Introductions

[Guest guest]

On the contrary your not being too cynical at all. For every 10

Psychologists or Psychiatrists you go to, one may be useful.

You ought to try and find a Psychotherapist who has knowledge of

Hypogonadism. First hand knowledge would be the ideal.

Since I was around 12 years of age I have met more than 50 medics of one

kind or another. I can count on one hand those who actually listened and

heard what I was trying to say. 5 different Psychiatrists said that I was

" too complex " and they couldn't help. 3 Psychologists said the same and

that's only in the last 10 years!

You are right to err on the side of caution, however your depression may be

caused by low T itself rather than the effects of low T. However it is

unlikely you'll ever find any medic to agree with that.

Good luck and don't let the B****rds grind you down.

Steph

----- Original Message -----

From: " kaitain4 "

Sent: Sunday, May 11, 2003 4:29 AM

>

> .............Yes, this is a lonely condition and there are many fighting

the

> psycological effects of this disease. I recently started a physician

> monitored exercise program at a local medical center. As part of the

> initial work-up they asked me to fill out a number of forms, one of

> which was evidently a psych profile. I later received a letter from

> them urging me to see a professional for my depression. Wow! I guess

> I thought my hypo related depression had lifted - I feel so much

> better, but compared to " normal " society I am depressed. I'm trying

> to work up the courage to go to a psych, as I think a lot of them are

> quacks and don't really do anything for you other than take your

> money (thank you very much!) and slap a prozac prescription in your

> hand. I guess I'm being to cynical, but there you go................

[Guest guest]

Wow Eileen! it is nice to have heard a lot of familiar names of people I

know in your post. I too, live in Seattle and do indeed know Bill. I also

know Geno Ponza, Matt and Sam Roloff, and Al and Harriet Stickney, and have

often wondered what had happened to them all. Although I have dropped away

from going to LPA meetings and such, (mostly because of financial reasons

and stuff,) It was still nice for that walk down memory lane that you gave

me. Thanks for that!

Congratulations to you and Bill on your engagement, and Welcome to the great

Northwest!

Sabrena

----- Original Message -----

[Guest guest]

Hi ? I just wanted to comment on your age and thoughts of your daughter getting her ears in water. I too have felt the same way for years because of not being able to get water in my ears all of my life. I have been going through ear problems since I was 5 and it has deteriorated, I had my first Cholesteatoma (CToma for short) surgery in 1992. I too have worried about both of my children and thank the lord neither have had any trouble thus far (12 and 6 ). However, my brothers children have both had difficulities, my nephew more so. My father also had severe ear problems, which leads me to believe this is hereditary in some fashion. Maybe one day soon we will know the answers to so many of our unanswered questions!!! Best of luck to you and your family! racheleseattle <racheleseattle@...> wrote: Hi, I just joined this group so I thought I'd introduce myself. Actually I wasn't really looking for a cholesteatoma support group but I came across it and thought I might learn something. I've never spoken to anyone else who has had a cholesteatoma.I'm 39 now and had my 2 cholesteatoma's when I was 10 and 13. I guess I wasn't looking for the support because I've lived with it for so long I really don't remember my ear any other way. I don't have the vocabulary to speak about it that you all have. I guess, from reading your posts that I had a wall down? surgery for my second one. I know they took my mastoid out and ear canal. I remember that my doctor at the time was very frank with me about what needed to happen but I never learned the finer details of the surgery, vocab, etc.I have tinnitus too. I saw someone dealing

with that. Its something you just need to embrace. I only hear it when I think about it. I did have another tone that came in from allergies. My doctor put a tube in and that louder tone did go away.I'm trying to think of what else to write. I don't ear that well in my bad ear. I don't hear high tones very well especially. I haven't been swimming since I was a kid either. I don't know if they let you go swimming after cholesteotoma surgeries these days...I have a 3 year old daughter and thankfully so far her ears have been healthy. Although I have to stop myself from cringing everytime she gets her ears wet in the pool. After spending my entire life being so protective of my own ears I can't help myself when it comes to her ears too.Anyway, I'm glad to be part of the group.

Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.

[Guest guest]

Hi ,

I've been here forever. My name is Roxanna. Pam and I moderate this list. I

have five kids ages 25 (girl), 17 (boy, HFA, dyslexia), 15 (girl), 10 (boy, HFA,

hyperlexia), 6 (boy, dyslexia). IN a previous life, I'm sure I had a hobby of

some sort. lol. Now I do ABA with a 4 yo with autism a few times a week, work

in local autism group (secretary) and edit the newsletters and brochures and

website. And hang out here reading posts. And avoid laundry whenever possible.

Roxanna

( ) Introductions

Hey everybody,

Since I am new here and I am seeing a lot of other new people pop up,

I thought it would be a good idea if we all posted an intro here. The

regulars as well as the newbies.

That way as new people come along we can refer them to this post and

they can learn about us and we can learn about them.

I will go first.

My name is , but I have seen another on here, and in an

effort to avoid confusion, I will try to remember to post as B.

I am married with 3 kids. My kids are Aimee, Tyler, and Jenna. Jenna

is my Asperger's kid. She will be 4 in January. I am almost 29 so I am

sure that makes me the " baby " of the group here.

Anyway, I am a professional photographer with my own studio and I

really enjoy what I do. One day I think I would like to make a

photojournalistic-style book filled with kids with ASD's, capturing

all of the beautiful special things about them, and perhaps including

some journal entries from my own experiences, and possibly other

parent's experiences with their special kids. Now, when I will ever

have time to complete this project is beyond me, but I just thought of

it the other day and I think I really want to do this.

I love music and I sing and write some of my own songs. If I had more

alleged " spare time " this is what I would spend my time doing, besides

taking pictures.

My daughter was just diagnosed in September and though I had suspected

an ASD for a while (My sister's little boy is autistic) the whole

thing is still a bit new to me. I greatly appreciate any advice that

anyone has to give me and I just want all of you to know that I know

you have a really hard job, and I think of you and send you well

wishes every day. Sometimes even in my daughter's worst moments, I

stop and just say a little prayer and send good vibes to all of you

other parents out there who I know are possibly having a hard moment too.

Anyway, enough about me. Let's hear about all of you. I am looking

forward to getting to know you all better.

Have a great day!

- B.

