Tinnitus

[Guest guest]

It's me again. This is really not a fun site I have given to you. It does

mention in

one of the links vitamin B12 in a title somewhere. Other than that, the

information

is very 'drug' oriented. I do not have the tinnitus but if I did I would think

the person

who suggested this site was insensitive. Sorry. I'll be more careful when

pointing

the finger, so to speak. Swan

Hi,

At OHSU-www.ohsu.edu has research, medical education, and hospital and

clinics.

http://www.ohsu.edu/ohrc/tinnitusclinic/index.htm

The website above tells about tinnitus which was discussed on this

website

recently. I thought you could have a look...I only found it today.

Swan

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[Guest guest]

Re: Dana and flying

I flew 3 weeks after my 1st cholesteatoma surgery - it was all scheduled pretty tightly but my ENT said after 3 weeks it would be fine.

It was okay, the ear that was operated on was fine (the right ear). It was actually my left ear (my "good" ear, no trouble usually) that had a problem. Since I couldn't "pop"/clear my ears, that one got a bit painful and then took a day or so to get right again - it felt funny, like it needed to be popped.

That's just my experience and I'm not trying to put you off the flight. No damage was done, it wasn't terrible. If I had a reason to fly again so soon after surgery, I would do it again. Good luck!

[Guest guest]

Thanks for

the excellent overview of tinnitus therapy. I have had tinnitus for 5 years and

I learned more about it in your email than I have over that time – I’ll have to

see if it that therapy is available here.

Regarding the

fluid in your ears and not being able to clear them – have you flied in that

condition? I have cholesteatoma surgery 3 weeks ago and the doctor said I could

fly but I still have a lot of drainage and haven’t been able to clear my ears.

Am I crazy to try to fly? The doctor said it shouldn’t be painful but the nurse

said it might be.

Dana

-----Original

Message-----

From: Pete Jewell

[mailto:morph@...]

Sent: Monday, April 15, 2002 2:10

PM

cholesteatoma

Subject: Tinnitus

Hi

I had an appointment with a Tinnitus Therapist last Tuesday. I

thought

some might find my experience interesting or useful.

The appointment lasted an hour, and seemed to be geared toward finding

out what my experiences and perceptions of tinnitus are.

The different types of tinnitus are classified. The two types I

appear

to have are 'high tone', and 'pulsatile'. Pulsatile is the type where

you hear your pulse. I've also seen it described as hearing waves

crashing on a beach.

The audiology department at the hospital follows the Tinnitus Retraining

Therapy (TRT) programme. I've read good and bad things about this on

the net, so I'm still not sure what to expect with this.

TRT defines tinnitus as the natural sound of electrical activity in the

ear. As there is no cure for tinnitus TRT is geared around helping

the

sufferer to habituate to the condition. The idea is that once

habituated the sufferer will no longer hear the tinnitus, as it is now

reclassified in the auditory memory as harmless background noise, and

therefore safely ignored.

The reason given for tinnitus being a problem in the first place is

based on what is understood (or theorised) about how sound gets to the

brain. They say that once converted into an electrical signal in the

inner ear, the signal first goes through Autonomic Nervous System, where

the 'sound' is passed through a filter to detect things that indicate

danger. The sound of a predator (in the case of an animal), or car

horn, for instance. The allows the body to respond before the

conscious

part of the brain has had a chance to register the sound, as this part

of the brain is directly connected to the brain stem (I think I've

understood that bit right!).

When tinnitus becomes a problem it is thought to be because it has

become classified as a danger sound, so the body reacts before the brain

has had a chance to kick (so to speak). Hmmm, this may explain why I

tend to put my foot in it so often ;-)

TRT aims to reprogram, or unlearn, this classification.

The use of 'maskers' was raised. For those that don't know, maskers

produce white noise - a random noise that contains sounds on all

frequencies. The perceived wisdom used to be that maskers should be

used to drown out the tinnitus. This has been found to be unhelpful

in

the long term, as once the sufferer stops using the masker, their

tinnitus returns.

Now maskers are used to help with the habituation. Their volume level

should be below that of the tinnitus, as the tinnitus must be heard to

be habituated to. The reason they're thought to still be useful is

that

they stimulate all the nerve cells in the subconscious network between

ear and brain, allowing them to be more easily reprogrammed.

