Hello

August 31, 2002

Robyn:

Thank you for you advice. I will try to stay away from those products

that you mention. I thank you for you prayers.

SAM

> Hello Sam,

> My name is Robyn, I am 43 & live in beautiful Nth Queensland,

Australia. I was so sad to read your story...but I feel your pain &

frustration. I am a Manager with 13 staff & look after 2 offices. My

flare up at the moment is really bad, I have both wrists, neck, finger

flared up this time. I have my hand in a splint as movement is so

painful. But, I must work as I have committments & I sometimes wonder

how I can go on. Concentrating is difficult as I take alot of

painkillers. Like you I get annoyed wiyh myself & my limitiations. I

have refused to take anymore Methotrexate as I had liver problems the

previous 3 times.I take Prednisone, Voltaren & Prothiaden & pain

killers, but more importantly..DIET!. Avoid foods that " flare you up "

especially, potatoes, tomato, eggplant & peppers. I have also cut out

caffiene. I find this helps with pain control. Good luck with your

battle, it's just as much a battle as with the Secret Service...lol.

I'll pray for to feel better as soon as you read this email,

> Regards..Robyn

>

September 6, 2002

--- dr mano mustafa <drahmedmac@...> wrote:

please also tell me about colloidal sillver at what dose i

> take it

> and for how long.

You shouldn't take it at all. It can be dangerous. It is a metal, it

is stored in the body in various tissues and organs, INCLUDING THTE

LIVER, and can be toxic to the liver. Iron is toxic to the liver.

Copper, gold, lead. Almost anything where there is excess that is not

excreted from the body can be toxic to the liver. (This included

vitamins like vitamin A, D, and K.) There are MUCH safer and also

much more effective alternatives to use if you don't want to use the

pegylated interferon/ribavirin combo.

Claudine

__________________________________________________

September 10, 2002

Dawn-

Welcome and I am so sorry to hear that 4 out of 5 have lyme.

I am a mom of 6, my husband, myself, and 5 of my 6 kids have lyme.

You didn't mention of you all are being treated, seeing a LLMD, etc.

Maybe I can help, I am in remission with lyme and cured of the co-infections

of babesia, bartonella, mycoplasma, HHV-6 and Epstein barr after 3 1/2 yrs.

of tx and was paralyzed from lyme. I have been a lyme advocate for 6 yrs. and

am in the natural health field.

sue in nj

sue massie

September 10, 2002

Dawn,

We to have four of the five of us sick with Lyme Disease if you ever want to

talk let me know...sounds like we have some things in common.

Cyntha Landon in Lititz The ones of us infected is me, Myesha, Celeste and

...husband is being tested he has been having trouble off and on.

Re: [ ] Hello

Dawn-

Welcome and I am so sorry to hear that 4 out of 5 have lyme.

I am a mom of 6, my husband, myself, and 5 of my 6 kids have lyme.

You didn't mention of you all are being treated, seeing a LLMD, etc.

Maybe I can help, I am in remission with lyme and cured of the co-infections

of babesia, bartonella, mycoplasma, HHV-6 and Epstein barr after 3 1/2 yrs.

of tx and was paralyzed from lyme. I have been a lyme advocate for 6 yrs. and

am in the natural health field.

sue in nj

sue massie

September 10, 2002

I do not quite understand this message???

Re: [ ] Hello

Hi, Dawn,

Welcome. Yes, every fall in particular. I'm in the worst crash now. Why

is this, does anyone have a clue? It's very discouraging, isn't it?

Wellness to you,

Marie

September 10, 2002

Hi Marie,

Yes It's very depressing. Especially being that Bet starts school now... she

missed today. Last year she missed 40 days. I have an appt for her thursday. She

cant miss more then 24 days of school so I'm praying that she will go into

remission. She was bussing tables over the summer, she was in so much pain that

she was crying at work and the next day she couldn't get out of bed. It's really

weird I never put lyme and ms in the same catagory but you know now that i think

about it Bet does alot of the snytoms my mom had. I know more people with lyme

than without. Lyme is very bad in this area. I'm going to see if i can start a

petition to make lyme titters free. Its sinful if you dont have insurance they

dont test you cause the tests are over 500.00 so they just treat you for it and

you might not even have it.

