New to group

[Guest guest]

that's so strange how your doc clammed up. i have no clue except to guess that he was put off by "off label" use ???

i'm trying to get my mom's doc to prescribe LDN... no luck getting a reply to mail and left on hold on the phone.

if you figure it out plz let me know.

that's just not right of your doc to stonewall you for even an explanation of his position.

maybe there's something going around med circles about LDN that's not so good.... not the therapy, but more like control issues?

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Theresa SchroederSent: Wednesday, July 28, 2010 11:02 PMlow dose naltrexone Subject: [low dose naltrexone] New to group

Hello!

I've justjoined, read a few of the posts and feel the need to talk about

what happened today. I had read about LDN back in April and felt

very excited about the possibilities. I've had CFS/M.E. since 1976--it became

worse in 1987 and I was finally diagnosed in 1987 with Fibro and/or CFS by

both a rheumatoligist and neurologist. I have been on Social Security Disability

since 1997.

Since reading the April article, I've done more online research on LDN and

felt confident that it would be safe to try. I made an appt. with my internist

who has always been helpful and supportive. We have tried every available

prescription drug in recent years (Lyrica, Cymbalta, Savella, etc.) which

was supposed to help with FMS symptoms. He has also prescribed

Ultram, which only made me feel nauseated and "spacey"--did nothing for pain.

Okay, today I had an appt. with him to discuss the LDN. I printed out everything

from the websites, including info on the Stanford and PA State research. At

first my dr. seemed interested. Then he looked horrified. He said he would not

"go there" and would not explain why. I assume that he feels this is a "heavy duty" opiate,

as he compared it to oxycontin. He said perhaps I should go to a "pain clinic",,,

he refused to explain his refusal to even discuss this with me. I felt frustrated

and disrespected--after five years of seeing this man every 3 months.

He renewed my Rx for Clonazepam (which I've been taking for 15 yrs, 1 mg/night)

and also gave me a prescription for Vicodin, which barely takes the edge off the

pain and which I rarely have taken in the last 20 years. This dr. knows I've never

had any substance abuse issues--i have never smoked cigarettes and rarely

drunk alcohol. Before the illness became so severe I had a great career, family, etc.

So would someone please explain to this "newbie" what's going on? Why did my

normally unflappable dr. act as if I'd tossed a live grenade at him? Is he terrified at

losing his license or is this just him? If it's the former, then wouldn't it be better if a family dr. could prescribe what her/his patient needed instead of sending them to pain clinics or who knows where? This seems truly nuts to me.

He did ask his nurse to see if she could find a "pain clinic" to refer me to...she'll

call me..

I feel very discouraged.

By the way--those "racing thoughts" I have lived with for many years and know others who have them who also have CFS...just part of the overall syndrome. Clonazepam used to help

with that, but not so much any more, but it does help me stay asleep. If LDN caused

my thoughts to race, it wouldn't bother me! I am desperate after over 20 years for

some energy, for some chance at a life, just to be able to try this--I've tried everything

else that wasn't totally "screwy"...(I have a slightly low thyroid which is now normal on thyroid meds. I take a low dose of neurontin every nice..doesn't seem to help, except with sounder sleep. Other than Excedrin, that's all I take--and more meds than I've taken in my life at one time!)

Thanks everyone for bearing with me and listening. I don't know if LDN would help me,

but I feel I deserve the chance to try it.

All the best,

Tee

[Guest guest]

Why not ask him to ring Dr Zagon, Dr Berkson, Skip etc, if I lived over there that is what I would do. Also, off label is usually given when there is nothing else to help and can be used on compassionate grounds, plus, he could also ask you to sign a waiver absolving him of any responsibility. Surely as informed patients we have a right to discuss and help chose our own treatments.....Otherwise we bow down to those who think they are the greater minds.........

Celia

[Guest guest]

I am going to see my doctor next week to ask for LDN and I'm reading this thread with interest. What do people recommend we show our doctors (mine is my internist, who is generally pretty open-minded)? Printouts of the web pages, or is there something in a more " doctor friendly " format?

For the record, I have had CFS for 7 years, and am totally disabled by it now. VickieOn Wed, Jul 28, 2010 at 11:12 PM, jaxi <jaxi.schulz@...> wrote:

 

My guess would be that as he was glancing through what you printed he maybe caught a few words and took them out of context not having read the whole thing.  Since you have a relationship with him it might be worth asking him to actually read what you gave him and then see if he'd be willing to discuss it.  If he actually took the time to read through the lit I cannot imagine there would be anything in there that would horrify him.  Nor is there anything with this medication protocol which should result in such a response.