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[Guest guest]

Introductions

Hello,

My name is (aka " Lost " LOL or Kidswithautism) I'm married

to a wonderful man going on 9 years, together going on 11

years. I'm a stay at home mother of 4 kids. A 8 years boy, 7 year

old girl ( they are 11 months apart to the day so it's like having

twins)My 7 year old girl has a seizure disorder and has been told

she has MSUD but she has never test positive of it, but has all the

sign and symptoms. She was also very ill at the age of 5 months and

was hospitalized for 7 months straight at Herman Children's Hospital

in Houston and @ Texas Children's also in Houston and had 9

surgeries for GI problems. She is doing a lot better now. A 3 year

old boy (Brice) is are handful now. He was speech delayed and just

had these little melt downs as a infant so we got ECI involved at 1

year. They said he just didn't want to talk. At 2 an half they found

he could not hear as his ear drums were 80% blocked by his adenoids

and didn't care to talk has his tonsils way to big. So they removed

them and his speech slightly improved and is improving a little bit

weekly. The meltdowns became a big deal and he became violent

towards his older bother, sister, me and the ECI works. He had these

OCD habits that were getting worse. Finally we went to Texas

Children's Blue Bird Clinic as his primary care Dr. felt he had

Aspersers .At times he just screamed and climbed everything and if

he had a space or chance he would run and keep running until someone

could stop him like at the store or in a parking lot. Brice was

smart enough for all of the child safety locks and he never knew

and still doesn't know what pain is or what is danger. He has always

been a big solid and strong kid, So he just doesn't know how strong

he is and it seemed he would brake anything he was playing with, he

also loves to take things apart just to see how they work. Never

cares to put them back together just apart) Well any way So the

Blue Bird Clinic Dr and social worker said he was HFA/Asperger's

and just told us to get him in school at age year 3 and keep Dr.

appointments with our primary care so he can fallow up and to come

back in a year for a check up. We ended up having to put him on

Risperdal after trying several different things to calm him and help

him sleep.

We also have a 20 month old girl BilliJo Also getting Speech with

ECI as she is just now babbling.

My husband was working many jobs and going to school at the time, so

he was never home to help with the kids. Until one day when his

grandfather became very ill and so we went to visit with him, and he

ran into some old friends and they talked him into to looking into a

job in West TX with union railroad. It sounded great as he would be

able to be home with us and help me with the kids and Brice, and he

would have his family around him. So here we are while he is

training for his new job and I'm trying to get adjusted to a new

place and find out what we can do to help Brice out and at a big

lost until I found this group earlier this week. I have so many

questions I just don't know where to begin. The school system here

just called me back about an ARD for next week. I'm just so lost I

have some many questions I can't get them out. My husband is still

at the denial stage I mean he knows he just doesn't know how to get

to him mainly when he is have a " meltdown about what ever " and if

my husband is home and I need to go some where I take Brice with me

and he keeps the other kids unless the trip is very short. My two

older kids are not handling Brice very well they are scared of him

and don't want us to take him anywhere with us as because then it

becomes about him and it does. Brice just doesn't like to not have

control of his environment from who touches him to how many people

are around and how loud it gets around him. Plus friends and family

stopped having us over or coming over because of him. Some one told

us I should get Brice a life coach and they will help with the

family but finances are tight (don't have) until my husbands

training is over. This is up to the job foreman, as to when that

will be.

That is a little of our story

I have put a picture of Brice in the albums under Brice

Thank you

M

" ergersSupport , " " <picturesbylaura@...> wrote:

Hey everybody,

Since I am new here and I am seeing a lot of other new people pop

up, I thought it would be a good idea if we all posted an intro

here. The regulars as well as the newbies.

That way as new people come along we can refer them to this post and

they can learn about us and we can learn about them.

Anyway, enough about me. Let's hear about all of you. I am looking

forward to getting to know you all better.

Have a great day!

- B. "

[Guest guest]

Hi ,

I'm Liz. I've been here almost-forever. I have two kids - a girl 24,

who lives in Washington DC, and an 18 year old AS boy who lives with

his dad and me in Boston for this year only (then we go back to San

Diego). Dh is a university professor, and he's on sabbatical right

now. I'm currently writing a novel about a boy with autism who is

accused of murder. I'm 18 chapters into it.

My son is a freshman at Dean College in lin, MA, about an hour

south and west of Boston. Missing assignments may kill him. We've

finally got him hooked up with a compatible coach, I think. (We

thought we had him hooked up with a coach back in Sept., but it turns

out that he was off working by himself while his coach sat off to the

side!) No planning at all went on!

Welcome to all the new members! We're glad you're here.

Liz, from San Diego and Boston

[Guest guest]

Would he enjoy going to museums? Pam

[Guest guest]

Hi! My name is and I am 27 years old with a 9 year old son, Rilind, with

AS. He was diagnosed last year and I joined this group shortly after. I

remarried last year and have a little more than 50% custody. Rilind's dad,

stepmom, myself and husband all get along very well and I am very lucky in that

department, as I have heard horror stories of split families! Nice to meet you

all and I look foward to reading about the others in the group.

<picturesbylaura@...> wrote:

Hey everybody,

Since I am new here and I am seeing a lot of other new people pop up,

I thought it would be a good idea if we all posted an intro here. The

regulars as well as the newbies.

That way as new people come along we can refer them to this post and

they can learn about us and we can learn about them.

I will go first.

My name is , but I have seen another on here, and in an

effort to avoid confusion, I will try to remember to post as B.

I am married with 3 kids. My kids are Aimee, Tyler, and Jenna. Jenna

is my Asperger's kid. She will be 4 in January. I am almost 29 so I am

sure that makes me the " baby " of the group here.

Anyway, I am a professional photographer with my own studio and I

really enjoy what I do. One day I think I would like to make a

photojournalistic-style book filled with kids with ASD's, capturing

all of the beautiful special things about them, and perhaps including

some journal entries from my own experiences, and possibly other

parent's experiences with their special kids. Now, when I will ever

have time to complete this project is beyond me, but I just thought of

it the other day and I think I really want to do this.

I love music and I sing and write some of my own songs. If I had more

alleged " spare time " this is what I would spend my time doing, besides

taking pictures.

