Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Dannene, Have you started chelation yet? Our problem is apraxia, but at the word level that is largely resolved. He can say anything! Even things he shouldn't be saying! And that is only with 14 rounds (or so) of chelation. We still have a long ways to go (and the more the apraxia falls away, the more spectrumish my son tends to look - like peeling an onion, I suppose), but we have no doubt that the chelation was the main thing that got us over the " tough nut " apraxia hump. Anne > > Hi, > My son just turned 4 and every sound he makes sounds like a vowel > sound. He has been getting speech since he was 2, didn't say any > words at all until almost 3, had some D, N and T sounds (sometimes M > and and has lost all of those sounds. He attempts to speak anytime > you ask him (like we'll say " say popsicle " and he'll say uh ih uh with > the correct rhythm). It's like his mouth won't work or he can't make > it move. I've been told he doesn't have apraxia because he doesn't > grope for the words. Does anyone have a child with this extreme > articulation problem? If so, have you done anything that has worked? > Is this something that will get better after chelation? I never hear > anyone talk about this...they talk about nonverbal but not severe > articulation problems. I just need to know there is hope for my son! > Thanks, > Dannene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Can he blow a pinwheel, dandelion, etc? Can he suck through a straw? Can/Does he lick things off his lips? Has the ST suggested any exercises to do with him at home? Sounds like his receptive language is ok and that his hearing has been tested... S S <tt> Hi,<BR> My son just turned 4 and every sound he makes sounds like a vowel <BR> sound. He has been getting speech since he was 2, didn't say any <BR> words at all until almost 3, had some D, N and T sounds (sometimes M <BR> and and has lost all of those sounds. He attempts to speak anytime <BR> you ask him (like we'll say " say popsicle " and he'll say uh ih uh with <BR> the correct rhythm). It's like his mouth won't work or he can't make <BR> it move. I've been told he doesn't have apraxia because he doesn't <BR> grope for the words. Does anyone have a child with this extreme <BR> articulation problem? If so, have you done anything that has worked? <BR> Is this something that will get better after chelation? I never hear <BR> anyone talk about this...they talk about nonverbal but not severe <BR> articulation problems. I just need to know there is hope for my son! <BR> Thanks,<BR> Dannene<BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Can he blow a pinwheel, dandelion, etc? Kind of...when he blows it's like an Ffff if he blows. Can he suck through a straw? yes, he can now! Can/Does he lick things off his lips? Not usually, but I think he has the capability of doing so Has the ST suggested any exercises to do with him at home? A few. Do you have any you suggest? I would appreciate any you offer!!! Sounds like his receptive language is ok and that his hearing has been tested...yes, his receptive language is at age level at least and his hearing has been tested but not a comprehensive test. He has his 4 year check-up tomorrow so we'll see if they are able to check it again. I appreciate any advice!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 I have two oral motor Word files that I can share with you. One is an oral motor calendar with activities for each day and the other document is for groceries that work well for oral motor activities. Email me offlist if you would like a copy of these. About him not being apraxic, what was the reasoning??? My son had dyspraxia (had some words) and I don't get what they mean 'he doesn't grope for the words'. I would have another evaluation from another SLP who has experience with apraxia. Just because he is attempting to make sounds doesn't mean he can motor plan and string the correct sound sequence. I am on the Apraxia-Kids Listserv and will ask for a referral in your area if you let me know where you are located. You can e-mail me offlist if this makes you more comfortable. Jackie--- jhines@... " In God We Trust - All Others Bring Data! " - W. Deming > Can he blow a pinwheel, dandelion, etc? Kind of...when he blows it's > like an Ffff if he blows. > Can he suck through a straw? yes, he can now! > Can/Does he lick things off his lips? Not usually, but I think he has > the capability of doing so > Has the ST suggested any exercises to do with him > at home? A few. Do you have any you suggest? I would appreciate any > you offer!!! > Sounds like his receptive language is ok and that his hearing has been > tested...yes, his receptive language is at age level at least and his > hearing has been tested but not a comprehensive test. He has his 4 > year check-up tomorrow so we'll see if they are able to check it > again. I appreciate any advice!