Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Thank you so much....> dominie > From: heidilhlokey@...> Date: Thu, 29 May 2008 15:17:20 +0000> Subject: Re: Doctor> > > > > >> > > > > > > > I have found a doctor that specializes in Fibro.The thing is > she > > > doesn't except any Insurance..I'm a little sceptical.What does > everyone > > > think???? How can I find out if she is legit??? MELANIE> > > > > > > > > > > > ------------------------------------> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 I had a Rhumy that saw only FMS patients and did not accept insurance and she was the best one I've had. She spent at least an hour with each patient and believe me it was worth what she charged. The only thing is she moved to another state, I think Washington. Maybe you could send to your insurance yourself. That's what I did and they reimbursed me. I have found a doctor that specializes in Fibro.The thing is she doesn't except any Insurance..I' m a little sceptical.What does everyone think???? How can I find out if she is legit??? MELANIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 I'm interested if you have a chance. > > I had a very good visit with Dr. Kolb last week. I was amazed in many ways. I'm writing down some reflections on the visit. I won't post it here but if you would like to see it let me know. > > Ian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 hi ian how are you ? any progress? I hope so. God is good he will help us. may I see what Dr Kolb said God bless you, Bill Ian wrote: > I had a very good visit with Dr. Kolb last week. I was amazed in many ways. I'm writing down some reflections on the visit. I won't post it here but if you would like to see it let me know. > Ian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 I'm interested also, Ian. thanks. Lou From: sfcrawler <twistedtb@...>bird mites Sent: Saturday, April 25, 2009 1:43:32 AMSubject: Re: doctor I'm interested if you have a chance.>> I had a very good visit with Dr. Kolb last week. I was amazed in many ways. I'm writing down some reflections on the visit. I won't post it here but if you would like to see it let me know.> > Ian> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 I'd be interested in seeing your thoughts about your visit to Dr Kolb. (If a lot of others also want to read it, perhaps you should post it?) > > I had a very good visit with Dr. Kolb last week. I was amazed in many ways. I'm writing down some reflections on the visit. I won't post it here but if you would like to see it let me know. > > Ian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 Ya I think he expects my pain to gets worse. I was in a car accident back in 1996 and when the Docs were putting my pelvis back together they touched my sciatica and completely damaged it. The medtronic rep said something to me about RSD. But, the MD never mentioned me about having that. From: Mike <mike2boys@...> Subject: doctor Stimulator Date: Saturday, April 25, 2009, 10:39 PM your doctor told you that in my opoin he doesnt want you to get to a point where your pain over rules the stim. im guessing mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 There is always a chance the pain could get worse even with the stim. You might still have days where you will have flare-ups, but the relieve that you have on the other days in what counts. You need to find out if you do have RSD. If you do, the stim will help with the symptoms, but it's not a cure. Not all drs. know as much as they should about RSD. It took me 4 yrs to find a dr to diagnosis me. Some of the symptoms of RSD are: burning, sensitivity to touch, color change of the skin, swelling, sweating, loss of mobility of the limb. Sue C Moderator ________________________________ From: sharron nichols <denisefive5@...> Stimulator Sent: Saturday, April 25, 2009 11:45:53 PM Subject: Re: doctor Ya I think he expects my pain to gets worse. I was in a car accident back in 1996 and when the Docs were putting my pelvis back together they touched my sciatica and completely damaged it. The medtronic rep said something to me about RSD. But, the MD never mentioned me about having that. From: Mike <mike2boysmsn (DOT) com> Subject: doctor Stimulator@gro ups.com Date: Saturday, April 25, 2009, 10:39 PM your doctor told you that in my opoin he doesnt want you to get to a point where your pain over rules the stim. im guessing mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2009 Report Share Posted April 26, 2009 Ya, when I go back to him on the 29th I will ask for clarification. I have all the symptoms youu mentioned except the loss of mobility...I have weakness in the legs. My discoloration is in the toes *occasionally. The swelling is in the upper foot and ankle. Sweating and hot flashes come and go. And my nail beds have changed. Ya he is going to keep me on the hydrocodone and neurontin for the pain breakthroughs. From: Mike <mike2boysmsn (DOT) com> Subject: doctor Stimulator@gro ups.com Date: Saturday, April 25, 2009, 10:39 PM your doctor told you that in my opoin he doesnt want you to get to a point where your pain over rules the stim. im guessing mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2009 Report Share Posted April 26, 2009 When I have my flare ups, I always tell myself it would be even worse if I didn't have the stim. So maybe the pain would be double if you didn't have a stim. That's just how I justify my bad days. Take Care, B. in TEXAS Until one has loved an animal, part of their soul remains in darkness ________________________________ From: Corn <butterfliesrfree309@...