just wondering

November 13, 2004

,

4 is the maximum. If your hair is part of the problem, trim that area

underneath the magnet, see if that helps.

*---* *---* *---* *---* *---*

Too bad you can't buy a voodoo globe so that you could make the earth spin

real fast and freak everybody out.

--Jack Handley

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

November 13, 2004

,

I thought that size 5 is the maximum. Some places and some people have size

5. My hairdresser cut my hair one month ago to short and still it falls again

and again. Short hair won't work for me, LoL or \_()\_. Ah, well.

Re: Just wondering

,

4 is the maximum. If your hair is part of the problem, trim that area

underneath the magnet, see if that helps.

*---* *---* *---* *---* *---*

Too bad you can't buy a voodoo globe so that you could make the earth spin

real fast and freak everybody out.

--Jack Handley

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

November 13, 2004

,

There are spacers inside. Have you moved things around to put the

magnet closest to your head? Also, no silver, just black, brown and beige.

Perhaps this can be a covered expense by your insurance.

*---* *---* *---* *---* *---*

I'm not tense, just terribly, terribly alert....

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

November 13, 2004

,

I'm think you have the N22 3G. If you have the screw, you can turn it so that

some of it is outside of the area closest to your head and gives you more

holding strength. If not, the magnet from your old BWP should fit in there. I

don't think you've complained of this before so I suspect it's a new problem. I

wonder if your magnet is " sized " wrong.

Alice

>

> ,

> I thought that size 5 is the maximum. Some places and some people have

size 5. My hairdresser cut my hair one month ago to short and still it falls

again and again. Short hair won't work for me, LoL or \_()\_. Ah, well.

>

November 13, 2004

, I'm sorry but, Spacers inside where? LoL. I tired the black 3X and it

still didn't work. [sighs] Hmm, maybe I need to call my audiologist later.

Re: Just wondering

,

There are spacers inside. Have you moved things around to put the

magnet closest to your head? Also, no silver, just black, brown and beige.

Perhaps this can be a covered expense by your insurance.

*---* *---* *---* *---* *---*

I'm not tense, just terribly, terribly alert....

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

November 13, 2004

Alice,

Hmm, the BWP and ESPrit 22 BTE's maget size was all 2x maget. I tired the

brown ESPrit 3G 2x maget Cochlear included in the package with the new n22

ESPrit 3G, and it didn't work, neither.

Re: Re: Just wondering

,

I'm think you have the N22 3G. If you have the screw, you can turn it so that

some of it is outside of the area closest to your head and gives you more

holding strength. If not, the magnet from your old BWP should fit in there. I

don't think you've complained of this before so I suspect it's a new problem. I

wonder if your magnet is " sized " wrong.

Alice

>

> ,

> I thought that size 5 is the maximum. Some places and some people

have size 5. My hairdresser cut my hair one month ago to short and still it

falls again and again. Short hair won't work for me, LoL or \_()\_. Ah, well.

>

November 13, 2004

,

Ok you got the screw in type. What I refered to was the original style

for the 3G, Yeah see what your audie says.

*---* *---* *---* *---* *---*

We Repair what your husband Fixed.

--plumber sign

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

November 13, 2004

,

Okey-dokey, thanks for trying to help me.

Re: Just wondering

,

Ok you got the screw in type. What I refered to was the original style

for the 3G, Yeah see what your audie says.

*---* *---* *---* *---* *---*

We Repair what your husband Fixed.

--plumber sign

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

February 23, 2005

I

don’t think there are any firm statistics out there. At least I haven’t been able to find any. There are polls still open at the heterochromia

site so we can collect our own statistics based on the members. Visit the polls to vote: heterochromia/polls

Kim

-----Original

Message-----

From: carnie_23

[mailto:carnie_23@...]

Sent: Monday, February 21, 2005

6:03 PM

heterochromia

Subject: just

wondering

what percent of people have

heterochromia, it's still a shock for me

to find out this many people have

it. and also how many have

heterochromia iridis, which is more rare?

Any one who knows please

shre the info. thanks for your

time. Ashlee

March 22, 2005

ann,

i was very amazed at your open opinion and i feel that there

should be alot more people out there that should vent what they feel

and not be ashamed of it. i have been in many groups and have heard

many comments and remarks that just floored me on what people will

take or do to make pain go away. i personally believe in my heating

pad and i do not take any meds or herbs for pain. i feel sick i am

going threw relapse and i have lots of pain memory loss and heart

problems. i just wish there were more people that see things in

black and white and dont give excuses for the reasonings... i am in

a group that a individual asked about there child and help well the

reply was get him meds (consertta for ADD) and the other conserns

arent that important you have plenty of time for them later down the

road... now you and i know what waiting does to lyme and if they were

to take this advise what would happen to that child??? so we have

people who think they are med techs and exsperts and then you have

the plain open minded thoughts in these groups what one would you

want help from....me i would want the open honest clean cut black and

white opinion. just reading it and saying it in person makes a

diffrence too you can hear diffrent pitches in person were in reading

it all it sounds like is on pitch mono tone.

