Introduction

[Guest guest]

Thank you very much for sharing your story. It makes me realize that

although things are bad, they could be much worse. Yet more importantly, we

should

all hold on to the fact that there is a chance we can get better although the

journey may be a long one.

I hope you continue to improve. May God bless you and continue to bless you

with healing.

[Guest guest]

Wow, and this was the toned down version ???

Just out of curiosity, why did they remove the hardware ??

Fortuneately, my surgery was done with bmp, and so far has been a

huge success in my book (10 months, 3 level fusion). I guess you

must be doing ok if you can mow your lawn (read all the posts, went

back to this one), but maybe you should consider a riding mower - an

acre is a lot of land.

Kris

>

> Hello,

>

> Have just joined the group and wanted to let you know a little of

my

> history. Drafted a detailed introduction but it was so long I

feared

> I might scare someone, so here's the shortened version.

>

> I've been temporarily paralyzed and loss of lower body functions

due

> to the back. Had 8 spine surgeries, four of which were successful

> fusions. The first fusion was prior to BMP and was 3 levels.

After

> the hardware was removed I was in an accident and the fusion

crumbled

> so there was a re-do of the 3 level fusion. Then more collapses,

and

> another 3 level fusion. The severe DDD is getting worse so

naturally

> more collapses. December 2004 I underwent more than 12 hrs of

> surgery and had a 10 level fusion which included a rework of the

> previous fusions to realign everything as levels had slipped so far

I

> was at risk of being permanently paralyzed. This back now has two

> long rods, 18 screws and more than 14 cages in three different

> styles.

>

> The miracle is that at only four months post op, I am doing great,

> walking better all the time, getting stronger and living with a lot

> less pain than prior to the surgery and some days hardly any pain

at

> all. The body is still trying to act as a human barometer, there

are

> still muscle spasms but they are becoming less severe and less

> frequent, I'm learning how to do things a bit differently now that

I

> cannot just bend at will, but the big thing is that I am better and

> yet still walking!

>

> Having been through all the tests and experienced so much

especially

> in dealing with many doctors and finding a new one, I hope that

maybe

> I can assist others with information that may alleviate some fears

> about tests, offer support, some recommendations for consideration

> and above all, hope along with possibly also receiving support on

my

> down days.

>

> Quietcook

[Guest guest]

Hi and Chanel,

It would be good if you could browse through the past

messages on the list just to know some of the members.

Most of us are sufferers or suspected sufferers of

hyperthyroidism and we share our experiences with each

other.

It would be informative, if both of you could inform

the list of where you are residing now, your hormone

levels and the medicine you are taking.

Perhaps (and hopefully), through that, they can better

advise you on doctors within your area or the side

effects of the drug you are consuming and even ways to

change our lifestyle to accommodate or alleviate the

symptoms.

I would recommend a reply mail written by

Invisible() which details the ways he handles

his condition, which in my opinion a good reference.

I am from Malaysia, age 30 years old and been

suffering from HyperT for the past two years. Been

taking PTU (ProphyThioUracil) 150mg once a day.

Symptoms suffered prior being diagnosed includes -

weak knee, easily tires, easily irritated, difficulty

falling asleep, constantly sweating, significant lost

of body weight,difficulty in concentrating, increased

libido, constantly hungry, and even temporary

paralysis (that should be the worst symptoms one could

experience).

I will leave it to others to advice you all on what to

eat, what NOT to eat, and also what NOT to do.

Good day ahead.

Pang

> tests to have done, and if they should all see an

> endocrinologist.

>

> So any info is welcome.

________________________________________________________________________

Messenger - Communicate instantly... " Ping "

your friends today! Download Messenger Now

http://uk.messenger./download/index.html

[Guest guest]

I would check and see if it is HYPOthyroidism. That is usually treated with

" a pill " for the rest of your life.

Introduction

Hi! I just joined this group because we just learned that my father has

hyperthyroidism. I searched a little bit on the net and I was wondering if

people that are diagnosed with hyperthyroidism automatically have more

tests to have done, and if they should all see an endocrinologist.

I'm asking because my dad's doctor gave the result by phone to my mom, and

he just told her my father would have to take a pill a day for the rest of

his life.

He didn't even tell her the level he has. He found out trough his yearly

blood

test.

So any info is welcome.

Thank you!

Chanel

[Guest guest]

....he just told her my father would have to take a pill a day for the rest of

his life.

Hi Chanel,

The pill in reference is Synthroid. I've pasted more info below for you.

What the doctor is saying is that he recommends your dad to destroy his

thyroid through RAI 125, which is Radioactive Iodine (Isotope 125). This

is the normal treatment that most, if not all, U.S. doctors recommend

for their patients with hyperthyroidism. You should research more about

this through previous postings here from the group, as well as various

Websites. Personally, I don't recommend it. As going through this will

give your dad the opposite thyroid disorder -- hypothyroidism. People

with hypothyroidism needs to take a thyroid hormone replacement drug,

which is normally prescribed as Synthroid for the rest of his life. Doctors

will tell you that hypothyroidism is easier to treat than hyperthyroidism.

