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Terry

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Oh terry I feel for you

What an awful time ur having,its incredibly stressful I know

Hang in there things won't always be so bad

Everyone here will help you

The insect growth regulator shed of helped

I found de not that helpful

I find dettol spray helps

Ocyclear vanish in wash clothes

Sulphur soap good to wash in

I cover places I get bites with coconut oil neem oil n clove oil

Its a hard thing to battle

Doxycycline helps

You won't always strugle like this

Very best wishes

------------------------------

On Mon, Apr 9, 2012 10:02 PDT ILIKE TREES wrote:

>

>Hi everyone I have my mobile internet back and running

>:-)

>X

>

>

>

>------------------------------

>On Sun, Apr 8, 2012 11:59 PDT Goldstein@... wrote:

>

>>Hi dear miteymaid...

>>

>>

>>These things always in my experience get worse before they get better... that

has happened to me even with antibiotics. I have very little happening at the

moment, but it has been many months of vigilence and using antibiotics. I don't

know what Dr. Zhang's track record is with our problem(s). He may be slightly

off the mark, meaning you may have other things going on that were not

addressed... is he addressing Lyme and coinfections? My understanding through

reading is that Lyme always comes with mycoplasma... the fact that the rest of

the family is not attracting or sensitive tells me your issues are internal.

Just my thought. And by the way, sorry we didn't do a phone conference. I was

not doing well and neither was Aandraya. Some people think this is a bug

(external), I don't think that. It feels internal to me and external. The jury

is out on that.

>>

>>

>>

>>

>> Re: New to this group, and I hope you can help me

>>

>>I went to Dr. Zhang and he gave me some pills to keep taking to desensitize

me, problem is he didn't believe they could be living on me or in me and now

after 2 weeks I'm feeling a lot more pin bricks all over me all the time whereas

before I was mainly getting bites on my feet and fingers at night..I think the

idea of desensitizing is a good one as I still think these mites are around my

daughter's family and cats but they're not bothered whereas I am but the fact

that I'm not getting something to also kill them worries me since I'm feeling

worse and feeling that he doesn't fully comprehend my situation and therefore

I'm not being treated properly and may just be making my situation worse.

>>

>>

>> >

>> >

>> > Hello all, I know, after reading many of the posts here, that many of

>> > you are suffering terribly from multiple diseases, perhaps caused by

>> > bird mites, perhaps not. I can't really tell as I am joining in the

>> > middle of some of your discussions.

>> >

>> > But, I could really use some advice from people who are undergoing

>> > issues with bird mites or have undergone them.

>> >

>> > I guess I was living in blissful ignorance up til now. Wish I could go

>> > back to that time before I ever heard of bird mites. I raised

>> > canaries. Well, I took them over from my father when he passed away a

>> > year ago. One day I noticed these little brown specks jumping onto my

>> > hand from the bird cages. Lots of calls and conversations with

>> > Entomologists and Pest Controllers led me to understand that these

>> > were red bird mites (chicken mites). I already had been scratching a

>> > lot and thought it was fleas from my dogs. So, I got rid of all my

>> > birds. I have an impaired immune system due to a rare disease called

>> > Dercums. Lots of pain and fatigue and many other things.

>> >

>> > After giving all of my birds to a fellow bird fancier, I immediately

>> > fumigated my home. (Nygaard IGR with Onslaught and DE for the attic).

>> > This seemed to help for a day or two and then I was attacked in droves

>> > of them (having no bird to feed on, I was the next best. along with my

>> > little dog, who is old and not well. My teen age son and his younger

>> > dog have been fairly unaffected). I did everything I could. I vacuumed

>> > constantly, sprayed with ammonia, bleach, kleen free, washed all my

>> > clothes in hot water with borax and ammonia, etc. etc.). But after

>> > three weeks I could not take it any longer. So, called Pest Company

>> > back out and they treated again. This time with a product called

>> > Zenprox. This time I went through all of my closets and threw away

>> > almost all of my clothes. What I kept went into plastic bags with moth

>> > balls and were kept outside or in the garage. Again, the mites

>> > returned. So a couple of days ago, the Pest Control company came out

>> > and sprayed again with Onslaught and an exciter (don't know the

>> > product name) and drilled holds into the walls where the mites were

>> > the worst (like my bedroom and the room where the birds had been kept)

>> > and put a fogger into the walls. I had been away for a week in a local

>> > motel just so I could get some rest and to combat multiple cold sores

>> > and a bladder infection. Upon returning yesterday I noticed the mites

>> > are still here. Relentless. I even started wearing a dog collar at

>> > night to keep them out of my mouth.

>> >

>> > That is the absolute worst thing that has been happening. They just

>> > won't stay out of my mouth. I am constantly coughing up mites. I am

>> > gargling incessantly and wear Vicks Vapor Rub all over my mouth, nose

>> > and neck to discourage them during the day. But they still get in. I

>> > have been battling these mites for over 6 weeks now and nothing is

>> > working. I spent 3 hours vacuuming yesterday but the PCO did not want

>> > me to doing anything other than that because she did not want anything

>> > to counteract the fumigant. Most of my clothes I keep outside now

>> > (even the ones that I wear). They are in plastic tubs with moth

>> > chrystals in them. I am washing all my bed linens every day and

>> > whatever clothes I have worn. This morning my back hurts between my

>> > shoulder blades and I am coughing up brown stuff. I am very worried

>> > that somehow mites have gotten into my lungs. I know they aren't

>> > supposed to be able to live off of humans, nor are they supposed to

>> > live inside a human body. But I can't say that I believe this.

>> >

>> > Has anyone in this group encountered anything similar to this? Or are

>> > there any suggestions or advice anyone can give me. My daughter is

>> > getting married this summer and my happiness for her and ability to

>> > help plan her wedding has all been destroyed by these mites. I just

>> > don't know what to do.

>> >

>> > Forgive me please as I know many of you are suffering far worse than

>> > me, but still, I could really use some help.

>> >

>> > Thank you so much and my best wishes to everyone here.

>> >

>> > Terry

>> >

>> >

>>

>>

>>

>>

>>

>>------------------------------------

>>

>>

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Oh terry

It is just horrendous this affliction

We all know exactly where u are at

Cos weve all been in that place

No one who wasnt been thru this understands the trauma

We all have done what we have to do to stay alive

So our spirits do not crumble

Its amazing we dont end up crazy

But we fight

Cos we all have strong spirits underneath

All the pain n misery n sufering n loss

We dont lose our spirit

I think u r strong

And u shud do whatever it,takes to help u

I cudnt stay in my home

It faced the sea

My soul misses that view every single day

Had cat 18 year she was wonderfil

Lost her n home n belongings at same time

Three months,later getin litle beautiful dog hoping for normality

A bit of peace

Now dealin with fact she cud go into heart failure at any time

Tho got on vit c vit e ,homecooked food,coq10,salmon oil,homeopathy

Becoz I love her

But stressed n grieving whats to come

She coughed a bit in the night

Have to moniter heart rate

With mitral valve disease nothing vet can give until dog go into heart failure

Then give meds but its grim when young pup who had since birth

Not good prognosis

Not known hoe long she wil live

Thank u terry

For thinkin o us

Iv been thru too much loss n dont want lose her too

And have no money at all since started lookin after her heart

But have food roof over head

Wish feet wud clear up

Wud be less torture

Think abx do help

Keep up with doxy if on it

And one day we will al be over this

Hugs

Kiss to little dog

------------------------------

On Fri, May 18, 2012 03:22 PDT mitesbegone wrote:

>

>Dear Trees....LOL

>

>I am still here, bless the Lord. I thank you for your kind thoughts regarding

my struggle. I have been home for 4 days now. I feel like such a coward to

have run to a hotel. But I truly felt like my life was on the line. Most of

you stayed and fought and I so admire your stoic tenacity.

>

>But, although I did cut and run, I did return to face my demons here. I felt,

like many of you felt, that I had reached my everlasting limit. My battle

started last year, unbeknownst to me. Probably sometimes last summer. I was

scratching all the time and had these little red dots all over me. Couldn't

figure it out but thought it must have been fleas. Wasn't until February that I

found the culprit, that pesky bird mite.

>

>Once I got rid of their meal ticket (my canaries), they came after me so hard

and so relentlessly that I did not truly know what was happening. I found no

peace at any time, anywhere. I went weeks existing on almost no food, working

myself to the bone trying to clean and clean and take care of my dogs and my son

and there were times when I was scalding myself in the shower when I just knew I

could no longer take it and I was just going to lay down and die.

>

>I found myself walking and pacing through the house as there was no place I

could sit or lie down without being tormented. I was bitten constantly, I could

feel the mites crawling on me, in my hair on my face...it was so horrible. I

would go downstairs to do the laundry and could not keep the horrible stuff from

getting inside my mouth and down my throat. Out of desperation I duct taped my

mouth shut and then over my nose poking only two small holes so I could

breath...but even that did not keep them out. I used to go over 30 hours awake,

each stretch, before I was too exhausted to stand. I would crumble upon

whatever I could find and sleep fitfully for about four hours, before I was up

and moving again.

