Re: extreme articulation problems-cross posted

[Guest guest]

Dannene,

Have you started chelation yet? Our problem is apraxia, but at the

word level that is largely resolved. He can say anything! Even

things he shouldn't be saying! And that is only with 14 rounds (or

so) of chelation. We still have a long ways to go (and the more the

apraxia falls away, the more spectrumish my son tends to look - like

peeling an onion, I suppose), but we have no doubt that the chelation

was the main thing that got us over the " tough nut " apraxia hump.

Anne

>

> Hi,

> My son just turned 4 and every sound he makes sounds like a vowel

> sound. He has been getting speech since he was 2, didn't say any

> words at all until almost 3, had some D, N and T sounds (sometimes

M

> and and has lost all of those sounds. He attempts to speak

anytime

> you ask him (like we'll say " say popsicle " and he'll say uh ih uh

with

> the correct rhythm). It's like his mouth won't work or he can't

make

> it move. I've been told he doesn't have apraxia because he doesn't

> grope for the words. Does anyone have a child with this extreme

> articulation problem? If so, have you done anything that has

worked?

> Is this something that will get better after chelation? I never

hear

> anyone talk about this...they talk about nonverbal but not severe

> articulation problems. I just need to know there is hope for my

son!

> Thanks,

> Dannene

>

[Guest guest]

Can he blow a pinwheel, dandelion, etc? Can he suck through a straw? Can/Does

he lick things off his lips? Has the ST suggested any exercises to do with him

at home? Sounds like his receptive language is ok and that his hearing has been

tested...

S S

<tt>

Hi,<BR>

My son just turned 4 and every sound he makes sounds like a vowel <BR>

sound.  He has been getting speech since he was 2, didn't say any <BR>

words at all until almost 3, had some D, N and T sounds (sometimes M <BR>

and and has lost all of those sounds.  He attempts to speak anytime <BR>

you ask him (like we'll say " say popsicle " and he'll say uh ih uh with <BR>

the correct rhythm).  It's like his mouth won't work or he can't make <BR>

it move.  I've been told he doesn't have apraxia because he doesn't <BR>

grope for the words.  Does anyone have a child with this extreme <BR>

articulation problem?  If so, have you done anything that has worked?  <BR>

Is this something that will get better after chelation?  I never hear <BR>

anyone talk about this...they talk about nonverbal but not severe <BR>

articulation problems.  I just need to know there is hope for my son!  <BR>

Thanks,<BR>

Dannene<BR>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Can he blow a pinwheel, dandelion, etc? Kind of...when he blows it's

like an Ffff if he blows.

Can he suck through a straw? yes, he can now!

Can/Does he lick things off his lips? Not usually, but I think he has

the capability of doing so

Has the ST suggested any exercises to do with him

at home? A few. Do you have any you suggest? I would appreciate any

you offer!!!

Sounds like his receptive language is ok and that his hearing has been

tested...yes, his receptive language is at age level at least and his

hearing has been tested but not a comprehensive test. He has his 4

year check-up tomorrow so we'll see if they are able to check it

again. I appreciate any advice!!!

[Guest guest]

I have two oral motor Word files that I can share with you. One is an oral

motor calendar with activities for each day and the other document is for

groceries that work well for oral motor activities. Email me offlist if you

would like a copy of these.

About him not being apraxic, what was the reasoning??? My son had dyspraxia

(had some words) and I don't get what they mean 'he doesn't grope for the

words'. I would have another evaluation from another SLP who has experience

with apraxia. Just because he is attempting to make sounds doesn't mean he

can motor plan and string the correct sound sequence.

I am on the Apraxia-Kids Listserv and will ask for a referral in your area

if you let me know where you are located. You can e-mail me offlist if this

makes you more comfortable.

Jackie---

jhines@...

" In God We Trust - All Others Bring Data! " - W. Deming

> Can he blow a pinwheel, dandelion, etc? Kind of...when he blows it's

> like an Ffff if he blows.

> Can he suck through a straw? yes, he can now!

> Can/Does he lick things off his lips? Not usually, but I think he has

> the capability of doing so

> Has the ST suggested any exercises to do with him

> at home? A few. Do you have any you suggest? I would appreciate any

> you offer!!!

> Sounds like his receptive language is ok and that his hearing has been

> tested...yes, his receptive language is at age level at least and his

> hearing has been tested but not a comprehensive test. He has his 4

> year check-up tomorrow so we'll see if they are able to check it

> again. I appreciate any advice!!!

[Guest guest]

Dannene,

Make a game of putting food he likes on his lips and having him lick it off.

Let him put some on your lips and watch you lick it off. Do it in front of a

mirror. Some consonants depend upon placement of the tongue others on the lips.

Try foods with different textures and both cool and warm. This " game " should

help increase awareness of both tongue and lips. Play games like holding a very

light weight piece of fabric or tissue paper a few inches in front of his mouth

and having him blow, do the same yourself while beside him so he can see what

you're doing. This helps with breath control. Abilitations/Integrations

catalog

http://www.integrationscatalog.com/sportime-shared/adaptedProductIndex.jsp?produ\

ct=mightyMouth

has a variety of blowing and speech enchancing/encouraging games that might

prove helpful. Play games that involve making faces in the mirror. I'm not an

SLP but have a nephew who lost all speech for a year after his DPT and have

worked with nonverbal children (and children with emerging verbal ability) and

adults.

S S

<br><br><tt><br>Can he blow a pinwheel, dandelion, etc? Kind of...when he

blows it's <BR><br>like an Ffff if he blows.  <BR><br>Can he suck through a

straw? yes, he can now!<BR><br>Can/Does he lick things off his lips? Not

usually, but I think he has <BR><br>the capability of doing so<BR><br>Has the ST

suggested any exercises to do with him<BR><br>at home? A few.  Do you have any

you suggest?  I would appreciate any <BR><br>you offer!!!<BR><br>Sounds like his

receptive language is ok and that his hearing has been<BR><br>tested...yes, his

receptive language is at age level at least and his <BR><br>hearing has been

tested but not a comprehensive test.  He has his 4 <BR><br>year check-up

tomorrow so we'll see if they are able to check it <BR><br>again.  I appreciate

any advice!!!<BR><br><br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

I am no expert on the subject, but I would not even come close to losing

hope at this point.

Have you removed Milk Products from his diet ?

Also, I have seen others as well as our 5 year old do very will with speech

after adding Omega3 (fish oil).

What all have you done so far ?

Neil

RE: [ ] extreme articulation problems-cross posted

Can he blow a pinwheel, dandelion, etc? Can he suck through a straw?

Can/Does he lick things off his lips? Has the ST suggested any exercises to

do with him at home? Sounds like his receptive language is ok and that his

hearing has been tested...

S S

<tt>

Hi,<BR>

My son just turned 4 and every sound he makes sounds like a vowel <BR>

sound. He has been getting speech since he was 2, didn't say any <BR>

words at all until almost 3, had some D, N and T sounds (sometimes M <BR>

and and has lost all of those sounds. He attempts to speak anytime <BR>

you ask him (like we'll say " say popsicle " and he'll say uh ih uh with <BR>

the correct rhythm). It's like his mouth won't work or he can't make <BR>

it move. I've been told he doesn't have apraxia because he doesn't <BR>

grope for the words. Does anyone have a child with this extreme <BR>

articulation problem? If so, have you done anything that has worked? <BR>

Is this something that will get better after chelation? I never hear <BR>

anyone talk about this...they talk about nonverbal but not severe <BR>

articulation problems. I just need to know there is hope for my son! <BR>

Thanks,<BR>

Dannene<BR>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

=======================================================

[Guest guest]

Thanks for the suggestions . I have tried most of those and he

just isn't interested (blowing the tissue and he won't look in a

mirror). I have thought about putting things on his lips and having

him lick them off but never tried it. I will definitely give it a

shot. I used to give him things to wake his mouth up, like altoids,

and he loves spicy or strong tasting things but they don't seem to

faze him! It's crazy. Thanks for the link too, I was looking for a

good place to buy some different oral motor toys!

<br><br><tt><br>Can he blow a pinwheel, dandelion, etc? Kind

of...when he blows it's <BR><br>like an Ffff if he blows. 

<BR><br>Can he suck through a straw? yes, he can now!

