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Answers to the posted questions:

<italic>>From: ne Kieffer <<theocean@...>

>

>Hell, sorry to ask this...but can you tell us a little bit about how

you

>take it and what it actually is? Is is somone elses blood, do you

take

>it by injection? Can it be ordered in the US by prescription?

>

>Also, what where symptoms before taking it? Did you have fevers and

>constant colds or did you not get fevers and colds? thank you, JL

</italic>I did (do) not have fevers or colds. I mostly have cognative

and fatigue issues. But this trial has a bunch of Fibro ppl too and

they are reporting major increases in functioning. It is taken

sublingually. How the stuff works and the science behind it is a bit

confusing to me. There is a ton of info on it on the web though. This

isn't Chiropractic or some herb from China though! The concept and

science has been around for a while but apparently the processing

issues have made it impractical. Chislom has a angle on this that no

one else has.

<italic>From: " , T. " <<S@...>

How much does it cost? What type of symptoms did you have?

Does it require a Dr.'s scrip?

Thanks

Steve

</italic>I actually don't know how much it costs. The trial was free

but I had to get a speical Lyme test that cost $300. Most of the stuff

is targeted to the Lyme bug. No Dr. prescrip its a " vitimine " type of

product.

<italic>From: ne Kieffer <<theocean@...>

Also, at the sight you gave us(not you stephen, I can't find the

orginal

posters post to the list sorry) but at the site he posted to this list

it really looks like they are just trying to sell the products. Also,

has anyone tried that betamax that is on the site as well? I guess

its

glucan or somthing like that. JL

</italic>Yes that site is a sales site. They had a bunch of previous

batches of the stuff that didn't get any widespread trial in the CFS

community (mostly aids and from what I heard it was effective). I tried

it for 3 months and did function a bit better, actually I only noticed

how good it worked until I stopped for a while and back slid, then some

more brought me back up again to where I was.

The batch I'm on now was specifically cooked up for CFS ppl. It has all

sorts Transfer Factors for the Lyme bug and others. The beta Glucon is

the real deal too. It is a Macorphage stimulator with all sorts of

scientific proof about its effacacy. I don't know how increased

Macrophages help us but it I figured it can't hurt. I'm also on the

Beta as part of the trial but have been taking it for a while. It seems

to help stop colds etc.

In the spirit of full disclosure I admit that I have traded some of my

professional services for access and free products, we have also done a

couple of small printing projects for pay. The trial I'm participateing

in will be published though, and the Chisolom Bio folks just presented

the preliminary stuff at a International Transfer Factor Society

conference in Mexico. I was asked not to discuss this trial with anyone

until publishing but the preliminary results got Chislom very excited

and gave me the go ahead to post these findings. I am not being paid

any commision, nor am I on the payrole, but I assume that if they start

making some money (which they haven't up until this point) that my

company will receive some more for-pay projects.

I am not back to 100% and as far as I know knowone else is either, but

the feedback so far is all good. I've heard the positive stuff from

three people: The sick Dr. who is running the trial locally, her sick

secratary, and the Chislom folks who are friends also.

Chute and Perrone Chute and Associates are:

Perrone & Chute, Partners In Advertising,

In Marketing,

In Public Relations,

In Print Management,

In Web Development, and

In Multimedia.

http://www.PartnersIN.com/

121 69th Ave. N.

St. sburg, Florida 33702

813-521-1795

FAX 813-525-5599

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thanks for answering. I haven't been able to find a TF that has HHV-6

in it yet, have you?

n wrote:

>

> From: n <jrobinso@...>

>

> Transfer factor ( TF) is an immune modulator while antivirals are, well,

> antivrals - they kill viruses directly without relying on your own immune

> system. TF works by restoring some ability of some part of your immune

> system to respond to specific bugs. TF is specific like antibodies, in

> that it transfers immunity only to bugs that the donor animal has immunity

> to. They can be viruses, bacteria, mycoplasmas or whatever.

>

> If you buy generic transfer factor, it contains TF which help you fight all

> the bugs that the cows or humans had natural immunity to. This is a bit ho

> hum, so some manufacturers of TF specifically innoculate the animals with

> particular bugs like HHV-6, EBV etc which means that the resulting TF will

> transfer some immunity for at least those bugs etc to you.