>

>I moved constantly, I could not be still. Finally I kind of snapped. And that

is when I realized that I had to endure. That was it. I had to endure. I had

a family, a daughter who was getting married, people who depended upon me. I

could not lie down and die and I could not take the constant attacks which were

driving me crazy. So I finally went to the hotel for a week or two to finish up

taxes and things and then it turned into four weeks.

>

>I decided I had to come back and I did, and I know I was not alone. I had been

praying every day, every night...until I realized I had never been alone in this

fight. And I was strong enough to face whatever I had to face at my home. So

four days back. I am still staring it all in the face. And I am not giving up.

>

>Thanks again for thinking of me. I am thinking of you, your little sweet dog

and everyone else here.

>

>Stay strong all, Terry

>

>>

>> >Dearest Sharon,

>> >

>> >

>> >This could be my story. One difference being for me that weeks the invasion

I had felt things crawling on my legs. I thought they were ants. We had gone

through an intense heat wave recently of temps up to 112 degrees outside; one of

the hottest heat waves I've been through in No. Cal. The ants and tiny baby

spiders were marching through my office sliding door in lines because the heat

was killing them. By a week or so later, an explosion happened in my house. The

whole house was infiltrated with something we could not see other than the tiny

spiders and a few ants, but we felt them. We were getting bit all over. We had

exterminators here too and signed a big contract for many sprayings and PCOs

found nothing. I called the County Vector, they found nothing except they did

say that we had rodent feces outside in the open space near the door that were

full of mites. My sister from Nebraska had come to visit so I had gone outside

to clean up debris of

>> leaves and twigs to tidy up. Did I track something in the house from muddy

shoes? I had also gone to help out at church by doing massive yard work hauling

buckets of debris to a truck. Did I get something like springtails on my

clothing while doing volunteer work? Also a friend had had birdmites so I

thought maybe I had gotten something from her. She and I got together once in a

while. And on top of that my husband and I had gone bird watching a few weeks

before that. I had dropped my wrap around neck scarf in the dirt (it was cold

that day) and I developed a day later an elongated 4 " rash on my neck that would

not go away from the scarf I had wrapped back around my neck. The rash migrated

from one side of the neck to around the neck in the back near the hairline.

Nothing would make it go away. There were so many possible scenarios that might

explain how I got an organism on me, into my house, etc. And on top of that, my

husband and I so stupidly had

>> not changed our air filter in our house for the last 11 years, not knowing

where it was (near tall 10' ceiling). For years I thought we just happen to have

a filterless central air furnace... :( the humidity in the house was unbearable,

and in the summer!!!! Up to 80% humidity in CA is practically unheard of IN A

HOUSE.

>> >

>> >

>> >Those were some of the things that possibly led up to our infestation. But

from there, the story is like yours. The swarming on the body, getting the

medication Hydroxyzine helped me through this so that at least I could sleep. My

husband was infested too (another difference with you, but HE WAS infested as

badly as I was). I want you to know that eventually things do get better. My

brother and father-in-law paid for our treatment outside of our HMO to see our

LLMD. Thank goodness someone believed us and wanted to help us. We suffered

terribly. We got rid of all we had and lived out of zip lock bags that held

ironed clothing which I washed and steam pressed with my Singer steam press

every day, including all our sheets and all bedding. We slept on an airbed

upstairs on a bedframe from Ikea. Everything was sprayed and wiped down daily.

We had fly paper wrapped around the legs of the bed. I still sometimes had

swarming to feet and face, and did some

very

>> bizarre things like sleep in painter's suits with duct tape around any

entrance. to sleep. It didn't work. Try to get out of it in the middle of the

night when nature calls... or it was so hot in the house I couldn't breath and

had to strip down outside to breath. Anyway, many trials and tribulations to my

story... I too wanted to burn my house down. We stopped going to church too. I

was so glad my daughter lived in Germany with the grandkids as we wanted no one

in our house. I wondered if neighbors had this too, but we said nothing to

anyone. When we had the trucks here to take furniture to the dump I did tell one

neighbor who lives quite a distance away, and she backed away as fast as she

could. We removed all carpets and rugs and replaced flooring downstairs with a

vinyl. The cement was coated with some type of thick glue to keep the vinyl

down. My husband took off the baseboards in the house downstairs and replaced

those, but not until we totally

>> sealed off the bottom of the drywall to the floor (there is usually a large

gap between drywall and floor which is covered up by baseboards) with a thick

sticky substance used for sealing out air) to keep anything from getting to us.

He did a great job on the baseboards because he used to do carpentry and

cabinets for a living.

>> >

>> >

>> >I do buy the idea about the military testing. I'm sorry, I do. Something is

definitely going on. Two examples: my son and daughter-in-law came over on

Sunday for Mother's Day brunch. 1) In conversation I found out that my former

husband has scabies (I doubt that it is scabies... I think it is either

birdmites, springtails or this mysterious thing that most of us here have

experienced). He is so stubborn he won't ask for help (he is a very egotistical

sort of attorney). He has his law practice in his home, along with a whole slew

of dogs. He is my son's dad. 2) my daughter-in-law shared that her 60 year old

co-worker has springtails... she has had them for 2 years and still trying to

work while treating herself. She is afraid if her boss found out she has them

she will lose her job. She has all the SAME symptoms we have all had. I told my

daughter-in-law not to hug her or sit in her chair. This poor woman rents an

apt. Landlord has had PCOs come in

with

>> no relief. She really needs to remove all carpeting. This co-worker woman

has CFS and Fibro. So they seem to like most of us who have immune problems

(pre-existing Lyme?). But we know that anyone can get these, even if healthy.

>> >

>> >

>> >Anyway Sharon, my hopes are that these monsters start to recede for you and

you get a real handle on it (it took 10 months for any big differences to be

felt here)... I'm available if you ever want to talk. We finally did discover

the air filter problem and also bought a dehumidifier, ran it 24/7 for about a

year. Treated all drains, continued with all the usual like spraying, cleaning

everything constantly, no clutter anywhere, all plants tossed, we had no

animals, so one less problem there... things are 90% better, but I still get

sensations and occasional bites. So my problem is not 100%.

>> >

>> >

>> >

>> >

>> > Post # 1 of the end of my horror

>> >

>> >This is an e-mail that I sent to two pastors at my church on May 9th- one

being a PHD of Psychology:

>> >

>> >Something happened to me at the end of February that has shaken me to my

core and I need help because of it. I have tried to journal it but will try to

summarize it here.

>> >

>> >I am an accountant and was in the midst of a very stressful tax season,

along with lots of stressful family situations.

>> >

>> >I woke up one morning with things crawling all over me. It felt like an army

of insects had come over the head of my bed and were swarming my body. I

couldn't see them and I couldn't bathe them off. From that point on there was

nowhere I could lay down in my house. I couldn't take a nap when I was exhausted

and that took it's toll emotionally.

>> >

>> >I called three different exterminators. The first two told me it sounded

like bird mites and wanted me to sign a contract so they could start

extermination. I resisted because I needed more information so I googled Bird

Mites and found the site BirdMites.org. There is a link to find an expert in the

field. I applied. The one who came out basically told me " it's all in your

head " . At least that's what I heard at the time. He used his 30x magnifier on

" samples " I'd trapped but couldn't see anything so he gave me an address to send

the samples to the Entomology Dept at the U of FL in Gainesville. I " trapped "

some more from my body on glue boards and sent them off. The results were that

they saw nothing. He also referred me to a woman in Winter Park whose whole

family had been suffering similarly. I called her but her case was quite

different than mine. The whole family was affected and they gave up, disposed of

all their belongings, sold their home and

>> moved.

>> >

>> >My husband has been working with the folks at DIY Pest Control in Oviedo,

where we have spent a fortune on different treatments. It seems like mites, all

kinds, are rampant and mostly untreatable. The curious thing is that my husband

is not bothered by them. The info on the internet says that frequently they will

pick a host, usually a female, and not bother anyone else in the household. In

fear, I have isolated myself from my family - the worst thing is from my

great-grandchildren who need me to care for them, often. I am in such fear of

infecting others that I have not been to church but once or twice in the first

days since this hit me. If I run to the store and see a friend who wants to hug

I get sick. I avoid anyone I know like the plague.

>> >

>> >I made it through tax season but I could barely work with things crawling on

me every moment. It was horrible trying to talk to a client professionally but

feeling like a crazy person feeling things crawling on my neck and face and

wondering if they could see them.

>> >

>> >Where did these mites come from? Did I pick them up from somebody? Did I

bring them in with something I bought? Are they from some animal or something in

the yard? They find me wherever I am. I moved from my bed to the sofa bed. I

slept outside in my van a few nights. I bought an air mattress that I moved from

room to room. We even stayed in a hotel for four nights. Each night their

presence on me was increased so much so that on the fourth night I laid in bed

feeling them going into my mouth, nose and ears and asking the Lord to just take

my life. Nothing kept them off me and I rarely got more than two hours sleep a

night. I cannot sleep in my bed which we have sprayed and wrapped in three

layers of painters plastic drop cloth and sealed with packing tape. There were

many occasions at night that I laid there feeling as if they were coming out of

my body because they were just " appearing " without having crawled to get

wherever they were. I have

>> considered suicide on more than one occasion. I began to believe someone had

put a curse on me.

