Hello

[Guest guest]

Looks good on this wend Steve. . .Glad you made it

Sherry

healthman552003 <Dfam6@...> wrote:I'am new to the board, so I'am having

some trouble posting messages,

i hope i have the problem fixed.

Regards, Steve

[Guest guest]

Hi !

I don't know about anyone else but your mail got through to me. I wish you the best on your surgery! You are in my thoughts and prayers!

Take care!

Randybsmyers3999@... wrote:

I haven't gotten any mail from you guys in a couple of days. Is everyone quiet or is my mail not getting through? The doctor called and something is wrong with my blood work but they said i had to call to find out what is was. Of course they couldn't just leave a message and now I have to wait for Monday to find out what is going on. We are helping my mom move this weekend so at least the days are going by quick. I only have 2 weeks until my surgery. I just want it over with. Hope to hear from someone soon, the WV hillbilly

[Guest guest]

Thanks Randy and good luck to you.

[Guest guest]

(((((((((( TONY))))))))))))))))) So glad to have you back~~ I am also so sorry about the treatment your dad gave you. He is a sick man, May God forgive him!! I feel sorry for your Mom also. I just wanted to tell you we have missed you terribly bad. I am glad to see you back.

Love,

Beckie Nunez <nunez_866@...> wrote:

My Dear Friends !I hope that this e-mail finds you surrounded by God's Love & Protection.I'm so happy to tell you that I'm back home. I felt like kissing the ground when I got to the Atlanta Airport since I just endured four weeks of torment and finally my dad threw me out of the house and I was happy to leave. I hated that my mother had to stay on that inferno but I couldn't. He managed to hurt me deeply but time will bring healing.For any new member that I haven't meet I want to send you my welcome to the group. I will be more vocal now that I have access to my computer.To all the people that send me mail I want to give you my thanks. Your letters came as great encouragement and helped me endure my stay in Puerto

Rico.Love,Tony_________________________________________________________________Check out the coupons and bargains on MSN Offers! http://youroffers.msn.com

[Guest guest]

Welcome home Tony! It is good to see you back.

nne

[Guest guest]

,

Do you have a LLMD? I don't know if I emailed an article that was in the

local paper here, but will post it again.

I think you will find my story like your story.

RE: Feeling good...then not doing well...etc. Yes. Sure wish I could figure

out how to have more of the OK days.

K

[Guest guest]

The following article was in my hometown paper recently. This time last

year, I would not have been able to write this article or read it. I am

improving, but it is slowly.

May is Lyme Awareness Month.

I thought I was aware of lyme disease. I had heard about it when I was

backpacking and camping across the US and in all 3 mountain ranges.

It was not until I became totally debilitated in October 2001 that I started

really searching for answers. I had too. I liked teaching and wanted to get

back to it.

I learned that not only was I lyme ignorant but so were most doctors.

It was not until I met a doctor who knew enough to test me with Igenex Lab,

spent more than 7 minutes asking questions and listening, and was lyme

literate was lyme considered.

Most doctors told me just to pick one symptom and go with that. Lyme is

multi symptomatic and symptoms come and go over a matter of years.

After my Western Blot test score came back positive with Igenex Lab,

I contacted the Lyme Disease Association and _www.lymenet.org_

(http://www.lymenet.org/) in search of a LLMD (lyme literate doc) that would

accept my

insurance and treat me for lyme.

I found out that there were only three doctors in the state of California

that are lyme literate. I am on the waiting list for Dr. Stricker in San

Francisco. I am number 1,000 and something. I have yet to find a doctor that

accepts my insurance and am paying out of pocket for treatment at this time.

I was able to get in to see a doctor who was just opening a practice in Long

Beach. He too has lyme disease. He was misdiagnosed for 5 years before being

treatment for lyme disease. He is now able to run in the sun again after 3

years of antibiotics and other treatments.