<BR><br>Can/Does he lick things off his lips? Not usually, but I

think he has <BR><br>the capability of doing so<BR><br>Has the ST

suggested any exercises to do with him<BR><br>at home? A few.  Do

you have any you suggest?  I would appreciate any <BR><br>you

offer!!!<BR><br>Sounds like his receptive language is ok and that

his hearing has been<BR><br>tested...yes, his receptive language is

at age level at least and his <BR><br>hearing has been tested but

not a comprehensive test.  He has his 4 <BR><br>year check-up

tomorrow so we'll see if they are able to check it <BR><br>again.  I

appreciate any advice!!!<BR><br><br>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

Neil,

I tried adding the cod liver oil, he is on the GFCF diet (plus some

other things), we just started B-12 shots every 3 days, I have tried

different oral motor exercises but not faithfully, he is in a verbal

ABA program at school 30 hours a week with 4X a week with a speech

therapist, he gets speech from a private person, he meets 8 hours

with 2 girls I hired to work with his mouth and a few other things.

I guess I am losing hope because I just keep trying so many things

and nothing is helping at all. He is worse off than he was a year

ago in speech. We started supplements, that didn't help either. We

have spent so much money and nothing works!! I haven't heard many

stories with children who had bad articulation starting to speak

clearly after chelation and I was hoping I'd hear some from this

post! I almost wish he didn't speak at all because then it would

seem more possible. Right now he just seems like his mouth doesn't

want to move. Sorry so long!!

Dannene

>

> <tt>

> Hi,<BR>

> My son just turned 4 and every sound he makes sounds like a vowel

<BR>

> sound. He has been getting speech since he was 2, didn't say any

<BR>

> words at all until almost 3, had some D, N and T sounds (sometimes

M <BR>

> and and has lost all of those sounds. He attempts to speak

anytime <BR>

> you ask him (like we'll say " say popsicle " and he'll say uh ih uh

with <BR>

> the correct rhythm). It's like his mouth won't work or he can't

make <BR>

> it move. I've been told he doesn't have apraxia because he

doesn't <BR>

> grope for the words. Does anyone have a child with this extreme

<BR>

> articulation problem? If so, have you done anything that has

worked? <BR>

> Is this something that will get better after chelation? I never

hear <BR>

> anyone talk about this...they talk about nonverbal but not severe

<BR>

> articulation problems. I just need to know there is hope for my

son! <BR>

> Thanks,<BR>

> Dannene<BR>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

>

>

>

> =======================================================

>

[Guest guest]

Hi Dannene,

I would say that I have see many posts from people who have had their kids

start talking much more after chelation.

These kids seemed to have all variety of speech delays, problems.

Like I said, I am no expert and couldn't say for sure where the problem lies

but I would suggest that you do the hair test for starters.

Others on this site are much more experienced and could give you better step

by step advice on how to get started.

Neil

_____

From: [mailto: ]

On Behalf Of dannenedrummond

Sent: Tuesday, January 31, 2006 9:01 PM

Subject: [ ] Re: extreme articulation problems-cross posted

Neil,

I tried adding the cod liver oil, he is on the GFCF diet (plus some

other things), we just started B-12 shots every 3 days, I have tried

different oral motor exercises but not faithfully, he is in a verbal

ABA program at school 30 hours a week with 4X a week with a speech

therapist, he gets speech from a private person, he meets 8 hours

with 2 girls I hired to work with his mouth and a few other things.

I guess I am losing hope because I just keep trying so many things

and nothing is helping at all. He is worse off than he was a year

ago in speech. We started supplements, that didn't help either. We

have spent so much money and nothing works!! I haven't heard many

stories with children who had bad articulation starting to speak

clearly after chelation and I was hoping I'd hear some from this

post! I almost wish he didn't speak at all because then it would

seem more possible. Right now he just seems like his mouth doesn't

want to move. Sorry so long!!

Dannene

>

> <tt>

> Hi,<BR>

> My son just turned 4 and every sound he makes sounds like a vowel

<BR>

> sound. He has been getting speech since he was 2, didn't say any

<BR>

> words at all until almost 3, had some D, N and T sounds (sometimes

M <BR>

> and and has lost all of those sounds. He attempts to speak

anytime <BR>

> you ask him (like we'll say " say popsicle " and he'll say uh ih uh

with <BR>

> the correct rhythm). It's like his mouth won't work or he can't

make <BR>

> it move. I've been told he doesn't have apraxia because he

doesn't <BR>

> grope for the words. Does anyone have a child with this extreme

<BR>

> articulation problem? If so, have you done anything that has

worked? <BR>

> Is this something that will get better after chelation? I never

hear <BR>

> anyone talk about this...they talk about nonverbal but not severe

<BR>

> articulation problems. I just need to know there is hope for my

son! <BR>

> Thanks,<BR>

> Dannene<BR>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

>

>

>

> =======================================================

>

[Guest guest]

