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Thank you so much....> dominie > From: heidilhlokey@...> Date: Thu, 29 May 2008 15:17:20 +0000> Subject: Re: Doctor> > > > > >> > > > > > > > I have found a doctor that specializes in Fibro.The thing is > she > > > doesn't except any Insurance..I'm a little sceptical.What does > everyone > > > think???? How can I find out if she is legit??? MELANIE> > > > > > > > > > > > ------------------------------------> > > > > >

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I had a Rhumy that saw only FMS patients and did not accept insurance and she

was the best one I've had.  She spent at least an hour with each patient and

believe me it was worth what she charged.  The only thing is she moved to

another state, I think Washington.  Maybe you could send to your insurance

yourself.  That's what I did and they reimbursed me.

I have found a doctor that specializes in Fibro.The thing is she doesn't except

any Insurance..I' m a little sceptical.What does everyone think???? How can I

find out if she is legit??? MELANIE

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  • 10 months later...
Guest guest

I'm interested if you have a chance.

>

> I had a very good visit with Dr. Kolb last week. I was amazed in many ways.

I'm writing down some reflections on the visit. I won't post it here but if you

would like to see it let me know.

>

> Ian

>

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hi ian

how are you ? any progress? I hope so. God is good he will help us.

may I see what Dr Kolb said

God bless you,

Bill

Ian wrote:

> I had a very good visit with Dr. Kolb last week. I was amazed in many

ways. I'm writing down some reflections on the visit. I won't post it here but

if you would like to see it let me know.

> Ian

>

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I'm interested also, Ian.

thanks.

Lou

From: sfcrawler <twistedtb@...>bird mites Sent: Saturday, April 25, 2009 1:43:32 AMSubject: Re: doctor

I'm interested if you have a chance.>> I had a very good visit with Dr. Kolb last week. I was amazed in many ways. I'm writing down some reflections on the visit. I won't post it here but if you would like to see it let me know.> > Ian>

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I'd be interested in seeing your thoughts about your visit to Dr Kolb.

(If a lot of others also want to read it, perhaps you should post it?)

>

> I had a very good visit with Dr. Kolb last week. I was amazed in many

ways. I'm writing down some reflections on the visit. I won't post it

here but if you would like to see it let me know.

>

> Ian

>

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Ya I think he expects my pain to gets worse. I was in a car accident back in

1996 and when the Docs were putting my pelvis back together they touched my

sciatica and completely damaged it. The medtronic rep said something to me about

RSD. But, the MD never mentioned me about having that.

From: Mike <mike2boys@...>

Subject: doctor

Stimulator

Date: Saturday, April 25, 2009, 10:39 PM

your doctor told you that in my opoin he doesnt want you to get to a point where

your pain over rules the stim. im guessing mike group owner

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There is always a chance the pain could get worse even with the stim. You might

still have days where you will have flare-ups, but the relieve that you have on

the other days in what counts.

You need to find out if you do have RSD. If you do, the stim will help with the

symptoms, but it's not a cure. Not all drs. know as much as they should about

RSD. It took me 4 yrs to find a dr to diagnosis me.

Some of the symptoms of RSD are: burning, sensitivity to touch, color change of

the skin, swelling, sweating, loss of mobility of the limb.

Sue C

Moderator

________________________________

From: sharron nichols <denisefive5@...>

Stimulator

Sent: Saturday, April 25, 2009 11:45:53 PM

Subject: Re: doctor

Ya I think he expects my pain to gets worse. I was in a car accident back in

1996 and when the Docs were putting my pelvis back together they touched my

sciatica and completely damaged it. The medtronic rep said something to me about

RSD. But, the MD never mentioned me about having that.

From: Mike <mike2boysmsn (DOT) com>

Subject: doctor

Stimulator@gro ups.com

Date: Saturday, April 25, 2009, 10:39 PM

your doctor told you that in my opoin he doesnt want you to get to a point where

your pain over rules the stim. im guessing mike group owner

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Ya, when I go back to him on the 29th I will ask for clarification. I have all

the symptoms youu mentioned except the loss of mobility...I have weakness in the

legs. My discoloration is in the toes *occasionally. The swelling is in the

upper foot and ankle. Sweating and hot flashes come and go. And my nail beds

have changed. Ya he is going to keep me on the hydrocodone and neurontin for the

pain breakthroughs.

