Hello

May 31, 2003

Sorry this is a bit late. I got a peach kind of fuzz on my cheeks by my

hairline after being on prednisone for over 2 years. It's not noticeable unless

you are up close. You can always get it waxed.

take care,

lesle

June 6, 2003

Welcome to the group Dave, tho I'm sorry you're here under these circumstances.

I was under the impression if there is bowel/bladder problems it's a very

serious sign and surgery is almost immediate, at least that was what a couple

doctors told me after asking if I had those problems... my main problem was

L5-S1, tho I just got back some surprising news on C5-6. Anyhow, when I said no

why they said well, if I had those problems, that sends up a huge warning sign

and surgery is immediate. I don't want to scare you at all, I'm just concerned I

guess from what I was told, but I'm sure your doctor knows what he's doing

Please feel free to post anything at anytime, we're here to share our

experiences, maybe help others with what we've been through with our personal

experiences and info, and most of all listen... we all feel pain that others

can't imagine and sometimes understand what we go through 24/7. We never judge

each other and know when we have a bad day, we can vent, complain, scream (well

that's if you type in CAPS lol), etc and all of us understand and nobody ever

has to feel the need to apologize for doing so, we're all unfortunately in pain

here. Again, welcome to the group!

Connie

Hello

> My first Group. Not sure what to expect...

>

> I want to take a brief moment to introduce myself. My name is

> McCabe. I ruptured T6/7 and T7/8 about 3 weeks ago after hitting a

> golf ball. The T7/8 is causing " significant " compression of my cord,

> resulting in bladder and bowel dysfunction and weakness in my legs.

> I have a surgeon in Texas who uses a technique called a thoracotomy

> (sp?) but I'm trying to hold off until I hear back from Dr. Curtis

> Dickman in Phoenix, AZ., who may be able to correct my problem using

> a less invasive procedure with a scope.

>

> My chin dropped today when I learned that some of the challenges

> resulting from my injury are most likely permanent. I've had my

> pilot's certificate for about 17 years and was right in the middle of

> teaching my son to fly. He may have to finish his lessons under

> someone else - bummer for me as we've always been really close. The

> good news is that this should not impact my profession in a negative

> way. As a matter of fact, my injury and the stories I've read about

> others has opened my eyes to some of the hardships experienced by

> individuals with disabilities. Maybe I'll begin devoting some time

> to helping these people.

>

> I have always had a positive attitude and I know that no matter how

> things turn out, things could always be much worse!

>

> So there's my official introduction I'll probabaly spend most of

> my time here in the background until I become accustomed to how

> things work.

>

> Dave

> daveREMOVE@... - please use this email address for me.

> http://www.fragless.net - McCabe's Crossing (Still Under Construction)

>

June 6, 2003

Dave, welcome to the group..I must say you have a GREAT ATTITUDE. Dont settle

on thinking you wont get cured. We all may have thought that at one time or

another.

Wait and hear fromt the surgeon and see what he thinks about using the scope.

I had a l4-l5 herniated disc in Jan 02 had surgery but then just this past

april had them fused. I thought the pain would never go away. Its really hard

for me to deal with pain and I had taking pain meds so it was getting to me. But

now I am doing great and hope that you also will be feeling great soon.

We are a great group. Lots of info is shared and given. We have some jokers

on board I am sure you will meet them.. We are friendly and anytime you have

a question just yell and somone is bound to answer.

Please let us all know what the surgeon says.

June 7, 2003

Bowel/bladder problems - one or both are red flags. We

have " temporary fixes " in place but I'm told that we can't wait much

longer or the damage could be permanent. But I don't profess to know

everything

Dave

> Welcome to the group Dave, tho I'm sorry you're here under these

circumstances. I was under the impression if there is bowel/bladder

problems it's a very serious sign and surgery is almost immediate, at

least that was what a couple doctors told me after asking if I had

those problems... my main problem was L5-S1, tho I just got back some

surprising news on C5-6. Anyhow, when I said no why they said well,

if I had those problems, that sends up a huge warning sign and

surgery is immediate. I don't want to scare you at all, I'm just

concerned I guess from what I was told, but I'm sure your doctor

knows what he's doing Please feel free to post anything at

anytime, we're here to share our experiences, maybe help others with

what we've been through with our personal experiences and info, and

most of all listen... we all feel pain that others can't imagine and

sometimes understand what we go through 24/7. We never judge each

other and know when we have a bad day, we can vent, complain, scream

(well that's if you type in CAPS lol), etc and all of us understand

and nobody ever has to feel the need to apologize for doing so, we're

all unfortunately in pain here. Again, welcome to the group!