An audiologist sat in on the appointment. From her I learnt that I

will

not be a candidate for hearing aids (to help with the tinnitus or

otherwise) until my hearing settles down to something predicable.

With

the fluid building up in my middle ear (until I'm able to pop my ears)

my hearing varies from day to day.

However, they introduced me to other gizmos and gadgets that could prove

useful. To help with the TV they suggested an infrared earphones

system. These are the under chin variety, with a mic placed near the

TV. I was amazed how much clearer the TV sound was using this (I'll

probably be getting one, but they're not cheap at UKP120+). Any time

I'm straining to hear I'm more likely to notice the tinnitus, so

reducing the need to strain is helpful.

The RNID catalogue has loads of things, such as alarm clocks that have a

vibrating pad to go under the pillow (I'll *definitely* be getting one

of these!), along with phone amplifiers (plug in and clip on), white

noise generators, under pillow speakers, and other paraphernalia.

My next appointment is on 13 May, so I'll have a better idea of the

'treatment' then. They're waiting to see what my ENT says when I see

him on the 2nd of May. Hopefully he's going to schedule the first op.

for my right ear.

Oh, and thanks to the suggestions by others on the list about

Osteopaths, I'm seeing one tomorrow morning about my Eustachian tubes

:-)

--

Pete

pete@...

-------------------------------------------------------------

MaVerick - Open Source MultiValue Database Management System

Check out the website -> http://www.maverick-dbms.org

[Guest guest]

Hi Dana,

I think I remember Kim saying that flying was a little

painful for her. Something to do with altitude and

pressurized cabins. I don't know if this helps.

Maybe it is a case by case thing.

Michele

--- Dana Valentine <danav@...> wrote:

> Thanks for the excellent overview of tinnitus

> therapy. I have had tinnitus

> for 5 years and I learned more about it in your

> email than I have over that

> time - I'll have to see if it that therapy is

> available here.

>

> Regarding the fluid in your ears and not being able

> to clear them - have you

> flied in that condition? I have cholesteatoma

> surgery 3 weeks ago and the

> doctor said I could fly but I still have a lot of

> drainage and haven't been

> able to clear my ears. Am I crazy to try to fly? The

> doctor said it shouldn'

> t be painful but the nurse said it might be.

> Dana

>

>

> Tinnitus

>

> Hi

>

> I had an appointment with a Tinnitus Therapist last

> Tuesday. I thought

> some might find my experience interesting or useful.

>

> The appointment lasted an hour, and seemed to be

> geared toward finding

> out what my experiences and perceptions of tinnitus

> are.

>

> The different types of tinnitus are classified. The

> two types I appear

> to have are 'high tone', and 'pulsatile'. Pulsatile

> is the type where

> you hear your pulse. I've also seen it described as

> hearing waves

> crashing on a beach.

>

> The audiology department at the hospital follows the

> Tinnitus Retraining

> Therapy (TRT) programme. I've read good and bad

> things about this on

> the net, so I'm still not sure what to expect with

> this.

>

> TRT defines tinnitus as the natural sound of

> electrical activity in the

> ear. As there is no cure for tinnitus TRT is geared

> around helping the

> sufferer to habituate to the condition. The idea is

> that once

> habituated the sufferer will no longer hear the

> tinnitus, as it is now

> reclassified in the auditory memory as harmless

> background noise, and

> therefore safely ignored.

>

> The reason given for tinnitus being a problem in the

> first place is

> based on what is understood (or theorised) about how

> sound gets to the

> brain. They say that once converted into an

> electrical signal in the

> inner ear, the signal first goes through Autonomic

> Nervous System, where

> the 'sound' is passed through a filter to detect

> things that indicate

> danger. The sound of a predator (in the case of an

> animal), or car

> horn, for instance. The allows the body to respond

> before the conscious

> part of the brain has had a chance to register the

> sound, as this part

> of the brain is directly connected to the brain stem

> (I think I've

> understood that bit right!).

>

> When tinnitus becomes a problem it is thought to be

> because it has

> become classified as a danger sound, so the body

> reacts before the brain

> has had a chance to kick (so to speak). Hmmm, this

> may explain why I

> tend to put my foot in it so often ;-)

>

> TRT aims to reprogram, or unlearn, this

> classification.