> Stimulator Sent: Sunday, April 26, 2009 12:35:05 AM Subject: Re: doctor There is always a chance the pain could get worse even with the stim. You might still have days where you will have flare-ups, but the relieve that you have on the other days in what counts. You need to find out if you do have RSD. If you do, the stim will help with the symptoms, but it's not a cure. Not all drs. know as much as they should about RSD. It took me 4 yrs to find a dr to diagnosis me. Some of the symptoms of RSD are: burning, sensitivity to touch, color change of the skin, swelling, sweating, loss of mobility of the limb. Sue C Moderator ________________________________ From: sharron nichols <denisefive5@...> Stimulator Sent: Saturday, April 25, 2009 11:45:53 PM Subject: Re: doctor Ya I think he expects my pain to gets worse. I was in a car accident back in 1996 and when the Docs were putting my pelvis back together they touched my sciatica and completely damaged it. The medtronic rep said something to me about RSD. But, the MD never mentioned me about having that. From: Mike <mike2boysmsn (DOT) com> Subject: doctor Stimulator@gro ups.com Date: Saturday, April 25, 2009, 10:39 PM your doctor told you that in my opoin he doesnt want you to get to a point where your pain over rules the stim. im guessing mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2009 Report Share Posted April 26, 2009 good point denise From: Mike <mike2boysmsn (DOT) com> Subject: doctor Stimulator@gro ups.com Date: Saturday, April 25, 2009, 10:39 PM your doctor told you that in my opoin he doesnt want you to get to a point where your pain over rules the stim. im guessing mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 Hi Chris I wrote to my dr requesting pretty much all the thyroid tests and also testosterone and aldosterone/rennin. Well the practice phoned me up saying that the doctor wants to see me. She can't see me till the 12th May. Well what good is that really? Why can't she just order the tests and then see me? I guess she wants to ask you some questions to find out the reasons you feel you need these tests. Doctors are very reluctant to spend money if these tests are unnecessary. I don't like the way this is going already - perhaps she'll tell me it's all in my mind or something or something else. Then be ready for her. Always think ahead as you are doing and if you feel she will tell you " its all in your mind, be ready to show her a written list of all your symptoms and signs (look in our website to check yours against these). Tell your doctor you want a full thyroid function test to rule hypothyroidism out - and tell her also you need a thorough clinical examination. This should include them testing your tendon reactions - especially your Achilles tendon. A slow response when your Achilles tendon is tapped is a SPECIFIC sign of hypothyroidism. If you are having salt cravings, let her know this can be because your aldosterone is low. Again, in writing, ask her to test your Ferritin level, B12, Vitamin D3, magnesium, zinc and copper to see if any of these are also low, because you are aware that your thyroid hormone can't get into the cells if they are and whatever is low must be supplemented. I wrote in that letter that I had mental health problems on and off for 13 or more so years, and had seen psychiatrists and tried antideprssants (which no doubt finished off my adrenals), and i know myself well enough to know it's a physical problem now, not anything else. Should your doctor refuse these tests, then this is the excuse you need to request a referral to an endocrinologist. Ask for your letter to be placed in your medical notes. I just despair really. In the past i had a total of several years off work. Well if it goes on like this i can see myself asking to be signed off again but maybe she won't even sign me off. i have not been working since december, not cliamed any benefits either. i don't feel able to work. Don't despair - according to the GMC a doctor MUST listen to and work with his patient. Take somebody with you who is close and who can sit there with pen poised over a note pad taking notes. Doctors take more notice when this happens. Write the reasons you have not been able to work in your letter. I despair really i do. I may be jumping the gun here and imagining