> Connie

>

> Hello

>

> > My first Group. Not sure what to expect...

> >

> > I want to take a brief moment to introduce myself. My name is

> > McCabe. I ruptured T6/7 and T7/8 about 3 weeks ago after hitting

a

> > golf ball. The T7/8 is causing " significant " compression of my

cord,

> > resulting in bladder and bowel dysfunction and weakness in my

legs.

> > I have a surgeon in Texas who uses a technique called a

thoracotomy

> > (sp?) but I'm trying to hold off until I hear back from Dr.

Curtis

> > Dickman in Phoenix, AZ., who may be able to correct my problem

using

> > a less invasive procedure with a scope.

> >

> > My chin dropped today when I learned that some of the challenges

> > resulting from my injury are most likely permanent. I've had my

> > pilot's certificate for about 17 years and was right in the

middle of

> > teaching my son to fly. He may have to finish his lessons under

> > someone else - bummer for me as we've always been really close.

The

> > good news is that this should not impact my profession in a

negative

> > way. As a matter of fact, my injury and the stories I've read

about

> > others has opened my eyes to some of the hardships experienced by

> > individuals with disabilities. Maybe I'll begin devoting some

time

> > to helping these people.

> >

> > I have always had a positive attitude and I know that no matter

how

> > things turn out, things could always be much worse!

> >

> > So there's my official introduction I'll probabaly spend most

of

> > my time here in the background until I become accustomed to how

> > things work.

> >

> > Dave

> > daveREMOVE@f... - please use this email address for me.

> > http://www.fragless.net - McCabe's Crossing (Still Under

Construction)

> >

June 7, 2003

Both problems are red flags, biggie from what I understand, and I understand the

same as you, permanent damage if not treated immediately... also like you said

tho, I don't claim to know everything either, but when I hear of warnings like

that I try to let others know what I've been told from doctors so they can at

least ask their own doctor about it, better safe than sorry

Connie

Hello

> >

> > > My first Group. Not sure what to expect...

> > >

> > > I want to take a brief moment to introduce myself. My name is

>

> > > McCabe. I ruptured T6/7 and T7/8 about 3 weeks ago after hitting

> a

> > > golf ball. The T7/8 is causing " significant " compression of my

> cord,

> > > resulting in bladder and bowel dysfunction and weakness in my

> legs.

> > > I have a surgeon in Texas who uses a technique called a

> thoracotomy

> > > (sp?) but I'm trying to hold off until I hear back from Dr.

> Curtis

> > > Dickman in Phoenix, AZ., who may be able to correct my problem

> using

> > > a less invasive procedure with a scope.

> > >

> > > My chin dropped today when I learned that some of the challenges

> > > resulting from my injury are most likely permanent. I've had my

> > > pilot's certificate for about 17 years and was right in the

> middle of

> > > teaching my son to fly. He may have to finish his lessons under

> > > someone else - bummer for me as we've always been really close.

> The

> > > good news is that this should not impact my profession in a

> negative

> > > way. As a matter of fact, my injury and the stories I've read

> about

> > > others has opened my eyes to some of the hardships experienced by

> > > individuals with disabilities. Maybe I'll begin devoting some

> time

> > > to helping these people.

> > >

> > > I have always had a positive attitude and I know that no matter

> how

> > > things turn out, things could always be much worse!

> > >

> > > So there's my official introduction I'll probabaly spend most

> of

> > > my time here in the background until I become accustomed to how

> > > things work.

> > >

> > > Dave

> > > daveREMOVE@f... - please use this email address for me.

> > > http://www.fragless.net - McCabe's Crossing (Still Under

> Construction)

> > >

June 13, 2003

Hi Sharon, Terry, Terri, and Graham!!!!!!! ;o

I have been busy with my Mom. Never a dull moment around here..... Yes

Graham you did get to see the side of people that is not so nice when we

tell them that we have Hep C..... That is when you find out wo your true

friends are. I am very happy to hear that you don't have it. Now you can

try to educate the people who shun us because you did experience a bit

of the not knowing for a while there....

Sharon!!!!! R the kids driving U nuts yet.... ;o Hey Terry. Can I

borrow Susy for a little painting? LOL.........