Dawn

P.S. I dont know why maybe the seasons maybe the change of weather especially

hot to cold???? I'm clueless LOL

---------------------------------

- We Remember

9-11: A tribute to the more than 3,000 lives lost

September 10, 2002

LOL Hi Holly

the question was does anyone get worse in the fall and spring???

---------------------------------

- We Remember

9-11: A tribute to the more than 3,000 lives lost

September 10, 2002

Sure I'd love to talk.... email me please.

Thanks Dawn

---------------------------------

- We Remember

9-11: A tribute to the more than 3,000 lives lost

September 11, 2002

I have always gotten worse in the fall and winter. The cold and me do not get

along very well. With such bad arthritis and bursitis they just do not mix.

But then this summer I had a horrible time with hot flashes so can anyone

reallly ever know with this disease????I do not think so.

Re: [ ] Hello

LOL Hi Holly

the question was does anyone get worse in the fall and spring???

---------------------------------

- We Remember

9-11: A tribute to the more than 3,000 lives lost

September 11, 2002

Dawn,

Is this for me or someone else? If it is for me I need your e-mail address. I

just get confused sometimes on this panel because unless someone specifically

says your name you don't know who it is for.

holly

Re: [ ] Hello

Sure I'd love to talk.... email me please.

Thanks Dawn

---------------------------------

- We Remember

9-11: A tribute to the more than 3,000 lives lost

October 16, 2002

TrueColorz,

I can't offer a whole lot hers, since I was just diagnosed on Friday! But I do know this - I have a Hepatologist (a subspecialty of Gastroenterology) and he could tell that I had AIH by looking at my bloodwork and most especially, my biopsy slides. I picked up my slides from the hospital and took them to his office myself. He also noticed something that the pathologist who did my biopsy report didn't even notice - the presence of a bile duct disease.

Right now I'm on 1,500 mg Urso a day. I'm not sure why he didn't put me on Prednisone but I have another appointment in a month, at which time I'll get the results of my MRI of the bile duct and DNA and chromosomal bloodwork. I'll know more then about the course of my treatment.

I'm also new to this list and would appreciate any information and tips I can get my hands on.

Bless all.

October 16, 2002

Welcome Iggy.....you will gets lots of info here! Sorry that you have to join this club, but is sounds like you have an awesome doctor! That is good......

debby

Re: [ ] Hello

TrueColorz,I can't offer a whole lot hers, since I was just diagnosed on Friday! But I do know this - I have a Hepatologist (a subspecialty of Gastroenterology) and he could tell that I had AIH by looking at my bloodwork and most especially, my biopsy slides. I picked up my slides from the hospital and took them to his office myself. He also noticed something that the pathologist who did my biopsy report didn't even notice - the presence of a bile duct disease. Right now I'm on 1,500 mg Urso a day. I'm not sure why he didn't put me on Prednisone but I have another appointment in a month, at which time I'll get the results of my MRI of the bile duct and DNA and chromosomal bloodwork. I'll know more then about the course of my treatment.I'm also new to this list and would appreciate any information and tips I can get my hands on. Bless all.

December 27, 2002

Check out naturalhealingsolutions.com.

> Hello, I'm new here.† What is the Russ Protocol and is

>there a web site/information I can look up to read

>about it?

>Has anyone used SF722 and what did/do you think?†

>I can answer yes to almost all the quetions asked

>about candidas so I know I have to do something.

>Has anyone ever heard of yeast pockets or sacks.† I

>have had golfball sized " polyps " removed from my

>maxillary sinus cavities and sinus areas twice and one

>doctor said he hadn't seen polyps like that before and

>I'm thinking they could be a yeast pocket or sack

December 27, 2002

Hello, ML, and welcome.

The " Russ protocol " is a diet/supplement plan. Some people seem

to have luck with it, some didn't. The URL was provided above. But

everyone's bodies are different, with differing degrees of illness,

different symptoms, different strains of yeast, different food

allergies, differences of opinion and results are bound to happen.

