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SSI BENIFITS-

I am a disabled veteran and SSI makes decessions as to hw much a person

makes byt what the family brings in, usally if someone makes more than 800

dollars a month SSI wont pay but just a small amount. It is also like

VETERANS BENIFITS, if someone is single and there is no income comming in a

veteran will get a nice check, but any money made and the government will

check SSI FEDERAL STATE and all types of income to a family to see what

monies are made each month. IF you arent working and you have kids then they

would get a nice check but as the finances go up in a household the

government cuts back checks.

SSI- Since Bill Clinton has gotten into office is very hard to get cause

they say it is BROKE now, and even i was tured down even thought the VA says

im totally disabled inst that a weired deal the agenies have such weird

ways of doing their jobs especially SSA/SSI i was turned down becuase i

wasnt old enought even though i am disabled.

Mark

SSI

> From: Ann <macroz22@...>

>

> Dear Lesley,

>

> Write to your local Congressman. See if he can get the ball rolling for

you, by

> getting you some clearer answers to your SSI queries. Since you mentioned

that your

> son was denied benefits, because of your higher income specifications,

this may be

> the only reason why he is not eligible to receive a monthly benefits

check. As we

> all know Social Security is so red tape and like my mother once said, it's

like

> robbing to give . They are not going to give you anything more,

than than

> what they think you deserve, which is almost always very minimum. I

always believed

> that half the time the right hand, doesn't know what the left hand is

doing, anyway

> with SS. So I would suggest you search out your area Congressman, by

writing to him

> and see what he suggests.

>

> Best wishes,

>

> Ann :)

>

> taylor_lesley@... wrote:

>

> > From: <taylor_lesley@...>

> >

> > I need some suggestions if anyone could help me out.

> >

> > I have been dealing with SSI for 10 years -- this is how old Marcus is

(he has

> > rare type of dwarfism called Kniest). I get letters from them at least

2 or 3

> > times a month a denying him benefits because of my wages. This is a

condition

> > that is life long but yet people get full benefits if they have asthma

and etc.

> >

> > I am a single parent with 2 other siblings. He was approved on a

Disabled

> > Status yet, he gets no check. The largest check has not been over

$200.00 and

> > we definitely could use help from SSI.

> >

> > They sent me a letter recently telling me that he would be getting

$50.00 but

> > that it would go towards the overpayments that were pay out to him.

Who's fault

> > is it that they overpaid him? What calculations are they using to

determine

> > this?

> >

> > Anyway, should I continue to try to get more benefits for Marcus by

writing to

> > people here in Michigan or is it a losing battle with SSI.

> >

> > Any suggestions would be greatly appreciated.

> >

> > Thanks,

> >

> > Lesley

> >

> > I'm not going to go into details about SSI but I would like to know,

what I

> > could do to help Marcus get full benefits

> >

> > ---------------------------

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I am 20 yrs old and I lost my SSI when I was about 8 months old because the

ARMY promoted my dad. So when I was around 13 or 15, my parents reapplied

me for it and they turned me down again due to his income AND because my

grandfather set up a trust fund for me in my name for schooling,

operations, car modifications, ect. And my dad has about 4 mutual funds in

my name also. So like said, it's so red tape and eventhough *I* don't

bring in an income that would make me eligable for SSI, my FAMILY's income

and investments keep me from it. OH well.....I just hope retirement will be

easier to manage...hehe

Gretchen

At 02:19 PM 1/14/00 -0600, you wrote:

>From: " Mark Widerstrom " <markww2@...>

>

>SSI BENIFITS-

>

>I am a disabled veteran and SSI makes decessions as to hw much a person

>makes byt what the family brings in, usally if someone makes more than 800

>dollars a month SSI wont pay but just a small amount. It is also like

>VETERANS BENIFITS, if someone is single and there is no income comming in a

>veteran will get a nice check, but any money made and the government will

>check SSI FEDERAL STATE and all types of income to a family to see what

>monies are made each month. IF you arent working and you have kids then they

>would get a nice check but as the finances go up in a household the

>government cuts back checks.

>

>SSI- Since Bill Clinton has gotten into office is very hard to get cause

>they say it is BROKE now, and even i was tured down even thought the VA says

>im totally disabled inst that a weired deal the agenies have such weird

>ways of doing their jobs especially SSA/SSI i was turned down becuase i

>wasnt old enought even though i am disabled.

