Introduction

[Guest guest]

Debbie -

Welcome to the group!! Probably your son is entering pre-puberty - mine

started having seizures again after being seizure free for 5 years WITHOUT

meds. The experts say seizures either get better or worse w/ puberty

because of the hormones. My son is now 13 - we've had uncontrolled seizures

since LAST July - we're on 5 MEDS - Depakene, Klonopin, Keppra, Zonegran and

Topamax and had a VNS implanted in July of this year. I'd call you son's

neurologist - I thought you were only supposed to give Diastat if it was a

life-threatening seizure - not every time he has one - if they are life

threatening every time (Grand Mals) then you definitely need to talk to his

neurologist.

I also co-slept for a while, but worked w/ meds to get him to sleep during

the night - mostly seizes during the day - but he's not autistic - his

brother is and he has always had sleeping problems but no seizures.

GOOD LUCK!

, Mom of Cody and Caleb

_____

From: [mailto: ]

On Behalf Of warwick51197

Sent: Wednesday, October 22, 2008 11:35 PM

Subject: [ ] Introduction

Hello -

I have an 11 year old son with autism and epilepsy. He had a VNS

implanted about 2 years ago and while it initially seemed to help

reduce the number of seizures he was having, they have now seemed to be

increasing over the last six months (we make at least one trip to the

Emergency Room every month). He is a rather big boy (gained lots of

weight on Depakote a few years ago) and now he's on 400 mg of Topamax.

We also keep 17.5 mg of Diastat (acudial) at home to administer when

he's having a seizure. I sleep next to him every night because they

always seem to happen at night and I can not sleep in another room

knowing he might be having a seizure (does anyone else do this?)..

Anyways, most of the time when I catch a seizure, administer the

Diastat, we still have to go to the Emergency room. They usually have

to give him 1 to 3 miligrams of Ativan to help stop the seizures.

He always gets this " red blotches " on his torso, back and arms while

he's having a seizure. Has anyone else experienced this? The

neurologists can not tell me what causes this. Also, after he's had a

seizure, he NEVER sleeps that night....stays awake the entire night.

This is so hard to deal with and it's almost worse that dealing with

the seizures, especially when I have to go to work the next day! you

would think that with all the meds they administer to him in the ER,

which make him sleep for hours, he would be sleepy into the night...NOT

so! He is also so much more Aggressive after having a seizure and it

usually takes about a week for him to get back " to his old self " .

Anyways, I just wanted to introduce myself and say hello to all those

that are dealing with seizures. I hope they do not get so bad (and

frequent) in the future that I am unable to work.

Thanks,

Debbie (in CALIF)

[Guest guest]

>

> Hello, I am new to the group. My name is .

+++Hi . Welcome to our group!

> I have an 11 year old son who is crying all the time that he has

> stomach aches. He has been to the family doctor, has had xrays,

has

> had allergy testing (and there are allergies). But this spring he

was

> very sick and was on alot of different medications. I am wondering

now

> if he could have a candida problem along side his allergies? He is

> gluten and dairy intolerant. Though we only learned he was gluten

> intolerant this spring, and four years ago we learned he was dairy

> intolerant. I know that candida can trigger food allergies...and

that

> over use of medications can too...I was and still am struggling

with my

> own candida problem.

+++Allergies are very misunderstood by doctors and people alike,

since all allergic reactions point to a very depressed immune system,

and allergy symptoms are exactly the same list of " healing symptoms "

the body creates in order to deal with an overload of toxins and/or

heal itself.

+++All candida sufferers are gluten and dairy intolerant (except for

butter that is clarified, called ghee). After curing candida a

person can have gluten and most dairy (the butterfat content in dairy

helps the body digest lactose, so high butterfat products are better).

+++All food allergy tests are highly inaccurate, and they shouldn't

be relied upon for eliminating foods. First, the Leaky Gut Theory is

totally false and also laboratories do not use " pure " foods to make

antigens for testing. Foods are not necessarily organic, and they

are cleaned with solvents they don't remove - see this article:

http://www.healingnaturallybybee.com/articles/heal11.php

+++Here's other articles that the antibody theory are also false,

which is the basis of allergy testing:

http://www.healingnaturallybybee.com/articles/menu4_1.php

> I was told that in the morning you can spit in a glass of water to

find out if you have candida..is this true? Is there anything I can

do to help my son?

+++The spit test isn't very accurate so do not rely on it. The best

test is Dr. Crook's Questionnaire:

http://www.healingnaturallybybee.com/articles/intro3.php

+++Yes, there is a lot you can do for your son. Even IF (per chance)

he doesn't have candida, this program is a healing program which

improves anyone's health since it is according to Nature's Laws on

health. That is because it builds up the immune system, which is the

only way to cure any health problems.

+++I suggest you read articles emailed to you on Candida, or see the

Candida/Yeast Section on my website and read " How to Successfully

Overcome Candida " and " Curing Candida, How to Get Started " -

http://www.healingnaturallybybee.com/candida/index.php

+++Take one step at a time, which first starts by reading and

learning so you understand completely what needs to be done and why.

+++There are a few mothers on this group who have their whole family

on this program, so they'll be around to help and support you.

The best in health to you and your son,

Bee

[Guest guest]

Hi,

Don- I’ve been here a while, too. I need to remember the purpose of

this group isn’t so much support as information, and while I may not

believe all the info, some will benefit from it.

m

From:

[mailto: ] On

Behalf Of ludichrist2000

Sent: Tuesday, January 06, 2009 2:52 PM

Subject: [ ] INTRODUCTION

Hello everyone.

My name is don. I am 58 this yr, just an old hippy.

I found out last june that I have hep c. I am a geno 1B-86,000 load.

I got my hep probably back in the late 60's from using a needle.

I am awaiting tx or whatever the doctor advises me.