I recently have had my moments when I too am able to jog a few feet. I

still have my moments when I need to crawl around the house because I have

pushed

myself too hard. But these are becoming few and far between. I believe the

antibiotics are helping. I also am learning to pace myself, but still push it

on my good days too far most of the time and am down for several days

afterwards.

The difficulty with vision, processing, multi-tasking, dizziness, vertigo,

ringing in the ears, ADD, twitching, muscle weakness, easily physically

fatigued, shortness of breath, brain fog, numbness, low body temperatures,

sensitivity to lights, noises, hot and cold, etc. is very challenging.

But, I look fine on the outside. The battle on the inside is a different

story.

I was tested for MS, Myasthenia Gravis, Lupus, ALS, and many other

conditions. CFS and fibromalgia were also mentioned. Lyme mimics many other

conditions.

My test scores showed that I was a walking picture of health. The only

problem is that I couldn’t walk for any longer than 10 minutes most days

without

great difficulty.

It doesn’t make sense to me how a person can be working full time one day

and not be able to the next without a reason.

I have learned that the medical field has a lot to learn when it comes to

things attacking the inside of the body.

I also learned that several of us came down sick at work at the same time

with the same symptoms. We were all given different diagnosis. I don’t know

if

the connection between all of us will ever be determined.

And I have learned that I am not the only one in this small town that has

these same symptoms. We all look fine on the outside. We are all tackling these

challenges differently and have different labels.

There are over 300 strands of bacteria. We have testing for 4 of these

strands currently. Testing for lyme is very limiting at this time. Lyme is a

clinical diagnosis.

Lyme is the fastest growing infectious disease in the US at this time.

Funding is needed for research, advocacy, awareness, education, and treatment.

I thought a spider or mosquito had just bitten me when I saw the infamous

bite with a ring around it on my arm. I ignored it. Now, I know that I should

have gone to the doctor’s and had several weeks of antibiotics immediately.

I have also learned that many people never know that they were bitten

because they never see the bite.

Lyme can be no big deal if it is caught immediately. As in my case, it can

become a big deal affecting all areas of ones life: emotionally, physically,

financially, cognitively and spiritually if left untreated for too long.

I am luckier than others. I have been able to keep a roof over my head, had

the help of the wonderful, friendly, considerate people in this town, have a

good LLMD and am not in consistent pain as most lyme patients.

There currently is a bill in Sacramento regarding the reporting and

diagnosis of lyme disease. As Dr. Stricker said in his presentation to the

capitol,

when one state went from doctor’s reporting the cases of lyme to labs doing

the reporting the numbers went from 500 to 12,000. These numbers also had to

have a doctor confirmation. CDC has also stated that they believe the cases are

10 times what is reported. This would mean California did not have 100 cases

last year but 1,000.

The hearing is very informative. To access it go to:

1. _www.calchannel.com_ (http://www.calchannel.com/)

2. Click on Comcast

3. Type in February in the archives

4. Scroll on down to February 25, Health and Human Services

5. Click on that.

6. There is a 9 minute lead in.

I believe the numbers in California will go up too if this bill is passed. I

called the Mosquito and Vector Control to see if they have tested this area

for lyme disease. This area has yet to be tested.

I also have learned that you do not need to be in an area were deer are

present in order to have infected ticks, mosquitoes, and other blood sucking

insects. Chickens, dogs, cattle, mice, humans, etc. work just as well as

hosts.

For any further information contact LDA (Lyme Disease Association), Igenex

Lab, or _www.lymenet.org_ (http://www.lymenet.org/) . My email address is

kam004@...

[Guest guest]

On Tuesday 15 June 2004 19:22, lisa baskin wrote:

> After my spinal tap, I felt GREAT for the next three days, was wondering

> if maybe I wasnt " really " sick after all. Tonight, my legs began feeling

> heavy " again and the extreme tiredness is back. Anyone else have a

> relapse in symptoms??

>

I'll tell you what I have never had, a spinal tap make me feel GREAT!