>

>Mark

>

>

>

>

>

> SSI

>

>

>> From: Ann <macroz22@...>

>>

>> Dear Lesley,

>>

>> Write to your local Congressman. See if he can get the ball rolling for

>you, by

>> getting you some clearer answers to your SSI queries. Since you mentioned

>that your

>> son was denied benefits, because of your higher income specifications,

>this may be

>> the only reason why he is not eligible to receive a monthly benefits

>check. As we

>> all know Social Security is so red tape and like my mother once said, it's

>like

>> robbing to give . They are not going to give you anything more,

>than than

>> what they think you deserve, which is almost always very minimum. I

>always believed

>> that half the time the right hand, doesn't know what the left hand is

>doing, anyway

>> with SS. So I would suggest you search out your area Congressman, by

>writing to him

>> and see what he suggests.

>>

>> Best wishes,

>>

>> Ann :)

>>

>> taylor_lesley@... wrote:

>>

>> > From: <taylor_lesley@...>

>> >

>> > I need some suggestions if anyone could help me out.

>> >

>> > I have been dealing with SSI for 10 years -- this is how old Marcus is

>(he has

>> > rare type of dwarfism called Kniest). I get letters from them at least

>2 or 3

>> > times a month a denying him benefits because of my wages. This is a

>condition

>> > that is life long but yet people get full benefits if they have asthma

>and etc.

>> >

>> > I am a single parent with 2 other siblings. He was approved on a

>Disabled

>> > Status yet, he gets no check. The largest check has not been over

>$200.00 and

>> > we definitely could use help from SSI.

>> >

>> > They sent me a letter recently telling me that he would be getting

>$50.00 but

>> > that it would go towards the overpayments that were pay out to him.

>Who's fault

>> > is it that they overpaid him? What calculations are they using to

>determine

>> > this?

>> >

>> > Anyway, should I continue to try to get more benefits for Marcus by

>writing to

>> > people here in Michigan or is it a losing battle with SSI.

>> >

>> > Any suggestions would be greatly appreciated.

>> >

>> > Thanks,

>> >

>> > Lesley

>> >

>> > I'm not going to go into details about SSI but I would like to know,

>what I

>> > could do to help Marcus get full benefits

>> >

>> > ---------------------------

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i was granted disability over ten years ago when i was in my 30's. i

wasn't eligible for food stamps, etc, because of the ex's income (we

were still together), but it had no affect on the amount of my check;

that was based on my earnings from the last three quarters of

employment. make sure you're applying for the right thing: permanent

disability and SSI have different qualifications and guidelines.

luthien

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Greta,

You can reapply for SSI _now_ and will probably get it because you are over

18 and your parents' income no longer counts. Once you graduate from

college and are out working, you will most likely make too much money to

continue to get SSI money. You could still stay on the SSI roles, if you

wanted to do so, you just wouldn't get a monthly check.

Vita

At 03:28 PM 1/14/2000 -0500, you wrote:

>From: Deitze <daviddeitze@...>

>

>

>I am 20 yrs old and I lost my SSI when I was about 8 months old because the

>ARMY promoted my dad. So when I was around 13 or 15, my parents reapplied

>me for it and they turned me down again due to his income AND because my

>grandfather set up a trust fund for me in my name for schooling,

>operations, car modifications, ect. And my dad has about 4 mutual funds in

>my name also. So like said, it's so red tape and eventhough *I* don't

>bring in an income that would make me eligable for SSI, my FAMILY's income

>and investments keep me from it. OH well.....I just hope retirement will be

>easier to manage...hehe

>Gretchen

>

>

>

>At 02:19 PM 1/14/00 -0600, you wrote:

>>From: " Mark Widerstrom " <markww2@...>

>>

>>SSI BENIFITS-

>>

>>I am a disabled veteran and SSI makes decessions as to hw much a person

>>makes byt what the family brings in, usally if someone makes more than 800

>>dollars a month SSI wont pay but just a small amount. It is also like

>>VETERANS BENIFITS, if someone is single and there is no income comming in a

>>veteran will get a nice check, but any money made and the government will

>>check SSI FEDERAL STATE and all types of income to a family to see what

>>monies are made each month. IF you arent working and you have kids then they

>>would get a nice check but as the finances go up in a household the

>>government cuts back checks.