Some people process faster than others.  He may not have been able to take that much new info in at once and just saw a few words which out of context gave him an inaccurate idea of what the drug was and what you were asking for.

Good luck,Jaxi (who orders is herself from India and makes her own because she didn't want to have that convo yet)

On Wed, Jul 28, 2010 at 10:02 PM, Theresa Schroeder <teezaloha@...> wrote:

Hello!

 

I've justjoined,  read a few of the posts and feel the need to talk about

what happened today. I had read about LDN back in April and felt

very excited about the possibilities. I've had CFS/M.E. since 1976--it became

worse in 1987 and I was finally diagnosed in 1987 with Fibro and/or CFS by

both a rheumatoligist and neurologist. I have been on Social Security Disability

since 1997.

 

Since reading the April article, I've done more online research on LDN and

felt confident that it would be safe to try. I made an appt. with my internist

who has always been helpful and supportive. We have tried every available

prescription drug in recent years (Lyrica, Cymbalta, Savella, etc.) which

was supposed to help with FMS symptoms. He has also prescribed

Ultram, which only made me feel nauseated and " spacey " --did nothing for pain.

 

Okay, today I had an appt. with him to discuss the LDN. I printed out everything

from the websites, including info on the Stanford and PA State research. At

first my dr. seemed interested. Then he looked horrified. He said he would not

" go there " and would not explain why. I assume that he feels this is a " heavy duty " opiate,

as he compared it to oxycontin. He said perhaps I should go to a " pain clinic " ,,,

he refused to explain his refusal to even discuss this with me. I felt frustrated

and disrespected--after five years of seeing this man every 3 months.

 

He renewed my Rx for Clonazepam (which I've been taking for 15 yrs, 1 mg/night)

and also gave me a prescription for Vicodin, which barely takes the edge off the

pain and which I rarely have taken in the last 20 years. This dr. knows I've never

had any substance abuse issues--i have never smoked cigarettes and rarely

drunk alcohol. Before the illness became so severe I had a great career, family, etc.

 

So would someone please explain to this " newbie " what's going on? Why did my

normally unflappable dr. act as if I'd tossed a live grenade at him? Is he terrified at

losing his license or is this just him? If it's the former, then wouldn't it be better if a family dr. could prescribe what her/his patient needed instead of sending them to pain clinics or who knows where? This seems truly nuts to me.

 

He did ask his nurse to see if she could find a " pain clinic " to refer me to...she'll

call me..

 

I feel very discouraged.

 

By the way--those " racing thoughts " I have lived with for many years and know others who have them who also have CFS...just part of the overall syndrome. Clonazepam used to help

with that, but not so much any more, but it does help me stay asleep. If LDN caused

my thoughts to race, it wouldn't bother me! I am desperate after over 20 years for

some energy, for some chance at a life, just to be able to try this--I've tried everything

else that wasn't totally " screwy " ...(I have a slightly low thyroid which is now normal on thyroid meds. I take a low dose of neurontin every nice..doesn't seem to help, except with sounder sleep. Other than Excedrin, that's all I take--and more meds than I've taken in my life at one time!)

 

Thanks everyone for bearing with me and listening. I don't know if LDN would help me,

but I feel I deserve the chance to try it.

 

All the best,

 

Tee

[Guest guest]

Cfs has many times viral cause.ldn is worth trying but it

will not solve all the problem.do you have also fibro.then there is the trial

with ldn and fibro at stanford

I am using the Free version of SPAMfighter.SPAMfighter has removed 462 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

I'm unclear exactly what you are asking.. That may be why you didn't

get any answers.

and the gang -- jacdobe@...

Birds: Sadie (GW) Cookie (MMxBuffons) Jaderbug and Nissa (LJs) Sylvie

(RB2) ie (CAG)

Cats: Sully(DSH) Shadow(DMH) Sanouk & la(Siamese) Dogs: Skye

(Dobe/Husky) Reece (Dobe)

Bridge kids: Flirt, Tia, Munchkin, Jasmine, Chuckles, Angel, Indi,

Kayla, Sabien and our heart, Bubba.

Pics of the gang: http://community.webshots.com/user/jacdobe

Allparrots: http://pets./group/allparrots

The Coalition of PA Aviculturists: TCOPA

On 8/14/2010 3:48 PM, SallyD wrote:

> There must be something besides a fusion that will prevent my head from moving

side to side that can help this pain.

[Guest guest]

You 1st need to have strong neck muscles. That is one of the big problems with

people that have neck issues .

> There must be something besides a fusion that will prevent my head from moving

side to side that can help this pain.

[Guest guest]

Hi Doris,

I will be honest. I do not agree with your doctor's approach about your

thyroid. I have lyme and co-infections as well as thyroid and

's(adrenal) disease. Many LLMD's will tell you that you have to

get your adrenals and thyroid under control in order to fight the

infection. To me that makes sense. If my hormones are out of whack, I

find it much harder to tolerate herxes or mount a defense. You can

kill all you want, but unless you have a strong core you will not be

able to tolerate treatment. I walk a very fine line with my adrenals on

what protocols I can actually handle. I do a lot to support both my

thyroid and adrenals and I have a doctor monitor both closely.

As for weight loss, that can be a babesia sign. WHen babs flares for me

I lose a ton of weight. My doc in Seattle said that is a classic sign.

Weight loss can also be adrenal so get checked just in case.

Hope this helps.

Peggy

[Guest guest]

Peggy, thanks for the info on wt loss. I have had times when I lose weight and

that has really bothered me. Both my dtr and I are small, have symptoms of bart

and babs, and both struggle with keeping weight on.

Doris, I am seconding what Peggy said. We are fairly new in diagnosis

(March,April 10), however, I have done a ton of reading and talked to a few

local people with lyme. All, including myself, are concurrently being treated

for hormones and lyme. I just started Armour for thyroid and bio-identicals, and

both my dtr and myself are on glandulars for adrenal support. My LLMD felt that

treating both would significantly help my fatigue (by 50%!!).

Trust your gut. I had the impression you were questioning what your dr. told

you. Good for you. Patients who question and research and take charge of their

own treatment have statistically higher success rates. I encourage you to

continue to listen to your inner guidance and double check on things when you

have questions/doubts.

I have not started the Buhner protocol, but am looking at it. For now, just

working on repairing my system and getting it strong enough to tolerate

anti-microbials and the foreboding dental work ahead.

[Guest guest]

That protocol sounds to be parts of what Dr R at niha is doing

The tree bark may be slippery elm

It's marketed as American Indian Tea??

Wishing you Light & Love & Ease of well being

Randy

On Oct 11, 2010, at 11:53 AM, " doris.fox@... " <doris.fox@...> wrote:

> I went to a new doctor in the hopes that he would help me with my hashimotos

thryroid condition. The surprise was based on my symptoms he thinks I have lyme

and says we have to deal with that before the thyroid.

> I did have some test that supposedly confirms this.

>

> I didn't expect this. I am new to so much of this lyme info. He had me read

Healing Lyme by Buhner and has me on some of his protocol and other things.

> I'm on cat's claw 3 /3x per day

> resveratrol 3/3x per day

> banderol up to 13 drops 2x per day and supposed to work up to 3.

>

> eleuthero 1 tsp. 3 times per day.

>

> Do people worry about he alcohol in the tincture?

> He has me on capsules of the other do people prefer tincture?

>

> He also has me on EM 1 for yeast. I guess it is a sort of probiotic

> I am also making a tea from some bark he gets from an Indian in Montana.

>

> I am afraid I am just a guinea pig for different herbs that have got his

attention.

> I am loosing weight and am concerned about that.

> How do you know if the protocol is right for you and how to find a lyme

literate doctor that doesn't just try antibiotics.

> I'm in Michigan.

>

> Doris

>

>

[Guest guest]

I see an llmd and this is also his protocol. I have been taking Cat's Claw,

Resveratrol and Banderol and I also take thyroid medicine each day. I didn't

feel so great on the Resveratrol and now I'm just taking Cat's Claw and Banderol

and It's been working very well for me. The thyroid medicine hasn't been helping

me very much because the Lyme seems to have a way of compensating and

counteracting the benefits of the medicine but I continue to take it.

Barbara

[Guest guest]

Hi ,

I understand about the weight loss. I am petite also and I struggle to

keep my weight on. It took me a long time to make the connection

between weight and a babs flare. I have 's which can also cause

weight loss. I kept on attributing the weight loss to my adrenal

issues.As it turned out that wasn't the case.

