Hi Everyone

[Guest guest]

Haven't written for a few days, have been in bed with my Fibro, Went to

Boston Weds to see my Orthopedic Dr. He told me he knew the Fibro woud cause

a problem with my knee replacement but he didn't realize it would be so bad.

He told me I'm his poster child for knee replacements. ( were the same age)

April 30th made 3 yrs I had the surgery done. Weds. I finally got my knee to

bend to 120 degrees. I was in the hospital 1 month came home for 2 wks went

back in to get the knee bent, PT for 2mos back to hospital to bend the knee

again, PT for 4 mos back in to get the knee bent, then it froze I couldn't

bend or straighten it. back to Boston was told I would have to have the knee

redone. Now I was mad and no way I would have it redone, So I lived on

muscles relaxants, pain killers, and PT 4 days a wk. It was hell but at Xmas

it finally started to bend. Its a known fact if the knee doesn't bend during

the 1st 3 months thats it your stuck with what you've got. But now with his

Fibro pts he tells them about me even has them call me if they want to and

hes more agressive in medication and Pt. and hes had good results.

I have better bend and more stbility in my knee than a lot of people who had

no problems have.

Fibro still attacks my knee but those days I take muscle relaxants hot and

cold packs and do my exercises.

Now I have to go back into the hospital for my back. We have tried every

thing to release the muscles 5 mos now. and nothing is working. So I have to

go in for 6 Facet Block injections to see if this will help.

He wants to get it done befor I go to Disney World, so I can have a good

time down there. I don't want to go back in I really don't, I get so much

more depressed because I'm considered high risk . I've already gone into

Cardiac arrest 2x and now have some heart damage due to it.

And of course I have to wait for Mass Health to approve my transportation to

Boston. more stress to add to my list

Somedays I just want to give up.

Thanks for listenintg

Verna

[Guest guest]

Verna,

Don't give up!!!!!! You have been through hell, but you are a fighter at

heart. Please hang in there. You want to have fun at Disney, so if the doc

thinks you should have the procedure, please do.

Hope your transportation is approved quickly. I'm pulling for you, Verna.

Let us know what's going on.

----- Original Message -----

From: " Verna " <vabparrots@...>

< egroups>

Sent: Friday, May 26, 2000 12:04 PM

Subject: Re: [ ] HI Everyone

> Haven't written for a few days, have been in bed with my Fibro, Went to

> Boston Weds to see my Orthopedic Dr. He told me he knew the Fibro woud

cause

> a problem with my knee replacement but he didn't realize it would be so

bad.

> He told me I'm his poster child for knee replacements. ( were the same

age)

> April 30th made 3 yrs I had the surgery done. Weds. I finally got my knee

to

> bend to 120 degrees. I was in the hospital 1 month came home for 2 wks

went

> back in to get the knee bent, PT for 2mos back to hospital to bend the

knee

> again, PT for 4 mos back in to get the knee bent, then it froze I couldn't

> bend or straighten it. back to Boston was told I would have to have the

knee

> redone. Now I was mad and no way I would have it redone, So I lived on

> muscles relaxants, pain killers, and PT 4 days a wk. It was hell but at

Xmas

> it finally started to bend. Its a known fact if the knee doesn't bend

during

> the 1st 3 months thats it your stuck with what you've got. But now with

his

> Fibro pts he tells them about me even has them call me if they want to

and

> hes more agressive in medication and Pt. and hes had good results.

> I have better bend and more stbility in my knee than a lot of people who

had

> no problems have.

> Fibro still attacks my knee but those days I take muscle relaxants hot and

> cold packs and do my exercises.

> Now I have to go back into the hospital for my back. We have tried every

> thing to release the muscles 5 mos now. and nothing is working. So I have

to

> go in for 6 Facet Block injections to see if this will help.

>

> He wants to get it done befor I go to Disney World, so I can have a good

> time down there. I don't want to go back in I really don't, I get so much

> more depressed because I'm considered high risk . I've already gone into

> Cardiac arrest 2x and now have some heart damage due to it.