>

> The use of 'maskers' was raised. For those that

> don't know, maskers

> produce white noise - a random noise that contains

> sounds on all

> frequencies. The perceived wisdom used to be that

> maskers should be

> used to drown out the tinnitus. This has been found

> to be unhelpful in

> the long term, as once the sufferer stops using the

> masker, their

> tinnitus returns.

>

> Now maskers are used to help with the habituation.

> Their volume level

> should be below that of the tinnitus, as the

> tinnitus must be heard to

> be habituated to. The reason they're thought to

> still be useful is that

> they stimulate all the nerve cells in the

> subconscious network between

> ear and brain, allowing them to be more easily

> reprogrammed.

>

> An audiologist sat in on the appointment. From her

> I learnt that I will

> not be a candidate for hearing aids (to help with

> the tinnitus or

> otherwise) until my hearing settles down to

> something predicable. With

> the fluid building up in my middle ear (until I'm

> able to pop my ears)

> my hearing varies from day to day.

>

> However, they introduced me to other gizmos and

> gadgets that could prove

> useful. To help with the TV they suggested an

> infrared earphones

> system. These are the under chin variety, with a

> mic placed near the

> TV. I was amazed how much clearer the TV sound was

> using this (I'll

> probably be getting one, but they're not cheap at

> UKP120+). Any time

> I'm straining to hear I'm more likely to notice the

> tinnitus, so

> reducing the need to strain is helpful.

>

> The RNID catalogue has loads of things, such as

> alarm clocks that have a

> vibrating pad to go under the pillow (I'll

> *definitely* be getting one

> of these!), along with phone amplifiers (plug in and

> clip on), white

> noise generators, under pillow speakers, and other

> paraphernalia.

>

> My next appointment is on 13 May, so I'll have a

> better idea of the

> 'treatment' then. They're waiting to see what my

> ENT says when I see

> him on the 2nd of May. Hopefully he's going to

> schedule the first op.

> for my right ear.

>

> Oh, and thanks to the suggestions by others on the

> list about

> Osteopaths, I'm seeing one tomorrow morning about my

> Eustachian tubes

> :-)

>

> --

> Pete

>

> pete@...

>

-------------------------------------------------------------

> MaVerick - Open Source MultiValue Database

> Management System

> Check out the website ->

> http://www.maverick-dbms.org

>

>

>

>

[Guest guest]

On Mon, 15 Apr 2002 21:46:33 -0400

" Dana Valentine " <danav@...> wrote:

> Thanks for the excellent overview of tinnitus therapy. I have had

> tinnitus for 5 years and I learned more about it in your email than I

> have over that time - I'll have to see if it that therapy is available

> here.

I'm glad you found it interesting :-) There are links to both the

American and British Tinnitus Association web sites in the bookmarks

section - a lot of the information I was given is available there too.

> Regarding the fluid in your ears and not being able to clear them -

> have you flied in that condition? I have cholesteatoma surgery 3 weeks

> ago and the doctor said I could fly but I still have a lot of drainage

> and haven't been able to clear my ears. Am I crazy to try to fly? The

> doctor said it shouldn' t be painful but the nurse said it might be.

From what I understand this is only dangerous if you are unable to pop

your ears, whether or not you have fluid build up. I seem to remember

the consultant saying I could fly after I'd had my op.

--

Pete

[Guest guest]

all i know is.....that francesca had less trouble with her ears at

christmas...despite a lot of discharge etc in the run up to the flight...than

i had with a bout of flu!

one side of my head/face was terrible...and took a while to settle, she had

no probs!!!

good luck...

julie

[Guest guest]

Hi

I do think that the music you are hearing now will go away once you can hear

real sounds .I had very bad tinnitus all my life until i had my

implants..towards the end it was like I was listening to a badly tuned Radio

News station.The words were there but i just could not understand them.It was

frustrating but at least I had company when others were talking or when i was

alone.LOL!!

Love Dora

Tinnitus

Help! I need some advice. I'm waiting for my hookup on the 27th.