My daughter was just diagnosed in September and though I had suspected

an ASD for a while (My sister's little boy is autistic) the whole

thing is still a bit new to me. I greatly appreciate any advice that

anyone has to give me and I just want all of you to know that I know

you have a really hard job, and I think of you and send you well

wishes every day. Sometimes even in my daughter's worst moments, I

stop and just say a little prayer and send good vibes to all of you

other parents out there who I know are possibly having a hard moment too.

Anyway, enough about me. Let's hear about all of you. I am looking

forward to getting to know you all better.

Have a great day!

- B.

[Guest guest]

Hi, My name is . I am 25 years old with a 3 almost 4 yr old son named

Dylan. We do not have a diagnosis yet. Just got eval. two days ago. I go next

thurs. for the results. However, I have a meeting with the school system for my

first ARC meeting tommorrow. I have mainly been sitting here silently listening

and getting as much info as I possibly can. Sorry, I haven't posted very much. I

feel ignorant still. However, I have learned so much from just sitting here and

listening. I feel that dylan has autistic tendencies. I am an occupational

therapy assistant student. until recently I was oblivious to his behavior. He

has always been a difficult baby( colic, allergies, RSV, asthma and reflux). I

just assumed his tantrums were normal. However, as he has grown older, his

speech and fine motor skills became noticable behind kids his age. I know

Aspergers kids dont usually have speech delays. Not sure if he has autism or

what type if he does. Sorry about the rambling. If

anyone has any suggestions or advice about any part of the pre-diagnosis to the

after diagnosis( what do I do then?) it would be greatly appreciated.

Re: ( ) Introductions

Hi! My name is and I am 27 years old with a 9 year old son, Rilind, with

AS. He was diagnosed last year and I joined this group shortly after. I

remarried last year and have a little more than 50% custody. Rilind's dad,

stepmom, myself and husband all get along very well and I am very lucky in that

department, as I have heard horror stories of split families! Nice to meet you

all and I look foward to reading about the others in the group.

<picturesbylaura@ gmail.com> wrote:

Hey everybody,

Since I am new here and I am seeing a lot of other new people pop up,

I thought it would be a good idea if we all posted an intro here. The

regulars as well as the newbies.

That way as new people come along we can refer them to this post and

they can learn about us and we can learn about them.

I will go first.

My name is , but I have seen another on here, and in an

effort to avoid confusion, I will try to remember to post as B.

I am married with 3 kids. My kids are Aimee, Tyler, and Jenna. Jenna

is my Asperger's kid. She will be 4 in January. I am almost 29 so I am

sure that makes me the " baby " of the group here.

Anyway, I am a professional photographer with my own studio and I

really enjoy what I do. One day I think I would like to make a

photojournalistic- style book filled with kids with ASD's, capturing

all of the beautiful special things about them, and perhaps including

some journal entries from my own experiences, and possibly other

parent's experiences with their special kids. Now, when I will ever

have time to complete this project is beyond me, but I just thought of

it the other day and I think I really want to do this.

I love music and I sing and write some of my own songs. If I had more

alleged " spare time " this is what I would spend my time doing, besides

taking pictures.

My daughter was just diagnosed in September and though I had suspected

an ASD for a while (My sister's little boy is autistic) the whole

thing is still a bit new to me. I greatly appreciate any advice that

anyone has to give me and I just want all of you to know that I know

you have a really hard job, and I think of you and send you well

wishes every day. Sometimes even in my daughter's worst moments, I

stop and just say a little prayer and send good vibes to all of you

other parents out there who I know are possibly having a hard moment too.

Anyway, enough about me. Let's hear about all of you. I am looking

forward to getting to know you all better.

Have a great day!

- B.

[Guest guest]

Hi!

My name is Cyndie. I have an 18 r old son with AS as

well as a TBI (tramtic brain injury) he is our

youngest. his sister is 20 on her own and married.

I think the best thing I have done is read .

everything & anything.

Live in rural Illinois when I say rural I mean rural .

We live on a farm.

Cyndie

--- Essenfeld <lessen@...> wrote:

> Hi! My name is and I am 27 years old with a

> 9 year old son, Rilind, with AS. He was diagnosed

> last year and I joined this group shortly after. I

> remarried last year and have a little more than 50%

> custody. Rilind's dad, stepmom, myself and husband

> all get along very well and I am very lucky in that

> department, as I have heard horror stories of split

> families! Nice to meet you all and I look foward to

> reading about the others in the group.

>

> <picturesbylaura@...> wrote:

> Hey everybody,

> Since I am new here and I am seeing a lot of other

> new people pop up,

> I thought it would be a good idea if we all posted

> an intro here. The

> regulars as well as the newbies.

>

> That way as new people come along we can refer them

> to this post and

> they can learn about us and we can learn about them.

>

>

> I will go first.

> My name is , but I have seen another on

> here, and in an

> effort to avoid confusion, I will try to remember to

> post as B.

>

> I am married with 3 kids. My kids are Aimee, Tyler,

> and Jenna. Jenna

> is my Asperger's kid. She will be 4 in January. I am

> almost 29 so I am

> sure that makes me the " baby " of the group here.

>

> Anyway, I am a professional photographer with my own

> studio and I

> really enjoy what I do. One day I think I would like

> to make a

> photojournalistic-style book filled with kids with

> ASD's, capturing

> all of the beautiful special things about them, and

> perhaps including

> some journal entries from my own experiences, and

> possibly other

> parent's experiences with their special kids. Now,

> when I will ever

> have time to complete this project is beyond me, but

> I just thought of

> it the other day and I think I really want to do

> this.

>

> I love music and I sing and write some of my own

> songs. If I had more

> alleged " spare time " this is what I would spend my

> time doing, besides

> taking pictures.

>

> My daughter was just diagnosed in September and

> though I had suspected

> an ASD for a while (My sister's little boy is

> autistic) the whole

> thing is still a bit new to me. I greatly appreciate

> any advice that

> anyone has to give me and I just want all of you to

> know that I know

> you have a really hard job, and I think of you and

> send you well

> wishes every day. Sometimes even in my daughter's

> worst moments, I

> stop and just say a little prayer and send good

> vibes to all of you

> other parents out there who I know are possibly

> having a hard moment too.

>

> Anyway, enough about me. Let's hear about all of

> you. I am looking

> forward to getting to know you all better.