>

> And of course I have to wait for Mass Health to approve my transportation

to

> Boston. more stress to add to my list

> Somedays I just want to give up.

> Thanks for listenintg

> Verna

[Guest guest]

Verna,

Sorry you are in so much pain. The facet blocks help many people with the

pain. I hope it gives you relief. It sure will make your trip much more

enjoyable. Have you ever had a block done before?

Congratulations on getting to 120! I didn't have a clue that fibro could

effect knee replacements. Since I have both knees replaced, I sure hope it

doesn't bother mine. I have a painful area of one, but the doctor says it

is scar tissue. The other one is pain free. FM affects my legs only in my

thigh area -- it is very sensitive to the touch, like a pins and needles

feeling.

Before any vacation I went on I would get steroid injections in my ankles

and knees (before the replacements) and it make the trip so much nicer. I

hope you get relief and have a good time at Disney!

a

----- Original Message -----

From: Verna <vabparrots@...>

< egroups>

Sent: Friday, May 26, 2000 1:04 PM

Subject: Re: [ ] HI Everyone

> Haven't written for a few days, have been in bed with my Fibro, Went to

> Boston Weds to see my Orthopedic Dr. He told me he knew the Fibro woud

cause

> a problem with my knee replacement but he didn't realize it would be so

bad.

> He told me I'm his poster child for knee replacements. ( were the same

age)

> April 30th made 3 yrs I had the surgery done. Weds. I finally got my knee

to

> bend to 120 degrees. I was in the hospital 1 month came home for 2 wks

went

> back in to get the knee bent, PT for 2mos back to hospital to bend the

knee

> again, PT for 4 mos back in to get the knee bent, then it froze I couldn't

> bend or straighten it. back to Boston was told I would have to have the

knee

> redone. Now I was mad and no way I would have it redone, So I lived on

> muscles relaxants, pain killers, and PT 4 days a wk. It was hell but at

Xmas

> it finally started to bend. Its a known fact if the knee doesn't bend

during

> the 1st 3 months thats it your stuck with what you've got. But now with

his

> Fibro pts he tells them about me even has them call me if they want to

and

> hes more agressive in medication and Pt. and hes had good results.

> I have better bend and more stbility in my knee than a lot of people who

had

> no problems have.

> Fibro still attacks my knee but those days I take muscle relaxants hot and

> cold packs and do my exercises.

> Now I have to go back into the hospital for my back. We have tried every

> thing to release the muscles 5 mos now. and nothing is working. So I have

to

> go in for 6 Facet Block injections to see if this will help.

>

> He wants to get it done befor I go to Disney World, so I can have a good

> time down there. I don't want to go back in I really don't, I get so much

> more depressed because I'm considered high risk . I've already gone into

> Cardiac arrest 2x and now have some heart damage due to it.

>

> And of course I have to wait for Mass Health to approve my transportation

to

> Boston. more stress to add to my list

> Somedays I just want to give up.

> Thanks for listenintg

> Verna

>

>

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

>

[Guest guest]

a

I had the facet blocks done before with no relief, so I don't know why he

wants to repeat them.but he does.

Fibro does attack anything I went to Boston to be evaluated for corrective

lazer surgery on my eyes, well everything was a go until the Dr found out I

have Fibro I was told I was no longer a surgical canadidate due to the high

risk. Fibro Pts don't heal normallly I was told. So go figure I know it

affected my knee replacement so I have to believe him.

> Verna,

> Sorry you are in so much pain. The facet blocks help many people with the

> pain. I hope it gives you relief. It sure will make your trip much more

> enjoyable. Have you ever had a block done before?

> Congratulations on getting to 120! I didn't have a clue that fibro could

> effect knee replacements. Since I have both knees replaced, I sure hope

it

> doesn't bother mine. I have a painful area of one, but the doctor says it

> is scar tissue. The other one is pain free. FM affects my legs only in

my

> thigh area -- it is very sensitive to the touch, like a pins and needles

> feeling.

