Terry

[Guest guest]

Hi everyone. I can't tell you how thankful I am to have found this sight....As I read more and more of your messages, I am so inspired. Each of you are so kind, thoughful and supportive. I haven't been able to be on-line very much in the past and when I came across your site yesterday I signed up right away. I've been on twice today (very unusual , but you all make such a difference. It saddends me when I hear so many suffering, but you all sound so positive and encouraging of each other....thank you...thank you. Alice

[Guest guest]

Hi Terry....you're absolutely right....this group is for support, venting, info,

whatever. I didn't mean to make my response sound so stuffy. I'm 51 and have

lost all my entire immediate family except for my son. My parents had me when

my brother was 17....he died first in a car accident at 38, then my Dad in 79,

and my Mom in 1992. I can't even imagine the pain you must have went through

losing your son, and an infant...they say that's the most traumatic thing to go

through and I believe that without a doubt. I also lost 2 close friends in the

same year. I sometimes wonder why I'm still around. And of course we should

seek help from doctors or whoever. My Mom was actually a victim of malpractice

but I was too blind to see it at the time and didn't do anything about it. She

got breast cancer when she was about 53....had a mastectomy and did the

chemo....went into remission and then had a lump on her neck that the cancer

clinic ingnored for ages, saying it wasn't cancer. If I could only turn back

time I'd sure do something about that. Another surgery and another round of

chemo and another remission. Then the lump came back when she was 74 and said

she didn't want to go through it all again so I respected her decision, she died

at the age of 75.

Terry, I wish you the best and there is no reason on earth to suffer in silence,

I just meant my Mom could withstand a lot of pain....she didn't even go on

morphine until she was hospitalized and she died 2 days later. I wish I was as

brave as she was....although I can handle a lot of pain too....but if I could

find a magic solution, believe me I'd take it LOL. I hope a magic solution

comes for you and takes the pain away....I'll be praying for you.

Huggggs

Carol

Re: hepatitis and headaches

Hi Carol,

I feel that I have tolerated immense pain in my life without

complaining, but isn't that what this group is for? Is it not about support

and

information for people who have hepatitis c? How can I get that if I don't

say what

is wrong with me. I am 59 years old, lost a 22 year old son, and an infant,

and have other health problems which I won't go into. The pain of those

deaths

was and is overwhelming. I don't see anything wrong with seeking help from

the doctors for my physical problems when help is available. Suffering in

silence seems to be without benefit of any kind. I don't know how old you

are

but the knowledge and drugs were probably not there yet when your mother

needed

them. Thanks for any help you and this group can give me. Terry

[Guest guest]

Terry maybe folks in Arizona are waiting for the big earthquake when California sinks into the ocean leaving "oceanfront property in Arizona....." lol. BobTerry Long <pawpawto3@...> wrote:

Not many know this, Phoenix here in the desert. We have more boats per capata. Then anywhere eles in the US. The guy next door has 2. He keeps one here & the other at a lake north of here. TerryDave <dhz920@...> wrote:

I still haven't entirely explained my second boat!! I bought one a couple of years ago, and it really wasn't what I wanted (but the price was right). It's a 60 horse with a windshield and steering wheel. I really just want a fishing boat. When my cousin sold his boat, he gave my brother and I first shot at it since we had borrowed it several times, and we tried to make little improvements each time. We were going to go in on it, but my brother had just started a new job and apparently his wife didn't approve the purchase. Long story short my wife still thinks he and I are buying it together and since he hauled it up north from Milwaukee for our vacation, I hauled it back and I now have two boats in the driveway!!! I'm going to sell the bigger one, but until then... -dz-Terry Long <pawpawto3@...> wrote:

I would love one. But Susy would most likely divorce me over Terryrick martin <r_martin85@...> wrote:

anyone want to buy a nice 34 ford truck with 350 chevy motor?

RickDave <dhz920@...> wrote:

Hi guys, back from vacation and trying to get back into the working mode... I remember my friend Jeff, he was the first among us to turn 16, had a '64 Impala convertible, 327, in short a BABE-MOBILE!!! Plus, the back seat could be pushed out from inside the trunk for discount drive-in movies... Anyway, had a great vacation and misse ya'all. Now I suppose Jan will chastise me for using the apostrophe in yall.... -dz-

Date: Sat, 24 Jul 2004 11:45:37 -0700 (PDT)From: Terry Long Subject: Re: hey, everyone!I liked the 1963 through 1969 Impala's. When I was in high school. My Dad had a 1968. Did you all restore the two cars or have them restored? If I had the money, I would love to have a 1964 SS Impala with a327 motor & an auto in the floor. But I don't, so I just dream. Terryangel wrote:Terry, 's Impala is a 1966 and we also have the same, and a third one is for parts. guess it shows what we like, huh?Sue and gidget

Do you ?Take with you! Get it on your mobile phone.

