Hello

[Guest guest]

Thank you Terry.

In a message dated 12/5/2004 2:00:38 PM Central Standard Time, pawpawto3@... writes:

Hi Martha. Yes treetment can be rough. While on treetment you need to drink lots & lots of water at least a galon a day. Limit caffine, if you drink a drink with cafine, you need to drink that much more water on top of the galon. Lots of water lessen the side affects. Get lots of rest. Will help him through treetment. Terry

[Guest guest]

You’ve come to the right place. It

does not mean he shouldn’t have children. Especially if

you don’t have it. It’s hare that it is passed to your childrens or loved ones. It takes blood to blood contact.

Just take great care protecting his shaving, toothbrushing

utensils, etc. It is known as HCV (I believe it stands for hepatitis C Virus)

or some refer to it as hepC. Whatever works for you,

we know what you mean. I had hcv for about 17 years

(unknowingly) when my son was born and he was not infected with it. As far as

sex goes, my doctor advised me to have my wife come in and get tested, and if

she tested negative, we should continue our love life as normal, without

changes, but if I should enter a new relationship (we weren’t married

yet), I should use protection.

Welcome, and good luck, and we look forward to hearing more from

you. –dz-

[ ]

Hello

Hi my name is Martha and I am looking for a

support group who will

help me understand Hepatitis C. I found out

today that someone very

close to my heart has this disease. I have

read a few things on HPC

but am not clear on what that means for his/our

future. I have one

question that I can't seem to get a straight

answer for. Since he

has Hepatitis C does this mean that he should not

have children?

Please pardon my ignorance on this subject.

The reason I want to

know is because after 20 years our lives have come

full circle and we

are in one anothers lives again and planning a

future. Hepatitis C

is not going to keep us from each other but I

would like to know what

to expect. I want to be informed. Any

help will be greatly

appreciated.

Thank you,

Martha

[Guest guest]

Thank you for the kind and informative welcome. and I neither one have any living children. He and I have not had any relations yet so to the best of my knowledge do not have it but am going to go get tested pretty soon. Its scary how this disease can go undetected for so long. Anyway thanks again for the welcome. I look forward to talking to you and learning more on how to keep healthy and how to be a supportive partner.

Thanks again,

Martha

In a message dated 12/6/2004 9:05:02 AM Central Standard Time, dhz920@... writes:

You’ve come to the right place. It does not mean he shouldn’t have children. Especially if you don’t have it. It’s hare that it is passed to your childrens or loved ones. It takes blood to blood contact. Just take great care protecting his shaving, toothbrushing utensils, etc. It is known as HCV (I believe it stands for hepatitis C Virus) or some refer to it as hepC. Whatever works for you, we know what you mean. I had hcv for about 17 years (unknowingly) when my son was born and he was not infected with it. As far as sex goes, my doctor advised me to have my wife come in and get tested, and if she tested negative, we should continue our love life as normal, without changes, but if I should enter a new relationship (we weren’t married yet), I should use protection. Welcome, and good luck, and we look forward to hearing more from you. –dz-

[Guest guest]

Martha,

The answer is WATER!! It is surprising how much it helps.

Barbara

-- In , maldonadomartha@a... wrote:

> Terry,

> Thank you for the information. It is funny how scary something can

be when

> you don't know anything about it. I felt like I had been handed a

death

> sentence. I am much more relieved after talking to his mother and

reading up on the

> disease online. Reading your email has brought me greater peace of

mind. He

> has not started any treatment for it but I believe what he is going

to take

> for it is Interform or something like that. I hear it could be very

rough. Any

> suggestions on how to make it easier for him. I want to be very

supportive.

> It was a big step for him to share this with me. I think he

expected me to

> reject him but its the exact opposite. I feel helpless because

right now he is

> in Nebraska and I am in Texas. The plans were for him to move down

here in

> November of next year if things went well for us over the next year.

I am

> thinking it might be better if he was here now so that I could help

take care of

> him. Terry I want to thank you again for the peace of mind you have

brought

> me. I will appreciate any information you can give me or resources

that you can

> direct me to.

>

> Thank you,

> Martha

> In a message dated 12/4/2004 10:36:12 AM Central Standard Time,

> pawpawto3@y... writes:

> Hi Martha welcome to the group. Yes he can have children with out

passing it

> on to them. The odds of passing it down to your children. The odds

are very

> slim to none. Even passing it to you through intercourse is very

slim to none.

> Hep Cis passed through the blood, blood transfusions tattoo & IV

drug use are

> most comion. But can be passed trough sharing a razor or toothbrush.

> The only time you shouldn't try having children is while he is on

treetment.

> Treetment will cause birth defects. While I was on treetment, my

Doctor said

> to use double protection durring intercourse.But once compleeting

treetment, it

> is OK working on having kids.

> The good news is a lot of us have beat this through treetment.

> Treetment can be rough. But a lot os us managed to get through it.

Treetment

> vary's from person to person, so some can not tollerate treetment.

You never

> know untill you try it. If the side's affects are to hard he can

stop. Terry

[Guest guest]

Dear ,

I am not sure how old your kids are, but a couple of books that come to mind

are Heidi and What Katy Did? There is a series of five with What Katy Did.

Great poem about illness being a school in the first one.

This video of kids with Lyme is at http://www.lymediseaseassociati

on.org/Videos.html. Kids Speak Out on Lyme, c.1993, 1 tape, $5.00. Many

children speak

out about the difficulties they face from having Lyme disease.

At http://www.lyme.org/children.html, there are four posters you can download

and print 1) Major Tick-Check Says, " Tick free is the way to be " (in English)

2) Major Tick-Check Says, " Tick free is the way to be " (in Spanish) 3) Learn

to be, Tick-Free (in English) 4) Learn to be, Tick-Free (in Spanish)  

And at the same website, http://www.lyme.org/education/kids.html, there are

two resources for kids, LD: Facts for Kids (ages K-3rd) $25 and LD Scientific

Investigator Program (ages junior high) $20.

Also, I did find this website

http://www.pediatricnetwork.org/store/life/childbooksillness.htm which has a

list of children's books about illness and

disability. These are for children who are sick. Several on migraines and

headaches, some on arthritis, and one on seizures. This one, Lyme Disease

(Perspectives on Disease and Illness) by Judy Monroe, is for grades 5 to 9 and

is

$24. All of the books recommended at this site are available at amazon.com.

You could always check your local library for them or www.half.com too.

I am sorry you are all sick. I have been down that road for 14 years

myself.

Take care,

[Guest guest]

Where upstate new york. I am in syracuse.

sharon

[ ] Hello

>

>

>

> Hello,

>

> My name is and I am new to this e-group. It looks like a

> great place. I am from upstate NY, land of ticks, and my kids,

> husband and self all have Lyme and co-infections. It is not easy on

> us. Every day is a struggle.

>

> I would like to know if anyone can suggest books for children with

> Lyme. It does not have to be about Lyme but maybe something on how

> to deal with being sick.

>

> Thank you.

>

>

>

>

>

>

>

>

>

>

>

> Questions and/or comments can be directed to the list owner at

> -Owner

>

>

[Guest guest]

Iris, that is so sweet about your new granddaughter! I know you are

so proud, and spoiling her rotten:)

Sorry to hear your in a flare, that is not good news, hope that goes

away soon. I'm taking the MTX pills, have never taken the injections,

so I can answer that one. That is a long wait until April:(

I will keep you, and the family in my prayers, and your flare goes

away soon, hugs T

> Hello everyone.

> I hope that a merry Christmas was to be had by all! I've been

absent due to flare-up of carpal

> tunnel, shoulder and neck pain. I was blessed this Nov. 1 to have a

new granddaughter. I am so

> proud of my daughter as she is turning out to be a wonderful

mother. She and her husband are

> totally in love with their little girl! (By the way, I am still

thinking of that cat when I say

> her name)

>

> My PCP has referred me to a new rheumy who can not see me until

April. In the meantime I am

> totally out of MTX injectable. Will I get the same relief from the

oral. If you guys would let me

> know your experiences, I would appreciate it.