June 12, 2005

Shirley,

I dont know what the record is but do know someone who has been well

over 20 years with her N22.

There is and will always be, that chance of failure, small as it is.

Its not possible to have a 0% failure rate.

*---* *---* *---* *---* *---*

One thing you can learn by watching the clock is that it passes.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

June 12, 2005

In a message dated 6/12/2005 7:52:51 PM Pacific Daylight Time,

rclark0276@... writes:

There is and will always be, that chance of failure, small as it is.

Its not possible to have a 0% failure rate.

It was said, less than heart pacer.

Lee

June 13, 2005

Shirley,

I personaly know two people who were like 2 of the first 5 people

here in the east to be implanted. One is still using the implant and

the other has a newer implant in her other ear because she wanted the

newer implant but did not want to re-implant the same ear. Both implant

still work well. Both are Nucleus and were implanted in 1985 so that's

20 years.

Cheers,

Evel

> Does anyone know the longest time someone has been successfully

> implanted?

> Also.......are there any dangers of failure years down the road after

> receiving implant?

>

> Shirley

June 13, 2005

That's right ! I will have had my CI for 21 years this coming

August (hook up anniversary will be on Sept 4th). No internal failure.

Any external equipment that broke down from extended use (as you

will find with ANY machine) has always been replaced. So, I have not

been without sound ever since that wondrous day Sept. 4, 1984!!!!

C.

Cochlear Volunteer

N22 21 years (almost)

-- Re: Just Wondering

Shirley,

I dont know what the record is but do know someone who has been well

over 20 years with her N22.

There is and will always be, that chance of failure, small as it is.

Its not possible to have a 0% failure rate.

*---* *---* *---* *---* *---*

One thing you can learn by watching the clock is that it passes.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

June 13, 2005

,

What kinda party are you going to throw for us here in Newport? Do us

proud now, hear? LOL

*---* *---* *---* *---* *---*

Fiction is the truth inside the lie.

- King

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

June 15, 2005

In a message dated 6/12/2005 8:47:29 PM Mountain Standard Time,

malcolm@... writes:

Does anyone know the longest time someone has been successfully

implanted?

Also.......are there any dangers of failure years down the road after

receiving implant?

Shirley

I think I read of someone still using a Ci implanted in 1985 which would be

20 years. I have had mine for 17 years and it is working just fine. I sould

like an answer to your second question, however.

Implanted December 1988, Activated January 1989

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

June 18, 2005

Hi ,

Not quite off topic...

For our Central Oregon Coast SHHH meeting I hope to be

having someone come and use machine that allows you to

see into your own ear I hope. It is really cool seeing inside

the ear yourself! of course with some of us we can see if

there is anything in there!

When I had my CI done, I had had many myringotomies done

in an attempt to save my hearing from air pressure. I had to

have my ear drum repaired when they did the surgery for the

implant. It is interesting to see how my drum may be different

from others'.

You bring the Mocha. I'll bring the munchies.

-- Re: Just Wondering

,

What kinda party are you going to throw for us here in Newport? Do us

proud now, hear? LOL

*---* *---* *---* *---* *---*

Fiction is the truth inside the lie.

- King

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

June 18, 2005

Hi Shirley,

Well, I was the 5th person to get my CI in 1984 but I know

there were others from previous implants in previous years.

I'm still kicking with my original implant at almost 21 years.

(My anniversary date is in August).

C.

Cochlear Volunteer

N22 21 years (almost)

-- Re: Just Wondering

In a message dated 6/12/2005 8:47:29 PM Mountain Standard Time,

malcolm@... writes:

Does anyone know the longest time someone has been successfully

implanted?

Also.......are there any dangers of failure years down the road after

receiving implant?

Shirley

I think I read of someone still using a Ci implanted in 1985 which would be

20 years. I have had mine for 17 years and it is working just fine. I

sould

like an answer to your second question, however.

Implanted December 1988, Activated January 1989

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

June 19, 2005

C.,

Out of curiosity, what was your hearing loss before the CI surgery?

Anneliese

In a message dated 6/19/2005 9:21:41 A.M. Pacific Standard Time,

cicampbell@... writes:

Hi Shirley,

Well, I was the 5th person to get my CI in 1984 but I know

there were others from previous implants in previous years.

I'm still kicking with my original implant at almost 21 years.