Terri and how r u doing? And to all of the other ones hiding

out!!!!!

WHERE R U??????

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

June 13, 2003

Hey -dz-....... How r u ????????? Do u have room 4 one more??????? ;o

Just kidding of course

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

June 13, 2003

Hey -dz- It wasn't me that was coming!!!!! I was sending my Mom to

keep your Mom company!!!!! Her name is Goldie! Will that do? I

didn't know your wife's name is Diane!!!! I never heard you mention that

you little secret keeper! Hope your day turns out good on Sunday!!!

HAPPY FATHER'S DAY TO ALL YOU DADS OUT HERE!!!!!!!!!!!

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

June 13, 2003

Terry,

I'm getting another estimate! LOL

Susy doesn't come cheap!!!!

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

June 13, 2003

HiTerri,

Well that stinks!!!!! Sure hope you feel better soon!!! I am just

plugging right along Terri........ I got to do what I got to do!! Take

care of yourself and get some rest girl!!!!!

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

June 13, 2003

Hi Everyone,

Going camping for a few days at a state park in NH. The sites are in the

woods and the only facilities are water and outhouse type toilets.

Sometimes I go alone to a site I canoe and hike to but not this time (Judy

is going and she likes chairs, mattresses, screen tents, and stuff like

that). Three big ponds with loons. I've seen moose there before. Once in

a while someone sees a black bear. It's a neat place. Plenty of mosquitoes

for everyone :-)

Have a nice weekend,

Dennis

Re: [ ] hello

> Hi Sharon, Terry, Terri, and Graham!!!!!!! ;o

>

> I have been busy with my Mom. Never a dull moment around here..... Yes

> Graham you did get to see the side of people that is not so nice when we

> tell them that we have Hep C..... That is when you find out wo your true

> friends are. I am very happy to hear that you don't have it. Now you can

> try to educate the people who shun us because you did experience a bit

> of the not knowing for a while there....

>

> Sharon!!!!! R the kids driving U nuts yet.... ;o Hey Terry. Can I

> borrow Susy for a little painting? LOL.........

>

> Terri and how r u doing? And to all of the other ones hiding

> out!!!!!

> WHERE R U??????

>

> Angel Hugs,

> Diane

>

> May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

>

June 13, 2003

Hi Dennis,

Have a nice trip! It sounds so relaxing..... Don't leave any food

around for the Bears....

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

June 13, 2003

I'm one up on Judy!!!! I like it when you go in a travel trailer.....

LOL

Sharon you are game for anything girl..... Good Luck with the pup...

What r u going to name the dog?????????

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

June 13, 2003

OK, one more chiming in agreement with your wife! lol

I'm going camping tomorrow for a week, it will be the first time I've been

since my husband died, so it will be a new adventure. But no, I'm not

roughing it, bringing my two cocker spaniels, and meeting friends there who

have a trailer, and I'm renting a trailer while I'm there. But I'll be

thinking about you Dennis - and I'll be happy I'm not there. lol

C

Re: [ ] hello

>

> > Hi Sharon, Terry, Terri, and Graham!!!!!!! ;o

> >

> > I have been busy with my Mom. Never a dull moment around here..... Yes

> > Graham you did get to see the side of people that is not so nice when we

> > tell them that we have Hep C..... That is when you find out wo your true

> > friends are. I am very happy to hear that you don't have it. Now you can

> > try to educate the people who shun us because you did experience a bit

> > of the not knowing for a while there....

> >

> > Sharon!!!!! R the kids driving U nuts yet.... ;o Hey Terry. Can I

> > borrow Susy for a little painting? LOL.........

> >

> > Terri and how r u doing? And to all of the other ones hiding

> > out!!!!!

> > WHERE R U??????

> >

> > Angel Hugs,

> > Diane

> >

> > May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

> >

June 16, 2003

I agree with Jerry. "That's scary." I would much rather have the endoscopy, good drugs. The barium always makes me vomit. It is much improved these days but I just can't forget the old stuff.

Hang in there.

June 16, 2003

Sooooo Jan how are things REALLY going....

...you can tell us we're all friends.

BTW....I personally would rather have the thingy , as you receive some

pretty nice drugs, Demerol and Versed, but then maybe you prefer barium

milkshakes.....

Always thinging about you lady.....of course it is always my biggest

fear that someday you'll fall off, keep dug in.

