Re: Dateline

February 11, 2000

anyone who was cut off from meds/treatment due to Dr. Oren's revocation

contact BearyPrety@....

Dateline had put out a request for those persons to call them directly. I had

already given this contact info to , as we all know her line was pulled

as a result..

..but I want to make sure we do not miss anyone. Bernadette

July 12, 2000

Dear Friends: Yesterday, I was interviewed along with a panel of 4 other

of Dr. B's patients. Lenny Sigal had been interviewed earlier that day

and has said that he had never met a chronic lyme patient. I want to

report to you what I said to Dateline in case it gets edited out:

1. I told them the reason Sigal said that is because he's an " insurance

whore. " That's a legal term for doctors who testify against patients

for money from insurance companies. And, he goes around delivering

lectures to people that say that Lyme disease is overdiagnosed and

overtreated. Well it is underdiagnosed and undertreated.

2. To the question of what would you do if Dr. B loses his license? I

said: If you take away our doctors, you take away our hope. If you take

away our hope WE HAVE NOTHING TO LOSE! To which the interviewer said:

That sounds like a threat. I said: It is - we will take it to the

courts, we will take it to the streets, we will take it to Congress, and

if I fall, there are a 1000 other people to take my place.

3. The interviewer asked if it made us " feel better " to have a

diagnosis [obviously parroting Sigal] of Lyme so that at least we could

call it " something. " I said - ABSOLUTELY NOT!! - I'd rather have

CANCER - at least there are doctors for cancer!

4. I also told him that we DON'T have radically different

manifestations of this disease - we ALL have brain-fogging and neuro

problems which should be easy to diagnose. Other systems are affected,

but the neuro problems should give it away to any decent physician.

5. The interviewer asked whether Dr. B ever suggested the " normal "

treatment of 10-21 days of doxycycline or if he ever told us that a

controversy exists in this field. I told him that he didn't need to

tell us because his patients have been through 20 or 30 doctors already

who had given up on them. He only gets the " garbage can " cases who

already know who the good guys and bad guys are.

6. The interviewer said Sigal told him that we are like Ayatollah

fanatics about this disease. A more thoughtful member of our group

said " I'm offended that he would use that terminology for sick

people. " I, of course, threw the bomb and said: That's the first time

I agree with Dr. Sigal because WE HAVE NOTHING TO LOSE!!!

7. The interviewer said that Dr. B suggested that there is a conspiracy

between university based scientists and researchers vs. practicing

physicians. I said that the only difference I would have with Dr. B is

that these people ARE NOT scientists or researchers. They are paid

consultants who are lining their pockets with insurance money at our

expense. Further, the GAO is investigating the NIH and CDC. And, I was

at an FDA lecture where the guy who is running the NIH experiment stood

up and said " I already know how this is going to turn out. " That's not

science!

8. As for conspiracies, I likened ours to the Tuskegee experiment. In

Tuskeegee, they infected poor African Americans with syphilis, which is

a similar spirochete to borrelia/Lyme,

and then failed to treat them for 40 years so they could see the

progression of the disease! I said that ours has only been going on

for 25 years, so maybe in 15 more years the government will be paying

reparations to those of us who are left and apologizing. And the only

person standing between us and Tuskegee is Dr. B.

Lovette

July 13, 2000

Dear Lovette,

WOW! You were GREAT!!!! I pray to God that somebody has the sense not to

edit that. I am so proud to know you. I feel like you're Wallace

(Mel) in Braveheart!!!!!!!!!!! I am in your army all the way. I see Dr B on

Monday and I can't wait to hug him for allowing me to feel this never before

in 8 years feeling of " life. " I'll probably cry. God you are so right to say

we'd rather have cancer. This horrible stress of not knowing if our LLMDs are

going to be here for us is horrendous. I am living proof of a " chronic " Lyme

patient. I just want to smack Siegal and put a hundred ticks on him----no,

1,000,000 and save the other trillion for the " boys up north. "

Proud to be your friend,

Helen

July 13, 2000

Liveitup2@... wrote:

>

> Dear Lovette,

> WOW! You were GREAT!!!! I pray to God that somebody has the sense not to

> edit that. I am so proud to know you. I feel like you're Wallace

> (Mel) in Braveheart!!!!!!!!!!! I am in your army all the way. I see Dr B on

> Monday and I can't wait to hug him for allowing me to feel this never before

> in 8 years feeling of " life. " I'll probably cry. God you are so right to say

> we'd rather have cancer. This horrible stress of not knowing if our LLMDs are

> going to be here for us is horrendous. I am living proof of a " chronic " Lyme

> patient. I just want to smack Siegal and put a hundred ticks on him----no,

> 1,000,000 and save the other trillion for the " boys up north. "

> Proud to be your friend,

> Helen

THANKS HELEN!! And thank you so much for sharing the fact that you are

feeling better. I was so worried about you! But, YOU ARE A

SURVIVOR!! We all are, and the message I wanted to convey to the " other

side " is that we're not going to take this crap anymore - TOFU!!

