Introduction

[Guest guest]

<<<Will someone please tell me what IBD is?>>>

I think it's Inflammatory Bowel Disease

[Guest guest]

<<<Then she did the tests and put me on a diet that lasted 10 days and then

she told me to eat normal. I lost 4 kilos on those 10 days, and gained 2

when I started to eat " normal " . So now I'm on the 3 month diet...for

starters>>>

It may be a long road.

In '97 I had extra fat around my belly. But I think for me that's kinda

normal; where my excess was located. Near the end of '97 my ex left and I

stopped eating. I dropped 40 lbs in a few months. Now I have a hard time

gaining.

I have read here how candida affects the pancreas and the adrenals which can

effect how we gain or lose weight. For all I know I may have experienced

problems with both.

[Guest guest]

Nick - that is correct that IBD is inflammatory bowel disease, but there are

2 kinds of IBD.

1. Crohn's Disease

2. Ulcerative Colitis

Does anybody here also have IBD?

[Guest guest]

What a coincidence! I just started Paragone today! I've taken a couple of full doses so far. Yesterday I got sort of a headstart by taking a couple of doses of Wormwood and Black Walnut Hull tinctures then someone on here said you really need to add Cloves so I went looking for that and found Paragone. It seems like it's a lot more comprehensive since it covers just about all types of parasites. I also liked the fact that no fast is required. The diet really fits me to a "T" too. I can basically leave out ketchup and mayo and it will be what I eat anyway. We will have to compare notes and see how it goes.

This is sort of a general question for all on the list. Do most of you have pretty supportive families when it comes to this sort of thing? My husband has always tolerated my interest in herbals. I guess he figures I'm not forcing it on him or my daughter and it's not doing me any harm, but he's not a very strong believer in this sort of thing. Well, today he saw my Paragone and sort of rolled his eyes and asked me how much it cost. He asked what made me think that I had parasites and I told him that I had worked in a waste water testing lab for many years so it seemed very likely that I would have them from handling all that sludge and raw sewage. Needless to say, he was very skeptical. He says, "Don't you think if you had parasites you would know it by now?". Like many people, he believes if you aren't getting sick then you must not have a problem. Never mind that I'm always fatigued and have no energy at all. I almost feel like now I have to have lots of worms that are big enough for him to see just so I can prove something. I can just see myself now. "Come look, honey!"

S+13

Introduction

Hi Everyone, I just found this list tonite while doing a search on ParaGone and saw a familiar name, Karma. I am also on the bodyflex list and have been reading your posts with great interest.

I am here to learn! I just started the ParaGone today and I am only doing a half doses since this is my first time. I would love to hear about any experiences with this product or any other information that anyone would like to share.

About me, I am the mother of a nine year old and I work out of my home running 3 business. I love the idea of using herbs and have been experimenting with growing my own.

I am looking forward to learning and getting to know all of you!

JameySubscription email: bowel cleanse-subscribeegroups

[Guest guest]

He he he!

S+13

Introduction

Hi Everyone, I just found this list tonite while doing a search on ParaGone and saw a familiar name, Karma. I am also on the bodyflex list and have been reading your posts with great interest.

I am here to learn! I just started the ParaGone today and I am only doing a half doses since this is my first time. I would love to hear about any experiences with this product or any other information that anyone would like to share.

About me, I am the mother of a nine year old and I work out of my home running 3 business. I love the idea of using herbs and have been experimenting with growing my own.

I am looking forward to learning and getting to know all of you!

JameySubscription email: bowel cleanse-subscribeegroups

[Guest guest]

Kim, hope you can find what you are looking for...your mother must be proud

to have a loving daughter like you.

Please take good care

Loes, aih, The Netherlands

[ ] Introduction

>

> Hello group,

> I'm here because my mother has hep c, diabetes, Cirrohsis, and all related

> problems. Her liver enzyme level came back at 688. (3-33 is normal)

> They are saying a " plug " transplant is not an option. I guess I'm here to

> just try to learn as much as I can. She won't tell me much, doesnt want me

to

> worry. She is 64, I am 37, and frankly, would like her to stay around a

while.

> Thanks for listening.

>

> Kim

> Even if you're on the right track, you'll get run over if you just sit

there.

> - Will (1879-1935)

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

You've come to the right place. It's been a little quiet here in recent

days. I think everybody is getting caught up in the holiday spirit.

You'll meet lots of other parents here who have been through similar

situations. Even a few people who have grown up with JRA. Lots of good

advice and tips on how to cope with the issues that come up.

My son has systemic JRA, too. It started when he was 6 and he's

eleven and a half now. He was in the minority. Had very severe and

persistent disease activity. Required lots of strong meds to try to get

it under control and the arthritis still raged on for quite some time.

