Re: Group members age - Just to see the differences

[Guest guest]

Hi all....jumping in again....

I am 30 yrs old, female, live in Indiana. I have had P for 16 years,

and PA for 7. I wasn't diagnosed with the PA until 2 years ago

though......you all know how that is.

Tamara

>

> I'm Alana from Melbourne, Australia.

>

> I'm 29 and i've had Arthritis for 25 years.

>

> love,

> a x

>

> http://jonze.org/

[Guest guest]

Greer

Currently 49 (but I think I'm 35)

Onset of P - life long

Onset of PA - age 18-20

Official diagnosis - age 43

[Guest guest]

49 -PA for 5 years, fibromyalgia 35 years

[Guest guest]

Harry, age 39, P for 20 years, PA for almost 2 years

[Guest guest]

Age 60, P for 20ys, PA for 19yrs 6months, Started About 6 months after I first

noted P.

Regards

Graham Melamed

406 Pleasant Ways,275 Beach Road,

Sea Point. Cape Town. 8005

South Africa

Phone 27+0214332279 mobile 27+0835644408

[Guest guest]

I will be 57 next month - was diagnosed with arthritis when I was 17. In

my early to mid 30's I was diagnosed with psoriatic arthritis along with two

other types. Being a foster baby and then adopted I lacked medical history

all my life. My 34 year old son is starting to show signs of PA which

really makes me sad. I found my birhmom 9 years ago and asked for medical

history. There is no known arthritis sufferers from a younger age but my

great-aunt was wheel-chair bound for many years so she is most likely my

connection. Back then they told you if it hurts, don't do it. They had no

meds like we do now.

Currently I talke MTX (which I have taken for about 25 years), bextra since

last winter/spring, folic acid (don't forget to take it!)

prevacid...........what PA person who has tried all the non-steriodal drugs

doesn't need this drug, and enbrel injections twice a week. I am also on a

few other drugs for other accumulatiave health issues. I was on remicade

infusions for about 4 1/2 years and they were good but after even moving

them to 6 weeks apart, I was miserable and was then changed to enbrel.

Currently I'm maxed on drugs (per rheumy) and have such awful pain in hip,

lower back and pelvic. Had bone scan, x-rays and there showed inflamation.

Now doing PT w/e-stim, ultrasound and some mild manipulation along with 2

exercizes. If this doesn't work in 2 weeks for relief he said he would try

some injections into the SI, pelvic and hip joint where my leg and hip join.

Not looking forward to that so hoping for some relief from the PT.

Nanc in Penna

[Guest guest]

To answer the age question...

I'm in Northern Idaho (the states), I'm 41 and I've had P for about 21

years and PA for 19 years... That said, I've been very lucky ~ I had a major

flare up 19 years ago(when they didn't know about PA and there were no real

drugs) and then just minor issues until this spring... It wasn't until this

spring I was finally diagnoised, although I kept telling the doctors this is

what was wrong...

[Guest guest]

> - I am 37 and was diagnosed three years ago - but had

arthritis since I was around 20 years old.

>

> I thought it would be cool to get the ages of the member in the

> group, so Ill start....

>

>

> 37 have had PA for 2.5 years.

[Guest guest]

Deb 44, have had PA for 5 years. (Diagnosed at least)

[Guest guest]

Sharron (43), PA for 7 years, correctly diagnosed four years ago.

Experienced mild psoriasis in early teens, and did not develope

arthrits until immediately after the birth of my third child at 36.

> > - I am 37 and was diagnosed three years ago - but had

> arthritis since I was around 20 years old.

> >

> > I thought it would be cool to get the ages of the member in the

> > group, so Ill start....

> >

> >

> > 37 have had PA for 2.5 years.

[Guest guest]

helen n. wales 39yrs had pa for 6yrs

SEE YOU LATER

---------------------------------

ALL-NEW Messenger - all new features - even more fun!

[Guest guest]

Maureen I have had PA for 25 years.

[Guest guest]

hi all,

karen, 52, had PA for 4 years (diagnosed for 2), and p for 20 years.