>>

>>SSI- Since Bill Clinton has gotten into office is very hard to get cause

>>they say it is BROKE now, and even i was tured down even thought the VA says

>>im totally disabled inst that a weired deal the agenies have such weird

>>ways of doing their jobs especially SSA/SSI i was turned down becuase i

>>wasnt old enought even though i am disabled.

>>

>>Mark

>>

>>

>>

>>

>>

>> SSI

>>

>>

>>> From: Ann <macroz22@...>

>>>

>>> Dear Lesley,

>>>

>>> Write to your local Congressman. See if he can get the ball rolling for

>>you, by

>>> getting you some clearer answers to your SSI queries. Since you mentioned

>>that your

>>> son was denied benefits, because of your higher income specifications,

>>this may be

>>> the only reason why he is not eligible to receive a monthly benefits

>>check. As we

>>> all know Social Security is so red tape and like my mother once said, it's

>>like

>>> robbing to give . They are not going to give you anything more,

>>than than

>>> what they think you deserve, which is almost always very minimum. I

>>always believed

>>> that half the time the right hand, doesn't know what the left hand is

>>doing, anyway

>>> with SS. So I would suggest you search out your area Congressman, by

>>writing to him

>>> and see what he suggests.

>>>

>>> Best wishes,

>>>

>>> Ann :)

>>>

>>> taylor_lesley@... wrote:

>>>

>>> > From: <taylor_lesley@...>

>>> >

>>> > I need some suggestions if anyone could help me out.

>>> >

>>> > I have been dealing with SSI for 10 years -- this is how old Marcus is

>>(he has

>>> > rare type of dwarfism called Kniest). I get letters from them at least

>>2 or 3

>>> > times a month a denying him benefits because of my wages. This is a

>>condition

>>> > that is life long but yet people get full benefits if they have asthma

>>and etc.

>>> >

>>> > I am a single parent with 2 other siblings. He was approved on a

>>Disabled

>>> > Status yet, he gets no check. The largest check has not been over

>>$200.00 and

>>> > we definitely could use help from SSI.

>>> >

>>> > They sent me a letter recently telling me that he would be getting

>>$50.00 but

>>> > that it would go towards the overpayments that were pay out to him.

>>Who's fault

>>> > is it that they overpaid him? What calculations are they using to

>>determine

>>> > this?

>>> >

>>> > Anyway, should I continue to try to get more benefits for Marcus by

>>writing to

>>> > people here in Michigan or is it a losing battle with SSI.

>>> >

>>> > Any suggestions would be greatly appreciated.

>>> >

>>> > Thanks,

>>> >

>>> > Lesley

>>> >

>>> > I'm not going to go into details about SSI but I would like to know,

>>what I

>>> > could do to help Marcus get full benefits

>>> >

>>> > ---------------------------

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because my grandfather set up a trust fund for me in my name for schooling,

operations, car modifications, ect. And my dad has about 4 mutual funds in

my name also. So like said, it's so red tape and eventhough *I* don't

bring in an income that would make me eligable for SSI, my FAMILY's income

and investments keep me from it. OH well.....I just hope retirement will be

easier to manage...hehe

>Gretchen

My parents set up an Special Needs Living Trust that is in the Family's name

and I am the Benfitarcy of it. This means my name is not on any type of

ownership (except for my van) thus, I qualify for Social security off my

father's retirement and SSI. Why? Especially when I do work part time?

Because, I qualify for health care.

Lois S.

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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  • 3 weeks later...

Kat,

I'am in the progress I say progress of getting ssi for our 3 kids I

do have 4 and I do know our youngest suffers from this disease but he will be

seen by a doctor in April along with our other son that is the earlist geeze

I's hate to think what it would be like if they were really BAD:0 but, when

my daughter was finally diagnosed back

in April 99 I didn't file a claim until May 99 then got the usual red tape

and said forget it. But, after reading all these emails I know I can or a ssi

lawyer can get the ssi my kids deserve. They are disabled and probably will

be for life.

Teena

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SSI

> From: dschuh@...