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Dannene, Make a game of putting food he likes on his lips and having him lick it off. Let him put some on your lips and watch you lick it off. Do it in front of a mirror. Some consonants depend upon placement of the tongue others on the lips. Try foods with different textures and both cool and warm. This " game " should help increase awareness of both tongue and lips. Play games like holding a very light weight piece of fabric or tissue paper a few inches in front of his mouth and having him blow, do the same yourself while beside him so he can see what you're doing. This helps with breath control. Abilitations/Integrations catalog http://www.integrationscatalog.com/sportime-shared/adaptedProductIndex.jsp?produ\ ct=mightyMouth has a variety of blowing and speech enchancing/encouraging games that might prove helpful. Play games that involve making faces in the mirror. I'm not an SLP but have a nephew who lost all speech for a year after his DPT and have worked with nonverbal children (and children with emerging verbal ability) and adults. S S <br><br><tt><br>Can he blow a pinwheel, dandelion, etc? Kind of...when he blows it's <BR><br>like an Ffff if he blows. <BR><br>Can he suck through a straw? yes, he can now!<BR><br>Can/Does he lick things off his lips? Not usually, but I think he has <BR><br>the capability of doing so<BR><br>Has the ST suggested any exercises to do with him<BR><br>at home? A few. Do you have any you suggest? I would appreciate any <BR><br>you offer!!!<BR><br>Sounds like his receptive language is ok and that his hearing has been<BR><br>tested...yes, his receptive language is at age level at least and his <BR><br>hearing has been tested but not a comprehensive test. He has his 4 <BR><br>year check-up tomorrow so we'll see if they are able to check it <BR><br>again. I appreciate any advice!!!<BR><br><br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 I am no expert on the subject, but I would not even come close to losing hope at this point. Have you removed Milk Products from his diet ? Also, I have seen others as well as our 5 year old do very will with speech after adding Omega3 (fish oil). What all have you done so far ? Neil RE: [ ] extreme articulation problems-cross posted Can he blow a pinwheel, dandelion, etc? Can he suck through a straw? Can/Does he lick things off his lips? Has the ST suggested any exercises to do with him at home? Sounds like his receptive language is ok and that his hearing has been tested... S S <tt> Hi,<BR> My son just turned 4 and every sound he makes sounds like a vowel <BR> sound. He has been getting speech since he was 2, didn't say any <BR> words at all until almost 3, had some D, N and T sounds (sometimes M <BR> and and has lost all of those sounds. He attempts to speak anytime <BR> you ask him (like we'll say " say popsicle " and he'll say uh ih uh with <BR> the correct rhythm). It's like his mouth won't work or he can't make <BR> it move. I've been told he doesn't have apraxia because he doesn't <BR> grope for the words. Does anyone have a child with this extreme <BR> articulation problem? If so, have you done anything that has worked? <BR> Is this something that will get better after chelation? I never hear <BR> anyone talk about this...they talk about nonverbal but not severe <BR> articulation problems. I just need to know there is hope for my son! <BR> Thanks,<BR> Dannene<BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Thanks for the suggestions . I have tried most of those and he just isn't interested (blowing the tissue and he won't look in a mirror). I have thought about putting things on his lips and having him lick them off but never tried it. I will definitely give it a shot. I used to give him things to wake his mouth up, like altoids, and he loves spicy or strong tasting things but they don't seem to faze him! It's crazy. Thanks for the link too, I was looking for a good place to buy some different oral motor toys! <br><br><tt><br>Can he blow a pinwheel, dandelion, etc? Kind of...when he blows it's <BR><br>like an Ffff if he blows. <BR><br>Can he suck through a straw? yes, he can now! <BR><br>Can/Does he lick things off his lips? Not usually, but I think he has <BR><br>the capability of doing so<BR><br>Has the ST suggested any exercises to do with him<BR><br>at home? A few. Do you have any you suggest? I would appreciate any <BR><br>you offer!!!