His fevers were extremely high, coming twice a day, and weren't able to

be controlled with just an NSAID (non-steroidal, anti-inflammatory

drug). He had enlarged spleen and lung and heart involvement, as well as

many various joints being affected. Instead of settling in a joint, the

arthritis seemed to move around over time. His ankles might be affected

for a few months. Then they'd get better and his wrists would be

affected. Then they'd get better and his fingers or knees would be

affected. Like that. You know what I mean, right? Very hard to explain

to others, like firneds and teachers. They'd think his knees were his

troubled spot but a few months later they'd be just fine and instead, he

couldn't hold a pencil well, anymore. Good news is that despite this

" travelling arthritis, " and the seriousness of each episode as it was

happening (for example, he had major mobility issues when his ankles and

feet were affected, and couldn't barely move his arms when his elbows

were affected) his joints never seemed to experience major lasting

damage. Well, he has some loss of motion in his wrists and elbows. Very

little, though. It looks like the combination of drugs we settled on

really did their job.

In the beginning, it seemed like there was one crisis after another. The

first couple of years were very difficult for all of us. Josh became a

very sick little boy. His quality of life was poor. It was discouraging

to be giving him all the strong medicines every day and still not see

much in the way of improvement. He would have periods of less active

disease. And each time I thought it was finally over. Only to have those

hopes dashed rather quickly, as the next round of battle began when the

JRA got more active again. Eventually, with the right combination of

meds for his individualized case, he started to have more good days and

fewer bad ones. The arthritis flare ups still happened but much less

frequently.

To cut to the chase .... he's still taking the same meds we started

with. In different doses. Like I said, he's had a severe case and unlike

many other children, has not been able to discontinue his meds. Yet.

There's always a chance that he'll go into remission. Lots of children

do. Right now, we're quite happy with the way things are going. It's

almost like a medicated remission. Disease is being controlled really

well, with the meds. He has little pain. Lots of mobility. And his

joints are still in good shape.

We are on a continual quest to decrease the dose of one of his meds. He

takes prednisone everyday, a steroid reserved to treat the less mild

cases. We saw his doctor on Friday and got the okay to lower the dose

from 8mgs to 7.5mgs. Started that on Saturday. It's the lowest dose he's

ever taken. And we hope he'll continue to be successful on it. He had a

little breakthrough pain, more achiness and fatigue. Missed school

yesterday. But this is a milestone for us. He also takes indomethacin,

methotrexate, plaquinel ... and a bunch of other meds to help with other

related stuff. If he needs all the other meds for the long-term, we can

live with that. Steroids are best used for the short-term, whenever

possible, and he's been taking them everyday since this all began. It

was the only thing that was able to help quiet the fevers and

inflammation ... but hopefully we're beyond that stage by now.

Yikes! I'm sorry this note got so long. Just wanted to let you know what

it's been like for us. Every child is different, though. The approach

you'll take depends on your son's symptoms, which may change over time.

It can seem like a daunting task, trying to figure out the best course

to take. Not just for us parents but for the doctors, as well. If you

have any questions, this is a great place to find out more. From those

who have been there. You've stumbled upon a great group of people here.

I'm sure they'll be around to say hello, shortly.

Aloha,

Georgina

zacks98@... wrote:

>

> Hello. My 2.5 yr old son was just diagnosed (not yet formally) with systemic

> jra. He had been having high fevers and was hospitalized for about 5 days

> last week for a lot of tests and to make sure he didn't have any source of

> infection. They didn't find any infection and suspected jra. They sent us

> home with high dose ibuprofen (which brought down the fevers immediately).

> We were told to watch for any physical signs, and we are being followed

> closely. Sure enough, he was limping a little this morning and he told me he

> had a boo boo on his leg. After his morning dose of ibuprofen, he seems okay

> now, as he is running around and playing. My husband and I are trying to

> deal with this as best we can, and would appreciate any info or stories. My

> biggest concern of course is controlling his pain, but I have so much concern

> as to how this is going to affect him socially as he grows up. Our Dr. (we

> are seeing a ped rheumatologist) says that these kids do very well, and with

> the right medication, they are able to participate in sports etc. Thanks for

> listening.

> -

[Guest guest]

Thanks to everyone who welcomed me. I hope, as many of you said, that this

time will be among the worst, and that it will get better. I'm trying very

hard to learn everything I can about systemic jra and hope that my son, Zack

will have a mild case. The ibuprofen has seemed to help his first flare up.

By the way, I didn't mention in my intro that he has anemia. Did any of your

kids have anemia when they were first diagnosed? The hematologists are going

to watch that closely.

-

[Guest guest]

-

I understand how you're feeling. My daughter (20 mos) was diagnosed a few

months ago. However, she has just one knee affected so far, and does not

have systematic j.r.a., so her situation is a bit different from your son's.

Initially, when the doctors began testing and I knew this disease was a

strong possibility, and began researching it, I was terrified. I started

thinking about how this would affect the rest of her life. Will she be able

to participate in " normal " activities? Will she have friends and boyfriends?

Since there's thought to be a genetic link, I started worrying that this

might mean she'll never be able to get married and have children, etc, etc.

I'm sure we all worry about these issues. This group has made me realize

that these kids do lead largely " normal " lives. They have their challenges,

but they do pretty well. Best of luck. Use this group and ask lots of

questions. You'll find that the disease is not the worst thing that could

happen and that your son can go on to lead a good life.

Diane.

[Guest guest]

Hi ,

I have a 2.5 year old girl named who has had polyarticular JRA

since she is 18 months. All I can tell you is that I hope that this

will be your worst time and it will get better soon. I remember that

when we found out she had JRA we were devistated. Luckily we found a

great ped rheumatologist and with some trial and error on the meds

and some physical therapy no one would ever know that she has JRA.

She is a normal child, has friends and goes to nursery school. The

doctor visits, blood work and giving meds does take up time and is

tuff but we are able to deal with it on a day to day basis. The most

important thing is to have a good rheumatologist and I'm sure you do.

I wish you all the best. Bonnie

[Guest guest]

Diane,

Thanks for your note. Hearing other people's stories is a comfort. Although

the future is uncertain for our son, we are very hopeful that he will do

well. He is a very loving and gentle little boy, but at the same time he is

tough, so I'm hoping his childhood will be as normal as possible. It sounds

like your daughter is doing great.

Happy holidays.

-

[Guest guest]

In a message dated 12/19/00 5:20:49 PM Eastern Standard Time, zacks98@...

writes:

> Did any of your

> kids have anemia when they were first diagnosed?

Holly was very anemic, that is one of the symptoms of jra. They sent Holly to

the hematologist, twice, worried about how quickly she could get anemic, it

seemed like in one day, she could go from having a normal hematacrit to just

about needing a transfusion(she never did). AJ

[Guest guest]

,

I am , father of Skyler. He sill be 3 years old on the 23rd of this month

and was diagnosed at 10 months old with Systemic JRA. I will not go into detail

on our past two years but will tell you that though we are among the 10% of

cases that are severe and predicted not to go into remission, there is hope for

a good life for your baby. Science is growing by leaps and bounds, new genetic

keys are discovered often and it is remarkable what we see coming from research

centers.

This does not promise that there will not be hard times, nor does it promise

that some very bad things are not possible. It is important to remain

optimistic and hopeful, yet be informed and carefully monitor your childs

condition. Keep reading and feel free to ask alot of questions.

Systemic JRA is the least common and considered the more severe form of JRA.

The fevers can be unrelenting and it is possible that more than joints can be

affected.

Four months ago my son was compleetly incapacitated, unable to sit up or even

lift a cup to drink. Today we had a birthday party for him and he was running

and playing with the other children as if he were nearly unaffected. He limps,

has a swollen foot and his back aches, he has to take many medicines orally and

three injections weekly, but now we share mostly laughter and smiles.... except

for his sudden change in temperment that most people refer to as the " errible

twos " . He is a year late, but he has been busy getting better. We are not out

of the woods, but he is playing and laughing.

I must say that being his father has brought me much more in tune with how truly

prescious a childs laughter really is. There is no greater treasure a person

can hold than the memory of their childs laughter.

Skyler was also anemic when diagnosed. We have had more problems with this due

to some of the medications. Remember to give your child daily vitamins and iron

rich food.

God bless and know you have a new world of friends and just about all the

information you will need just a letter away.

[ & Skyler]

Re: Re: Introduction

Thanks to everyone who welcomed me. I hope, as many of you said, that this

time will be among the worst, and that it will get better. I'm trying very

hard to learn everything I can about systemic jra and hope that my son, Zack

will have a mild case. The ibuprofen has seemed to help his first flare up.

By the way, I didn't mention in my intro that he has anemia. Did any of your

kids have anemia when they were first diagnosed? The hematologists are going

to watch that closely.