Lovette

July 13, 2000

Dear Lovette,

Bravo, Bravo, BRAVO!!! I never could have come up with the concise

answers that you did...and that's right, we have NOTHING TO LOSE!!! You

skewered the Weasel! Now let's hope that Dateline does your interview

justice.

Without commenting on each of your answers, I thought that they all were

right on! Great job! We are very fortunate to have you fighting for us

all...especially when you've had to deal with your latest problems.

Grateful Hugs,

Joan LI NY

July 13, 2000

Dear Lovette,

You were great--I'm glad you got on instead of me (I was bumped for a man).

Are we

going to start the Green Panthers or something? BTW, did you ever hear of

disability

having to be used to pay alimony in a divorce settlement?

Right on!! (I know, corny from the 60's).

Eileen

July 13, 2000

Hi,

When is this Dateline segment going to be aired? I would like to watch.

Thanks - Marie

July 14, 2000

Dear Lovette:

Congratulations. You did great.

hugs,

lea

>

> Dear Friends: Yesterday, I was interviewed along with a panel of 4 other

> of Dr. B's patients. Lenny Sigal had been interviewed earlier that day

> and has said that he had never met a chronic lyme patient. I want to

> report to you what I said to Dateline in case it gets edited out:

>

> 1. I told them the reason Sigal said that is because he's an " insurance

> whore. " That's a legal term for doctors who testify against patients

> for money from insurance companies. And, he goes around delivering

> lectures to people that say that Lyme disease is overdiagnosed and

> overtreated. Well it is underdiagnosed and undertreated.

>

> 2. To the question of what would you do if Dr. B loses his license? I

> said: If you take away our doctors, you take away our hope. If you take

> away our hope WE HAVE NOTHING TO LOSE! To which the interviewer said:

> That sounds like a threat. I said: It is - we will take it to the

> courts, we will take it to the streets, we will take it to Congress, and

> if I fall, there are a 1000 other people to take my place.

>

> 3. The interviewer asked if it made us " feel better " to have a

> diagnosis [obviously parroting Sigal] of Lyme so that at least we could

> call it " something. " I said - ABSOLUTELY NOT!! - I'd rather have

> CANCER - at least there are doctors for cancer!

>

> 4. I also told him that we DON'T have radically different

> manifestations of this disease - we ALL have brain-fogging and neuro

> problems which should be easy to diagnose. Other systems are affected,

> but the neuro problems should give it away to any decent physician.

>

> 5. The interviewer asked whether Dr. B ever suggested the " normal "

> treatment of 10-21 days of doxycycline or if he ever told us that a

> controversy exists in this field. I told him that he didn't need to

> tell us because his patients have been through 20 or 30 doctors already

> who had given up on them. He only gets the " garbage can " cases who

> already know who the good guys and bad guys are.

>

> 6. The interviewer said Sigal told him that we are like Ayatollah

> fanatics about this disease. A more thoughtful member of our group

> said " I'm offended that he would use that terminology for sick

> people. " I, of course, threw the bomb and said: That's the first time

> I agree with Dr. Sigal because WE HAVE NOTHING TO LOSE!!!

>

> 7. The interviewer said that Dr. B suggested that there is a conspiracy

> between university based scientists and researchers vs. practicing

> physicians. I said that the only difference I would have with Dr. B is

> that these people ARE NOT scientists or researchers. They are paid

> consultants who are lining their pockets with insurance money at our

> expense. Further, the GAO is investigating the NIH and CDC. And, I was

> at an FDA lecture where the guy who is running the NIH experiment stood

> up and said " I already know how this is going to turn out. " That's not

> science!

>

> 8. As for conspiracies, I likened ours to the Tuskegee experiment. In

> Tuskeegee, they infected poor African Americans with syphilis, which is

> a similar spirochete to borrelia/Lyme,

> and then failed to treat them for 40 years so they could see the

> progression of the disease! I said that ours has only been going on

> for 25 years, so maybe in 15 more years the government will be paying

> reparations to those of us who are left and apologizing. And the only

> person standing between us and Tuskegee is Dr. B.

>

> Lovette

>

January 9, 2001

In a message dated 1/9/01 10:19:42 PM Central Standard Time,

Kent_Moreno@... writes:

> Hi!