I am not in any pain, but I do experiance weakness, extreme tiredness,

and lots of brain fog.

I live alone in a new town in kansas, and have no friends or family

close by.

I like to come here everyday and read what info has been posted. I have

learned a lot already.

I hope to partisipate and beat the dragon.

Thank you.

love

don in kansas

[Guest guest]

good to see you again

Yeah Im gleaning as much info as I can and spreading it around.

You have some good info yourself.

Keep it comming.

I hope your doing well.

love

don in kansas

From: Matchinsky <mmatchinsky@...>Subject: RE: [ ] INTRODUCTION Date: Tuesday, January 6, 2009, 4:40 PM

Hi, Don- I¢ve been here a while, too. I need to remember the purpose of this group isn¢t so much support as information, and while I may not believe all the info, some will benefit from it.

m

From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of ludichrist2000Sent: Tuesday, January 06, 2009 2:52 PM Subject: [ ] INTRODUCTION

Hello everyone.My name is don. I am 58 this yr, just an old hippy.I found out last june that I have hep c. I am a geno 1B-86,000 load.I got my hep probably back in the late 60's from using a needle.I am awaiting tx or whatever the doctor advises me.I am not in any pain, but I do experiance weakness, extreme tiredness, and lots of brain fog.I live alone in a new town in kansas, and have no friends or family close by.I like to come here everyday and read what info has been posted. I have learned a lot already.I hope to partisipate and beat the dragon.Thank you.lovedon in kansas

[Guest guest]

Hi Don, I"m Sharon. An old hippy gal. Why would you think you need a TX with a genotype of 1b. You viral load is quite low, considering your genotype and your viral load you can manage your fatigue and brain fog with nutrition and herbs, exercise and water. I have been living with Hep C for a long time, and had been on many forums. I fight the dragon and I plan to have a quality life. I would not trust my life to a doctor. We have just one go of it on earth, and doctors have only one path of thought. Just some thoughts.

I manage my hepC with herbs, and nutriceuticals. I live a full live, in spite of fatigue, pain, brain fog and hold a good job. I encourage all to consider what is important to you. The treatment route is not for all.

-- [ ] INTRODUCTION

Hello everyone.My name is don. I am 58 this yr, just an old hippy.I found out last june that I have hep c. I am a geno 1B-86,000 load.I got my hep probably back in the late 60's from using a needle.I am awaiting tx or whatever the doctor advises me.I am not in any pain, but I do experiance weakness, extreme tiredness, and lots of brain fog.I live alone in a new town in kansas, and have no friends or family close by.I like to come here everyday and read what info has been posted. I have learned a lot already.I hope to partisipate and beat the dragon.Thank you.lovedon in kansas

[Guest guest]

hiya Sharon

I didnt say I was going to do tx, just that I was going to the doctor.

Right now Im doing my own personal brand of tx.

ANGEL FOOD CAKE DIET with headmeds on the side.

If its good enough for the angels, its got to be twice as good for a mere human like this old ludichrist hippy.

You know Im JK dont you?

I want to hear what the doc has to say. Then I will decide what to do.

I might get a biopsy and some blood work so I know better where my liver stands.

As far as tx.....we will see. Im learning everything I can.

A well informed hippy can put the best in his pipe, wouldnt you agree?

Thank you for your imput. I might call on you for non-tx info.

love

don in kansas

From: Sharon <swarfiel@...>Subject: Re: [ ] INTRODUCTION Date: Tuesday, January 6, 2009, 8:50 PM

Hi Don, I"m Sharon. An old hippy gal. Why would you think you need a TX with a genotype of 1b. You viral load is quite low, considering your genotype and your viral load you can manage your fatigue and brain fog with nutrition and herbs, exercise and water. I have been living with Hep C for a long time, and had been on many forums. I fight the dragon and I plan to have a quality life. I would not trust my life to a doctor. We have just one go of it on earth, and doctors have only one path of thought. Just some thoughts.

I manage my hepC with herbs, and nutriceuticals. I live a full live, in spite of fatigue, pain, brain fog and hold a good job. I encourage all to consider what is important to you. The treatment route is not for all.

-- [ ] INTRODUCTION

Hello everyone.My name is don. I am 58 this yr, just an old hippy.I found out last june that I have hep c. I am a geno 1B-86,000 load.I got my hep probably back in the late 60's from using a needle.I am awaiting tx or whatever the doctor advises me.I am not in any pain, but I do experiance weakness, extreme tiredness, and lots of brain fog.I live alone in a new town in kansas, and have no friends or family close by.I like to come here everyday and read what info has been posted. I have learned a lot already.I hope to partisipate and beat the dragon.Thank you.lovedon in kansas

[Guest guest]

Wow...that is awesome Don, let me know how the angel thing goes for

you...blessings to you in the middle of nowhere.

---- Christ <ludichrist2000@...> wrote:

> hiya Sharon

> I didnt say I was going to do tx, just that I was going to the doctor.

> Right now Im doing my own personal brand of tx.

> ANGEL FOOD CAKE DIET with headmeds on the side.

> If its good enough for the angels, its got to be twice as good for a mere

human like this old ludichrist hippy.

>  

>  

>  

>  

>  

>  

>  

>  

>  

>  

>  

>  

> You know Im JK dont you?

> I want to hear what the doc has to say. Then I will decide what to do.

> I might get a biopsy and some blood work so I know better where my liver

stands.

> As far as tx.....we will see. Im learning everything I can.

> A well informed hippy can put the best in his pipe, wouldnt you agree?

> Thank you for your imput. I might call on you for non-tx info.