>

> Have a great day!

> - B.

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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[Guest guest]

Hi, . My name is Tami, I have one child, Will, 14 year old son diagnosed

with AS at 12. Before that, he was labeled as emotionally disabled, and it took

a while to get them to change that! Most of them never heard of Asperger's

syndrome. I finally got him in to see a psychiatrist who gave him about 5

diagnosis, PDD-Asperger's, Tourette's, ODD, Depression, etc. I got them to

concentrate on the Asperger's. I am 35, divorced, haven't seen the ex in 15

years. I am a residential coordinator, which is a fancy way of saying I work

with developmentally disabled adults, Mondays, I work at a group home with 4

men, 3 with mid/high functioning autism, 1 with schizophrenia, we cook supper

and then I take them swimming, and Fridays, I take 2 of them to pick up another

one from work and then we do something that they want to do, go out for coffee,

go shopping, etc. Then we come home and make supper and play card games, and I

am a CRMA, so I give them their medications as well. Sat and Sun, I work 12

hour shifts with a young lady who has muscular distrophy and mental retardation.

She's a handful, let me tell you. The most lying, manipulative little girl you

could imagine! But I love her, anyhow. The rest of the time, I am a full time

mom, I just started homeschooling my son, Will. He was missing work and time

from school due to his being sick, refusing to go, etc. So they were going to

fail him anyhow, so I decided to teach him at home and cut out all the

aggrivation of the school system calling me daily to ask what's wrong with my

son whether he's there or not. He's doing very well, actually, apart from the

writing. Last night, we went to the gym (my only hobby) and he rode ten miles

on a excercize bike and lifted weights for about 1/2 hour as well, which all

counts towards phys ed. I post here all the time, I like to see what other

people do in certain situations. It's nice to know that you aren't alone. Life

is tough living with an Aspie, but they are wonderful people. My son wouldn't

hurt a fly, but he is all the time threatening to hurt people... even though he

never has. The wrong people hear that kind of talk, he's in big trouble. They

are so easily misunderstood. It's nice to know that other people are going

through similar situations and how they deal with it!! But I must say, his

agitation level has come WAY down since I pulled him out of school. Hardly any

outbursts at home, before, he would come home from school and just blow up... I

don't have to worry about dragging him out of bed when he's tired, forcing him

to go to bed when he isn't tired, none of that. He's alot more willing to help

out around the house, too. Cleaning, laundry, help with the dog, etc. It's

weird. Anyway, thanks all!! Looking forward to reading more introductions as

well!! Tami

( ) Introductions

Hey everybody,

Since I am new here and I am seeing a lot of other new people pop up,

I thought it would be a good idea if we all posted an intro here. The

regulars as well as the newbies.

That way as new people come along we can refer them to this post and

they can learn about us and we can learn about them.

I will go first.

My name is , but I have seen another on here, and in an

effort to avoid confusion, I will try to remember to post as B.

I am married with 3 kids. My kids are Aimee, Tyler, and Jenna. Jenna

is my Asperger's kid. She will be 4 in January. I am almost 29 so I am

sure that makes me the " baby " of the group here.

Anyway, I am a professional photographer with my own studio and I

really enjoy what I do. One day I think I would like to make a

photojournalistic-style book filled with kids with ASD's, capturing

all of the beautiful special things about them, and perhaps including

some journal entries from my own experiences, and possibly other

parent's experiences with their special kids. Now, when I will ever

have time to complete this project is beyond me, but I just thought of

it the other day and I think I really want to do this.

I love music and I sing and write some of my own songs. If I had more

alleged " spare time " this is what I would spend my time doing, besides

taking pictures.

My daughter was just diagnosed in September and though I had suspected

an ASD for a while (My sister's little boy is autistic) the whole

thing is still a bit new to me. I greatly appreciate any advice that

anyone has to give me and I just want all of you to know that I know

you have a really hard job, and I think of you and send you well

wishes every day. Sometimes even in my daughter's worst moments, I

stop and just say a little prayer and send good vibes to all of you

other parents out there who I know are possibly having a hard moment too.

Anyway, enough about me. Let's hear about all of you. I am looking

forward to getting to know you all better.

Have a great day!

- B.

[Guest guest]

, my son, too, cried alot as a baby, was allergic to milk had to be put

on soy, and had so many tantrums from 2-4... it was awful. I thought he was

just a difficult baby... he refused to ask for things, like if he wanted juice,

he would point at it... I had to say, you can't have it til you ask for it with

your words. He would get mad and hit people... throw things, etc. I had to

hold him down and say " You are frustrated! " or " You are angry, right? " He also

stuttered til he was about 6. Give him words for his emotions. That helped my

son so much. Be empathetic, like " I can see how angry you are, or how

frustrated! Let me help you! " Or just hug him. He won't shut up, now. He

wasn't behind in speech, he just refused to speak at times... maybe that's

what's going on? not sure!! Good luck!! Tami

Re: ( ) Introductions

Hi! My name is and I am 27 years old with a 9 year old son, Rilind,

with AS. He was diagnosed last year and I joined this group shortly after. I

remarried last year and have a little more than 50% custody. Rilind's dad,

stepmom, myself and husband all get along very well and I am very lucky in that

department, as I have heard horror stories of split families! Nice to meet you

all and I look foward to reading about the others in the group.

<picturesbylaura@ gmail.com> wrote:

Hey everybody,

Since I am new here and I am seeing a lot of other new people pop up,

I thought it would be a good idea if we all posted an intro here. The

regulars as well as the newbies.

That way as new people come along we can refer them to this post and

they can learn about us and we can learn about them.

I will go first.

My name is , but I have seen another on here, and in an

effort to avoid confusion, I will try to remember to post as B.

I am married with 3 kids. My kids are Aimee, Tyler, and Jenna. Jenna

is my Asperger's kid. She will be 4 in January. I am almost 29 so I am

sure that makes me the " baby " of the group here.

Anyway, I am a professional photographer with my own studio and I

really enjoy what I do. One day I think I would like to make a

photojournalistic- style book filled with kids with ASD's, capturing

all of the beautiful special things about them, and perhaps including

some journal entries from my own experiences, and possibly other

parent's experiences with their special kids. Now, when I will ever

have time to complete this project is beyond me, but I just thought of

it the other day and I think I really want to do this.

I love music and I sing and write some of my own songs. If I had more

alleged " spare time " this is what I would spend my time doing, besides

taking pictures.

My daughter was just diagnosed in September and though I had suspected

an ASD for a while (My sister's little boy is autistic) the whole

thing is still a bit new to me. I greatly appreciate any advice that

anyone has to give me and I just want all of you to know that I know

you have a really hard job, and I think of you and send you well

wishes every day. Sometimes even in my daughter's worst moments, I

stop and just say a little prayer and send good vibes to all of you

other parents out there who I know are possibly having a hard moment too.

Anyway, enough about me. Let's hear about all of you. I am looking

forward to getting to know you all better.

Have a great day!

- B.

[Guest guest]

>

> Hi, . My name is Tami, I have one child, Will, 14 year old

son diagnosed with AS at 12. Before that, he was labeled as

emotionally disabled, and it took a while to get them to change

that! Most of them never heard of Asperger's syndrome. I finally

got him in to see a psychiatrist who gave him about 5 diagnosis, PDD-

Asperger's, Tourette's, ODD, Depression, etc. I got them to

concentrate on the Asperger's. I am 35, divorced, haven't seen the

ex in 15 years. I am a residential coordinator, which is a fancy

way of saying I work with developmentally disabled adults, Mondays,

I work at a group home with 4 men, 3 with mid/high functioning

autism, 1 with schizophrenia, we cook supper and then I take them

swimming, and Fridays, I take 2 of them to pick up another one from

work and then we do something that they want to do, go out for

coffee, go shopping, etc. Then we come home and make supper and

play card games, and I am a CRMA, so I give them their medications

as well. Sat and Sun, I work 12 hour shifts with a young lady who

has muscular distrophy and mental retardation. She's a handful, let

me tell you. The most lying, manipulative little girl you could

imagine! But I love her, anyhow. The rest of the time, I am a full

time mom, I just started homeschooling my son, Will. He was missing

work and time from school due to his being sick, refusing to go,

etc. So they were going to fail him anyhow, so I decided to teach

him at home and cut out all the aggrivation of the school system

calling me daily to ask what's wrong with my son whether he's there

or not. He's doing very well, actually, apart from the writing.

Last night, we went to the gym (my only hobby) and he rode ten miles

on a excercize bike and lifted weights for about 1/2 hour as well,

which all counts towards phys ed. I post here all the time, I like

to see what other people do in certain situations. It's nice to

know that you aren't alone. Life is tough living with an Aspie, but

they are wonderful people. My son wouldn't hurt a fly, but he is

all the time threatening to hurt people... even though he never

has. The wrong people hear that kind of talk, he's in big trouble.

They are so easily misunderstood. It's nice to know that other

people are going through similar situations and how they deal with

it!! But I must say, his agitation level has come WAY down since

I pulled him out of school. Hardly any outbursts at home, before,

he would come home from school and just blow up... I don't have to

worry about dragging him out of bed when he's tired, forcing him to

go to bed when he isn't tired, none of that. He's alot more willing

to help out around the house, too. Cleaning, laundry, help with the

dog, etc. It's weird. Anyway, thanks all!! Looking forward to

reading more introductions as well!! Tami

> ( ) Introductions

>

>

> Hey everybody,

> Since I am new here and I am seeing a lot of other new people

pop up,

> I thought it would be a good idea if we all posted an intro

here. The

> regulars as well as the newbies.

>

> That way as new people come along we can refer them to this post

and

> they can learn about us and we can learn about them.

>

> I will go first.

> My name is , but I have seen another on here, and in

an

> effort to avoid confusion, I will try to remember to post as

B.

>

> I am married with 3 kids. My kids are Aimee, Tyler, and Jenna.

Jenna

> is my Asperger's kid. She will be 4 in January. I am almost 29

so I am

> sure that makes me the " baby " of the group here.

>

> Anyway, I am a professional photographer with my own studio and I

> really enjoy what I do. One day I think I would like to make a

> photojournalistic-style book filled with kids with ASD's,

capturing

> all of the beautiful special things about them, and perhaps

including

> some journal entries from my own experiences, and possibly other

> parent's experiences with their special kids. Now, when I will

ever

> have time to complete this project is beyond me, but I just

thought of

> it the other day and I think I really want to do this.

>

> I love music and I sing and write some of my own songs. If I had

more

> alleged " spare time " this is what I would spend my time doing,

besides

> taking pictures.

>

> My daughter was just diagnosed in September and though I had

suspected

> an ASD for a while (My sister's little boy is autistic) the whole

> thing is still a bit new to me. I greatly appreciate any advice

that

> anyone has to give me and I just want all of you to know that I

know

> you have a really hard job, and I think of you and send you well

> wishes every day. Sometimes even in my daughter's worst moments,

I

> stop and just say a little prayer and send good vibes to all of

you

> other parents out there who I know are possibly having a hard

moment too.

>

> Anyway, enough about me. Let's hear about all of you. I am

looking

> forward to getting to know you all better.

>

> Have a great day!

> - B.

>

>

>

>

>

>

[Guest guest]

Well, we just started a few weeks ago, but I take him to the gym, I make sure he

does the shopping and laundry with me, we go to the library, etc. I am thinking

about getting him involved with some sort of extra cirricular activity, but not

sure what yet, because he has such a negative attitude about almost everything,

except the computer and japanese anime! But he has agreed to go to plays with

me as part of his art requirement. So we shall see what happens! I don't have

a teacher coming in, I just bought the books and teach him myself. So, that

part made me very nervous because I am not a teacher, I am a college drop out!!

But, the lady at the homeschooling group said that it is easy and that I as his

mom would know what is best for him when it comes down to it, and to trust my

instincts... so I am trying really hard not to get down on myself for any

reason. That's cool, your daughter is the same age as my son!! Glad to get

your message!! Let me know how she's doing, won't you?? Thanks again!! Tami

( ) Introductions

>

>

> Hey everybody,

> Since I am new here and I am seeing a lot of other new people

pop up,

> I thought it would be a good idea if we all posted an intro

here. The

> regulars as well as the newbies.

>

> That way as new people come along we can refer them to this post

and

> they can learn about us and we can learn about them.

>

> I will go first.