For me the weight loss is a slow but steady descent. I then end up

horrifically ill. I dropped down to 83 pounds at one point and it

scared the life out of me. Now if I start to drop weight I immediately

switch or up my protocol to address Babesia more. At least I now make

the connection and I am not so freaked out.

Fluid shifts are often common in Babesia as well. Just wanted to throw

that out in case you have had any edema issues.

Hope you and your daughter heal soon.

Peggy

[Guest guest]

Hi Peggy:

Yes, I sometimes have edema in my ankles.

What works for that?

Thanks,

>

> Hi ,

> I understand about the weight loss. I am petite also and I struggle to

> keep my weight on. It took me a long time to make the connection

> between weight and a babs flare. I have 's which can also cause

> weight loss. I kept on attributing the weight loss to my adrenal

> issues.As it turned out that wasn't the case.

>

> For me the weight loss is a slow but steady descent. I then end up

> horrifically ill. I dropped down to 83 pounds at one point and it

> scared the life out of me. Now if I start to drop weight I immediately

> switch or up my protocol to address Babesia more. At least I now make

> the connection and I am not so freaked out.

>

> Fluid shifts are often common in Babesia as well. Just wanted to throw

> that out in case you have had any edema issues.

>

> Hope you and your daughter heal soon.

> Peggy

>

[Guest guest]

,

Does your son see an infectious disease doc for this? A hardware infection can

be very serious if not controlled. Sorry I don't have any specific info to

help. On the Spinal Cord Injury boards, there is a lot of talk going on about a

product called Microcyn to help combat infections. I don't know if your son's

situation would be able to be treated with it. Most of us who use it have

issues with antibiotic-resistant UTIs due to permanently relying on indwelling

urinary catheters. But some people have used it to clear up skin infections

with varied success. I don't know if it could be used for colonization of

internal hardware though, sorry. If you would like more info on it, please

email me privately as I don't check into the group very often - rebeccamaas at

I wish you & your son the best with beating the infection.

>

> Ok...my son's situation is not similar to most of you in the aspect of when

his surgery was done. His surgery was done 5 years ago. He has cerebral

palsy...developed sudden onset scoliosis when puberty hit. Two years after the

surgery he developed an infection due to the vertebrae rotating and then a bar

between the rods poking the skin from inside. Bacteria got in and infection.

They went in, removed the cross bar but realized they couldn't remove the rest

of the hardware. They cleaned everything out, checked it again and closed it

up. Initially was on IV antibiotics. Once the two bacteria were identified he

was on dual antibiotics for 6 months and then a single daily antibiotic for a

year. The bacteria managed to some how get past and eventually created a new

sinus/fistula lower down in the lumbar area. The first one was in the thoracic

area. It's come to the surface and dumped it's gunk and then receeds and the

skin closes up...it's done that twice now. Any surgery is no longer an option.

He has severe restrictive lung disease, primarily using the left lung, has

problems with 02 sats and on occasion needs oxygen.

>

> My question is this. Has anyone on the group ever had an infection related to

their hardware and if so how far did it end up going...just the tissue or did it

get into bone...this one is in the area where the screws are...three on each

side. The rods are covered in the bacteria so there is a good chance they are

on the screws too...so it's possible that it's going into the bone. What did it

feel like? How painful was it? Our son cannot communicate other than showing

obvious pain which we are seeing lately when we move him or manipulate him.

Today he was in constant pain while I turned him and set him up...once I stopped

and left him alone he was fine. I guess I just want to know what he is feeling

or going through...what it feels like so I can know how uncomfortable or painful

it is for him. We are working on pain mgmt....but he also has a really high

pain threshold so when he indicates pain then he's in pain.

>

> Sorry for the length of this...just been a frustrating day of realizing that

he's going downhill and all I want is to make sure he doesn't suffer...He sleeps

a lot and I can handle that much better than him being in pain. We are

currently trying tylenol with codene because regular motrin or tylenol isn't

cutting it. The hospice nurse said if the T-3 doesn't work we can try something

else...

>

> Thank you

>

>

[Guest guest]

Lorna,

 

I live in Colorado Springs, and had revision surgery in Denver in 00, and 02.

 

My doc does revision, has done a few group members surgery.

 

Dr. Anant Kumar

 7710 S. Broadway STE 240

Littleton CO, 80122

303-788-5230

 

I have had a excellent outcome from surgery, and would recommend him for a consult locally.