Love jerry

hang in honey...

June 16, 2003

Jan,

I have missed your posts. I am very sorry to hear that you have pneumonia and other setbacks. I will be praying for you friend. I think you and should have a big pity party...you guys are such an encouragement to me, in your battles with this disease. Please be gentle with yourself.

Love Ya Lots,

RuthIan & Janet <ianjanaust@...> wrote:

hello everyone....thanks Jerry for the info. I already knew as you know my problems with blood vessels. Its been a funny 2/3 weeks. Chest pains, pain left shoulder, legs aching like mad, palpitations. After ECGs,xrays,bloods Im home now and told to take it easy which Im willing to do at the moment as Ive got a bout of pneumonia and trachyitis (sp). Supposed to have that thingey put down my throat but I said a blunt no...Ive been poked & prodded too much and told the dr Id much rather die. So Im supposed to have a barium xray in its place and meantime Ill think about it. As everyone can see Im being the most difficult obnoxious patient at the moment....I just want to be left alone and curl up. So I think it was who said she was in the midst of pity party, well if you dont mind Ill join you for a while. Someone mentioned being sensitive to Imuran, so was I, & put on 6mp (mercaptopurine) and havent had any problems. With me 6mp wasnt

introduced until I was down to 10mg pred and after my LFTs stabilised to upper normal. Never heard of that product your doctors says for you to look into.....seems to me he should have more a plan for you if you cant take imuran than going to the pharmacy to check things out. Well as Im a doom and gloom merchant at the moment, Ill sign off...take care everyone.

Love Jan

June 23, 2003

Yeah funny we haven't heard a word from Kenny anymore....I for one was tired of

reading the same emails over and over again about him having his own self pity

parties. Hey we all could do that here, BUT what good does it do? Just have to

learn to deal with this and do whatever we can,but not dwell.

What city are you in? i use to live in San Diego and Pebble Beach " ions " ago.

Hello

CF and , Thank you, I mostly lurk about trying to find some

reason to all this. I found this site from another called SDSC. It

has a link to here. I won multiple level spinal fusions and joint

problems. A couple years ago I was looking everywhere to find some

help and just a few weeks ago stumbled into the first site then here.

Mine was cumulative trauma from my former job. Jackhammers and heavy

lifting mostly. Never a real accident. It sort of just crept up on me

since 93. That shoe guy, I sent him a post and a personal message

about the Ortho I see in So. Cal. where he said he was from. Never

heard a word. Dont know if its the same guy but I also have Fibro it

seems and on a Fibro site there was someone who kept coming in and

pretending. It was pretty weird. I cant believe that someone would

pretend to have this stuff. Oh well, maybe there is a pretenders

forum for them! I live 30 miles east of LA if anyones from here.

June 23, 2003

Hehe my name is Connie, I have CF on my personal email addy just because I

try to sign all my posts but sometimes forget, so now you know Connie is me

Yeah funny how he's " not going to bother us anymore " , doesn't seem too upset in

the one email that he was doubted (I think if he was for real he would have been

typing up a fit, I know I would), emailed about 4-6 posts after the " quitting " ,

and now nothing. I tried to believe in him, but someone who can't answer your

questions over and over, asked by several of us and Never since his first post

any response, well I would like to believe him but think he was just a whiner

that wasted all our time, tho the good thing is maybe some others got some

typing practice out of it, I did LOL (Hope everyone takes that as I mean it, a

joke)

Connie

Hello

> CF and , Thank you, I mostly lurk about trying to find some

> reason to all this. I found this site from another called SDSC. It

> has a link to here. I won multiple level spinal fusions and joint

> problems. A couple years ago I was looking everywhere to find some

> help and just a few weeks ago stumbled into the first site then here.

> Mine was cumulative trauma from my former job. Jackhammers and heavy

> lifting mostly. Never a real accident. It sort of just crept up on me

> since 93. That shoe guy, I sent him a post and a personal message

> about the Ortho I see in So. Cal. where he said he was from. Never

> heard a word. Dont know if its the same guy but I also have Fibro it

> seems and on a Fibro site there was someone who kept coming in and

> pretending. It was pretty weird. I cant believe that someone would

> pretend to have this stuff. Oh well, maybe there is a pretenders

> forum for them! I live 30 miles east of LA if anyones from here.

>

June 23, 2003

Good job connie, on the typing practice. ha ha ha chris