And they will tell you also that Synthroid is one of the safest drugs

consumed. Some may even tell you that it's one of the top 3

pharmaceutical product on the market.

You should tell your dad to carefully consider his options before agreeing

to a treatment. I don't know your dad's health situation, or his age and

specifics, so can't really say more. Let us know if you have any questions

or additional concerns.

Best of luck to you and your dad. Take care.

joey

Here's the link where you can find more info about different

drugs for hyperthyroidism:

http://thyroid.about.com/cs/thyroiddrugs/a/overview.htm

Thyroid Hormone Replacement Drugs

When your thyroid is either underactive, non-functioning, or has been all or in

part

surgically removed, you are considered hypothyroid.

The conventional treatment for hypothyroidism is thyroid hormone replacement --

basically, taking a prescription a drug that acts similarly in the body to the

human

hormone thyroxine that the thyroid would normally produce.

Levothyroxine/Synthetic T4

The vast majority of doctors prescribe the synthetic drug known as levothyroxine

for

thyroid hormone replacement. The most commonly known brand of levothyroxine is

Synthroid. There's also Levoxyl, Levothroid, Unithroid, and many brands outside

the U.S. In

addition, there are " generic " versions of the T4 drugs, but many doctors do not

recommend them. Studies have shown the brand name levothyroxine drugs in the

U.S. to

be bioqeuivalent, meaning that they accomplish the same thing from a medical

standpoint

Different brands, however, have different fillers, and a small number of

patients apparently

are allergic to the fillers in one versus another. Levothyroxine provides a

synthetic version

of one hormone, thyroxine, known as T4. Some people with hypothyroidism find

that

levothyroxine therapy is sufficient treatment for their hypothyroidism.

....

> I would check and see if it is HYPOthyroidism. That is usually treated with

> " a pill " for the rest of your life.

>

> Introduction

>

>

> Hi! I just joined this group because we just learned that my father has

> hyperthyroidism. I searched a little bit on the net and I was wondering if

> people that are diagnosed with hyperthyroidism automatically have more

> tests to have done, and if they should all see an endocrinologist.

>

> I'm asking because my dad's doctor gave the result by phone to my mom, and

> he just told her my father would have to take a pill a day for the rest of

> his life.

> He didn't even tell her the level he has. He found out trough his yearly

> blood

> test.

>

> So any info is welcome.

> Thank you!

> Chanel

>

>

>

>

>

>

>

[Guest guest]

Thank you so much !

My dad is 71, and he has a good health. No other problem than the

hyperthyroidism. But I guess it's because of the illness that he lost weight and

he is very nervous. He's not being himself since a few months. I hope it won't

take too much time to put him back on track. It must be exhosting to always be

on the edge...

I will look at all the info you sent me. I'll probably be back with some

questions.

Thanks again!

Chanel

invisiblejoey <invisiblejoey@...> a écrit :

....he just told her my father would have to take a pill a day for the rest of

his life.

Hi Chanel,

The pill in reference is Synthroid. I've pasted more info below for you.

What the doctor is saying is that he recommends your dad to destroy his

thyroid through RAI 125, which is Radioactive Iodine (Isotope 125). This

is the normal treatment that most, if not all, U.S. doctors recommend

for their patients with hyperthyroidism. You should research more about

this through previous postings here from the group, as well as various

Websites. Personally, I don't recommend it. As going through this will

give your dad the opposite thyroid disorder -- hypothyroidism. People

with hypothyroidism needs to take a thyroid hormone replacement drug,

which is normally prescribed as Synthroid for the rest of his life. Doctors

will tell you that hypothyroidism is easier to treat than hyperthyroidism.

And they will tell you also that Synthroid is one of the safest drugs

consumed. Some may even tell you that it's one of the top 3

pharmaceutical product on the market.

You should tell your dad to carefully consider his options before agreeing

to a treatment. I don't know your dad's health situation, or his age and

specifics, so can't really say more. Let us know if you have any questions

or additional concerns.

Best of luck to you and your dad. Take care.

joey

Here's the link where you can find more info about different

drugs for hyperthyroidism:

http://thyroid.about.com/cs/thyroiddrugs/a/overview.htm

Thyroid Hormone Replacement Drugs

When your thyroid is either underactive, non-functioning, or has been all or in

part

surgically removed, you are considered hypothyroid.

The conventional treatment for hypothyroidism is thyroid hormone replacement --

basically, taking a prescription a drug that acts similarly in the body to the

human

hormone thyroxine that the thyroid would normally produce.

