New to group

[Guest guest]

Genie,

I cannot even imagine (and hope I never can) the pain of losing your daughter!

I have autoimmune hepatitis (AIH) which is different from PBC, but I imagine the fatigue is pretty much the same. I am 42, married to a great guy, and have a 21 year old daughter, and 19 year old stepdaughter. Both girls are away at college, but not too far. I have systemic lupus, pancreatitis, antiphospholipid syndrome (clotting disorder), AIH, and type 2 diabetes. The combination of it all just became too much to handle with working full time. I recently began my retirement from a career I loved 20 years sooner than I had anticipated. It was not what I had planned and it has meant changes in our lifestyle since my income was significantly more than my husband's. Thankfully, my husband didn't bat an eye over the loss of income.

Teaching is a very stressful job no matter how much you love it. My undergraduate degree is in education with a math major. I was certified to teach 7th-12th grade math but recently let my certification run out. I was only in the classroom during my student teaching and then during a short stent covering a teacher on maternity leave. I love teaching but it can be very draining. I was offered a job working for the government in 1991, just a little over a year after I graduated from college. I worked a systems analyst until my disability retirement in March of this year.

It must be really tough for you to deal with the fatigue of PBC while trying to work and raise a little one. Whether or not you should retire early is something only you and your husband can decide. I wish you the best, whatever route you choose.

W

[Guest guest]

Rlynn you must be suffering from systematic candidiasis from the way you

describe your ailments.

If I were you, I would not even bother with the doctors, I would just start

using recommendations given by people in this group.

How old are you if I may ask?

Please hang in because you are in very good hands.

Wish you well dear. You sound like me exactly,

new to group

> Hello - my name is Lynn and I've been searching for more info

> regarding candida infections.

>

> Over 2 years ago I asked my doctor to do a thyroid test, as I was

> soooo tired and no amount of dieting would reduce my weight. I would

> always hit a plateau after 10 pounds and nothing could budge it

> underneath that plateau level. I had also been extremely tired. The

> thyroid test came back " normal " , and when I returned 2 weeks later

> with the same symptoms, I was told that it was all in my head.

>

> Recently I've really gone downhill after I had been put on steroids

> (prednisolone) for my back for a period of 7 days.

>

> Symptoms include:

>

> chronic fatigue

> " foggy "

> very bad memory (can't even study - I forget it almost immediately)

> no libido (we're talking for years)

> vaginal yeast infection after each period

> occasional joint pain

> occasional migraines

> *very* moody

> coated tongue (off and on)

> low morning temperature (96.5-97)

> " hot spots " at the junction of my legs and trunk

>

> the latest - skin rashes on my arms and legs.

>

> I need to find a new doctor (the one for my back is a pain management

> specialist who treated me two years ago when my back went out). I'm

> afraid they will be of the same opinion as my previous physician.

>

> What would be good tests to request to help diagnose the cause of

> these problems? Could some of these be mercury related (I have

> several root canals - need to ask re: amalgam fillings)? What have

> been some successful otc/home remedies?

>

> Thanks all,

>

> RLynn

>

>

>

>

[Guest guest]

RLynn,

I have a lot of the same symptoms that you do and have been told that I have

high yeast and also high mercury levels. I would suggest finding a good

alternative doc that can do tests a normal MD won't do. I have a darkfield

microscope test of my blood and also a rectal smear done that both showed yeast.

I

also have a specialized blood and urine test that showed the high mercury

levels. I have been on Nizoral for almost a month for the yeast and have had

some

improvement. I plan on starting mercury treatment next week. Please do

yourself a favor and find a knowledgeable doctor. Good Luck.

Holly

[Guest guest]

I'll be 39 in August.

Also - can't remember if I stated this in the previous email or not -

but I do get a mild vaginal yeast infection after each period (which

only lasts a day).

RLynn

> Rlynn you must be suffering from systematic candidiasis from the

way you

> describe your ailments.

>

> If I were you, I would not even bother with the doctors, I would

just start

> using recommendations given by people in this group.

>

> How old are you if I may ask?

>

> Please hang in because you are in very good hands.

>

> Wish you well dear. You sound like me exactly,

[Guest guest]

I have wondered in regards to the mercury level I may have due to the

several root canals. I had 2 done about 4-5 months ago, and I have 2

more that need to be done (had to save some $$). Are they actually

still using the mercury for these things? That was the first question

I planned to ask when I returned to the dentist.

What exactly constitutes mercury treatment?