Dannene,

I know apraxia is different than an articulation issue, but I thought

it might help you to know that my son could not move his tongue well

at all before we started chelation, i.e. he couldn't make a true

licking motion or anything. That changed with chelation. If I were

you, I would try 10 rounds of low dose ALA/DMSA chelation and see if

you get any results. I would also be interested to hear what other

issues he presents with. That might help us help you more.

Anne

.. Now

> >

> > <tt>

> > Hi,<BR>

> > My son just turned 4 and every sound he makes sounds like a vowel

> <BR>

> > sound. He has been getting speech since he was 2, didn't say any

> <BR>

> > words at all until almost 3, had some D, N and T sounds

(sometimes

> M <BR>

> > and and has lost all of those sounds. He attempts to speak

> anytime <BR>

> > you ask him (like we'll say " say popsicle " and he'll say uh ih uh

> with <BR>

> > the correct rhythm). It's like his mouth won't work or he can't

> make <BR>

> > it move. I've been told he doesn't have apraxia because he

> doesn't <BR>

> > grope for the words. Does anyone have a child with this extreme

> <BR>

> > articulation problem? If so, have you done anything that has

> worked? <BR>

> > Is this something that will get better after chelation? I never

> hear <BR>

> > anyone talk about this...they talk about nonverbal but not severe

> <BR>

> > articulation problems. I just need to know there is hope for my

> son! <BR>

> > Thanks,<BR>

> > Dannene<BR>

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

How about a Nuk brush, chewy tube, an electric toothbrush, massaging his

face forward (toward his mouth) with a warm wash cloth, using a cotton ball

and placing it in your hand and make a /p/ sound to blow it off of your

hand. Milk shakes or something thick (pudding, applesauce to start) to suck

through a straw... if you are cf...not milk shakes, but you have the idea.

Chewy foods such as bagels, licorice, gummy bears etc are good for

strengthening too.

Bath time is a great time to blow bubbles as well as massage his face. You

can incorporate this into a fun game with social interaction too.

Just some additional thoughts!

Jackie---

----- Original Message -----

Thanks for the suggestions . I have tried most of those and he

just isn't interested (blowing the tissue and he won't look in a

mirror). I have thought about putting things on his lips and having

him lick them off but never tried it. I will definitely give it a

shot. I used to give him things to wake his mouth up, like altoids,

and he loves spicy or strong tasting things but they don't seem to

faze him! It's crazy. Thanks for the link too, I was looking for a

good place to buy some different oral motor toys!

[Guest guest]

Can he stick his tongue COMPLETELY out of his mouth??? Side to side up and

down (tongue tip elevation)? What is your SLP doing with him???

Jackie---

----- Original Message -----

> I tried adding the cod liver oil, he is on the GFCF diet (plus some

> other things), we just started B-12 shots every 3 days, I have tried

> different oral motor exercises but not faithfully, he is in a verbal

> ABA program at school 30 hours a week with 4X a week with a speech

> therapist, he gets speech from a private person, he meets 8 hours

> with 2 girls I hired to work with his mouth and a few other things.

> I guess I am losing hope because I just keep trying so many things

> and nothing is helping at all. He is worse off than he was a year

> ago in speech. We started supplements, that didn't help either. We

> have spent so much money and nothing works!! I haven't heard many

> stories with children who had bad articulation starting to speak

> clearly after chelation and I was hoping I'd hear some from this

> post! I almost wish he didn't speak at all because then it would

> seem more possible. Right now he just seems like his mouth doesn't

> want to move. Sorry so long!!

> Dannene

[Guest guest]

What do you mean by other issues? Speechwise? Otherwise he has

good receptive language, good eye contact, is very hyper usually,

sleeps pretty well, doesn't play with toys appropriately, will

imitate anything you ask him to say but you can't understand him at

all because it all sounds like vowels, does some stimming (looks at

hand and lately he has been pushing his face with his fist), he just

started b-12 shots, is on brainchild nutrients, takes milk thistle

for high liver enzymes, used to take cod liver oil but it didn't

seem to make a difference. He can drink out of a straw, kind of

blow but it is more like fffff, barely opens his mouth when he

speaks (even though he always opened his mouth pretty wide to eat so

he wouldn't get food on his mouth), despite the last thing I

mentioned he is pretty hyposensitive and will eat things like

altoids without blinking. Not sure what else I can tell ya...