<BR><br>Sounds like his receptive language is ok and that his hearing has been<BR><br>tested...yes, his receptive language is at age level at least and his <BR><br>hearing has been tested but not a comprehensive test. He has his 4 <BR><br>year check-up tomorrow so we'll see if they are able to check it <BR><br>again. I appreciate any advice!!!<BR><br><br> > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Neil, I tried adding the cod liver oil, he is on the GFCF diet (plus some other things), we just started B-12 shots every 3 days, I have tried different oral motor exercises but not faithfully, he is in a verbal ABA program at school 30 hours a week with 4X a week with a speech therapist, he gets speech from a private person, he meets 8 hours with 2 girls I hired to work with his mouth and a few other things. I guess I am losing hope because I just keep trying so many things and nothing is helping at all. He is worse off than he was a year ago in speech. We started supplements, that didn't help either. We have spent so much money and nothing works!! I haven't heard many stories with children who had bad articulation starting to speak clearly after chelation and I was hoping I'd hear some from this post! I almost wish he didn't speak at all because then it would seem more possible. Right now he just seems like his mouth doesn't want to move. Sorry so long!! Dannene > > <tt> > Hi,<BR> > My son just turned 4 and every sound he makes sounds like a vowel <BR> > sound. He has been getting speech since he was 2, didn't say any <BR> > words at all until almost 3, had some D, N and T sounds (sometimes M <BR> > and and has lost all of those sounds. He attempts to speak anytime <BR> > you ask him (like we'll say " say popsicle " and he'll say uh ih uh with <BR> > the correct rhythm). It's like his mouth won't work or he can't make <BR> > it move. I've been told he doesn't have apraxia because he doesn't <BR> > grope for the words. Does anyone have a child with this extreme <BR> > articulation problem? If so, have you done anything that has worked? <BR> > Is this something that will get better after chelation? I never hear <BR> > anyone talk about this...they talk about nonverbal but not severe <BR> > articulation problems. I just need to know there is hope for my son! <BR> > Thanks,<BR> > Dannene<BR> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Hi Dannene, I would say that I have see many posts from people who have had their kids start talking much more after chelation. These kids seemed to have all variety of speech delays, problems. Like I said, I am no expert and couldn't say for sure where the problem lies but I would suggest that you do the hair test for starters. Others on this site are much more experienced and could give you better step by step advice on how to get started. Neil _____ From: [mailto: ] On Behalf Of dannenedrummond Sent: Tuesday, January 31, 2006 9:01 PM Subject: [ ] Re: extreme articulation problems-cross posted Neil, I tried adding the cod liver oil, he is on the GFCF diet (plus some other things), we just started B-12 shots every 3 days, I have tried different oral motor exercises but not faithfully, he is in a verbal ABA program at school 30 hours a week with 4X a week with a speech therapist, he gets speech from a private person, he meets 8 hours with 2 girls I hired to work with his mouth and a few other things. I guess I am losing hope because I just keep trying so many things and nothing is helping at all. He is worse off than he was a year ago in speech. We started supplements, that didn't help either. We have spent so much money and nothing works!! I haven't heard many stories with children who had bad articulation starting to speak clearly after chelation and I was hoping I'd hear some from this post! I almost wish he didn't speak at all because then it would seem more possible. Right now he just seems like his mouth doesn't want to move. Sorry so long!! Dannene > > <tt> > Hi,<BR> > My son just turned 4 and every sound he makes sounds like a vowel <BR> > sound. He has been getting speech since he was 2, didn't say any <BR> > words at all until almost 3, had some D, N and T sounds (sometimes M <BR> > and and has lost all of those sounds. He attempts to speak anytime <BR> > you ask him (like we'll say " say popsicle " and he'll say uh ih uh with <BR> > the correct rhythm). It's like his mouth won't work or he can't make <BR> > it move. I've been told he doesn't have apraxia because he doesn't <BR> > grope for the words. Does anyone have a child with this extreme <BR> > articulation problem? If so, have you done anything that has worked? <BR> > Is this something that will get better after chelation? I never hear <BR> > anyone talk about this...they talk about nonverbal but not severe <BR> > articulation problems. I just need to know there is hope for my