Do you ? - 50x more storage than other providers!

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[Guest guest]

Maybe, we do have several man maid lakes with in a short drive. But lately the water levals are way down. TerryBob <mellowcargo2003@...> wrote:

Terry maybe folks in Arizona are waiting for the big earthquake when California sinks into the ocean leaving "oceanfront property in Arizona....." lol. BobTerry Long <pawpawto3@...> wrote:

Not many know this, Phoenix here in the desert. We have more boats per capata. Then anywhere eles in the US. The guy next door has 2. He keeps one here & the other at a lake north of here. TerryDave <dhz920@...> wrote:

I still haven't entirely explained my second boat!! I bought one a couple of years ago, and it really wasn't what I wanted (but the price was right). It's a 60 horse with a windshield and steering wheel. I really just want a fishing boat. When my cousin sold his boat, he gave my brother and I first shot at it since we had borrowed it several times, and we tried to make little improvements each time. We were going to go in on it, but my brother had just started a new job and apparently his wife didn't approve the purchase. Long story short my wife still thinks he and I are buying it together and since he hauled it up north from Milwaukee for our vacation, I hauled it back and I now have two boats in the driveway!!! I'm going to sell the bigger one, but until then... -dz-Terry Long <pawpawto3@...> wrote:

I would love one. But Susy would most likely divorce me over Terryrick martin <r_martin85@...> wrote:

anyone want to buy a nice 34 ford truck with 350 chevy motor?

RickDave <dhz920@...> wrote:

Hi guys, back from vacation and trying to get back into the working mode... I remember my friend Jeff, he was the first among us to turn 16, had a '64 Impala convertible, 327, in short a BABE-MOBILE!!! Plus, the back seat could be pushed out from inside the trunk for discount drive-in movies... Anyway, had a great vacation and misse ya'all. Now I suppose Jan will chastise me for using the apostrophe in yall.... -dz-

Date: Sat, 24 Jul 2004 11:45:37 -0700 (PDT)From: Terry Long Subject: Re: hey, everyone!I liked the 1963 through 1969 Impala's. When I was in high school. My Dad had a 1968. Did you all restore the two cars or have them restored? If I had the money, I would love to have a 1964 SS Impala with a327 motor & an auto in the floor. But I don't, so I just dream. Terryangel wrote:Terry, 's Impala is a 1966 and we also have the same, and a third one is for parts. guess it shows what we like, huh?Sue and gidget

Do you ?Take with you! Get it on your mobile phone.

Do you ? - 50x more storage than other providers!

Do you ?New and Improved - Send 10MB messages!

__________________________________________________

[Guest guest]

The last time I drove thru Arizona, we choose our sleep over in s Lake, thinking they had a lake. Coming from the north east and driving all that way thru the desert we were looking forward to some water. Only to find out there was no lake and everyone knew we weren't from there. LOL

Re: hey, everyone!I liked the 1963 through 1969 Impala's. When I was in high school. My Dad had a 1968. Did you all restore the two cars or have them restored? If I had the money, I would love to have a 1964 SS Impala with a327 motor & an auto in the floor. But I don't, so I just dream. Terryangel wrote:Terry, 's Impala is a 1966 and we also have the same, and a third one is for parts. guess it shows what we like, huh?Sue and gidget

Do you ?Take with you! Get it on your mobile phone.

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__________________________________________________

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Most of our so called river's are dry river beds are dry for the most part, in the southern part . They dam the rivers up north so we can have the badly needed water year round. But the last several years we havint had our normal snow fall & rain. TerryLynne@... wrote:

The last time I drove thru Arizona, we choose our sleep over in s Lake, thinking they had a lake. Coming from the north east and driving all that way thru the desert we were looking forward to some water. Only to find out there was no lake and everyone knew we weren't from there. LOL

Re: hey, everyone!I liked the 1963 through 1969 Impala's. When I was in high school. My Dad had a 1968. Did you all restore the two cars or have them restored? If I had the money, I would love to have a 1964 SS Impala with a327 motor & an auto in the floor. But I don't, so I just dream. Terryangel wrote:Terry, 's Impala is a 1966 and we also have the same, and a third one is for parts. guess it shows what we like, huh?Sue and gidget

Do you ?Take with you! Get it on your mobile phone.

Do you ? - 50x more storage than other providers!

Do you ?New and Improved - Send 10MB messages!

__________________________________________________

[Guest guest]

My panic attacks started after my mom died too. I had never had them

before, though, although I get depressed easily. I just hate this

and it seems so hard to focus on anything but the panic attacks. I

worry about my heart alot, because I ended up in the emergency room

thinking I was having a heart attack, and I just can't seem to get

past that. I hope the Lexapro helps.