> > >

> > > <tt>

> > > Hi,<BR>

> > > My son just turned 4 and every sound he makes sounds like a

vowel

> > <BR>

> > > sound. He has been getting speech since he was 2, didn't say

any

> > <BR>

> > > words at all until almost 3, had some D, N and T sounds

> (sometimes

> > M <BR>

> > > and and has lost all of those sounds. He attempts to speak

> > anytime <BR>

> > > you ask him (like we'll say " say popsicle " and he'll say uh ih

uh

> > with <BR>

> > > the correct rhythm). It's like his mouth won't work or he

can't

> > make <BR>

> > > it move. I've been told he doesn't have apraxia because he

> > doesn't <BR>

> > > grope for the words. Does anyone have a child with this

extreme

> > <BR>

> > > articulation problem? If so, have you done anything that has

> > worked? <BR>

> > > Is this something that will get better after chelation? I

never

> > hear <BR>

> > > anyone talk about this...they talk about nonverbal but not

severe

> > <BR>

> > > articulation problems. I just need to know there is hope for

my

> > son! <BR>

> > > Thanks,<BR>

> > > Dannene<BR>

> > >

> > >

> > > _______________________________________________

> > > Join Excite! - http://www.excite.com

> > > The most personalized portal on the Web!

> > >

> > >

> > >

> > >

> > > =======================================================

> > >

[Guest guest]

Neil: I have already had his hair tested 2xs, along with stool and

urine and he definitely meets the counting rules. He was supposed

to start chelation in January but his doctor said NO because his

liver enzymes were high and iron was low. I'm considering starting

without him though because I have the prescription already and have

been on supplements for a few months (which I think is stressing his

body because his nutrients were all really high in his hair so

supplementing all this stuff without the chelation seems like it

would strain his body more to me...but what do i know). I am glad

that so many people have given me glimmers of hope and I hope to see

the same results!

> >

> > <tt>

> > Hi,<BR>

> > My son just turned 4 and every sound he makes sounds like a

vowel

> <BR>

> > sound. He has been getting speech since he was 2, didn't say

any

> <BR>

> > words at all until almost 3, had some D, N and T sounds

(sometimes

> M <BR>

> > and and has lost all of those sounds. He attempts to speak

> anytime <BR>

> > you ask him (like we'll say " say popsicle " and he'll say uh ih

uh

> with <BR>

> > the correct rhythm). It's like his mouth won't work or he can't

> make <BR>

> > it move. I've been told he doesn't have apraxia because he

> doesn't <BR>

> > grope for the words. Does anyone have a child with this extreme

> <BR>

> > articulation problem? If so, have you done anything that has

> worked? <BR>

> > Is this something that will get better after chelation? I never

> hear <BR>

> > anyone talk about this...they talk about nonverbal but not

severe

> <BR>

> > articulation problems. I just need to know there is hope for my

> son! <BR>

> > Thanks,<BR>

> > Dannene<BR>

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

I don't think his tongue is coming completely out of his mouth and

I've never seen it come out the sides. I'm going to try putting

something yummy there and see if he'll lick it off. The speech

therapists are doing verbal ABA to try to get him to talk and also a

few oral motor exercises (i know they try to get him to blow a

tissue and ask him to open his mouth to squirt yummy things in there)

>

> Can he stick his tongue COMPLETELY out of his mouth??? Side to

side up and

> down (tongue tip elevation)? What is your SLP doing with him???

> Jackie---

>

> ----- Original Message -----

> > I tried adding the cod liver oil, he is on the GFCF diet (plus

some

> > other things), we just started B-12 shots every 3 days, I have

tried

> > different oral motor exercises but not faithfully, he is in a

verbal

> > ABA program at school 30 hours a week with 4X a week with a

speech

> > therapist, he gets speech from a private person, he meets 8 hours

> > with 2 girls I hired to work with his mouth and a few other

things.