I did feel better then worse on almost a regular cycle. There were

biological events within my body that told me when it would happen. The

symptoms can be cyclic.

--

Bye,

Kerry

[Guest guest]

Kerry Whittle wrote:

> On Tuesday 15 June 2004 19:22, lisa baskin wrote:

>> After my spinal tap, I felt GREAT for the next three days, was

>> wondering if maybe I wasnt " really " sick after all. Tonight, my

>> legs began feeling heavy " again and the extreme tiredness is back.

>> Anyone else have a relapse in symptoms??

>>

>

> I'll tell you what I have never had, a spinal tap make me feel

GREAT!

>

> I did feel better then worse on almost a regular cycle. There were

> biological events within my body that told me when it would happen.

> The symptoms can be cyclic.

Hi Kerry me old mucker!!

when I went for my spinal tap I was last on the list for that day

and one by one, as the previous patients returned they were looking

sickly, complaining of headaches, vomiting.... that couldn't have

been right. I refused mine. I realise much has changed now (this was

back in the early '80s), but like you this is the first time I've

heard of a 'pleasant' spinal!!

Hope to catch up with you soon bud. I trust your quietness on the

lists has meant a resurgence into your work etc...

Take care,

Kez. . .

[Guest guest]

Hello

My Beloveth Friends !

I hope that this e-mail finds you surrounded by God's Love & Protrection. Sorry for the brief absence from the group but I just got home from a week hospital stay. Suddently I started having sezures which intensified quickly and last sunday which come home from church I had one on my dad's truck and since I started turning blue he rushed me to the emergency room. In there after all the ct's mri's eg's they informed me that a large part of the left front side of my brain was swallen but surgery or biopsy was not an option because the risk of paralisys is too great right now so they are treating the swelling to see how rapidly will go down so they can do a biopsy. They send me home with 1,100mg of dilatin dailly plus 900mg of Neurontin to prevent future sezures and Decadron to reduce the swelling. The also told me that I now have diabetes brought about after I tool the steriods. I JUST CRIED OUT TO THE LORD; I LOVE YOU AND NOT MY WILL BUT YOUR WILL.

Love,

Tony Nuñez

[Guest guest]

He is checking to see if you have a pituitary tumor. I

sure hope he ran all the needed test before putting

you on TRT. Welcome to the group.

--- ogarchamplin <ogarchamplin@...> wrote:

> I am so glad that i found a place like this. I was

> just recently

> diagnosed with Hypogonadism and i thought i was the

> only one. My

> family doctor was the one treating me but i was

> getting a shot onnce

> a month of 200mg but my levels stayed at 120. I

> went and saw a

> Endocronlogist last week and he has me using

> AndroGel 10mg once a

> day. Today i had to get a MRI of my pitutary glands

> i am not sure

> why but he ordered it. Anyhow heloo all

>

>

>

__________________________________________________

[Guest guest]

Welcome to the group.

As you discovered, one 200mg shot/month won't help. Your new endo started

your AndroGel at twice the usual starting dose. Most endos would start at

5mg/day then see if you needed more. Your guy started you at a higher dose,

which can be cut back if it's too much. I think that's a positive indication of

his

treatment style.

The MRI is a good step to discover or rule out pituitary problems. Pituitary

tumors can cause hypogonadism, but are usually benign and treatable.

Tell us about yourself. What are your symptoms? Is fertility an issue? Did your

new endo order a battery of tests? Can you post their results?

Bruce

> I am so glad that i found a place like this. I was just recently

> diagnosed with Hypogonadism and i thought i was the only one. My

> family doctor was the one treating me but i was getting a shot onnce

> a month of 200mg but my levels stayed at 120. I went and saw a

> Endocronlogist last week and he has me using AndroGel 10mg once a

> day. Today i had to get a MRI of my pitutary glands i am not sure

> why but he ordered it. Anyhow heloo all

[Guest guest]

you could have a lot of changes going on when you first start on TRT.