>> >

>> >I have been to my primary care physician 2 times and felt like she didn't

believe me so I changed doctors. She did however give me 2 prescriptions.

Methylprednisone (for 6 days) and Hydroxyzine (to take at bedtime each night).

Can you imagine! The purpose of that medicine is to calm me down enough so that

I can sleep when things crawl on me!

>> >The first appointment I can get with my new primary care is May 23rd.

>> >I have been to a walk-in clinic twice. The doctor there seems more concerned

than anyone else I've been to. However, her treatments for Scabies brought no

relief. I guess if you don't know what it is treat for anything. She referred me

to a Dermatologist who travels worldwide on mission trips and has seen things we

don't see here in the US. I have not yet made an effort to see him.

>> >I've been to a doctor outside my plan and paid $75 out of pocket to be told

to order some skin cream off the internet. I guess she thought my rough skin was

the cause. I've been bathing in Epsom Salts, Clorox, Lysol, 20 Mule Team Borax,

Dawn Dish Detergent and Arm & Hammer Washing Detergent. Many of these things

were recommended by a person at DIY Pest Control and some of the like sufferers

on a forum I found.

>> >

>> >I've been to two different acupuncturists a total of three times and have

some of the worst tasting concoctions anyone could ever imagine. One is treating

for parasites and the other says it's my circulation and nervous system. he gave

me some " relax " herbal pills.

>> >

>> >One Saturday morning, after many days of less than two hours sleep on any

night and taking several baths each day and using lice shampoo (sometmes 3x in

one day alone) to get them off my scalp, my husband took me to the ER at 5AM.

They gave me an IV with Ativan and I got about four hours sleep there. They gave

me a prescription for some over the counter allergy pills which I already had in

the cabinet.

>> >

>> >Let me add that prior to this I had no health issues and am on no meds. I

resist drugs and believe in the healthy way. To get relief from this I RAN to

the doctor(s), etc begging for help and swallowed everything they suggested and

more.

>> >

>> >My husband has been praying for me. Friends I have told have been praying

for me. And, I've been calling out to God, begging, pleading for help. April

21st I put an anonymous prayer request on the church prayer request link.

>> >

>> >We paid for a week at the hotel but the fourth night was so horrible we

checked out and returned home. At this time suicide was first and foremost in my

mind. Knowing that we need more help than I've been able to get I called the

exterminator who came out at the beginning of this. He had news for me. He is a

Christian and told me that first and foremost I need to have my church praying

for me. So here I am. Then he told me he has been in this business for many

years, over thirty I believe, and his experience has been that if you can't see

something it isn't there. Then he added " there is always the possibility that

the government has created something to use in warfare, but as yet we don't know

that " . I didn't think that strange because in my search on the internet I had

already seen that as a theory. Then he told me of someone who had called him. A

retired police officer, swat team member. Intelligent, educated, sharp and

analytical. All the

qualities

>> associated with someone in that field. His malady came on the same as mine,

in that it struck in one day. Just as for me, no treatment worked. He was so

stricken that he considered burning his house down. So have I. The end of that

story is that he had experienced an emotional breakdown and St Wort healed

him. Other than that, I have no information. I hope the exterminator will put us

together so I can get more info.

>> >

>> >St Wort is one of the things I didn't have on my counter so I ran to

Whole Foods and bought what appears to be the best St Wort on their shelf

and began taking it immediately. I don't doubt that I had an emotional breakdown

because of all the pressure on me at that time. It all makes sense now but I

rejected that theory until yesterday.

>> >

>> >I also went to Home Depot and bought wide double sided tape. I came home and

cleaned the top of my mattress, already wrapped in three layers of painter's

drop cloth and sealed with packing tape, vacuumed both the mattress and the air

mattress, sprayed them both down with Lysol and then made a border on both with

the very sticky double sided tape. I washed my pillow in Arm & Hammer laundry

soap and a little Ammonia. It was dry at 1:30 AM and everything was ready

Nothing was going to crawl on me that night! I went to bed crying because I

could no longer sleep in my nice fluffy bed with crisp sheets and a down

comforter. Now, my bed is a vinyl air mattress with no sheet and very sticky

double sided tape around it. I sleep covered with a Queen size flat sheet folded

in half crosswise and am always fearful that it will droop off the side and

allow the mites to crawl up that way. Last night there was no chance at all of

that happening because I was double

>> protected by the tape on the air mattress and the outside border of the

mattress on my bed.

>> >

>> >At 4:30 I woke up with things crawling all over me from the soles of my feet

to my scalp. I quickly jumped up and ran to get the black light the exterminator

had told me to use. Shining it in the dark will reveal anything that is there. I

checked the vinyl air mattress from top to bottom, I saw lots of white specks

but none of them were moving. I used a very big magnifier that I use for my

sewing and crafts to see better. Nothing moving. Then I took the light and

looked into my 10x mirror in my bathroom, at spots on my face, chest and body

that I felt the crawling. Nothing! Then I knew that the exterminator had to be

right. I can't tell you how much that calmed me, really calmed me. I went back

to bed and right to sleep and slept till 9AM when the phone woke me up.

>> >

>> >I know it's far from over and I need help to get over this and make sure it

never happens again. I feel that crawling all day and night and I have been

reluctant to call for help because I believed I was infested with mites and was

fearful of infecting people with whom I came in contact. I don't know what help

to ask for other than prayer. If there really is something then our home needs

to be anointed and prayed over. Since the first day only a little over two

months ago, this has cost us close to $3,000 in co-pays, out of network doctors

and meds, etc, every kind of herbal thing from Leaves & Roots you could ever

imagine, cleaning supplies I don't ordinarily use, pesticides and equipment and

on and on and on. And the work has been beyond exhausting. Spraying, scrubbing,

cleaning, steaming, washing every item that I touched even one time. I really

want my life back.

>> >

>> >Sharon

>> >

>> >I will post what followed tomorrow.

>> >

>> >

>> >

>> >

>> >

>> >------------------------------------

>> >

>> >

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Oh my dearest, you break my heart. My prayers are with you and your little

dog...what is her name? I named my little dog " Java " because she was like a

little coffee bean jumping up and down and she always tried to get into my

daughter's coffee drink. She is doing amazingly! Two weeks on antibiotics and

she is finally eating, she isn't limping and her wound is 98% healed. I am so

grateful and thankful to God that she is doing so much better.

Consider this, Lyme disease can be passed in utero to the unborn. And Lyme

disease can cause heart problems. Is it possible that your little girl could

have Lyme disease? I know you have tried to give her abx, but she did not

tolerate them well. Did you stop that? Was she taking Amoxycillin? I give my

little girl her medicine wrapped in a piece of cheese which she loves, but she

also likes peanut butter. You might ask your vet about it. I believe you told

me that the abx caused diarrhea? Maybe there is a different abx that would

help?

I found this article which points to mitral valve problems which could be

associated with Lyme disease. I do not know if you could cure her of her mitral

valve problem but perhaps the abx could help her be more comfortable.

Here is a link: http://www.gsdhelp.info/cardiac/endocardium.html

I hope it helps you. I can only say that I understand completely the losses you

have suffered and the courage it must take for you to face each day and to look

into the eyes of your little dog and hold onto her and love her, knowing that

you will be facing more pain in the future. That my dear, IS courage.

With hope for you both, Terry

> >>

> >> >Dearest Sharon,

> >> >

> >> >

> >> >This could be my story. One difference being for me that weeks the

invasion I had felt things crawling on my legs. I thought they were ants. We had

gone through an intense heat wave recently of temps up to 112 degrees outside;

one of the hottest heat waves I've been through in No. Cal. The ants and tiny

baby spiders were marching through my office sliding door in lines because the

heat was killing them. By a week or so later, an explosion happened in my house.

The whole house was infiltrated with something we could not see other than the

tiny spiders and a few ants, but we felt them. We were getting bit all over. We

had exterminators here too and signed a big contract for many sprayings and PCOs

found nothing. I called the County Vector, they found nothing except they did

say that we had rodent feces outside in the open space near the door that were

full of mites. My sister from Nebraska had come to visit so I had gone outside

to clean up debris of

> >> leaves and twigs to tidy up. Did I track something in the house from muddy

shoes? I had also gone to help out at church by doing massive yard work hauling

buckets of debris to a truck. Did I get something like springtails on my

clothing while doing volunteer work? Also a friend had had birdmites so I

thought maybe I had gotten something from her. She and I got together once in a

while. And on top of that my husband and I had gone bird watching a few weeks

before that. I had dropped my wrap around neck scarf in the dirt (it was cold

that day) and I developed a day later an elongated 4 " rash on my neck that would

not go away from the scarf I had wrapped back around my neck. The rash migrated

from one side of the neck to around the neck in the back near the hairline.