Kathy

I was off

> the Serzone for almost 2 years and still doing well up until my mom

> died and then my panic and anxiety all flooded back. Now I'm in a

> horrendous spot with it. I have become borderline agoraphobic

> myself. I still work but I have panic attacks at work often. I

> probably didn't give Xanax a fair chance but it just seemed too

> strong compared to the Ativan. Maybe I'd like it more now. It

> seemed to take about 45 mins to kick in and then it was very

suddenly

> and then it wore off very suddenly about 3 or 4 hours later and I

> woke up panicking again. That doesn't happen with Ativan. It's

more

> mild when it comes on and leaves if that makes any sense. Love

> Charisse

[Guest guest]

In a message dated 8/25/04 5:20:46 AM Mountain Daylight Time,

SSRI medications writes:

> I (Terry) am a grant writer and results-oriented management specialist in

> the nonprofit sector and have decided that we either have to give up and go in

> to be " zombie-ized " like good little children or unite to fight this fight.

> To that end, I have decided to apply for nonprofit status to form a new

> initiative to inform the public of what is going on and provide proactive

> representation for those facing " coercion " . Screw the mainstream media -

they're a

> huge part of the problem - sell outs.

Soldier on! We're right behind you. This needs to be done. Have you

checked out Rob 's non-profit site??? www.ssricitizen.org. If you've

got

a PayPal account, I'd be happy to make a small contribution to your start-up

costs. If each of us on this group donated $5.00 -- or even $1.00 -- you'd

have that money in no time. I'll make the first donation. Who else is

in???????

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

[Guest guest]

In a message dated 8/25/04 5:20:46 AM Mountain Daylight Time,

SSRI medications writes:

> I (Terry) am a grant writer and results-oriented management specialist in

> the nonprofit sector and have decided that we either have to give up and go in

> to be " zombie-ized " like good little children or unite to fight this fight.

> To that end, I have decided to apply for nonprofit status to form a new

> initiative to inform the public of what is going on and provide proactive

> representation for those facing " coercion " . Screw the mainstream media -

they're a

> huge part of the problem - sell outs.

Soldier on! We're right behind you. This needs to be done. Have you

checked out Rob 's non-profit site??? www.ssricitizen.org. If you've

got

a PayPal account, I'd be happy to make a small contribution to your start-up

costs. If each of us on this group donated $5.00 -- or even $1.00 -- you'd

have that money in no time. I'll make the first donation. Who else is

in???????

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

[Guest guest]

In a message dated 9/23/05 10:55:25 AM Mountain Daylight Time,

SSRI medications writes:

> A couple of nights later he was pissed at the world and everything was

> everyone else's fault. Then came the realization and revelations of his

> nightmares and thoughts of killing us.

Yes, the signs are clear. That's why I said GET AWAY! The worst is yet to

come. Maybe it won't come, but we all know that it's a possibility. thank you

for sharing.

" All the truth in the world adds up to one big lie. "

~ Bob Dylan ~

[Guest guest]

In a message dated 9/23/05 10:55:25 AM Mountain Daylight Time,

SSRI medications writes:

> A couple of nights later he was pissed at the world and everything was

> everyone else's fault. Then came the realization and revelations of his

> nightmares and thoughts of killing us.

Yes, the signs are clear. That's why I said GET AWAY! The worst is yet to

come. Maybe it won't come, but we all know that it's a possibility. thank you

for sharing.

" All the truth in the world adds up to one big lie. "

~ Bob Dylan ~

[Guest guest]

In a message dated 9/29/05 1:57:43 PM Mountain Daylight Time,

SSRI medications writes:

> To quote the great ex-patriate Glitter - pffffffft!!!!!

>

You crack me up! It's an honor to have you quote me!!! LOL I've been

dreaming of being an expat since I was 8 and wanted to move to Russia. At least

I

found a spot that hasn't been totally polluted by psychiatric drugs. . . yet.

There is an advantage to moving to a poor country.

Blind Reason

A novel of pharmaceutical intrigue

Think your antidepressant is safe?

Think again.

" All the truth in the world adds up to one big lie. "

~ Bob Dylan ~

[Guest guest]

Hi Carolyn,

I have called , hopefully I can get an appointment soonish. I'm

just scared of everyone at UCSF putting me into a " trouble patient "

category and then no one wanting to touch me. Don't want to get

on the bad side of anyone that might be operating at you at some

point...

I have not seen a nutritionist. I think I haven't been producing

much acid at all since going on high dose PPIs. After surgery I was

off PPIs for about a week, but then the volume and painfulness of the

reflux go to be too much and I went back on. It was still not very

acidic at that point. I think my body takes a loooong time to get

rid of medication. The only thing I have found so far is that fat of

course makes it worse (makes bile, when then seems to backflow and

hurts my stomach, esophagus and everything above).