Meanwhile, the craziest thing has started happening. Last night I was

certain I was hearing music playing, but there wasn't. This same music

keeps playing in my head. It's not like a song that gets stuck in your

mind and you keep repeating it. It's as if I can actually hear it, like

tinnitus. But it is music--a man with a deep voice singing the same

phrase over and over (no words--just like " mm-mm-mm-ay-oh " ), accompanied

by an acoustic guitar. The " melody " varies somewhat. It's not an

unpleasant " song " , but after a brief respite during sleep and early this

morning, I have been " hearing " it continuously, and I'm really sick of

it!!!

Does this sound like tinnitus (what else could it be)? Does anyone have

any advice on how to stop the music before I go insane?? I used to

" hear " someone mowing the lawn at all hours of the day and night, but I

could ignore it when I realized it wasn't real. I can't seem to figure

out how to do this with this new " music " !

Thanks,

Fisk

Atlanta, GA

mefisk@...

CII 4/25/03, hook-up 5/27/03

[Guest guest]

Oh dear, . The only explanation I can think of

for this is tinnitus which comes in so many shapes and

forms. It will probably go away once you have been

hooked up.

Wow...so you are being serenaded? I'm sure I'd get

sick of that too. Hope it doesn't get louder.

Alice

--- Fisk <mefisk@...> wrote:

Help! I need some advice. I'm waiting for my hookup

on the 27th. Meanwhile, the craziest thing has started

happening. Last night I was certain I was hearing

music playing, but there wasn't. This same music

keeps playing in my head. It's not like a song that

gets stuck in your mind and you keep repeating it.

It's as if I can actually hear it, like tinnitus. But

it is music--a man with a deep voice singing the same

phrase over and over (no words--just like

" mm-mm-mm-ay-oh " ), accompanied by an acoustic guitar.

The " melody " varies somewhat.---

[Guest guest]

,

Tinnitus is as varied as anything you can imagine. There is no

sure fire remedy. It may go away or it may not. The CI may mask it

when its turned on. My unimplanted ear has tinnitus a lot, usually

just barely annoying. Sometimes I massage that ear and it will go

away for a while. You can also try humming along wiht it. No joking,

just try mentally humming, it might work. The goal is to " mask " the

tinnitus. But don't dwell on it, get busy and get your mind off it.

*---* *---* *---* *---* *---*

I bet one legend that keeps recurring throughout history, in every

culture, is the story of Popeye.

--Jack Handley

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.attbi.com/~rlclark77/

[Guest guest]

Well, I'm glad to know that the monks chanting in my head can indeed be

tinnitus. So I'm not insane, and this isn't a " test pattern " someone

slipped into my implant LOL! I'm also glad that it's a pleasant, soft

chant they're doing! Just knowing what it is makes it easier to ignore

it. And I love your suggestion of humming along, . I can't stop

myself from doing so; I've caught myself humming along out loud too!

I think someone mentioned in a post about how their implanted ear is

waiting for sound--and tinnitus is what it's doing since it can't hear

any real sounds. That makes a lot of sense to me. I'm confident it

will go away come hook-up.

Thank you everyone for your support!

Fisk

Atlanta, GA

CII 4/25/03, hook-up 5/27/03

[Guest guest]

,

Humming to oneself is a sign of....errrr, that is, humming to

oneself out loud is a sign of well, time to get the little men in

white coats to come for yuh. LOL

A theory to explain tinnitus is that when the inner ear is

damaged, the brain is not receiving real signals but instead, phantom

signals. Kinda like amputees, they " feel " where they are missing a

hand or foot or limb. That make sense?

*---* *---* *---* *---* *---*

You can't tell which way the train went by looking at the tracks.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.attbi.com/~rlclark77/

[Guest guest]

Take my word for it , if I'm going to hum out loud at all, it is

far better that it be only to myself!

The phantom sounds theory makes a lot of sense. Maybe my monks are

ghosts?

Re: Tinnitus

,

Humming to oneself is a sign of....errrr, that is, humming to

oneself out loud is a sign of well, time to get the little men in white

coats to come for yuh. LOL

A theory to explain tinnitus is that when the inner ear is damaged,

the brain is not receiving real signals but instead, phantom signals.

Kinda like amputees, they " feel " where they are missing a hand or foot

or limb. That make sense?

*---* *---* *---* *---* *---*

You can't tell which way the train went by looking at the tracks.

& Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup

rlclark77@... http://home.attbi.com/~rlclark77/

[Guest guest]

,

LOL Go for it! Ghosts. Maybe. Or aliens. At least they

harmonize! Hehehe.

*---* *---* *---* *---* *---*

Let Me Meat Your Needs.

--sign in a butcher's shop

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.attbi.com/~rlclark77/

[Guest guest]

Hi Jacalyn

I've had tinnitus all my life and more or less got used to it a long time ago. Except that in the last two years, I've had greater damage from bilateral ctoma and the noise has become far more prominent - more like a jumbo jet warming up for take-off. I now notice it all the time, even when I'm outside in a noisy, crowded street. A lot of tinnitus is just an inevitable part of hearing loss and all the recommendations and cures for alleviating it work for some people and not fo others. My own experience is that the more you try to escape or shut out the tinnitus, the more it will bother you. It is just a boring, boring and uncomfortable noise but it isn't actually dangerous or harmful in any physical way. I always tend to think that the real secret for getting on with life and dealing with tinnitus is deep relaxation - meaning doing whatever it is that makes you feel least bothered and most rested. It could be yoga, execise, meditation, massage, even moderate drinking perhaps. Anything at all, so long as it really works for you.

Phil

[Guest guest]

Up to the time I found out I had cholesteatoma I heard my heartbeat

in my ear that the c-toma was in. After the surgery (8/25) I heard

the high pitch ringing noise which thankfully as completed

subsided. I found hearing my heartbeat much more pleasant. I found

it hard to go to sleep also and always needed the tv on low or

something else on to drown out the heartbeat or ringing - it usually

seemed to help me get to sleep. I hope you can find something that

can drown out that annoying ringing.

> Does anyone have a continuous high pitched noise in there ear that

> interfers with everyday activities?

>

> I had a c-toma removed 5/02 and a granuloma removed 3/03. The

> reason I went to an ENT doctor was because of the noise. Removing

> the c-toma didn't help with the noise at all. Many sleepless

nights.

[Guest guest]

In a message dated 9/28/2003 4:11:29 AM Eastern Standard Time, cholesteatoma writes:

I had a c-toma removed 5/02 and a granuloma removed 3/03. The

reason I went to an ENT doctor was because of the noise. Removing

the c-toma didn't help with the noise at all. Many sleepless nights.

Hi there. Phil gave you a great response, I see, but I'll throw my 2 cents in. With me, the ringing/noises are worse for several months after surgery or when my ear is "bad" but it is always there if I listen for it. Fortunately for me, the noise of the world is enough that I don't really notice it most of the time during the day.

At night I use something called a "sound spa" & have for years. Some are better than others, my current one is part of a Timex CD clock radio (about $69) but they sell plain sound spas for about $20. Homedics has some, & I see fancy ones in catalogs like Sharper Image & Hammacher Schlemmacher (sp?). You get a choice of relaxing sounds, different models have different sounds but the ocean, rain, a brook, woodlands are all common. I usually use the ocean - I turn it on when I go to sleep & listen to the sound of the waves rather than the ringing in my ear. I have heard of people using an ordinary household window fan for the same reason - just to get "white noise" to mask the tinnitus.

In my otologist's office they have some nutritional supplement to use for tinnitus but the resident told me it works more for people with only tinnitus & no serious underlying ear problem. Some hospitals also have clinics for tinnitus if it really drives you nuts, I think they rely heavily on relaxation, distraction, & biofeedback. Good luck!

[Guest guest]

I have that high pitched noise - not too bad - usually I can ignore it. Exactly like the tones they use for hearing tests. I always have a radio on in my office - I hate quite rooms. To sleep, I put on a cd - I have a speaker positioned just beside the head of the bed - I find classical music the easiest to fall to sleep to - Bocelli / Aled / .

ann.jacalyn2003h <jackieandrich@...> wrote:

Does anyone have a continuous high pitched noise in there ear that interfers with everyday activities?I had a c-toma removed 5/02 and a granuloma removed 3/03. The reason I went to an ENT doctor was because of the noise. Removing the c-toma didn't help with the noise at all. Many sleepless nights.