Nothing would make it go away. There were so many possible scenarios that might

explain how I got an organism on me, into my house, etc. And on top of that, my

husband and I so stupidly had

> >> not changed our air filter in our house for the last 11 years, not knowing

where it was (near tall 10' ceiling). For years I thought we just happen to have

a filterless central air furnace... :( the humidity in the house was unbearable,

and in the summer!!!! Up to 80% humidity in CA is practically unheard of IN A

HOUSE.

> >> >

> >> >

> >> >Those were some of the things that possibly led up to our infestation. But

from there, the story is like yours. The swarming on the body, getting the

medication Hydroxyzine helped me through this so that at least I could sleep. My

husband was infested too (another difference with you, but HE WAS infested as

badly as I was). I want you to know that eventually things do get better. My

brother and father-in-law paid for our treatment outside of our HMO to see our

LLMD. Thank goodness someone believed us and wanted to help us. We suffered

terribly. We got rid of all we had and lived out of zip lock bags that held

ironed clothing which I washed and steam pressed with my Singer steam press

every day, including all our sheets and all bedding. We slept on an airbed

upstairs on a bedframe from Ikea. Everything was sprayed and wiped down daily.

We had fly paper wrapped around the legs of the bed. I still sometimes had

swarming to feet and face, and did some

> very

> >> bizarre things like sleep in painter's suits with duct tape around any

entrance. to sleep. It didn't work. Try to get out of it in the middle of the

night when nature calls... or it was so hot in the house I couldn't breath and

had to strip down outside to breath. Anyway, many trials and tribulations to my

story... I too wanted to burn my house down. We stopped going to church too. I

was so glad my daughter lived in Germany with the grandkids as we wanted no one

in our house. I wondered if neighbors had this too, but we said nothing to

anyone. When we had the trucks here to take furniture to the dump I did tell one

neighbor who lives quite a distance away, and she backed away as fast as she

could. We removed all carpets and rugs and replaced flooring downstairs with a

vinyl. The cement was coated with some type of thick glue to keep the vinyl

down. My husband took off the baseboards in the house downstairs and replaced

those, but not until we totally

> >> sealed off the bottom of the drywall to the floor (there is usually a

large gap between drywall and floor which is covered up by baseboards) with a

thick sticky substance used for sealing out air) to keep anything from getting

to us. He did a great job on the baseboards because he used to do carpentry and

cabinets for a living.

> >> >

> >> >

> >> >I do buy the idea about the military testing. I'm sorry, I do. Something

is definitely going on. Two examples: my son and daughter-in-law came over on

Sunday for Mother's Day brunch. 1) In conversation I found out that my former

husband has scabies (I doubt that it is scabies... I think it is either

birdmites, springtails or this mysterious thing that most of us here have

experienced). He is so stubborn he won't ask for help (he is a very egotistical

sort of attorney). He has his law practice in his home, along with a whole slew

of dogs. He is my son's dad. 2) my daughter-in-law shared that her 60 year old

co-worker has springtails... she has had them for 2 years and still trying to

work while treating herself. She is afraid if her boss found out she has them

she will lose her job. She has all the SAME symptoms we have all had. I told my

daughter-in-law not to hug her or sit in her chair. This poor woman rents an

apt. Landlord has had PCOs come in

> with

> >> no relief. She really needs to remove all carpeting. This co-worker woman

has CFS and Fibro. So they seem to like most of us who have immune problems

(pre-existing Lyme?). But we know that anyone can get these, even if healthy.

> >> >

> >> >

> >> >Anyway Sharon, my hopes are that these monsters start to recede for you

and you get a real handle on it (it took 10 months for any big differences to be

felt here)... I'm available if you ever want to talk. We finally did discover

the air filter problem and also bought a dehumidifier, ran it 24/7 for about a

year. Treated all drains, continued with all the usual like spraying, cleaning

everything constantly, no clutter anywhere, all plants tossed, we had no

animals, so one less problem there... things are 90% better, but I still get

sensations and occasional bites. So my problem is not 100%.

> >> >

> >> >

> >> >

> >> >

> >> > Post # 1 of the end of my horror

> >> >

> >> >This is an e-mail that I sent to two pastors at my church on May 9th- one

being a PHD of Psychology:

> >> >

> >> >Something happened to me at the end of February that has shaken me to my

core and I need help because of it. I have tried to journal it but will try to

summarize it here.

> >> >

> >> >I am an accountant and was in the midst of a very stressful tax season,

along with lots of stressful family situations.

> >> >

> >> >I woke up one morning with things crawling all over me. It felt like an

army of insects had come over the head of my bed and were swarming my body. I

couldn't see them and I couldn't bathe them off. From that point on there was

nowhere I could lay down in my house. I couldn't take a nap when I was exhausted

and that took it's toll emotionally.

> >> >

> >> >I called three different exterminators. The first two told me it sounded

like bird mites and wanted me to sign a contract so they could start

extermination. I resisted because I needed more information so I googled Bird

Mites and found the site BirdMites.org. There is a link to find an expert in the

field. I applied. The one who came out basically told me " it's all in your

head " . At least that's what I heard at the time. He used his 30x magnifier on

" samples " I'd trapped but couldn't see anything so he gave me an address to send

the samples to the Entomology Dept at the U of FL in Gainesville. I " trapped "

some more from my body on glue boards and sent them off. The results were that

they saw nothing. He also referred me to a woman in Winter Park whose whole

family had been suffering similarly. I called her but her case was quite

different than mine. The whole family was affected and they gave up, disposed of

all their belongings, sold their home and

> >> moved.

> >> >

> >> >My husband has been working with the folks at DIY Pest Control in Oviedo,

where we have spent a fortune on different treatments. It seems like mites, all

kinds, are rampant and mostly untreatable. The curious thing is that my husband

is not bothered by them. The info on the internet says that frequently they will

pick a host, usually a female, and not bother anyone else in the household. In

fear, I have isolated myself from my family - the worst thing is from my

great-grandchildren who need me to care for them, often. I am in such fear of

infecting others that I have not been to church but once or twice in the first

days since this hit me. If I run to the store and see a friend who wants to hug

I get sick. I avoid anyone I know like the plague.

> >> >

> >> >I made it through tax season but I could barely work with things crawling

on me every moment. It was horrible trying to talk to a client professionally

but feeling like a crazy person feeling things crawling on my neck and face and

wondering if they could see them.

> >> >

> >> >Where did these mites come from? Did I pick them up from somebody? Did I

bring them in with something I bought? Are they from some animal or something in

the yard? They find me wherever I am. I moved from my bed to the sofa bed. I

slept outside in my van a few nights. I bought an air mattress that I moved from

room to room. We even stayed in a hotel for four nights. Each night their

presence on me was increased so much so that on the fourth night I laid in bed

feeling them going into my mouth, nose and ears and asking the Lord to just take

my life. Nothing kept them off me and I rarely got more than two hours sleep a

night. I cannot sleep in my bed which we have sprayed and wrapped in three

layers of painters plastic drop cloth and sealed with packing tape. There were

many occasions at night that I laid there feeling as if they were coming out of

my body because they were just " appearing " without having crawled to get

wherever they were. I have

> >> considered suicide on more than one occasion. I began to believe someone

had put a curse on me.

> >> >

> >> >I have been to my primary care physician 2 times and felt like she didn't

believe me so I changed doctors. She did however give me 2 prescriptions.

Methylprednisone (for 6 days) and Hydroxyzine (to take at bedtime each night).

Can you imagine! The purpose of that medicine is to calm me down enough so that

I can sleep when things crawl on me!

> >> >The first appointment I can get with my new primary care is May 23rd.

> >> >I have been to a walk-in clinic twice. The doctor there seems more

concerned than anyone else I've been to. However, her treatments for Scabies

brought no relief. I guess if you don't know what it is treat for anything. She

referred me to a Dermatologist who travels worldwide on mission trips and has

seen things we don't see here in the US. I have not yet made an effort to see

him.

> >> >I've been to a doctor outside my plan and paid $75 out of pocket to be

told to order some skin cream off the internet. I guess she thought my rough

skin was the cause. I've been bathing in Epsom Salts, Clorox, Lysol, 20 Mule

Team Borax, Dawn Dish Detergent and Arm & Hammer Washing Detergent. Many of

these things were recommended by a person at DIY Pest Control and some of the

like sufferers on a forum I found.

> >> >

> >> >I've been to two different acupuncturists a total of three times and have

some of the worst tasting concoctions anyone could ever imagine. One is treating

for parasites and the other says it's my circulation and nervous system. he gave

me some " relax " herbal pills.

> >> >

> >> >One Saturday morning, after many days of less than two hours sleep on any

night and taking several baths each day and using lice shampoo (sometmes 3x in

one day alone) to get them off my scalp, my husband took me to the ER at 5AM.

They gave me an IV with Ativan and I got about four hours sleep there. They gave

me a prescription for some over the counter allergy pills which I already had in

the cabinet.

> >> >

> >> >Let me add that prior to this I had no health issues and am on no meds. I

resist drugs and believe in the healthy way. To get relief from this I RAN to

the doctor(s), etc begging for help and swallowed everything they suggested and

more.