Terry

> > > > >

> > > > > Hi Everyone,

> > > > >

> > > > > I'm new here. I had a Nissen Fundoplication (full wrap) at

> the

> > > end of

> > > > > January of this year. Since then I have had continued

> problems

> > > with

> > > > > swallowing. I also have been getting reflux, both from

things

> > > that

> > > > > haven't made it out of my esophagus to my stomach yet, and

> > stuff

> > > from

> > > > > my stomach. One of the manometry tests I have had since the

> > > surgery

> > > > > indicates I have achalasia (another one showed I have some

> > > disorder,

> > > > > but not enough to diagnose achalasia). Numerous barium

> swallows

> > > have

> > > > > showed delayed emptying of the esophagus and tendency to

pool

> > > the

> > > > > contents high in the esophagus (I have 24 hour a day

symptoms

> > of

> > > > > regurgitation, reflux in throat/nose/airway/etc.). The

reflux

> > > symptoms

> > > > > have completely ruined my quality of life, I am not able to

> > > function

> > > > > properly at all anymore. I am at the end of my rope.

> > > > >

> > > > > One surgeon has recommeded I get a myotomy, based on the

> > > achalasia

> > > > > diagnosis. Has anyone heard of ever having a myotomy AFTER

a

> > > > > fundoplication? At this point, I am not even considering

this

> > > option.

> > > > > I would perhaps consider a take-down of the fundoplication,

> but

> > > not a

> > > > > myotomy. I have had one small dilation that did not seem to

> do

> > > much at

> > > > > all.

> > > > >

> > > > > Thanks for any help,

> > > > > Terry

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Dear Terry,

The only benefit about having a motility disorder, whether difficult GERD or achalasia is that you are NOT a trouble patient. The doctors LOVE us. We aren't cancerous. We are complicated, and they learn a lot from us and great examples for their students, but we are few and far between. We are a prize catch to their resumes (or whatever they call them). You will find most gi's or esophageal surgeons will take your calls immediately, return your calls and move other patients around to get us. We are a status symbol, in their world. You basically are a prize trophy and they are in competition to get you. So don't ever worry that you are a trouble patient. (Unless you have an HMO... but even then with the right diagnosis, patients move to the top of the pile of doctors.)

Sooooo... puff your chest out, flex your muscles and take a deep breath, you are very valuable to their practice and they should treat you like that. They are lucky if you decide to go to them for treatment. Really, really. Not bluffing about it.

Nowww...... having said that, we should take that attitude even if it is a relatively simple thing like gall bladder surgery, but that isn't the way it is. But I act like that now with other doctors. (Okay, that is a bluff.)

Sandy in So Cal

> > > > > >> > > > > > Hi Everyone,> > > > > > > > > > > > I'm new here. I had a Nissen Fundoplication (full wrap) at > > the > > > > end of > > > > > > January of this year. Since then I have had continued > > problems > > > > with > > > > > > swallowing. I also have been getting reflux, both from > things > > > > that > > > > > > haven't made it out of my esophagus to my stomach yet, and > > > stuff > > > > from > > > > > > my stomach. One of the manometry tests I have had since the > > > > surgery > > > > > > indicates I have achalasia (another one showed I have some > > > > disorder, > > > > > > but not enough to diagnose achalasia). Numerous barium > > swallows > > > > have > > > > > > showed delayed emptying of the esophagus and tendency to > pool > > > > the > > > > > > contents high in the esophagus (I have 24 hour a day > symptoms > > > of > > > > > > regurgitation, reflux in throat/nose/airway/etc.). The > reflux > > > > symptoms > > > > > > have completely ruined my quality of life, I am not able to > > > > function > > > > > > properly at all anymore. I am at the end of my rope.> > > > > > > > > > > > One surgeon has recommeded I get a myotomy, based on the > > > > achalasia > > > > > > diagnosis. Has anyone heard of ever having a myotomy AFTER > a > > > > > > fundoplication? At this point, I am not even considering > this > > > > option. > > > > > > I would perhaps consider a take-down of the fundoplication, > > but > > > > not a > > > > > > myotomy. I have had one small dilation that did not seem to > > do > > > > much at > > > > > > all.> > > > > > > > > > > > Thanks for any help,> > > > > > Terry> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

Hi Sandy,

Really, doctors like motility disorders? I would have thought they

might find them unglamorous and not very rewarding, since it is

usually not some immediate life or death type of situation (just

quality of life and slow destruction). And they are often very

complicated and frustrating with patients that are often anxious

because the condition can really disrupt your whole life day in and

day out. I'll try to be more proud next time I see a doctor about

it.