son! <BR> > Thanks,<BR> > Dannene<BR> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Dannene, I know apraxia is different than an articulation issue, but I thought it might help you to know that my son could not move his tongue well at all before we started chelation, i.e. he couldn't make a true licking motion or anything. That changed with chelation. If I were you, I would try 10 rounds of low dose ALA/DMSA chelation and see if you get any results. I would also be interested to hear what other issues he presents with. That might help us help you more. Anne .. Now > > > > <tt> > > Hi,<BR> > > My son just turned 4 and every sound he makes sounds like a vowel > <BR> > > sound. He has been getting speech since he was 2, didn't say any > <BR> > > words at all until almost 3, had some D, N and T sounds (sometimes > M <BR> > > and and has lost all of those sounds. He attempts to speak > anytime <BR> > > you ask him (like we'll say " say popsicle " and he'll say uh ih uh > with <BR> > > the correct rhythm). It's like his mouth won't work or he can't > make <BR> > > it move. I've been told he doesn't have apraxia because he > doesn't <BR> > > grope for the words. Does anyone have a child with this extreme > <BR> > > articulation problem? If so, have you done anything that has > worked? <BR> > > Is this something that will get better after chelation? I never > hear <BR> > > anyone talk about this...they talk about nonverbal but not severe > <BR> > > articulation problems. I just need to know there is hope for my > son! <BR> > > Thanks,<BR> > > Dannene<BR> > > > > > > _______________________________________________ > > Join Excite! - http://www.excite.com > > The most personalized portal on the Web! > > > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 How about a Nuk brush, chewy tube, an electric toothbrush, massaging his face forward (toward his mouth) with a warm wash cloth, using a cotton ball and placing it in your hand and make a /p/ sound to blow it off of your hand. Milk shakes or something thick (pudding, applesauce to start) to suck through a straw... if you are cf...not milk shakes, but you have the idea. Chewy foods such as bagels, licorice, gummy bears etc are good for strengthening too. Bath time is a great time to blow bubbles as well as massage his face. You can incorporate this into a fun game with social interaction too. Just some additional thoughts! Jackie--- ----- Original Message ----- Thanks for the suggestions . I have tried most of those and he just isn't interested (blowing the tissue and he won't look in a mirror). I have thought about putting things on his lips and having him lick them off but never tried it. I will definitely give it a shot. I used to give him things to wake his mouth up, like altoids, and he loves spicy or strong tasting things but they don't seem to faze him! It's crazy. Thanks for the link too, I was looking for a good place to buy some different oral motor toys! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Can he stick his tongue COMPLETELY out of his mouth??? Side to side up and down (tongue tip elevation)? What is your SLP doing with him??? Jackie--- ----- Original Message ----- > I tried adding the cod liver oil, he is on the GFCF diet (plus some > other things), we just started B-12 shots every 3 days, I have tried > different oral motor exercises but not faithfully, he is in a verbal > ABA program at school 30 hours a week with 4X a week with a speech > therapist, he gets speech from a private person, he meets 8 hours > with 2 girls I hired to work with his mouth and a few other things. > I guess I am losing hope because I just keep trying so many things > and nothing is helping at all. He is worse off than he was a year > ago in speech. We started supplements, that didn't help either. We > have spent so much money and nothing works!! I haven't heard many > stories with children who had bad articulation starting to speak > clearly after chelation and I was hoping I'd hear some from this > post! I almost wish he didn't speak at all because then it would > seem more possible. Right now he just seems like his mouth doesn't > want to move. Sorry so long!! > Dannene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 What do you mean by other issues? Speechwise? Otherwise he has good receptive language, good eye contact, is very hyper usually, sleeps pretty well, doesn't play with toys appropriately, will imitate anything you ask him to say but you can't understand him at all because it all sounds like vowels, does some stimming (looks at hand and lately he has been pushing his face with his fist), he just started b-12 shots, is on brainchild nutrients, takes milk thistle for high liver enzymes, used to take cod liver oil but it didn't seem to make a difference. He can drink out of a straw, kind of blow but it is more like fffff, barely opens his mouth when he speaks (even though he always opened his mouth pretty wide to eat so he wouldn't get food on his mouth), despite the last thing I mentioned he is pretty hyposensitive and will eat things like altoids without blinking. Not sure what else I can tell ya... > > > > > > <tt> > > > Hi,<BR> > > > My son just turned 4 and every sound he makes sounds like a vowel > > <BR> > > > sound. He has been getting speech since he was 2, didn't say any > > <BR> > > > words at all until almost 3, had some D, N and T sounds > (sometimes > > M <BR> > > > and and has lost all of those sounds. He attempts to speak > > anytime <BR> > > > you ask him (like we'll say " say popsicle " and he'll say uh ih uh > > with <BR> > > > the correct rhythm). It's like his mouth won't work or he can't > > make <BR> > > > it move. I've been told he doesn't have apraxia because he > > doesn't <BR> > > > grope for the words. Does anyone have a child with this extreme > > <BR> > > > articulation problem? If so, have you done anything that has > > worked? <BR> > > > Is this something that will get better after chelation? I never > > hear <BR> > > > anyone talk about this...they talk about nonverbal but not severe > > <BR> > > > articulation problems. I just need to know there is hope for my > > son! <BR> > > > Thanks,<BR> > > > Dannene<BR> > > > > > > > > > _______________________________________________ > > > Join Excite! - http://www.excite.com > > > The most personalized portal on the Web! > > > > > > > > > > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Neil: I have already had his hair tested 2xs, along with stool and urine and he definitely meets the counting rules. He was supposed to start chelation in January but his doctor said NO because his liver enzymes were high and iron was low. I'm considering starting without him though because I have the prescription already and have been on supplements for a few months (which I think is stressing his body because his nutrients were all really high in his hair so supplementing all this stuff without the chelation seems like it would strain his body more to me...but what do i know). I am glad that so many people have given me glimmers of hope and I hope to see the same results! > > > > <tt> > > Hi,<BR> > > My son just turned 4 and every sound he makes sounds like a vowel > <BR> > > sound. He has been getting speech since he was 2, didn't say any > <BR> > > words at all until almost 3, had some D, N and T sounds (sometimes > M <BR> > > and and has lost all of those sounds. He attempts to speak > anytime <BR> > > you ask him (like we'll say " say popsicle " and he'll say uh ih uh > with <BR> > > the correct rhythm). It's like his mouth won't work or he can't > make <BR> > > it move. I've been told he doesn't have apraxia because he > doesn't <BR> > > grope for the words. Does anyone have a child with this extreme > <BR> > > articulation problem? If so, have you done anything that has > worked? <BR> > > Is this something that will get better after chelation? I never > hear <BR> > > anyone talk about this...they talk about nonverbal but not severe > <BR> > > articulation problems. I just need to know there is hope for my > son! <BR> > > Thanks,<BR> > > Dannene<BR> > > > > > > _______________________________________________ > > Join Excite! - http://www.excite.com > > The most personalized portal on the Web! > > > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 I don't think his tongue is coming completely out of his mouth and I've never seen it come out the sides. I'm going to try putting something yummy there and see if he'll lick it off. The speech therapists are doing verbal ABA to try to get him to talk and also a few oral motor exercises (i know they try to get him to blow a tissue and ask him to open his mouth to squirt yummy things in there) > > Can he stick his tongue COMPLETELY out of his mouth??? Side to side up and > down (tongue tip elevation)? What is your SLP doing with him??? > Jackie--- > > ----- Original Message ----- > > I tried adding the cod liver oil, he is on the GFCF diet (plus some > > other things), we just started B-12 shots every 3 days, I have tried > > different oral motor exercises but not faithfully, he is in a verbal > > ABA program at school 30 hours a week with 4X a week with a speech > > therapist, he gets speech from a private person, he meets 8 hours > > with 2 girls I hired to work with his mouth and a few other things. > > I guess I am losing hope because I just keep trying so many things > > and nothing is helping at all. He is worse off than he was a year > > ago in speech. We started