>

> Hi all,

> I am out of town for the week but checking in on the laptop. The keys are

small and it is hard to type on, so please forgive me in advance for any

typos (c:

>

> There are many programs available out there and with a Doctors signature

stateing that you have JRA, most are not diffucult to get approved for,

however they are sometimes time consuming to get the first check.

>

> SSI <supplimental security income> is generally for children living at

home OR as a supliment for Social Security.

>

> SSDI <Social Security Disability Income> Is for adults who are unable to

work. Many times you can get this in addition to SSI <depending on the

household resources>

>

> SS <Social security> Disabled adults can recieve this after they have

worked and paid into Social Security for at least 10 quarters. <doesn't have

to be in a row> This is usually the highest paying. Also if you are

disablied and have children living at home, the children may be eligible for

an additional check. <my children recieve a $78.00 check>

>

> Most states also have programs for the disabled to help with adapting a

home, paying for prescriptions, medical assistance in the home, and some

time a small check.

>

> Also, for people out of high school, don't forget about Vocational

Rehabilitation, if you continue your education they pick up the tab for all

of it as well as you recieve a PELL check <grant, not to be paid back>

>

> Hope that helps,

> Debbie

>

Debbie: Do you know if the SSI is income based? ie: for my daughter to get

it would it be based upon my income? Thanks

Tracey

Mom to

Brennon, 11

Paxton, 6, jra

> ---------------------------

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Yes, SSI does take into account your income, but they also look at bills,

number in the family etc.. both of my parents worked full time and made

very good money and I still recieved a check for $202. it's not a fortune

but it helped. When I moved out of thier home it went up to over $400. I

will tell you that to get the first check it took 8 months, but it was

retroactive to the date that I aplied so that first check was big.

Contact Social Security direct and get the forms, sometimes social workers

at the hospitals or doctors offices don't stay on top of things like they

should.

Hugs,

Debie Schuh

Re: SSI

>From: " tracey D. Nettles " <toracey@...>

>

>Debbie: Do you know if the SSI is income based? ie: for my daughter to

get

>it would it be based upon my income? Thanks

>Tracey

>Mom to

>Brennon, 11

>Paxton, 6, jra

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Hi ,

I forget how old you are, but if you are still legally a dependent of

your parents...do they claim you at tax time?, then you would be ineligible

for SSDI benefits I think. But then again, I know that some children who

are severely retarded or suffer from other diseases get benefits....not sure

how that works??

Best bet would be to consult with a SSDI lawyer, they should be able to

answer your questions free, and if you have a case they will appeal it for

you, their maximum fee is $4000, but that comes from SSDI out of your

retroactive payments. It is unclear from your letter if you have actually

applied for benefits or that you were just calling SSDI for information. If

you haven't applied, do it, and get your denials in writing. Let us know

how you make out. Woops, just reread your letter, you are talking about SSI

benefits, not SSDI, these are different, and SSI is based on the household

income. In order to collect State disability you need to have paid into the

plan for a certain amount of time, I hope you qualify there, then you will

be able get 6 months worth of benefits.

Hugs,

Marta

> From: M2HMGHB@...

>

> Hi everyone. I got off the phone with SSI about 7:05 pm. Now they

> stated, and I quote " You are not eligible for Social Security benifits

> because your parents incomme exceeds the maximum amount " . Is that a load

of

> BULL or what? I am home almost every day of the week, INCLUDING the

weekends

> because of this damn Lyme. I am back to walking with my cane, and THEY

> actually have the nerve to say that to me? I mean my parents give me an

> allowance of 15-20 dollars a week(which i think is too much but I shan't

> complain) which amounts to about 60-100 dollars a week. Then you add the

> medical bills and prescriptions , in the end you are talking about

300-400 a

> MONTH. Now the way i figure since I am a legal resident n the USA, and I

> was born here, as were my parents and grandparents, that i should recieve

> some benefits.

> Well tommorrow i try the state disability. Wish me luck and sorry for

> ranting.

> Biddle

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Death Benefits are tricky. They are for the children of deceased parents.

But there are some things you must do to keep them, yes. I was able to hang

onto mine until I was 26 because I stayed in college, part-time for 8 years.

They aren't the same as disability benefits at all

Judi

At 09:05 AM 2/9/00 -0500, Jane wrote:

>From: GI-JANE30@... (Jane)

>

>hi

>this is my first time posting and this SSI subject interested me... I

>was on SSI for many years,,, I have morquios and bad authritis......