>

> Generally it seems, as far as I can make out, to be a reasonable idea to

> take TF at the same time as any antivirals. You should read HHV6 site

> http://hhv6.com/ for useful info on this. They are suggesting antivirals

> at the same time as interferon (beta), another immune modulator. They also

> discuss in detail the various antivirals which may help against HHV-6 which

> I think answers your last question.

>

> JR

>

> At 16:33 29/04/99 , you wrote:

> >From: ne Kieffer <theocean@...>

> >

> >Is the CFS transfer factor from that company called Chilosm(I think its

> >called that) almost like taking an anti-viral? I think its a transfer

> >factor for EBV, candida, and other things? Another words, I am trying

> >to understand if taking a transfer factor is at all like taking an

> >antiviral? I tried valtrex for a while but it gave me a huge headache

> >so I had to stop...it actually helped me a little so that was a bummer?

> >Has anyone else tried Valtrex and it there a better antiviral for

> >viruses like HHV-6? JL

> >

> >------------------------------------------------------------------------

> >Attention small business owners:

> >

> >Did you know that ONElist is a great way for small business owners

> >to stay in touch with their customers?

> >------------------------------------------------------------------------

> >This list is intended for patients to share personal experiences with each

> >other, not to give medical advice. If you are interested in any treatment

> >discussed here, please consult your doctor.

>

> n

> Tel/Fax +61-2-6239 6226

> Canberra, Australia

>

> ------------------------------------------------------------------------

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I tried valtrex & it had no effect (good or bad) I think that I have only

heard of one person on the net that got any benefit from valtrex.

> transfer factor

>

> From: ne Kieffer <theocean@...>

>

> Is the CFS transfer factor from that company called Chilosm(I think its

> called that) almost like taking an anti-viral? I think its a transfer

> factor for EBV, candida, and other things? Another words, I am trying

> to understand if taking a transfer factor is at all like taking an

> antiviral? I tried valtrex for a while but it gave me a huge headache

> so I had to stop...it actually helped me a little so that was a bummer?

> Has anyone else tried Valtrex and it there a better antiviral for

> viruses like HHV-6? JL

>

> ------------------------------------------------------------------------

> Attention small business owners:

>

> Did you know that ONElist is a great way for small business owners

> to stay in touch with their customers?

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

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Transfer factor ( TF) is an immune modulator while antivirals are, well,

antivrals - they kill viruses directly without relying on your own immune

system. TF works by restoring some ability of some part of your immune

system to respond to specific bugs. TF is specific like antibodies, in

that it transfers immunity only to bugs that the donor animal has immunity

to. They can be viruses, bacteria, mycoplasmas or whatever.

If you buy generic transfer factor, it contains TF which help you fight all

the bugs that the cows or humans had natural immunity to. This is a bit ho

hum, so some manufacturers of TF specifically innoculate the animals with

particular bugs like HHV-6, EBV etc which means that the resulting TF will

transfer some immunity for at least those bugs etc to you.

Generally it seems, as far as I can make out, to be a reasonable idea to

take TF at the same time as any antivirals. You should read HHV6 site

http://hhv6.com/ for useful info on this. They are suggesting antivirals

at the same time as interferon (beta), another immune modulator. They also

discuss in detail the various antivirals which may help against HHV-6 which

I think answers your last question.

JR

At 16:33 29/04/99 , you wrote:

>From: ne Kieffer <theocean@...>

>

>Is the CFS transfer factor from that company called Chilosm(I think its

>called that) almost like taking an anti-viral? I think its a transfer

>factor for EBV, candida, and other things? Another words, I am trying

>to understand if taking a transfer factor is at all like taking an

>antiviral? I tried valtrex for a while but it gave me a huge headache

>so I had to stop...it actually helped me a little so that was a bummer?

>Has anyone else tried Valtrex and it there a better antiviral for

>viruses like HHV-6? JL

>

>------------------------------------------------------------------------

>Attention small business owners:

>

>Did you know that ONElist is a great way for small business owners

>to stay in touch with their customers?

