Newbie!

[Guest guest]

Preet,

I had a very similar experience a few years ago. I started out at a

community college because of my young age graduating high school.

Once I transferred to another school I was worried about needing

assistance even though I couldn't walk yet never needed assistance in

the past.

I transferred to a school about 3 hours from my parents where my

older sister had started. I went there because I knew I could rely on

her to help with anything should I need it. I found out I needed more

assistance that I had imagined - finishing a load of laundry was

possible unassisted but took a lot out of me so it was great to have

her around to call her to get things when I tired out. I also had my

own bathroom in my dorm room since it was more private and the main

bathrooms were not very accessible, and I counted on my sister to

help with major cleaning because the school refused to allow their

cleaning staff to enter my private dorm room even though I gave them

permission. It was also helpful to have my sister around for light

grocery shopping, cafeteria meals (carrying a tray or reaching food

in a tall pot), and getting books for classes. They were small

things, but very important. After only one semester, I left that

school because of other issues, but I dealt with trying to find my

own apartment and another university.

I got my own apartment and had assistance with grocery shopping,

laundry and house cleaning through the county. It was unreliable and

poor quality employees - I was in NY State and could not, at the

time, hire my own attendants. I went to another universiity in the

area of my old university and didn't need much assistance on campus

besides purchasing books. For this, the university bookstore staff

was very helpful. I also found it easier to go in a few trips to

purchase all of my books rather than all at once.

During my time at this university my strength deteriorated quite a

bit and I needed more help in my home. Luckily, at the same time, NY

State had implemented a program for individuals with disabilities to

hire their own attendants, and I found it easiest to hire my friends

I had made at university.

Now, I am living in California attending UC Berkeley for graduate

school. I'm hiring my own attendants for all work I need done on

campus. In my home I have one hired attendant and my live-in

boyfriend to assist with personal care. I am now relying on another

person for all personal care and assistance within and outside of my

home. It has been difficult to find long-term attendants, but it is

possible.

You could contact the university and see if their office for students

with disabilities has an attendant referral service. UC Berkeley has

a very good one. They find and evaluate students and others from the

community interested in assisting persons with disabilities for all

types of activities. Most of my friends on campus who need attendants

solely use this service. You can also try posting up flyers on campus

bulletins looking to hire students who can help you. Others use

newspaper or internet ads to find attendants. Be careful in who you

hire and who you trust. Interview people thoroughly and do not be

afraid to ask questions related to your personal care they will need

to perform for you. It's best to start looking and get an attendant

before you start classes - and it may take some time, so start ASAP!

You can apply for In-Home Supportive Services (IHSS) through your

county, if you are not already receiving it. They can provide

financial help specific to hiring attendants for your personal care

you need inside of your home (dressing, bathing, eating, cooking,

laundry, shopping, etc). Apply soon if you do not already have IHSS

because the application and evaluation process may take a couple

months.

Best of luck!

<3Kendra

>

> Hey you guys,

>

> I just joined. My name is Preet and I have SMA type 2. I'm 20 yrs

old

> and a full-time college student. I don't really know what else to

say

> about me haha. So instead of rambling nothingness lol, I'll ask a

> question that maybe someone can help me with and all.

>

> I am going to be transferring schools soon to start my classes

(since I

> am graduating from a JC.) I would really love to go to a school that

> is out of my hometown but I have been having a lot of trouble

deciding

> if I should. I want to go to SDSU(San Diego State University) which

is

> like 6 hrs away from where I live with family. I am unable to walk

but

> I am fairly independent otherwise. So if I do decide to go to school

> somewhere else, I know I will be needing help with caregivers and so

> forth. Has anyone had any experience in this type of situation that

> maybe you can give me some pointers on what to do and what the

process

> is I need to go through? I think I will be trying to get help

through

> Dept of Rehab, but I am new to this stuff(I never received any type

of

> financial help or " special " help throughout childhood so I'm a

little

> lost on the process. Any help would be greatly appreciated!!Thanks

> sooo much!