[Guest guest]

I have off-and-on tinnitus in my surgery ear which has gotten worse over

the last several years. Someone in here posted that they'd heard

tinnitus gets worse when you're dehydrated (the post was a couple of

months ago, and I've since lost it), and I've found that there is a

strong correlation between how much water I've been drinking, and how

bad the tinnitus is. It was so strong a correlation, that I started

drinking LOTS of water and avoiding caffeine altogether, and the

tinnitus virtually stopped.

Worked for me, may work for you. The other suggestions posted so far

are things I try when I forget to drink my water :-) Best of luck.

-Jeff.

tinnitus

Does anyone have a continuous high pitched noise in there ear that

interfers with everyday activities?

I had a c-toma removed 5/02 and a granuloma removed 3/03. The

reason I went to an ENT doctor was because of the noise. Removing

the c-toma didn't help with the noise at all. Many sleepless nights.

[Guest guest]

Just wanted to chime in on tinnitus. I've had it for many years. I am going

through testing now for my cochlear implant candidacy, which I mentioned in a

previous message. Thank to the many of you who sent me wonderful messages of

support.

Tinnitus. Anyway, I have musical tinnitus. I have music 24/7. In Aug.

2002, I lost most of the hearing in my right ear, which was my " good " ear (left

ear had gone amok years ago). The music started soon afterwards. Because there

is such a stigma of " hearing things, " I was reluctant to mention it to

people, because I could see them get alarmed about it. Here I had overnight

become

severely hearing impaired and now I was " hearing things. "

My first audiologist and otologist didn't even know what it was, had never

heard of it. When I got to a really good audiologist, a couple of months later,

he explained that I was having auditory hallucinations, and that one theory

is that the brain so wants to hear that it is attempting to make its own sound.

A neurotologist at Hopkins explained further that I have musical memory.

Folks, this is different from hearing a song on the radio that you can't get out

of your head. This is independent and switches around from about 4 or 5

different types of music. It reminds me a little bit of something of the

ambient

music that my husband has always loved. The only way for me to get rid of it

is to sing REALLY LOUD (preferably in a car, by myself), and then that will

echo in my head for a while, in a different person's voice, in fact, in a much

better voice than mine.

I just wanted to mention this in case anyone has experienced this and has

wondered. I remember looking on an audiology practice's site last year and on

the FAQ page, someone asked about this and the audiologist's answer was that

perhaps the person's hearing aids were picking up signals from a radio station.

Puhhhlease.

Many regards to all.

Carol D.

[Guest guest]

I never really thought much about this until I read Sharon and Carol

D's emails. I have always pretty much down-played the " music " that I

hear. I actually named some of the songs I hear. The two main ones

are water music and pacman game music. I do remember these sounds

from when I had normal hearing when I was little.

I think I remember the sound in a seashell as being sort of a wind

rushing past sound, but it's not as loud as the music that I hear in

my head.

I shall have to try singing to myself when it happens as Carol

suggested. I'm normally alone at the time so I shouldn't embarass

myself.

I wondered - before you all got your implants did you ever feel bored

driving your car? I guess I used to listen to music on the way to

work, and before that it was the radio until I had trouble

understanding that. I even bought a cd player for my car when I was

19 just so that I could hear better. My parents thought I was mad.

Not being able to listen to anything in the car for the last 3-4

years or so it's just so boring driving, stopping at lights, driving

again. I will definitely be trying to use my implant in the car to

make my trips more interesting.

I mentioned this to my husband, who has normal hearing. He surprised

me when he came home the next day and said that he tried this, turned

the radio off the the entire journey to and from work and agreed that

he would not like to have to do this all the time. He often watches

tv with me with no sound. I obviously don't realise this, and will

ask him whether something made a noise, eg the phone ringing or

something. He will say he doesn't know, as there is no sound. I

think his lip-reading is almost as good as mine now.

When you watch the sports on the news and you see two players clash,

they don't usually caption what the players say to one another ie

F@#8 you! etc. Since my husband's lipreading has improved he will

turn to me and say " Did you read that? "

Shani Bodnar

Surgery 11/11/02 (I hope)

Hookup TBA

> I can relate to the musical tinnitus. Mine comes and goes. Since CI

hookup I do hear it in the left ear if I am in a quiet environment.

At night with the CIs off I always have tinnitus in both ears but it

is not always musical, just changing of pitches and sometimes loud

clanging noise.

>

> My twin refers hers to what hearing people hear with a seashell. I

think I know what she is talking about although I have never heard

one.