>

> Happy New Year! Iris

>

> __________________________________________________

>

[Guest guest]

As I understand it, MTX effects are about the same with orals or injectables

until you reach about 1 cc. The only reason I switched from pills was the

expense, completely out of sight. It's about the same as my Prednesone. My

Rheumy wants me off of it, so wrote me a prescription for 1 mg pills. I get

100 ea 5 mg's for $7.78, and 100 ea 1 mg's for $23.90. That's obviously a

cheat of some kind.

Once I went to a new Rheumy for a second opinion, and he told me that most

of my problems weren't from RA because RA is ONLY in the joint and not any

place else! He was freshly graduated from Rheumy school, so he needs a lot

of seasoning.

We were invited to a family Christmas dinner, but I took a turn for the

worse, so the rest went and brought home a plate for me. That seems to

happen more often than I would like, but we just have to put up with it. I'm

more used to it than I should be, but I could be miserable at home alone

rather than make everyone else miserable there.

Dennis

[ ] Hello

>

> Hello everyone.

> I hope that a merry Christmas was to be had by all! I've been absent due

> to flare-up of carpal

> tunnel, shoulder and neck pain. I was blessed this Nov. 1 to have a new

> granddaughter. I am so

> proud of my daughter as she is turning out to be a wonderful mother. She

> and her husband are

> totally in love with their little girl! (By the way, I am still thinking

> of that cat when I say

> her name)

>

> My PCP has referred me to a new rheumy who can not see me until April. In

> the meantime I am

> totally out of MTX injectable. Will I get the same relief from the oral.

> If you guys would let me

> know your experiences, I would appreciate it.

>

> Happy New Year! Iris

[Guest guest]

Hello Iris--I'm so glad to see you back again!!

Congratulations on the new granddaughter--what's her name?

I had emailed you awhile back, but it " bounced " and was returned.

I've been thinking about you and wondering how you are. Email me if

you'd like to see new pictures of the triplets & big brother!

Blessings,

Judi

[Guest guest]

Great to hear from you , though I'm sorry the news is sad. Have you

contacted job service about your employment troubles? The Family Medical

Leave Act allows some protection for these types of situations. Anyway I

hope things turn around for you. We've missed you. Sorry for the loss of

your wife. -dz-

At 08:07 PM 12/25/2004, you wrote:

Hi . I'm sorry about Kay

& the job. Some employers just don't understand that family come's

first. I pray that things are better in 2005. Terry

ralexan4 <ralexanthegreat@...> wrote:

Hello everybody

Most of you might not know who I am. You oldtimers will. I'm

the guy who actually started this group.

Just wanted to update you on what has been going on, since I haven't

had access to a computer in a very long time.

On July 1st my wife Kay was diagnosed with cancer. On Nov. 27th her

battle was over and she passed away. Due to all the days that I had

to miss taking care of her during that time I lost our phone and

internet access. I also was fired from my job for missing too many

days of work.

I only am able to write this because I am spending Christmas with my

brother and his family.

Well I better go for now. Maybe I can get back on in the near

future.

I,ll probably check back tomorrow before I head home.

I forgot I am still positive for the virus and am probably starting a

radical treatment in Feb. One shot Daily for twelve weeks then trhee

shots a week for at least a year maybe more.

[Guest guest]

I just got my computer on line I crashed it the day before Christmas. I will try to get caught up with everyone. Hope all are doing fine. I really missed you guys.

the WV hillbilly

[Guest guest]

>

Thank you so very much. I will research the very helpful links you

have suggested. Have a Happy New Year!

[Guest guest]

Hi

Great to hear from another Canadian. I am in Ontario. Hope all is

well with you. I have seen that there are several Marie's here so I

will start signing off like this, otherwise I will never keep it

straight

Keep smiling

Marie (Ont)

> Hi

>

> You have a nice family

> great pic's thank you

> for sharing

>

> Hugs

>

> in Montreal

>

>

>

> ---------------------------------

> Post your free ad now! Canada Personals

[Guest guest]

Welcome Gabby. So Gabby isn't all that gabby? We undestand

everybody has their own way. Our list of members is far greater than the

list of people who post regularly. Some people like to listen and learn

and that's fine. That's what we're here for. I suppose the

transfusion is related to the heart disorder? Anyway, I don't know much

about your heart ailment. You have your youth working for you, and I have

great hope they will find a milder treatment for the hcv. Glad to hear

from you and hope to hear more. We can always use a little more youth

around here. Feel free to join in whenever you feel the urge, we welcome

your comments, feelings, etc. -dz-

At 12:10 AM 2/9/2005, you wrote:

Hi I'm kinda new posted a

few times. First night I talked to anyone.