Levothyroxine/Synthetic T4

The vast majority of doctors prescribe the synthetic drug known as levothyroxine

for

thyroid hormone replacement. The most commonly known brand of levothyroxine is

Synthroid. There's also Levoxyl, Levothroid, Unithroid, and many brands outside

the U.S. In

addition, there are " generic " versions of the T4 drugs, but many doctors do not

recommend them. Studies have shown the brand name levothyroxine drugs in the

U.S. to

be bioqeuivalent, meaning that they accomplish the same thing from a medical

standpoint

Different brands, however, have different fillers, and a small number of

patients apparently

are allergic to the fillers in one versus another. Levothyroxine provides a

synthetic version

of one hormone, thyroxine, known as T4. Some people with hypothyroidism find

that

levothyroxine therapy is sufficient treatment for their hypothyroidism.

....

> I would check and see if it is HYPOthyroidism. That is usually treated with

> " a pill " for the rest of your life.

>

> Introduction

>

>

> Hi! I just joined this group because we just learned that my father has

> hyperthyroidism. I searched a little bit on the net and I was wondering if

> people that are diagnosed with hyperthyroidism automatically have more

> tests to have done, and if they should all see an endocrinologist.

>

> I'm asking because my dad's doctor gave the result by phone to my mom, and

> he just told her my father would have to take a pill a day for the rest of

> his life.

> He didn't even tell her the level he has. He found out trough his yearly

> blood

> test.

>

> So any info is welcome.

> Thank you!

> Chanel

>

>

>

>

>

>

>

[Guest guest]

Thank you for your answer Pang. We're in Canada.

One thing I don't get, is that the medication my dad was prescribed is

Synthroid. I thought people with hypothyroidism took that medicine and my

dad was difinitely diagnosed with hyper...

Chanel

> Hi and Chanel,

>

> It would be good if you could browse through the past

> messages on the list just to know some of the members.

> Most of us are sufferers or suspected sufferers of

> hyperthyroidism and we share our experiences with each

> other.

>

> It would be informative, if both of you could inform

> the list of where you are residing now, your hormone

> levels and the medicine you are taking.

>

> Perhaps (and hopefully), through that, they can better

> advise you on doctors within your area or the side

> effects of the drug you are consuming and even ways to

> change our lifestyle to accommodate or alleviate the

> symptoms.

>

> I would recommend a reply mail written by

> Invisible() which details the ways he handles

> his condition, which in my opinion a good reference.

>

> I am from Malaysia, age 30 years old and been

> suffering from HyperT for the past two years. Been

> taking PTU (ProphyThioUracil) 150mg once a day.

>

> Symptoms suffered prior being diagnosed includes -

> weak knee, easily tires, easily irritated, difficulty

> falling asleep, constantly sweating, significant lost

> of body weight,difficulty in concentrating, increased

> libido, constantly hungry, and even temporary

> paralysis (that should be the worst symptoms one could

> experience).

>

> I will leave it to others to advice you all on what to

> eat, what NOT to eat, and also what NOT to do.

>

> Good day ahead.

>

> Pang

[Guest guest]

It's hyper. And he has many symptoms. He lost a lot of weight, he is extremely

active, tired, moody, and he has gastric problems often too. But like I said, I

looked at his prescription, and it's Synthroid which I know is prescribed for

people with hypothyroidism...

Chanel

> I would check and see if it is HYPOthyroidism. That is usually treated with

> " a pill " for the rest of your life.

>

> Introduction

>

>

> Hi! I just joined this group because we just learned that my father has

> hyperthyroidism. I searched a little bit on the net and I was wondering if

> people that are diagnosed with hyperthyroidism automatically have more

> tests to have done, and if they should all see an endocrinologist.

>

> I'm asking because my dad's doctor gave the result by phone to my mom,

and

> he just told her my father would have to take a pill a day for the rest of

> his life.

> He didn't even tell her the level he has. He found out trough his yearly

> blood

> test.

>

> So any info is welcome.

> Thank you!

> Chanel

>

>

>

>

>

>

>

[Guest guest]

That makes no sense at all that I can see. Is it possible he was put on a

thyroid blocking drug as well as synthroid (thinking 'block and replace')?

Otherwise, synthroid will aggravate the hyperthyroidism, I'm sure. Sometimes

the doctor's office is not quite clear. Originally, my doctor's nurse called

and told me I had hypothyroid condition. The next week when I was still feeling

so lousy, I saw my doctor and he said I was hyperthyroid. Confusion does

exist...

K

Re: Introduction

Thank you for your answer Pang. We're in Canada.

One thing I don't get, is that the medication my dad was prescribed is

Synthroid. I thought people with hypothyroidism took that medicine and my

dad was difinitely diagnosed with hyper...

Chanel

> Hi and Chanel,

>

> It would be good if you could browse through the past

> messages on the list just to know some of the members.

> Most of us are sufferers or suspected sufferers of

> hyperthyroidism and we share our experiences with each

> other.

>

> It would be informative, if both of you could inform

> the list of where you are residing now, your hormone

> levels and the medicine you are taking.

>

> Perhaps (and hopefully), through that, they can better

> advise you on doctors within your area or the side

> effects of the drug you are consuming and even ways to

> change our lifestyle to accommodate or alleviate the

> symptoms.