> > - I am 37 and was diagnosed three years ago - but had

> arthritis since I was around 20 years old.

> >

> > I thought it would be cool to get the ages of the member in the

> > group, so Ill start....

> >

> >

> > 37 have had PA for 2.5 years.

[Guest guest]

Hi, haven't posted in several weeks. I am Sharon, aged 60. PA dx

3 /2 years ago...arthritis symptoms began 10 years ago...took that

long to get a diagnosis!

Sharon

[Guest guest]

My name is Joanne, age 71. Have had ostoarthritis 12 years. PA dx 7years ago.

[Guest guest]

I'm Kathy, live in NYC, will be 56 this year. Diagnosed with RA when I was 16

and with PA about 4 years ago when the first signs of P appeared. 40 years of

living with arthritis - happy anniversary to me! However, my life has been

filled with much joy and I wouldn't trade it for someone else's.

Kathy F.

[Guest guest]

Hi

I was diagnosed 1.5 years ago, but have had symptoms for the past 8 years.

Just turned 58.

Barb

[Guest guest]

We did this just a few months back, but...

(idaho) 41 ~ P and PA for 20+ years, but was in remission for 18 of

those... Diagnoised 8 months ago...

[Guest guest]

Hi

Margaret - UK - 58 (just-last weekend), first major flare summer 2001,

diagnosed Jan 2002, P 6/12 months prior, although I have had very bad dandruff

for

ever - makes you wonder if it was P. Also various aches and pains, which

were dismissed as being 'just one of those things' for a few years

Margaret

[Guest guest]

FYI,

If you go to the polls there is a breakdown on this.

Stay Well,

[Guest guest]

> > - I am 37 and was diagnosed three years ago - but had

> arthritis since I was around 20 years old.

> >

>Hi. I'm Carolyn and I'm 47. My symptoms began about 3 1/2 yrs.

ago. It took me over two years to get diagnosed. My rhummy jsut

told me on Tues. that he's not certain now. I have to go back to a

(new) dermmy now and start the process all over on confirming this

dx. I thought that I had come so far with the acceptance of this

diease and have become so proactive since joining this group. I

now wonder if I'm going to lose all of you if my diagnosis is

changed AGAIN. I think that I can handle just about anything if I

know what I am dealing with. I have a very well respected rhummy

who seemd to be so on top of everything. All my other docs always

say how through he is. I trusted him to know and now he doesn't and

I don't feel so " proactive " any longer. How can I direct my energy

to being such when I don't know what to be proctive about any

longer? The docs don't like the wait and see any longer than I do.

The only problem is that I am the one who is suffering and so very

sad right now over this.

[Guest guest]

, I'm 37 and have had symptoms of pa since 1997

[Guest guest]

I'm in Kansas City MO. I've had symptoms of P

and A since age 11, diagnosis of PA at age 41 -- with

30 years of mis-diagnoses in between!

=====

--------------------------

Stein

www.noblefusion.com/astein

If you're tired of fighting battles with yourself

If you want to be somebody else

Change your mind...

-- Sister Hazel

__________________________________________________

[Guest guest]

margaret,

a belated very happy birthday margaret! was your birthday the 22nd

or the 23rd? (my father's bday is the 21st and my daughter's the

22nd....) - i hope you had a very happy day.

best,

karen

>

> Hi

>

> Margaret - UK - 58 (just-last weekend), first major flare summer

2001,

> diagnosed Jan 2002, P 6/12 months prior, although I have had very

bad dandruff for

> ever - makes you wonder if it was P. Also various aches and

pains, which

> were dismissed as being 'just one of those things' for a few years

>

> Margaret

>

>

>

[Guest guest]

Hi Carolyn,

I'm sorry to hear that your diagnosis has been thrown into doubt again. Why

is the doc wavering? Did he give a reason for doubting himself? Even if it

turned out to be something else, I for one would let you stay in the group

anyway. lol Seriously though I hope it doesn't take them too long to make up

their minds.

With regard to meeting in Miami. Will you pay my airfare? lol

(Scotland)