Introductions

[Guest guest]

Introductions

Hello all, I am new to the group and figured I would just jump right in and

tell you all about myself. I was diagnosed with scoliosis 36 years ago. I

had a 56 degree C curve, had a Harrington rod inserted 34 years ago, and

each day am is some kind of hip or back pain. I can't say that I have

gotten use to the pain but have just learned to live with it. To help me

deal with the pain I have been going to a chiropractor for the past 25

years. There are certain spinal manipulations that he cannot do becuasuse

of the rod, but he does his best to get rid of the pain and for the most

part it has worked for me.

I just stumbled across this group and I wanted to check it out to see what

it was all about. I have three other sisters and two of them have also had

scoliosis surgery. We all went to the same surgeon who worked out of NY

Presbyterian Hospital. We had never heard of scoliosis, but sing the day I

was diagnosed I've heard so much. I am looking forward to geting to know

all of you.

------------------------------------

Support for scoliosis-surgery veterans with flatback syndrome caused by

spinal hardware. Not medical advice. Group does not control ads at

site.

[Guest guest]

Yes I did. I remember like it was yesterday sitting in his office with my

parents and all I could see was the thickness of his glasses. When we got out

of his office I turned to my parents and said " did you see how thick those

glasses were? You're gonna let him operate on my spine!!! " Funny what we

remember, huh? Yes, he operated on me in 1978, two of my sisters, and my

mother.

Are you having any problems?

>

> Hi Gail!

>

>

>

> Did you see Hugo Keim at Columbia-Pres? So did I! In 1973, for a 56 degree

> curve!

>

>

>

> Welcome to the group!

>

>

>

> Andy Stanton

>

> Boulder CO

>

[Guest guest]

We seem to be okay. I use to have pain 85% of the day and even walkiing through

a mall was painful. I had siatica in my right hip and have arthritis there as

well. About a year ago I started wearing Sketcher Shape Ups and now I walk

without pain. They have really helped me.

My sisters and mom seem to be alright as well. Everyone has aches and pains.

I've never heard of flatback syndrome and after reading what everyone here is

going through it's kind of freaking me out. I hope I don't have to go through

another surgery. Right now I'm okay, but I have a feeling that at some point

down the road my luck will change. Hang in there.

> >

> > Hi Gail!

> >

> >

> >

> > Did you see Hugo Keim at Columbia-Pres? So did I! In 1973, for a 56 degree

> > curve!

> >

> >

> >

> > Welcome to the group!

> >

> >

> >

> > Andy Stanton

> >

> > Boulder CO

> >

>

[Guest guest]

We seem to have a problem here -- Joe Bassett's posts are somehow getting

attached to Gail Newfield's. I wish I could explain this, but I don't have a

clue.

>

> hi all my name is joseph from the uk, and i have been in a lot of pain with my

scoliosis, till i when to my gp, he has put me on prednisolone tablets 2 days

into taking them NO PAIN, I CAN DO A LOT I COULD NOT DO BEFORE, MOVING AROUND IS

GOOD, WALKING GOOD, BUT I DONT NO HOW IT WILL KEEP GOING, I WILL KEEP YOU ALL

UPDATE, BUT NOW ITS GREAT JOSEPH 

>

>

> From: Leger <legerpj@...>

>

> Sent: Thursday, 15 September 2011, 16:35

> Subject: RE: Introductions

>

>

>  

>

>

>

> Introductions

>

> Hello all, I am new to the group and figured I would just jump right in and

> tell you all about myself. I was diagnosed with scoliosis 36 years ago. I

> had a 56 degree C curve, had a Harrington rod inserted 34 years ago, and

> each day am is some kind of hip or back pain. I can't say that I have

> gotten use to the pain but have just learned to live with it. To help me

> deal with the pain I have been going to a chiropractor for the past 25

> years. There are certain spinal manipulations that he cannot do becuasuse

> of the rod, but he does his best to get rid of the pain and for the most

> part it has worked for me.

>

> I just stumbled across this group and I wanted to check it out to see what

> it was all about. I have three other sisters and two of them have also had

> scoliosis surgery. We all went to the same surgeon who worked out of NY

> Presbyterian Hospital. We had never heard of scoliosis, but sing the day I

> was diagnosed I've heard so much. I am looking forward to geting to know

> all of you.

>

> ------------------------------------

>

> Support for scoliosis-surgery veterans with flatback syndrome caused by

> spinal hardware. Not medical advice. Group does not control ads at

> site.

[Guest guest]

, Yes, I was evaluated last year. I was told I had several episodes of ‘not breathing’ during the night, but not enough for a diagnosis. My husband says I wake up with a big snort a couple times a night!!! Andy From: [mailto: ] On Behalf Of Sent: Friday, September 23, 2011 12:00 AMAndy,Regarding your CFS, have you been evalaluated for sleep apnea?Best, .