-

eGroups Sponsor

For links to websites with JRA info please visit:

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[Guest guest]

Hi

and welcome to the group

I am Robbin and have a daughter whose 13 she has poly JRA

meaning in more than 4 joints

at first it was hard for me to get grips with this my hubby still has a

problem dealing with it but theres hope for every day you get through

this group is a very supportive group

encouragement with the child is what helps

understanding how they feel

its not the end of the world but something to get through

i am here if you need to talk also the others in the group

most of us can be reached through the instant messanger

If you have a buddy list please feel free to IM me anytime

Robbin

[Guest guest]

hi lisa:)

Sweets and Breads are the ones that have always been my down fall so i know

how you

feel:) I haven't eaten refined sugar for over 13 years so i know that it can at

least be

done healthy if not giving up all the good foods completely. The easiest way

for me was to

develop some " cheating rules " . If I have the need for something sweet or bread

i make sure

that its at least a " healthy " cheat. IF im going to eat bread i make sure that

its a whole

grain with out all the preservatives. If its the sweets that im craving I will

try and

stick with unsweetened fruits or something that has at least been honey

sweetened. To say

that we will never cheat on the eating habits is a real hard thing to do but if

you make

sure that its at least a healthy food then you haven't blown the whole thing and

dont as

many side effects from your indiscretion.

A week or so ago it all the holiday cookies and such were driving me crazy so

i made up

some whole wheat, honey and apple sauce sweetened cookies. they were wonderful!

lots of

nuts and even had malt sweetened chocolate chips! There were no refined foods

in them so

it was alot easier to get back on the diet and the guilt wasn't as bad *grin*

Also once

you get away from the refined foods and sweeteners your taste buds change and

that stuff

just never tastes as good as it used to.

lisa wrote:

> hi everyone,

>

> i just signed up to this list, my friend nastasya recommended it to me

> i have been experiencing pretty major psoriatic arthritis and a whole load

> of food sensitivities for the last 2 1/2 years, earlier this year i finally

> made the connection that it all started following a huge amalgam filling so

> got the mercury out

> since then there have been gradual improvements, but i'm still prone to

> attacks, have a limited list of what i can eat without suffering pretty bad

> reactions and of course it does get me down

>

> i've tried the dr pagano diet (healing psoriasis) but found it really tough

> to stick to, sugar and sweet things have been my downfall i'm sorry to say

> so am now realising that candida is probably also a factor i'm dealing with

> and that diet is the only way to go

>

> anyhow just thought i'd introduce myself,

> looking forward to hearing suggestions for recipes etc and uplifting stories

> of getting to the other side of this condition

>

> best

> lisa

>

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

>

[Guest guest]

Hi lisa you are definatly not alone i can't belive how tired Iam after just

grocery shopping, my feet kill, and just feel like iam in a haze, we all

have a good idea of what you are going through. welocome and please post

often, for how can one help if one doesn't know that two needs help.

S.

I may get stuck a lot in life, but at least I stick with it:)

introduction

hi everyone,

i just signed up to this list, my friend nastasya recommended it to me

i have been experiencing pretty major psoriatic arthritis and a whole load

of food sensitivities for the last 2 1/2 years, earlier this year i finally

made the connection that it all started following a huge amalgam filling so

got the mercury out

since then there have been gradual improvements, but i'm still prone to

attacks, have a limited list of what i can eat without suffering pretty bad

reactions and of course it does get me down

i've tried the dr pagano diet (healing psoriasis) but found it really tough

to stick to, sugar and sweet things have been my downfall i'm sorry to say

so am now realising that candida is probably also a factor i'm dealing with

and that diet is the only way to go

anyhow just thought i'd introduce myself,

looking forward to hearing suggestions for recipes etc and uplifting stories

of getting to the other side of this condition

best

lisa

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

[Guest guest]

I have notoced that sugar doesn't taste as good to me naymore. it's really

sad. LOL

I may get stuck a lot in life, but at least I stick with it:)

Re: introduction

hi lisa:)

Sweets and Breads are the ones that have always been my down fall so i

know how you

feel:) I haven't eaten refined sugar for over 13 years so i know that it

can at least be

done healthy if not giving up all the good foods completely. The easiest

way for me was to

develop some " cheating rules " . If I have the need for something sweet or

bread i make sure

that its at least a " healthy " cheat. IF im going to eat bread i make sure

that its a whole

grain with out all the preservatives. If its the sweets that im craving I

will try and

stick with unsweetened fruits or something that has at least been honey

sweetened. To say

that we will never cheat on the eating habits is a real hard thing to do but

if you make

sure that its at least a healthy food then you haven't blown the whole thing

and dont as

many side effects from your indiscretion.