> My name is , but I have seen another on here, and in

an

> effort to avoid confusion, I will try to remember to post as

B.

>

> I am married with 3 kids. My kids are Aimee, Tyler, and Jenna.

Jenna

> is my Asperger's kid. She will be 4 in January. I am almost 29

so I am

> sure that makes me the " baby " of the group here.

>

> Anyway, I am a professional photographer with my own studio and I

> really enjoy what I do. One day I think I would like to make a

> photojournalistic-style book filled with kids with ASD's,

capturing

> all of the beautiful special things about them, and perhaps

including

> some journal entries from my own experiences, and possibly other

> parent's experiences with their special kids. Now, when I will

ever

> have time to complete this project is beyond me, but I just

thought of

> it the other day and I think I really want to do this.

>

> I love music and I sing and write some of my own songs. If I had

more

> alleged " spare time " this is what I would spend my time doing,

besides

> taking pictures.

>

> My daughter was just diagnosed in September and though I had

suspected

> an ASD for a while (My sister's little boy is autistic) the whole

> thing is still a bit new to me. I greatly appreciate any advice

that

> anyone has to give me and I just want all of you to know that I

know

> you have a really hard job, and I think of you and send you well

> wishes every day. Sometimes even in my daughter's worst moments,

I

> stop and just say a little prayer and send good vibes to all of

you

> other parents out there who I know are possibly having a hard

moment too.

>

> Anyway, enough about me. Let's hear about all of you. I am

looking

> forward to getting to know you all better.

>

> Have a great day!

> - B.

>

>

>

>

>

>

[Guest guest]

Hi ,

if I might ask how old was your son when he was brian injured? I

have a 38yr old son that lives with us that is brain injured from 17yrs ago. He

is not my Asperger one. The Asperger one is & he is 14yrs old. He is

our grandson who we have custody of the past 9 yrs. Hope to talk to you soon.

Take care,Betty

cynthia block <cyndielou60634@...> wrote:

Hi!

My name is Cyndie. I have an 18 r old son with AS as

well as a TBI (tramtic brain injury) he is our

youngest. his sister is 20 on her own and married.

I think the best thing I have done is read .

everything & anything.

Live in rural Illinois when I say rural I mean rural .

We live on a farm.

Cyndie

--- Essenfeld <lessen@...> wrote:

> Hi! My name is and I am 27 years old with a

> 9 year old son, Rilind, with AS. He was diagnosed

> last year and I joined this group shortly after. I

> remarried last year and have a little more than 50%

> custody. Rilind's dad, stepmom, myself and husband

> all get along very well and I am very lucky in that

> department, as I have heard horror stories of split

> families! Nice to meet you all and I look foward to

> reading about the others in the group.

>

> <picturesbylaura@...> wrote:

> Hey everybody,

> Since I am new here and I am seeing a lot of other

> new people pop up,

> I thought it would be a good idea if we all posted

> an intro here. The

> regulars as well as the newbies.

>

> That way as new people come along we can refer them

> to this post and

> they can learn about us and we can learn about them.

>

>

> I will go first.

> My name is , but I have seen another on

> here, and in an

> effort to avoid confusion, I will try to remember to

> post as B.

>

> I am married with 3 kids. My kids are Aimee, Tyler,

> and Jenna. Jenna

> is my Asperger's kid. She will be 4 in January. I am

> almost 29 so I am

> sure that makes me the " baby " of the group here.

>

> Anyway, I am a professional photographer with my own

> studio and I

> really enjoy what I do. One day I think I would like

> to make a

> photojournalistic-style book filled with kids with

> ASD's, capturing

> all of the beautiful special things about them, and

> perhaps including

> some journal entries from my own experiences, and

> possibly other

> parent's experiences with their special kids. Now,

> when I will ever

> have time to complete this project is beyond me, but

> I just thought of

> it the other day and I think I really want to do

> this.

>

> I love music and I sing and write some of my own

> songs. If I had more

> alleged " spare time " this is what I would spend my

> time doing, besides

> taking pictures.

>

> My daughter was just diagnosed in September and

> though I had suspected

> an ASD for a while (My sister's little boy is

> autistic) the whole

> thing is still a bit new to me. I greatly appreciate

> any advice that

> anyone has to give me and I just want all of you to

> know that I know

> you have a really hard job, and I think of you and

> send you well

> wishes every day. Sometimes even in my daughter's

> worst moments, I

> stop and just say a little prayer and send good

> vibes to all of you

> other parents out there who I know are possibly

> having a hard moment too.

>

> Anyway, enough about me. Let's hear about all of

> you. I am looking

> forward to getting to know you all better.

>

> Have a great day!

> - B.

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Want to start your own business?

Learn how on Small Business.

http://smallbusiness./r-index

---------------------------------

Access over 1 million songs - Music Unlimited.

[Guest guest]

Hi, my name is and I'm 26, married, and have 2 boys - (AS)

whose almost 8 and (language delayed) whose 3. I have my master's degree

in Special Education but I can never seem to help my own children just everyone

else's :-) I am in the process of fundraising for an autism dog that

will be getting sometime in the next year through a company out out

of Mass. We live in Upstate NY (close to Montreal, Canada). Basically that's

us in a very short sumary!

cynthia block <cyndielou60634@...> wrote: Hi!

My name is Cyndie. I have an 18 r old son with AS as

well as a TBI (tramtic brain injury) he is our

youngest. his sister is 20 on her own and married.

I think the best thing I have done is read .

everything & anything.

Live in rural Illinois when I say rural I mean rural .

We live on a farm.

Cyndie

--- Essenfeld <lessen@...> wrote:

> Hi! My name is and I am 27 years old with a

> 9 year old son, Rilind, with AS. He was diagnosed

> last year and I joined this group shortly after. I

> remarried last year and have a little more than 50%

> custody. Rilind's dad, stepmom, myself and husband

> all get along very well and I am very lucky in that

> department, as I have heard horror stories of split

> families! Nice to meet you all and I look foward to

> reading about the others in the group.

>

> <picturesbylaura@...> wrote:

> Hey everybody,

> Since I am new here and I am seeing a lot of other

> new people pop up,

> I thought it would be a good idea if we all posted

> an intro here. The

> regulars as well as the newbies.