> love

> don in kansas

>

>

>

>

>

> From: Sharon <swarfiel@...>

> Subject: Re: [ ] INTRODUCTION

>

> Date: Tuesday, January 6, 2009, 8:50 PM

>

>

>

>

>

>

>

>

>

>

>

> Hi Don, I " m Sharon.  An old hippy gal.  Why would you think you need a TX

with a genotype of 1b.  You viral load is quite low, considering your genotype

and your viral load you can manage your fatigue and brain fog with nutrition and

herbs, exercise and water.  I have been living with Hep C for a long time, and

had been on many forums.  I fight the dragon and I plan to have a quality

life.  I would not trust my life to a doctor.  We have just one go of it on

earth, and doctors have only one path of thought.  Just some thoughts.

>  

> I manage my hepC with herbs, and nutriceuticals.  I live a full live, in

spite of fatigue, pain, brain fog and hold a good job.  I encourage all to

consider what is important to you.  The treatment route is not for all.

>  

>

> -- [ ] INTRODUCTION

>  

>

> Hello everyone.

> My name is don. I am 58 this yr, just an old hippy.

> I found out last june that I have hep c. I am a geno 1B-86,000 load.

> I got my hep probably back in the late 60's from using a needle.

> I am awaiting tx or whatever the doctor advises me.

> I am not in any pain, but I do experiance weakness, extreme tiredness,

> and lots of brain fog.

> I live alone in a new town in kansas, and have no friends or family

> close by.

> I like to come here everyday and read what info has been posted. I have

> learned a lot already.

> I hope to partisipate and beat the dragon.

> Thank you.

> love

> don in kansas

>

>

>  

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I'm an old hippy guy, too. I'm not sure why you would discount treatment because of genotype and/or viral load. 1a and 1b are perhaps the most virulent forms of Hep C. Viral load is meaningless except in relation to treatment response. The numbers ebb and flow, especially in the earlier stages of the disease.I agree nutrition is very important with liver disease and, as I've said, I'm open to alternative treatments but I insist they stand up to empirical testing. Most do not, unfortunately.I trust my life to God, and I believe he gave us science and doctors and medicine. Not all of them have a one track mind. Of course, not all doctors graduated at the top of their class, and they put their pants on one leg at a time like the rest of us....While the natural is usually best, there are side effects one needs to consider when looking at herbs etc. They are chemicals too!!!! As a substance abuse counselor I would tell my patients that, while "natural," marijuana is a chemical agent. As are poison ivy, etc....Herbs and nutritionals are not for everyone either. I strongly encourage anyone considering that path to discuss it with a doctor and some expert on the subject. Some alternative treatments can be more harmful than what they are supposed to treat. (They same is true for medical interventions, but doctors and insurance companies do a cost/benefit analysis.)m>> Hi Don, I"m Sharon. An old hippy gal. Why would you think you need a TX> with a genotype of 1b. You viral load is quite low, considering your> genotype and your viral load you can manage your fatigue and brain fog with> nutrition and herbs, exercise and water. I have been living with Hep C for> a long time, and had been on many forums. I fight the dragon and I plan to> have a quality life. I would not trust my life to a doctor. We have just> one go of it on earth, and doctors have only one path of thought. Just some> thoughts.

> > I manage my hepC with herbs, and nutriceuticals. I live a full live, in> spite of fatigue, pain, brain fog and hold a good job. I encourage all to> consider what is important to you. The treatment route is not for all.

> > -- [ ] INTRODUCTION

> > Hello everyone.

> My name is don. I am 58 this yr, just an old hippy.

> I found out last june that I have hep c. I am a geno 1B-86,000 load.

> I got my hep probably back in the late 60's from using a needle.

> I am awaiting tx or whatever the doctor advises me.

> I am not in any pain, but I do experiance weakness, extreme tiredness, > and lots of brain fog.

> I live alone in a new town in kansas, and have no friends or family > close by.

> I like to come here everyday and read what info has been posted. I have > learned a lot already.

> I hope to partisipate and beat the dragon.

> Thank you.

> love

> don in kansas>

[Guest guest]

1a and 1b are the least virulent and the least likely to respond, sustained respond to treatment. Where do you get your information from? I have worked in the hospital, doing laboratory testing, including HepC viral loads for over 25 years.

I'm not trying to be difficult, I'm just experienced...and unfortunately been learning about this disease for quite sometime.

-- [ ] INTRODUCTION > > Hello everyone. > My name is don. I am 58 this yr, just an old hippy. > I found out last june that I have hep c. I am a geno 1B-86,000 load. > I got my hep probably back in the late 60's from using a needle. > I am awaiting tx or whatever the doctor advises me. > I am not in any pain, but I do experiance weakness, extreme tiredness, > and lots of brain fog. > I live alone in a new town in kansas, and have no friends or family > close by. > I like to come here everyday and read what info has been posted. I have > learned a lot already. > I hope to partisipate and beat the dragon. > Thank you. > love > don in kansas>

[Guest guest]

You’re

a lab tech? OK, I’m experienced and educated too. Perhaps we

have a disagreement about virulence? From Wikipedia:

Virulence

(also called pestiferousness) refers to the degree of pathogenicity

of an organism, or in other words the relative ability of a pathogen to

cause disease.

The

word virulent, which is the adjective for virulence, derives from the

Latin word virulentus, which means " full of poison. " [1]

From an ecological

point of view, virulence can be defined as the host's parasite-induced loss of fitness.

Yes,

this means that they are the “least” likely to respond, but there

are still good success rates. Acceptable to me anyway. Virulence

also refers to the amount of damage they do. All the more reason to treat

as soon as possible.

I don’t

recall where I read it but viral loads certainly ebb and flow. After all,

I’ve been virus free… many times. The numbers increase as new

virus are hatched and decrease as the body’s natural interferon and other

defenses kill some off. Especially in early stages. This doesn’t

make sense to you? Medicine should make sense.