>

> -Preet

>

[Guest guest]

IHSS is In-Home Supportive Services. It's administered by the county

and I imagine that's who is paying your mom. Did you look at the link

I posted earlier? Here it is again:

http://www.disabilitybenefits101.org/ca/programs/health_coverage/medi_ca

l/ihss/index.htm

>

> Heh,

>

> I really think I want my mom to rest if I'm gone haha, although she

may be restless if she has nothing to do so ya never know lol. Mind if

i ask, what is IHSS? Yea i don't really like DOR they are too much of

a hassle lol.

>

> We learn with our mistakes hehe.

>

>

[Guest guest]

Thanks so much for your replies!

I'd love to meet up for coffee, pop in an email at

ahoiyhoiy@... and I'm sure we can arrange something!

I neglected to mention that I work in legal/ corporate

publishing ... I love those first few seconds when someone thinks

working in publishing means magazine/ glossy job ... nope, mine's

all about immigration law, much more boring than writing pieces on

the latest Britney saga!

>

> Hello!

>

> My name is and I was banded last month. I stumbled across

this group googling for essage boards, as I don't know anyone else

that has had this done! I wish I could chat to people who have had

it done and don't have to explain everything to my family, who are

very supportive but can't completely understand.

>

> I'm 27 and live in the Sydney CBD and am looking forward to

meeting other " bandmates " ! (There are so many great pun

opportunities with band, as I work as an editor, I get very excited

over such things!)

>

> Anyway, thought I better introduce myself, and I'm looking

forward to hearing more about everyone and hopefully making some

friends with the same life changing band!

>

>

>

> Send instant messages to your online friends

http://au.messenger.

>

[Guest guest]

Thanks so much for your replies!

I'd love to meet up for coffee, pop in an email at

ahoiyhoiy@... and I'm sure we can arrange something!

I neglected to mention that I work in legal/ corporate

publishing ... I love those first few seconds when someone thinks

working in publishing means magazine/ glossy job ... nope, mine's

all about immigration law, much more boring than writing pieces on

the latest Britney saga!

>

> Hello!

>

> My name is and I was banded last month. I stumbled across

this group googling for essage boards, as I don't know anyone else

that has had this done! I wish I could chat to people who have had

it done and don't have to explain everything to my family, who are

very supportive but can't completely understand.

>

> I'm 27 and live in the Sydney CBD and am looking forward to

meeting other " bandmates " ! (There are so many great pun

opportunities with band, as I work as an editor, I get very excited

over such things!)

>

> Anyway, thought I better introduce myself, and I'm looking

forward to hearing more about everyone and hopefully making some

friends with the same life changing band!

>

>

>

> Send instant messages to your online friends

http://au.messenger.

>

[Guest guest]

Welcome! I have two boys with Shwachman-Diamond Syndrome (SDS) and one

healthy son. My two SDS boys both have ( had—seems to have resolved at

the moment) hypogammaglobulinemia. received IgG replacement for 4 ½

years and ph has been getting it for 5 ½ years now. You can meet my

family on our family website www.shwachman.50megs.com

<http://www.shwachman.50megs.com/>

My ph also had low b-cells, T-cells and NK cells. My has decreased

perforin expression on his NK cells and has a mutation for HLH

(Hemophagocytic Lymphohistocytosis) --

If you have any questions about the Sweat test, let me know. We’ve been

there and done that a few times and also had the CF genetic testing. SDS is

the second most common cause of pancreatic insufficiency after CF. Does

your child have failure to thrive, as well? Or pancreatic insufficiency?

If you have questions about those, I have info on our SDS Info site:

www.shwachman.blogspot.com <http://www.shwachman.blogspot.com/>

Peace be with you,

Pattie

Our boys won $100 for our charity, Shwachman-Diamond America with this

video:

http://www.shwachmandiamondamerica.org/Goodsearch_video.html

Who do you Goodsearch for? I Goodsearch for Shwachman-Diamond America!

_____

From: [mailto: ] On Behalf Of

Deska

Sent: Tuesday, April 08, 2008 11:52 AM

Subject: Newbie!