Terry

> > > > > > >

> > > > > > > Hi Everyone,

> > > > > > >

> > > > > > > I'm new here. I had a Nissen Fundoplication (full wrap)

at

> > > the

> > > > > end of

> > > > > > > January of this year. Since then I have had continued

> > > problems

> > > > > with

> > > > > > > swallowing. I also have been getting reflux, both from

> > things

> > > > > that

> > > > > > > haven't made it out of my esophagus to my stomach yet,

and

> > > > stuff

> > > > > from

> > > > > > > my stomach. One of the manometry tests I have had since

the

> > > > > surgery

> > > > > > > indicates I have achalasia (another one showed I have

some

> > > > > disorder,

> > > > > > > but not enough to diagnose achalasia). Numerous barium

> > > swallows

> > > > > have

> > > > > > > showed delayed emptying of the esophagus and tendency to

> > pool

> > > > > the

> > > > > > > contents high in the esophagus (I have 24 hour a day

> > symptoms

> > > > of

> > > > > > > regurgitation, reflux in throat/nose/airway/etc.). The

> > reflux

> > > > > symptoms

> > > > > > > have completely ruined my quality of life, I am not

able to

> > > > > function

> > > > > > > properly at all anymore. I am at the end of my rope.

> > > > > > >

> > > > > > > One surgeon has recommeded I get a myotomy, based on the

> > > > > achalasia

> > > > > > > diagnosis. Has anyone heard of ever having a myotomy

AFTER

> > a

> > > > > > > fundoplication? At this point, I am not even considering

> > this

> > > > > option.

> > > > > > > I would perhaps consider a take-down of the

fundoplication,

> > > but

> > > > > not a

> > > > > > > myotomy. I have had one small dilation that did not

seem to

> > > do

> > > > > much at

> > > > > > > all.

> > > > > > >

> > > > > > > Thanks for any help,

> > > > > > > Terry

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Maybe I'm fooling myself, but I choose to live in my fantasy, I guess. Imagine the satisfaction if a patient comes to a doctor with dreadful quality of their food life, weight loss, misdiagnosis by skilled doctors, possibly for years, and they are able to turn our lives around and drastically change our quality of eating. Many of us have suffered for years before seeing them. Our private lives and careers have suffered and I just have to believe it is very satisfying to treat us. In my surgeon's waiting room were cancer patients and many of they probably opted for no treatment and soon died. I have to believe we are "fun" patients.

They receive acclaim and recognition if they treat enough of us to have a true study. We are rare so it is hard to attract us. Really how many of us are going to have surgery w/ a surgeon who has only done a few. (Sadly a few will, but in this group we discourage that.)

Most of us aren't old enough to have developed a lot of other health issues so surgery is usually a valid option. I think most of us do get better with treatment. A few get only brief relief, but most do get long term relief. I have to believe it is satisfying to a doctor/surgeon when we come back with weight gain, a big reduction in stress and frustration and hopefully our careers back on track.

Sooooo when you go into a doctor's office that is experienced in achalasia, you are giving them the opportunity to do something that is very specialized and rare, will give them recognition, and is very satisfying to their egos and heart, if their hearts are still soft. So you are the 5 carat diamond ring and they should kiss your feet. You represent to them all the good rewards for being a doctor.

I saw joy in my doctor's face when I came back for my checkups after surgery. Not quite realizing not as many people did as well as I did after surgery until I was in this group longer. I left the waiting room where people mostly had lung cancer and emphysema.. I just have to believe I was a more "fun" patient.

That isn't to say treating a gall bladder isn't rewarding, or a gun shot victim that survives, but we are rare so I've convinced myself it is a privilege for doctors to treat me. That's my story and I'm sticking to it.

Sandy in So Cal.... Guess I have to go back and do something with the kids going wild in the background throwing beanie babies, torturing the dogs and cat and spilling things. I've been ignoring them... now I hear about flushing things down the toilet so the fear of plumbers will get me going..... oh crap.... now they have run out the door and down the street and I'll never find them. And Monday is a holiday.... sigh.....

> > > > > > > >> > > > > > > > Hi Everyone,> > > > > > > >> > > > > > > > I'm new here. I had a Nissen Fundoplication (full wrap) > at> > > > the> > > > > > end of> > > > > > > > January of this year. Since then I have had continued> > > > problems> > > > > > with> > > > > > > > swallowing. I also have been getting reflux, both from> > > things> > > > > > that> > > > > > > > haven't made it out of my esophagus to my stomach yet, > and> > > > > stuff> > > > > > from> > > > > > > > my stomach. One of the manometry tests I have had since > the> > > > > > surgery> > > > > > > > indicates I have achalasia (another one showed I have > some> > > > > > disorder,> > > > > > > > but not enough to diagnose achalasia). Numerous barium> > > > swallows> > > > > > have> > > > > > > > showed delayed emptying of the esophagus and tendency to> > > pool> > > > > > the> > > > > > > > contents high in the esophagus (I have 24 hour a day> > > symptoms> > > > > of> > > > > > > > regurgitation, reflux in throat/nose/airway/etc.). The> > > reflux> > > > > > symptoms> > > > > > > > have completely ruined my quality of life, I am not > able to> > > > > > function> > > > > > > > properly at all anymore. I am at the end of my rope.> > > > > > > >> > > > > > > > One surgeon has recommeded I get a myotomy, based on the> > > > > > achalasia> > > > > > > > diagnosis. Has anyone heard of ever having a myotomy > AFTER> > > a> > > > > > > > fundoplication? At this point, I am not even considering> > > this> > > > > > option.> > > > > > > > I would perhaps consider a take-down of the > fundoplication,> > > > but> > > > > > not a> > > > > > > > myotomy. I have had one small dilation that did not > seem to> > > > do> > > > > > much at> > > > > > > > all.> > > > > > > >> > > > > > > > Thanks for any help,> > > > > > > > Terry> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >

[Guest guest]

Hi Sandy,

What you say makes a lot of sense. You have a great attitude.

Since my achalasia is probably being brought on by the fundo, maybe

it won't be quite so interesting to them, but who knows. Perhaps

some doctors can get papers and studies out of us... I do see how if

they can markedly improve someone's quality of life, that that can

ban be extremely rewarding. I remember my doctor(s) looking quite

disappointed when after my fundo I was still suffering (one even

remarked at how he expected to come into the hospital room and find

me happy, relieved and thankful).

Terry

> > > > > > > > >

> > > > > > > > > Hi Everyone,

> > > > > > > > >

> > > > > > > > > I'm new here. I had a Nissen Fundoplication (full

wrap)

> > at

> > > > > the

> > > > > > > end of

> > > > > > > > > January of this year. Since then I have had

continued

> > > > > problems

> > > > > > > with

> > > > > > > > > swallowing. I also have been getting reflux, both

from

> > > > things

> > > > > > > that

> > > > > > > > > haven't made it out of my esophagus to my stomach

yet,

> > and

> > > > > > stuff

> > > > > > > from

> > > > > > > > > my stomach. One of the manometry tests I have had

since

> > the

> > > > > > > surgery

> > > > > > > > > indicates I have achalasia (another one showed I

have

> > some

> > > > > > > disorder,

> > > > > > > > > but not enough to diagnose achalasia). Numerous

barium

> > > > > swallows

> > > > > > > have

> > > > > > > > > showed delayed emptying of the esophagus and

tendency to

> > > > pool

> > > > > > > the

> > > > > > > > > contents high in the esophagus (I have 24 hour a day

> > > > symptoms

> > > > > > of

> > > > > > > > > regurgitation, reflux in throat/nose/airway/etc.).

The

> > > > reflux

> > > > > > > symptoms

> > > > > > > > > have completely ruined my quality of life, I am not

> > able to

> > > > > > > function

> > > > > > > > > properly at all anymore. I am at the end of my rope.

> > > > > > > > >

> > > > > > > > > One surgeon has recommeded I get a myotomy, based

on the

> > > > > > > achalasia

> > > > > > > > > diagnosis. Has anyone heard of ever having a myotomy

> > AFTER

> > > > a

> > > > > > > > > fundoplication? At this point, I am not even

considering

> > > > this

> > > > > > > option.

> > > > > > > > > I would perhaps consider a take-down of the

> > fundoplication,

> > > > > but

> > > > > > > not a

> > > > > > > > > myotomy. I have had one small dilation that did not

> > seem to

> > > > > do

> > > > > > > much at

> > > > > > > > > all.

> > > > > > > > >

> > > > > > > > > Thanks for any help,

> > > > > > > > > Terry

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

Dear Terry,

Thank you for the compliment. I rattle on often and don't often hear that I make sense.

Somewhere you mentioned the tests. The expertise of the people taking the tests is a huge factor. The manometry test requires skill and knowledge of the esophagus. If you weren't at a facility that is experienced w/ achalasia or other motility disorders I wouldn't rely on the tests that much unless they were done in the facility where an experienced gi and surgeon oversee the results. Many of us were initially diagnosed with hiatal hernias because of an endoscope. Even when that test was done by a skilled gi dr.

Back to my favorite topic, sewing on Brownie patches.... they may have a sewing machine but not know how to use all the stitches.

I can imagine your doctors were disappointed when you didn't feel immediately better. I really think many doctors thrive for that successful rush they must get when a patient is better.

Good luck w/ your search.... Chest out.... empowered..... forceful with proper respect, deep voice, all that stuff. Notebook in hand because we are all too scared to remember what they say.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

Again, this is my favorite medical website. Search for fundo and gerd and achalasia and you will be better informed than 99% of the gi doctors.

Sandy in So Cal..... Nominated and accepted as next year's official patch sewer-on for the Brownie troop. (Girls were walking around w/ patches pinned on, falling off, missing..... couldn't stand it, aren't patches the whole idea of Brownies?) Better than being in charge of cookie sales.