> > I guess I am losing hope because I just keep trying so many

things

> > and nothing is helping at all. He is worse off than he was a

year

> > ago in speech. We started supplements, that didn't help

either. We

> > have spent so much money and nothing works!! I haven't heard

many

> > stories with children who had bad articulation starting to speak

> > clearly after chelation and I was hoping I'd hear some from this

> > post! I almost wish he didn't speak at all because then it would

> > seem more possible. Right now he just seems like his mouth

doesn't

> > want to move. Sorry so long!!

> > Dannene

>

[Guest guest]

I'm definitely going to try all those things. I really appreciate

your help!

>

> How about a Nuk brush, chewy tube, an electric toothbrush,

massaging his

> face forward (toward his mouth) with a warm wash cloth, using a

cotton ball

> and placing it in your hand and make a /p/ sound to blow it off of

your

> hand. Milk shakes or something thick (pudding, applesauce to

start) to suck

> through a straw... if you are cf...not milk shakes, but you have

the idea.

> Chewy foods such as bagels, licorice, gummy bears etc are good for

> strengthening too.

>

> Bath time is a great time to blow bubbles as well as massage his

face. You

> can incorporate this into a fun game with social interaction too.

> Just some additional thoughts!

> Jackie---

>

> ----- Original Message -----

> Thanks for the suggestions . I have tried most of those and

he

> just isn't interested (blowing the tissue and he won't look in a

> mirror). I have thought about putting things on his lips and

having

> him lick them off but never tried it. I will definitely give it a

> shot. I used to give him things to wake his mouth up, like

altoids,

> and he loves spicy or strong tasting things but they don't seem to

> faze him! It's crazy. Thanks for the link too, I was looking for

a

> good place to buy some different oral motor toys!

>

[Guest guest]

Dannene,

Over the past few years of talking to parents with these same

issues, it didn't seem like cod liver oil helped anyone in this

area... go for the fish oil. Different ratios of EPA/DHA and GLA

than CLO.

Pam

> >

> > <tt>

> > Hi,<BR>

> > My son just turned 4 and every sound he makes sounds like a

vowel

> <BR>

> > sound. He has been getting speech since he was 2, didn't say

any

> <BR>

> > words at all until almost 3, had some D, N and T sounds

(sometimes

> M <BR>

> > and and has lost all of those sounds. He attempts to speak

> anytime <BR>

> > you ask him (like we'll say " say popsicle " and he'll say uh ih

uh

> with <BR>

> > the correct rhythm). It's like his mouth won't work or he can't

> make <BR>

> > it move. I've been told he doesn't have apraxia because he

> doesn't <BR>

> > grope for the words. Does anyone have a child with this extreme

> <BR>

> > articulation problem? If so, have you done anything that has

> worked? <BR>

> > Is this something that will get better after chelation? I never

> hear <BR>

> > anyone talk about this...they talk about nonverbal but not

severe

> <BR>

> > articulation problems. I just need to know there is hope for my

> son! <BR>

> > Thanks,<BR>

> > Dannene<BR>

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

You know, it is Kirkman's codliver oil i have, not nordic naturals.

Is Nordic Naturals fish oil? I think I have tried fish oil too but

maybe not a brand that has a good ratio.

> > >

> > > <tt>

> > > Hi,<BR>

> > > My son just turned 4 and every sound he makes sounds like a

> vowel

> > <BR>

> > > sound. He has been getting speech since he was 2, didn't say

> any

> > <BR>

> > > words at all until almost 3, had some D, N and T sounds

> (sometimes

> > M <BR>

> > > and and has lost all of those sounds. He attempts to speak

> > anytime <BR>

> > > you ask him (like we'll say " say popsicle " and he'll say uh ih

> uh

> > with <BR>

> > > the correct rhythm). It's like his mouth won't work or he

can't

> > make <BR>

> > > it move. I've been told he doesn't have apraxia because he

> > doesn't <BR>

> > > grope for the words. Does anyone have a child with this

extreme

> > <BR>

> > > articulation problem? If so, have you done anything that has

> > worked? <BR>

> > > Is this something that will get better after chelation? I

never

> > hear <BR>

> > > anyone talk about this...they talk about nonverbal but not

> severe

> > <BR>

> > > articulation problems. I just need to know there is hope for

my

> > son! <BR>

> > > Thanks,<BR>

> > > Dannene<BR>

> > >

> > >

> > > _______________________________________________

> > > Join Excite! - http://www.excite.com

> > > The most personalized portal on the Web!