A week or so ago it all the holiday cookies and such were driving me

crazy so i made up

some whole wheat, honey and apple sauce sweetened cookies. they were

wonderful! lots of

nuts and even had malt sweetened chocolate chips! There were no refined

foods in them so

it was alot easier to get back on the diet and the guilt wasn't as bad

*grin* Also once

you get away from the refined foods and sweeteners your taste buds change

and that stuff

just never tastes as good as it used to.

lisa wrote:

> hi everyone,

>

> i just signed up to this list, my friend nastasya recommended it to me

> i have been experiencing pretty major psoriatic arthritis and a whole load

> of food sensitivities for the last 2 1/2 years, earlier this year i

finally

> made the connection that it all started following a huge amalgam filling

so

> got the mercury out

> since then there have been gradual improvements, but i'm still prone to

> attacks, have a limited list of what i can eat without suffering pretty

bad

> reactions and of course it does get me down

>

> i've tried the dr pagano diet (healing psoriasis) but found it really

tough

> to stick to, sugar and sweet things have been my downfall i'm sorry to say

> so am now realising that candida is probably also a factor i'm dealing

with

> and that diet is the only way to go

>

> anyhow just thought i'd introduce myself,

> looking forward to hearing suggestions for recipes etc and uplifting

stories

> of getting to the other side of this condition

>

> best

> lisa

>

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

>

[Guest guest]

hi stuck and brenda,

thanks for the welcome, glad to hear the taste for sweet things will go

with time, actually when i do take breaks from eating chocolate and then

have a bar in a moment of weakness i notice that it isn't as good as i

remembered, the only problem then is that it doesn't take much to reaccustom

my tastebuds to it. i haven't been able to eat cakes for ages, but do

indulge in cheesecake and the odd biscuit in fact i think a gradual excess

of sugar over a number of weeks may have been responsible for my most recent

attack in my joints.

presently i take honey in tea, brown sugar in a very occasional cup of

coffee (less that one per week), but am thinking i may need to wean myself

off the honey, i don't know.

i get really bad allergy reactions to any artificial sweetener, tho prior to

the onset of this condition i never had any food intolerances at all.

for the last month or so i've been taking cabbage water, a recipe i got from

a herbal remedies book, for me it seems to have helped with joint and gout

problems and seems to be slowly improving the skin, don't know if it is any

good for candida

what you do is chop 1/4 head of cabbage, put it in 2 pints of water and

simmer for 10 mins, strain off the liquid and drink it. the recipe also

included 4 cloves of garlic chopped but this was too strong for me and

brought on quite major detox/flu type symptoms, so i stopped adding garlic.

then you sweeten it with honey (which could be a bad move, i don't know)

in the write-up in the book it quotes culpeper as saying, " drink and bathe

the joints for pain, aches and gouty swellings. heals all small scabs,

pushes and wheals that break out in the skin " .

so basically it is a good detoxifier and alkalises/cleanses the body,

soothes and protects the gut.

does anyone know if this may combat candida problems, actually as i type i'm

wondering if my flu symptoms with the garlic could have been die-off?

personally i am more in tune with natural approaches to this problem as

every treatment from the dr has made me suffer a lot more and i am in any

case very sensitive to prescription medicines.

interested in comments

lisa

[Guest guest]

,

What type of joint problems are you having? I was having sever joint problems

that I

blamed on my FMS for years, my joints would lock up and i would shooting pains

that were

almost unbearable. I finally traced it down to MSG. You would not believe the

foods that

you can find MSG in, sometimes it is even hidden and listed as " natural spices " .

I do my

best now to avoid any foods that i have not cooked myself, that is the only way

i can

insure that nothing has been added. It took me so long to make the connection

because

after eating MSG it would take about 2 days for my symptoms to show up. Since

ive made the

connection i have had no joint problems that i couldn't trace back to MSG that i

mistakenly

ate within the last 2 days.

lisa wrote:

> hi stuck and brenda,

>

> thanks for the welcome, glad to hear the taste for sweet things will go

> with time, actually when i do take breaks from eating chocolate and then

> have a bar in a moment of weakness i notice that it isn't as good as i

> remembered, the only problem then is that it doesn't take much to reaccustom

> my tastebuds to it. i haven't been able to eat cakes for ages, but do

> indulge in cheesecake and the odd biscuit in fact i think a gradual excess

> of sugar over a number of weeks may have been responsible for my most recent

> attack in my joints.

>

> presently i take honey in tea, brown sugar in a very occasional cup of

> coffee (less that one per week), but am thinking i may need to wean myself

> off the honey, i don't know.

> i get really bad allergy reactions to any artificial sweetener, tho prior to

> the onset of this condition i never had any food intolerances at all.

>

> for the last month or so i've been taking cabbage water, a recipe i got from

> a herbal remedies book, for me it seems to have helped with joint and gout

> problems and seems to be slowly improving the skin, don't know if it is any

> good for candida

>

> what you do is chop 1/4 head of cabbage, put it in 2 pints of water and

> simmer for 10 mins, strain off the liquid and drink it. the recipe also

> included 4 cloves of garlic chopped but this was too strong for me and

> brought on quite major detox/flu type symptoms, so i stopped adding garlic.

> then you sweeten it with honey (which could be a bad move, i don't know)

> in the write-up in the book it quotes culpeper as saying, " drink and bathe

> the joints for pain, aches and gouty swellings. heals all small scabs,

> pushes and wheals that break out in the skin " .