supplements, that didn't help either. We > > have spent so much money and nothing works!! I haven't heard many > > stories with children who had bad articulation starting to speak > > clearly after chelation and I was hoping I'd hear some from this > > post! I almost wish he didn't speak at all because then it would > > seem more possible. Right now he just seems like his mouth doesn't > > want to move. Sorry so long!! > > Dannene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 I'm definitely going to try all those things. I really appreciate your help! > > How about a Nuk brush, chewy tube, an electric toothbrush, massaging his > face forward (toward his mouth) with a warm wash cloth, using a cotton ball > and placing it in your hand and make a /p/ sound to blow it off of your > hand. Milk shakes or something thick (pudding, applesauce to start) to suck > through a straw... if you are cf...not milk shakes, but you have the idea. > Chewy foods such as bagels, licorice, gummy bears etc are good for > strengthening too. > > Bath time is a great time to blow bubbles as well as massage his face. You > can incorporate this into a fun game with social interaction too. > Just some additional thoughts! > Jackie--- > > ----- Original Message ----- > Thanks for the suggestions . I have tried most of those and he > just isn't interested (blowing the tissue and he won't look in a > mirror). I have thought about putting things on his lips and having > him lick them off but never tried it. I will definitely give it a > shot. I used to give him things to wake his mouth up, like altoids, > and he loves spicy or strong tasting things but they don't seem to > faze him! It's crazy. Thanks for the link too, I was looking for a > good place to buy some different oral motor toys! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Dannene, Over the past few years of talking to parents with these same issues, it didn't seem like cod liver oil helped anyone in this area... go for the fish oil. Different ratios of EPA/DHA and GLA than CLO. Pam > > > > <tt> > > Hi,<BR> > > My son just turned 4 and every sound he makes sounds like a vowel > <BR> > > sound. He has been getting speech since he was 2, didn't say any > <BR> > > words at all until almost 3, had some D, N and T sounds (sometimes > M <BR> > > and and has lost all of those sounds. He attempts to speak > anytime <BR> > > you ask him (like we'll say " say popsicle " and he'll say uh ih uh > with <BR> > > the correct rhythm). It's like his mouth won't work or he can't > make <BR> > > it move. I've been told he doesn't have apraxia because he > doesn't <BR> > > grope for the words. Does anyone have a child with this extreme > <BR> > > articulation problem? If so, have you done anything that has > worked? <BR> > > Is this something that will get better after chelation? I never > hear <BR> > > anyone talk about this...they talk about nonverbal but not severe > <BR> > > articulation problems. I just need to know there is hope for my > son! <BR> > > Thanks,<BR> > > Dannene<BR> > > > > > > _______________________________________________ > > Join Excite! - http://www.excite.com > > The most personalized portal on the Web! > > > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 You know, it is Kirkman's codliver oil i have, not nordic naturals. Is Nordic Naturals fish oil? I think I have tried fish oil too but maybe not a brand that has a good ratio. > > > > > > <tt> > > > Hi,<BR> > > > My son just turned 4 and every sound he makes sounds like a > vowel > > <BR> > > > sound. He has been getting speech since he was 2, didn't say > any > > <BR> > > > words at all until almost 3, had some D, N and T sounds > (sometimes > > M <BR> > > > and and has lost all of those sounds. He attempts to speak > > anytime <BR> > > > you ask him (like we'll say " say popsicle " and he'll say uh ih > uh > > with <BR> > > > the correct rhythm). It's like his mouth won't work or he can't > > make <BR> > > > it move. I've been told he doesn't have apraxia because he > > doesn't <BR> > > > grope for the words. Does anyone have a child with this extreme > > <BR> > > > articulation problem? If so, have you done anything that has > > worked? <BR> > > > Is this something that will get better after chelation? I never > > hear <BR> > > > anyone talk about this...they talk about nonverbal but not > severe > > <BR> > > > articulation problems. I just need to know there is hope for my > > son! <BR> > > > Thanks,<BR> > > > Dannene<BR> > > > > > > > > > _______________________________________________ > > > Join Excite! - http://www.excite.com > > > The most personalized portal on the Web! > > > > > > > > > > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 If he will let you flip