>Since that time , i got a part time job and i was placed on SSI and SSD

>also.... It worked out ok for me ,, just that with SSI , ur private life

>is history .. u have to count for every penny that u have...

>Anyway,,Last year my father passed away, and i was switched to Death

>benefits because i lived with him and because i have a disability.. Now,

>my question is this, If i were to ever move out or get married, would i

>lose that benefit? Does anyone know the answer to this and can someone

>help my curiosity ??

>

>JANE :))

>

>

>---------------------------

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  • 2 months later...
Guest guest

I don't consider SSI anything close to welfare and think it's rude that

people make such nasty comments. I have unfortunately heard of people that

are drug addicts that qualify whereas most people that receive didn't make

the choice that puts them on it. There is a big difference to me between

not being able to work because you have been hurt or you have some

degenerative condition out of your control and not working because you would

rather pick up that crack pipe then get into and stay in rehab.

SSI

Do you consider SSI to be welfare? What are your views on this?

I guess I don't consider it to be welfare and it kinda bothers me when

others " look down " on SSI recipients and make rude comments etc. I

don't see it as being any different than Social Security. I receive a

disability retirement from civil service and I don't consider that

welfare either. I worked for that " benefit " and see it as just that. I

worked and paid in SS for a few years then went to work for federal

civil service and they have a separate retirement system and did not

take out SS only CS retirement. When I was unable to work anymore I

filed for both. SS says I lacked one credit to be eligible to receive

SS benefits for myself and my children. Even when I am 65 I will not be

able to draw SS because my SS earnings have to be from the 10 years

prior to my turning 65 and I won't have that (I'm 39 now and not

working). My SS $$ that were paid in are there but I can't use them.

I'm sure there are others out there with similar situations who never

benefit from the money they paid into the system.

Anyway, just wanted your opinions after reading the recent posts about

birth control and government payments.

Reba

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SSI is a form of welfare and you could also say it's a form of Social

Security, too. SSI is a supplemental income source, which for some of us who

are abled bodied enough, but still disabled, meant to suffice, until one

makes that transition back into the workforce. I was taken aback some when

an attorney relative of mine, mentioned one time that SSI is a form of

welfare, which in fact it is. But it only made me realize that one doesn't

have to stay in this situation if at all possible and maybe start outworking

at minimum wage and working their way up, one step at a time. Social

Security also offers a PASS plan, which helps disabled people make this

transition, back into the workforce and they also offer other incentives, to

help keep their futuristic work goals in focus.

I work and although it's just 16 1/2 - 19 hours a week right now, it's a

start. My future goal is to completely get off SSI and to be able to fully

support myself again. I'll still be eligible to receive

Medicaid benefits after I become self-sufficient, in the case that I can't

find a private insurance company who will take me.

Ann

SSI

> Do you consider SSI to be welfare? What are your views on this?

>

> I guess I don't consider it to be welfare and it kinda bothers me when

> others " look down " on SSI recipients and make rude comments etc. I

> don't see it as being any different than Social Security. I receive a

> disability retirement from civil service and I don't consider that

> welfare either. I worked for that " benefit " and see it as just that. I

> worked and paid in SS for a few years then went to work for federal

> civil service and they have a separate retirement system and did not

> take out SS only CS retirement. When I was unable to work anymore I

> filed for both. SS says I lacked one credit to be eligible to receive

> SS benefits for myself and my children. Even when I am 65 I will not be

> able to draw SS because my SS earnings have to be from the 10 years

> prior to my turning 65 and I won't have that (I'm 39 now and not

> working). My SS $$ that were paid in are there but I can't use them.

> I'm sure there are others out there with similar situations who never

> benefit from the money they paid into the system.

>

> Anyway, just wanted your opinions after reading the recent posts about

> birth control and government payments.

> Reba

>

>

> ------------------------------------------------------------------------

> You have a voice mail message waiting for you at iHello.com:

> 1/3555/6/_/77518/_/956778079/

> ------------------------------------------------------------------------

>

>

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I understood SSI to be a form of 'welfare' for the disabled people. My

daughter was on

it for a few years, while I was on 'welfare' for my two other kids, after

getting divorced

from a domestic abuse situation. But I think 'welfare' has gotten such a

bad name over

the years.