> so basically it is a good detoxifier and alkalises/cleanses the body,

> soothes and protects the gut.

> does anyone know if this may combat candida problems, actually as i type i'm

> wondering if my flu symptoms with the garlic could have been die-off?

>

> personally i am more in tune with natural approaches to this problem as

> every treatment from the dr has made me suffer a lot more and i am in any

> case very sensitive to prescription medicines.

>

> interested in comments

>

> lisa

>

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

>

[Guest guest]

Personlay I think the cabbage waters ounds discusting. I don't understand

why people have to kill water, it's good just like it was pade pure and

cold. this warming it, adding lemon or cabbage oor seltzer or what not to

it, personally make sme shutter. I honestly don't like water that much, but

have been drinking alot more lately, and it seems to be helping. If it's

helping you than great though. ialso tend to go towards the healthy way of

doingthings,a s does my doctor. he will give perscriptions but not like some

doctors who basically just look for people to give a perscription to, he

listens he edplains and has actually told me at times the best thing for me

is to just rest. no meds, just ed rest maybe to up my dose of VC but thatw

as it. and other times he tried zithromaxx on me and then realized that was

ajoke. he also can no longer use cipro or a few others. I actually was

recently told that iam allergic to a kind of antibiotic, that I guess when

you tajke it tend sto up the yeast content so he had me taking somethingw

ith it so that it wouldn't do that, i was pretty imprssed. I have had him as

my doc since i was 13, so he knows me pretty well:). I wish you all could go

to him, he may not have all the answers but he willw prk woth you to find

them.

Ok that's enough doc boasting. man witha ll teh idiot docs out there it's

bnnice to know there are afew good ones out there still. I found out

recently that a doc iw ent to a few years ago finally had his melt down. I

honestly thhought he qwas going to have one while we were interviweing. he

had me in his office for 4 hours. it was not a good day. so afterwards moma

nd i wenta nd say Patch adams definatly a good movie to watch after having

such a HORRIABLE doc visit. I was there about my bad functions and he was

trying to tell me that there is no such thing as add that my dad never had

hepititus, even though he wa sin the hospital for something like 3 week i

think with it, My mom had to sit outside his window to talk to him because

she was pregant with my oldest brother. and yet he was trying to tell me

that he never had it and he had never met my father. I was so livid when i

left there it wasn't funny.

S. Ok I am done rambaling:)

I may get stuck a lot in life, but at least I stick with it:)

Re: introduction

hi stuck and brenda,

thanks for the welcome, glad to hear the taste for sweet things will go

with time, actually when i do take breaks from eating chocolate and then

have a bar in a moment of weakness i notice that it isn't as good as i

remembered, the only problem then is that it doesn't take much to reaccustom

my tastebuds to it. i haven't been able to eat cakes for ages, but do

indulge in cheesecake and the odd biscuit in fact i think a gradual excess

of sugar over a number of weeks may have been responsible for my most recent

attack in my joints.

presently i take honey in tea, brown sugar in a very occasional cup of

coffee (less that one per week), but am thinking i may need to wean myself

off the honey, i don't know.

i get really bad allergy reactions to any artificial sweetener, tho prior to

the onset of this condition i never had any food intolerances at all.

for the last month or so i've been taking cabbage water, a recipe i got from

a herbal remedies book, for me it seems to have helped with joint and gout

problems and seems to be slowly improving the skin, don't know if it is any

good for candida

what you do is chop 1/4 head of cabbage, put it in 2 pints of water and

simmer for 10 mins, strain off the liquid and drink it. the recipe also

included 4 cloves of garlic chopped but this was too strong for me and

brought on quite major detox/flu type symptoms, so i stopped adding garlic.

then you sweeten it with honey (which could be a bad move, i don't know)

in the write-up in the book it quotes culpeper as saying, " drink and bathe

the joints for pain, aches and gouty swellings. heals all small scabs,

pushes and wheals that break out in the skin " .

so basically it is a good detoxifier and alkalises/cleanses the body,

soothes and protects the gut.

does anyone know if this may combat candida problems, actually as i type i'm

wondering if my flu symptoms with the garlic could have been die-off?

personally i am more in tune with natural approaches to this problem as

every treatment from the dr has made me suffer a lot more and i am in any

case very sensitive to prescription medicines.

interested in comments

lisa

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[Guest guest]

mSG tends to just give me migraines that are unbearable. but though Chinese

places claim to no longer use it. if theyt don't make thier own sauses it's

in thier sauseas. oh man! look what you did know i want Chinese:)LOL.