>

> Did anyone see Dateline this evening? A very disturbing story where a

> Mother severely physically abused her Quadruplet children. The level of

> abuse was beyond comprehension; broken bones galore, the children were

> shaken so hard that the head trauma's resembeld those of people in a car

> accidents, permanent brain damage to two of the children... The attorney

> for the parents tried to blame the injuries to the quadruplets on her 6

> year old daughter who has Down Syndrome. I couldn't believe it. Luckily

> neither could the jury. The woman got over 100 years in prison. The

> Father, who was convicted of not protecting the children got just 5 years.

>

> Very Very disturbing on many levels.

>

> Take care,

HI Kent

I just caught that last end of the show, Kaite came to get me when she saw

it. Heehee I immediately IMed Joy and to see this. being in AZ

was able to catch the show lolol she's an hour behind me I did a search

for the show on the NBC web site and it will probably be up tomorrow. While

searching I found this offensive web site that I just posted about.

It saddens me to think this child went to the grandma who also said she

thought a hurt the babies

Kathy mom to Sara 9..........a was a beautiful little 6 yr. old

January 9, 2001

This list followed the story as it unraveled. You must have been too busy

listening to that funky music you like...lol!!

The little girl with DS was darling. Makes you wonder what type of abuse she

suffered before her parents arrest. As a former CPS worker, I have alot of

questions that were not asked or answered. I'll be interested if the appeal

is upheld or not. As an adoption worker, I'm glad to see that the kids were

adopted by their foster families. I think if the family were in the home as

much as what was stated that they are, they know more than what they have

said. Others in the family must have looked the other way, too..that is MHO.

January 9, 2001

I watched the Dateline show tonight. Being in AZ I had watched the story as

it happened, horrified. I was no less horrified and again reduced to tears

for all those innocent children!

After the Dateline show, our local news station did an Update. The kids were

all 4 legally adopted today, their 3rd birthday. They changed their names.

Three different families adopted them, but have chosen to remain in close

contact. The three children looked good, considering. Even tho they

obviously have problems they are happy and loved. , now ,

obviously the most affected looked loved, and happy on his new father's lap.

While it is questionable how aware he is of what is happening around him his

parents said that he responds and laughs when they play with him. He is now

a part of a large family who conisder him a blessing.

There was no update on a, the 5th and silent victim in this case.

January 10, 2001

This is an update on the quads, but it doesn't say anything about the older

sister.

http://www.msnbc.com/local/azrep/azrbga39shc.asp

Bengie

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

January 10, 2001

That is very, very disturbing......kinda glad I didn't see it : (

Jackie

January 10, 2001

In a message dated 1/10/01 10:17:43 AM Central Standard Time,

writingawrong@... writes:

> Minti,

>

> I watched the show as it aired Pacific Time. At the end of the segment it

> mentioned that a is presently living with her grandmother. The same

lady

>

> that testified that it was a " possibility " that her grandaughter could

have

> caused that amount of damage to those babies.

>

> I think it's so unfortunate that a was not given a new home as well.

The

>

> grandmothr is obviously unable to protect her.

> Sandy

HI Sandy

I thought the same thing, and the Mom (who obviously pleaded innocent) stated

that her Mom was on the list of " who could have done it " .

I will definitely add a to my prayers at night

Kathy mom to Sara 9

January 10, 2001

Did anyone e-mail the author of this story to ask about the sister

with DS? I will, but I didn't want to e-mail him if he is gotten a

hundred e-mails asking already.

Minti

>

> This is an update on the quads, but it doesn't say anything about

the older

> sister.

>

> http://www.msnbc.com/local/azrep/azrbga39shc.asp

>

> Bengie

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

January 10, 2001

Minti,

I watched the show as it aired Pacific Time. At the end of the segment it

mentioned that a is presently living with her grandmother. The same lady

that testified that it was a " possibility " that her grandaughter could have

caused that amount of damage to those babies.

I think it's so unfortunate that a was not given a new home as well. The

grandmothr is obviously unable to protect her.

Sandy

>From: " Minti " <froh@...>

>egroups

>Subject: Re: Dateline

>Date: Wed, 10 Jan 2001 15:50:41 -0000

>

>Did anyone e-mail the author of this story to ask about the sister

>with DS? I will, but I didn't want to e-mail him if he is gotten a

>hundred e-mails asking already.

>Minti

>

> >

> > This is an update on the quads, but it doesn't say anything about

>the older

> > sister.

> >

> > http://www.msnbc.com/local/azrep/azrbga39shc.asp

> >

> > Bengie

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at http://explorer.msn.com

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

January 10, 2001

I saw this and couldn't believe it. What was more

disturbing to me than the attorney was the grandmother

going along with it and saying the little girl with DS

probably did it, and now the grandmother is raising

her. And the mother, well, I won't comment on her, I'd

probably get kicked off the list for using that type of

language.

--

Sharon, Mom to (9, DS) and (5)