I think people attitude's towards both is the same. And has gotten rather

negative.

People pay into Social Security for SSI. And people pay into taxes for

State

Welfare benefits.

My Mom worked with a lot of elderly people. A lot of them didn't have a

big

enough Social Security monthy check, so they went on SSI & got the medical,

as their 'retirement' wasn't enough.

MARY

SSI

> Do you consider SSI to be welfare? What are your views on this?

>

> I guess I don't consider it to be welfare and it kinda bothers me when

> others " look down " on SSI recipients and make rude comments etc. I

> don't see it as being any different than Social Security. I receive a

> disability retirement from civil service and I don't consider that

> welfare either. I worked for that " benefit " and see it as just that. I

> worked and paid in SS for a few years then went to work for federal

> civil service and they have a separate retirement system and did not

> take out SS only CS retirement. When I was unable to work anymore I

> filed for both. SS says I lacked one credit to be eligible to receive

> SS benefits for myself and my children. Even when I am 65 I will not be

> able to draw SS because my SS earnings have to be from the 10 years

> prior to my turning 65 and I won't have that (I'm 39 now and not

> working). My SS $$ that were paid in are there but I can't use them.

> I'm sure there are others out there with similar situations who never

> benefit from the money they paid into the system.

>

> Anyway, just wanted your opinions after reading the recent posts about

> birth control and government payments.

> Reba

>

>

> ------------------------------------------------------------------------

> You have a voice mail message waiting for you at iHello.com:

> 1/3555/6/_/77518/_/956778079/

> ------------------------------------------------------------------------

>

>

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Guest guest

On Wed, 26 Apr 2000 kd1219@... wrote:

> Do you consider SSI to be welfare? What are your views on this?

Oh, ho, ho. My mother and I have been having this argument almost since

the day they had me apply for SSI. I resisted being on it and got off as

soon as I was financially able to do so, because I am of the opinion that

if I am able to make an honest living, then I want to be able to do so.

Whether it's welfare ... I think if you are capable of making a living but

don't, you're taking unfair advantage of the system. If you're not capable

of making a living on your own, then that's different.

What I really object to is, once you are on SSI, it is extremely difficult

to get off it within the constraints of the system. If you start working

and make more than $85 in one calendar month, you begin losing SSI. Once

you've made $1000 (it's not even that much, actually) you are finished,

and you may even lose eligibility for Medicaid. My comments above

notwithstanding, you do in fact need to be disabled to qualify for SSI,

and so you generally do need health insurance. So, if you work, you lose

health insurance. You also lose eligibility for some or all assistance

with housing.

So, if you try to go off SSI and only make $1000 a month, that $1000 a

month goes away even faster, what with taxes, increased rent, increased

medical expenses, in addition to all the other regular monthly living

expenses. The program is set up in such a way that you have to basically

leap straight into a job that pays a living wage, and work at it 40 hours

a week, to get off SSI with a minimum of hassle. That's not feasible for

everyone.

Just my $0.02 ...

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I agree with when he said

>

> " Whether it's welfare ... I think if you are capable of making a

living but

> don't, you're taking unfair advantage of the system. If you're not

capable

> of making a living on your own, then that's different. "

When I turned 18 I was still looking for a job and I didn't have one,

I applied for SSI, with the Idea that it was temporary, untill I had

a job, or when to college then have a job. I have a few different

things I wanted to do. well, it took about 7 or 9 months before I had

found a job! I was so gratful that I had SSI during that time, I now

work for the State of New Hampshire, in government. I'm off of SSI

and my taxes are going to SSI, I feel like I can pay them back for

that time I was on SSI. I do know of some people that take advantage

of Welfare, SSI, etc. And There are people that should be on SSI and

they can't because of those that are taking advange of SSI.

There's a time a place for everything.

a

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In a message dated 4/28/00 5:08:47 PM Eastern Daylight Time, jojos38@...

writes:

<< can you tell me how you went about getting SSI , we tried when kayla was

3yrs

old. and was turned down the first time,

JOANN

>>

Joann,

Try again. I knew going in that they are quick to deny at first so I was

prepared to appeal. I didn't have to as he came back medically approved. I

thought there would be more red tape and was surprised that there wasn't

alot. They interviewed me over the phone and sent out a packet for me to

fill out. I filled out and then they sent a package out to my doctors as

well as his preschool. It takes a long time (4 months). Try again and

appeal any decision.

kathy

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In a message dated 4/28/00 4:05:41 PM Eastern Daylight Time, gmckin@...

writes:

<< Hi,

Yea! Great news, Kathy! Every little bit helps. Does this also mean that

Tally will now be eligible for medicaid insurance coverage?