I may get stuck a lot in life, but at least I stick with it:)

Re: introduction

,

What type of joint problems are you having? I was having sever joint

problems that I

blamed on my FMS for years, my joints would lock up and i would shooting

pains that were

almost unbearable. I finally traced it down to MSG. You would not believe

the foods that

you can find MSG in, sometimes it is even hidden and listed as " natural

spices " . I do my

best now to avoid any foods that i have not cooked myself, that is the only

way i can

insure that nothing has been added. It took me so long to make the

connection because

after eating MSG it would take about 2 days for my symptoms to show up.

Since ive made the

connection i have had no joint problems that i couldn't trace back to MSG

that i mistakenly

ate within the last 2 days.

lisa wrote:

> hi stuck and brenda,

>

> thanks for the welcome, glad to hear the taste for sweet things will go

> with time, actually when i do take breaks from eating chocolate and then

> have a bar in a moment of weakness i notice that it isn't as good as i

> remembered, the only problem then is that it doesn't take much to

reaccustom

> my tastebuds to it. i haven't been able to eat cakes for ages, but do

> indulge in cheesecake and the odd biscuit in fact i think a gradual excess

> of sugar over a number of weeks may have been responsible for my most

recent

> attack in my joints.

>

> presently i take honey in tea, brown sugar in a very occasional cup of

> coffee (less that one per week), but am thinking i may need to wean myself

> off the honey, i don't know.

> i get really bad allergy reactions to any artificial sweetener, tho prior

to

> the onset of this condition i never had any food intolerances at all.

>

> for the last month or so i've been taking cabbage water, a recipe i got

from

> a herbal remedies book, for me it seems to have helped with joint and gout

> problems and seems to be slowly improving the skin, don't know if it is

any

> good for candida

>

> what you do is chop 1/4 head of cabbage, put it in 2 pints of water and

> simmer for 10 mins, strain off the liquid and drink it. the recipe also

> included 4 cloves of garlic chopped but this was too strong for me and

> brought on quite major detox/flu type symptoms, so i stopped adding

garlic.

> then you sweeten it with honey (which could be a bad move, i don't know)

> in the write-up in the book it quotes culpeper as saying, " drink and bathe

> the joints for pain, aches and gouty swellings. heals all small scabs,

> pushes and wheals that break out in the skin " .

> so basically it is a good detoxifier and alkalises/cleanses the body,

> soothes and protects the gut.

> does anyone know if this may combat candida problems, actually as i type

i'm

> wondering if my flu symptoms with the garlic could have been die-off?

>

> personally i am more in tune with natural approaches to this problem as

> every treatment from the dr has made me suffer a lot more and i am in any

> case very sensitive to prescription medicines.

>

> interested in comments

>

> lisa

>

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

>

[Guest guest]

hi brenda,

> What type of joint problems are you having?

rheumatic symptoms, inflammation (moves around the body), gout symptoms in

my feet

intermittent attacks, which can be pretty incapacitating for 3 weeks at a

time

>I was having sever joint problems that I

> blamed on my FMS for years, my joints would lock up and i would shooting

pains that were

> almost unbearable. I finally traced it down to MSG. >

good that you found the key for yours

i don't think i have any intake of msg, as for some time now i have been

unable to buy/eat any product which has a list of additives in the

ingredients, tho such products usually make me itch

all of mine may still be mercury detox, but the feet pain is connected with

sulphur in foods (so i can't have eggs), but then again this is also because

of the mercury

thanks for the suggestion

lisa

[Guest guest]

Hi Bob

My daughter Amy, systemtic JRA, diagnosed at the age of 5. She is

now 8. She is currently on Enbrel and Methotrexate injections,

Naprosyn, folic acid and a multi vitamin. She was on prednisone

during her last flare, last August.

She would love a pen pal, if your daughter would like to email her.

> I never realized that egroups covered this topic. I belong to

> egroups for a professional group, never knowing what a resource it

is

> for jra. Anyway, what brings me here is my 7 yr old who has been

> diagnosed with systemic jra (Stills Disease) since she was

17months.

> She had a flare up at age 4 and is currently experiencing another

one

> that has lasted since halloween 2000.

>

> My wife and I are interested in learning how other families are

> dealing with this disease. At the risk of sounding foolish, when

she

> was first diagnosed and we learned of the treatments and the

potency

> of the drugs used, we balked and attempted holistic, nutritional

> treatments. But her first flare up at age 4 made it clear that she

> needed the agressive treatments prescribed by the Drs. We were and

> are greatful for the level of care she is receiving.

>

> Our daughter has as bad a condition as our Dr. has seen. I hope

that

> she will go into remission at some point, but honestly feel that

she

> will be dealing with these symptons over the long term. We are so

> afraid of the unknown, longterm effects of these drugs, plus all

the

> other problems associated with long term arthritic activity such as

> OA as a result of prednisone use, joint replacement, poor quality

of

> life, falling behind in school, effect on siblings and quite

frankly

> the wear and tear on us. She is a great kid, tough as nails from

her

> experiences, enjoys swimming, and snow skis with her sibs. Any

> responses, suggestions, & ideas will all be greatfully received.