>------------------------------------------------------------------------

>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

n

Tel/Fax +61-2-6239 6226

Canberra, Australia

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Chisolm say they do make an HHV6 specific TF - I quote from an email they

sent me while they were in a communicative mood. They have never responded

to my response to their email:

----------------------------chisolm email------------------------------------

Chisolm Biological Laboratory

1. IMMUNFACTOR 1:

Contains antigen-specific dialyzable leukocyte extracts [Transfer Factors

(TF)] against (1) HIV; (2) pneumocystic carinii; (3) human tuberculosis;

(4) bovine tuberculosis; (6) herpes 1; (7) herpes 2; (8) HHV6; (9) candida

albicans; and (10) cryptosporosis. Supports immune function for persons

affected by HIV.

ImmunFactor 1P:100-mg gel capsules (20-mg antigen-specific TF, 80 mg beta

glucan), 40 capsules per bottle.

ImmunFactor 1DS:100-mg gel capsules (33-mg antigen-specific TF), 30

capsules per bottle.

ImmunFactor 1T:100-mg gel capsules (67-mg antigen-specific TF), 90 capsules

per bottle.

----------------------------------------------------------------------------

-----------

Animune have it listed as a " soon to be completee project " .

JR

>From: ne Kieffer <theocean@...>

>

>thanks for answering. I haven't been able to find a TF that has HHV-6

>in it yet, have you?

n

Tel/Fax +61-2-6239 6226

Canberra, Australia

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Is your daughter still doing well or did she get worse again after going

off the transfer factor she was on? Is there anyway we can get some of

this stuff she did so well on? JL

GAILRONDA@... wrote:

>

> From: GAILRONDA@...

>

> In a message dated 5/11/99 11:18:21 PM Eastern Daylight Time,

> SWNGDABOAT@... writes:

>

> << Is anyone taking Transfer Factor? I'm curious about benefits,or lack of I

> guess...... >>

> Haven't heard of anyone yet on this list having success with it. My daughter

> had wonderful success with it years ago, but it was not the same transfer

> factor. It was made from donations of relatives after they underwent

> lymphopheresis. About 6 years ago, she was getting it directly from Dr.

> Pizza in Italy where he was using medical students. That, too, helped.

> After that, she tried some from a company. It didn't work at all. I only

> know of extremely severe patients who have tried the TF from the new

> companies. Anyone on line tried it successfully? With a membership of

> nearly 200 on this list, there should be someone......

> Gail

>

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>

> Join a new list today!

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> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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In a message dated 5/11/99 11:18:21 PM Eastern Daylight Time,

SWNGDABOAT@... writes:

<< Is anyone taking Transfer Factor? I'm curious about benefits,or lack of I

guess...... >>

Haven't heard of anyone yet on this list having success with it. My daughter

had wonderful success with it years ago, but it was not the same transfer

factor. It was made from donations of relatives after they underwent

lymphopheresis. About 6 years ago, she was getting it directly from Dr.

Pizza in Italy where he was using medical students. That, too, helped.

After that, she tried some from a company. It didn't work at all. I only

know of extremely severe patients who have tried the TF from the new

companies. Anyone on line tried it successfully? With a membership of

nearly 200 on this list, there should be someone......

Gail

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SWNGDABOAT@... wrote:

>Is anyone taking Transfer Factor? I'm curious about benefits,or lack of I

>guess......

Reply: At least Stania and I use Transfer Factor.

I attach a copy of a recent post by me on this.

If you filter your list post subjects on " Transfer factor " or " Re: Transfer

Factor " you will find many posts on this question.

JR

----------------------------old post re transfer

factor----------------------------------------

Perhaps I am a TF junkie. I first had some by injection made from pooled

(human) blood in 1989 and it saved me from any infection for 2 years. I

gradually returned to my former constantly infected state over the years

and crashed in 1995. I then got some TF made up from the blood of my

sister. This stopped most of my infection and made me feel considerably

better in general.