>

> Sharon Myers

> Bilateral N24C 12-09-02

> Bilateral 3G Hookup 1-09-03

[Guest guest]

In a message dated 11/23/03 8:33:27 PM Pacific Standard Time,

diaskci@... writes:

Will tinnitus exit after I get cochlear implant? Will it disappear?

I would like to know too!

I have just switched hearing aid to right ear as I prepare for implant. I

have to admit, the change is making me crazier now with head noises. I also

know the more my ear get used to the hearing aid, the noises should fade away.

All I know, i most likely have head noises when my hearing aid is off. By

days, dont have problems. At night, not so bad. Since the switch, now i cant

sleep!

I would like to hear what others said about it after implant.

Lee

[Guest guest]

When I am wearing the CI - the tinnitus is very mild. When it is off.. it comes

back. This is just me.. Others have different experiences and yours will be

unique to you.

Diet changes can help.

Alice

----- Original Message -----

Will tinnitus exit after I get cochlear implant? Will it disappear?

I would like to know too!

I have just switched hearing aid to right ear as I prepare for implant. I

have to admit, the change is making me crazier now with head noises. I also

know the more my ear get used to the hearing aid, the noises should fade away.

All I know, i most likely have head noises when my hearing aid is off. By

days, dont have problems. At night, not so bad. Since the switch, now i cant

sleep!

I would like to hear what others said about it after implant.

Lee

[Guest guest]

Mine did not leave me...<sigh!> it is as loud as ever but it is masked by the

sounds I am hearing when i wear my CI. but if I am hooked up and in a very

quiet environment, I can hear it singing away. I believe I am in the minority

with this.

In a message dated 11/23/2003 11:33:23 PM Eastern Standard Time,

diaskci@... writes:

Will tinnitus exit after I get cochlear implant? Will it disappear?

[Guest guest]

No , you are not in the minority, I have had tinnitus since I was 5 years

old and with the Ci on my left side it sort of quieted the noises however, they

are always with me sometimes loud sometimes softer I am just used to living with

it so I just don't pay attention to it. Since there is nothing really to fix

it , well I just live with it and get on with my life. I just do not

concentrate on them.

B.

Re: Tinnitus

Mine did not leave me...<sigh!> it is as loud as ever but it is masked by the

sounds I am hearing when i wear my CI. but if I am hooked up and in a very

quiet environment, I can hear it singing away. I believe I am in the minority

with this.

In a message dated 11/23/2003 11:33:23 PM Eastern Standard Time,

diaskci@... writes:

Will tinnitus exit after I get cochlear implant? Will it disappear?

[Guest guest]

> I think for me the Tinnitus is more manageable with the CI. Right

now my

> left, unimplanted ear is buzzing to beat the band but I'm pretty

well tuning that

> out(no pun) because my right, implanted ear is hearing real

sounds. With my

> hearing aides, the tinnitis would get so loud that I couldn't hear

normal

> noises but it seems to me the CI bypasses the tinnitis and gets the

real sounds

> thru to the brain diminishing the tinnitus.

>

> Actually I've never really been deaf. My problem had always been

hearing so

> much imaginary noise that real sound couldn't penetrate. I know

The Sounds

> of Silence well. At night when I take off the processor, they

become white

> noise which puts be into a really wonderfully sound sleep.

>

> Hal

>

>

this board hits the subjects so often it amazes me. Hal's last

paragraph describes my condition. In the last two months my best ear

Left wasn't just happy to give me the constant high ring sound the

last 25years it started with perculating sounds, fog horn at times

and then the phone ringing, sometimes with a beat other times

continuous. Sounds can not penetrate this.

I am now one week into CI education, I thought the operation

bypassed all the bad parts of my hearing. But at least it sounds like

the CI brings sounds through the racket more directly. My hearing

aids only amplified all sounds.

This brings me to question where does this tinnitus originate from.

I am not talking about caffiene and no walks to Mcs . I mean

what part of the ear is causing this. Maybe I am too mechanically

minded and right now there is no answer.

I have so much racket going on now, I have decided to go through

with this CI.

I believe that here in life, when dificulty begins the right people

show up to help. You have all been the right people, I am humbled by

the tests you people have been through. Thanks L.