> > > > > > > > > >> > > > > > > > > > Hi Everyone,> > > > > > > > > >> > > > > > > > > > I'm new here. I had a Nissen Fundoplication (full > wrap)> > > at> > > > > > the> > > > > > > > end of> > > > > > > > > > January of this year. Since then I have had > continued> > > > > > problems> > > > > > > > with> > > > > > > > > > swallowing. I also have been getting reflux, both > from> > > > > things> > > > > > > > that> > > > > > > > > > haven't made it out of my esophagus to my stomach > yet,> > > and> > > > > > > stuff> > > > > > > > from> > > > > > > > > > my stomach. One of the manometry tests I have had > since> > > the> > > > > > > > surgery> > > > > > > > > > indicates I have achalasia (another one showed I > have> > > some> > > > > > > > disorder,> > > > > > > > > > but not enough to diagnose achalasia). Numerous > barium> > > > > > swallows> > > > > > > > have> > > > > > > > > > showed delayed emptying of the esophagus and > tendency to> > > > > pool> > > > > > > > the> > > > > > > > > > contents high in the esophagus (I have 24 hour a day> > > > > symptoms> > > > > > > of> > > > > > > > > > regurgitation, reflux in throat/nose/airway/etc.). > The> > > > > reflux> > > > > > > > symptoms> > > > > > > > > > have completely ruined my quality of life, I am not> > > able to> > > > > > > > function> > > > > > > > > > properly at all anymore. I am at the end of my rope.> > > > > > > > > >> > > > > > > > > > One surgeon has recommeded I get a myotomy, based > on the> > > > > > > > achalasia> > > > > > > > > > diagnosis. Has anyone heard of ever having a myotomy> > > AFTER> > > > > a> > > > > > > > > > fundoplication? At this point, I am not even > considering> > > > > this> > > > > > > > option.> > > > > > > > > > I would perhaps consider a take-down of the> > > fundoplication,> > > > > > but> > > > > > > > not a> > > > > > > > > > myotomy. I have had one small dilation that did not> > > seem to> > > > > > do> > > > > > > > much at> > > > > > > > > > all.> > > > > > > > > >> > > > > > > > > > Thanks for any help,> > > > > > > > > > Terry> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >

[Guest guest]

Hello nrtl888@...,

In reference to your comment:

if they had to live in our bodies for a day, they would probably stop saying it's just in our heads and/or that we are just hypersensitive

I agree Terry. It's a shame that all doctors can't at least

for a day live the disease they are treating at the worst

stage. We'd have a lot more caring doctors.

Maggie

Alabama

[Guest guest]

Sandy, let's clarify, shall we? Competent doctors like to study motiity

disorders,the

incompetent ones tell us it is in our heads and we have too much stress and to

just get

over it because they don't know what to do.

Peggy, who was traumatized by an incompetent GI before puffing out her chest at

Sandy's

prompting.

> > > > > > > >

> > > > > > > > Hi Everyone,

> > > > > > > >

> > > > > > > > I'm new here. I had a Nissen Fundoplication (full wrap)

> at

> > > > the

> > > > > > end of

> > > > > > > > January of this year. Since then I have had continued

> > > > problems

> > > > > > with

> > > > > > > > swallowing. I also have been getting reflux, both from

> > > things

> > > > > > that

> > > > > > > > haven't made it out of my esophagus to my stomach yet,

> and

> > > > > stuff

> > > > > > from

> > > > > > > > my stomach. One of the manometry tests I have had since

> the

> > > > > > surgery

> > > > > > > > indicates I have achalasia (another one showed I have

> some

> > > > > > disorder,

> > > > > > > > but not enough to diagnose achalasia). Numerous barium

> > > > swallows

> > > > > > have

> > > > > > > > showed delayed emptying of the esophagus and tendency to

> > > pool

> > > > > > the

> > > > > > > > contents high in the esophagus (I have 24 hour a day

> > > symptoms

> > > > > of

> > > > > > > > regurgitation, reflux in throat/nose/airway/etc.). The

> > > reflux

> > > > > > symptoms

> > > > > > > > have completely ruined my quality of life, I am not

> able to

> > > > > > function

> > > > > > > > properly at all anymore. I am at the end of my rope.

> > > > > > > >

> > > > > > > > One surgeon has recommeded I get a myotomy, based on the

> > > > > > achalasia

> > > > > > > > diagnosis. Has anyone heard of ever having a myotomy

> AFTER

> > > a

> > > > > > > > fundoplication? At this point, I am not even considering

> > > this

> > > > > > option.

> > > > > > > > I would perhaps consider a take-down of the

> fundoplication,

> > > > but

> > > > > > not a

> > > > > > > > myotomy. I have had one small dilation that did not

> seem to

> > > > do

> > > > > > much at

> > > > > > > > all.