Hi all! I am totally new here and new to all of these words and Dr's

appts and things. Well, not ALL of the Dr's appts, just these specific

to finding out about PID's and such. I have a 10yr old son, Phoenix

and a 6yr old son, Jayden. They have both always been a little more

sickly than most other kids in school and other kids around that I

know. But nothing really major. Nothing like some of the stories that

I have read on here, and let me first say KUDOS! to all of you that

are already on SubQ and IVIG and are dealing with more serious things.

Both of my kids were born a little early, but not too bad, Phoenix

just two weeks and Jayden 3wks. They've both had 3 sets of tubes and

their tonsils/aednoids taken out. They still get ear infections/strep

throat. Jayden was born with Tracheomalacia, a heart murmur, and

reflux as well. We've had a lot to deal with it seems in our families,

and I have an auto-immune disease, and so does my mother, as it runs

in our families. We have just learned that Jayden has low IgA levels,

low IgG levels, low Ig1 and Ig2 levels and Ig G serum levels ... we

are still awaiting the T-cell panel test to come back. I am a bundle

of nerves anxiously awaiting what we are supposed to do and how to

treat and such. The only " name " we have heard so far is

Hypogammaglobulinemia .. and from what I can find, it is relevant to

most of the PID's that are out there? We go back on the 14th ... if

that day will ever get here. We have a sweat test scheduled for the

15th, a G.I. visit on the 23rd, an ENT visit on May 2nd ... just a lot

of stuff to decipher! How do all of you do it?!?! They will also be

testing my oldest son on the 14th, as they say it's hereditary.

Again, thanks for taking me in, I am anxious to hear from you all, and

have been trying to read up and try to learn some of what you have

been dealing with already. It'll take me a while to learn names.

Deska

[Guest guest]

--Hi, Im valarie, mom to four kids, three with CVID, initially my boys

were dx'd with hypogam, but its progressed. I think hypogam usually

refers to low IGG, while CVID is more like, low IGG plus something

else whacky. all three are on IVIG and its been a big help.

My kids also have reflux, and two of them tracheomalacia, although at

8 and almost 6, its starting to get better.

At some point, unfortunately, this is going to become your new normal,

and you'll just learn to deal with it. You'll be doubling up appt so

you dont have to run to the same clinic twice, learn the best fast

food joints around, and have drs numbers programmed into your cell:)

I wish you didnt have to go thru this, but since you do, Im glad you

found this group!

- In , " Deska " <deska66@...> wrote:

>

> Hi all! I am totally new here and new to all of these words and Dr's

> appts and things. Well, not ALL of the Dr's appts, just these specific

> to finding out about PID's and such. I have a 10yr old son, Phoenix

> and a 6yr old son, Jayden. They have both always been a little more

> sickly than most other kids in school and other kids around that I

> know. But nothing really major. Nothing like some of the stories that

> I have read on here, and let me first say KUDOS! to all of you that

> are already on SubQ and IVIG and are dealing with more serious things.

> Both of my kids were born a little early, but not too bad, Phoenix

> just two weeks and Jayden 3wks. They've both had 3 sets of tubes and

> their tonsils/aednoids taken out. They still get ear infections/strep

> throat. Jayden was born with Tracheomalacia, a heart murmur, and

> reflux as well. We've had a lot to deal with it seems in our families,

> and I have an auto-immune disease, and so does my mother, as it runs

> in our families. We have just learned that Jayden has low IgA levels,

> low IgG levels, low Ig1 and Ig2 levels and Ig G serum levels ... we

> are still awaiting the T-cell panel test to come back. I am a bundle

> of nerves anxiously awaiting what we are supposed to do and how to

> treat and such. The only " name " we have heard so far is

> Hypogammaglobulinemia .. and from what I can find, it is relevant to

> most of the PID's that are out there? We go back on the 14th ... if

> that day will ever get here. We have a sweat test scheduled for the

> 15th, a G.I. visit on the 23rd, an ENT visit on May 2nd ... just a lot

> of stuff to decipher! How do all of you do it?!?! They will also be

> testing my oldest son on the 14th, as they say it's hereditary.

>

> Again, thanks for taking me in, I am anxious to hear from you all, and

> have been trying to read up and try to learn some of what you have

> been dealing with already. It'll take me a while to learn names.

>

> Deska

>

[Guest guest]

Thanks Pattie and for your responses.