>

> Has anyone found that combining the agrressive approach with

> nutritional treatments succesful?

[Guest guest]

Hi ,

I'm sure that you'll find many stories here that will help to ease your

worries ... but you may also read some stories that will make you want

to cry. Some of our kids are playing on sports teams. Others are

cheerleaders. Others struggle through physical therapy sessions to

strengthen their joints and muscles enough to walk again, after having

needed to use a wheelchair. The course of JRA can be very different, for

different children. Some have mild symptoms while others have very

serious complications. Some respond extremely well to conventional

treatments while others seem to be persistent non-responders. For some,

these symptoms of arthritis last for many years. Others have a much

shorter duration.

It's very hard to know for certain which category your son may fall

within, if he does in fact have JRA. It's a great idea to learn more

about the illness, so that your family can be better prepared for what

you may face down the road, and I think you've found a great place to do

so. Welcome

Take Care,

Georgina

zacks98@... wrote:

>

> Hi. I sent in my introduction, but I don't think it went through, so here it

> is again. My son was just diagnosed (not 100% sure yet) with systemic jra.

> He is 2.5 yrs old and was having persistant high fevers. He was hospitalized

> last week for 5 days to rule out any type of infection, and b/c they did not

> find anything, they surmised that he may have jra. We were sent home with

> high dose motrin, and told to wait for any physical symptoms, while being

> closely followed by the peds rheumatologist. This morning he began limping

> and told me that his leg had a boo boo. After his ibuprofen kicked in, he

> was running and playing all over the place. I'm still waiting for a call

> back from the Dr. to find out what our next step is. My husband and I are

> having a rough time dealing with this. Our biggest fears are that his pain

> will be terrible, and his childhood from a social standpoint will be

> difficult. Our Dr. has tried to reassure us saying that most kids are still

> able to participate in sports etc. Anyway, thanks for listening, and we

> would appreciate any info from your experiences on how your kids are holding

> up.

> Thanks,

>

[Guest guest]

Hello , welcome to the group. I am a new member myself. I have

learned alot here from others & I am sure you will too. I have had

candidiasis for three years now. Mine started with a combination of

allergy shots & antibiotics. I try to stay clear of both now. I

stay on the diet the best I can, if I stray a little I have another

flare up. I hope one day that I will be completely free, but I don't

think I ever will. You will have to try to cut sugar out of your

diet, a definate no no. I was skinny before I went on the diet and

became very under weight after a few months on it. If you stay on

the diet consistently you will lose weight.

LAH-

-- In candidiasisegroups, on <dharrisn@s...> wrote:

> Hello, my name is . I am new to this site. I was

> diagnosed with Candida in Sept., 2000. I have probably

> had it, though, since 1988 or so. That is when I

> started taking alot of antibiotics. I took things for

> Strep throat and I took Tetracycline for acne. My

> doctor has been giving me Nizoral for two week

> intervals. When I go off for two weeks I take Nystatin.

> He has recommended several herbal things too along with

> the book The Yeast Infection and the Woman. I have read

> the book. For the first 3 weeks, I didn't eat any

> sugar, but then I started to cheat. Now I don't eat

> what I did before I found out I had Candida, but I

> still eat sugar. I do not drink regular sodas anymore,

> though. I either drink diet or I drink lots of water. I

> just turned 31 in Nov. I used to be really thin, but

> probably due to the Candida, I now have hypothyroidism

> and I have gained about 70 pounds. I would love to be

> able to lose it, but I have tried about everything, and

> I can't seem to do it.

>

> When the doctor first diagnosed me he took 3 different

> blood tests. The one test, I don't remember what is was

> called, the number should have been below 100 to be

> normal and mine was over 600. I just had another blood

> test taken last week and I haven't heard about the

> results yet. It will be the end of this week before I

> do.

>

> I got off the pill, since that is suppose to not be

> good for Candida. I was taking it because I still break

> out alot. I have been fine without it up until this

> last week. I am starting to break out again. If anyone

> has any suggestions for that, I want to know. I was

> taking a Kenalog shot every 8 weeks for my allergies,

> that I have only had for the last 3 1/2 years. I had to

> take the shot or I would get sick and need more

> antibiotics. I have taken supplements alot in the last

> few months and I have been able to not have to have a

> shot since Sept. or Oct.

>

> If I have left anything out that you guys would like to

> know, just ask.

>

> If you guys have any suggestions for me about acne or

> candida, please tell me.

>

>