> Before any vacation I went on I would get steroid injections in my ankles

> and knees (before the replacements) and it make the trip so much nicer. I

> hope you get relief and have a good time at Disney!

>

> a

[Guest guest]

Welcome back Terry. How are you doing?

a

2/1/01 12:35:46 AM, terryandassociates@... wrote:

>Finally found this site again.

>

>Ohio - Terry

>

>

>

>Chat room: chat/

>Web pages for our group:

http://rheumatoid.arthritis.freehosting.net/

>http://www.rasupport.webprovider.com/

>Change subscription options: RA-

SUPPORT

>

>

[Guest guest]

Hi a

As long as I stay on my medicine I do ok. If I let a day pass though

without it, I can't use my hands and feet. Funny condition this RA

and Fibro. Just feel like telling people, " NO! you can't have it.

It's mine, mine, mine. " :>) Have a great day everyone.

Ohio - Terry

>

> >Finally found this site again.

> >

> >Ohio - Terry

> >

> >

> >

> >Chat room: chat/

> >Web pages for our group:

> http://rheumatoid.arthritis.freehosting.net/

> >http://www.rasupport.webprovider.com/

> >Change subscription options: RA-

> SUPPORT

> >

> >

[Guest guest]

I am , mom to ie(Hydrocephalus, Hypotonia, Oral Apraxia) He

has been on ProEFA only two weeks now. Well, ie had begun saying da

da nonstop right before the supplement. Now he is babbling up a storm,

dadi do and has said ah da which we know is all done!!!! He said it

after I did when we finished therapy, and also twice for our ABA

therapist when they were done!!!! Tonight I was doing picture

identification cards with him and I said point to the doggie bow wow and

he immediatly said dow dow!!!!! ProEfa? Oral motor therapy that he only

had 2 sessions of so far? Sensory integration OT where the therapist

says she has noticed his organization all around improving.?. Also he

used to nod his head toward me for a kiss when I asked, now on 5 or 6

occassions, he has looked me directly in the eye and moved his lips

attempting to close then to pucker!!!! Let's see... what else??????

Thank you Dr.Agin for recommending the oral motor therapy and Proefa and

thank you cherub group for allowing me to explore all the issues at the

apraxia meetings. Our O.T. is also doing a type of listening therapy

with ie that she says is definitly helping him because of the

muscle in his ear probably not functioning correctly due to tone?

Anyway I will be sure to keep everyone updated on more progress that I

definitly know is not far away!!!! One Happy Mom!!!!!!!!

[Guest guest]

Wonderful news, ! I'm so happy for you and your son! Giedl

> I am , mom to ie(Hydrocephalus, Hypotonia, Oral Apraxia) He

> has been on ProEFA only two weeks now. Well, ie had begun saying da

> da nonstop right before the supplement. Now he is babbling up a storm,

> dadi do and has said ah da which we know is all done!!!! He said it

> after I did when we finished therapy, and also twice for our ABA

> therapist when they were done!!!! Tonight I was doing picture

> identification cards with him and I said point to the doggie bow wow and

> he immediatly said dow dow!!!!! ProEfa? Oral motor therapy that he only

> had 2 sessions of so far? Sensory integration OT where the therapist

> says she has noticed his organization all around improving.?. Also he

> used to nod his head toward me for a kiss when I asked, now on 5 or 6

> occassions, he has looked me directly in the eye and moved his lips

> attempting to close then to pucker!!!! Let's see... what else??????

> from this site)

>

>

[Guest guest]

,

I am sorry to hear that it has been a painful weekend for you. I think that

is shared by many people, me for one. They say that misery loves

company.....and we have great company !!!!!!!!!

Hang in there, kiddo, we will all celebrate the 4th with a bang (wishful

thinking) LOL....

Gentle, tender, God Bless America, angel hugs,

Debs

[Guest guest]

Thanks Debs,

I apreciate that. Hope you feel better soon too.

