Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 She also started getting into my husband and mine income.....I said whoa....my son is 18.....she said that I called for this appointment in December....so I gave her the name of the lady I talked to and specifically asked if it was too early to call or if I should wait until Jan 1 to call for the appointment and was assured as long the the appointment was in Jan I could have called anytime....she said ok then I will date this questionaire Jan. 1.....I specifically did not do the online applications or sent the paperwork back to them until after Jan 1.  Seems like you got to be very careful on what you do.... From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Re: SSI IPADDUnite@gro ups.com Date: Sunday, December 20, 2009, 10:51 PM How old is your son, Marcia? If he is 18, assuming you wish to get the full amount for your son (considered Category A), you would be be stating that your son is living in his " own household " and that he is paying room and board (rent and food). You are claiming, in this instance that your son's finances are separate and that no one is helping him pay and no one (including you) is paying for him. In answer to a question such as " Does your son pay for where he lives? " The answer would be, " Yes. " In answer to the question " Do you give your son help or money to pay for where he lives? " The answer would be, " No. " I have paraphrased this from something that Sherri Schneider posted in April. If you indicate that you or someone else is paying your son's rent or food, his SSI check will be reduced by 1/3 and this would be considered Category B. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net SSI I need advice on how to get the most SSI for my son...my phone interview is in 2 weeks and I need to know the right wordage. I understand there is a possibility they will say " your son is entitled to $675.00 but we are only going to give you 2/3 plus $20 for $470. " Why do they do this and is there a way to show my sons needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 She also started getting into my husband and mine income.....I said whoa....my son is 18.....she said that I called for this appointment in December....so I gave her the name of the lady I talked to and specifically asked if it was too early to call or if I should wait until Jan 1 to call for the appointment and was assured as long the the appointment was in Jan I could have called anytime....she said ok then I will date this questionaire Jan. 1.....I specifically did not do the online applications or sent the paperwork back to them until after Jan 1.  Seems like you got to be very careful on what you do.... From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Re: SSI IPADDUnite@gro ups.com Date: Sunday, December 20, 2009, 10:51 PM How old is your son, Marcia? If he is 18, assuming you wish to get the full amount for your son (considered Category A), you would be be stating that your son is living in his " own household " and that he is paying room and board (rent and food). You are claiming, in this instance that your son's finances are separate and that no one is helping him pay and no one (including you) is paying for him. In answer to a question such as " Does your son pay for where he lives? " The answer would be, " Yes. " In answer to the question " Do you give your son help or money to pay for where he lives? " The answer would be, " No. " I have paraphrased this from something that Sherri Schneider posted in April. If you indicate that you or someone else is paying your son's rent or food, his SSI check will be reduced by 1/3 and this would be considered Category B. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net SSI I need advice on how to get the most SSI for my son...my phone interview is in 2 weeks and I need to know the right wordage. I understand there is a possibility they will say " your son is entitled to $675.00 but we are only going to give you 2/3 plus $20 for $470. " Why do they do this and is there a way to show my sons needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 Hi Marcia, when was your son's birthday? Re: SSI IPADDUnite@gro ups.com Date: Sunday, December 20, 2009, 10:51 PM How old is your son, Marcia? If he is 18, assuming you wish to get the full amount for your son (considered ategory A), you would be be stating that your son is living in his " own ousehold " and that he is paying room and board (rent and food). You are laiming, in this instance that your son's finances are separate and that no one s helping him pay and no one (including you) is paying for him. In answer to a question such as " Does your son pay for where he lives? " The nswer would be, " Yes. " In answer to the question " Do you give your son help or oney to pay for where he lives? " The answer would be, " No. " I have paraphrased this from something that Sherri Schneider posted in April. If you indicate that you or someone else is paying your son's rent or food, his SI check will be reduced by 1/3 and this would be considered Category B. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net SSI I need advice on how to get the most SSI for my son...my phone interview is in 2 eeks and I need to know the right wordage. I understand there is a possibility hey will say " your son is entitled to $675.00 but we are only going to give you /3 plus $20 for $470. " Why do they do this and is there a way to show my sons eeds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 Hi Marcia, when was your son's birthday? Re: SSI IPADDUnite@gro ups.com Date: Sunday, December 20, 2009, 10:51 PM How old is your son, Marcia? If he is 18, assuming you wish to get the full amount for your son (considered ategory A), you would be be stating that your son is living in his " own ousehold " and that he is paying room and board (rent and food). You are laiming, in this instance that your son's finances are separate and that no one s helping him pay and no one (including you) is paying for him. In answer to a question such as " Does your son pay for where he lives? " The nswer would be, " Yes. " In answer to the question " Do you give your son help or oney to pay for where he lives? " The answer would be, " No. " I have paraphrased this from something that Sherri Schneider posted in April. If you indicate that you or someone else is paying your son's rent or food, his SI check will be reduced by 1/3 and this would be considered Category B. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net SSI I need advice on how to get the most SSI for my son...my phone interview is in 2 eeks and I need to know the right wordage. I understand there is a possibility hey will say " your son is entitled to $675.00 but we are only going to give you /3 plus $20 for $470. " Why do they do this and is there a way to show my sons eeds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 dec. 11 From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Re: SSI IPADDUnite@gro ups.com Date: Sunday, December 20, 2009, 10:51 PM How old is your son, Marcia? If he is 18, assuming you wish to get the full amount for your son (considered Category A), you would be be stating that your son is living in his " own household " and that he is paying room and board (rent and food). You are claiming, in this instance that your son's finances are separate and that no one is helping him pay and no one (including you) is paying for him. In answer to a question such as " Does your son pay for where he lives? " The answer would be, " Yes. " In answer to the question " Do you give your son help or money to pay for where he lives? " The answer would be, " No. " I have paraphrased this from something that Sherri Schneider posted in April. If you indicate that you or someone else is paying your son's rent or food, his SSI check will be reduced by 1/3 and this would be considered Category B. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net SSI I need advice on how to get the most SSI for my son...my phone interview is in 2 weeks and I need to know the right wordage. I understand there is a possibility they will say " your son is entitled to $675.00 but we are only going to give you 2/3 plus $20 for $470. " Why do they do this and is there a way to show my sons needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 dec. 11 From: ELLEN BRONFELD <egskbsbcglobal (DOT) net> Subject: Re: SSI IPADDUnite@gro ups.com Date: Sunday, December 20, 2009, 10:51 PM How old is your son, Marcia? If he is 18, assuming you wish to get the full amount for your son (considered Category A), you would be be stating that your son is living in his " own household " and that he is paying room and board (rent and food). You are claiming, in this instance that your son's finances are separate and that no one is helping him pay and no one (including you) is paying for him. In answer to a question such as " Does your son pay for where he lives? " The answer would be, " Yes. " In answer to the question " Do you give your son help or money to pay for where he lives? " The answer would be, " No. " I have paraphrased this from something that Sherri Schneider posted in April. If you indicate that you or someone else is paying your son's rent or food, his SSI check will be reduced by 1/3 and this would be considered Category B. Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net SSI I need advice on how to get the most SSI for my son...my phone interview is in 2 weeks and I need to know the right wordage. I understand there is a possibility they will say " your son is entitled to $675.00 but we are only going to give you 2/3 plus $20 for $470. " Why do they do this and is there a way to show my sons needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 Thank you, it's great to hear from someone who has just gone through the experience. My son rarely sees a doctor, about twice a year for the psychiatrist and once a year for a regular checkup so I won't have a lot to say in that regard :-) I may still be picking your brain but I guess I can sit tight until 5/1. H. ssi sunshinebeaches3@ aol.com.. ....I will be glad to answer your questions if you ontact me thru this site.....I am cautious about personal email Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 Thank you, it's great to hear from someone who has just gone through the experience. My son rarely sees a doctor, about twice a year for the psychiatrist and once a year for a regular checkup so I won't have a lot to say in that regard :-) I may still be picking your brain but I guess I can sit tight until 5/1. H. ssi sunshinebeaches3@ aol.com.. ....I will be glad to answer your questions if you ontact me thru this site.....I am cautious about personal email Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Dear Diane, We applied for Meg's SSI when she turned 18 and did all the paperwork ourselves. She was denied. We hired a paralegal and appealed and waited 16 months and she was approved. I know that often the initial application is denied just because it is. Our paralegal said that even if everything had been there, it likely would have been denied anyways. Many people give up and don't appeal. Even though we kept calling to see if they had everything they needed from all her doctors, they did not tell us until she was denied that they never got the letter or information from Dr. J, the main doctor to support her application. It was not until she was denied that we learned the information that he had faxed, twice, was lost somehow. (Oddly even in our appeal it was " misplaced " and our paralegal caught it and personally delivered it to the judge.) On appeal we worked with our paralegal to have everything that was needed. All she does is SSI appeals and she is very good. She had two diagnoses that were used, Lyme and CFS. Because Meg's initial dx was CFS it was listed as well. But it is not won or lost on the dx, but on proving that they are limited in what they can do and proving their physical abilities, and inability to sustain a job. She met with the judge in Aug. with our paralegal, and reiterated her