From

NIH:

Quantification

of HCV RNA in Serum

Several

methods are available for measuring the concentration or level of virus in

serum, which is an indirect assessment of viral load. These methods include a

quantitative PCR and a branched DNA (bDNA) test. Unfortunately, these assays

are not well standardized, and different methods from different laboratories

can provide different results on the same specimen. In addition, serum levels

of HCV RNA can vary spontaneously by 3- to 10-fold over time. Nevertheless,

when performed carefully, quantitative assays provide important insights into

the nature of hepatitis C. Most patients with chronic hepatitis C have levels

of HCV RNA (viral load) between 100,000 (105)

and 10,000,000 (107) copies per

mL. Expressed as IU, these averages are 50,000 to 5 million IU.

Viral

levels as measured by HCV RNA do not correlate with the severity of the

hepatitis or with a poor prognosis (as in HIV infection); but viral load does

correlate with the likelihood of a response to antiviral therapy. (emphasis

added) Rates of response to a course of peginterferon and ribavirin are higher

in patients with low levels of HCV RNA. There are several definitions of a

“low level” of HCV RNA, but the usual definition is below 800,000

IU (~ 2 million copies) per mL.

In

addition, monitoring HCV RNA levels during the early phases of treatment may

provide early information on the likelihood of a response. Yet because of the

shortcomings of the current assays for HCV RNA level, these tests are not

always reliable guides to therapy.

m

From:

[mailto: ] On

Behalf Of Sharon

Sent: Wednesday, January 07, 2009 7:57 AM

Subject: Re: [ ] Re: INTRODUCTION

1a

and 1b are the least virulent and the least likely to respond, sustained

respond to treatment. Where do you get your information from? I

have worked in the hospital, doing laboratory testing, including HepC viral

loads for over 25 years.

I'm

not trying to be difficult, I'm just experienced...and unfortunately been

learning about this disease for quite sometime.

-- [ ] INTRODUCTION

>

> Hello everyone.

> My name is don. I am 58 this yr, just an old hippy.

> I found out last june that I have hep c. I am a geno 1B-86,000 load.

> I got my hep probably back in the late 60's from using a needle.

> I am awaiting tx or whatever the doctor advises me.

> I am not in any pain, but I do experiance weakness, extreme tiredness,

> and lots of brain fog.

> I live alone in a new town in kansas, and have no friends or family

> close by.

> I like to come here everyday and read what info has been posted. I have

> learned a lot already.

> I hope to partisipate and beat the dragon.

> Thank you.

> love

> don in kansas

>

[Guest guest]

People with 1a and 1b can live a long and healthy life, without much damage to their liver as long as they are careful with what they do to their livers. My liver is completely normal after 15 years of infection. Take a 3b, these people can go into liver failure within 5 years, but even an IV high dose of Vitamin C will kill that virus. High virulence, this is my definition of virulence. The only way a 1a will go into cirrhosis is with much liver damage due to outside forces apart from HepC dragon. Including a person immunity.

I apologize, I worked all night, but I will find medical articles to back this up. I just have to sleep now.

It is very difficult to find treatment for a 1a, I will find the articles...gotta a few of them.

I live in Florida and it's 70 degrees outside...I'm thinking about kayaking or riding my bike. Life is too short to waste on interferon....I took it before I knew better, it almost killed me, and left me with fibromyalgia. But I won't let this dragon keep me down.

Love much, laugh a lot and live to the fullness, loving God and my human companions God gave me. Life is a gift...much care should be given before listening to some doctors with pharmaceutical agendas.....

-- [ ] INTRODUCTION > > Hello everyone. > My name is don. I am 58 this yr, just an old hippy. > I found out last june that I have hep c. I am a geno 1B-86,000 load. > I got my hep probably back in the late 60's from using a needle. > I am awaiting tx or whatever the doctor advises me. > I am not in any pain, but I do experiance weakness, extreme tiredness, > and lots of brain fog. > I live alone in a new town in kansas, and have no friends or family > close by. > I like to come here everyday and read what info has been posted. I have > learned a lot already. > I hope to partisipate and beat the dragon. > Thank you. > love > don in kansas>

[Guest guest]

Sure- people with geno 1 can live long healthy lives; 50% of people who contract HCV clear it on their own!!! But geno 1a and 1b are the most virulent.Sorry- I don't believe your liver is "completely" normal. Liver enzymes are not a good indicator; mine are currently normal. And I don't believe that vitamin C will kill the virus; that's out and out bs.Course of disease and response to treatment are highly individual. As the NIH said, 1a is the most virulent, and I stick to Wikipedia's definition.Don't bother doing research for me; I prefer to do my own. I'm sorry you had such a hard time with treatment. It's nearly killing me, too. But it's my best chance of clearing the virus. You're entitled to your opinion, I'll stick to scientific fact.Yes, much care should be taken when listening to ANYONE''s advice. This includes those with an anti-medicine agenda such as Scientologists.m>> People with 1a and 1b can live a long and healthy life, without much damage> to their liver as long as they are careful with what they do to their livers> My liver is completely normal after 15 years of infection. Take a 3b,> these people can go into liver failure within 5 years, but even an IV high> dose of Vitamin C will kill that virus. High virulence, this is my> definition of virulence. The only way a 1a will go into cirrhosis is with> much liver damage due to outside forces apart from HepC dragon. Including a> person immunity.

> > I apologize, I worked all night, but I will find medical articles to back> this up. I just have to sleep now.

> > It is very difficult to find treatment for a 1a, I will find the articles..> gotta a few of them. > > I live in Florida and it's 70 degrees outside...I'm thinking about kayaking> or riding my bike. Life is too short to waste on interferon....I took it> before I knew better, it almost killed me, and left me with fibromyalgia. > But I won't let this dragon keep me down.