I just ordered the SF-722. Again, I've heard both good and

indifferent responses about it. I'm going to try both the Russ

protocol, then the SF-722. If they work, I'll be very happy. And I

won't know unless I try them. That's just me.

December 27, 2002

Hi, ML -

I'm one of the ones who's seeing dramatic improvement on the " Russ

protocol " --- and I've been adhering to every detail of the protocol,

including the very restrictive diet. I think that some of the folks

who've done most of the protocol but added things to the diet haven't

had such good results. If you decide to do it, do it completely ---

it's only for 30 days --- not a bad trade-off for the likelihood of

getting well.

Considering the fact that I'm 55 years old and have probably had

candidiasis most of my life, I consider this turn-around to be pretty

awesome.

Good luck figuring out what you need to do.

Connie

> Hello, ML, and welcome.

> The " Russ protocol " is a diet/supplement plan. Some people seem

> to have luck with it, some didn't. The URL was provided above. But

> everyone's bodies are different, with differing degrees of illness,

> different symptoms, different strains of yeast, different food

> allergies, differences of opinion and results are bound to happen.

> I just ordered the SF-722. Again, I've heard both good and

> indifferent responses about it. I'm going to try both the Russ

> protocol, then the SF-722. If they work, I'll be very happy. And I

> won't know unless I try them. That's just me.

February 3, 2003

FPR

UNSUBSCRIBE

BILL_BUCK92647

[ ] Hello

> Hi Everyone! I am an aunt of a recent near drown victim. His name is

> Logan and he is 2 years old. I am trying to come up with the funds

> and knowledge of HBOT. I have heard that this is a really good

> treatment for this type of brain injury. He is not recieving any

> kind of treatments or therapies that are benefiting him in any way.

> They are basically medicating him to make him more comfortable.

> Logan is covered by medicaid here in Indiana. He is diagnosed as a

> vegatative state, his taking the C shape, sezuires every 5 minutes,

> a trac and a G tube. Any one with any sort of info would be greatly

> appreciated.

> Thank you,

> Heidi McMaster

>

> _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

> Unrestricted downloads of 50+ pdf files on HBOT efficacy

medicaid/files/ and

HDO-documentation/files/

>

> Download your state EPSDT program

http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the word

" ameliorate " . State Medicaid websites

http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

>

> Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

>

> HBOT can save billions of dollars and millions of heartaches. Subscribe to

by sending a blank email to

mailto:medicaid-subscribe

>

> Unsubscribe? Click here mailto:medicaid-unsubscribe

..

>

February 3, 2003

Hi Heidi, we did a fundraiser which included setting up an account through

our church, placing an article with a picture in the newspaper, and selling

pins. We sent out letters to corporations, but this was unsuccessful. The

teachers at my daughter's school joined in by having soup sales. We got

assistance from local charities. People in the church organized a concert

benefit, and friends put together bake sales. Some I know have raised money

through cutting hair or selling raffle tickets or having a bingo game. I'm

sure you will be able to come up will many creative ideas for your niece.

Good luck to you. It was my sister as well who helped me so much in the

beginning. It was she who coordinated the fundraisers for me. You are a real

blessing for your family. Good luck to you. Ellen

February 3, 2003

>Hi Everyone! I am an aunt of a recent near drown victim. His name is

>Logan and he is 2 years old. I am trying to come up with the funds

>and knowledge of HBOT. I have heard that this is a really good

>treatment for this type of brain injury. He is not recieving any

>kind of treatments or therapies that are benefiting him in any way.

>They are basically medicating him to make him more comfortable.

>Logan is covered by medicaid here in Indiana. He is diagnosed as a

>vegatative state, his taking the C shape, sezuires every 5 minutes,

>a trac and a G tube. Any one with any sort of info would be greatly

>appreciated.

>Thank you,

>Heidi McMaster

>

Heidi,

While there is a certain amount of paperwork required to make a Medicaid

request for reimbursement of HBOT, much of this work has already been done.