TIA,

RLynn

> RLynn,

> I have a lot of the same symptoms that you do and have been told

that I have

> high yeast and also high mercury levels. I would suggest finding a

good

> alternative doc that can do tests a normal MD won't do. I have a

darkfield

> microscope test of my blood and also a rectal smear done that both

showed yeast. I

> also have a specialized blood and urine test that showed the high

mercury

> levels. I have been on Nizoral for almost a month for the yeast and

have had some

> improvement. I plan on starting mercury treatment next week.

Please do

> yourself a favor and find a knowledgeable doctor. Good Luck.

> Holly

[Guest guest]

Welcome to the group Kathie -

It's not usually this dead on a Friday night, but I'm about to log off

because I need to be in at work at 9 tomorrow morning. YAWN!!!

I've had a Lam w/o fusion at L3/4 and a ACDF at C5/6/7 and now I

have a herniated disc at L4/5. My prime NS says he wants me to

be fused at 2 levels in the lumbar. After all the reading and newsgroups

I've read up on, I think I'd rather be dead. I'm not searching out second

opinions to do less invasive surgeries, as well as looking into artificial

disc replacement.

How is your pain management going? What kind of meds to you take

daily? I'm interested in hearing an expaned version of your surgeries,

especially the experimentals. I'm wondering if they used BAK cages.

Good night.

joe

> I would like to tell every one in this group a little about myself. I

> am a 40 year old woman that has had 2 laminectomies, 4 fusions, and 3

> experimental spinal surgeries between areas L4 and S1. I suffer from

> chronic back pain and would love to talk to any one that has had

> similar procedures or suffers from low back pain.

>

[Guest guest]

Hi Kathie

Welcome to the group. Oh yes am very familiar with the L4 L5 and S1, the low

back pain and also numbness and pain in the right thigh. I though haven't even

had surgery yet....haven't found a competent doctor that I feel comfortable

with. I see a new one on Monday. Would love to talk,but don't have ...AOL

tho or you can email me privately at my home email address.

in Florida

New to Group

Hi my name is Kathie and I hope and pray that I have finally found a

group of individuals that either suffer with the same spinal problems

that I have, or live, or know of some one that suffers from the same

spine problems.

I would like to tell every one in this group a little about myself. I

am a 40 year old woman that has had 2 laminectomies, 4 fusions, and 3

experimental spinal surgeries between areas L4 and S1. I suffer from

chronic back pain and would love to talk to any one that has had

similar procedures or suffers from low back pain.

My ID is: mommawolfdog

If anyone would like to talk I would love to talk to you. If anyone

would like to talk just to talk I would love that too!!!

Sincerely,

Kathie

[Guest guest]

susan,

i'm a native floridian. i recently moved to be with my girlfriend in

california. the last 6 years i lived in west palm beach (graduated

from palm beach atlantic college). just thought i would share that

with you.

> Hi Kathie

> Welcome to the group. Oh yes am very familiar with the L4 L5 and

S1, the low back pain and also numbness and pain in the right thigh.

I though haven't even had surgery yet....haven't found a competent

doctor that I feel comfortable with. I see a new one on Monday.

Would love to talk,but don't have ...AOL tho or you can email me

privately at my home email address.

> in Florida

> New to Group

>

>

> Hi my name is Kathie and I hope and pray that I have finally

found a

> group of individuals that either suffer with the same spinal

problems

> that I have, or live, or know of some one that suffers from the

same

> spine problems.

>

> I would like to tell every one in this group a little about

myself. I

> am a 40 year old woman that has had 2 laminectomies, 4 fusions,

and 3

> experimental spinal surgeries between areas L4 and S1. I suffer

from

> chronic back pain and would love to talk to any one that has had

> similar procedures or suffers from low back pain.

>

> My ID is: mommawolfdog

>

> If anyone would like to talk I would love to talk to you. If

anyone

> would like to talk just to talk I would love that too!!!

>

> Sincerely,

>

> Kathie

>

>

>

[Guest guest]

Hey Shoe

Im a " transplanted " Floridian. Im in the Tampa Bay area.Ah WPB...go there

several times a year. Great place.Grew up in Wisconsin! Also use to live in San

Diego and Pebble Beach,where are you in CA?

New to Group

>

>

> Hi my name is Kathie and I hope and pray that I have finally

found a

> group of individuals that either suffer with the same spinal

problems

> that I have, or live, or know of some one that suffers from the

same

> spine problems.

>

> I would like to tell every one in this group a little about

myself. I

> am a 40 year old woman that has had 2 laminectomies, 4 fusions,

and 3

> experimental spinal surgeries between areas L4 and S1. I suffer

from

> chronic back pain and would love to talk to any one that has had

> similar procedures or suffers from low back pain.

>

> My ID is: mommawolfdog

>

> If anyone would like to talk I would love to talk to you. If

anyone

> would like to talk just to talk I would love that too!!!

>

> Sincerely,

>

> Kathie

>

>

>

[Guest guest]

WE GOT IT D!!!!!!!!! go right ahead

From: YeastOfBurden@...

Reply-candidiasis

candidiasis

Subject: New to group

Date: Sun, 20 Jul 2003 22:28:56 -0400 (EDT)

I'm just posting this as a test to see how this works. I had some

trouble with my I.D. & password. I just want to make sure this goes

thru b4 writing a long story. D

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

[Guest guest]

Thanx . I'm having some trouble figuring out just how this works.

Hopefully I'll catch on. D

[Guest guest]

> the hardware has collasped and the bone did not graft

I'm so sorry you're going through all this. My heart goes out to

you. I'm glad your hubby of 37 years is by your side.

Did your doctor test your bone density? My MIL, who has osteoporotic

bones had a similar problem.

sonia

[Guest guest]

> Has anyone had a cervical disctomy with fusion plates and bone? I

had

> mine in Oct of last year and will be ha having it redone again

soon.

> Grandma is getting anxious to feel better. My docttors keep

reasuring

> me I am not crazy,,,lol Having vision problems so please forgive

> typos. I,ve had a cervical fusion-- about four years ago. I'll soon

be going in for another in a different spot. In addition I have

three lumbar fusions--I quess that qualifies me as a " frequent

flyer. " Since your fusion has to be redone you should get the opinion

of another orthopedic surgeon-- one not affiliated with the same

hospital and recommended by someone else. If you do not know another

doctor to make a recommendation simply call another highly regarded

hospital in your area or as close as possible and ask for the name

and telephone number of their Chief of Orthopedic Surgery or Spinal

Service. Tell his/her office that you are calling for a consultation

and possibly to change surgeons. Then, you must tell your current

surgeon that you have decided to get a second opinion because " this

is serious business " and you will need all your recent test and

films. When could you come by for them? If he at all tries to

dissuade you, find another doctor. I don't think he will.

[Guest guest]

> Has anyone had a cervical disctomy with fusion plates and bone? I had

> mine in Oct of last year and will be ha having it redone again soon.

> Grandma is getting anxious to feel better. My docttors keep reasuring

> me I am not crazy,,,lol Having vision problems so please forgive

> typos.

Hello Sandy -

I had a 3 level ACDF last September and the fusion did not completely

happen, even after a year. I'd be interested in hearing your story, either

here or via private e-mail. I've had and have lumbar problems, too.

I'm not sure how cervical problems affect the vision, but I wouldn't be

surprised if it does. Right now, I've got a new NS and am waiting until

February, giving me 6 months more to fuse. He then plans to see

about redoing my surgery, in which he also plans to get rid of some

bone spurs that have grown where the stuff should have fused.

This is an alternative to a posterior procedure, so from what I've read, it

think it's better to go through the front again.

E-mail me if you want to share details.

joe

[Guest guest]

Welcome, Sue!

I've been trying to get my energy up to do some advocacy, as have some

others on the group. But it's important to take the time to welcome

new people to this group.

There is a wealth of information in the Links section and there is a

lot of support among the group members.

Sorry, I don't know of an attorney in Texas. Perhaps someone else has

that information. I have never reported a physician for non treatment

of Lyme, but I should have. One in particular nearly killed me,

refusing to see me when I had an infected PICC line, after having

given the go ahead to have the line put in. Thankfully, I found an

LLMD who removed the line immediately, treating me for blood clots and

infection, and called my treatment by the non Lyme dr " barbaric. " So,

I hear you!

Hope you get your answers.

Blessings,

> I am new to this group, but have had Lyme since 1997. I was reading

> some of the threads and what an interesting group! Such information

> and tons of support. I have a couple of questions, please. Does

> anyone know of an attorney that can handle a Lymie's case in Texas

> and has anyone had to report a physician for non treatment of Lyme?

>

> Thanks!

> SueV

[Guest guest]

I had heard of an attorney in Texas named (don't know first name) Provan, at

provan@...

I wrote to him to try and get him to represent me for something similar, but

he turned me down. I never did call or make an appt (I think he's in

Austin) I was very foggy and confused, and under a huge amount of stress at

that time. It took them about 3 months to email me back and say sorry, no.

But I bet if you go to them and present yourself better than I did, they

would be willing to listen. The reason I called them is that i heard (on

here, it's probably in the archives...) he was helpful and somewhat

knowledgeable about Lyme b

>From: " Hannah " <j.sloane@...>

>Reply-

>

>Subject: [ ] Re: New To Group

>Date: Mon, 27 Oct 2003 21:29:33 -0000

>

>Welcome, Sue!

>

>I've been trying to get my energy up to do some advocacy, as have some

>others on the group. But it's important to take the time to welcome

>new people to this group.

>

>There is a wealth of information in the Links section and there is a

>lot of support among the group members.

>

>Sorry, I don't know of an attorney in Texas. Perhaps someone else has

>that information. I have never reported a physician for non treatment

>of Lyme, but I should have. One in particular nearly killed me,

>refusing to see me when I had an infected PICC line, after having

>given the go ahead to have the line put in. Thankfully, I found an

>LLMD who removed the line immediately, treating me for blood clots and

>infection, and called my treatment by the non Lyme dr " barbaric. " So,

>I hear you!

>

>Hope you get your answers.

>

>Blessings,

>

>

>

> > I am new to this group, but have had Lyme since 1997. I was reading

> > some of the threads and what an interesting group! Such information

> > and tons of support. I have a couple of questions, please. Does

> > anyone know of an attorney that can handle a Lymie's case in Texas

> > and has anyone had to report a physician for non treatment of Lyme?

> >

> > Thanks!

> > SueV

>

>

_________________________________________________________________

See when your friends are online with MSN Messenger 6.0. Download it now

FREE! http://msnmessenger-download.com

[Guest guest]

I believe we should all (at least) report nontreating docs to the state

disciplinary boards. Ask ALL the LL groups for a Texas attorney. Rita

Re: [ ] Re: New To Group

>

> I had heard of an attorney in Texas named (don't know first name) Provan,

at

> provan@...

> I wrote to him to try and get him to represent me for something similar,

but

> he turned me down. I never did call or make an appt (I think he's in

> Austin) I was very foggy and confused, and under a huge amount of stress

at

> that time. It took them about 3 months to email me back and say sorry,

no.

>

> But I bet if you go to them and present yourself better than I did, they

> would be willing to listen. The reason I called them is that i heard (on

> here, it's probably in the archives...) he was helpful and somewhat

> knowledgeable about Lyme b

>

[Guest guest]

Hello All,

I have been diagnosed with a Hypothyroid since I was 20. I am now 37 and in

the past two years have had a ton of problems. I was able to loose weight on

a 1000 cal diet and working out 5 days a week. Ran 5 miles everyday. I knew

this was a problem when I went to the doctor. All they thought was you are

thin what is the problem. Well, I should have been half dead. The symptoms

recently became so bad I could not even think straight. When I got my butt into

the doctor who would listen my blood levels were at 48.92. I went off the

synthroid and went on the amour 120 mg. I am supplementing with T-3 and

L-thyrosine, Dhea and St. s wort along with Women's Mega and Hair Skin nails

from

GNC and Selenium and mega doses of vitamin C 6 mg a day. Is anyone out there

doing this many pills perday? I am not sure that all this is nessecarry.

However, I am still foggy and soar. forget going to the gym right now I still

have a hard time getting out of bed. I was told that I have the Hashimotos and

the right side is almost dead. The facial swelling and the eye pain is the

worst. I am trying the Atkins diet but it doesn't feel right I would rather

just do my Chicken salads.

[Guest guest]

Hey, Barbara! Nice to see you here. How's everything going with you?

You were missed!

I've had an insane day with more insanity yet to come!

I drove all the way up to Tarpon Springs to see my back guy, as my

back has been bad all week, and got there promptly at 2PM. So,

pleased that I was on time and so ready for his gentle hands.

I walked in and he said, " You're an hour late! " Huh?

Talk about brain fog! My appointment was at 1PM. We both just looked

at each other, like who screwed this one up? Well, I took the blame

for it, but I was amazed at how annoyed I felt with him, when in fact

I knew it was my fault! Geeze. Nice long drive up and back, about

another hour and a half in the car I did NOT need!

Hope your day was better and glad to see you back!