 

As to whats going on and if removal and further fusion would do the trick, that depends.

 

Are you leaning forward, unable as the day progresses to keep yourself upright? If so , you may have Flatback.

 

It maybe that what your doc proposes is completely correct. If Kumar is on your insurance, get a second opinion from him, he's very personable, and will fully go through your case with you, and be real and honest about what surgery can do for you.

 

If travel is possible, a few names to consider, Dr. Bridwell, ST. Louis, in Amarillo Texas, Dr. La Grone, in San Francisco. Dr's Hu and Breven at UCSF.

 

In New York, Dr. Boachie, Dr. Bendo, and Dr. Errico.

 

Off to pick up kids from school, hope that at least gives you a jumping off point.

 

Colorado Springs

 

 

 

 

On Mon, Feb 14, 2011 at 1:01 PM, lbalexsmama <lbalexsmama9@...> wrote:

 

Hello. I am new to this group and thrilled to have found it. I need some feedback, please. I had spinal fusion with harrington rod (steel) in 1980, at Columbia Pres. in NYC with Dr. Hugo Keim. In 1981 I broke the bar and cracked the fusion (horseback riding, I wasn't supposed to be riding but I was a teenager, what can I say). I didn't tell anyone for 2 years and I never had it repaired but now after suffering a fall last summer, it looks like there are 2 areas in the original fusion which are failing. T1/T2 disc is virtually completely degenerated and T2 is slipping. Worse is constant pain from my Lumbar/ sacral area. There is a small fracture at the bony fusion at L3/L4 which is now allowing movement. I currently live in Colorado and the doctor to which I have spoken suggests removing the rod or a portion thereof despite the fact that it is encased in boney overgrowth and is broken at the point where my spinal cord ends. Which he says is 'tricky' since touching the spinal cord could cause permanent paralysis. He wants to fuse L3/4 and fuse T1/2 (basically the top and bottom of the original fusion) and remove a portion of the rod.

So my question is: Who are the best doctors in the field? Though I currently live in Colorado, I am not adverse to going back to NY to have this done or at least getting a second opinion. Have others experienced similar issues? Does removing the rod really improve anything? It seems kind of superfluous but inconsequential. Any feedback is greatly appreciated.

Thanks in advance,Lorna

[Guest guest]

Hello Ibalexsmama,

Welcome to the group. I hope to learn your name soon....that moniker is a

mouthful!

You dont say who you have seen over the years, or if the recent consult you had

was with an ortho who is a spine specialist, but I would strongly recommend that

you get 2 very good opinions before you proceed with anything.

Generally for folks like you that come to the group looking for this kind of

information, we like to point people to the Scoliosis Research Society website

that has a physician finder on it: www.srs.org

Doctors who are members of this society must devote a significant portion of

their practice to deformity and thus you will find yourself with a doctor who is

at least conversant with the dilemma you face with the old long Harrington rod,

as well and the typical cascade of problems that have come from that generation

of surgery.

On top of the SRS listing, reading and talking about our experiences here, there

are a number of surgeons, a handful really, that you hear about all the time

that very specifically deal with our very specific problems....and in your

general geographic area, there are several choices. If you have family and/or

are willing to travel back to the east coast there are more options. And with

the ease of air travel these days, and the lack of correlation between distance

and fare...you might also consider San Francisco or St Louis.

Right there in Denver had her surgery with DrKumar and if he is not who

you have already seen, he would certainly be high on my list for a consult.

I think its fair to say that the thinking on rod removal had evolved more

recently. There is some research to suggest that when possible it is beneficial

for stability to leave an in tact rod in place. In your case this may not apply.

The other consideration is that in some cases, (in mine and for others) the

surgeon has had the ability to use the old rod by modifying it and attaching new

implants to it. This can save the patient considerable blood loss and the pain

of redoing an entire spine with new implants, amongst other benefits.

My surgeon told me a story of a patient he once was planning on doing removal

on. The rod was so encased in bone that despite a long attempt at digging it out

he became quite concerned that he was operating on the wrong patient! He could

see the rod on the xray but couldnt find it. Needless to say this experience

prompted him to consider other alternatives for patients that total removal.