>

> I would recommend a reply mail written by

> Invisible() which details the ways he handles

> his condition, which in my opinion a good reference.

>

> I am from Malaysia, age 30 years old and been

> suffering from HyperT for the past two years. Been

> taking PTU (ProphyThioUracil) 150mg once a day.

>

> Symptoms suffered prior being diagnosed includes -

> weak knee, easily tires, easily irritated, difficulty

> falling asleep, constantly sweating, significant lost

> of body weight,difficulty in concentrating, increased

> libido, constantly hungry, and even temporary

> paralysis (that should be the worst symptoms one could

> experience).

>

> I will leave it to others to advice you all on what to

> eat, what NOT to eat, and also what NOT to do.

>

> Good day ahead.

>

> Pang

------------------------------------------------------------------------------

[Guest guest]

Now I'm scared... His doctor called himself, and said his thyroid hormonal

level was too high. And the only medecine he's taking is Synthroid... I will

tell

him to stop that and call his dr ASAP...

Thanks. We will find out what's wrong here...

Chanel

> > Hi and Chanel,

> >

> > It would be good if you could browse through the past

> > messages on the list just to know some of the members.

> > Most of us are sufferers or suspected sufferers of

> > hyperthyroidism and we share our experiences with each

> > other.

> >

> > It would be informative, if both of you could inform

> > the list of where you are residing now, your hormone

> > levels and the medicine you are taking.

> >

> > Perhaps (and hopefully), through that, they can better

> > advise you on doctors within your area or the side

> > effects of the drug you are consuming and even ways to

> > change our lifestyle to accommodate or alleviate the

> > symptoms.

> >

> > I would recommend a reply mail written by

> > Invisible() which details the ways he handles

> > his condition, which in my opinion a good reference.

> >

> > I am from Malaysia, age 30 years old and been

> > suffering from HyperT for the past two years. Been

> > taking PTU (ProphyThioUracil) 150mg once a day.

> >

> > Symptoms suffered prior being diagnosed includes -

> > weak knee, easily tires, easily irritated, difficulty

> > falling asleep, constantly sweating, significant lost

> > of body weight,difficulty in concentrating, increased

> > libido, constantly hungry, and even temporary

> > paralysis (that should be the worst symptoms one could

> > experience).

> >

> > I will leave it to others to advice you all on what to

> > eat, what NOT to eat, and also what NOT to do.

> >

> > Good day ahead.

> >

> > Pang

>

>

>

>

>

> ------------------------------------------------------------------------------

>

[Guest guest]

Yes. Chanel. Please tell your dad to stop taking the Synthroid. As Kate

mentioned, it makes no sense to take synthetic thyroid hormone when

your dad is hyperthyroid. Being hyperthyroid means that his body already

have way, way too much thyroid hormone in the body. That's why he's

loosing weight, and feeling terribly weak and lousy. This again makes me

upset about doctors not being careful. Unfortunately there are confusions.

But it makes no sense here whatsoever for the doctor to prescribe Synthroid

to a patient with hyperthyroidism. This drug is normally prescribed only

after a hyperthyroid patient has gone hypo.

Please also tell your dad to abstain from all caffeine products, as well as

food with iodine, such as iodized salt and sea food. Also do not take ice

or cold drinks, (or ice cream) as this will aggravate the throat and thyroid

further. It is a good thing for now to drink warm liquids, if possible.

Staying away temporarily from dairy product is also good.

Take care.

joey

> > > Hi and Chanel,

> > >

> > > It would be good if you could browse through the past

> > > messages on the list just to know some of the members.

> > > Most of us are sufferers or suspected sufferers of

> > > hyperthyroidism and we share our experiences with each

> > > other.

> > >

> > > It would be informative, if both of you could inform

> > > the list of where you are residing now, your hormone

> > > levels and the medicine you are taking.

> > >

> > > Perhaps (and hopefully), through that, they can better

> > > advise you on doctors within your area or the side

> > > effects of the drug you are consuming and even ways to

> > > change our lifestyle to accommodate or alleviate the

> > > symptoms.

> > >

> > > I would recommend a reply mail written by

> > > Invisible() which details the ways he handles

> > > his condition, which in my opinion a good reference.

> > >

> > > I am from Malaysia, age 30 years old and been

> > > suffering from HyperT for the past two years. Been

> > > taking PTU (ProphyThioUracil) 150mg once a day.

> > >

> > > Symptoms suffered prior being diagnosed includes -

> > > weak knee, easily tires, easily irritated, difficulty

> > > falling asleep, constantly sweating, significant lost

> > > of body weight,difficulty in concentrating, increased

> > > libido, constantly hungry, and even temporary

> > > paralysis (that should be the worst symptoms one could

> > > experience).

> > >

> > > I will leave it to others to advice you all on what to

> > > eat, what NOT to eat, and also what NOT to do.

> > >

> > > Good day ahead.