Stay with it for a wile. The first thing I noticed after starting TRT was

morning erections when this happens then you know it is working.

Phil

Champlin <ogarchamplin@...> wrote:

well i am 6'3 " tall and weigh 320 lbs. I use to weigh 390 but i have been on a

exercise and diet program. My wife and i have one Girl but two miscarriages. As

far as how we knew something was wrong was my libado just faded away the last

five years or so. I am 35. I no longer wake up with the moring erections as i

always did. I tried the patch but that did not work at all, so we switched to

the shot and now the Endo went to the gel. He said that if when i go back in 6

weeks and my results are not what he wants then i will get the shot of 300mg

every two weeks. I will be getting a copy of my blood work and MRI report this

week and i will post them. The only thing that i can tell you is that my last

test level was 120. BTW does the AndroGel give anyone headaches?

Bruce Harvey <bruceharvey@...> wrote:Welcome to the group.

As you discovered, one 200mg shot/month won't help. Your new endo started

your AndroGel at twice the usual starting dose. Most endos would start at

5mg/day then see if you needed more. Your guy started you at a higher dose,

which can be cut back if it's too much. I think that's a positive indication of

his

treatment style.

The MRI is a good step to discover or rule out pituitary problems. Pituitary

tumors can cause hypogonadism, but are usually benign and treatable.

Tell us about yourself. What are your symptoms? Is fertility an issue? Did your

new endo order a battery of tests? Can you post their results?

Bruce

> I am so glad that i found a place like this. I was just recently

> diagnosed with Hypogonadism and i thought i was the only one. My

> family doctor was the one treating me but i was getting a shot onnce

> a month of 200mg but my levels stayed at 120. I went and saw a

> Endocronlogist last week and he has me using AndroGel 10mg once a

> day. Today i had to get a MRI of my pitutary glands i am not sure

> why but he ordered it. Anyhow heloo all

[Guest guest]

On Wed, 11 Aug 2004 11:45:10 -0700 (PDT), you wrote:

>BTW does the AndroGel give anyone headaches?

I get headaches with it. When I do two packets. Seems to me its

related to muscle tension. At higher levels I find I clench muscles

quite a bit, and when its the jaw I get headaches. I cut back to 1.5

packets and I no longer get them. T levels on that give me about 750.

- - - -

Just another albino black sheep

[Guest guest]

On Wed, 11 Aug 2004 11:45:10 -0700 (PDT), you wrote:

>well i am 6'3 " tall and weigh 320 lbs. I use to weigh 390 but i have been on a

exercise and diet program. My wife and i have one Girl but two miscarriages. As

far as how we knew something was wrong was my libado just faded away the last

five years or so. I am 35. I no longer wake up with the moring erections as i

always did. I tried the patch but that did not work at all, so we switched to

the shot and now the Endo went to the gel.

With your weight you might want to look into getting your E2

(estradiol) checked. Testosterone converts to E2 more readily the

more body fat you have. There's folks who have recovered normal T

levels by simply blocking the conversion with arimidex.

Let's see what your test results look like for LH FSH, etc.

Are they looking at iron, ferritin and prolactin also?

Read the AACE guidelines in the file section it will give you a lot of

basic information. We find here we have to help our docs a lot to make

sure they do all the things that are recommended.

- - - -

Just another albino black sheep

[Guest guest]

Welcome, Briar!

Sorry that you have so many diagnoses, but glad to have you aboard.

Are you saying that your celiac disease makes it difficult to find

things you can and like to eat or that you suffer with it even though

you have eliminated gluten from your diet?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Hello

>

> Hello thank you for letting me join. I have multiple autoimmune

disorders, RA being one of them. The others are Hashimotos Thyroiditis,

Sjogrens, Raynaud, Coeliac. The Coeliac has left me with multiple food

intolerances which I find very hard to cope with. I have lost a lot of

weight over a short time but try to do my best. Enough of my problems. I

hope I can be of help to you all.