I'm 19 and have had Hep. C for about 19yrs. I got it from

blood

transfutions at birth. I also have HLHS heart disease, meaning

my

left half of my heart is not there. So I can't do treatment for the

hep.

Gabby

[Guest guest]

Ok thats coo. I just never talked to anyone else with it.

>

> >Hi I'm kinda new posted a few times. First night I talked to anyone.

> >I'm 19 and have had Hep. C for about 19yrs. I got it from blood

> >transfutions at birth. I also have HLHS heart disease, meaning my

> >left half of my heart is not there. So I can't do treatment for

the hep.

> >Gabby

> >

> >

> >

> >

> >

[Guest guest]

Dave, most that post regular in here are younger then the two of us. But in though it is just a few days, you are older then I am. LOL Terry Zierhart <dhz920@...> wrote:

Welcome Gabby. So Gabby isn't all that gabby? We undestand everybody has their own way. Our list of members is far greater than the list of people who post regularly. Some people like to listen and learn and that's fine. That's what we're here for. I suppose the transfusion is related to the heart disorder? Anyway, I don't know much about your heart ailment. You have your youth working for you, and I have great hope they will find a milder treatment for the hcv. Glad to hear from you and hope to hear more. We can always use a little more youth around here. Feel free to join in whenever you feel the urge, we welcome your comments, feelings, etc. -dz-At 12:10 AM 2/9/2005, you wrote:

Hi I'm kinda new posted a few times. First night I talked to anyone.I'm 19 and have had Hep. C for about 19yrs. I got it from bloodtransfutions at birth. I also have HLHS heart disease, meaning myleft half of my heart is not there. So I can't do treatment for the hep.Gabby

[Guest guest]

Hello V ,

Thank you for the well wish.

Best of health to everyone.

Lenny

hello

>

>

> here to say hello to everyone out here and hope you all are in good

> health.

[Guest guest]

I hate to be the bearer of more bad news, but I had surgery 6 years ago and I

now have chronic sciatica and scar tissue around the lerve at L5. At L4 they

" can't find " the nerve. I also waited too long to have the surgery, but that's

only because it took the Drs. so long to diagnose me correctly. Physical

therapy made my pain worse and they won't send me for it anymore.

-theresa

berry_kris <berry_kris@...> wrote:

I had on in same area in 1999, was out 4 months. Never got rid of

all the numbness (I waited too long to have the surgery). Most of

the pain left in that time period....until I hurt my back again 9

months later, unrelated.

Have you started physical therapy, helps a lot

Kris

> >

> > Hello I am new to the group. My name is I

> > am 31 and live in

> > NJ. I had disectomy of L4-L5 a month ago today and

> > I am still hurting

> > some. How long does it take for the pain to leave?

> > I go back to the

> > doc tommorow for my 4 week check up

> >

> >

> >

> >

>

>

>

> __________________________________

> Do you ?

> Small Business - Try our new resources site!

> http://smallbusiness./resources/

[Guest guest]

Wow. The reason I waited so long is becase they couldn't find the

problem. I had alot of spasms and leg pain before and upper back pain.

Not sure if its helping or not yet. I couldn't walk for the first few

days I got home. I now have good days and bad today is bad. I sure

hope the surgery ends up h elping my back. I read some where that your

suppost to feel better right away thats not me

theresa rowe wrote:

> I hate to be the bearer of more bad news, but I had surgery 6 years

> ago and I now have chronic sciatica and scar tissue around the lerve

> at L5. At L4 they " can't find " the nerve. I also waited too long to

> have the surgery, but that's only because it took the Drs. so long to

> diagnose me correctly. Physical therapy made my pain worse and they

> won't send me for it anymore.