> ,

>

> I am sorry to hear that it has been a painful weekend for you. I

think that

> is shared by many people, me for one. They say that misery loves

> company.....and we have great company !!!!!!!!!

>

> Hang in there, kiddo, we will all celebrate the 4th with a bang

(wishful

> thinking) LOL....

>

> Gentle, tender, God Bless America, angel hugs,

>

> De

[Guest guest]

Sorry to hear that you are in so much pain, . I hope today is much

better for you.

[ ] Hi Everyone

> It's been a very painful weekend, and I am not really up to much

> writing, but I do wan't to let Beverly, Judy, , and Kathy know

> that you are in my prayers.

>

> Christi

[Guest guest]

Hi -

From last Thursday to Wednesday was unbearable. I could hardly

walk. I was having a major flare of RA in my ancles, Knees and

Shoulders, and a BAD flair of FMS in my legs. So, when I would try

to get up my joints and muscles would just scream at me. Today when

I woke up it was a much better, but still there. Mostly my fingers

and toes today.

Hope your 4th of July was wonderful.

> Sorry to hear that you are in so much pain, . I hope today

is much

> better for you.

>

>

>

> [ ] Hi Everyone

>

>

> > It's been a very painful weekend, and I am not really up to much

> > writing, but I do wan't to let Beverly, Judy, , and Kathy

know

> > that you are in my prayers.

> >

> > Christi

[Guest guest]

: So sorry you are having such a rough time. Flares will absolutely

drain you. I am glad it is easing off some. I will continue to keep you in my

thoughts and prayers. Bless you.

Jan

[Guest guest]

Heidi,

Having suffered with infertility, endometriosis and all that goes with that,

you are in my prayers always. I was fortunate in several ways, first I

didn't have to deal with this disease at the time. I had many GI symptoms,

but the other symptoms were not very apparent during those years. It was a

delicate balance with medications. And secondly, I DID have results x 3 in

my infertility quest. God blessed us with 3 daughters & all have the middle

name of Joy because they were such a joy to receive as they true gifts from

God.

Infertility tries the absolute bounds of marriage, but the results are so

worth it.

Hang in there with the other treatments also. Your plate certainly is full

at this time. Let us know how you are doing on that beautiful island!

Gentle, tender, angel hugs,

Debs in FL

[Guest guest]

Hi Heidi,

I'm already praying for you and your successful pregnancy.

Love and Hugs

Stacey in PA

[Guest guest]

(((((((((((Heidi))))))))))

Don't ever apologize for venting to the group. We've all been there in our

own way, and know the frustrations of RA interfering with life plans. Other

than the back, how is your flare? Is it under control at all yet?

I had a class last night (database admin) and the pain in my hips was so bad

I got in my car afterward and broke down and cried my eyes out. I even took

something for pain before class so I could sit through it, to no avail. My

shoulders hurt so much, it was hard to steer on the way home. I have this

big SUV, and it's not always the most comfortable thing to drive. It seems

like this summer has been one long flare for me. I was thinking I am almost

done with my degree in computer programming, but will I ever be well enough

to actually go and work? My Mom recently said that I've never given up

hope, and I thought " That's what you think. " Lately I am really feeling

beaten down, too. And I've always been the most optimistic person of all my

family and friends. People say. " You're always smiling and cheerful. " Not

right now. Like you, I play the glad game I think. ;-)

It will work out, and things always seem darkest before the dawn. Remember,

once you've started your family, you'll be able to go on other more

effective RA meds, and hopefully have a lot more control over your flares.

You'll be in my prayers, Heidi.

Love and hugs,

Carol

[ ] Hi Everyone

Hi Everyone!

I'm so behind on the posts it's scary. The group is so active at the

moment, it's great but it's a full time job keeping up, I'd be fired if I

tried it LOL! I'll catch up eventually though.

My Rheumy phoned about the MRI of my back, my bones are fine but she says my

spine is straight as an arrow instead of curved and my back is as stiff as a

brick, I have to go and see a physiotherapist. She told me I need to get a

less stressful job as it's not helping the RA and is adding problems. I

didn't even tell her I was stressed but she says I have the reflexes of

Lucky Luke at the moment and with the brick back she's put two and two

together and decided I'm strung up like a washing line. Leaving my job is

just not an option right now, it is very stressful and the hours are long

but I enjoy it and wouldn't get anywhere near the same package anywhere

else. Unfortunately she saw my husband and told him the same thing so now I

have him nagging me about it too.... Gosh I'm only 26 years old, I can't

exactly retire! I studied for years for a job like this and just when I get

the job of my dreams this RA comes and bites me! Oh joy, I'm stuck between

a rock and a hard place. Blerck.. this disease is irritating sometimes!

Sorry I'm having more Whine than cheese today but I'm getting it from all

sides and know you all understand how it really feels, I just had to vent -

I'll play the glad game tomorrow.

Hugs,

Heidi

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi Heidi,

I am sorry to hear you are going through this. More whine is

sometimes a good thing though. Especially if you're stressed out.

I guess the question is whether there are any less stressful

alternatives or ways to limit the amount of stress you have without

having to leave your job.

I can relate to your stress to a certain extent. I was a practicing

attorney, and now work in new product development for a company that

produces workflow tools for securities attorneys and compliance

officers. The one thing I can say is even your dream job can become

hellish if you're ill. I know it's a hard thing to deal with. I'm 39

and still worry about having to leave my job. If you work for a good

company they will hopefully try and accomodate you. Under the ADA

they should, but it's nice when they do it because your a valued

employee.

Best of luck to you.

Al in IL

> Hi Everyone!

> I'm so behind on the posts it's scary. The group is so active at

the

> moment, it's great but it's a full time job keeping up, I'd be

fired if I

> tried it LOL! I'll catch up eventually though.

> My Rheumy phoned about the MRI of my back, my bones are fine but

she says my

> spine is straight as an arrow instead of curved and my back is as

stiff as a

> brick, I have to go and see a physiotherapist. She told me I need

to get a

> less stressful job as it's not helping the RA and is adding

problems. I

> didn't even tell her I was stressed but she says I have the

reflexes of

> Lucky Luke at the moment and with the brick back she's put two and

two

> together and decided I'm strung up like a washing line. Leaving my

job is

> just not an option right now, it is very stressful and the hours

are long

> but I enjoy it and wouldn't get anywhere near the same package

anywhere

> else. Unfortunately she saw my husband and told him the same thing

so now I

> have him nagging me about it too.... Gosh I'm only 26 years old, I

can't

> exactly retire! I studied for years for a job like this and just

when I get

> the job of my dreams this RA comes and bites me! Oh joy, I'm stuck

between

> a rock and a hard place. Blerck.. this disease is irritating

sometimes!

> Sorry I'm having more Whine than cheese today but I'm getting it

from all

> sides and know you all understand how it really feels, I just had

to vent -

> I'll play the glad game tomorrow.

> Hugs,

> Heidi

>

>

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger:

http://messenger.msn.com

[Guest guest]

Hi Iris,

Sounds like your son is very talented. I love to watch bands perform.

Always have. Really doesn't matter what kind of music they play. I just

enjoy the talent.

Yes, I think we could make a mint on the dolls. Every jilted wife, mother,

patient, husband, etc would be standing in line for them. I could honestly

use 3-4 of them myself right now. Since I don't have them, I guess I'll just

have to pray for tolerance and serenity. Love that Serenity Prayer.

Love and Hugs

Stacey in PA

[Guest guest]

Hi Al. It¹s great that your tests came back normal. I sympathize with the

sleep. I have the same problems.

One of the symptoms of RA is weight loss, but most of us don't have that

problem. RA is a systemic disease and can affect the whole body. The

fevers, fatigue, weight loss and just feeling bad is how this disease

affects our whole body, not just our joints.

Weight loss is very common in Felty's Syndrome. FS is a rare complication

of RA but it is usually accompanied by an enlarged spleen and a low white

blood cell count, which I don't believe you have.

http://www.icondata.com/health/pedbase/files/FELTY'SS.HTM

Since most every site that describes the symptoms of RA lists weight loss,

my thoughts are that you are experiencing the systemic effects of RA.

SYSTEMIC EFFECTS OF RHEUMATOID ARTHRITIS

http://www.duq.edu/PT/RA/SystemicEffects.html

I hope you sleep well tonight and have a good weekend.

Hugs,

a

> I probably won't be able to catch up on all the posts I missed the

> past few days but wanted to say hi to everyone. Debs, I hope that you

> are doing better as well as everyone else having a rough time. You

> are all in my thoughts and prayers everyday.

>

> Although my tests results all came back normal, my sleeping is still

> erratic and I am still losing weight. I see my rheumy again on Monday

> and a pulmonologist on Thursday. Don't know what is going on in the

> weight loss department but I have lost about 5-7 more pounds since

> seeing my rheumy a few weeks back. And here I thought prednisone

> would put weight on... Perhaps someone will have an answer.

>

> Take care everyone and I hope you all have as pain free a day as

> possible.

>

> Love and hugs,

>

> Al in IL

>

>

>

>

>

[Guest guest]

Hi Al,

Great to hear from you again. You know that there are not too many

people that complain about losing weight!!!! Seriously, I realize

that it is cause for concern. Are you back on Enbrel yet? Maybe the

erratic sleep pattern is just your body trying to adjust AGAIN!

Hopefully that is it. Have you tried taking Tylenol PM? Can you take

it with your other meds? Try some Chamomille Tea. I bet your not a

tea drinker?! wasn't either but occasionally I make him have a

cup of Chamomille and he has finally admitted that it does help.

Good luck and let us know how your appt. goes.

Big hugs

Keri in MI

> I probably won't be able to catch up on all the posts I missed the

> past few days but wanted to say hi to everyone. Debs, I hope that

you

> are doing better as well as everyone else having a rough time. You

> are all in my thoughts and prayers everyday.

>

> Although my tests results all came back normal, my sleeping is

still

> erratic and I am still losing weight. I see my rheumy again on

Monday

> and a pulmonologist on Thursday. Don't know what is going on in the

> weight loss department but I have lost about 5-7 more pounds since

> seeing my rheumy a few weeks back. And here I thought prednisone

> would put weight on... Perhaps someone will have an answer.

>

> Take care everyone and I hope you all have as pain free a day as

> possible.

>

> Love and hugs,

>

> Al in IL

[Guest guest]

<PRE>good luck al, i'll be in the building on thursday too. i go see jennifer.

hope they can figure out what is happening with you. i think this last

bought with altace has sent me into another flare. i did manage to get out

for awhile today. i had breakfast with my son. then i fought with myself

over my temp rising. i am just so tired of it. then i went to vegatable stand

and the dollar store. kathy in il

[Guest guest]

Sorry to hear that you are still not doing very well, Al. I hope next week's

appointments are fruitful.

If not, perhaps a visit to one of the university hospitals in the Windy City is

in order?

[ ] Hi Everyone

I probably won't be able to catch up on all the posts I missed the

past few days but wanted to say hi to everyone. Debs, I hope that you

are doing better as well as everyone else having a rough time. You

are all in my thoughts and prayers everyday.

Although my tests results all came back normal, my sleeping is still

erratic and I am still losing weight. I see my rheumy again on Monday

and a pulmonologist on Thursday. Don't know what is going on in the

weight loss department but I have lost about 5-7 more pounds since

seeing my rheumy a few weeks back. And here I thought prednisone

would put weight on... Perhaps someone will have an answer.

Take care everyone and I hope you all have as pain free a day as

possible.

Love and hugs,

Al in IL

[Guest guest]

,

I am soooo happy to hear how well is doing!! You and your

family have been in my prayers!

>

> Hi all... I promised to let you guys know how things went. If you

guys dont

> remember me, im , s mom. was Dx with plagio for 2

years .