I guess the bottom line is, I wouldnt let just anyone touch my spine at the

point you are at. You need to be evaluated by someone very skilled at getting a

good result. You dont want a " hacker " in there cutting away what bone actually

may be needed to seat implants in down the road. Also...every surgery you

undergo, on top of the risks affiliated with any major surgery, can further

complicate your pain picture due to nerve damage and scar tissue developing.

Please seek excellent care!

Also, please dont beat yourself up about anything that you may have done that

you feel contributed to your current condition. It may, or may not have had

anything to do with it. I rode & owned horses, and fell off a few. I dont think

it improved the chances that my L5-S1 disc would ultimately fail... but I also

dont think that I was going to escape a subsequent surgery anyway. I was fused

to L4 with the old HR originally, and that seems to be a classic set up for

flatback developing later in life. So here we are. Welcome to the club.

Take care, Cam

[Guest guest]

Hi Lorna - I had my revisions (2) in the last 8 weeks. I thought my rods were going to be removed & replace. i was pleased to find out afterwards that it was only necessary to cut my rods in half & replace the lower halves. X-rays & other films are great, but sometimes they don't really know until they get in there. About your spinal cord...my original Harrington surgery in 1979 left spinal cord nerve damage leaving my left left 75% paralyzed. My revision surgeon (Dr Hu at UCSF) was VERY concerned about further paralysis from my revisions. Newer technology is GREAT. I don't know the technical term, but there is equipment they attach that immediately lets them know if spinal cord damage is occuring. After my surgery, my surgeon let me know that at one point, I "lost movement". Immediate

measures were taken & movement was restored. My revision was a complete success. It really is is a whole different ball game than it was years ago. And the surgeons you can learn about in this forum are the best of the best !!! Good luck.

...................................Kathy

From: lbalexsmama <lbalexsmama9@...>Subject: [ ] New to group Date: Monday, February 14, 2011, 12:01 PM

Hello. I am new to this group and thrilled to have found it. I need some feedback, please. I had spinal fusion with harrington rod (steel) in 1980, at Columbia Pres. in NYC with Dr. Hugo Keim. In 1981 I broke the bar and cracked the fusion (horseback riding, I wasn't supposed to be riding but I was a teenager, what can I say). I didn't tell anyone for 2 years and I never had it repaired but now after suffering a fall last summer, it looks like there are 2 areas in the original fusion which are failing. T1/T2 disc is virtually completely degenerated and T2 is slipping. Worse is constant pain from my Lumbar/ sacral area. There is a small fracture at the bony fusion at L3/L4 which is now allowing movement. I currently live in Colorado and the doctor to which I have spoken suggests removing the rod or a portion thereof despite the fact that it is encased in boney overgrowth and is broken at the point where my spinal cord ends. Which he says is

'tricky' since touching the spinal cord could cause permanent paralysis. He wants to fuse L3/4 and fuse T1/2 (basically the top and bottom of the original fusion) and remove a portion of the rod. So my question is: Who are the best doctors in the field? Though I currently live in Colorado, I am not adverse to going back to NY to have this done or at least getting a second opinion. Have others experienced similar issues? Does removing the rod really improve anything? It seems kind of superfluous but inconsequential. Any feedback is greatly appreciated.Thanks in advance,Lorna

Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out.

[Guest guest]

Not sure how to do this. I have two boys with autism. One of them has severe

apraxia of speech also, and my younger one had seizures until he started his

IV/IGG treatment. It has been almost a year since his last seizure. I would like

to join a group but dont know how.

We are doing biomed treatment. Will be chelating more once Iv/Igg treatment is

done or plateaus. Does anyone have info on this?

[Guest guest]

I'm sorry you had to find this group and I have no idea what could be causing

your problem other than possibly overdoing it and something swelling, but I

would definitely call my doctor if I were you.

I had a laminectomy L3-S1 for different reasons so I can understand the surgical

pain but the rest of it maybe some others in the group can help.

Barb

>

> Good evening.

>

> I had a bilateral laminectomy for L5S1 on the 17th. The surgery was an out

patient procedure (minimally invasive). I had lost my ability to move my toes on

the left foot due to compression on my nerve root and spinal stenosis.

>

> I am 44 and otherwise healthy. I exercise several times/week and have so far

had an uneventful recovery. I have done my walking every day and am up to 30

minutes with no difficulty. Just a bit tired from surgery, I think.

>

> Today, I noticed that both my legs feel very achy (sort of like the flu

achiness). I have no fever and I'm wondering if anyone has any insights on

this?

>

> Thanks.

>