that she'll just tell me to get lost, but I can't see it going any other way. Be determined and assertive Chris. Don't let the ******* get you down - because that way, you are making life too easy for them. They do not know all the answers, in fact, the more I learn, the more I realise how little doctors do know about thyroid/adrenal problems. I am lucky that I am seeing Dr P as well but i wanted to get some more tests done to see why i cannot tolerate t3 or Armour - see if i had some kind of deficiency. I bet you have - so if your GP refuses the above mentioned tests, tell her that you would like her reasons in writing so you can look further into the decision she has made. Just telling her that will probably start writing a blood request form. Keep your chin up - you CAN do this, and you CAN show this doctor you mean business. I wish I could come with you to see this doctor. luv - Sheila Sorry this is bit of a rant i just despair, really i do. Chris No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.12.11/2089 - Release Date: 04/30/09 17:53:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 Thanks Sheila Your reply was really helpful. I feel a bit better now. Will love to see her reaction when i start writing down the reasons if she fobs me off. I deleted my initial post earlier as i felt it was stupid. so in case anyone is wondering this is what happened to it. In the post i just talked about desparing about seeing my gp after i'd written to ask for tests, and being concerned that she'd refuse them. >They do not know > all the answers, in fact, the more I learn, the more I realise how little > doctors do know about thyroid/adrenal problems. I agree with this so much; they don't seem to care either. And they sure never seem to see the big picture or join the dots. I would take them out of the equation if i could but the tests are expensive if all done privately. Thanks again Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 Hi hon I am a fellow long time anti d user due to my Hashis. I have terrible brain fog. I have to record the consultations otherwise I don't remember what has been said or advised. I find when I do this the Dr is less errr well, you know, down right dismissive? So as well as taking your list of tests and reasons, maybe asking if you can record it on mobile phone/other gadget cos of brain fog might be good? Don't push it though, I think they might have a legal right not to be taped, that is why I always ask politely. good luck Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 Thanks Dawn, that's a good suggestion - i think i have an mp3 somewhere hey i wonder if just taking anything that looked like a recorder would put the wind up them, even if it didn't work! :-) Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 I would also be interested in your thoughts. Been thinking about going to Atlanta to see her. > > I had a very good visit with Dr. Kolb last week. I was amazed in many ways. I'm writing down some reflections on the visit. I won't post it here but if you would like to see it let me know. > > Ian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 This is the only name I have from the Natural Thyroid Hormone group I am part of : IDAHODr. n Luque, internest at Rocky Mountain Health in Eagle, Idaho (5 mins from Boise).Member states that doc accepted the dose that she had been self-dosing on, and even added some T4 that member wanted. Doc watches symptoms, not TSH. Doc is not perfect, though--tends to push Prozac (getting enough T3 helps with that). You may need to have them give you a rx for compounded thyroid until Armour and Nature-throid are back on the shelves in 90 days. You can also check out www.acam.org for a doc Steph doctor it was suggested that i go to this web site for some help. i had thyroid cancer in january and was put on levothyroxine which didn't help. 7 months later i finally found a doctor that would help me and put me on Amour. well, now with the shortage it looks like that help came to late. i need help finding a doctor that will prescribe another medication that is natural because this new doc. only prescribes Armour. i refuse to go back on levothyroxine. if anybody knows of a good doctor in the boise, idaho area i would love their name.thanks, jodialso, has anybody else had parotid gland issues 7 months after the RAI treatment?? i am and it is really painful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2010 Report Share Posted February 27, 2010 Are you near any state line? That opens up options to travel other MDs outside of Ohio. I don't know if this is necessarily helpful, but if you can locate a holistic/mercury free dentist in your state (IAOMT certified) perhaps they can recommend someone? http://www.ocaanp.org/findnd.htm Above is a list of Ohio naturopathic physicians. I cannot vouch for any of them. good luck in your search. Pam > > If someone knows a doctor in Ohio that is capable of helping with the heavy metals and everything that is connected to it please let me know. I need the help. Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2010 Report Share Posted February 27, 2010 I'm closest to ky. I'm not havin any luck finding anything yet. Thanks From: Pamela H <phaselow@...> Subject: [ ] Re: Doctor Date: Saturday, February 27, 2010, 12:02 PM Are you near any state line? That opens up options to travel other MDs outside of Ohio. I don't know if this is necessarily helpful, but if you can locate a holistic/mercury free dentist in your state (IAOMT certified) perhaps they can recommend someone? http://www.ocaanp.org/findnd.htm Above is a list of Ohio naturopathic physicians. I cannot vouch for any of them. good luck in your search. Pam > > If someone knows a doctor in Ohio that is capable of helping with the heavy metals and everything that is connected to it please let me know. I need the help. Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 ----- Original Message ----- From: gEOrGe mUStArD ===>Hi , I'm in Ohio, there is a Dr in Maumee that has taken Andy's seminar, but I don't remember his name. They have it on the adult chelation list, Frequent Dose Chelation, google " " . If someone knows a doctor in Ohio that is capable of helping with the heavy metals and everything that is connected to it please let me know. I need the help. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Dear savemoredo—we live in nashville, & all of my son’s surgeries have been done by dr. david haynes here. he answers questions readily & always speaks to samuel directly (not always the case, with samuel having a developmental disability). He’s very knowledgeable & has published tons of articles. We recommend him highly. holly lu conant rees Nashville, TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 I am seeing a Dr. Schwaber. Do you know anything about him? I am 23 and live in Knoxville. I got diagnosed with Cholesteotoma about 2 months ago and I have my surgery June 18th. It will be the first time that I will even meet him. Does anyone know anything about him?? > > Dear savemoredo-we live in nashville, & all of my son's surgeries have been > done by dr. david haynes here. he answers questions readily & always speaks > to samuel directly (not always the case, with samuel having a developmental > disability). He's very knowledgeable & has published tons of articles. > We recommend him highly. > > holly lu conant rees > > Nashville, TN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 thanks so much!! I will google him and find out more info about him. From: Holly Lu Rees <hlu1055@...>cholesteatoma Sent: Wed, June 2, 2010 9:15:16 AMSubject: Re:Doctor Dear savemoredo—we live in nashville, & all of my son’s surgeries have been done by dr. david haynes here. he answers questions readily & always speaks to samuel directly (not always the case, with samuel having a developmental disability). He’s very knowledgeable & has published tons of articles. We recommend him highly. holly lu conant rees Nashville, TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Wow, I just googled him and it says he is considered a national expert in vertigo. I plan to call his office tomorrow!! Thanks you so much, hopefully he can help my husband. From: toria1986 <vdrew@...>cholesteatoma Sent: Wed, June 2, 2010 3:21:46 PMSubject: Re:Doctor I am seeing a Dr. Schwaber. Do you know anything about him? I am 23 and live in Knoxville. I got diagnosed with Cholesteotoma about 2 months ago and I have my surgery June 18th. It will be the first time that I will even meet him. Does anyone know anything about him??>> Dear savemoredo-we live in nashville, & all of my son's surgeries have been> done by dr. david haynes here. he answers questions readily & always speaks> to samuel directly (not always the case, with samuel having a developmental> disability). He's very knowledgeable & has published tons of articles.> We recommend him highly.> > holly lu conant rees> > Nashville, TN> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 I looked him up and he has great schooling. From: toria1986 <vdrew@...>cholesteatoma Sent: Wed, June 2, 2010 3:21:46 PMSubject: Re:Doctor I am seeing a Dr. Schwaber. Do you know anything about him? I am 23 and live in Knoxville. I got diagnosed with Cholesteotoma about 2 months ago and I have my surgery June 18th. It will be the first time that I will even meet him. Does anyone know anything about him??>> Dear savemoredo-we live in nashville, & all of my son's surgeries have been> done by dr. david haynes here. he answers questions readily & always speaks> to samuel directly (not always the case, with samuel having a developmental> disability). He's very knowledgeable & has published tons of articles.> We recommend him highly.> > holly lu conant rees> > Nashville, TN> Quote Link to comment Share on other sites More sharing options...
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