> >> >

> >> >My husband has been praying for me. Friends I have told have been praying

for me. And, I've been calling out to God, begging, pleading for help. April

21st I put an anonymous prayer request on the church prayer request link.

> >> >

> >> >We paid for a week at the hotel but the fourth night was so horrible we

checked out and returned home. At this time suicide was first and foremost in my

mind. Knowing that we need more help than I've been able to get I called the

exterminator who came out at the beginning of this. He had news for me. He is a

Christian and told me that first and foremost I need to have my church praying

for me. So here I am. Then he told me he has been in this business for many

years, over thirty I believe, and his experience has been that if you can't see

something it isn't there. Then he added " there is always the possibility that

the government has created something to use in warfare, but as yet we don't know

that " . I didn't think that strange because in my search on the internet I had

already seen that as a theory. Then he told me of someone who had called him. A

retired police officer, swat team member. Intelligent, educated, sharp and

analytical. All the

> qualities

> >> associated with someone in that field. His malady came on the same as

mine, in that it struck in one day. Just as for me, no treatment worked. He was

so stricken that he considered burning his house down. So have I. The end of

that story is that he had experienced an emotional breakdown and St Wort

healed him. Other than that, I have no information. I hope the exterminator will

put us together so I can get more info.

> >> >

> >> >St Wort is one of the things I didn't have on my counter so I ran to

Whole Foods and bought what appears to be the best St Wort on their shelf

and began taking it immediately. I don't doubt that I had an emotional breakdown

because of all the pressure on me at that time. It all makes sense now but I

rejected that theory until yesterday.

> >> >

> >> >I also went to Home Depot and bought wide double sided tape. I came home

and cleaned the top of my mattress, already wrapped in three layers of painter's

drop cloth and sealed with packing tape, vacuumed both the mattress and the air

mattress, sprayed them both down with Lysol and then made a border on both with

the very sticky double sided tape. I washed my pillow in Arm & Hammer laundry

soap and a little Ammonia. It was dry at 1:30 AM and everything was ready

Nothing was going to crawl on me that night! I went to bed crying because I

could no longer sleep in my nice fluffy bed with crisp sheets and a down

comforter. Now, my bed is a vinyl air mattress with no sheet and very sticky

double sided tape around it. I sleep covered with a Queen size flat sheet folded

in half crosswise and am always fearful that it will droop off the side and

allow the mites to crawl up that way. Last night there was no chance at all of

that happening because I was double

> >> protected by the tape on the air mattress and the outside border of the

mattress on my bed.

> >> >

> >> >At 4:30 I woke up with things crawling all over me from the soles of my

feet to my scalp. I quickly jumped up and ran to get the black light the

exterminator had told me to use. Shining it in the dark will reveal anything

that is there. I checked the vinyl air mattress from top to bottom, I saw lots

of white specks but none of them were moving. I used a very big magnifier that I

use for my sewing and crafts to see better. Nothing moving. Then I took the

light and looked into my 10x mirror in my bathroom, at spots on my face, chest

and body that I felt the crawling. Nothing! Then I knew that the exterminator

had to be right. I can't tell you how much that calmed me, really calmed me. I

went back to bed and right to sleep and slept till 9AM when the phone woke me

up.

> >> >

> >> >I know it's far from over and I need help to get over this and make sure

it never happens again. I feel that crawling all day and night and I have been

reluctant to call for help because I believed I was infested with mites and was

fearful of infecting people with whom I came in contact. I don't know what help

to ask for other than prayer. If there really is something then our home needs

to be anointed and prayed over. Since the first day only a little over two

months ago, this has cost us close to $3,000 in co-pays, out of network doctors

and meds, etc, every kind of herbal thing from Leaves & Roots you could ever

imagine, cleaning supplies I don't ordinarily use, pesticides and equipment and

on and on and on. And the work has been beyond exhausting. Spraying, scrubbing,

cleaning, steaming, washing every item that I touched even one time. I really

want my life back.

> >> >

> >> >Sharon

> >> >

> >> >I will post what followed tomorrow.

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >------------------------------------

> >> >

> >> >

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Terry-You're right, Lyme can cause all kinds of heart issues. Also babesia.AandrayaOn May 19, 2012, at 5:31 AM, mitesbegone <no_reply > wrote:

Oh my dearest, you break my heart. My prayers are with you and your little dog...what is her name? I named my little dog "Java" because she was like a little coffee bean jumping up and down and she always tried to get into my daughter's coffee drink. She is doing amazingly! Two weeks on antibiotics and she is finally eating, she isn't limping and her wound is 98% healed. I am so grateful and thankful to God that she is doing so much better.

Consider this, Lyme disease can be passed in utero to the unborn. And Lyme disease can cause heart problems. Is it possible that your little girl could have Lyme disease? I know you have tried to give her abx, but she did not tolerate them well. Did you stop that? Was she taking Amoxycillin? I give my little girl her medicine wrapped in a piece of cheese which she loves, but she also likes peanut butter. You might ask your vet about it. I believe you told me that the abx caused diarrhea? Maybe there is a different abx that would help?

I found this article which points to mitral valve problems which could be associated with Lyme disease. I do not know if you could cure her of her mitral valve problem but perhaps the abx could help her be more comfortable.

Here is a link: http://www.gsdhelp.info/cardiac/endocardium.html

I hope it helps you. I can only say that I understand completely the losses you have suffered and the courage it must take for you to face each day and to look into the eyes of your little dog and hold onto her and love her, knowing that you will be facing more pain in the future. That my dear, IS courage.

With hope for you both, Terry

> >>

> >> >Dearest Sharon,

> >> >

> >> >

> >> >This could be my story. One difference being for me that weeks the invasion I had felt things crawling on my legs. I thought they were ants. We had gone through an intense heat wave recently of temps up to 112 degrees outside; one of the hottest heat waves I've been through in No. Cal. The ants and tiny baby spiders were marching through my office sliding door in lines because the heat was killing them. By a week or so later, an explosion happened in my house. The whole house was infiltrated with something we could not see other than the tiny spiders and a few ants, but we felt them. We were getting bit all over. We had exterminators here too and signed a big contract for many sprayings and PCOs found nothing. I called the County Vector, they found nothing except they did say that we had rodent feces outside in the open space near the door that were full of mites. My sister from Nebraska had come to visit so I had gone outside to clean up debris of

> >> leaves and twigs to tidy up. Did I track something in the house from muddy shoes? I had also gone to help out at church by doing massive yard work hauling buckets of debris to a truck. Did I get something like springtails on my clothing while doing volunteer work? Also a friend had had birdmites so I thought maybe I had gotten something from her. She and I got together once in a while. And on top of that my husband and I had gone bird watching a few weeks before that. I had dropped my wrap around neck scarf in the dirt (it was cold that day) and I developed a day later an elongated 4" rash on my neck that would not go away from the scarf I had wrapped back around my neck. The rash migrated from one side of the neck to around the neck in the back near the hairline. Nothing would make it go away. There were so many possible scenarios that might explain how I got an organism on me, into my house, etc. And on top of that, my husband and I so stupidly had

> >> not changed our air filter in our house for the last 11 years, not knowing where it was (near tall 10' ceiling). For years I thought we just happen to have a filterless central air furnace... :( the humidity in the house was unbearable, and in the summer!!!! Up to 80% humidity in CA is practically unheard of IN A HOUSE.

> >> >

> >> >

> >> >Those were some of the things that possibly led up to our infestation. But from there, the story is like yours. The swarming on the body, getting the medication Hydroxyzine helped me through this so that at least I could sleep. My husband was infested too (another difference with you, but HE WAS infested as badly as I was). I want you to know that eventually things do get better. My brother and father-in-law paid for our treatment outside of our HMO to see our LLMD. Thank goodness someone believed us and wanted to help us. We suffered terribly. We got rid of all we had and lived out of zip lock bags that held ironed clothing which I washed and steam pressed with my Singer steam press every day, including all our sheets and all bedding. We slept on an airbed upstairs on a bedframe from Ikea. Everything was sprayed and wiped down daily. We had fly paper wrapped around the legs of the bed. I still sometimes had swarming to feet and face, and did some

> very

> >> bizarre things like sleep in painter's suits with duct tape around any entrance. to sleep. It didn't work. Try to get out of it in the middle of the night when nature calls... or it was so hot in the house I couldn't breath and had to strip down outside to breath. Anyway, many trials and tribulations to my story... I too wanted to burn my house down. We stopped going to church too. I was so glad my daughter lived in Germany with the grandkids as we wanted no one in our house. I wondered if neighbors had this too, but we said nothing to anyone. When we had the trucks here to take furniture to the dump I did tell one neighbor who lives quite a distance away, and she backed away as fast as she could. We removed all carpets and rugs and replaced flooring downstairs with a vinyl. The cement was coated with some type of thick glue to keep the vinyl down. My husband took off the baseboards in the house downstairs and replaced those, but not until we totally

> >> sealed off the bottom of the drywall to the floor (there is usually a large gap between drywall and floor which is covered up by baseboards) with a thick sticky substance used for sealing out air) to keep anything from getting to us. He did a great job on the baseboards because he used to do carpentry and cabinets for a living.