Take Care,

Georgina

>>

Yes, he is now eligible for medicaid and foodstamps (which I didn't

realize). They also have a program for the phone for people who are

struggling with bills and one of the things they look for is either SSI or

medicaid.

kathy

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Guest guest

Hi,

Yea! Great news, Kathy! Every little bit helps. Does this also mean that

Tally will now be eligible for medicaid insurance coverage?

Take Care,

Georgina

akally@... wrote:

>

> Hello,

> Tally has just been approved for SSI. He won't get alot a month but any

> little bit counts. That was wonderful news today.

> kathy

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  • 1 month later...
Guest guest

Hello my name is Melodi and I have to reply to what you said about SSI. I

am 23 years old and I definantly know how it feels to have people not truly

understand what JRA is, let alone arthritis. When I tell people I have JRA, a

form of arthritis they say, " I know how you feel, I'm getting a little bit of

that in my knee " . Aaahh! It is hard for people to understand unless they have

been there themselves or have a child who is dealing with JRA or any disease,

at that. The only thing that will help ignorant people such as that lawyer

are educated people who have JRA or JRA advocates. What state do

you live in? I live in Pennsylvania. I have had help with deciding a job and

finding one to fit me and my JRA through a state funded program called

occupational vocational rehabilitation (OVR) Have you heard of this? They

helped me tremendously once I got through all the screening and paperwork.

Well, hope to talk to ya' soon! Take

care!

Melodi

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Guest guest

hi melody, i wish you could have seen the e-mail i sent that lawyer! all he

said in his reply was " i hope you feel better now thats off your chest. "

uuuggggh! made me wanna spit! then he said i shouldn't think i was the

onlt one w/ problems, that he had polio at age 4 and for me to look up post

polio syndrome. so, again i e-mailed him, stating that i never said i was

the only one with problems, but that i wasn't belittling others either. i

haven't heard from him again. anyway, yes i ahve heard of vocational rehab.