> > >

> > > Pang

> >

> >

> >

> >

> >

> >

----------------------------------------------------------------------------

--

> >

[Guest guest]

Did he say that his thyroid hormone is too high or his thyroid hormone stimulant

(TSH) was high. With a high TSH you would need synthroid..

Do call the doctor and check

K

Re: Introduction

Now I'm scared... His doctor called himself, and said his thyroid hormonal

level was too high. And the only medecine he's taking is Synthroid... I will

tell

him to stop that and call his dr ASAP...

Thanks. We will find out what's wrong here...

Chanel

> > Hi and Chanel,

> >

> > It would be good if you could browse through the past

> > messages on the list just to know some of the members.

> > Most of us are sufferers or suspected sufferers of

> > hyperthyroidism and we share our experiences with each

> > other.

> >

> > It would be informative, if both of you could inform

> > the list of where you are residing now, your hormone

> > levels and the medicine you are taking.

> >

> > Perhaps (and hopefully), through that, they can better

> > advise you on doctors within your area or the side

> > effects of the drug you are consuming and even ways to

> > change our lifestyle to accommodate or alleviate the

> > symptoms.

> >

> > I would recommend a reply mail written by

> > Invisible() which details the ways he handles

> > his condition, which in my opinion a good reference.

> >

> > I am from Malaysia, age 30 years old and been

> > suffering from HyperT for the past two years. Been

> > taking PTU (ProphyThioUracil) 150mg once a day.

> >

> > Symptoms suffered prior being diagnosed includes -

> > weak knee, easily tires, easily irritated, difficulty

> > falling asleep, constantly sweating, significant lost

> > of body weight,difficulty in concentrating, increased

> > libido, constantly hungry, and even temporary

> > paralysis (that should be the worst symptoms one could

> > experience).

> >

> > I will leave it to others to advice you all on what to

> > eat, what NOT to eat, and also what NOT to do.

> >

> > Good day ahead.

> >

> > Pang

>

>

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

That is a really good point below. If the doc is talking about TSH levels being

high than your Dad is actually maybe Hypo even though that one test shows high.

It has to do with the thyroid stimulating hormone which is high when other tests

such as T3 and T4 would be low in the case of Hypothroidism but in the case of

Hyperthroidsim the TSH would be low and the T3 and T4 levels would be high. It

can be a bit confusing at first so he really needs to get clarity and maybe ask

for his own copy of the tests that were done. Did the doc actually ever say he

had Hyperthroidism or just that he had an elevated thyroid hormone level (TSH)?

For hyperthroidism he would not be given Synthroid unless it was the " block and

replace " method with an antithyroid med but if he is hypo than Synthroid would

be one correct treatment plan. Please let us know what you all find out when

you get more info from his doc.

--------- Re: Introduction

Now I'm scared... His doctor called himself, and said his thyroid hormonal

level was too high. And the only medecine he's taking is Synthroid... I will

tell

him to stop that and call his dr ASAP...

Thanks. We will find out what's wrong here...

Chanel

> > Hi and Chanel,

> >

> > It would be good if you could browse through the past

> > messages on the list just to know some of the members.

> > Most of us are sufferers or suspected sufferers of

> > hyperthyroidism and we share our experiences with each

> > other.

> >

> > It would be informative, if both of you could inform

> > the list of where you are residing now, your hormone

> > levels and the medicine you are taking.

> >

> > Perhaps (and hopefully), through that, they can better

> > advise you on doctors within your area or the side

> > effects of the drug you are consuming and even ways to

> > change our lifestyle to accommodate or alleviate the

> > symptoms.

> >

> > I would recommend a reply mail written by

> > Invisible() which details the ways he handles

> > his condition, which in my opinion a good reference.

> >

> > I am from Malaysia, age 30 years old and been

> > suffering from HyperT for the past two years. Been

> > taking PTU (ProphyThioUracil) 150mg once a day.

> >

> > Symptoms suffered prior being diagnosed includes -

> > weak knee, easily tires, easily irritated, difficulty

> > falling asleep, constantly sweating, significant lost

> > of body weight,difficulty in concentrating, increased

> > libido, constantly hungry, and even temporary

> > paralysis (that should be the worst symptoms one could

> > experience).

> >

> > I will leave it to others to advice you all on what to

> > eat, what NOT to eat, and also what NOT to do.

> >

> > Good day ahead.

> >

> > Pang

>

>

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

I'm so glad I found this group!

We're waiting for a call from the doctor. And I told

my mom (my dad is not home today) to ask him to send

my dad to an endocrinologist.

Thank you so much for all the info you gave me !

Chanel

--- invisiblejoey <invisiblejoey@...> a écrit :

---------------------------------

Yes. Chanel. Please tell your dad to stop taking the

Synthroid. As Kate

mentioned, it makes no sense to take synthetic thyroid

hormone when

your dad is hyperthyroid. Being hyperthyroid means

that his body already

have way, way too much thyroid hormone in the body.