> > >

> > >

> > >

> > >

> > > =======================================================

> > >

[Guest guest]

If he will let you flip him upside down... even with his body on the couch

and his head towards the floor, tickle him upside down to see if you can get

his tongue out. My son was tongue tied and along with the motor planning

problems... we had issues. Once his lingual frenum was clipped, we began to

do more oral motor strengthening and he began to talk. It was a total of 5

months. Our ENT checked it for me and did the procedure. Something to have

her first look at.

Jackie---

----- Original Message -----

>I don't think his tongue is coming completely out of his mouth and

> I've never seen it come out the sides. I'm going to try putting

> something yummy there and see if he'll lick it off. The speech

> therapists are doing verbal ABA to try to get him to talk and also a

> few oral motor exercises (i know they try to get him to blow a

> tissue and ask him to open his mouth to squirt yummy things in there)

>

>>

>> Can he stick his tongue COMPLETELY out of his mouth??? Side to

> side up and down (tongue tip elevation)? What is your SLP doing with

> him???

>> Jackie---

[Guest guest]

I agree. I used CLO last. I like the Nordic Naturals Omega complete....

compare with the Nordic Naturals ProEFA.

Jackie---

----- Original Message -----

> Dannene,

>

> Over the past few years of talking to parents with these same

> issues, it didn't seem like cod liver oil helped anyone in this

> area... go for the fish oil. Different ratios of EPA/DHA and GLA

> than CLO.

>

> Pam

[Guest guest]

Hello,

You are on the same road as me, what I mean is that for over a

year I have been learning about Neurotransmitters and all that go

with them... It is really over my head. I beleave that for some

reason they are not functioning or are unable to work in my sons

lips... my son is totally non verbal....

I pray that you will be able to have every person that comes into

your son life slow down to his pace of talking and support him in

the huge effort it must be for him to even attempt to get the words

right...I see praise for all attempts to get the words right will

give him confidence he needs to keep tring. Praise praise praise.

Well I will leave you with some of the pages I have been

searching for the answer to my questions. Will you do me a favor

print this page and put it away some where and email back someday

when you have figured this out. What a quest we are on.

http://www.hosppract.com/issues/1999/07/gershon.htm

http://en.wikipedia.org/wiki/Neurotransmitter#Common_neurotransmitter

s

http://www.incrediblehorizons.com/digestion%20 & %20autistic%

20children.htm

My 2 cents Ann

[Guest guest]

Have you noticed any good things with the supplementation? Do you

want to post his tests (blood) results so perhaps Andy or Dr.

Popplewell can comment and give you a second opinion as to whether or

not you can safely start chelating now? How are his BMs? Have you

had any viral testing done?

Anne

> > > >

> > > > <tt>

> > > > Hi,<BR>

> > > > My son just turned 4 and every sound he makes sounds like a

> vowel

> > > <BR>

> > > > sound. He has been getting speech since he was 2, didn't say

> any

> > > <BR>

> > > > words at all until almost 3, had some D, N and T sounds

> > (sometimes

> > > M <BR>

> > > > and and has lost all of those sounds. He attempts to

speak

> > > anytime <BR>

> > > > you ask him (like we'll say " say popsicle " and he'll say uh

ih

> uh

> > > with <BR>

> > > > the correct rhythm). It's like his mouth won't work or he

> can't

> > > make <BR>

> > > > it move. I've been told he doesn't have apraxia because he

> > > doesn't <BR>

> > > > grope for the words. Does anyone have a child with this

> extreme

> > > <BR>

> > > > articulation problem? If so, have you done anything that has

> > > worked? <BR>

> > > > Is this something that will get better after chelation? I

> never

> > > hear <BR>

> > > > anyone talk about this...they talk about nonverbal but not

> severe

> > > <BR>

> > > > articulation problems. I just need to know there is hope for

> my

> > > son! <BR>

> > > > Thanks,<BR>

> > > > Dannene<BR>

> > > >

> > > >

> > > > _______________________________________________

> > > > Join Excite! - http://www.excite.com

> > > > The most personalized portal on the Web!

> > > >

> > > >

> > > >

> > > >

> > > > =======================================================

> > > >

[Guest guest]

Nordic Naturals does make a cod liver oil, but also fish oil in

varying concentrations/formulations.