>

> That way as new people come along we can refer them

> to this post and

> they can learn about us and we can learn about them.

>

>

> I will go first.

> My name is , but I have seen another on

> here, and in an

> effort to avoid confusion, I will try to remember to

> post as B.

>

> I am married with 3 kids. My kids are Aimee, Tyler,

> and Jenna. Jenna

> is my Asperger's kid. She will be 4 in January. I am

> almost 29 so I am

> sure that makes me the " baby " of the group here.

>

> Anyway, I am a professional photographer with my own

> studio and I

> really enjoy what I do. One day I think I would like

> to make a

> photojournalistic-style book filled with kids with

> ASD's, capturing

> all of the beautiful special things about them, and

> perhaps including

> some journal entries from my own experiences, and

> possibly other

> parent's experiences with their special kids. Now,

> when I will ever

> have time to complete this project is beyond me, but

> I just thought of

> it the other day and I think I really want to do

> this.

>

> I love music and I sing and write some of my own

> songs. If I had more

> alleged " spare time " this is what I would spend my

> time doing, besides

> taking pictures.

>

> My daughter was just diagnosed in September and

> though I had suspected

> an ASD for a while (My sister's little boy is

> autistic) the whole

> thing is still a bit new to me. I greatly appreciate

> any advice that

> anyone has to give me and I just want all of you to

> know that I know

> you have a really hard job, and I think of you and

> send you well

> wishes every day. Sometimes even in my daughter's

> worst moments, I

> stop and just say a little prayer and send good

> vibes to all of you

> other parents out there who I know are possibly

> having a hard moment too.

>

> Anyway, enough about me. Let's hear about all of

> you. I am looking

> forward to getting to know you all better.

>

> Have a great day!

> - B.

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Want to start your own business?

Learn how on Small Business.

http://smallbusiness./r-index

---------------------------------

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[Guest guest]

Hi gang!

I'm and single mom of four - (19 ADD); (almost 16

NT); Tony (almost 12 HFA); and (9-1/2 NT). We live in central

NC and I am a SAHM for now. We have lived here for 14 years but are

seriously considering moving to DE, mainly for schools. We are in a

semi-rural area and school interventions are hit or miss.

Thankfully, Tony has outgrown a lot of the difficult " autie "

behaviors. Most of this is due to having had 1:1 after school since

he was about 4. However, it seems there is not much going on around

here for teens and/or adults; just group homes and such but I want

him to have more of a life as an adult. Another reason for the move.

>

> Hey everybody,

> Since I am new here and I am seeing a lot of other new people pop

up,

> I thought it would be a good idea if we all posted an intro here.

The

> regulars as well as the newbies.

>

> That way as new people come along we can refer them to this post and

> they can learn about us and we can learn about them.

>

> I will go first.

> My name is , but I have seen another on here, and in an

> effort to avoid confusion, I will try to remember to post as

B.

>

> I am married with 3 kids. My kids are Aimee, Tyler, and Jenna. Jenna

> is my Asperger's kid. She will be 4 in January. I am almost 29 so I

am

> sure that makes me the " baby " of the group here.

>

> Anyway, I am a professional photographer with my own studio and I

> really enjoy what I do. One day I think I would like to make a

> photojournalistic-style book filled with kids with ASD's, capturing

> all of the beautiful special things about them, and perhaps

including

> some journal entries from my own experiences, and possibly other

> parent's experiences with their special kids. Now, when I will ever

> have time to complete this project is beyond me, but I just thought

of

> it the other day and I think I really want to do this.

>

> I love music and I sing and write some of my own songs. If I had

more

> alleged " spare time " this is what I would spend my time doing,

besides

> taking pictures.

>

> My daughter was just diagnosed in September and though I had

suspected

> an ASD for a while (My sister's little boy is autistic) the whole

> thing is still a bit new to me. I greatly appreciate any advice that

> anyone has to give me and I just want all of you to know that I know

> you have a really hard job, and I think of you and send you well

> wishes every day. Sometimes even in my daughter's worst moments, I

> stop and just say a little prayer and send good vibes to all of you

> other parents out there who I know are possibly having a hard

moment too.

>

> Anyway, enough about me. Let's hear about all of you. I am looking

> forward to getting to know you all better.

>

> Have a great day!

> - B.

>

[Guest guest]

Hi everyone,

I'm mostly a lurker, occassionally posting when something really

stirs me. i have found this group invalueable and have learned so

much from you all!

I am mom to 3 kiddos; (AS) and Caitlyn (AS traits) are my 11

yo twins and Lianna 8 yo(adopted and NT)

We are fortunate with the supports we have at school and have

benenfited greatly from wrap around services.

We have figured out that my dh is probably mild AS and this explains

his behaviors and ways about him. Life is not as I thought it would

be but I certainly wouldn't trade my kids for the world. They each

add such an interesting dimension to the family. Sometimes I feel

like I'm going crazy for all the stress we have but that's our life!

I'm glad we are all here to support one another!

Blessings to each of you,

(sahm in PA)

-- In , " Debra Balke " <dlbalke@...>

wrote:

>

>

[Guest guest]

I am a 46 year old sahm with just turned 18 yo twin boys.We live in middle Ga

and my kids were diagnosed aspergers in 2004 after being diagnosed add and a

trip to the emergency room and a local mental institution. Long story, but they

were threatening suicide, me, having meltdowns, not going to school etc..They go

to a private school that does next to nothing for supports. They have been going

there since 6th grade so we didn't want to move them (transition thing). The

local school district offers no help because they offered to help if they went

to public school but don't have the funds to help if they don't?

I worry daily about their future and how they will fit into this world that

doesn't want to see or help with invisible disabilities.My main concern is what

is going to happen to them when my dh and I are gone? I just want them to be

happy, healthy, contributing ,loving,decent men when 'they grow up'... I

wouldn't change them (maybe sometimes ) and love them with every fiber of my

being. This place and you all are such a blessing, it helps so much (as you all

know) to be able to 'talk' to others that know exactly where I am coming from

and don't judge but offer love, support, hugs, tears, and prayers.. THANKS!!

Toni

[Guest guest]

Hi, I guess I will chime in....