 

From: Mike <mike2boysmsn (DOT) com>

Subject: doctor

Stimulator@gro ups.com

Date: Saturday, April 25, 2009, 10:39 PM

your doctor told you that in my opoin he doesnt want you to get to a point where

your pain over rules the stim. im guessing mike group owner

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When I have my flare ups, I always tell myself it would be even worse if I

didn't have the stim. So maybe the pain would be double if you didn't have a

stim. That's just how I justify my bad days.

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Corn <butterfliesrfree309@...>

Stimulator

Sent: Sunday, April 26, 2009 12:35:05 AM

Subject: Re: doctor

There is always a chance the pain could get worse even with the stim. You might

still have days where you will have flare-ups, but the relieve that you have on

the other days in what counts.

You need to find out if you do have RSD. If you do, the stim will help with the

symptoms, but it's not a cure. Not all drs. know as much as they should about

RSD. It took me 4 yrs to find a dr to diagnosis me.

Some of the symptoms of RSD are: burning, sensitivity to touch, color change of

the skin, swelling, sweating, loss of mobility of the limb.

Sue C

Moderator

________________________________

From: sharron nichols <denisefive5@...>

Stimulator

Sent: Saturday, April 25, 2009 11:45:53 PM

Subject: Re: doctor

Ya I think he expects my pain to gets worse. I was in a car accident back in

1996 and when the Docs were putting my pelvis back together they touched my

sciatica and completely damaged it. The medtronic rep said something to me about

RSD. But, the MD never mentioned me about having that.

From: Mike <mike2boysmsn (DOT) com>

Subject: doctor

Stimulator@gro ups.com

Date: Saturday, April 25, 2009, 10:39 PM

your doctor told you that in my opoin he doesnt want you to get to a point where

your pain over rules the stim. im guessing mike group owner

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good point

 

denise

From: Mike <mike2boysmsn (DOT) com>

Subject: doctor

Stimulator@gro ups.com

Date: Saturday, April 25, 2009, 10:39 PM

your doctor told you that in my opoin he doesnt want you to get to a point where

your pain over rules the stim. im guessing mike group owner

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Hi Chris

I wrote to my dr requesting pretty much all the thyroid

tests and also testosterone and aldosterone/rennin.

Well the practice phoned me up saying that the doctor wants to see me. She

can't see me till the 12th May.

Well what good is that really? Why can't she just order the tests and then see

me?

I guess she wants to ask you some questions to find out the

reasons you feel you need these tests. Doctors are very reluctant to spend

money if these tests are unnecessary.

I don't like the way this is going already - perhaps she'll

tell me it's all in my mind or something or something else.

Then be ready for her. Always think ahead as you are doing and

if you feel she will tell you " its all in your mind, be ready to

show her a written list of all your symptoms and signs (look in our website to

check yours against these). Tell your doctor you want a full thyroid function

test to rule hypothyroidism out - and tell her also you need a thorough clinical

examination. This should include them testing your tendon reactions -

especially your Achilles tendon. A slow response when your Achilles tendon is

tapped is a SPECIFIC sign of hypothyroidism. If you are having salt

cravings, let her know this can be because your aldosterone is low. Again, in

writing, ask her to test your Ferritin level, B12, Vitamin D3, magnesium, zinc

and copper to see if any of these are also low, because you are aware that your

thyroid hormone can't get into the cells if they are and whatever is low must

be supplemented.

I wrote in that letter that I had mental health problems on and off for 13 or

more so years, and had seen psychiatrists and tried antideprssants (which no

doubt finished off my adrenals), and i know myself well enough to know it's a

physical problem now, not anything else.

Should your doctor refuse these tests, then this is the excuse

you need to request a referral to an endocrinologist. Ask for your letter to be

placed in your medical notes.

I just despair really. In the past i had a total of several years off work.

Well if it goes on like this i can see myself asking to be signed off again but

maybe she won't even sign me off. i have not been working since december, not

cliamed any benefits either. i don't feel able to work.

Don't despair - according to the GMC a doctor MUST listen

to and work with his patient. Take somebody with you who is close and who can

sit there with pen poised over a note pad taking notes. Doctors take more

notice when this happens. Write the reasons you have not been able to work in

your letter.

