I normally do

NOT have ringing

ears, however I regularly do short rounds of heavy metal detox using alpha

lipoic acid. After

these rounds, my ears are usually ringing LOUDLY. It is known that after these

rounds, toxins

are being redistributed throughout the body (rather than exiting the body).

Marc

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Someone told me that it could be metal toxification as well. Loni

From: Marc <marc@...>

Subject: Re: Tinnitus

Date: Friday, June 10, 2011, 9:55 AM

 

> This is great . My husband has tinnitus and he, as you know, is not a

believer in EHS.

Tinnitus DOES seem to be related to the mobilization of toxins. I normally do

NOT have ringing

ears, however I regularly do short rounds of heavy metal detox using alpha

lipoic acid. After

these rounds, my ears are usually ringing LOUDLY. It is known that after these

rounds, toxins

are being redistributed throughout the body (rather than exiting the body).

Marc

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Loni, you're right, that's also a possibility. If someone is heavy metal toxic,

I might try the Body Ecology Diet. It's all about avoiding dairy & eating

strictly fermented foods (young coconut kefir, fermented grains, sauerkraut)

etc. It's used for kids w/ autism, but as probiotics aid detox pathways, the

heavy metals seem to chelate themselves " naturally " after 6 months or so on this

diet. P.S. DO NOT take DMPS or EDTA. My Lyme doc, who is a D.O., has seen many

get permanent brain damage from taking these, probably b/c they fail to chelate

the metals out of the nervous system (CNS), & also they just redistribute the

metals in the gut to other areas in the body. More & more, alternative

practitioners are finding that the best ( & possibly only effective) way to get

rid of metals is to have a very strict diet focused around detox, b/c such a

diet makes your body better able to process the metals & other toxins. Ex's:

Body Ecology Diet, Dr. Rau's

alkaline diet, or the one outlined in Minding My Mitochondria by Dr. Wahl. 

From: Marc <marc@...>

Subject: Re: Tinnitus

Date: Friday, June 10, 2011, 9:55 AM

 

> This is great . My husband has tinnitus and he, as you know, is not a

believer in EHS.

Tinnitus DOES seem to be related to the mobilization of toxins. I normally do

NOT have ringing

ears, however I regularly do short rounds of heavy metal detox using alpha

lipoic acid. After

these rounds, my ears are usually ringing LOUDLY. It is known that after these

rounds, toxins

are being redistributed throughout the body (rather than exiting the body).

Marc

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> P.S. DO NOT take DMPS or EDTA.

I suspect your are referring to large amounts of DMPS or EDTA via IV?

Taking small amounts of these substances should be fine. People using

the Andy Cutler protocol often report improvement by taking tiny (5mg)

amounts of DMPS every 8 hours.

And some people report improvements via IV, although this can

definitely be dangerous.

Marc

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Nope, my Lyme doc said don't take them in ANY form. If you're electro-sensitive,

I wouldn't take the risk, even though DMPS & EDTA have helped many people. 

From: Marc <marc@...>

Subject: Re: Tinnitus

Date: Friday, June 10, 2011, 2:28 PM

 

> P.S. DO NOT take DMPS or EDTA.

I suspect your are referring to large amounts of DMPS or EDTA via IV?

Taking small amounts of these substances should be fine. People using

the Andy Cutler protocol often report improvement by taking tiny (5mg)

amounts of DMPS every 8 hours.

And some people report improvements via IV, although this can

definitely be dangerous.

Marc

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> Nope, my Lyme doc said don't take them in ANY form.

Okay, well, that's one doctors opinion... unfortunately, there

are as many doctor's opinions as there are doctors... at

this point, I don't really trust any of them...

Marc

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I totally agree with you Elysia about detoxing but man it is hard to stick to a

very strict diet as such. My husband is a huge milk & cheese consumer & he would

never give those things up.

 

Just sayin! Loni

From: Marc <marc@...>

Subject: Re: Tinnitus

Date: Friday, June 10, 2011, 9:55 AM

 

> This is great . My husband has tinnitus and he, as you know, is not a

believer in EHS.

Tinnitus DOES seem to be related to the mobilization of toxins. I normally do

NOT have ringing

ears, however I regularly do short rounds of heavy metal detox using alpha

lipoic acid. After

these rounds, my ears are usually ringing LOUDLY. It is known that after these

rounds, toxins

are being redistributed throughout the body (rather than exiting the body).

Marc

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Probably depends on your detox system and what degree of damage has been done.

For most of us it is pretty bad I would imagine.

 

Wouldn't that be stronger or more harsh than ALA?  I know even that is

difficult for me!

 

Loni

From: Marc <marc@...>

Subject: Re: Tinnitus

Date: Friday, June 10, 2011, 11:28 AM

 

> P.S. DO NOT take DMPS or EDTA.

I suspect your are referring to large amounts of DMPS or EDTA via IV?

Taking small amounts of these substances should be fine. People using

the Andy Cutler protocol often report improvement by taking tiny (5mg)

amounts of DMPS every 8 hours.

And some people report improvements via IV, although this can

definitely be dangerous.

Marc

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Yes I have trouble trusting docs as well but at least this one believes that EHS

is real! Loni

From: Marc <marc@...>

Subject: Re: Tinnitus

Date: Friday, June 10, 2011, 11:59 AM

 

> Nope, my Lyme doc said don't take them in ANY form.

Okay, well, that's one doctors opinion... unfortunately, there

are as many doctor's opinions as there are doctors... at

this point, I don't really trust any of them...

Marc

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> Wouldn't that be stronger or more harsh than ALA?  I know even that is

difficult for me!

Generally people find DMPS more tolerable than ALA. This is because ALA is both

fat

and water soluble, so it can draw out toxins from everywhere within the body.

DMPS is

only water soluble, so it can only get at SOME toxins in the body.

Marc

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There is a cottage cheese detox diet, Loni!  ;) 

From: Marc <marc@...>

Subject: Re: Tinnitus

Date: Friday, June 10, 2011, 9:55 AM

 

> This is great . My husband has tinnitus and he, as you know, is not a

believer in EHS.

Tinnitus DOES seem to be related to the mobilization of toxins. I normally do

NOT have ringing

ears, however I regularly do short rounds of heavy metal detox using alpha

lipoic acid. After

these rounds, my ears are usually ringing LOUDLY. It is known that after these

rounds, toxins

are being redistributed throughout the body (rather than exiting the body).

Marc

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