Cod liver oil really doesn't have much of the Omega 3s compared to

fish oil. Fish oils (oils not from the liver) will have much higher

levels of EPA/DHA for the brain and added borage oil (or other omega

6) for the GLA. CLO has the vitamins A and D.

Kirkmans markets fish oils, too, I assume. The reason I tout the NN

ProEFA is because so many parents of kids with Apraxia and other

language disorders report progress with the ProEFA. I can tell you

my story: within 48 hours of switching from another fish oil to

ProEFA my son started repeating words. He went from near silence to

wanting to label everything. It was very unclear, but that

articulation came slowly over the next year. His SLP of 18 months

was floored!

We still deal with articulation issues, but progress is being made

daily. My son also has Autism and a receptive language delay, so

that greatly complicates things. I am seeing an increased rate of

improvement since starting chelation with ALA.

I wish you luck. There is a book out there by

[Guest guest]

Hi Dannene, I just read your two posts on your son's articulation

issues. My son too has just turned 4 and he was so non-verbal until

age 3 1/2 that we too suspected apraxia. But now, he is singing

songs, repeating everything with near-perfect articulation, and

having a great time with sounds. His articulation is improving

incredibly fast. He's engaging in vocal play and truly enjoying it.

It's as if he just discovered what he can do with his voice.

In our case, that happened with the " blend " exercises (vowel-

consonant blends). Does your ABA program have intensive blend

drills? If not, ask them about it and perhaps you may get the speech

therapist(s) to do the same thing too.

Blend drills really jumpstarted speech in our case. My little one

transferred those blends into varied babbling during play. He took

those sounds and made a made-up language out of them, pretending to

be talking, whereas previously, he had no such tools to use during

play other than humming incessantly. As he started enjoying the

sound of his own voice, he started doing it more, and as he started

doing it more, his articulation got better. But it all required

heavy duty exercising of the oral musculature through blends, verbal

imitation, intraverbals, expressive labeling exercises and so on

during intensive and regular therapy and that's what you seem to be

doing anyway.

Some of our kiddos (assuming that they don't have an immediate

physical issue going on) just don't seem to know what they can do

with their mouths and their voices and when they accidentally

stumble upon that capability, they seem to derive joy out of using

it. That gives them the motivation and the impetus to keep going

with it. It is now my opinion that children with autism (generally)

need A LOT of motivation to talk. They just have to enjoy talking.

Don't give up the therapies (but looking into ways to improve them

is an ongoing must for us parents) and it certainly is waaay too

early for you to give up hope. In fact, really, there is no point in

time where we can give up hope. Speech and other goodies may kick in

any minute (-:

Best of luck,

Beti

> > >

> > > <tt>

> > > Hi,<BR>

> > > My son just turned 4 and every sound he makes sounds like a

vowel

> > <BR>

> > > sound. He has been getting speech since he was 2, didn't say

any

> > <BR>

> > > words at all until almost 3, had some D, N and T sounds

> (sometimes

> > M <BR>

> > > and and has lost all of those sounds. He attempts to speak

> > anytime <BR>

> > > you ask him (like we'll say " say popsicle " and he'll say uh ih

uh

> > with <BR>

> > > the correct rhythm). It's like his mouth won't work or he

can't

> > make <BR>

> > > it move. I've been told he doesn't have apraxia because he

> > doesn't <BR>

> > > grope for the words. Does anyone have a child with this

extreme

> > <BR>

> > > articulation problem? If so, have you done anything that has

> > worked? <BR>

> > > Is this something that will get better after chelation? I

never

> > hear <BR>

> > > anyone talk about this...they talk about nonverbal but not

severe

> > <BR>

> > > articulation problems. I just need to know there is hope for

my

> > son! <BR>

> > > Thanks,<BR>

> > > Dannene<BR>

> > >

> > >

> > > _______________________________________________

> > > Join Excite! - http://www.excite.com

> > > The most personalized portal on the Web!

> > >

> > >

> > >

> > >

> > > =======================================================

> > >

[Guest guest]

I gave him a popsicle today to see if he would lick it and he would

stick his tongue out but not move it in a licking motion. He would

move his head up and down instead. Would that be an indicator of

tongue-tiedness?

> >>

> >> Can he stick his tongue COMPLETELY out of his mouth??? Side to

> > side up and down (tongue tip elevation)? What is your SLP

doing with

> > him???

> >> Jackie---

>