It's just been a long exhausting road already, and we have only had

ear infections and strep throats, only pneumonia twice, rotavirus,

croup about 55 times according to his charts, which has since been

dx'd as asthma ... his reflux has recently started acting up again. It

has been fine for a year with no meds at all. I don't know what's made

it worse. His last set of tubes are still in, but his ears are

starting to bother him again, and even without his tonsils and

adenoids, he still gets recurrent strep and has severe rhinitis alot,

even though he isn't allergic to anything according to the skin

testing and his only low levels were IGA and IGG and his subclass

levels that are low are IG1 and IG2 and the IG3 was the last number it

could be before being low... luckily his T-cell panel test results

came back normal per the phone call yesterday. Awaiting the appt on

Monday to see what route we will go from here. I know from the CT-Scan

that he has chronic recurrent sinus infections and thickened sinus

cavities, been on flonase for 2+years, just changed to nasonex, and

now on pulimcort flexhaler ... and even though to me, all of this

seems like a ton, after reading all of your stories, I feel so blessed

for it to just be this. You guys have such courage and heart! Thank

you so much for reading and sharing ideas!

Deska

[Guest guest]

Welcome to the group

wesme01 wrote:

>

> Hello. I am new to the group. I joined the group to find a support

> network for non-vaxing parents. I have three children. My children

> are third generation non-vaxers. I live in NC, a state that does not

> have a philosophical exemption.

>

>

[Guest guest]

Welcome! It sounds as if you have some experience with this issue that most of

us do not. I look forwarding to getting your input on the many topics that come

up. I also am in a state without a phil. exemption but no problems here with any

schools.

Winnie

Newbie!

Vaccinations

> Hello. I am new to the group. I joined the group to find a

> support

> network for non-vaxing parents. I have three children. My

> children

> are third generation non-vaxers. I live in NC, a state that

> does not

> have a philosophical exemption.

>

>

[Guest guest]

At 10:26 PM 8/23/2008, you wrote:

>Hello. I am new to the group. I joined the group to find a support

>network for non-vaxing parents. I have three children. My children

>are third generation non-vaxers. I live in NC, a state that does not

>have a philosophical exemption.

But you have a broad religious exemption which is similar.

Contact at PAVE for help

North Carolina (Medical/Religious exemptions)

Jillani werpave@...

People Advocating Vaccine Education (PAVE)

P.O. Box 36701 Charlotte NC 28236

www.vaccines.bizland.com

Sheri

listowner

--------------------------------------------------------

Sheri Nakken, former R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

Vaccines - http://www.wellwithin1.com/vaccine.htm

Vaccine Dangers & Homeopathy Online/email courses - next classes Sept 08

[Guest guest]

Thank you. I know and talk to her periodically. She is a great

advocate. NC needs a philosophical exemption, it is an uphill battle

to convince officials to support our healthcare rights as parents.

> >Hello. I am new to the group. I joined the group to find a

support

> >network for non-vaxing parents. I have three children. My

children

> >are third generation non-vaxers. I live in NC, a state that does

not

> >have a philosophical exemption.

>

>

> But you have a broad religious exemption which is similar.

> Contact at PAVE for help

>

> North Carolina (Medical/Religious exemptions)

> Jillani werpave@...

> People Advocating Vaccine Education (PAVE)

> P.O. Box 36701 Charlotte NC 28236

>

> www.vaccines.bizland.com

>

>

> Sheri

> listowner

>

> --------------------------------------------------------

> Sheri Nakken, former R.N., MA, Hahnemannian Homeopath

> Vaccination Information & Choice Network, Nevada City CA & Wales UK

> Vaccines - http://www.wellwithin1.com/vaccine.htm

> Vaccine Dangers & Homeopathy Online/email courses - next classes

Sept 08

>

[Guest guest]

Welcome!

I'm in NC too. What part of NC are you from?

Aaren

[Guest guest]

Charlotte, NC

Re: Newbie!

Welcome!

I'm in NC too. What part of NC are you from?

Aaren

[Guest guest]

Glad you found this group!

Aaren in Greenville, NC

[Guest guest]

I forgot to add... I'm from Indiana!