>

> -theresa

>

> berry_kris <berry_kris@...> wrote:

>

> I had on in same area in 1999, was out 4 months. Never got rid of

> all the numbness (I waited too long to have the surgery). Most of

> the pain left in that time period....until I hurt my back again 9

> months later, unrelated.

>

> Have you started physical therapy, helps a lot

>

> Kris

>

>

> > >

> > > Hello I am new to the group. My name is I

> > > am 31 and live in

> > > NJ. I had disectomy of L4-L5 a month ago today and

> > > I am still hurting

> > > some. How long does it take for the pain to leave?

> > > I go back to the

> > > doc tommorow for my 4 week check up

> > >

> > >

> > >

> > >

> >

> >

> >

> > __________________________________

> > Do you ?

> > Small Business - Try our new resources site!

> > http://smallbusiness./resources/

>

>

>

>

>

[Guest guest]

-

There are so many variables when it comes to surgery and recovery. I felt some

relief from the surgery, but not 100%. I wouldn't even give it 50%. Maybe

10-20. The obvious pain in my lower back was decreased but the pain in my leg

never changed. Over 6 years it's only gotten worse and now my lower back hurts

again from the scar tissue. Don't let us discourage you though. Everyone heals

differently and at their own pace. You could end up fine, or you could end up

like some of the rest of us. Keep your thoughts positive. Depression won't

help your situation at all. In addition to chronic pain I suffer from

depression, which is very common with pain patients. The pain and depression

feed off of each other and make me feel even worse than normal. Try to remain

optimistic, but also be practical and realistic. You may never be completely

back to the person you were before your injury and surgery. Consider any reilef

and any return to somewhat normal life a good thing.

-theresa

T <jenny@...> wrote:

Wow. The reason I waited so long is becase they couldn't find the

problem. I had alot of spasms and leg pain before and upper back pain.

Not sure if its helping or not yet. I couldn't walk for the first few

days I got home. I now have good days and bad today is bad. I sure

hope the surgery ends up h elping my back. I read some where that your

suppost to feel better right away thats not me

theresa rowe wrote:

> I hate to be the bearer of more bad news, but I had surgery 6 years

> ago and I now have chronic sciatica and scar tissue around the lerve

> at L5. At L4 they " can't find " the nerve. I also waited too long to

> have the surgery, but that's only because it took the Drs. so long to

> diagnose me correctly. Physical therapy made my pain worse and they

> won't send me for it anymore.

>

> -theresa

>

> berry_kris <berry_kris@...> wrote:

>

> I had on in same area in 1999, was out 4 months. Never got rid of

> all the numbness (I waited too long to have the surgery). Most of

> the pain left in that time period....until I hurt my back again 9

> months later, unrelated.

>

> Have you started physical therapy, helps a lot

>

> Kris

>

>

> > >

> > > Hello I am new to the group. My name is I

> > > am 31 and live in

> > > NJ. I had disectomy of L4-L5 a month ago today and

> > > I am still hurting

> > > some. How long does it take for the pain to leave?

> > > I go back to the

> > > doc tommorow for my 4 week check up

> > >

> > >

> > >

> > >

> >

> >

> >

> > __________________________________

> > Do you ?

> > Small Business - Try our new resources site!

> > http://smallbusiness./resources/

>

>

>

>

>

[Guest guest]

,

What was the exact technical name of the surgical procedure you had?

There are several types of discectomies. I went through a procedure

called a minimally invasive lumbar discectomy in the L4-L5 area in

July 2004. I had pain in my right leg for only about one week after

the surgery. Today I feel fine, except I still have to be careful how

I lift and carry heavy objects....

>

> Hello I am new to the group. My name is I am 31 and live in

> NJ. I had disectomy of L4-L5 a month ago today and I am still hurting

> some. How long does it take for the pain to leave? I go back to the

> doc tommorow for my 4 week check up

[Guest guest]

Not sure it was suppost to be a microdiscectomy but there was more

damage then he thought. He had to make a little hole in my bone to get

at the disks. I had it done to l4 l5

btokine wrote:

>

>

> ,

>

> What was the exact technical name of the surgical procedure you had?