> > Love much, laugh a lot and live to the fullness, loving God and my human> companions God gave me. Life is a gift...much care should be given before> listening to some doctors with pharmaceutical agendas.....

>

[Guest guest]

Sorry, I meant to say it is normal with a large influx of reactive lymphocytes, the last biopsy. I do understand liver enzymes as I run these frequently.

Where did you hear 50% clear on their own? Documentation please.

-- [ ] Re: INTRODUCTION

Sure- people with geno 1 can live long healthy lives; 50% of people who contract HCV clear it on their own!!! But geno 1a and 1b are the most virulent.Sorry- I don't believe your liver is "completely" normal. Liver enzymes are not a good indicator; mine are currently normal. And I don't believe that vitamin C will kill the virus; that's out and out bs.Course of disease and response to treatment are highly individual. As the NIH said, 1a is the most virulent, and I stick to Wikipedia's definition.Don't bother doing research for me; I prefer to do my own. I'm sorry you had such a hard time with treatment. It's nearly killing me, too. But it's my best chance of clearing the virus. You're entitled to your opinion, I'll stick to scientific fact.Yes, much care should be taken when listening to ANYONE''s advice. This includes those with an anti-medicine agenda such as Scientologists.m>> People with 1a and 1b can live a long and healthy life, without much damage> to their liver as long as they are careful with what they do to their livers> My liver is completely normal after 15 years of infection. Take a 3b,> these people can go into liver failure within 5 years, but even an IV high> dose of Vitamin C will kill that virus. High virulence, this is my> definition of virulence. The only way a 1a will go into cirrhosis is with> much liver damage due to outside forces apart from HepC dragon. Including a> person immunity. > > I apologize, I worked all night, but I will find medical articles to back> this up. I just have to sleep now. > > It is very difficult to find treatment for a 1a, I will find the articles..> gotta a few of them. > > I live in Florida and it's 70 degrees outside...I'm thinking about kayaking> or riding my bike. Life is too short to waste on interferon....I took it> before I knew better, it almost killed me, and left me with fibromyalgia. > But I won't let this dragon keep me down. > > Love much, laugh a lot and live to the fullness, loving God and my human> companions God gave me. Life is a gift...much care should be given before> listening to some doctors with pharmaceutical agendas..... >

[Guest guest]

Try

the CDC.

m

From:

[mailto: ] On

Behalf Of Sharon

Sent: Wednesday, January 07, 2009 9:27 AM

Subject: Re: [ ] Re: INTRODUCTION

Sorry,

I meant to say it is normal with a large influx of reactive lymphocytes, the

last biopsy. I do understand liver enzymes as I run these

frequently.

Where

did you hear 50% clear on their own? Documentation please.

-- [ ] Re: INTRODUCTION

Sure- people with geno 1 can live long

healthy lives; 50% of people who contract HCV clear it on their

own!!! But geno 1a and 1b are the most virulent.

Sorry- I don't believe your liver is " completely " normal.

Liver enzymes are not a good indicator; mine are currently normal. And

I don't believe that vitamin C will kill the virus; that's out and out bs.

Course of disease and response to treatment are highly individual. As

the NIH said, 1a is the most virulent, and I stick to Wikipedia's definition.

Don't bother doing research for me; I prefer to do my own. I'm sorry

you had such a hard time with treatment. It's nearly killing me,

too. But it's my best chance of clearing the virus. You're

entitled to your opinion, I'll stick to scientific fact.

Yes, much care should be taken when listening to ANYONE''s advice. This

includes those with an anti-medicine agenda such as Scientologists.

m

>

> People with 1a and 1b can live a long and healthy life, without much

damage

> to their liver as long as they are careful with what they do to their

livers

> My liver is completely normal after 15 years of infection. Take a 3b,

> these people can go into liver failure within 5 years, but even an IV

high

> dose of Vitamin C will kill that virus. High virulence, this is my

> definition of virulence. The only way a 1a will go into cirrhosis is

with

> much liver damage due to outside forces apart from HepC dragon.

Including a

> person immunity.

>

> I apologize, I worked all night, but I will find medical articles to

back

> this up. I just have to sleep now.

>

> It is very difficult to find treatment for a 1a, I will find the

articles..

> gotta a few of them.

>

> I live in Florida and it's 70 degrees outside...I'm thinking about

kayaking

> or riding my bike. Life is too short to waste on interferon....I took it

> before I knew better, it almost killed me, and left me with

fibromyalgia.

> But I won't let this dragon keep me down.

>

> Love much, laugh a lot and live to the fullness, loving God and my human

> companions God gave me. Life is a gift...much care should be given

before

> listening to some doctors with pharmaceutical agendas.....

>

[Guest guest]

I

thought you educated yourself about Hep C?

Try the

CDC, or the NIH or any other reputable source on HCV.

m

From:

[mailto: ] On

Behalf Of Sharon

Sent: Wednesday, January 07, 2009 9:27 AM

Subject: Re: [ ] Re: INTRODUCTION

Sorry,

I meant to say it is normal with a large influx of reactive lymphocytes, the

last biopsy. I do understand liver enzymes as I run these

frequently.

Where

did you hear 50% clear on their own? Documentation please.

-- [ ] Re: INTRODUCTION

Sure- people with geno 1 can live long

healthy lives; 50% of people who contract HCV clear it on their

own!!! But geno 1a and 1b are the most virulent.

Sorry- I don't believe your liver is " completely " normal.

Liver enzymes are not a good indicator; mine are currently normal. And

I don't believe that vitamin C will kill the virus; that's out and out bs.

Course of disease and response to treatment are highly individual. As

the NIH said, 1a is the most virulent, and I stick to Wikipedia's definition.

Don't bother doing research for me; I prefer to do my own. I'm sorry

you had such a hard time with treatment. It's nearly killing me,

too. But it's my best chance of clearing the virus. You're

entitled to your opinion, I'll stick to scientific fact.