him upside down... even with his body on the couch and his head towards the floor, tickle him upside down to see if you can get his tongue out. My son was tongue tied and along with the motor planning problems... we had issues. Once his lingual frenum was clipped, we began to do more oral motor strengthening and he began to talk. It was a total of 5 months. Our ENT checked it for me and did the procedure. Something to have her first look at. Jackie--- ----- Original Message ----- >I don't think his tongue is coming completely out of his mouth and > I've never seen it come out the sides. I'm going to try putting > something yummy there and see if he'll lick it off. The speech > therapists are doing verbal ABA to try to get him to talk and also a > few oral motor exercises (i know they try to get him to blow a > tissue and ask him to open his mouth to squirt yummy things in there) > >> >> Can he stick his tongue COMPLETELY out of his mouth??? Side to > side up and down (tongue tip elevation)? What is your SLP doing with > him??? >> Jackie--- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 I agree. I used CLO last. I like the Nordic Naturals Omega complete.... compare with the Nordic Naturals ProEFA. Jackie--- ----- Original Message ----- > Dannene, > > Over the past few years of talking to parents with these same > issues, it didn't seem like cod liver oil helped anyone in this > area... go for the fish oil. Different ratios of EPA/DHA and GLA > than CLO. > > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hello, You are on the same road as me, what I mean is that for over a year I have been learning about Neurotransmitters and all that go with them... It is really over my head. I beleave that for some reason they are not functioning or are unable to work in my sons lips... my son is totally non verbal.... I pray that you will be able to have every person that comes into your son life slow down to his pace of talking and support him in the huge effort it must be for him to even attempt to get the words right...I see praise for all attempts to get the words right will give him confidence he needs to keep tring. Praise praise praise. Well I will leave you with some of the pages I have been searching for the answer to my questions. Will you do me a favor print this page and put it away some where and email back someday when you have figured this out. What a quest we are on. http://www.hosppract.com/issues/1999/07/gershon.htm http://en.wikipedia.org/wiki/Neurotransmitter#Common_neurotransmitter s http://www.incrediblehorizons.com/digestion%20 & %20autistic% 20children.htm My 2 cents Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Have you noticed any good things with the supplementation? Do you want to post his tests (blood) results so perhaps Andy or Dr. Popplewell can comment and give you a second opinion as to whether or not you can safely start chelating now? How are his BMs? Have you had any viral testing done? Anne > > > > > > > > <tt> > > > > Hi,<BR> > > > > My son just turned 4 and every sound he makes sounds like a > vowel > > > <BR> > > > > sound. He has been getting speech since he was 2, didn't say > any > > > <BR> > > > > words at all until almost 3, had some D, N and T sounds > > (sometimes > > > M <BR> > > > > and and has lost all of those sounds. He attempts to speak > > > anytime <BR> > > > > you ask him (like we'll say " say popsicle " and he'll say uh ih > uh > > > with <BR> > > > > the correct rhythm). It's like his mouth won't work or he > can't > > > make <BR> > > > > it move. I've been told he doesn't have apraxia because he > > > doesn't <BR> > > > > grope for the words. Does anyone have a child with this > extreme > > > <BR> > > > > articulation problem? If so, have you done anything that has > > > worked? <BR> > > > > Is this something that will get better after chelation? I > never > > > hear <BR> > > > > anyone talk about this...they talk about nonverbal but not > severe > > > <BR> > > > > articulation problems. I just need to know there is hope for > my > > > son! <BR> > > > > Thanks,<BR> > > > > Dannene<BR> > > > > > > > > > > > > _______________________________________________ > > > > Join Excite! - http://www.excite.com > > > > The most personalized portal on the Web! > > > > > > > > > > > > > > > > > > > > ======================================================= > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Nordic Naturals does make a cod liver oil, but also fish oil in varying concentrations/formulations. Cod liver oil really doesn't have much of the Omega 3s compared to fish oil. Fish oils (oils not from the liver) will have much higher levels of EPA/DHA for the brain and added borage oil (or other omega 6) for the GLA. CLO has