>

> Hope you are keeping as well as you can.

>

> Best wishes,

>

> Briar

[Guest guest]

Briar,

I hope WE can be of help to YOU!! This is an amazing group to be in.

They are a wonderful resource. Take care......Marina in Ohio

[Guest guest]

Sara, I read this and thought...ahhhh...redheads...I knew we sounded like we

had something in common.

This disease is an evil, evil thing. It's stolen half of my 50 years

From me, and I could get good and angry about that. It has taken my

Youth, my strength, and my career. But I'll be damned if I let it

Take away my will to live life to the fullest without one hellacious

Red-headed fight.

Sara

-- Re: [ ] Hello

Cortney, when it starts to get to be this much of a problem, it's a

clear sign that you need to make serious changes in your life. You

have a very real and disabling disease that is absolutely demanding

that you re-arrange your life around it. You can either waste your

strength fighting this fact, or accept it and start to find ways to

make your life with Lyme workable. Trust me: you'll get a lot farther

by leaning into this and making room for it than you will trying to

fight it.

If you're that far behind in school (especially at this stage of the

school year) then you, your parents, and the school district need to

be having some serious conversations about how to make this more

manageable for you. I'm sure you're aware that independent

instruction/ home study is an option most districts are set up to

offer kids who are housebound due to illness. They'll usually assign

you a teacher who oversees your work. You do it at home, usually

online, at a pace you can manage. These programs were set up exactly

for kids like you, and it's time to take advantage of them.

Alternatively, you might consider what can be done to make your

standard school day more workable. I do hope you've dropped PE and

athletics: if you're this sick, you need all your strength just to

keep up with the rest of your life. (Your doctor will write a letter

excusing you, if needed.) Maybe there's a middle ground where they'll

let you take some of your courses at school, and some from home. That

way, you could arrange for a shorter class day (maybe morning through

lunch, or late morning through the end of the day), which would allow

you to stay in the social flow but also gear down on the amount of

stress you're under.

As for your social life: I coped by taking mine online as much as

possible. Social networking stuff is a boon for people like us. You

can stay in regular touch with friends even when you're not up to

being around them; and can take incoming contact at your own pace when

you are up to it. (And if I may say -- it was damned crappy of your

friends to wander off on you -- but consider that you may be better

off without people who are that superficial in your life. That's not

what real friends do.) You might also work with your parents and any

remaining friends to make sure you've got a regular outing or two

every week -- some activity (like a regular Friday night movie night)

that will get you out and keep you engaged with the world. There are

also online teen Lyme communities where you can find daily connection

and support from people who are in the same situation. Your social

needs are as real and valid as your need for education and your need

for a sustainable pace of life, and it's worth giving some realistic,

strategic thought as to how you're going to get them met.

This can be done. I denied my illness for a full decade before finally

admitting I needed to re-arrange my life around my insatiable need for

rest. And in that time, I made a real mess of things, because I

refused to let go of anything. My real healing began when I started

taking these physical demands with the deadly seriousness they

deserved, and moved the furniture of my life around to make room for

them. For most of the last decade, I've lived much of my life from bed

-- maintaining a happy marriage, raising two great kids, earning a

grad school degree, and (miraculously) restarting an entirely online

career that's even more fabulous than the one I had to give up 12

years ago (which, if I do say so, was pretty damned fabulous). Since

then, I've also gotten physically better year over year -- even before

my Lyme was finally diagnosed last year.

You can gear back and still have a very satisfying life. It won't be

the same life; but you need to believe that it will be one worth

having. The main thing is to figure out what your real priorities are

in life -- and then hold on tight to them, cherish them for all you're

worth, and don't let anything get in between you and them. You have to

give yourself reasons to keep going -- things to look forward to,

goals to be achieved. If the Lyme causes depression, don't let it go

untreated, because if you lose your will to go on, that's when you're

at risk of losing it all.