I then started researching TF on the web, because the doctor who was

organising mine said they were going to stop making it. Research seems to

indicate that it is well abosrbed and effective if taken orally. I found

and purchased 3 different types of oral TF:

1) Transfactor from an Italian company - specific for a range of viruses.

I took it and felt OK, had no infection, but no great change in the general

CFS condition.

2) 4-Life a MLM company make one made from colostrum (bovine). I took this

about a year ago at the same time as trying some other things (mostly ideas

from Keep Hope Alive site mentioned on this list - highly recommended by

me) and in general felt MUCH better. I attribute most of this to the OTHER

things, and the freedom from infection to the TF. But - who knows?

3) I have the immundynamics TF bottle I wrote earlier about. I have not

tried this yet - have been waiting for a suitable time to try it. This

will be soon.

In general, I believe the TF's saved my life as I know it, but they haven't

cured the CFS. They certainly gave me a life back because without them I

was acutely infected by something most of the time. Touch wood I have just

about forgotten about " infections " and probably have less of them than most

people.

I am one of those " susceptible to infection " PWC's. I don't know whether

TF would work or not for those who already don't seem to get infections.

It could work even better on those people.

I read somewhere that Immundynamics/Chisolm are in the middle of trials on

a new formulation for CFS (possibly on this list), but have been unable to

discover any more about it from Chisolm or anywhere else. If anyone knows

about this please tell us.

Good luck...

n . Canberra, Australia.

n

Tel/Fax +61-2-6239 6226

Canberra, Australia

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Thank You n and all who responded to my Transfer Factor question!!!

You guys are the best!

PS......I notice mention of TF that 'didn't work' and I was wondering if you

got it through the French Company- Dynamune?

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In a message dated 5/12/99 1:53:56 AM Eastern Daylight Time,

theocean@... writes:

<< Is there anyway we can get some of

this stuff she did so well on? JL >>

She's a progressive patient, so has gotten worse with each year. If there

was a way to get the original TF she took, I'd be announcing it to the

world....when she went off, she just slowly returned to being as sick as

before and then went downhill yearly. There were adverse effects from taking

it.

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Stania, yours sounds like the TF my daughter took which worked. They stopped

producing it here because of the government baring its teeth.

Gail

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hi,

TF I take is made from human blood and it is non-specific. I am one of those

who get infections only rarely but TF improved most of my symptoms (except

of

NMH). For the first time I was given it I got only five injections. Several

weeks later my problems started to return. The second time I got a shot

every two weeks which worked very well but they stopped its production

(still do not know why). I got the last one one month ago. I am still quite

ok but am afraid what if I won't get it anymore. I will know more in june.

Stania

Re: Transfer Factor

>From: SWNGDABOAT@...

>

>Thank You n and all who responded to my Transfer Factor question!!!

>You guys are the best!

>PS......I notice mention of TF that 'didn't work' and I was wondering if

you

>got it through the French Company- Dynamune?

>

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>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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Most practicioners will not give it in the from of shots as they might transmit

a virus from the animal. I questioned my doc about this and I am taking it

orally.

At 02:13 PM 11/12/99 -0500, you wrote:

>From: Schweitzer <schweit2@...>

>

>I am considering what I should do when I finish one year of Ampligen --

>at $40,000 a year (not recoverable through insurance, sigh), it's pretty

>steep.

>

>Someone who was on Ampligen back in 1991 told me it helped him to take

>Transfer Factor when he went off. He said he got it in shots.

>

>So ... what's the deeal with Transfer Factor, how do I get it, is it

>true you can get it in pills nowadays? (My local health food stores

>have never heard of it, but then again, Delaware is a surprising

>backwater given that we are sandwiched between Philadelphia and

>Baltimore on the East Coast).

>

> Schweitzer

>mailto:schweit2@...

>

>>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

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<<< - try a DejaNews search on alt.med.cfs under " Debbie Sherman " .

She is in a trial right now for HHV-6 TF (don't know if it's HHV-6a or b

- that specific!). There is general vs specific TF >>>

no need to search - here i am!! :-)

the stuff isn't available for sale yet. this is something else i forgot

to ask about on my last visit.

and dr brewer thinks we need it for at least six months. so, IF i'm on

the placebo, and i get three bottles of the real stuff at the end,

neither me nor my daughter is taking it till we can get a six month

supply.

oh! and they are capsules - about the size of a 10mg prozac capsule, i

think. and it is hhv6a specific, if not both.