> There are several types of discectomies. I went through a procedure

> called a minimally invasive lumbar discectomy in the L4-L5 area in

> July 2004. I had pain in my right leg for only about one week after

> the surgery. Today I feel fine, except I still have to be careful how

> I lift and carry heavy objects....

>

>

>

>

> >

> > Hello I am new to the group. My name is I am 31 and live in

> > NJ. I had disectomy of L4-L5 a month ago today and I am still hurting

> > some. How long does it take for the pain to leave? I go back to the

> > doc tommorow for my 4 week check up

>

>

>

>

> *

[Guest guest]

bloating in the belly (often bloating all over the body), like all

the rest of your symptoms, are common among people who have been on

long courses of antibiotics drugs, thus have inflammation associated

with yeast/candida. Doctors don't understand your symptoms, thus they

can't really help you, can they? They're stumped. The fisrt thing I

did in your position was get candida books (my fav: Yeast Connection)

and started eliminating foods that cause swelling and bloat, not just

visible bloat, but bloat that inflames your organs and tissues and

brain, causing them not to work well. Inflammatory food such as

wheat, sugar and dairy make it harder for you to get the benefits of

antifungals.

The next thing I did is find a credible candida doctor, which I was

very fortunate to find.

> Hello all. I am new to this group as of yesterday. I have had

> unbelievable stomach pain and visible bulge in the belly when it

> happens, unstoppable acid bubbling into the throat, eyes that won't

> stop watering, ears that periodically become filled with fluid

causing

> me to lose my hearing and balance, fungal growth in my armpits with

> visible secretion, life altering back pain, arthritis in the knees

and

> hips, semicircle spots in front of the eyes after exercise, skin

> rashes, and the usual depression and loss of energy one would

expect

> with all this. A few other ailments as well. I never thought these

were

> all related but now I do. I recently learned about candiasis and,

yes I

> was on antibiotics for something like two years as a teen. Also

have

> had antibiotics for other things, and prednisone many times for

poison

> ivy. I asked my doctor and of course he doesn't believe in this

> diagnosis. I am here to get information and advise, and have

started

> taking caprylic acid. I am worried about taking a prescription,

because

> who knows what problems these meds might lead to. I am becoming

> increasingly skeptical of the medical establishment's ability to

face

> facts, independently make a correct diagnosis or be honest.

>

> Has anyone else had the bulge in the belly thing? that is the most

> painful and worrisome part of all this, and would love to know if I

am

> on the right track with this.

>

> Thanks for listening.

>

> -Moon

[Guest guest]

Hi Mark,

I'm a newbie too, but yes, I have lots of belly bloat and embarassing

and painful gas. Good luck to you.

Laurie

> Hello all. I am new to this group as of yesterday. I have had

> unbelievable stomach pain and visible bulge in the belly when it

> happens, unstoppable acid bubbling into the throat, eyes that won't

> stop watering, ears that periodically become filled with fluid

causing

> me to lose my hearing and balance, fungal growth in my armpits with

> visible secretion, life altering back pain, arthritis in the knees

and

> hips, semicircle spots in front of the eyes after exercise, skin

> rashes, and the usual depression and loss of energy one would

expect

> with all this. A few other ailments as well. I never thought these

were

> all related but now I do. I recently learned about candiasis and,

yes I

> was on antibiotics for something like two years as a teen. Also

have

> had antibiotics for other things, and prednisone many times for

poison

> ivy. I asked my doctor and of course he doesn't believe in this

> diagnosis. I am here to get information and advise, and have

started

> taking caprylic acid. I am worried about taking a prescription,

because

> who knows what problems these meds might lead to. I am becoming

> increasingly skeptical of the medical establishment's ability to

face

> facts, independently make a correct diagnosis or be honest.

>

> Has anyone else had the bulge in the belly thing? that is the most

> painful and worrisome part of all this, and would love to know if I

am

> on the right track with this.

>

> Thanks for listening.

>

> -Moon

[Guest guest]

Westport, CT, (203) 374-4490

> A friend said this DR was recommended by some of you on the board.

> Dr. Hulinsky where is he located in CT?

>

> Thanks

> Greg