This disease is an evil, evil thing. It's stolen half of my 50 years

from me, and I could get good and angry about that. It has taken my

youth, my strength, and my career. But I'll be damned if I let it

take away my will to live life to the fullest without one hellacious

red-headed fight.

Sara

On Mar 28, 2009, at 12:40 PM, Cortney wrote:

> Hi,

> My name is Cortney and I live in Illinois. I've had Lyme

> Disease for two and a half years and I would like to ask, How do you

> cope with what we have? I know that i read books and try to get out

> and go see a movie. How do you keep up with schoolwork? I'm about a

> month and a half behind in every one of my subjects at school and

> I'm a junior in highschool. I've missed most of the days of my

> highschool enrollment and lost all of my friends and am looking for

> someone who can relate to what I've been through. It took us two

> years to find out i had lyme disease because doctors in illinois are

> blind to it. i look forward to hearing back from someone!

>

> Cortney

>

>

[Guest guest]

In a message dated 11/15/2004 4:55:36 PM Eastern Standard Time,

woo_conley@... writes:

One of the best things you can do is to be informed. Learn all you

can - and filter it through common sense. Needless to say - not

everything is true just because you read it somewhere.

Out of curiosisty, how were you diagnosed? Is your particular doc

lyme literate? I told 3 doctors I thought I had lyme before one

actually listened. I had the bullseye rash months before, didn't

know what it was until I saw pix on the net - but no one believed me

since they hadn't seen it themselves - and Louisiana was a " low

incidence " state.

] My diagnosis took some time, apparently, because I lacked the

proverbial bull's eye and because other 'coincidental' explanations seemed to

exist

for my symptoms. But when my aches became varied enough my family doc

ordered a test for Lyme's. Ironically, the day I went for the blood test I

discovered that my resting heart rate had dropped to 40 bpm. ! I was admitted

to

the local hospital (cardiac section). It was not until the Lyme's test

results came back that I was treated for Lyme's--but kept in the cardiac

section

because of the low pulse rate. The infectious disease doc at the hospital (St.

Luke's in Bethlehem) who began treating me was VERY Lyme's literate, AFAIK.

He came very highly recommended. )

Thanks for your comments !!

[Guest guest]

In a message dated 11/15/2004 6:25:40 PM Eastern Standard Time,

smc203@... writes:

Hi ! Welcome!

Thanks !

[Guest guest]

One of the best things you can do is to be informed. Learn all you

can - and filter it through common sense. Needless to say - not

everything is true just because you read it somewhere.

Out of curiosisty, how were you diagnosed? Is your particular doc

lyme literate? I told 3 doctors I thought I had lyme before one

actually listened. I had the bullseye rash months before, didn't

know what it was until I saw pix on the net - but no one believed me

since they hadn't seen it themselves - and Louisiana was a " low

incidence " state.

>

> Hello, Group

>

> I just wanted to introduce myself. My name is and I'm 41

and live in

> eastern Pa. I mow lawns for a living and was 'safe' all these

years until

> this summer when apparently I got " it. " No bull's eye or

anything--hence the

> delay in diagnosis. But eventually I wound up in the hospital

with 3rd degree

> heart block. A week later I was home and doing another 3 weeks

of IV

> antibiotics (ended Sept. 27th). No real problems until 2 weeks

AFTER I stopped the

> meds. For the past month it's been bowel and stomach

discomfort. (

>

> Needless to say, I am grateful for your interactions and comments,

esp. the

> recent topics. I hope to gain some insights into Lyme's from

continuing to

> read your posts.

>

> I hope and pray all of you do well physically and make good

progress in

> fighting this 'plague.' )

>

>

>

>

>

>

[Guest guest]

Hello,

Well, I'm 59 and first found out I had a problem in 1991. My best guess is that I contracted it during my Vietnam service, so I've had it quite some time. I'm just about to start fixing it (if it can be fixed).