No state Medicaid agency can now deny HBOT on the reason that it is

" experimental and investigational " ; they must now first assess if HBOT is

" necessary to correct or ameliorate. "

On the files page at medicaid/files/

is a tremendous amount of data to substantiate the fact that HBOT is in

fact " necessary to correct or ameliorate. "

I encourage you to put together a formal Medicaid request. Members of this

list will help you do it.

One place to start: http://oceanhbo.com/client/studies/studies.htm .

The first case study is a near drowning patient. Downloadable before/after

video is found on that page.

Let us help you through this. Don't hesitate to ask for help.

Thanks for signing on.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" For everyone who asks receives; he who seeks finds; and to him who knocks,

the door will be opened. " [Luke 11:10]

Freels

2948 Windfield Circle

Tucker, GA 30084-6714

770/491-6776 (phone and fax)

509/275-1618 (efax, sends fax as email attachment)

mailto:dfreels@...

http://www.freelanceforum.org/df

February 4, 2003

Heidi,

First, I am sorry to hear about your nephew. While most of us have

traveled this journey, it doesn't get any easier when we see a child suffer.

I am the father of a 7 year old girl, who had died at birth (for 35

minutes). We did very well with various physical therapies and by giving

her a lot of stimulation. This enables an injured person to learn to do

things through a neuronal mechanism called " plasticity " ; that is, the brain

adapts to changes and modifies itself in relation to stimulation it

receives, or intentional learning (swinging a tennis racket, for example).

The brains ability to adapt with " plasticity " is powerful; however, the

bottom line is your nephew did injure his brain. So, now the question is

what can be done about that injury.

I unabashedly and adamantly endorse HBOT.

Today, there is no real alternative to re-establish damaged neurons, other

than HBOT.

Simply, HBOT should help re-establish his damaged blood brain barrier

(blood vessels supplying the brain); it should wake up neurons stunned due

to the lack of oxygen, and/or glucose when he could not breath (no oxygen),

and it can support axonal sprouting (plasticity and learning).

For a near drowning child, it will take a lot of HBOT sessions. And, while

you are giving him those sessions, you will need to stimulate him and give

him physical and movement therapies.

I have seen dramatic changes in my daughter - but that doesn't mean your

nephew will respond the same, or better, or worse. My daughter is

fully right in the middle of the response curve of kids. Some kids do

absolutely great, while others may not respond at all. But, HBOT should be

your first effort. And, the sooner the better.

To check out some good centers, go to www.LittlestAngel.com

goto the : Reources page

look at : Before and After Videos

Ocean Hyperbarics

Harch Hyperbarics

Santa

Hyperbarics

(this is where we are this week to treat - you can call me here at

310-260-0033.)

Also, look at: www.HyperbaricOxygen.info

goto : Medical News

Look at : Congressional Testimony Presentation (pdf) for brain scans

of vairous brain injury patients.

There is also a Dr. Perlmutter in Naples FL. But, I have never spoken to

anyone who has been to his clinic. So, I cannot say anything good or bad

about him.

Ocean Hyperbarics has a therapist nearby named Ray Cralle' . Ray has

phenomenal hands and will help your nephew improve by reducing spasticity

and high tone through myofacial therapies.

Santa is great because there are a lot of additional therapists

here. So, you can

From Indiana, I would think Dr. Harch is easily accessible in New Orleans.

He is also very good.

ALso, when you go to www.LittlestAngel.com

you can click on " 's Book " and read her story, but please say

a prayer for and all the Friends of (this includes your

nephew).

This is a very long and difficult journey, but HBOT if the first good

step. And the best way to take that step is first go to the best HBOT

center you can get to and try to learn as much as possible. From there,

you will have lot more alternatives to choose from. Also, it is best to

start TODAY. Don't wait, just like you wouldn't wait to set a broken

bone... it is always better to treat right away.

I can answer all the technical Q's you have about how this works on

neurons, etc. very easily. Also, my cell phone number is 916-417-2526.

Best Wishes.

Ed Nemeth

's Dad

At 01:25 AM 2/3/2003 +0000, you wrote: