Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Thanks Patty,, it's great to talk to people (like you) who understand! It really keeps me going. We are waiting to find out if my son qualifies for homebound (or half days at school) and IEP so we have many things in the works and most people are happy to help and understand more, unlike the principal, i am not too worried about him anymore! We seen the doc today and made some med changes (hopefully things are gonna get back on track soon)! Thanks again for the encouragement! > > From: " ntrop31 " <ntrop31@...> > Date: 2006/10/30 Mon AM 08:51:32 EST > > Subject: Re: School > > Hi, , > It made my blood pressure rise to read that your principal said other > kids with this diagnosis come to school and do just fine! > Unbelievable. How dare he! It is totally irrelevant what other kids > do. The only thing the principal should be saying is what the school > can do to help your son. Ask what kind of accommodations the school > can make for him. He has legal rights to a public education. Please > don't be intimidated by such unprofessional behavior from the > principal. Best of luck to you. Patty > > > > > > > My 14 year old son has not been in school for a month, due to med > > > changes and increased anxiety, I talked w/his teachers and they > were > > > very understanding, now the principal is telling me he must be in > > > school no matter what, i tried to explain, but he would not > listen, > > > any advice? > > > > > > > > > > > > > > > > > --------------------------------- > > Talk is cheap. Use Messenger to make PC-to-Phone calls. > Great rates starting at 1¢/min. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Hey , I'm glad they are actively looking at your son's situation re homebound or half days! You mention learning difficulties, but is the work being sent home things he is having a hard time understanding since he's not in the classroom while teacher is teaching it? or is it just hard for him due to those " learning difficulty " areas? any learning disability (LD) diagnosed for him? I was looking at our state school system website and with absences, the problem seems to be for the number of UNexcused absences, which your son has EXcused absences (illness, doctor excuse) so if principal keeps being a *pain* in this area you might want to look at your school system's site or state website. If your son is feeling overwhelmed from falling behind in work, maybe they can adjust the number of things he has to make up, e.g., reduce the number of math problems he has to do or chapter questions or even just so he completes any tests to show he know the subject. Keep us updated on what happens! Hope the med change is for the better too. > > Thanks Bonnie, bringing the therapist to school is a great idea. And they are deciding whether he is eligible for homebound or school half a day. We seen the doc today and he changed the meds (I hope for the better) As far as the no computer, tv, games, etc until after schoolwork is the best idea. I do need to be tougher in that area. The problem is the schoolwork he has now he doesnt understand ( yes, he has always had learning difficulties). Just so many things Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Thanks Tomorrow I will find out the decision about homebound and from there will have a better idea of which directions things are going. I think the problem w/the schoolwork is due to not being in the classroom, he is overwhelmed at the amount of assignments they have sent home and worries about falling behind and maybe having to repeat the 8th grade. I really don't think the learning difficulties are a factor right now just alot of stress, anxiety. I am quit concerned about him at the moment, he slept until 1 pm today and has now gone back to bed and is sleeping(it is 8:30 pm) he has never been one to go to bed early or without being told to. We seen the doc yesterday and he added geodon 40 mg 2x a day along withbenztropin.5 mg (I have not given that yet) 2x a day to his current meds ( prozac 40 mg 1x a day xanax xr .5 mg 1x a day and daytrana patch (ADHD) 1 x a day). Doesn't that seem like too much!?? I don't want to undermedicate him but I don't want to overmedicate him!! Anyway I left a message for his doc to call me to discuss it tomorrow. Sorry for going on I just felt the need to get that off my mind for awhile and maybe get some feedback of any kind! Thanks > > From: " " <@...> > Date: 2006/10/31 Tue AM 11:26:53 EST > > Subject: Re: School > > Hey , > I'm glad they are actively looking at your son's situation re > homebound or half days! > > You mention learning difficulties, but is the work being sent home > things he is having a hard time understanding since he's not in the > classroom while teacher is teaching it? or is it just hard for him > due to those " learning difficulty " areas? any learning disability > (LD) diagnosed for him? > > I was looking at our state school system website and with absences, > the problem seems to be for the number of UNexcused absences, which > your son has EXcused absences (illness, doctor excuse) so if > principal keeps being a *pain* in this area you might want to look at > your school system's site or state website. > > If your son is feeling overwhelmed from falling behind in work, maybe > they can adjust the number of things he has to make up, e.g., reduce > the number of math problems he has to do or chapter questions or even > just so he completes any tests to show he know the subject. > > Keep us updated on what happens! Hope the med change is for the > better too. > > > > > > > > > > Thanks Bonnie, bringing the therapist to school is a great idea. > And they are deciding whether he is eligible for homebound or school > half a day. We seen the doc today and he changed the meds (I hope > for the better) As far as the no computer, tv, games, etc until > after schoolwork is the best idea. I do need to be tougher in that > area. The problem is the schoolwork he has now he doesnt understand > ( yes, he has always had learning difficulties). Just so many things > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Thanks Tomorrow I will find out the decision about homebound and from there will have a better idea of which directions things are going. I think the problem w/the schoolwork is due to not being in the classroom, he is overwhelmed at the amount of assignments they have sent home and worries about falling behind and maybe having to repeat the 8th grade. I really don't think the learning difficulties are a factor right now just alot of stress, anxiety. I am quit concerned about him at the moment, he slept until 1 pm today and has now gone back to bed and is sleeping(it is 8:30 pm) he has never been one to go to bed early or without being told to. We seen the doc yesterday and he added geodon 40 mg 2x a day along withbenztropin.5 mg (I have not given that yet) 2x a day to his current meds ( prozac 40 mg 1x a day xanax xr .5 mg 1x a day and daytrana patch (ADHD) 1 x a day). Doesn't that seem like too much!?? I don't want to undermedicate him but I don't want to overmedicate him!! Anyway I left a message for his doc to call me to discuss it tomorrow. Sorry for going on I just felt the need to get that off my mind for awhile and maybe get some feedback of any kind! Thanks > > From: " " <@...> > Date: 2006/10/31 Tue AM 11:26:53 EST > > Subject: Re: School > > Hey , > I'm glad they are actively looking at your son's situation re > homebound or half days! > > You mention learning difficulties, but is the work being sent home > things he is having a hard time understanding since he's not in the > classroom while teacher is teaching it? or is it just hard for him > due to those " learning difficulty " areas? any learning disability > (LD) diagnosed for him? > > I was looking at our state school system website and with absences, > the problem seems to be for the number of UNexcused absences, which > your son has EXcused absences (illness, doctor excuse) so if > principal keeps being a *pain* in this area you might want to look at > your school system's site or state website. > > If your son is feeling overwhelmed from falling behind in work, maybe > they can adjust the number of things he has to make up, e.g., reduce > the number of math problems he has to do or chapter questions or even > just so he completes any tests to show he know the subject. > > Keep us updated on what happens! Hope the med change is for the > better too. > > > > > > > > > > Thanks Bonnie, bringing the therapist to school is a great idea. > And they are deciding whether he is eligible for homebound or school > half a day. We seen the doc today and he changed the meds (I hope > for the better) As far as the no computer, tv, games, etc until > after schoolwork is the best idea. I do need to be tougher in that > area. The problem is the schoolwork he has now he doesnt understand > ( yes, he has always had learning difficulties). Just so many things > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 OCD is a mental illness. It should be covered under the OHI (other health impaired). Definitely not behavioral. It's an anxiety disorder. It has a DSM code: 300.3 Definition (quickly copied off one website): The Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) is currently in its fourth edition. This manual is published by the American Psychiatric Association and is revised from time-to-time. The DSM-IV is the official set of diagnostic criteria for mental disorders in the United States. The categories generally correspond to the international categories used in the International Classification of Disease published by the World Health Organization Another quick link for info/research: http://en.wikipedia.org/wiki/Mental_health_disorders If what you come up with doesn't help, call your school system's director over IEPs or call your state director for clarification. Quick answer! > > Hi everyone. I haven't been here for a while so I'll give a quick > update on my son. He has severe ocd and has struggled with anxiety > attacks at school for quite a while now. He has got even worse over Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Thank-you Chris. I'm from Canada. Might make the difference but your information gives me an idea of where to start looking. I would like to write somebody a letter and try to get it changed. Thanks again. > > > > Hi everyone. I haven't been here for a while so I'll give a quick > > update on my son. He has severe ocd and has struggled with > anxiety > > attacks at school for quite a while now. He has got even worse > over > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 , What state do you live in. In MA OCD is considered a biological illness and thus qualifies as a parity diagnosis. This means that we can get from the insurance companies the same amount of unlimited visits, etc., that we get for body based illnesses. I'm not sure how this translates to the school system, however. Imogene school Hi everyone. I haven't been here for a while so I'll give a quick update on my son. He has severe ocd and has struggled with anxiety attacks at school for quite a while now. He has got even worse over the last couple months. It now takes him about 15 min. to change classes and he then has numerous compulsions to do and by the time he's ready to work he's lost as to what the class is doing and the class is almost over. Then he has anxiety attacks over having got nothing done. He has an IEP and an aide in the afternoons which helps some. We went for a meeting yesterday to see if he could get an aide full time. We were told that the principle has asked for more support for my son but because " OCD " is listed as behavioral that he likely wouldn't get any more funding because they don't give much for " behavioral disorders. We've always been told by our doctor that OCD is biological not behavioral. Does anyone here know anything about how this all works? My son is severely impaired by his OCD right now and I don't think it's right that he isn't funded for his illness because someone has listed it as behavioral. ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 You might try running this past Dr. who is an advisor on our list. Joye in Southeastern PA rockydazzler1 <grizz140@...> wrote: Hi everyone. I haven't been here for a while so I'll give a quick update on my son. He has severe ocd and has struggled with anxiety attacks at school for quite a while now. He has got even worse over the last couple months. It now takes him about 15 min. to change classes and he then has numerous compulsions to do and by the time he's ready to work he's lost as to what the class is doing and the class is almost over. Then he has anxiety attacks over having got nothing done. He has an IEP and an aide in the afternoons which helps some. We went for a meeting yesterday to see if he could get an aide full time. We were told that the principle has asked for more support for my son but because " OCD " is listed as behavioral that he likely wouldn't get any more funding because they don't give much for " behavioral disorders. We've always been told by our doctor that OCD is biological not behavioral. Does anyone here know anything about how this all works? My son is severely impaired by his OCD right now and I don't think it's right that he isn't funded for his illness because someone has listed it as behavioral. --------------------------------- Never Miss an Email Stay connected with on your mobile. Get started! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 You might try running this past Dr. who is an advisor on our list. Joye in Southeastern PA rockydazzler1 <grizz140@...> wrote: Hi everyone. I haven't been here for a while so I'll give a quick update on my son. He has severe ocd and has struggled with anxiety attacks at school for quite a while now. He has got even worse over the last couple months. It now takes him about 15 min. to change classes and he then has numerous compulsions to do and by the time he's ready to work he's lost as to what the class is doing and the class is almost over. Then he has anxiety attacks over having got nothing done. He has an IEP and an aide in the afternoons which helps some. We went for a meeting yesterday to see if he could get an aide full time. We were told that the principle has asked for more support for my son but because " OCD " is listed as behavioral that he likely wouldn't get any more funding because they don't give much for " behavioral disorders. We've always been told by our doctor that OCD is biological not behavioral. Does anyone here know anything about how this all works? My son is severely impaired by his OCD right now and I don't think it's right that he isn't funded for his illness because someone has listed it as behavioral. --------------------------------- Never Miss an Email Stay connected with on your mobile. Get started! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 it should be under OHI - other health impairments - it is not behavorial - how dare they! eileen Quoting rockydazzler1 <grizz140@...>: > Hi everyone. I haven't been here for a while so I'll give a quick > update on my son. He has severe ocd and has struggled with anxiety > attacks at school for quite a while now. He has got even worse over > the last couple months. It now takes him about 15 min. to change > classes and he then has numerous compulsions to do and by the time he's > ready to work he's lost as to what the class is doing and the class is > almost over. Then he has anxiety attacks over having got nothing > done. He has an IEP and an aide in the afternoons which helps some. > We went for a meeting yesterday to see if he could get an aide full > time. We were told that the principle has asked for more support for > my son but because " OCD " is listed as behavioral that he likely > wouldn't get any more funding because they don't give much > for " behavioral disorders. We've always been told by our doctor that > OCD is biological not behavioral. Does anyone here know anything about > how this all works? My son is severely impaired by his OCD right now > and I don't think it's right that he isn't funded for his illness > because someone has listed it as behavioral. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Hello everyone, My son is 9 years old and has been homebound since Kindergarten and is now in the 3rd grade. He is registered at the school in a gifted class so we have a teacher that comes to our house after school to teach him advanced lessons. We tried letting him go to school in the first grade but the first 2 weeks into school he started to get real sick and ended up in the hospital for 4 weeks with something that he caught from school. So the doc said to take he out of school and continue on homebound. Socialization was a big deal at first with me. He loved the time he spent in school with other kids and having friends and being able to do art and music. But once we started homebound I got involved in the homeschool association in our area. The do alot of things with the kids, like field trips, art lessons, PE, park days etc. Things just like public schoold offer. So he does not miss out on Social skills. Plus we have Wesley in Boyscouts and he does baseball. He loves being able to stay at home and sleep late and do different activities with the other homeschoolers. I would not change anything! He is smart, he makes all A's and gets one on one attention with his teacher. In our state we get 1 hour a day no more then 5 hours a week for homebound. So we have school on Mon, Tues and Thurs. We do 2 hour days and have off on Wed and Friday from school. The teacher can do more in a 2 hour day then an 1 hour day. And having those days off gives in a break and time to do something else like art, which is LOVES to do. You can also think about doing Intermitten homebound, I know a family here in SC that has a child with CVID that does Intermitten homebound. The child goes to school 2 weeks out the month and is homebound the last 2 weeks before his IVIG. And then if he gets sick homebound kicks in for that time. And that works out good for them. That is something else to think about doing. I hope this helps. Sally Blumenburg Mom to Wesley CVID, Asthma, Allergies, Osteoprosis, Joint pain, GI problems Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Wow. Thanks for all of the great responses. I'm glad to hear it's not totally off the wall to keep our kids at home, and I really like the idea of the homebound instruction. I don't have any problem following through on a teaching plan, but I'd really like some help. Between the autism and the boys' health issues, I don't think I have the energy to be creative and be in charge of homeschooling them both. Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 , some of the homeschooling curriculums have built in counseling and grading, etc..for instance, we use Seton and they grade a certain portion of the boys' work and then give them a transcript. When was having comprehension problems, they helped me tremendously! They will even help make a Special needs curriculum for your child(ren), if needed. www.setonhome.org <http://www.setonhome.org/> it is a Catholic Homeschool but I am sure there are other curriculums out there like this that are not Catholic. Grace and peace be with you, Pattie " God made you as you are in order to use you as He planned " ~ J.C. Macaulay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Thanks Pattie, I will definitely look into them. I've heard good things about the Seton program and I like the fact that there's guidance for the parents. A ginormous plus in my book. Thanks so much! RE: Re: School , some of the homeschooling curriculums have built in counseling and grading, etc..for instance, we use Seton and they grade a certain portion of the boys' work and then give them a transcript. When was having comprehension problems, they helped me tremendously! They will even help make a Special needs curriculum for your child(ren), if needed. www.setonhome. org <http://www.setonhom e.org/> it is a Catholic Homeschool but I am sure there are other curriculums out there like this that are not Catholic. Grace and peace be with you, Pattie " God made you as you are in order to use you as He planned " ~ J.C. Macaulay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 Clever kid - thanks for sharing enjoyed the laugh at BJ's incredible cunning/problem solving. Keep smiling Jan, mother of Trent 22yo w/DS from the LandDownUnder school Hi all well we had our first day back at school for term 2 Phone call at 11am to come and pick up a very sick boy ( their words- not mine) I pick him up and he is so excited to see me- he even tells his dad that he is happy to be home. I ask him on way home where are you sick- he points to his throat- i ask him when we get home were are you sick- I not he says with chest puffed out So i made him stay in his room on his bed for as much of the day as i could- (i had to go to work at 2-30pm)-just so he could see how boring it really is at home when you are sick.I have no idea how many times i made him go back to his room- but i refused to let him come out. He really has his teacher wrapped around his finger No runny nose, no temp no nothing- he just told them he was sick so they sent him home hopefully by making him stay in his room - and not letting his sibs in there- will make him think twice before doing it again I think just wanted to see Natasha- he knows she is starting at his school in a couple if days- and they have been told they are not allowed to play together- so I think he just wanted to see her. But his behaviors have been atrocious these past 2 weeks- at vacation care and home-((sigh)) oh well we will see what eventuates. thanks for letting me vent -- Aussie Leis- mum to 9 DS , Natasha 5 and 3. A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort. Herm Albright (1876 - 1944) Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 Sherrelle I would send your son Kiandre to school at three. He could benefit him, he also would lose out during that year you wait for his speech to improve, give this school a chance dad to Jeanna 9 DS from Mays Landing NJ ************************************** Get a sneak peak of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 I guess my thoughts are the opposite here. I would do the same for this son as you did for the others. Not sending him to school does not mean you can't seek therapies for him, does it? Or am I missing something? He is just as much your child as the others are. If your gut has told you to wait 'til a certain age, there is probably a good reason. My opinion may not be a popular one, but thought I'd share it anyway. Sheila > > Sherrelle I would send your son Kiandre to school at three. He could benefit > him, he also would lose out during that year you wait for his speech to > improve, give this school a chance > dad to Jeanna 9 DS from Mays Landing NJ > > > > ************************************** Get a sneak peak of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 In a message dated 7/12/2007 10:32:34 AM Eastern Daylight Time, ksrb3@... writes: Am I acting too overprotective of him??? Or am I just being myself. I will appreciate any feed back and opinions. Thanking you in advance. AAHH the push to send our little ones with DS to pre-school early. After Micah aged out of EI at 3 I continued to have services at home and then sent him to pre-school for two years (a typical pre-school) They wanted me to put him into a program when he was two years old ( ona a bus for 45 minutes to the program and then 45 minutes home....NOT!!!) Follow your instincts. I will tell you that my Micah has been in public school now for two years (we did kindy twice) He is just really starting to put two and three words together now as he had a moderate hearing loss due to fluid and his canals were to tiny to do tubes until last May. The not taking is a hinderance but can be overcome. You do what YOU think is best for your child. You know him best and I just feels that the nurturing they get at home cannot be duplicated. By the way I am a mom to 5 kids with my oldest being 31 so I have been doing this awhile. Glad I have been because I learned that Mom knows best. You do too! Loree ************************************** Get a sneak peak of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 I did not send my son ( 7yrs old) to school when he turned 3yrs old which was in February. I waited until September because I did not feel he was ready. started walking the August before he turned 3yr. We visited his school several times and each time he would fall over if someone walked too close to him or slightly bumped him. Safety issue! Maybe I was being overprotective but I wouldn't change my decision. He is going to 1st grade this September after repeating Kindergarten. I did take him to the school for speech and ot. Tricia ksrb3 <ksrb3@...> wrote: My son will be two in August. He will be aging out of his EI program @ three and I'am hesitant to send him to school. I would like to wait till he is four. I also wanted to wait for his speech to improve. My husband says that I'am too overprotective of him. But I did'nt send my " typical " to school till four years old. Am I acting too overprotective of him??? Or am I just being myself. I will appreciate any feed back and opinions. Thanking you in advance. Sherrelle mom to Kiandre 2 d/s --------------------------------- The fish are biting. Get more visitors on your site using Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 We sent my son, Ben to preschool an extra year before we sent him to school. He started at the age of 4 and that was fine. If they aren't ready, they just aren't ready just as typical children aren't necessarily ready for kindergarten. M. school My son will be two in August. He will be aging out of his EI program @ three and I'am hesitant to send him to school. I would like to wait till he is four. I also wanted to wait for his speech to improve. My husband says that I'am too overprotective of him. But I did'nt send my " typical " to school till four years old. Am I acting too overprotective of him??? Or am I just being myself. I will appreciate any feed back and opinions. Thanking you in advance. Sherrelle mom to Kiandre 2 d/s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 Nic went into the " special " preschool at 3. It was 20 minutes away so I drove him, I was leery about putting him on a bus or having a van pick him up. It was only 2 3/4 hours but it was just like kindergarten, except they were younger and all the kids had special needs. He did that until age 5. When he became school age, I put him in a Life Skills Kindergarten which happened to be held at our reg elem school. He did that for 2 years in order to develop a strong base. From there he went into Learning Supports classes and has been there ever since. His teacher told me she was quite pleasantly surprised as to how much he knew....letters and their sounds even sight reading.... Personally, I feel they are never to young to start learning, not only academics but the whole school routine as well. Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 I was nervous about sending Vickie to school at three but she thrived. She went to an intergrated preschool and was around a lot of same age roll models for speech so that helped. so by sending your little one, his speech may improve faster then if he didn't go _____ From: [mailto: ] On Behalf Of ksrb3 Sent: Thursday, July 12, 2007 10:30 AM Subject: school My son will be two in August. He will be aging out of his EI program @ three and I'am hesitant to send him to school. I would like to wait till he is four. I also wanted to wait for his speech to improve. My husband says that I'am too overprotective of him. But I did'nt send my " typical " to school till four years old. Am I acting too overprotective of him??? Or am I just being myself. I will appreciate any feed back and opinions. Thanking you in advance. Sherrelle mom to Kiandre 2 d/s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Once your son has a definite diagnosis - contact the school's 504 Coordinator (usually a teacher). Paperwork with be provided for yourself and the doctor to complete. Hunter's school was extremely difficult in the beginning - but once the staff began to understand the disease - things became much more tolerable. The school has no choice but to work with you - its the law. Gotta go Hunter is calling. Sandi Ken Hunter (9 Systemic **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Look under " Files " on this site. There is a lot of good info. on navigating your way through a 504 plan. A lot of JRA kids have 504's beause they include physical restrictions like PE (or allows them to take tests verbally if they're hands are bothering them, don't have to carry so many books, etc.). IEP's are similar but better designed for learning issues (and sometimes behavioral like ADHD, etc.). A 504 is just a legal way to ensure that the school will do only what is best for your child. The school will still make mistakes, but it helps to have something in writing. For right now though, a letter from your Rheumy is good. It can take a long time to get a 504 completed. I haven't started one yet for Isabelle but plan to for Kindergarten. A lot of the moms can tell you more about the process. -Hadley (Isabelle, 4yrs. on Jan 20!) --- In , " nurse0300 " <nurse0300@...> wrote: > > I am wondering how and what you tell school as far as restrictions. > Caleb had a very hard time with gym this past week came home and told > me it wasnt working out I needed to talk to them it was becoming very > hard and painful for him. What do we do in this case just ask the DOC > for a letter or is there usually papers that we need to fill put for > the school? Last time I called the school they made me so mad I > decided that it was a waste of my time to call them and tell them what > was going on all they could talk about was his missing school and the > possibility of failing, but when i asked for options such as a tutor > they didnt have any avaliable for us. err. They just made me so mad. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Go to the School Counselor and let her know what is going on. Contact the Dr for a Paper of Restriction for P.E. at least for a time being. I would suggest instead of P.E. have your child do Health reports for the grade. I would ask the Dr to write a Letter concerning Extra set of books and to explain your child is under Dr's care at this time. At first it seems that the School does not listen but be firm on it. Explain to your child what is going on and to let you know what is going on at School. Also if you have a School Nurse go to see her and explain what is going on. You can contact the AF for Pamplets about Your Student has Arthritis. Get one for each Teacher and those in the School who is in Contact with your child and hand them out. Ask the Counselor about the 504 plan and you want to have a meeting with all Teacher's and Staff who is in contact with your child. If you need more help please feel free to ask. Document all Appointments, Keep PT and OT papers as if the School wants you to back up the missed days you will be able to show the missed days were accounted for due to Medical issues. Which is exempt. Another reason to get a 504 plan started NOW. At least for the Diagnosing stage of this. would miss 40 days of School. I had Documents to back me up as they claimed they would hold back if she missed any more days. I researched School Policy and since was a A and B student and passed all test's the School could not hold her back due to missed days. I got her on the 504 plan and this sure helped out ALOT. All missed days were excused due to Medical and Physical issues. Robbin **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
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