Here is one link for you:

http://www.cdc.gov/ncidod/diseases/hepatitis/c/fact.htm

Best regards from Rochester, NY

Jim

[ ] hello

hello,my name is diane,41yrs old female.i was just diagonise with Hepatitis C,and would very much like to get some more information on this disease,and some support.please if you have any send them to me.hope to meet new people and become friends.have a wonderfull thanksgiving........diane

[Guest guest]

Welcome. I can reassure you that this is not a death sentence, and many of us are being successfully treated, myself included. It is generally slow progressing and the chances are good to outlive the disease, even if not treated. If you have any more specific questions, you've come to the right place, somebody will likely be able to answer any question you may have. -dz-diana <harleymariebabe69@...> wrote:

hello,my name is diane,41yrs old female.i was just diagonise with Hepatitis C,and would very much like to get some more information on this disease,and some support.please if you have any send them to me.hope to meet new people and become friends.have a wonderfull thanksgiving........diane

[Guest guest]

Hi Martha welcome to the group. Yes he can have children with out passing it on to them. The odds of passing it down to your children. The odds are very slim to none. Even passing it to you through intercourse is very slim to none. Hep Cis passed through the blood, blood transfusions tattoo & IV drug use are most comion. But can be passed trough sharing a razor or toothbrush.

The only time you shouldn't try having children is while he is on treetment. Treetment will cause birth defects. While I was on treetment, my Doctor said to use double protection durring intercourse.But once compleeting treetment, it is OK working on having kids.

The good news is a lot of us have beat this through treetment.

Treetment can be rough. But a lot os us managed to get through it. Treetment vary's from person to person, so some can not tollerate treetment. You never know untill you try it. If the side's affects are to hard he can stop. Terrymartha_mccubbins <maldonadomartha@...> wrote:

Hi my name is Martha and I am looking for a support group who will help me understand Hepatitis C. I found out today that someone very close to my heart has this disease. I have read a few things on HPC but am not clear on what that means for his/our future. I have one question that I can't seem to get a straight answer for. Since he has Hepatitis C does this mean that he should not have children? Please pardon my ignorance on this subject. The reason I want to know is because after 20 years our lives have come full circle and we are in one anothers lives again and planning a future. Hepatitis C is not going to keep us from each other but I would like to know what to expect. I want to be informed. Any help will be greatly appreciated. Thank

you,Martha__________________________________________________

[Guest guest]

Terry,

Thank you for the information. It is funny how scary something can be when you don't know anything about it. I felt like I had been handed a death sentence. I am much more relieved after talking to his mother and reading up on the disease online. Reading your email has brought me greater peace of mind. He has not started any treatment for it but I believe what he is going to take for it is Interform or something like that. I hear it could be very rough. Any suggestions on how to make it easier for him. I want to be very supportive. It was a big step for him to share this with me. I think he expected me to reject him but its the exact opposite. I feel helpless because right now he is in Nebraska and I am in Texas. The plans were for him to move down here in November of next year if things went well for us over the next year. I am thinking it might be better if he was here now so that I could help take care of him. Terry I want to thank you again for the peace of mind you have brought me. I will appreciate any information you can give me or resources that you can direct me to.

Thank you,

Martha

In a message dated 12/4/2004 10:36:12 AM Central Standard Time, pawpawto3@... writes:

Hi Martha welcome to the group. Yes he can have children with out passing it on to them. The odds of passing it down to your children. The odds are very slim to none. Even passing it to you through intercourse is very slim to none. Hep Cis passed through the blood, blood transfusions tattoo & IV drug use are most comion. But can be passed trough sharing a razor or toothbrush.

The only time you shouldn't try having children is while he is on treetment. Treetment will cause birth defects. While I was on treetment, my Doctor said to use double protection durring intercourse.But once compleeting treetment, it is OK working on having kids.

The good news is a lot of us have beat this through treetment.

Treetment can be rough. But a lot os us managed to get through it. Treetment vary's from person to person, so some can not tollerate treetment. You never know untill you try it. If the side's affects are to hard he can stop. Terry