>

> Hello. My name is . I have 2 children. An 18 mo old daughter

and

> a 3 mo old son. My daughter was diagnosed with JRA on Friday. She

has

> had it for 4 weeks. She had been going to her regular peditrician

and

> they just kept running all kinds of tests. We finally made it to a

> pediatric rheumatologist on Friday. She was very " matter-of-fact "

about

> what it was and what we were going to do about it.

> She has JRA in both ankles, one knee 4 knuckles on one hand and 1

on

> the other.

> She is currently on methotrexate, naproxen & prednasone (I'm sure I

> didn't spell that right!)

> We have an appointment with an optholomogist next week to check up

on

> her eyes. I'm still reading and reading but we're all doing pretty

well

> with this. We were just very ready for a diagnosis and a treatment

> plan.

>

[Guest guest]

Welcome to our group but so sorry that you have cause to be here. I'm in Floyds

Knobs, Indiana (very southern Indiana, near New Albany and Louisville, Kentucky)

, mom to Rob, 19, juvenile ankylosing spondylitis

Re: Newbie!

> I forgot to add... I'm from Indiana!

>

>

> >

> > Hello. My name is . I have 2 children. An 18 mo old

> daughter

> and

> > a 3 mo old son. My daughter was diagnosed with JRA on Friday.

> She

> has

> > had it for 4 weeks. She had been going to her regular

> peditrician

> and

> > they just kept running all kinds of tests. We finally made it

> to a

> > pediatric rheumatologist on Friday. She was very " matter-of-

> fact "

> about

> > what it was and what we were going to do about it.

> > She has JRA in both ankles, one knee 4 knuckles on one hand

> and 1

> on

> > the other.

> > She is currently on methotrexate, naproxen & prednasone (I'm

> sure I

> > didn't spell that right!)

> > We have an appointment with an optholomogist next week to

> check up

> on

> > her eyes. I'm still reading and reading but we're all doing

> pretty

> well

> > with this. We were just very ready for a diagnosis and a

> treatment

> > plan.

> >

>

>

>

[Guest guest]

Hi and welcome , although I am sorry to hear of another child with

JA. It sounds like you have a great set of drs there. To get in to a ped

rheumy so quickly and then for a quick diagnosis and such aggressive

early treatment is so important, yet unfortunately for many it just does

not happen. Good thing on the eye exam - that is very important. Where

do you see the rheumy?

Please keep us up to date on how things are going and please ask any

questions you might have. This list is such a wonderful place of

support. Lots of knowledge here too. Michele ( 21, spondy)

(p.s. it is spelled prednisone, since you mentioned the spelling!)

________________________________

From: [mailto: ] On

Behalf Of rachelvuyovich

Sent: Sunday, September 21, 2008 8:49 PM

Subject: Newbie!

Hello. My name is . I have 2 children. An 18 mo old daughter and

a 3 mo old son. My daughter was diagnosed with JRA on Friday. She has

had it for 4 weeks. She had been going to her regular peditrician and

they just kept running all kinds of tests. We finally made it to a

pediatric rheumatologist on Friday. She was very " matter-of-fact " about

what it was and what we were going to do about it.

She has JRA in both ankles, one knee 4 knuckles on one hand and 1 on

the other.

She is currently on methotrexate, naproxen & prednasone (I'm sure I

didn't spell that right!)

We have an appointment with an optholomogist next week to check up on

her eyes. I'm still reading and reading but we're all doing pretty well

with this. We were just very ready for a diagnosis and a treatment

plan.

[Guest guest]

Welcome-I was just as surprised and delighted to find a group

such as positive thinking. I have gone through some major tragedies

in my life and this group and its positive thinking helped me through

it all.

-- In , " grapegem69 "

<grapegem69@...> wrote:

>

> I cannot believe It has taken me this long to find a group like

this. I

> have always believed in the power of positive thinking. I have seen

it

> work and know its powerful effect! I will scroll back through some

of

> the past messages but if there are any positive thoughts you want

me to

> focus on and send your way then message me and let me know. In the

> meantime if anyone needs some poetry to inspire them, look up the

poem

> Desiderata. Its amazing. To tell you a little about myself I am a

mom,

> nurse, wife and mother, not necessarily in that order. I like to

read,

> do crafts, learn new things and sit at the 'puter. I love the

outdoors

> and to hike, though I don't do much of it and we recently got 10

hens

> to raise, so we will have eggs soon. I look forward to meeting

fellow

> optimists and on working in the areas of my life that are still not

> where I want them to be.