That's why he's

loosing weight, and feeling terribly weak and lousy.

This again makes me

upset about doctors not being careful. Unfortunately

there are confusions.

But it makes no sense here whatsoever for the doctor

to prescribe Synthroid

to a patient with hyperthyroidism. This drug is

normally prescribed only

after a hyperthyroid patient has gone hypo.

Please also tell your dad to abstain from all caffeine

products, as well as

food with iodine, such as iodized salt and sea food.

Also do not take ice

or cold drinks, (or ice cream) as this will aggravate

the throat and thyroid

further. It is a good thing for now to drink warm

liquids, if possible.

Staying away temporarily from dairy product is also

good.

Take care.

joey

__________________________________________________________

Lèche-vitrine ou lèche-écran ?

magasinage..ca

[Guest guest]

We're waiting for the doc's phone call.

Well when he gave the results to my mom, she told me

right away that he said my dad's had hyperthyroidism,

that his thyroid produced a too high amount of

hormones. That's what my mom told me. We will know

more later.

Could he have hypothyrodism and lose a lot of weight

and have many of the other symptoms of hyperthyroidism

(anxiety, hyperactivity, mood swings, diarrhea)?

Chanel

--- Kate <Fraserk@...> a écrit :

---------------------------------

Did he say that his thyroid hormone is too high or his

thyroid hormone stimulant (TSH) was high. With a high

TSH you would need synthroid..

Do call the doctor and check

K

Re: Introduction

Now I'm scared... His doctor called himself, and

said his thyroid hormonal

level was too high. And the only medecine he's

taking is Synthroid... I will tell

him to stop that and call his dr ASAP...

Thanks. We will find out what's wrong here...

Chanel

> > Hi and Chanel,

> >

> > It would be good if you could browse through

the past

> > messages on the list just to know some of the

members.

> > Most of us are sufferers or suspected

sufferers of

> > hyperthyroidism and we share our experiences

with each

> > other.

> >

> > It would be informative, if both of you could

inform

> > the list of where you are residing now, your

hormone

> > levels and the medicine you are taking.

> >

> > Perhaps (and hopefully), through that, they

can better

> > advise you on doctors within your area or the

side

> > effects of the drug you are consuming and even

ways to

> > change our lifestyle to accommodate or

alleviate the

> > symptoms.

> >

> > I would recommend a reply mail written by

> > Invisible() which details the ways he

handles

> > his condition, which in my opinion a good

reference.

> >

> > I am from Malaysia, age 30 years old and been

> > suffering from HyperT for the past two years.

Been

> > taking PTU (ProphyThioUracil) 150mg once a

day.

> >

> > Symptoms suffered prior being diagnosed

includes -

> > weak knee, easily tires, easily irritated,

difficulty

> > falling asleep, constantly sweating,

significant lost

> > of body weight,difficulty in concentrating,

increased

> > libido, constantly hungry, and even temporary

> > paralysis (that should be the worst symptoms

one could

> > experience).

> >

> > I will leave it to others to advice you all on

what to

> > eat, what NOT to eat, and also what NOT to do.

> >

> > Good day ahead.

> >

> > Pang

>

>

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

Channel, just for your information, ask your dad to be

real careful and to rest as much as possible. If the

hormone level is too high, it may result in paralysis.

But rest assured that it is temporary, one will

recover after some time. One relative of mine simply

collapse out of a sudden. For my case, it came slowly,

it start from the knee and move up, and the subsequent

morning, i cannot even move my hand and started to

have difficulty breathing.

Before i start my grandmother story, here's what one

should do, if it happens. This is strictly in my

opinion.

- The person still has normal sensation of the whole

body as such, make him as comfortable as possible.

- Do not allow the doctor to perform nervous system

diagnosis on him! Examples of those procedures

include, obtaining a slice of the muscle and bone

marrow for analysis. The last procedure is very very

painful and he/she would have to sleep face down for

the next 3 days, that's how painful it's going to be.

It's like 'you pay to suffer'.

- Never allow him to drink pure water, or what they

called Reverse Osmosis (RO) water, as it does not

contain any minerals. Mineral water will be good.

- Have lots or banana, or any thing that has lots of

potassium in it. My blood test returns a very low

level of potassium. It seems that our metabolism are

turbo charged and thus mineral in our body are used up

or excreted so fast.

Many doctors (and i mean many) will think that it is

some sort of nervous system problem or muscle disease.

My relative was unlucky, he was advised to undergo all

sort of diagnosis test, including the bone marrow

test. It cost him a lot and a lot of pain, and is

totally inconclusive in finding the cause of the

paralysis. It seems that it is a rare condition and

only experience doctors will know about it.

I was lucky in that i refuse to perform all these test

(because it was simply too expensive) and the second

doctor i consult reassured me that all these are

temporary. The only changes he made was to change my

medicine from Carbimazole to Prophythiuoracil.

Have a nice day.