I'm G. I mostly lurk, but have posted once or twice. I live in an

Eastern suburb of Phoenix, AZ. I am mom to , 13 (just dx Autism, had

prev. been Aspergers. He has addn'l dx of Bipolar Mixed, OCD, ADHD, and GI

disorder) Kayleigh Jo, 7, (NT, exceptionally smart, poss OCD) and Holly, 4.

(Autism, Moderate with Echolalia, Palialia, side glances, hand flapping,

etc) I am wife to Troy. I work in the Medical field as a Certified Medical

Coder. My hubby works as a Operating Room Tech. This message board and my

faith is what keeps me sane. Its so unbelievable to see the posts and know

that you are not alone. Autism/Aspergers CAN be a really isolating thing for

families to go thru, and to know that there are others out there that have

had and are having similar expierences helps so much.

My daughter gets great services thru her school, and we are thankful for

that. She is approved for SS, but we make too much money for her to get SSI.

She is approved for DDD and Long Term Care, with Respite hours, but the

funding isn't there for a lot of services, and its a pain getting good

respite providers to come in for just one kid when you have three. There is

just a lot of red tape with government services! will now go thru the

process of SS and DDD and Long Term Care now that we have an Autism dx for

him, he will get approved too. They don't recogize the Aspergers, so he

couldn't get additional services before. He is who needs it right now so

desperately because he was dx so late with the Aspergers, (only 6 months

ago) he going into puberty at 13, the social skills thing hurts him so bad.

His obsessions limit him, too. He gained 60 lbs in 13 months on Abilify,

and boy wasn't that a joy taking him off of his anti psychotic for 6 weeks.

Pure He** . (He's now back on Risperdal) We have had to remove him from

school, because the program sucks, he's had GI issues since puberty, and now

homeschool him thru a public school called Arizona Virtual Academy.

I see the posts from others and that's my and Holly. Sometimes, to the

T. We all have the same hopes and fears for our lives and our childrens

lives. Some, in their posts, say it better than others, but we are all here

for the same thing. I'm very greatful for this group. Its a lifesaver.

Welcome to all the new members.

G. In AZ

_________________________________________________________________

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line

[Guest guest]

Hi , my two bits because my 7 y.o. Aspie son is also sweet and loving and

has these rage reactions at school, and it's very common with the syndrome.

You're supposed to be able to get a Functional Behavior Analysis to figure out

the condition and the triggers for his aggression, etc. We had to hire a lawyer

to get one done, and then when they did it they took all the credit, but they

took pride in the result. Sometimes the triggers are clear upon analysis --

with our son it turned out to be awfully subtle stuff, but still the adjustments

they made and coping strategies they came up with seriously reduced the

outbursts.

One really wise thing I learned at a lecture last summer -- maybe a

restatement of the obvious -- is that behavior is the interaction between your

brain and your environment -- the environment produces certain behaviors.

If you don't have anyone helping you identify the triggers and conditions

maybe you should share more detail with the group -- I'm sure many of us have

seen similar things....

Jewel <truegrittle@...> wrote:

Hello , welcome. Yes most of us have been there. So there are

alot of kind people on here that can give you suggestions. My is 14yrs

with Asperger/Bipolar.

Take care,Betty

aka_andreaa27 <andreaa27@...> wrote:

I am a newbie here and with autism. I am a single mother of a possible

asperger's adhd 8 yr old son . He is classified EI by the school

district and in a ai/ei classroom. He has a lot of aggression,

stubborn, and violent behavior in the classroom and I am worried about

what the future may hold for him. He is a loving and sweet child at

home but cannot cope with classroom set-up. I am fighting with the

school quite a bit now and have been looking for a lawyer. I found

this group and it is reassuring that others are experiencing similar

issues.

---------------------------------

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[Guest guest]

Hi Alisha my name is I am not sure if you got my reply to you last night

but I sent you some things for your IEP. My story sounds so much like yours.

After reading about you son it sounds like you where talking about my son. I

also have a Daughter who is 8. We got the the dianoses for Austin on Oct 30th

and I too am waiting for the information to get faxed to the school. I would

like to talk to you more it sounds like we may have a lot in common.

( ) Introductions

Hey everybody,

Since I am new here and I am seeing a lot of other new people pop up,

I thought it would be a good idea if we all posted an intro here. The

regulars as well as the newbies.

That way as new people come along we can refer them to this post and

they can learn about us and we can learn about them.

I will go first.

My name is , but I have seen another on here, and in an

effort to avoid confusion, I will try to remember to post as B.

I am married with 3 kids. My kids are Aimee, Tyler, and Jenna. Jenna

is my Asperger's kid. She will be 4 in January. I am almost 29 so I am

sure that makes me the " baby " of the group here.

Anyway, I am a professional photographer with my own studio and I

really enjoy what I do. One day I think I would like to make a

photojournalistic- style book filled with kids with ASD's, capturing

all of the beautiful special things about them, and perhaps including

some journal entries from my own experiences, and possibly other

parent's experiences with their special kids. Now, when I will ever

have time to complete this project is beyond me, but I just thought of

it the other day and I think I really want to do this.

I love music and I sing and write some of my own songs. If I had more

alleged " spare time " this is what I would spend my time doing, besides

taking pictures.

My daughter was just diagnosed in September and though I had suspected

an ASD for a while (My sister's little boy is autistic) the whole

thing is still a bit new to me. I greatly appreciate any advice that

anyone has to give me and I just want all of you to know that I know

you have a really hard job, and I think of you and send you well

wishes every day. Sometimes even in my daughter's worst moments, I

stop and just say a little prayer and send good vibes to all of you

other parents out there who I know are possibly having a hard moment too.

Anyway, enough about me. Let's hear about all of you. I am looking

forward to getting to know you all better.

Have a great day!

- B.

[Guest guest]

B., What a sweet soul you have!! Happy Thanksgiving!

All the best,

Jill

" And all things, whatever you ask in prayer, believing, you will receive. " Matt

21:22

[Guest guest]

Thanks Jill! :-)

>

> B., What a sweet soul you have!! Happy Thanksgiving!

> All the best,

> Jill

>

> " And all things, whatever you ask in prayer, believing, you will

receive. " Matt 21:22

>

>

>

>

[Guest guest]

Hi Gail! Did you see Hugo Keim at Columbia-Pres? So did I! In 1973, for a 56 degree curve! Welcome to the group! Andy StantonBoulder CO