limitations. The judge was wonderful and made the decision in a record time of one week. (Usually it takes several months.) Due to the fact that she got SSI, she immediately became eligible for medicaid which is already helping out with her meds. And she also became eligible for disability services through the state to assist with college costs. We are very happy that we hired the paralegal and now advise others to go this route as well. I am not unhappy that we tried it ourselves the first time. Had she prevailed then she would not have had the expense of the paralegal, and we know other families who did get it the first time. But on appeal, we were spent and did not have the energy to do it all over again. The paralegal knew exactly what the judge would be looking for and was able to guide us in that direction and way of thinking. We felt the money that she was paid was well worth it. It comes out of the final award so is no money lost by us. If you do succeed on appeal, then you get the back pay that you would have gotten from the time of the initial application. Without her help, I do not think Meg's appeal would have succeeded. The amount paid is 25% of the award, not to exceed $5300. I hope that helps. It took me a long time to realize that this was a good thing for us to do, and what a difference it has made already. Hugs, Z On 10/25/2010 10:07 AM, Diane Biel wrote: > > thanks for that empowering message!! > Did you have to hire a lawyer for SSI? Did they give this to you on > Lyme or > something else? I have to get this for my girls........I just do not > know where > to start....... > bless you and your daughter is in my prayers!! > I have a 15, 11, & 7 year old all with lyme - including myself - what > a learning > experience to say the least!! Diane B. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 oh bless you and thank you!! WE also have the CFS diagnosis...... thanks for your help and taking the time to do this..... Its amazing how much we help each other and understand each other - I am blessed for all of you!!! ________________________________ From: Faces <faces@...> Sent: Mon, October 25, 2010 9:34:57 AM Subject: Re: [ ] SSI  Dear Diane, We applied for Meg's SSI when she turned 18 and did all the paperwork ourselves. She was denied. We hired a paralegal and appealed and waited 16 months and she was approved. I know that often the initial application is denied just because it is. Our paralegal said that even if everything had been there, it likely would have been denied anyways. Many people give up and don't appeal. Even though we kept calling to see if they had everything they needed from all her doctors, they did not tell us until she was denied that they never got the letter or information from Dr. J, the main doctor to support her application. It was not until she was denied that we learned the information that he had faxed, twice, was lost somehow. (Oddly even in our appeal it was " misplaced " and our paralegal caught it and personally delivered it to the judge.) On appeal we worked with our paralegal to have everything that was needed. All she does is SSI appeals and she is very good. She had two diagnoses that were used, Lyme and CFS. Because Meg's initial dx was CFS it was listed as well. But it is not won or lost on the dx, but on proving that they are limited in what they can do and proving their physical abilities, and inability to sustain a job. She met with the judge in Aug. with our paralegal, and reiterated her limitations. The judge was wonderful and made the decision in a record time of one week. (Usually it takes several months.) Due to the fact that she got SSI, she immediately became eligible for medicaid which is already helping out with her meds. And she also became eligible for disability services through the state to assist with college costs. We are very happy that we hired the paralegal and now advise others to go this route as well. I am not unhappy that we tried it ourselves the first time. Had she prevailed then she would not have had the expense of the paralegal, and we know other families who did get it the first time. But on appeal, we were spent and did not have the energy to do it all over again. The paralegal knew exactly what the judge would be looking for and was able to guide us in that direction and way of thinking. We felt the money that she was paid was well worth it. It comes out of the final award so is no money lost by us. If you do succeed on appeal, then you get the back pay that you would have gotten from the time of the initial application. Without her help, I do not think Meg's appeal would have succeeded. The amount paid is 25% of the award, not to exceed $5300. I hope that helps. It took me a long time to realize that this was a good thing for us to do, and what a difference it has made already. Hugs, Z On 10/25/2010 10:07 AM, Diane Biel wrote: > > thanks for that empowering message!! > Did you have to hire a lawyer for SSI? Did they give this to you on > Lyme or > something else? I have to get this for my girls........I just do not > know where > to start....... > bless you and your daughter is in my prayers!! > I have a 15, 11, & 7 year old all with lyme - including myself - what > a learning > experience to say the least!! Diane B. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 I'm wondering if I can get it for . He has lyme meningitis, encephalopathy, arthritis, now possibly something with his heart, the ekg was not normal, I also wonder if Dr. J can tell by the Ekg if its from lyme. > > thanks for that empowering message!! > Did you have to hire a lawyer for SSI? Did they give this to you on > Lyme or > something else? I have to get this for my girls........I just do not > know where > to start....... > bless you and your daughter is in my prayers!! > I have a 15, 11, & 7 year old all with lyme - including myself - what > a learning > experience to say the least!! Diane B. > > Quote Link to comment Share on other sites More sharing options...
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