> about 2 months ago the Dx turned to Cranio. had surgery Sept.

4 and

> done great!! he only spent 3 days in the hospital! We were very

shocked how

> he bounced back so quick!

> We wanted to thank you guys for everything and wish you all the

best of luck

> with your little ones:-)

> God bless,

>

> mom to 3 years old, Lambdoid surgery 9-4-02

[Guest guest]

Hi a,

Thanks for the links and writing back. I am sorry to hear you have

trouble sleeping also. I know how it wears one down after a while. I

guess when the CT scan is done on my abdomen they can give the spleen

the once over. Although I know that weight loss happens, it's still

pretty scary. Being 6-3 and weighing only 166 pounds isn't that

great. Especially since I don't know where it will end. I'm sure it's

helping with the wear and tear on my weight bearing joints, but it's

purely unintentional.

I hope you are having a good Monday.

Love and hugs,

Al

> Hi Al. It¹s great that your tests came back normal. I sympathize

with the

> sleep. I have the same problems.

> One of the symptoms of RA is weight loss, but most of us don't have

that

> problem. RA is a systemic disease and can affect the whole body.

The

> fevers, fatigue, weight loss and just feeling bad is how this

disease

> affects our whole body, not just our joints.

> Weight loss is very common in Felty's Syndrome. FS is a rare

complication

> of RA but it is usually accompanied by an enlarged spleen and a low

white

> blood cell count, which I don't believe you have.

> http://www.icondata.com/health/pedbase/files/FELTY'SS.HTM

>

> Since most every site that describes the symptoms of RA lists

weight loss,

> my thoughts are that you are experiencing the systemic effects of

RA.

>

> SYSTEMIC EFFECTS OF RHEUMATOID ARTHRITIS

> http://www.duq.edu/PT/RA/SystemicEffects.html

>

> I hope you sleep well tonight and have a good weekend.

> Hugs,

> a

>

>

>

>

>

> > I probably won't be able to catch up on all the posts I missed the

> > past few days but wanted to say hi to everyone. Debs, I hope that

you

> > are doing better as well as everyone else having a rough time. You

> > are all in my thoughts and prayers everyday.

> >

> > Although my tests results all came back normal, my sleeping is

still

> > erratic and I am still losing weight. I see my rheumy again on

Monday

> > and a pulmonologist on Thursday. Don't know what is going on in

the

> > weight loss department but I have lost about 5-7 more pounds since

> > seeing my rheumy a few weeks back. And here I thought prednisone

> > would put weight on... Perhaps someone will have an answer.

> >

> > Take care everyone and I hope you all have as pain free a day as

> > possible.

> >

> > Love and hugs,

> >

> > Al in IL

> >

> >

> >

> >

> >

[Guest guest]

Hi again Keri,

True, you're never too rich or too thin. I am not back on Enbrel and

may not be taking it for some time. I am going to decrease my

prednisone to 15mgs instead of 20 and take it first thing in the

morning. Hopefully it will help with sleeping and will stp making me

feel so jittery.

I have taken Tylenol PM. It worked pretty well but I still tossed and

turned all night. No, I am like . Not a big tea drinker but

willing to try just about anything. Thanks for letting me know about

it.

Take care.

Love and hugs,

Al

> > I probably won't be able to catch up on all the posts I missed

the

> > past few days but wanted to say hi to everyone. Debs, I hope that

> you

> > are doing better as well as everyone else having a rough time.

You

> > are all in my thoughts and prayers everyday.

> >

> > Although my tests results all came back normal, my sleeping is

> still

> > erratic and I am still losing weight. I see my rheumy again on

> Monday

> > and a pulmonologist on Thursday. Don't know what is going on in

the

> > weight loss department but I have lost about 5-7 more pounds

since

> > seeing my rheumy a few weeks back. And here I thought prednisone

> > would put weight on... Perhaps someone will have an answer.

> >

> > Take care everyone and I hope you all have as pain free a day as

> > possible.

> >

> > Love and hugs,

> >

> > Al in IL