> > > > > > > >

> > > > > > > > Thanks for any help,

> > > > > > > > Terry

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

I've also come across the doctors that acknowledge there is a

motility disorder, but then want to treat it with " it's in your head "

medications... (I think the word " hypersensitivity " was used -- if

they had to live in our bodies for a day, they would probably stop

saying it's just in our heads and/or that we are just hypersensitive).

Terry

> > > > > > > > >

> > > > > > > > > Hi Everyone,

> > > > > > > > >

> > > > > > > > > I'm new here. I had a Nissen Fundoplication (full

wrap)

> > at

> > > > > the

> > > > > > > end of

> > > > > > > > > January of this year. Since then I have had

continued

> > > > > problems

> > > > > > > with

> > > > > > > > > swallowing. I also have been getting reflux, both

from

> > > > things

> > > > > > > that

> > > > > > > > > haven't made it out of my esophagus to my stomach

yet,

> > and

> > > > > > stuff

> > > > > > > from

> > > > > > > > > my stomach. One of the manometry tests I have had

since

> > the

> > > > > > > surgery

> > > > > > > > > indicates I have achalasia (another one showed I

have

> > some

> > > > > > > disorder,

> > > > > > > > > but not enough to diagnose achalasia). Numerous

barium

> > > > > swallows

> > > > > > > have

> > > > > > > > > showed delayed emptying of the esophagus and

tendency to

> > > > pool

> > > > > > > the

> > > > > > > > > contents high in the esophagus (I have 24 hour a day

> > > > symptoms

> > > > > > of

> > > > > > > > > regurgitation, reflux in throat/nose/airway/etc.).

The

> > > > reflux

> > > > > > > symptoms

> > > > > > > > > have completely ruined my quality of life, I am not

> > able to

> > > > > > > function

> > > > > > > > > properly at all anymore. I am at the end of my rope.

> > > > > > > > >

> > > > > > > > > One surgeon has recommeded I get a myotomy, based

on the

> > > > > > > achalasia

> > > > > > > > > diagnosis. Has anyone heard of ever having a

myotomy

> > AFTER

> > > > a

> > > > > > > > > fundoplication? At this point, I am not even

considering

> > > > this

> > > > > > > option.

> > > > > > > > > I would perhaps consider a take-down of the

> > fundoplication,

> > > > > but

> > > > > > > not a

> > > > > > > > > myotomy. I have had one small dilation that did not

> > seem to

> > > > > do

> > > > > > > much at

> > > > > > > > > all.

> > > > > > > > >

> > > > > > > > > Thanks for any help,

> > > > > > > > > Terry

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

Terry after reading on I see that your response was to an old one from

Jan!!! My messages are all messed up! Sorry about that. Like Jan said I

have to get back in here and make you and DZ to mind your P's & Q's. I

know you missed jan and I carrying on in here... Are you ready for

us... Ans I am sure Sharon will be on the bandwagon!!!

[Guest guest]

Heck I dunno if they did but I did and am ready for ACTION!!Diane <jerseygirlforever214@...> wrote: Terry after reading on I see that your response was to an old one from Jan!!! My messages are all messed up! Sorry about that. Like Jan said I have to get back in here and make you and DZ to mind your P's & Q's. I know you missed jan and I carrying on in here... Are you ready for us... Ans I am sure Sharon will be on the bandwagon!!!Jan

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Terry I am so glad to hear that you finally got out of the firepit!!!! I

didn't know that your son got married... Last time I was here he was

with you and susy and I think riding his bike..... You Go Boy!!!!! Dave,

Jan, Terry and everyone else who I missed I want to Thank you all

for thinking of me and sending your condolances...

> Terry after reading on I see that your response was to an

old one from

> Jan!!! My messages are all messed up! Sorry about that. Like Jan said

I

> have to get back in here and make you and DZ to mind your P's & Q's. I

> know you missed jan and I carrying on in here... Are you ready for

> us... Ans I am sure Sharon will be on the bandwagon!!!

>

[Guest guest]

When I stand there and look in the mirror, it is difficult not to have a sense of humor because, quite honestly, it truly is quite comical! It is amazing what skin does!!! Hell, I just decided it is better to laugh than to cry!!! But, loose skin and all, LIFE IS GREAT! JenniTerry <trad57@...> wrote: Jenni, I haven't been banded yet but I lurk on this web site every day and read all of the posts and soak in all the information. You crack me

up. I really admire you for everything that you have done for your self. Some day I will get to be one of the banded ones. But for now I read, learn and soak everything I can get my eyes on. You have a wonderful sense of humor. I believe that has to be one of the keys of success to be very positive about everything.Terry R.Nampa, Idaho

Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A.