Yes, much care should be taken when listening to ANYONE''s advice. This

includes those with an anti-medicine agenda such as Scientologists.

m

>

> People with 1a and 1b can live a long and healthy life, without much

damage

> to their liver as long as they are careful with what they do to their

livers

> My liver is completely normal after 15 years of infection. Take a 3b,

> these people can go into liver failure within 5 years, but even an IV

high

> dose of Vitamin C will kill that virus. High virulence, this is my

> definition of virulence. The only way a 1a will go into cirrhosis is

with

> much liver damage due to outside forces apart from HepC dragon.

Including a

> person immunity.

>

> I apologize, I worked all night, but I will find medical articles to

back

> this up. I just have to sleep now.

>

> It is very difficult to find treatment for a 1a, I will find the

articles..

> gotta a few of them.

>

> I live in Florida and it's 70 degrees outside...I'm thinking about

kayaking

> or riding my bike. Life is too short to waste on interferon....I took it

> before I knew better, it almost killed me, and left me with

fibromyalgia.

> But I won't let this dragon keep me down.

>

> Love much, laugh a lot and live to the fullness, loving God and my human

> companions God gave me. Life is a gift...much care should be given

before

> listening to some doctors with pharmaceutical agendas.....

>

[Guest guest]

Hi Anne,

     Nope,there is no way of knowing what path your child will take.You just

have to take it one day at a time.

Try and remember most people join a support group like this because things are

rough going.I have seen MANY people come and go due to very well

control,includimg myself.My son was diagnosed just before his 3rd b-day with

systemic onset.His SED was 109 21 days after the first symptom.He was slamed

hard and fast.We were very proactive and decided to slam old man arthur hard and

fast also.It took almost 2 yrs. does have a small percent of permenant

damage in his wrists but has made up for it with his fingers.Catching a hard

line drive does hurt a bit but at 10 and 118lbs he can do push ups on his

fingers because it is more comfortable and he taught himself to do this.

Learn all you can and ask questions!!!! This list taught me how to fight and

tonite I HATE my 13 yr olds lap top.sorry for all the errors.

Hang tough,as Donna would say!

Hugs,

  Becki and 10 systemic

________________________________

From: annebacon64 <annebacon@...>

Sent: Sunday, February 15, 2009 10:08:20 PM.

Subject: Introduction

Hello,

My name is Anne and my 9 year old girl was just diagnosed this week

with JIA. Although our dr's have been great I am still a bit

overwhelmed and unsure of what to expect. Actually, is there even any

way to know what to expect?

Looking forward to learning from you all!

Anne

[Guest guest]

welcome mary! i love hearing about your dog. you may read a post i did a short

while ago about therapy dogds, or more so a dog being therqpueitc for me. I cant

wait for us to get one, but it looks as if ill be waiting a little while, as im

not well enough to take care of one now and my mother doesn't want to take care

of it a lot. Im 13 and became miserably ill in oct 07 also, diagnosed sept 08

and on treatment since oct 08. i will be looking forward to hearing from you

too!

From: snorkmom_fla <snorkmom@...>

Subject: [ ] Introduction

Date: Friday, June 26, 2009, 3:34 PM

Hi,

I just joined and wanted to introduce myself. My name is and I live in

Fort , CO. I was just diagnosed with Lyme Disease, though it seems I've

had it for over 25 years. Lots of misdiagnosis mess and struggling to manage

symptoms over the years. I began serious deterioration in Oct 07 which sent me

into another round of diagnostic tests.

Late in 08, while still looking for a diagnosis (I had received a Fibromyalgia

diagnosis but that didn't explain the neurological or breathing problems)I came

to the realization that I needed a service dog. In the course of searching for

the right dog someone I talked to got very worked up and insisted I get checked

for Lyme. Aha and finally, I know what's wrong with me.

Fortunately my doctor is open to me pursuing alternative treatments. I found

a homeopathic Lyme treatment kit and am on my second round with that.

Meanwhile my service dog is responding beautifully to training and is a great

help to me. He does balance and brace work and will be trained to pick things

up and retrieve things in case I continue to decline. I just found out that the

medical terms for my neurological stuff is polyneuropathy and ataxia. When

reading up on ataxia I was stunned to see that there was really a medical name

for all the weird stuff that I've been struggling with. It felt so good to see

that and to know I wasn't just imagining things or over reacting or whatever.

I was laid off work in February and am searching. My doc would like to see

me go on disability, but I'm not ready to give up yet. Soon I will be moving

into subsidized housing for people with disabilities. I'm really looking

forward to it as the place I'm renting now has stairs and most days they are

hard for me to manage.

I'm really looking forward to reading about the issues other people are

having and how they're managing.

[Guest guest]

Hi ,

 One thing I can tell you is that injections will not provide relief for

stenosis..I still don't understand why they are even doing them for that...well,

it's the money. And also, discectomies almost never provide permanent relief,

usually within a year the symptoms return. I think that with micro-discectomies

this happens even faster.

With PT, can I ask how thorough you were with doing your  home exercizes? Did

you do them everyday?

Stenosis can't be fixed with PT obviously, but strengthening the core muscles

will help reduce the pain and symptoms.

I would not take the Neurontin long if you don't feel strongly that it's

helping. It's a relatively new medication which doesn't have a lot of evidence

for actually working in back pain...and it's a strong med to be taking if it

isn't providing substantial relief.

I will tell you that surgery is not the answer for you. As far as the problems

you listed, surgery is not appropriate and will not be helpful. You should focus

on ways to cope with the pain and getting your body trim and strong. This will

be your best defense. I know it sounds cliche, but I have seen it work wonders.

For people like us, not being in strong athletic shape is not an option, if you

want substantial relief.

---

 

________________________________

From: <damgalnuna@...>

spinal problems

Sent: Sunday, July 12, 2009 8:03:18 PM

Subject: Introduction

Hello,

I have been dealing with problems with my back since I was 12 years old. At 12 I

had a spinal fusion with Harrington rod implantation. While participating in

dance class at 16 years old, while performing a move I felt an incredible pain

in my back and down my left leg. I herniated a lumbar disc (I don't remember the

level. My orthopedic surgeon removed parts of the rods, thinking they were

causing the pain, and that obviously didn't help. Then he referred me to a

neurosurgeon who performed a microdiscectomy. That helped a little, but it got

worse again within a few months.

During college and the years following, my back was still causing me pain, but I

was able to manage with just some advil, ice packs, and rest. In 2007 I gave

birth to my daughter. Around 15 months later, the pain in my back because

increasingly worse, to the point where I could barely walk around and ended up

in my primary care doctor's office in tears. I was given tramadol and was sent

to PT. I did PT for around 3 months, with limited benefit. The PT also gave me a

TENS unit, which does help a bit when I need to be on my feet for a while.

Around 3 months ago, my primary care doctor referred me to a physiatrist, who

first ordered an MRI. It showed herniated discs/spinal stenosis at L4/L5 and

L5/S1. He has performed two nerve root blocks so far, with each only lasting

around two weeks. He also added neurontin (900 mg 3x/day) and codeine (as

needed) to my meds. My pain is still not under control, and actually seems to be

getting worse. I meet with him again in a week and a half, so hopefully he'll

have some better suggestions.

[Guest guest]

,

Thanks for your advice. I did do the PT exercises at home, but not always every

day. I have a toddler at home, and I spend most of my time taking care of her,

and not enough time taking care of myself sometimes.

I think the Neurontin is helping a little, but not that much. My doctor

mentioned trying Lyrica if the Neurontin didn't work, but that my insurance

requires that Neurontin be tried first.

The microdiscectomy was performed over ten years ago now. Around nine years

ago, I got sick of the doctors and all the medications (I was basically a

zombie), so I quit everything and didn't see a doctor again until last fall when

the pain suddenly became intolerable.

I do need to work on getting more physically fit, but have trouble balancing

time issues and pain issues. It's hard to push myself to exercise when I'm in a

lot of pain.

I'm only 29 years old, so the thought of dealing with this pain for the rest of

my life depresses me. I'd just like to get some relief, but I'm not convinced

I'll ever get there.

[Guest guest]

Four months ago I was where you are...and I tried PT just one more time. I did

with in conjunction with massage and myofascial release. I was able to reduce my

pain to the point where I don't have any 95% of the time! that and the Ultram ER

I take everyday. It took finding the right PT and my committing myself to doing

the exercizes, because I had nothing left. I HAD to want it more than anything.

And it worked!

You have to get to the point where it's the most important thing to you. It has

to be a priority. But you CAN do it!!!!

---

________________________________

From: <damgalnuna@...>

spinal problems

Sent: Monday, July 13, 2009 10:28:19 AM

Subject: Re: Introduction

,

Thanks for your advice. I did do the PT exercises at home, but not always every

day. I have a toddler at home, and I spend most of my time taking care of her,

and not enough time taking care of myself sometimes.

I think the Neurontin is helping a little, but not that much. My doctor

mentioned trying Lyrica if the Neurontin didn't work, but that my insurance

requires that Neurontin be tried first.

The microdiscectomy was performed over ten years ago now. Around nine years ago,

I got sick of the doctors and all the medications (I was basically a zombie), so

I quit everything and didn't see a doctor again until last fall when the pain

suddenly became intolerable.

I do need to work on getting more physically fit, but have trouble balancing

time issues and pain issues. It's hard to push myself to exercise when I'm in a

lot of pain.

I'm only 29 years old, so the thought of dealing with this pain for the rest of

my life depresses me. I'd just like to get some relief, but I'm not convinced

I'll ever get there.

[Guest guest]

Have you ever heard of Raynaud's Syndrome? There is medication that you can take

that relieves some of the circulation problems if you are diagnosed with

Raynaud's. You should see a physician because you may be able to lessen your

symptoms and get some relief.

 

Good luck to you.

From: groupleif <groupleif@...>

Subject: Introduction

spinal problems

Date: Tuesday, September 1, 2009, 3:10 PM

 

I suffer from a major neck injury that happened 8 years ago from lifting

weights. While i was doing a hang-clean of about 200 pounds, i heard a loud pop

as i felt the bones suddenly shift in my neck on the right side. (I had a weak

shoulder at the time due to tendinitis from a sports injury prior.) The result

was a pinched nerve which has becoming more and more tight ever since. This has

led to many health problems such as indigestion, extreme chemical sensitivities,

hypoglycemia, fragile bones and teeth, fatigue, memory loss, and cold

intolerance which is the most life-limiting.

If its below 80 degrees, cold pain pierces my skin and goes directly to my

bones. It doesnt matter how many clothes i put on or blankets i wrap around, my

body simply can not keep itself warm. When this happens for an extended period

of time i can only think about 2 things, suicide or fleeing into a warmer

environment. Fortunately, i have always been able to take refuge in a suitable

environment which is why i live in Thailand.

Whenever i fall asleep in an awkward position, circulation will start to cut off

form the neck down. When this happens my body will force me to wake up as fast

as possible. By the time i wake up i am numb and can only move my eyes. I will

then use all my strength and force muscles to twitch in my arm taking anywhere

from a few seconds to a few minutes. By the time i succeed in moving the rest of

my body i am usually out of breath. Im certain i would be permanently paralyzed

if i did not wake up in time.

Ive only been to chiropractors and never gone to any hospitals so i dont have an

in-depth diagnosis. I had one x-ray taken 6 years ago. The doctor said i have a

" suplexation " .

Leif

[Guest guest]

I have a list on my website here:

http://www.naturallythriving.com/basics/cfd.php

Hope that helps..

Luv, Debby in San , CA

Student: Nutrition Certification and PhD in Psychology

Website: http://www.naturallythriving.com

Group: curingcandida/

----- Original Message ----

> From: can_cis

>

> Hi, I'm new to the group.

> I was browsing the files looking for a list of foods approved for the candida

> diet but I did not find it. Could someone point me to the right place?

[Guest guest]

Hi Jen:

Welcome to this group. I'm sure Bee will respond to your message soon, but I

just wanted to welcome you and make sure you have some important reading

material to get you started. All of the health challenges you mentioned are

ones that are caused by Candida overgrowth. So you are in the right place!

Bee's Candida diet is very different from all other Candida diets out there

because she focuses on harnessing our bodies own healing power to create healthy

bodies. Many people on this group, myself included, have tried other diets,

drugs, and detox plans to get healthy and none of them worked. I have finally

found the path to my own health by following Bee's diet and supplement

guidelines.

I'm sure this diet will help your many issues. There are many folks on this

group who share many of your challenges, and they have been able to turn their

health around with Bee's diet.

But it's important (because this is a self-help program-- with lots of great

support!) that you read up on how Bee's diet works and why. So here are some

articles to get you started:

1) How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

2) Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

The only way to cure candida:

Candida cannot be cured by " killing it off. " It just doesn't work that way.

Candida is only cured by building up the immune system, which is done by:

1) Consuming " proper nutrients " (diet plus supplements),

2) Eliminating toxins and foods that feed candida (they also feed bacteria and

cancer),

3) Eliminating damaging foods, and

4) Eliminating toxins in general.

When the immune system is strong enough it will automatically " make " candida (or

any bug, cancer, etc.) change back into the microbe it was before.

When you've had a chance to read through the material, you'll see how this diet

differs from some of the techniques you mentioned in your email.

Welcome!!

Marissa (a group moderator)

>

> Hi,

> I am new to this group. I have suffered through self-diagnosed candida

symptoms for many years. In the past I've tried cleanses, but because I have

serious gastro intestinal issues I have not been able to tolerate any herbal

formulas, let alone prescription ones. [i have GERD, gastritis, and am now

being checked for gastroparesis]

>

> I've been able to alleviate certain symptoms by avoiding all sugar, sweetener,

and yeast in my diet for the past year or two. However, the moment I eat

something with yeast, I seem to get a vaginal irritation and discharge

[Guest guest]

>

> Hi,

> I am new to this group. I have suffered through self-diagnosed candida

symptoms for many years. In the past I've tried cleanses, but because I have

serious gastro intestinal issues I have not been able to tolerate any herbal

formulas, let alone prescription ones. [i have GERD, gastritis, and am now

being checked for gastroparesis]

+++Hi Jen. Welcome to our group. GERD and gastritis are caused by low stomach

acid, not high acid like doctors claim. To understand please read the articles

Marissa gave you since there's a section on digestion in my main candida article

which explains it.

+++Gastroparesis is a weak stomach, so it is very important to build up your

overall health with proper diet and supplements which will reconstruct all of

the body's cell so they are strong.

<snip>

Or it could be due to the fact that I've been on and off of proton pump

inhibitors which the doctor insists I need for my GERD, but it seems to only

help with the reflux but is more trouble than it's worth. One of my immediate

family members has Barrett's esphogus so it's really important that I not let

the acid get out of hand.

+++I've helped many people get off Proton Pump inhibitors by eating sauerkraut,

but I believe it is most important you start on this program and follow the

recommendations to Improve Digestion.

>

> Since I have so many things going on, I am not sure how to go about treating

it all at once, or doing one condition at a time. Right now I'm severely

limited in what I can eat. I was down to only twenty food items that I could

tolerate and then they started to bother me a week or two ago, so now I'm on

mostly liquids with some solids. So, I'm not sure that I could follow a true

Candida diet until I get my stomach working better yet.

+++Just start one step at a time, by changing over to this program gradually,

even if you are only having liquids and pureeing (blending) some foods - some

people do very well on the 9-Day Program too:

http://www.healingnaturallybybee.com/articles/dig6.php

After reading please get back to us with any questions you have.

The best in health, Bee

[Guest guest]

Hi :

****Welcome. You are in the right place.

> Hi, I am new here. I've been on the candida diet for about two weeks now.

I'm 40 years old and I've had illness sinse I was around 20. I had strep,

bronchitis and neumonia in my early twenties, which led into chronic fatigue,

depression and anxiety. Then I developed food intolerances, one of which was

Celiac Disease. I currently have problems relating to IBS, eczema, fibroids,

back pain, and chemical sensitivities.

**** Many folks have had some of your symptoms on this group. Be sure to check

out the Success Stories on Bee's site to get some motivation and inspiration

from them.

>

> I REALLY hope this candida program works!

>

> It will be hard to stay on this diet for 20 months but I am going to do it.

**** Just to make sure you have all the starter info, I'm including the links

here:

Please ensure you read two important articles so you understand candida, and

know what you need to do and why:

How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

The only way to cure candida:

Candida cannot be cured by " killing it off. " It just doesn't work that way.

Candida is only cured by building up the immune system, which is done by:

Consuming " proper nutrients " (diet plus supplements),

Eliminating toxins and foods that feed candida (they also feed bacteria and

cancer),

Eliminating damaging foods, and

Eliminating toxins in general.

When the immune system is strong enough it will automatically " make " candida (or

any bug, cancer, etc.) change back into the microbe it was before.

Welcome to the group!

Marissa ( a group moderator)