>

[Guest guest]

Hi and Welcome,

You will get loads of help and support on here, you are not a hypochondriac so

don't let anyone tell you you are! I had such a time trying to get diagosed,just

did not know what was wrong. It is so hard when you are not being listened

to,good that you have been reading Dr Peatfield's book he has been the only one

to help me with all this. Without the help from everyone on the website I would

still not be on the path to even starting to get well.

Lotsa Luv

Stephie

>

> Sorry for going on for so long but its nice to be in a place where people

listen and my concerns won't be dismissed - even my mother thinks I'm being a

bit of a hypochondriac!

>

> Best wishes

>

>

> X

>

[Guest guest]

Hi - welcome to the forum and I hope you get the support

you require. Do you have a nickname as we have another and I don't want

to get you both mixed up.

The best thing I can recommend is that you write to your GP.

List all of your symptoms and your basal temperature for say, 5 days. Take this

when you wake and before you drink anything. Normal temperature is 98.6. If

yours is 97.8 or less, this is an indication your metabolism isn't working and

could well be because you are hypothyroid. You can check your symptoms and

signs against the list in our web site www.tpa-uk.org.uk

.. Write down if there are any members of your family with a thyroid or

autoimmune problem. Ask your GP to check your ferritin level, Vit B12, Vit D3,

magnesium, zinc and copper. If any of these are low, it will stop your thyroid

hormones from being absorbed. Tell your doctor in the letter that you would

like a second opinion because you are aware that thyroid function tests do not

always show up the problem and that you would like a thorough clinical

examination from an endocrinologist. That usually works. Send a copy to

your Practice Manager, and ask at the bottom of the letter for the letter to be

placed in your medical notes.

Let us know what happens.

Luv - Sheila

Reading this forum has made me determined to get my own diagnosis quickly - I

have already been on antidepressants for about 15 years, have been unable to

come off them (interestingly an extract from one of Dr Peatfield's books covers

this) so far and have doubled my weight in that time without changing my diet.

Who knows, finding out I have a lifelong problem could result in an improvement

in my health if I can give up the other medication for good!

Sorry for going on for so long but its nice to be in a place where people

listen and my concerns won't be dismissed - even my mother thinks I'm being a

bit of a hypochondriac!

[Guest guest]

Thank you for the kind welcome and for the advice! I don't have a permanent

nickname but some people call me Jools?

I have taken the first step in asking for a copy of my blood test results. I

have a follow up appointment with my GP this week (although I am not sure I can

actually make it due to major disruption at work). I have made an appointment

(a one and a half hour phone consultation on Thursday) with Sian Birkinshaw (who

is a qualified nutritional therapist and has been through all the battles with

her thyroid and the NHS etc) who can help me with the urine tests and results

etc. I need to make the link between what might be recommended by Sian and

what can be prescribed by the NHS.

In the meantime I will make a note of my temperature each morning before I do

anything - I did that the other day and it was 38.6 degrees (apologies but I

don't know what that converts to) - I am feeling the cold - and the heat (and

have had to give up my occasional treat of ice cream as it makes me freeze!) but

my doctor just said my temperature was normal and dismissed it! Well, it isn't

normal for me and I will keep on emphasising my symptoms with my GP as I don't

think I'll get anywhere otherwise! Its an excellent idea to write everything

down in a letter and ask for a referral - does anybody know of a " sympathetic "

endocrinologist in Essex or London?

Once again thank you so much for the advice and support - it has helped me no

end so far!

(Jools)

XX

>

> Hi - welcome to the forum and I hope you get the support you require.

> Do you have a nickname as we have another and I don't want to get you

> both mixed up.