@}{~{<<~~~~~~~~~~~~~~~~~~~~

debbie s. - dlsherman@...

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--

I'm involved in a study with a doctor in Kansas City using Transfer Factor.

It has been developed into a pill form from cows who have been innoculated

with HHV6. I'm seeing some positive results. The doctor is changing dosing

schedule to daily this next month.

The company he is working with is Animune [www.animune.com] and the HHV6

Transfer Factor should be on the market in January or February. You can

check them out through their web site and I can also keep you posted to

availability.

Barb [Topeka, KS]

In a message dated 11/12/99 1:13:14 PM Central Standard Time,

schweit2@... writes:

<< From: Schweitzer <schweit2@...>

I am considering what I should do when I finish one year of Ampligen --

at $40,000 a year (not recoverable through insurance, sigh), it's pretty

steep.

Someone who was on Ampligen back in 1991 told me it helped him to take

Transfer Factor when he went off. He said he got it in shots.

So ... what's the deeal with Transfer Factor, how do I get it, is it

true you can get it in pills nowadays? (My local health food stores

have never heard of it, but then again, Delaware is a surprising

backwater given that we are sandwiched between Philadelphia and

Baltimore on the East Coast).

Schweitzer

mailto:schweit2@... >>

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In a message dated 11/14/99 9:58:48 AM Central Standard Time,

dlsherman@... writes:

Debbie & :

I responded earlier but thought I'd add in that I had my appointment with Dr.

Brewer last Thursday and he hopes to see the HHV6 Transfer Factor capsules on

the market by January or February. Also, Debbie, he indicates he thinks

smaller doses daily is going to be a better dosing schedule than on and off

as they were doing early in the study.

Barb [Topeka, KS]

<<

no need to search - here i am!! :-)

the stuff isn't available for sale yet. this is something else i forgot

to ask about on my last visit.

and dr brewer thinks we need it for at least six months. so, IF i'm on

the placebo, and i get three bottles of the real stuff at the end,

neither me nor my daughter is taking it till we can get a six month

supply.

oh! and they are capsules - about the size of a 10mg prozac capsule, i

think. and it is hhv6a specific, if not both >>

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<<< I responded earlier but thought I'd add in that I had my appointment

with Dr. Brewer last Thursday and he hopes to see the HHV6 Transfer

Factor capsules on the market by January or February. Also, Debbie, he

indicates he thinks smaller doses daily is going to be a better dosing

schedule than on and off as they were doing early in the study.

Barb [Topeka, KS] >>>

YAY!!!!! barb, thanks!! are they extending the study, too? today is

the last of my 3rd bottle, so i will be officially thru. you haven't

gone thru 3 bottles yet, have you?

and gosh darnit! last i heard, it was 'sposed to be nov. or dec. . . .

@}{~{<<~~~~~~~~~~~~~~~~~~~~

debbie s. - dlsherman@...

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In a message dated 11/15/99 8:08:33 AM Central Standard Time,

dlsherman@... writes:

<< <<< I responded earlier but thought I'd add in that I had my appointment

with Dr. Brewer last Thursday and he hopes to see the HHV6 Transfer

Factor capsules on the market by January or February. Also, Debbie, he

indicates he thinks smaller doses daily is going to be a better dosing

schedule than on and off as they were doing early in the study.

Barb [Topeka, KS] >>>

YAY!!!!! barb, thanks!! are they extending the study, too? today is

the last of my 3rd bottle, so i will be officially thru. you haven't

gone thru 3 bottles yet, have you?

and gosh darnit! last i heard, it was 'sposed to be nov. or dec. . . . >>

Debbie--

I have been through three dosages. The way I understand it, TF will stay

available through Brewer until it goes out on the market, so we will have a

continuous supply. Will be very important when we're going to daily dosages.

Barb

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I think what I'm looking for is just the plain Transfer Factor (whatever

that is) -- not the one specifically created for HHV-6. I''m HHV-6

clean right now anyway!

Thanks for clarifying things -- now I understand what the study is about

(testing the HHV-6-specific Transfer Factor).

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In a message dated 1/13/00 1:07:50 PM Eastern Standard Time,

MWSesk@... writes:

<< I believe the

doctor's name was Hugh Fudenberger >>

Marilyn, his name is H. Hugh Fudenberg. My daughter and I went to him in the

mid-80's. She was helped only with an educated donor. She was also on

Pisa's original TF from Italy and was helped but when it was commercial, it

did her no good. If you want more information about Dr. Fudenberg, please

backchannel me.

Gail

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The doctor's name is Fudenberg and he is in South Carolina. Not sure if he

is still practicing, as he is really up there in years.

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hi karen!

the transfer factor that was used in the study i was in, and that all 3

of us are slowly improving on, is Formula 560, from immunity today -

http://www.immunitytoday.com

@}{~{<<~~~~~~~~~~~~~~~~~~~~

debbie s. - dlsherman@...

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,

There are several transfer factor products....

There are polyvalent antigent specific transfer factors that only contain the

transfer factor for one specific pathogen...These need to be prescribed by

specialists and are very expensive...

There is the Formula 560 Transfer Factor by Immunity Today, which is extracted

from bovine colostrum and adds COQ10......It contains both non-specific and

antigen specific transfer Factors. It sells for $89.95 for a thirty day

supply..

There is several Transfer Factor products available form 4Life Research...The

pure TF formula which contains both non-specific and polyvalent antigent

specific transfer factors....It sells for $34.95 for a 30 day

supply.........Transfer Factor Plus adds IP6, glyconutrients, Thymic factors and

Shiitake mushrooms which boost T-Cell function and helps produce

antibodies....This product sells for $49.95...There are also TF products for

children and pets...............

Hope this helps,

Ron Santoro

http://home.earthlink.net/~rsfriar/index.html

-------------------------

patrickmm4@... wrote:

ok, I dont get this transfer factor stuff. just what *is* transfer factor?

whats the difference between transfer factor by prescription and transfer

factor like the stuff in TF 560 (if I have it right)?

---------------------------------

---------------------------------

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

,

---------------------------------

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> I'm confused. I was told by my doctor that Transfer Factor for

HHV6

was

> $270 per month. Now I'm hearing $50 per month. Are we talking

about the

> same thing?

>

> Cindi

>

Nope, not the same thing. The product for $50/mo is best understood

as a general immune stimulant. It is targeted at the mass market,

not

necessarily at people with specific immune problems or infections.

The product at $270 is called a targeted or antigen specific transfer

factor. It provides your immune system with specific information on

how to attack a pathogen that I assume you have tested positive for.

If you can't afford the HHV6 targeted TF, the cheaper brand is better

than nothing, as it has been show to stimulate the activity of NK

cells. Nk cells are our primary way of fighting viral infections.

At

least some people are reporting dramatic improvement using the

antigen

specific TF, whereas there is no information I know of yet regarding

the 4Life brand with CFS.

TF is generally a long term therapy, so it gets expensive after a

while. Immupro is supposed to produce the same result with HHV6 IF

you can tolerate a high enough dose.

Luke

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Hi Luke & all,

You mentioned NK cells, I just want to mention that I have several

bottles of MGN-3 which is considered one of the best NK cell stimulators, so

if anyone wants to try it, let me know I have it at about half price.

Al

Re: Transfer Factor

> > Cindi

> how to attack a pathogen that I assume you have tested positive for.

>

> If you can't afford the HHV6 targeted TF, the cheaper brand is better

> than nothing, as it has been show to stimulate the activity of NK

> cells. Nk cells are our primary way of fighting viral infections.

> At

> least some people are reporting dramatic improvement using the

> antigen

> specific TF, whereas there is no information I know of yet regarding

> the 4Life brand with CFS.

>

> TF is generally a long term therapy, so it gets expensive after a

> while. Immupro is supposed to produce the same result with HHV6 IF

> you can tolerate a high enough dose.

>

> Luke

>

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