they put me through 2 years of college. my problem is that i don't know

how i am supposed to work if i cant keep medicaid. no private insurance

will carry me. i have extensive med bills and it would be impossible

without insurance, so for now i am just a homemaker. how do you work? do

you have private ins? talk to you soon, brandy

________________________________________________________________________

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Guest guest

hi yall

i dont have the JRA but i have a daughter who does brandy and most

know me on this group

i am writeing on the parents concern

i am concerned about the future of these kids with JRA or any problem

these are called unseen problems just as asthma or anything that flares up

they are ok then wham your down again alot of the working force will always

be this dense to diabilitys unseen ones OUR voices have to be heard

no one is in our homes watching what goes on in the mornings

no one is with us 24/ 7 if we dont voice our concerns and opinions who will

just as that lawyer who can wake up and jump to his feet and run a mile each

morning probably never has seen anything like what the real world is

hes one of those who just over looks that because he dont have to deal with

it

but we do and its hard on us to do its hard to say to anyone like i did

the other day and got the stupidest look i had melissa in the car with me to

go

grocery shopping and you know thats alot of walking i parked in the

handicap parking spot and i put up the handicap sticker we walked in

people looked at us funny we did our shopping and came back out melissa

was walking slow

some jerk parked jam up against my car you know the yellow cross marks for

US

to open the car door up so WE can manage the wheelchair (anyone) i told

melissa to stay at the car and i went to security and told them look

i am not doing this for me but for thousands who do have to deal with a

wheelchair everyday the woman has seen me struggle with the chair in my

little car for my daughter she walked out and checked the other car and i

explained to her look you know i use the chair we have days when she cant

walk and i use the chair

she looked at me and said i thought she just hurt herself and needed the

chair temporary i said no she has JRA and that dont go away its always there

you have good days and bad she said ma'am i am sorry and i will look more

for this

i looked at her and said what about the next person who parks here that may

have a elder in the car these spots are for handicapped and elderly you

need to do your job better she was just saying well ma'am i am sorry about

this yak yak

i found some cards and melissa said mom we can do something about this when

we have this happen again she wrote on the cards

thanks for not abideing by rules you are getting this from a child

with JRA look before you park jam up to my moms car she may have my

wheelchair so i can go shopping as you are or it could be your own mom

melissa was mad but as i told her society dont pay attention and its a mean

world we just have to deal with it i will voice my opinion to whats right

and for others

i was always taught you look up to and learn from the elders and teach the

child but protect them always if your a parent voice your thoughts you have

others behind you and most of all god will be right with you

Robbin

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  • 6 months later...

I can't tell you much about the American system but here in Canada I

applied for Canada Pension. I got a lawyer first. I then filled in

the forms giving more information than they could possibly expect and

then had the lawyer read the answers for anything that did not seem

right. Then I submitted them with the doctors forms, etc. and I got

it on the first try. A miracle some say.

I had a real problem with the private insurance company however. They

didn't want to give me disability after the second year because they

claimed I could work. We went though a battery of tests and I failed

them all. However I refused to meet with the insurance company people

without my lawyer present. And I had all the forms that they wanted

checked by him. They gave up although I am expecting them to come out

of the woodwork soon to start again.

My advice to you is to make sure you keep after them. Don't back

down. Get legal advice if you don't understand the forms. Have him

read everything carefully. It may seem like over kill but a few

hundred in advance can save you a lot of grief in the end. My lawyer

saved me a lot of grief and pointed out a few illegal things that

they were not allowed to ask or do. However the one thing that my

lawyer kept telling me is to cooperate with everything they wanted

and write it all down. Also I had to start a daily log of the pain,

what I did, how I coped with it, etc. That log will come in handy in

court should you end up there.

Scoliosis is being recognised as a disability more and more. Chronic

pain from the scoliosis is a touchy subject for doctors, and

particulary insurance people because that is something they can't see

or determine the level of. So anyone claiming chronic pain from

scoliosis is going to be treated like a fake in hopes you will go

away. If you defend yourself and not backdown they will eventually

come around. I wouldn't back down or give up despite there best

efforts and believe me they did try a lot of ways to get me off

without paying. I just smiled, cooperated and showed them a lot of

determination.

Good luck.

> My daughtr is going for a SSI appointed dr. for determination of

benefits for

> her scoliosis. 21, 2 surgeries, lukey-harrington assembly, pedicle

screws

> (first one), some residual pain in lower back, other associated

muscular

> difficulties. First surgery 6 yrs ago, last surgery was in 99, 1

yr post op

> appt doing well.

>

> Any assistance would be appreciated to tell me what the dr. is

going to look

> for.

>

> Other facts, been trying to get SSI for mental difficulties and

scoliosis is

> seconday condition since 1998. First they lost paperwork, then SSI

> determined that she was not scoliosis compromised...now this is

third attempt

> and they assign dr now.

>

> Thanks...quackkerz@a...

> Cherie and Janene (21).

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  • 2 years later...
Guest guest

Dear ,

I am applying for SSD now, not SSI. SSI is for those who have not worked to

have the Social Security quarters.

I haven't been denied yet, I'm at the beginning, but I'm prepared to be

denied because I have only known 2 people that got approved quickly. Denial

seems

to be the norm. I expect to hire a lawyer and go through an administrative

judge to get approval-again, the norm as I understand it by others that have

gone through it.

Jolene 1960 spine fusion

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  • 6 months later...

In a message dated 1/5/04 8:39:20 PM Pacific Standard Time,

deafwyo@... writes:

Is it " normal " to do tests like this before you know if you've been

approved for SSI or not? I was just curious.... Mom still wants to

wait until we know about being approved for SSI before proceeding

with the CI process, doing an evaluation and all. *sighs*

Yes it is normal.......... SSA will get all records of ALL info you gave

them,,,,,,, you also have to submit to their testing to be apporoved.......if

you

are deaf, you have no reason to be alarmed. When you applied for SSI, you

did signed a statement giving SSA all right to any and all medical history......

as for hearing test.....yes,they want something very recent, not anything

over a year old.

Lee

Looking for a gift or deco for your home? Check it out at www.lesanna.com

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