>

>

>

> The best thing I can recommend is that you write to your GP. List all of

> your symptoms and your basal temperature for say, 5 days. Take this when you

> wake and before you drink anything. Normal temperature is 98.6. If yours is

> 97.8 or less, this is an indication your metabolism isn't working and could

> well be because you are hypothyroid. You can check your symptoms and signs

> against the list in our web site www.tpa-uk.org.uk . Write down if there are

> any members of your family with a thyroid or autoimmune problem. Ask your GP

> to check your ferritin level, Vit B12, Vit D3, magnesium, zinc and copper.

> If any of these are low, it will stop your thyroid hormones from being

> absorbed. Tell your doctor in the letter that you would like a second

> opinion because you are aware that thyroid function tests do not always show

> up the problem and that you would like a thorough clinical examination from

> an endocrinologist. That usually works. Send a copy to your Practice

> Manager, and ask at the bottom of the letter for the letter to be placed in

> your medical notes.

>

>

>

> Let us know what happens.

>

>

>

> Luv - Sheila

>

>

>

>

> Reading this forum has made me determined to get my own diagnosis quickly -

> I have already been on antidepressants for about 15 years, have been unable

> to come off them (interestingly an extract from one of Dr Peatfield's books

> covers this) so far and have doubled my weight in that time without changing

> my diet. Who knows, finding out I have a lifelong problem could result in an

> improvement in my health if I can give up the other medication for good!

>

> Sorry for going on for so long but its nice to be in a place where people

> listen and my concerns won't be dismissed - even my mother thinks I'm being

> a bit of a hypochondriac!

>

[Guest guest]

Hello and Welcome April!!

Liliann/NJ

From: happy_bunnygirl817 <blushing_apple@...>100-plus Sent: Wednesday, September 2, 2009 7:20:50 AMSubject: newbie!

Good morning all! My name is April. I'm 28 years old and a SAHM to a six y/o boy (who has his first day of first grade today!). I was on Weight Watchers for a while, but quit because of money issues. Today is Day number 1 for my weight loss. I was horrible over the summer, but today is a new day right. I hope to lose at least a pound a week (on average). I weighed my self the other day and it was NOT a pretty number...let' s just say I have about 150 lbs to lose before I hit my goal. Anyway...it' s nice to "meet" all of you!April

[Guest guest]

HI April ... welcome to the

group! I'm sure you'll enjoy the time you spend here - the people here are all

very special.

Hugs,

Babette

Highest Weight: 410

Restart 7-25-09

260/252/160

If I BITE it, I WRITE it!

From:

100-plus [mailto:100-plus ] On Behalf Of happy_bunnygirl817

Sent: Wednesday, September 02, 2009 7:21 AM

100-plus

Subject: newbie!

Good morning all! My name is April. I'm 28

years old and a SAHM to a six y/o boy (who has his first day of first grade

today!). I was on Weight Watchers for a while, but quit because of money

issues. Today is Day number 1 for my weight loss. I was horrible over the

summer, but today is a new day right. I hope to lose at least a pound a week

(on average). I weighed my self the other day and it was NOT a pretty

number...let's just say I have about 150 lbs to lose before I hit my goal.

Anyway...it's nice to " meet " all of you!

April

[Guest guest]

Hi Jennie and welcome!

I've found the hemp bags to be too much work, and I don't use a machine.  You

can use sprouting jars or tray systems made for sprouting....these are my

favorite.  They have small holes in the bottom for drainage and nestle into one

another.  You can actually use any jar that is large enough, and just use

cheesecloth and a rubber band for draining.  My experience is cheesecloth takes

a little more time to drain than the sprouting lids, which are made of

screen/mesh.

Good luck,

Sherry

________________________________

From: Jennie Gao <jenniegao@...>

Sent: Wednesday, September 16, 2009 5:56:12 AM

Subject: Newbie!

 

Hi everyone,

I just wanted to introduce myself. I'm a newbie at sprouting!

I've been vegan for a few years then started eating more raw food and

eventually went all raw. But my raw diet is also high fruit, which

makes me concerned about getting enough minerals and amino acids. For

greens I eat lettuce, spinach (but I heard it can block iron

absorption), celery, cucumbers and tomatoes (although cucumbers and

tomatoes are more fruits.) I also eat some nuts, avocados and seeds.