Best rgds,

Pang

--- poilsplumesecailles <poilsplumesecailles@...>

wrote:

> Thank you for your answer Pang. We're in Canada.

>

> One thing I don't get, is that the medication my dad

> was prescribed is

> Synthroid. I thought people with hypothyroidism took

> that medicine and my

> dad was difinitely diagnosed with hyper...

>

> Chanel

>

________________________________________________________________________

Messenger - Communicate instantly... " Ping "

your friends today! Download Messenger Now

http://uk.messenger./download/index.html

[Guest guest]

Hi.

First of all I want to thank everyone who took the

time to answer me. I really appreciate.

I'm confused right now. It turns out that my dad has

hypothyroidism and not hyper. My mother was certain

that the doc said hyper, but anyway. That's not the

point now.

What I don't get is that he has the symptoms of

hyperthyroidism. He lost a lot of weight, he's

extremely nervous, he has GI trouble... I don't

understand...

Chanel

__________________________________________________________

Lèche-vitrine ou lèche-écran ?

magasinage..ca

[Guest guest]

We are glad you got that cleared up. A good idea is to always get a copy of

his blood tests and learn to read them.

If he is on too much synthroid that will cause him to have hyper symptoms.

Let his doctor know and he should cut down his dosage. It can take a long

time to get on the correct dose. Also know that it takes about 6 weeks for

the TSH (thyroid stimulating hormone) to change on the blood tests. Read

and learn all you can. Thyroid problems are very complicated and take a lot

of research to understand.

Hypothyroidism by Shomon is a good book for hypo. Graves' Disease by

Elaine is good for hyper. You should be able to get them at your

library or buy them over the internet. has a good web site on

about.com.

Please remember we are all amateurs here. We have gone through many phases

of thyroid problems and can help a great deal with support but our

information can vary greatly depending on our own experiences.

Your father is very fortunate to have a caring daughter!

Take care,

Tammy

Re: Re: Introduction

Hi.

First of all I want to thank everyone who took the

time to answer me. I really appreciate.

I'm confused right now. It turns out that my dad has

hypothyroidism and not hyper. My mother was certain

that the doc said hyper, but anyway. That's not the

point now.

What I don't get is that he has the symptoms of

hyperthyroidism. He lost a lot of weight, he's

extremely nervous, he has GI trouble... I don't

understand...

Chanel

__________________________________________________________

Lèche-vitrine ou lèche-écran ?

magasinage..ca

[Guest guest]

Thank you Tammy. I just love my mom and dad so I can't

help it! And thanks for the book suggestion, that

was my next question LOL!

But about the symptoms, they are not caused by the

medication because he's been talking them for only a

couple of days. So that's bugging me... I just hope he

doesn't have something else. But he just had a check

up so...

He had a rough time these past months (for one thing

I've been very sick) and maybe that's the reason why

he lost weight and everything. But when it comes to

health, it's always scary...

Thanks again!

Have a nice day!

Chanel

--- Tammy <linden@...> a écrit :

---------------------------------

We are glad you got that cleared up. A good idea is

to always get a copy of

his blood tests and learn to read them.

If he is on too much synthroid that will cause him to

have hyper symptoms.

Let his doctor know and he should cut down his dosage.

It can take a long

time to get on the correct dose. Also know that it

takes about 6 weeks for

the TSH (thyroid stimulating hormone) to change on the

blood tests. Read

and learn all you can. Thyroid problems are very

complicated and take a lot

of research to understand.

Hypothyroidism by Shomon is a good book for hypo.

Graves' Disease by

Elaine is good for hyper. You should be able to

get them at your

library or buy them over the internet. has a

good web site on

about.com.

Please remember we are all amateurs here. We have

gone through many phases

of thyroid problems and can help a great deal with

support but our

information can vary greatly depending on our own

experiences.

Your father is very fortunate to have a caring

daughter!

Take care,

Tammy

Re: Re: Introduction

Hi.

First of all I want to thank everyone who took the

time to answer me. I really appreciate.

I'm confused right now. It turns out that my dad has

hypothyroidism and not hyper. My mother was certain

that the doc said hyper, but anyway. That's not the

point now.

What I don't get is that he has the symptoms of

hyperthyroidism. He lost a lot of weight, he's

extremely nervous, he has GI trouble... I don't

understand...

Chanel

__________________________________________________________

Lèche-vitrine ou lèche-écran ?

magasinage..ca

[Guest guest]

Chanel,

Please check this web site...

http://www.thyroid.about.com and you will find much information. Often the

same symptom occurs for both hyper and hypo thyroid conditions...But you're

right, there may be something else going on as well. It does take quite a long

time for thyroid medecine to work - but your father should start feeling a bit

better in a couple of weeks. I react very quickly to additional synthroid.

Some people take longer. But the full impact of the given dosage of synthroid

does take four to six weeks to be felt.

Kate

Message -----

From: Chanel

hyperthyroidism

Sent: Tuesday, May 17, 2005 11:09 AM

Subject: Re: Re: Introduction

Hi.