I despair really i do. I may be jumping the gun here and imagining that she'll

just tell me to get lost, but I can't see it going any other way.

Be determined and assertive Chris. Don't let the ******* get you

down - because that way, you are making life too easy for them. They do not

know all the answers, in fact, the more I learn, the more I realise how little

doctors do know about thyroid/adrenal problems.

I am lucky that I am seeing Dr P as well but i wanted to get some more tests

done to see why i cannot tolerate t3 or Armour - see if i had some kind of

deficiency.

I bet you have - so if your GP refuses the above mentioned

tests, tell her that you would like her reasons in writing so you can look

further into the decision she has made. Just telling her that will probably

start writing a blood request form.

Keep your chin up - you CAN do this, and you CAN show this

doctor you mean business. I wish I could come with you to see this doctor.

luv - Sheila

Sorry this is bit of a rant i just despair, really i do.

Chris

No virus

found in this incoming message.

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17:53:00

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Thanks Sheila

Your reply was really helpful. I feel a bit better now. Will love to see her

reaction when i start writing down the reasons if she fobs me off.

I deleted my initial post earlier as i felt it was stupid. so in case anyone is

wondering this is what happened to it. In the post i just talked about

desparing about seeing my gp after i'd written to ask for tests, and being

concerned that she'd refuse them.

>They do not know

> all the answers, in fact, the more I learn, the more I realise how little

> doctors do know about thyroid/adrenal problems.

I agree with this so much; they don't seem to care either. And they sure never

seem to see the big picture or join the dots. I would take them out of the

equation if i could but the tests are expensive if all done privately.

Thanks again

Chris

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Hi hon

I am a fellow long time anti d user due to my Hashis.

I have terrible brain fog. I have to record the consultations otherwise I don't

remember what has been said or advised. I find when I do this the Dr is less

errr well, you know, down right dismissive?

So as well as taking your list of tests and reasons, maybe asking if you can

record it on mobile phone/other gadget cos of brain fog might be good? Don't

push it though, I think they might have a legal right not to be taped, that is

why I always ask politely.

good luck

Dawnx

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Thanks Dawn, that's a good suggestion - i think i have an mp3 somewhere

hey i wonder if just taking anything that looked like a recorder would put the

wind up them, even if it didn't work! :-)

Chris

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I would also be interested in your thoughts. Been thinking about going

to Atlanta to see her.

>

> I had a very good visit with Dr. Kolb last week. I was amazed in many ways.

I'm writing down some reflections on the visit. I won't post it here but if you

would like to see it let me know.

>

> Ian

>

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  • 3 months later...

This is the only name I have from the Natural Thyroid Hormone group I am part of :

IDAHODr. n Luque, internest at Rocky Mountain Health in Eagle, Idaho (5 mins from Boise).Member states that doc accepted the dose that she had been self-dosing on, and even added some T4 that member wanted. Doc watches symptoms, not TSH. Doc is not perfect, though--tends to push Prozac (getting enough T3 helps with that).

You may need to have them give you a rx for compounded thyroid until Armour and Nature-throid are back on the shelves in 90 days.

You can also check out www.acam.org for a doc

Steph

doctor

it was suggested that i go to this web site for some help. i had thyroid cancer in january and was put on levothyroxine which didn't help. 7 months later i finally found a doctor that would help me and put me on Amour. well, now with the shortage it looks like that help came to late. i need help finding a doctor that will prescribe another medication that is natural because this new doc. only prescribes Armour. i refuse to go back on levothyroxine. if anybody knows of a good doctor in the boise, idaho area i would love their name.thanks, jodialso, has anybody else had parotid gland issues 7 months after the RAI treatment?? i am and it is really painful.

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  • 5 months later...

Are you near any state line? That opens up options to travel other MDs outside

of Ohio.

I don't know if this is necessarily helpful, but if you can locate a

holistic/mercury free dentist in your state (IAOMT certified) perhaps they can

recommend someone?

http://www.ocaanp.org/findnd.htm

Above is a list of Ohio naturopathic physicians. I cannot vouch for any of

them.

good luck in your search.