> >> >

> >> >

> >> >I do buy the idea about the military testing. I'm sorry, I do. Something is definitely going on. Two examples: my son and daughter-in-law came over on Sunday for Mother's Day brunch. 1) In conversation I found out that my former husband has scabies (I doubt that it is scabies... I think it is either birdmites, springtails or this mysterious thing that most of us here have experienced). He is so stubborn he won't ask for help (he is a very egotistical sort of attorney). He has his law practice in his home, along with a whole slew of dogs. He is my son's dad. 2) my daughter-in-law shared that her 60 year old co-worker has springtails... she has had them for 2 years and still trying to work while treating herself. She is afraid if her boss found out she has them she will lose her job. She has all the SAME symptoms we have all had. I told my daughter-in-law not to hug her or sit in her chair. This poor woman rents an apt. Landlord has had PCOs come in

> with

> >> no relief. She really needs to remove all carpeting. This co-worker woman has CFS and Fibro. So they seem to like most of us who have immune problems (pre-existing Lyme?). But we know that anyone can get these, even if healthy.

> >> >

> >> >

> >> >Anyway Sharon, my hopes are that these monsters start to recede for you and you get a real handle on it (it took 10 months for any big differences to be felt here)... I'm available if you ever want to talk. We finally did discover the air filter problem and also bought a dehumidifier, ran it 24/7 for about a year. Treated all drains, continued with all the usual like spraying, cleaning everything constantly, no clutter anywhere, all plants tossed, we had no animals, so one less problem there... things are 90% better, but I still get sensations and occasional bites. So my problem is not 100%.

> >> >

> >> >

> >> >

> >> >

> >> > Post # 1 of the end of my horror

> >> >

> >> >This is an e-mail that I sent to two pastors at my church on May 9th- one being a PHD of Psychology:

> >> >

> >> >Something happened to me at the end of February that has shaken me to my core and I need help because of it. I have tried to journal it but will try to summarize it here.

> >> >

> >> >I am an accountant and was in the midst of a very stressful tax season, along with lots of stressful family situations.

> >> >

> >> >I woke up one morning with things crawling all over me. It felt like an army of insects had come over the head of my bed and were swarming my body. I couldn't see them and I couldn't bathe them off. From that point on there was nowhere I could lay down in my house. I couldn't take a nap when I was exhausted and that took it's toll emotionally.

> >> >

> >> >I called three different exterminators. The first two told me it sounded like bird mites and wanted me to sign a contract so they could start extermination. I resisted because I needed more information so I googled Bird Mites and found the site BirdMites.org. There is a link to find an expert in the field. I applied. The one who came out basically told me "it's all in your head". At least that's what I heard at the time. He used his 30x magnifier on "samples" I'd trapped but couldn't see anything so he gave me an address to send the samples to the Entomology Dept at the U of FL in Gainesville. I "trapped" some more from my body on glue boards and sent them off. The results were that they saw nothing. He also referred me to a woman in Winter Park whose whole family had been suffering similarly. I called her but her case was quite different than mine. The whole family was affected and they gave up, disposed of all their belongings, sold

their home and

> >> moved.

> >> >

> >> >My husband has been working with the folks at DIY Pest Control in Oviedo, where we have spent a fortune on different treatments. It seems like mites, all kinds, are rampant and mostly untreatable. The curious thing is that my husband is not bothered by them. The info on the internet says that frequently they will pick a host, usually a female, and not bother anyone else in the household. In fear, I have isolated myself from my family - the worst thing is from my great-grandchildren who need me to care for them, often. I am in such fear of infecting others that I have not been to church but once or twice in the first days since this hit me. If I run to the store and see a friend who wants to hug I get sick. I avoid anyone I know like the plague.

> >> >

> >> >I made it through tax season but I could barely work with things crawling on me every moment. It was horrible trying to talk to a client professionally but feeling like a crazy person feeling things crawling on my neck and face and wondering if they could see them.

> >> >

> >> >Where did these mites come from? Did I pick them up from somebody? Did I bring them in with something I bought? Are they from some animal or something in the yard? They find me wherever I am. I moved from my bed to the sofa bed. I slept outside in my van a few nights. I bought an air mattress that I moved from room to room. We even stayed in a hotel for four nights. Each night their presence on me was increased so much so that on the fourth night I laid in bed feeling them going into my mouth, nose and ears and asking the Lord to just take my life. Nothing kept them off me and I rarely got more than two hours sleep a night. I cannot sleep in my bed which we have sprayed and wrapped in three layers of painters plastic drop cloth and sealed with packing tape. There were many occasions at night that I laid there feeling as if they were coming out of my body because they were just "appearing" without having crawled to get wherever they were. I have

> >> considered suicide on more than one occasion. I began to believe someone had put a curse on me.

> >> >

> >> >I have been to my primary care physician 2 times and felt like she didn't believe me so I changed doctors. She did however give me 2 prescriptions. Methylprednisone (for 6 days) and Hydroxyzine (to take at bedtime each night). Can you imagine! The purpose of that medicine is to calm me down enough so that I can sleep when things crawl on me!

> >> >The first appointment I can get with my new primary care is May 23rd.

> >> >I have been to a walk-in clinic twice. The doctor there seems more concerned than anyone else I've been to. However, her treatments for Scabies brought no relief. I guess if you don't know what it is treat for anything. She referred me to a Dermatologist who travels worldwide on mission trips and has seen things we don't see here in the US. I have not yet made an effort to see him.

> >> >I've been to a doctor outside my plan and paid $75 out of pocket to be told to order some skin cream off the internet. I guess she thought my rough skin was the cause. I've been bathing in Epsom Salts, Clorox, Lysol, 20 Mule Team Borax, Dawn Dish Detergent and Arm & Hammer Washing Detergent. Many of these things were recommended by a person at DIY Pest Control and some of the like sufferers on a forum I found.

> >> >

> >> >I've been to two different acupuncturists a total of three times and have some of the worst tasting concoctions anyone could ever imagine. One is treating for parasites and the other says it's my circulation and nervous system. he gave me some "relax" herbal pills.

> >> >

> >> >One Saturday morning, after many days of less than two hours sleep on any night and taking several baths each day and using lice shampoo (sometmes 3x in one day alone) to get them off my scalp, my husband took me to the ER at 5AM. They gave me an IV with Ativan and I got about four hours sleep there. They gave me a prescription for some over the counter allergy pills which I already had in the cabinet.

> >> >

> >> >Let me add that prior to this I had no health issues and am on no meds. I resist drugs and believe in the healthy way. To get relief from this I RAN to the doctor(s), etc begging for help and swallowed everything they suggested and more.

> >> >

> >> >My husband has been praying for me. Friends I have told have been praying for me. And, I've been calling out to God, begging, pleading for help. April 21st I put an anonymous prayer request on the church prayer request link.

> >> >

> >> >We paid for a week at the hotel but the fourth night was so horrible we checked out and returned home. At this time suicide was first and foremost in my mind. Knowing that we need more help than I've been able to get I called the exterminator who came out at the beginning of this. He had news for me. He is a Christian and told me that first and foremost I need to have my church praying for me. So here I am. Then he told me he has been in this business for many years, over thirty I believe, and his experience has been that if you can't see something it isn't there. Then he added "there is always the possibility that the government has created something to use in warfare, but as yet we don't know that". I didn't think that strange because in my search on the internet I had already seen that as a theory. Then he told me of someone who had called him. A retired police officer, swat team member. Intelligent, educated, sharp and analytical. All the

> qualities

> >> associated with someone in that field. His malady came on the same as mine, in that it struck in one day. Just as for me, no treatment worked. He was so stricken that he considered burning his house down. So have I. The end of that story is that he had experienced an emotional breakdown and St Wort healed him. Other than that, I have no information. I hope the exterminator will put us together so I can get more info.

> >> >

> >> >St Wort is one of the things I didn't have on my counter so I ran to Whole Foods and bought what appears to be the best St Wort on their shelf and began taking it immediately. I don't doubt that I had an emotional breakdown because of all the pressure on me at that time. It all makes sense now but I rejected that theory until yesterday.

> >> >

> >> >I also went to Home Depot and bought wide double sided tape. I came home and cleaned the top of my mattress, already wrapped in three layers of painter's drop cloth and sealed with packing tape, vacuumed both the mattress and the air mattress, sprayed them both down with Lysol and then made a border on both with the very sticky double sided tape. I washed my pillow in Arm & Hammer laundry soap and a little Ammonia. It was dry at 1:30 AM and everything was ready Nothing was going to crawl on me that night! I went to bed crying because I could no longer sleep in my nice fluffy bed with crisp sheets and a down comforter. Now, my bed is a vinyl air mattress with no sheet and very sticky double sided tape around it. I sleep covered with a Queen size flat sheet folded in half crosswise and am always fearful that it will droop off the side and allow the mites to crawl up that way. Last night there was no chance at all of that happening because I was double

> >> protected by the tape on the air mattress and the outside border of the mattress on my bed.