the vitamins A and D. Kirkmans markets fish oils, too, I assume. The reason I tout the NN ProEFA is because so many parents of kids with Apraxia and other language disorders report progress with the ProEFA. I can tell you my story: within 48 hours of switching from another fish oil to ProEFA my son started repeating words. He went from near silence to wanting to label everything. It was very unclear, but that articulation came slowly over the next year. His SLP of 18 months was floored! We still deal with articulation issues, but progress is being made daily. My son also has Autism and a receptive language delay, so that greatly complicates things. I am seeing an increased rate of improvement since starting chelation with ALA. I wish you luck. There is a book out there by Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hi Dannene, I just read your two posts on your son's articulation issues. My son too has just turned 4 and he was so non-verbal until age 3 1/2 that we too suspected apraxia. But now, he is singing songs, repeating everything with near-perfect articulation, and having a great time with sounds. His articulation is improving incredibly fast. He's engaging in vocal play and truly enjoying it. It's as if he just discovered what he can do with his voice. In our case, that happened with the " blend " exercises (vowel- consonant blends). Does your ABA program have intensive blend drills? If not, ask them about it and perhaps you may get the speech therapist(s) to do the same thing too. Blend drills really jumpstarted speech in our case. My little one transferred those blends into varied babbling during play. He took those sounds and made a made-up language out of them, pretending to be talking, whereas previously, he had no such tools to use during play other than humming incessantly. As he started enjoying the sound of his own voice, he started doing it more, and as he started doing it more, his articulation got better. But it all required heavy duty exercising of the oral musculature through blends, verbal imitation, intraverbals, expressive labeling exercises and so on during intensive and regular therapy and that's what you seem to be doing anyway. Some of our kiddos (assuming that they don't have an immediate physical issue going on) just don't seem to know what they can do with their mouths and their voices and when they accidentally stumble upon that capability, they seem to derive joy out of using it. That gives them the motivation and the impetus to keep going with it. It is now my opinion that children with autism (generally) need A LOT of motivation to talk. They just have to enjoy talking. Don't give up the therapies (but looking into ways to improve them is an ongoing must for us parents) and it certainly is waaay too early for you to give up hope. In fact, really, there is no point in time where we can give up hope. Speech and other goodies may kick in any minute (-: Best of luck, Beti > > > > > > <tt> > > > Hi,<BR> > > > My son just turned 4 and every sound he makes sounds like a vowel > > <BR> > > > sound. He has been getting speech since he was 2, didn't say any > > <BR> > > > words at all until almost 3, had some D, N and T sounds > (sometimes > > M <BR> > > > and and has lost all of those sounds. He attempts to speak > > anytime <BR> > > > you ask him (like we'll say " say popsicle " and he'll say uh ih uh > > with <BR> > > > the correct rhythm). It's like his mouth won't work or he can't > > make <BR> > > > it move. I've been told he doesn't have apraxia because he > > doesn't <BR> > > > grope for the words. Does anyone have a child with this extreme > > <BR> > > > articulation problem? If so, have you done anything that has > > worked? <BR> > > > Is this something that will get better after chelation? I never > > hear <BR> > > > anyone talk about this...they talk about nonverbal but not severe > > <BR> > > > articulation problems. I just need to know there is hope for my > > son! <BR> > > > Thanks,<BR> > > > Dannene<BR> > > > > > > > > > _______________________________________________ > > > Join Excite! - http://www.excite.com > > > The most personalized portal on the Web! > > > > > > > > > > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 I gave him a popsicle today to see if he would lick it and he would stick his tongue out but not move it in a licking motion. He would move his head up and down instead. Would that be an indicator of tongue-tiedness? > >> > >> Can he stick his tongue COMPLETELY out of his mouth??? Side to > > side up and down (tongue tip elevation)? What is your SLP doing with > > him??? > >> Jackie--- > Quote Link to comment Share on other sites More sharing options...
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