Pam

>

> If someone knows a doctor in Ohio that is capable of helping with the heavy

metals and everything that is connected to it please let me know.  I need the

help.  Thanks  

>

>

>

>

>

>

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I'm closest to ky.  I'm not havin any luck finding anything yet.  Thanks

From: Pamela H <phaselow@...>

Subject: [ ] Re: Doctor

Date: Saturday, February 27, 2010, 12:02 PM

Are you near any state line?  That opens up options to travel other MDs outside

of Ohio.

I don't know if this is necessarily helpful, but if you can locate a

holistic/mercury free dentist in your state (IAOMT certified) perhaps they can

recommend someone?

http://www.ocaanp.org/findnd.htm

Above is a list of Ohio naturopathic physicians.  I cannot vouch for any of

them. 

good luck in your search.

Pam

>

> If someone knows a doctor in Ohio that is capable of helping with the heavy

metals and everything that is connected to it please let me know.  I need the

help.  Thanks  

>

>

>

>       

>

>

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----- Original Message -----

From: gEOrGe mUStArD

===>Hi ,

I'm in Ohio, there is a Dr in Maumee that has taken Andy's seminar, but I

don't remember his name. They have it on the adult chelation list, Frequent Dose

Chelation, google " " .

If someone knows a doctor in Ohio that is capable of helping with the heavy

metals and everything that is connected to it please let me know. I need the

help. Thanks

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  • 3 months later...
Guest guest

Dear savemoredo—we live in nashville, & all of my

son’s surgeries have been done by dr. david haynes here. he answers

questions readily & always speaks to samuel directly (not always the case,

with samuel having a developmental disability). He’s very

knowledgeable & has published tons of articles. We recommend him highly.

holly lu conant rees

Nashville, TN

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I am seeing a Dr. Schwaber. Do you know anything about him? I am 23 and

live in Knoxville. I got diagnosed with Cholesteotoma about 2 months ago and I

have my surgery June 18th. It will be the first time that I will even meet him.

Does anyone know anything about him??

>

> Dear savemoredo-we live in nashville, & all of my son's surgeries have been

> done by dr. david haynes here. he answers questions readily & always speaks

> to samuel directly (not always the case, with samuel having a developmental

> disability). He's very knowledgeable & has published tons of articles.

> We recommend him highly.

>

> holly lu conant rees

>

> Nashville, TN

>

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thanks so much!! I will google him and find out more info about him.

From: Holly Lu Rees <hlu1055@...>cholesteatoma Sent: Wed, June 2, 2010 9:15:16 AMSubject: Re:Doctor

Dear savemoredo—we live in nashville, & all of my son’s surgeries have been done by dr. david haynes here. he answers questions readily & always speaks to samuel directly (not always the case, with samuel having a developmental disability). He’s very knowledgeable & has published tons of articles. We recommend him highly.

holly lu conant rees

Nashville, TN

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Wow, I just googled him and it says he is considered a national expert in vertigo. I plan to call his office tomorrow!! Thanks you so much, hopefully he can help my husband.

From: toria1986 <vdrew@...>cholesteatoma Sent: Wed, June 2, 2010 3:21:46 PMSubject: Re:Doctor

I am seeing a Dr. Schwaber. Do you know anything about him? I am 23 and live in Knoxville. I got diagnosed with Cholesteotoma about 2 months ago and I have my surgery June 18th. It will be the first time that I will even meet him. Does anyone know anything about him??>> Dear savemoredo-we live in nashville, & all of my son's surgeries have been> done by dr. david haynes here. he answers questions readily & always speaks> to samuel directly (not always the case, with samuel having a developmental> disability). He's very knowledgeable & has published tons of articles.> We recommend him highly.> > holly lu conant rees> > Nashville,

TN>

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I looked him up and he has great schooling.

From: toria1986 <vdrew@...>cholesteatoma Sent: Wed, June 2, 2010 3:21:46 PMSubject: Re:Doctor

I am seeing a Dr. Schwaber. Do you know anything about him? I am 23 and live in Knoxville. I got diagnosed with Cholesteotoma about 2 months ago and I have my surgery June 18th. It will be the first time that I will even meet him. Does anyone know anything about him??>> Dear savemoredo-we live in nashville, & all of my son's surgeries have been> done by dr. david haynes here. he answers questions readily & always speaks> to samuel directly (not always the case, with samuel having a developmental> disability). He's very knowledgeable & has published tons of articles.> We recommend him highly.> > holly lu conant rees> > Nashville,

TN>

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