(My anniversary date is in August).

C.

Cochlear Volunteer

N22 21 years (almost)

June 19, 2005

Hi Anneliese,

My hearing before implant was nearly totally deaf bilaterally.

That was required to be part of the experimental group.

I am postlingually deafened. My hearing loss began to be noticeable at

age 4. First hearing aids at 10, deaf in right ear at 13 with continued

deterioration in my hearing in the left ear until I was nearly completely

deaf

at age 27.. Tinnitus to this day that recedes into the background when my

CI is on. Towards the end of my hearing I also had Meniere's Disease-like

symptoms that stopped after I lost the last of my hearing and has not

returned

with my CI hearing (thankfully!)

C.

Cochlear Volunteer

N22 21 years (almost)

-- Re: Just Wondering

C.,

Out of curiosity, what was your hearing loss before the CI surgery?

Anneliese

In a message dated 6/19/2005 9:21:41 A.M. Pacific Standard Time,

cicampbell@... writes:

Hi Shirley,

Well, I was the 5th person to get my CI in 1984 but I know

there were others from previous implants in previous years.

I'm still kicking with my original implant at almost 21 years.

(My anniversary date is in August).

C.

Cochlear Volunteer

N22 21 years (almost)

June 20, 2005

,

That would be neat! Will this be at the next meeting or are you still

working out the details?

Ud you want mochas, then we should hold a meeting at Nye Beach. LOL

*---* *---* *---* *---* *---*

Worry is like a rocking chair - it gives you something to do but it doesn't

get you anywhere.

--Dorothy Galyean

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

July 29, 2005

I am new to this. What is tx, why does everyone have anemia? How fast do you

die with Hep C? Can you tell I have not been to specialist? I am self-employed

so have coverage thru partial pay state help. Don't know when I get to see

real DR. This is all quite scary for me, but if my calculations are correct,

have had Hep c since transfusion in 70. if you care to email individual, that is

fine, hate you to answer questions here everyone knows answers to.

Tam

seweasy@...

July 29, 2005

Thank you so much for your note! I have been unable to sleep all week. Doc

told me Monday, matter of factly. (He had blood test 6 months ago and did not

bother to tell me!) I will print your note as it is first to make any sense to

me. I do not know type yet. Had blood test Monday, results not back yet. Will

call Monday and beg doc for a callback to explain questions I have. He is jsut

a md or do though. They are referring me to a clinic in Fort Worth at county

hospital. I know the docs are very good there. Hope it does not take long to

get in. Is treatment a very optional thing? Because it makes you very sick? I am

scared to take even sudafed for allergies!!! Doc said to call him if I was

gonna take any over counter meds, yeah right, like he will return a call, he

only at my clinic 3 day week.

Tamara

Needlework Finisher

www.TJDesigns.biz

817-274-4815

July 29, 2005

Hi Peggy,

Well for me what works when I become a little anemic, I increase the amount of

dark green veggies in my diet.

dark green veggies are high in the b vitamins.

Well that is what works for me. And bless you hon in your fight against this

disease.

love

Janet

pegastarr <pegastarr@...> wrote:

Hi,

My name is Peggy and I have only written here once a while back

when I first started treatment for Hep C, I had geno type two and I

was successful with my 6 months of treatment. It was a hard climb but

I did it. I finished treatment back at the end of April and I felt

great that I did it. But during the treatment I became anemic and ran

a low-grade fever. It is now 3 months post and I am still running low-

grade fever and still anemic. (Between 98.2 and 100.8) I just want to

feel better and get on with life. Does anyone have ideas or things

that may help, and is this common? I have been to my regular HCP Dr

today and they did more blood work and that's when I found I was still

anemic (where as my GI doctor told me I was improving…??? Well how bad

was it?) So he gave me a B-12 shot. Hopefully I will get more energy.

I swear I feel more sorry for my husband than myself. I just want to

hide.

Want to say I really enjoy reading letters and opinions from this

group. You have helped me more than you know.

Peggy

It's a pleasure having you join in our conversations. We hope you have found the

support you need with us.

If you are using email for your posts, for easy access to our group, just click

the link-- Hepatitis C/

Happy Posting

July 29, 2005

Hi Peggy

Welcome back

I am about to finish treatment.

Today is my last shot.

I have been running a fever myself about the same temp as yours. I am anemic.

Im facing those same symtoms

I do a procrit shot a day I think we will be able to discontinue them maybe

todayl

I continue with ribavirin until end of next week

Sometimes it takes time for all the meds to be rid out your body I hear its not

unusual

I cant really give you much of an answer though.

im thinking in awhile Ill be asking the same thing Ill wait for a reply from

others

Annita