First of all I want to thank everyone who took the

time to answer me. I really appreciate.

I'm confused right now. It turns out that my dad has

hypothyroidism and not hyper. My mother was certain

that the doc said hyper, but anyway. That's not the

point now.

What I don't get is that he has the symptoms of

hyperthyroidism. He lost a lot of weight, he's

extremely nervous, he has GI trouble... I don't

understand...

Chanel

__________________________________________________________

Lèche-vitrine ou lèche-écran ?

magasinage..ca

------------------------------------------------------------------------------

[Guest guest]

Thanks a lot Kate! I will check the site.

Chanel

--- Kate <Fraserk@...> a écrit :

---------------------------------

Chanel,

Please check this web site...

http://www.thyroid.about.com and you will find much

information. Often the same symptom occurs for both

hyper and hypo thyroid conditions...But you're right,

there may be something else going on as well. It does

take quite a long time for thyroid medecine to work -

but your father should start feeling a bit better in a

couple of weeks. I react very quickly to additional

synthroid. Some people take longer. But the full

impact of the given dosage of synthroid does take four

to six weeks to be felt.

Kate

Message -----

From: Chanel

hyperthyroidism

Sent: Tuesday, May 17, 2005 11:09 AM

Subject: Re: Re: Introduction

Hi.

First of all I want to thank everyone who took the

time to answer me. I really appreciate.

I'm confused right now. It turns out that my dad has

hypothyroidism and not hyper. My mother was certain

that the doc said hyper, but anyway. That's not the

point now.

What I don't get is that he has the symptoms of

hyperthyroidism. He lost a lot of weight, he's

extremely nervous, he has GI trouble... I don't

understand...

Chanel

__________________________________________________________

Lèche-vitrine ou lèche-écran ?

magasinage..ca

------------------------------------------------------------------------------

[Guest guest]

Hey ,

My name is and I am also a JRA vet, I am 20 years old now, but was

6 at diagnosis. It's nice to meet you.

[Guest guest]

Hi Pete,

Well you sure sound like a strong one there. We have had discussions

here about how much stronger JRA kids are than many others. It gives

you determination along the way. There are at least a handfull of

other young adults on this that will probably chime in. This

site has been a savior for our situation. I wish you continued success.

Stacia and Hunter 9 systemic, iritis

[Guest guest]

Hi Pete,

It's so nice of you to stop by and visit our site. We have a couple

of other folks here that grew up with JRA and I value their insight

SO much.

Congrats on your recent marriage and career success! I was a bit

intrigued with your location. I am actually moving tomorrow morning

(monday July 4th) to Anthem, Arizona which is about 15-20 minutes

north of Phoenix.

I currently live in Illinois. My husband recently graduated from

chriopractic school and we plan to open our practice in Anthem. We

are hopeful that the dry heat will be a better climate for our

daughter. She is nine and her arthritis problems seem to be very

weather sensitive. She flares more in the winter or with extreme

temp drops which is a common occurance in Illinois.

Have you live in AZ. all your life. Do you find it to help or hinder

your joint problems?

Glad you joined the group and I look forward to talking with you in

the future!

(Aundrea 9 systemic)-

-- In , " Fischer " <peterf@a...> wrote:

> Hi. My name is Pete Fischer, I live in Phoenix, AZ and just came

> across your fantastic group.

>

> I see that most of you are parents of children with Arthritis. I

on

> the other hand have arthritis, and have for over 25 years (i

> celebrated my silver anniversary). I am now 32. I hope that you

are

> not offend by my " peaking " in on your group.

>

> I would like to commend you as parents for being so proactive in

the

> lives of your children, and the fact that you welcome advice from

> each other.

>

> This brings me to the point of writing this message. I would like

to

> extend to you any advice I can give, from the perspective of the

> child growing up with " Arthur " . I've seen the good and the bad,

and

> know the ups and downs. Arthritis is a challenge, and at times it

> can be rewarding.

>

> I have been quite successful in my life. I am a Project Manager

with

> a large architecture firm in Phoenix, I went to college, graduated,

> I've lobbied politicians on Capital hill, and I perform in numerous

> Theatre troupes across the Valley of the Sun, and recently got

> married... all with severe (i use a wheelchair) rhuematoid

Arthritis.

>

> Please feel free to contact me at any time, with your comments and

> questions, etc...

> peterf@a...

>

> My best to ALl of you.

> Pete

[Guest guest]

,

Thanks for replying. It's always nice to network with other JRA'ers.

For many years I have been very involved with the Arthritis Foundation,

both in Phoenix, Tucson, Washington DC, and Nationally... but recently I

have been a little less than please with them. Are you active in your

Local chapter? Where is your location?

I've also attended my fair share of AJAO conferences... have you been to

any?

Nice to chat with you.

Pete

Re: Introduction

Hey ,

My name is and I am also a JRA vet, I am 20 years old

now, but was

6 at diagnosis. It's nice to meet you.