I'm really excited to learn about sprouting for the obvious reason of

nutrition, but also it will add texture and variety to my salads.

But I really don't know where to begin. What tools do I need? I heard

having a hemp bag may be helpful?

Or should I purchase a sprouting machine?

I know there are many videos on youtube, but I live here in China and

youtube is blocked..

Thanks so much for your suggestions,

Jennie

Messages in this topic (1) Reply (via web post) | Start a new topic

Messages | Files | Photos | Members

Change settings via the Web ( ID required)

Change settings via email: Switch delivery to Daily Digest | Switch format to

Traditional

Visit Your Group | Terms of Use | Unsubscribe

Recent Activity

*  3

New MembersVisit Your Group

Give Back

for Good

Get inspired

by a good cause.

Y! Toolbar

Get it Free!

easy 1-click access

to your groups.

Start a group

in 3 easy steps.

Connect with others.

..

__,_.._,___

[Guest guest]

Hi Jennie:

I was going to make you a video of how I made my jar strainers, but I just read

that you can't view youtube so I'll just explain what I did.

I used to use cheesecloths and other such straining things to rinse and drain my

sprouts that were sprouting in my Mason Jars.

but the water use to pool so I thought to myself " why should I buy a jar with a

built in strainer (or better yet, they see the strainers by themselves), but the

cost would be about $3.95 per lid (with strainer). So I have 20 jars and I'm not

about to spend all that money.

So what did Melody do? Melody went to the local hardware store (You should have

SOMETHING SIMILAR where you live, right?)

I bought a yard of aluminum mesh (or maybe it's stainless, I'm not sure). It

looks like a big screen rolled up.

I simply took a red magic marker, outlined one of my lids (Placing all of this

on newspapers, so the red magic marker would not go on my kitchen table).

So I kept making red circles on this screen thing, until I had about ten of

them, (various sizes, because I have small mason jars and the big wide mouth

Mason Jars).

I then took my scissors and cut out the circles and then I had 10 beautiful home

made strainer things to fit right inside my lids.

You have no idea how simple this is to do and when it fits, and when you are

going to rinse and drain your mason jars, well, you just pour the water in,

swish the sprouts, hold upside down over the sink until the water runs out, tap

tap tap, to get any remaining water out of the jar, and then take your jar and

tilt it on the drainboard (where the dishes are put to dry).

The jars should be put on an angle so they drain completely.

I've been doing this for 18 months now and I've got it down to a science.

But the very important point about cutting the circles is to remember that you

are cutting metal stuff. Make sure you cut over something that will catch them,

and never do this near any sprouts or food because these tiny metal strainers

that you are cutting out, well, as you are cutting, you are leaving shavings all

over the place (including the scissors themselves).

Always make sure there are no shavings left in your work area and no shavings

left on the scissors. I immediately take a clean napkin, wipe down my scissors,

and wash them and dry them.

I have had absolutely no problem since I have been doing this.

I replace the circle strainers every 5 months or so (if I see them getting

rusty). The same goes for my lids.

When you wash out your lids, get a washcloth and run the cloth inside the rim.

You will see all the rush wipe off.

This might seem like a lot of work, but when you do it and you get it down to a

science, and then you grow your own food, well IT'S WORTH IT.

Take care

Melody

>

> Hi everyone,

>

> I just wanted to introduce myself. I'm a newbie at sprouting!

>

> I've been vegan for a few years then started eating more raw food and

> eventually went all raw. But my raw diet is also high fruit, which

> makes me concerned about getting enough minerals and amino acids. For

> greens I eat lettuce, spinach (but I heard it can block iron

> absorption), celery, cucumbers and tomatoes (although cucumbers and

> tomatoes are more fruits.) I also eat some nuts, avocados and seeds.

>

> I'm really excited to learn about sprouting for the obvious reason of

> nutrition, but also it will add texture and variety to my salads.

> But I really don't know where to begin. What tools do I need? I heard

> having a hemp bag may be helpful?

>

> Or should I purchase a sprouting machine?

>

> I know there are many videos on youtube, but I live here in China and

> youtube is blocked.

>

> Thanks so much for your suggestions,

> Jennie

>