>

> Rubeola is part of the MMR shot you got when you were a kid, and

>

[Guest guest]

In a message dated 10/31/2003 1:30:54 PM Eastern Standard Time,

kemalandsheila@... writes:

Hi ...you said your blood levels were 48.92.

Were you referring to your TSH or your antibodies?

Shelia,

My TSH levels were 48.92. He put me on 90MG once a day of Amour then I

retested in 2 weeks and was at 17. something and he put me on 120MG of Amour

once

a day. I am supplimenting with a product called T-3 it contains L-Tyrosine

about 1500MG a day.

I am supplimenting with so much stuff I am not sure if any is going to help.

I am not even sure if the doctor is putting me on the Amour correctly. Most

people take it several times a day rather then once a day.

He who sits in judgement shall sit alone.

[Guest guest]

I take Armour once a day, but you can experiment and see if divided doses

are better for you. Be a proactive patient, not a passive one.

Gracia

> I am not even sure if the doctor is putting me on the Amour correctly.

Most

> people take it several times a day rather then once a day.

>

>

>

> He who sits in judgement shall sit alone.

>

>

>

[Guest guest]

Jan,

Two weeks ago I go back in 2 weeks to see how the 120 mg of the amour is

doing. I feel like all I do is swallow pills and that is not easy right now

either. I woke up today thinking I had energy then my hands and face started to

swell in the 1st hour and I am so exhausted now and I have done nothing. I am

so bummed I was hoping the new amount would help sooner. I guess I am hoping

to find a mircle drug for the energy, weight gain and brain fog.

No easy answers out there are there?

He who sits in judgment shall sit alone.

[Guest guest]

Hi ,

I take quite a few pills (and powders) daily too - 1 Cytomel 25mcg, 1

Synthroid 125mcg, 1 DHEA 25mg, 6 Vitamin C 500mg, 1 Centrum Silver, 1

Selenium + Vitamin E, 3 Chromium Piccolinate 200mcg, 1 Omega 3, 10g

Glutamine.

When was the last time you got tested?

Jan

>

>

> Hello All,

>

> I have been diagnosed with a Hypothyroid since I was 20. I am now

37 and in

> the past two years have had a ton of problems. I was able to loose

weight on

> a 1000 cal diet and working out 5 days a week. Ran 5 miles

everyday. I knew

> this was a problem when I went to the doctor. All they thought was

you are

> thin what is the problem. Well, I should have been half dead. The

symptoms

> recently became so bad I could not even think straight. When I got

my butt into

> the doctor who would listen my blood levels were at 48.92. I went

off the

> synthroid and went on the amour 120 mg. I am supplementing with T-

3 and

> L-thyrosine, Dhea and St. s wort along with Women's Mega and

Hair Skin nails from

> GNC and Selenium and mega doses of vitamin C 6 mg a day. Is anyone

out there

> doing this many pills perday? I am not sure that all this is

nessecarry.

> However, I am still foggy and soar. forget going to the gym right

now I still

> have a hard time getting out of bed. I was told that I have the

Hashimotos and

> the right side is almost dead. The facial swelling and the eye

pain is the

> worst. I am trying the Atkins diet but it doesn't feel right I

would rather

> just do my Chicken salads.

>

>

>

>

>

[Guest guest]

Jan,

Thank you I needed the hope and time frame.

He who sits in judgment shall sit alone.

[Guest guest]

Once your tests are normal, you WILL feel normal again. For 18 months

I was at a good dosage, and had energy and felt like my old self. It

takes a bit of work and then, constant vigilance so that you don't

get unbalanced again. That is the part where I failed - I thought I

didn't have to watch it so closely, and got into major denial when my

symptoms started... BIG mistake, I felt worse than I ever had and the

progression of symptoms was much faster than before.

Also, as you get better swallowing the pills will get easier (the

goiter will get smaller).

4 to 6 weeks is usually what it takes to feel good, even if this is

the right dosage. You feel a bit better cause Armour also has T3,

which acts immediately, but the T4 will take that long to get stable

in your body.

Jan

> Jan,

>

> Two weeks ago I go back in 2 weeks to see how the 120 mg of the

amour is

> doing. I feel like all I do is swallow pills and that is not easy

right now

> either. I woke up today thinking I had energy then my hands and

face started to

> swell in the 1st hour and I am so exhausted now and I have done

nothing. I am

> so bummed I was hoping the new amount would help sooner. I guess I

am hoping

> to find a mircle drug for the energy, weight gain and brain fog.

>

> No easy answers out there are there?

>

>

>

> He who sits in judgment shall sit alone.

>

>

>