> >> >

> >> >At 4:30 I woke up with things crawling all over me from the soles of my feet to my scalp. I quickly jumped up and ran to get the black light the exterminator had told me to use. Shining it in the dark will reveal anything that is there. I checked the vinyl air mattress from top to bottom, I saw lots of white specks but none of them were moving. I used a very big magnifier that I use for my sewing and crafts to see better. Nothing moving. Then I took the light and looked into my 10x mirror in my bathroom, at spots on my face, chest and body that I felt the crawling. Nothing! Then I knew that the exterminator had to be right. I can't tell you how much that calmed me, really calmed me. I went back to bed and right to sleep and slept till 9AM when the phone woke me up.

> >> >

> >> >I know it's far from over and I need help to get over this and make sure it never happens again. I feel that crawling all day and night and I have been reluctant to call for help because I believed I was infested with mites and was fearful of infecting people with whom I came in contact. I don't know what help to ask for other than prayer. If there really is something then our home needs to be anointed and prayed over. Since the first day only a little over two months ago, this has cost us close to $3,000 in co-pays, out of network doctors and meds, etc, every kind of herbal thing from Leaves & Roots you could ever imagine, cleaning supplies I don't ordinarily use, pesticides and equipment and on and on and on. And the work has been beyond exhausting. Spraying, scrubbing, cleaning, steaming, washing every item that I touched even one time. I really want my life back.

> >> >

> >> >Sharon

> >> >

> >> >I will post what followed tomorrow.

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >------------------------------------

> >> >

> >> >

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Oh thank u dear terry

Java,lovely name

I dont like to say dogs name as dont want recognized

Hope thats ok!!

Well shes had the heart disease since birth

I dont think shes afected by whats onmy feet

Thank the lord!!

The abx were incase infection in the heart

U know u just wonder when all the difficulties will cease

Cos life isnt meant to be difficult all the time

Tho in the,midst of mite,infestation there is,no joy

But when it lessens pleasant things will apear now n again

It just takes time

And lots of strength

Oh one day we will have no bites at all

How lovely for it to be gone!!x

------------------------------

On Sat, May 19, 2012 02:31 PDT mitesbegone wrote:

>

>Oh my dearest, you break my heart. My prayers are with you and your little

dog...what is her name? I named my little dog " Java " because she was like a

little coffee bean jumping up and down and she always tried to get into my

daughter's coffee drink. She is doing amazingly! Two weeks on antibiotics and

she is finally eating, she isn't limping and her wound is 98% healed. I am so

grateful and thankful to God that she is doing so much better.

>

>Consider this, Lyme disease can be passed in utero to the unborn. And Lyme

disease can cause heart problems. Is it possible that your little girl could

have Lyme disease? I know you have tried to give her abx, but she did not

tolerate them well. Did you stop that? Was she taking Amoxycillin? I give my

little girl her medicine wrapped in a piece of cheese which she loves, but she

also likes peanut butter. You might ask your vet about it. I believe you told

me that the abx caused diarrhea? Maybe there is a different abx that would

help?

>

>I found this article which points to mitral valve problems which could be

associated with Lyme disease. I do not know if you could cure her of her mitral

valve problem but perhaps the abx could help her be more comfortable.

>

>Here is a link: http://www.gsdhelp.info/cardiac/endocardium.html

>

>I hope it helps you. I can only say that I understand completely the losses

you have suffered and the courage it must take for you to face each day and to

look into the eyes of your little dog and hold onto her and love her, knowing

that you will be facing more pain in the future. That my dear, IS courage.

>

>With hope for you both, Terry

>

>> >

>> > >Dearest Sharon,

>> > >

>> > >

>> > >This could be my story. One difference being for me that weeks the

invasion I had felt things crawling on my legs. I thought they were ants. We had

gone through an intense heat wave recently of temps up to 112 degrees outside;

one of the hottest heat waves I've been through in No. Cal. The ants and tiny

baby spiders were marching through my office sliding door in lines because the

heat was killing them. By a week or so later, an explosion happened in my house.

The whole house was infiltrated with something we could not see other than the

tiny spiders and a few ants, but we felt them. We were getting bit all over. We

had exterminators here too and signed a big contract for many sprayings and PCOs

found nothing. I called the County Vector, they found nothing except they did

say that we had rodent feces outside in the open space near the door that were

full of mites. My sister from Nebraska had come to visit so I had gone outside

to clean up debris of

>> > leaves and twigs to tidy up. Did I track something in the house from muddy

shoes? I had also gone to help out at church by doing massive yard work hauling

buckets of debris to a truck. Did I get something like springtails on my

clothing while doing volunteer work? Also a friend had had birdmites so I

thought maybe I had gotten something from her. She and I got together once in a

while. And on top of that my husband and I had gone bird watching a few weeks

before that. I had dropped my wrap around neck scarf in the dirt (it was cold

that day) and I developed a day later an elongated 4 " rash on my neck that would

not go away from the scarf I had wrapped back around my neck. The rash migrated

from one side of the neck to around the neck in the back near the hairline.

Nothing would make it go away. There were so many possible scenarios that might

explain how I got an organism on me, into my house, etc. And on top of that, my

husband and I so stupidly

had

>> > not changed our air filter in our house for the last 11 years, not knowing

where it was (near tall 10' ceiling). For years I thought we just happen to have

a filterless central air furnace... :( the humidity in the house was unbearable,

and in the summer!!!! Up to 80% humidity in CA is practically unheard of IN A

HOUSE.

>> > >

>> > >

>> > >Those were some of the things that possibly led up to our infestation. But

from there, the story is like yours. The swarming on the body, getting the

medication Hydroxyzine helped me through this so that at least I could sleep. My

husband was infested too (another difference with you, but HE WAS infested as

badly as I was). I want you to know that eventually things do get better. My

brother and father-in-law paid for our treatment outside of our HMO to see our

LLMD. Thank goodness someone believed us and wanted to help us. We suffered

terribly. We got rid of all we had and lived out of zip lock bags that held

ironed clothing which I washed and steam pressed with my Singer steam press

every day, including all our sheets and all bedding. We slept on an airbed

upstairs on a bedframe from Ikea. Everything was sprayed and wiped down daily.

We had fly paper wrapped around the legs of the bed. I still sometimes had

swarming to feet and face, and did some

>> very

>> > bizarre things like sleep in painter's suits with duct tape around any

entrance. to sleep. It didn't work. Try to get out of it in the middle of the

night when nature calls... or it was so hot in the house I couldn't breath and

had to strip down outside to breath. Anyway, many trials and tribulations to my

story... I too wanted to burn my house down. We stopped going to church too. I

was so glad my daughter lived in Germany with the grandkids as we wanted no one

in our house. I wondered if neighbors had this too, but we said nothing to

anyone. When we had the trucks here to take furniture to the dump I did tell one

neighbor who lives quite a distance away, and she backed away as fast as she

could. We removed all carpets and rugs and replaced flooring downstairs with a

vinyl. The cement was coated with some type of thick glue to keep the vinyl

down. My husband took off the baseboards in the house downstairs and replaced

those, but not until we

totally

>> > sealed off the bottom of the drywall to the floor (there is usually a

large gap between drywall and floor which is covered up by baseboards) with a

thick sticky substance used for sealing out air) to keep anything from getting

to us. He did a great job on the baseboards because he used to do carpentry and

cabinets for a living.

>> > >

>> > >

>> > >I do buy the idea about the military testing. I'm sorry, I do. Something

is definitely going on. Two examples: my son and daughter-in-law came over on

Sunday for Mother's Day brunch. 1) In conversation I found out that my former

husband has scabies (I doubt that it is scabies... I think it is either

birdmites, springtails or this mysterious thing that most of us here have

experienced). He is so stubborn he won't ask for help (he is a very egotistical

sort of attorney). He has his law practice in his home, along with a whole slew

of dogs. He is my son's dad. 2) my daughter-in-law shared that her 60 year old

co-worker has springtails... she has had them for 2 years and still trying to

work while treating herself. She is afraid if her boss found out she has them

she will lose her job. She has all the SAME symptoms we have all had. I told my

daughter-in-law not to hug her or sit in her chair. This poor woman rents an

apt. Landlord has had PCOs come in

>> with

>> > no relief. She really needs to remove all carpeting. This co-worker woman

has CFS and Fibro. So they seem to like most of us who have immune problems

(pre-existing Lyme?). But we know that anyone can get these, even if healthy.

>> > >

>> > >

>> > >Anyway Sharon, my hopes are that these monsters start to recede for you

and you get a real handle on it (it took 10 months for any big differences to be

felt here)... I'm available if you ever want to talk. We finally did discover

the air filter problem and also bought a dehumidifier, ran it 24/7 for about a

year. Treated all drains, continued with all the usual like spraying, cleaning

everything constantly, no clutter anywhere, all plants tossed, we had no

animals, so one less problem there... things are 90% better, but I still get

sensations and occasional bites. So my problem is not 100%.

>> > >

>> > >

>> > >

>> > >

>> > > Post # 1 of the end of my horror

>> > >

>> > >This is an e-mail that I sent to two pastors at my church on May 9th- one

being a PHD of Psychology:

>> > >

>> > >Something happened to me at the end of February that has shaken me to my

core and I need help because of it. I have tried to journal it but will try to

summarize it here.

>> > >

>> > >I am an accountant and was in the midst of a very stressful tax season,

along with lots of stressful family situations.

>> > >

>> > >I woke up one morning with things crawling all over me. It felt like an

army of insects had come over the head of my bed and were swarming my body. I

couldn't see them and I couldn't bathe them off. From that point on there was

nowhere I could lay down in my house. I couldn't take a nap when I was exhausted

and that took it's toll emotionally.

>> > >

>> > >I called three different exterminators. The first two told me it sounded

like bird mites and wanted me to sign a contract so they could start

extermination. I resisted because I needed more information so I googled Bird

Mites and found the site BirdMites.org. There is a link to find an expert in the

field. I applied. The one who came out basically told me " it's all in your

head " . At least that's what I heard at the time. He used his 30x magnifier on

" samples " I'd trapped but couldn't see anything so he gave me an address to send

the samples to the Entomology Dept at the U of FL in Gainesville. I " trapped "

some more from my body on glue boards and sent them off. The results were that

they saw nothing. He also referred me to a woman in Winter Park whose whole

family had been suffering similarly. I called her but her case was quite

different than mine. The whole family was affected and they gave up, disposed of

all their belongings, sold their home

and

>> > moved.

>> > >

>> > >My husband has been working with the folks at DIY Pest Control in Oviedo,

where we have spent a fortune on different treatments. It seems like mites, all

kinds, are rampant and mostly untreatable. The curious thing is that my husband

is not bothered by them. The info on the internet says that frequently they will

pick a host, usually a female, and not bother anyone else in the household. In

fear, I have isolated myself from my family - the worst thing is from my

great-grandchildren who need me to care for them, often. I am in such fear of

infecting others that I have not been to church but once or twice in the first

days since this hit me. If I run to the store and see a friend who wants to hug

I get sick. I avoid anyone I know like the plague.

>> > >

>> > >I made it through tax season but I could barely work with things crawling

on me every moment. It was horrible trying to talk to a client professionally

but feeling like a crazy person feeling things crawling on my neck and face and

wondering if they could see them.

>> > >

>> > >Where did these mites come from? Did I pick them up from somebody? Did I

bring them in with something I bought? Are they from some animal or something in

the yard? They find me wherever I am. I moved from my bed to the sofa bed. I

slept outside in my van a few nights. I bought an air mattress that I moved from

room to room. We even stayed in a hotel for four nights. Each night their

presence on me was increased so much so that on the fourth night I laid in bed

feeling them going into my mouth, nose and ears and asking the Lord to just take

my life. Nothing kept them off me and I rarely got more than two hours sleep a

night. I cannot sleep in my bed which we have sprayed and wrapped in three

layers of painters plastic drop cloth and sealed with packing tape. There were

many occasions at night that I laid there feeling as if they were coming out of

my body because they were just " appearing " without having crawled to get

wherever they were. I have

>> > considered suicide on more than one occasion. I began to believe someone

had put a curse on me.

>> > >

>> > >I have been to my primary care physician 2 times and felt like she didn't

believe me so I changed doctors. She did however give me 2 prescriptions.

Methylprednisone (for 6 days) and Hydroxyzine (to take at bedtime each night).

Can you imagine! The purpose of that medicine is to calm me down enough so that

I can sleep when things crawl on me!

>> > >The first appointment I can get with my new primary care is May 23rd.

>> > >I have been to a walk-in clinic twice. The doctor there seems more

concerned than anyone else I've been to. However, her treatments for Scabies

brought no relief. I guess if you don't know what it is treat for anything. She

referred me to a Dermatologist who travels worldwide on mission trips and has

seen things we don't see here in the US. I have not yet made an effort to see

him.

>> > >I've been to a doctor outside my plan and paid $75 out of pocket to be

told to order some skin cream off the internet. I guess she thought my rough

skin was the cause. I've been bathing in Epsom Salts, Clorox, Lysol, 20 Mule

Team Borax, Dawn Dish Detergent and Arm & Hammer Washing Detergent. Many of

these things were recommended by a person at DIY Pest Control and some of the

like sufferers on a forum I found.

>> > >

>> > >I've been to two different acupuncturists a total of three times and have

some of the worst tasting concoctions anyone could ever imagine. One is treating

for parasites and the other says it's my circulation and nervous system. he gave

me some " relax " herbal pills.

>> > >

>> > >One Saturday morning, after many days of less than two hours sleep on any

night and taking several baths each day and using lice shampoo (sometmes 3x in

one day alone) to get them off my scalp, my husband took me to the ER at 5AM.

They gave me an IV with Ativan and I got about four hours sleep there. They gave

me a prescription for some over the counter allergy pills which I already had in

the cabinet.

>> > >

>> > >Let me add that prior to this I had no health issues and am on no meds. I

resist drugs and believe in the healthy way. To get relief from this I RAN to

the doctor(s), etc begging for help and swallowed everything they suggested and

more.

>> > >

>> > >My husband has been praying for me. Friends I have told have been praying

for me. And, I've been calling out to God, begging, pleading for help. April

21st I put an anonymous prayer request on the church prayer request link.

>> > >

>> > >We paid for a week at the hotel but the fourth night was so horrible we

checked out and returned home. At this time suicide was first and foremost in my

mind. Knowing that we need more help than I've been able to get I called the

exterminator who came out at the beginning of this. He had news for me. He is a

Christian and told me that first and foremost I need to have my church praying

for me. So here I am. Then he told me he has been in this business for many

years, over thirty I believe, and his experience has been that if you can't see

something it isn't there. Then he added " there is always the possibility that

the government has created something to use in warfare, but as yet we don't know

that " . I didn't think that strange because in my search on the internet I had

already seen that as a theory. Then he told me of someone who had called him. A

retired police officer, swat team member. Intelligent, educated, sharp and

analytical. All the

>> qualities

>> > associated with someone in that field. His malady came on the same as

mine, in that it struck in one day. Just as for me, no treatment worked. He was

so stricken that he considered burning his house down. So have I. The end of

that story is that he had experienced an emotional breakdown and St Wort

healed him. Other than that, I have no information. I hope the exterminator will

put us together so I can get more info.

>> > >

>> > >St Wort is one of the things I didn't have on my counter so I ran to

Whole Foods and bought what appears to be the best St Wort on their shelf

and began taking it immediately. I don't doubt that I had an emotional breakdown

because of all the pressure on me at that time. It all makes sense now but I

rejected that theory until yesterday.

>> > >

>> > >I also went to Home Depot and bought wide double sided tape. I came home

and cleaned the top of my mattress, already wrapped in three layers of painter's

drop cloth and sealed with packing tape, vacuumed both the mattress and the air

mattress, sprayed them both down with Lysol and then made a border on both with

the very sticky double sided tape. I washed my pillow in Arm & Hammer laundry

soap and a little Ammonia. It was dry at 1:30 AM and everything was ready

Nothing was going to crawl on me that night! I went to bed crying because I

could no longer sleep in my nice fluffy bed with crisp sheets and a down

comforter. Now, my bed is a vinyl air mattress with no sheet and very sticky

double sided tape around it. I sleep covered with a Queen size flat sheet folded

in half crosswise and am always fearful that it will droop off the side and

allow the mites to crawl up that way. Last night there was no chance at all of

that happening because I was

double

>> > protected by the tape on the air mattress and the outside border of the

mattress on my bed.

>> > >

>> > >At 4:30 I woke up with things crawling all over me from the soles of my

feet to my scalp. I quickly jumped up and ran to get the black light the

exterminator had told me to use. Shining it in the dark will reveal anything

that is there. I checked the vinyl air mattress from top to bottom, I saw lots

of white specks but none of them were moving. I used a very big magnifier that I

use for my sewing and crafts to see better. Nothing moving. Then I took the

light and looked into my 10x mirror in my bathroom, at spots on my face, chest

and body that I felt the crawling. Nothing! Then I knew that the exterminator

had to be right. I can't tell you how much that calmed me, really calmed me. I

went back to bed and right to sleep and slept till 9AM when the phone woke me

up.

>> > >

>> > >I know it's far from over and I need help to get over this and make sure

it never happens again. I feel that crawling all day and night and I have been

reluctant to call for help because I believed I was infested with mites and was

fearful of infecting people with whom I came in contact. I don't know what help

to ask for other than prayer. If there really is something then our home needs

to be anointed and prayed over. Since the first day only a little over two

months ago, this has cost us close to $3,000 in co-pays, out of network doctors

and meds, etc, every kind of herbal thing from Leaves & Roots you could ever

imagine, cleaning supplies I don't ordinarily use, pesticides and equipment and

on and on and on. And the work has been beyond exhausting. Spraying, scrubbing,

cleaning, steaming, washing every item that I touched even one time. I really

want my life back.

>> > >

>> > >Sharon

>> > >

>> > >I will post what followed tomorrow.

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >------------------------------------

>> > >

>> > >

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