New with questions

[Guest guest]

>

> Hello,

>

> I have been reading from posts and articles for a couple weeks. I

am

> here because of my daughter's symptoms... she is 2 months and has

had

> trouble pooping since birth. She has only had maybe 1/3 of her

total

> poops without the help of a suppository or rigorous abdominal

> massage. We have currently been giving her a glycerine suppository

> every 4 days. She is also bothered by gas and burps and spits up a

> lot... the reflux seems like a secondary symptom since she is

backed

> up and also wants to comfort nurse a lot due to the abdominal

> discomfort...she also has mild cradle cap so I know she has at

least

> some yeast. My midwife and cranial sacral therapist both think her

> constipation could have something to do with her vegas nerve being

> pinched somewhere or " unhappy, " so I'm left not knowing how much of

> it is diet/candida related, or how much of it could be neurological.

>

> I am gradually working onto the diet. I was already off grains and

> sugars except honey from starting the GAPS diet of Dr. McBride

before

> getting here...plus most dairy, but I was still eating lots of

fruit

> and nuts and some other vegetables that aren't allowed on this

diet.

> I really don't want to take supplents or do enemas myself, although

I

> guess I will if that's what it will take. Other than having a lot

of

> gas myself and what seems like too much burping, I don't really

have

> other symptoms. I have probably had candida overgrowth since a few

> back-to-back rounds of antibiotics in the 5th grade ( I'm 27), but

it

> has felt under control since doing the Body Ecology Diet to address

> my first daughter's thrush that she had as an infant. After that

> cleared up though I moved into a more lax Nourishing Traditions

style

> diet which I generally felt fine on (I was still morning sick and

had

> varicose veins with this last pregnancy, so I guess I wasn't as

> healthy as I could have been).

>

> I guess my main question at this point is, do you have any

> recommendations for helping my girl's constipation... should I be

> giving her an enema instead of a suppository? Even a once a day

> enema? How would I administer it? I have been trying to get

cultured

> veggie juices and a probiotic in her, but she spits up so

frequently

> that I think they usually come back out. I will keep working on

the

> diet, but is there anything else I could do for her, like enemas??

>

==>Hi (and little Rue). Welcome to our group! I love your

baby's name.

What helps constipation the most is plenty of " good " fats, i.e.

coconut oil, butter, olive oil, etc. as recommended in my articles

and also by Sally Fallon in her Nourishing Traditions cookbook. One

mother just reported that her young son's constipation cleared up

when she added more virgin olive oil to his diet. We are waiting to

hear how she used it.

Enemas should only be done very 4-5 days so the large colon has time

to adjust because it serves very important functions for the body,

including balancing water.

When you do give your baby an enema I suggest you do a coffee one,

but dilute it at the beginning. See our Files for the Enema Folder.

It really helps decongest the liver and adrenals.

Continue doing abdominal massages often instead of enemas. Our files

also have massage information - see the " Massage Techniques & Help "

Folder.

Also you can make cabbage rejuvelac for probiotics; most babies love

it - see our Files for the " C) Recipe " Folder; and that recipe will

be in the Fermented Foods & Drinks " Folder.

Also see the article " Candida Treatments for Babies & Children " which

is in a Folder by the same name. It is very important that babies

have cod liver oil and butter oil as recommended by Dr. Price;

information on doses, etc. will be in that article. You can rub cod

liver oil into a baby's belly, which is just as effective as giving

it by mouth.

I believe it would help your body to do abdominal massages with extra

virgin olive oil since it would be absorbed through the skin.

Go easy on giving coconut oil and butter oil or butter because they

are antifungal and may cause die-off reactions. Start with very

small amounts and only increase it every 4-5 days in order to

minimize die-off/healing reactions.

That's great you are starting on the diet; it helps your baby so much!

The best in health, Bee

[Guest guest]

Sorry, I meant to write: I believe it would help your " baby " to do

abdominal massages with extra virgin olive oil since it would be

absorbed through the skin.

Bee

[Guest guest]

Sorry the link didn't come through and I seem to be having trouble

getting it to. It just said that it was rare to be a problem in

breastfed infants. But some of the causes could be not getting enough

breast miik, solids too early, dehydration (like from being sick),

some meds, allergies. It's considered normal for BF babies to not go

every day.

On 24-Mar-08, at 8:14 AM, , wrote:

>

>

> Are you positive she's constipated. Breastfed babies are rarely

> constipated. And normal bowel activity in an infant can be all over

> the place.

>

> The link above is just a little info from a public health office.

>

>

>

>

[Guest guest]

Well, I have heard the same reasoning from my pediatrician who says it

can be " normal " for breastfed babies to go up to 8 days without

pooping. Personally, I think this is hogwash... I am aiming for the

healthy kind of mustard yellow breastmilk poops with the little seedy

curds in them, which in healthy babies happen multiple times a day. I

think only in our society and perhaps other western ones where

constipation has become the " norm " even in babies due to all the toxins

and poor diet that our bodies have to deal with does a baby going more

than a day get labelled as " fine " She is obviously uncomfortable, and

that is reason enough for me to work on gettin her pooping more

frequently... her stools are thicker and a darker brown color than I

think they should be, without the curds. Thanks for the idea though,

but I've already been through this train of thought.

>

>

>

>

> Are you positive she's constipated. Breastfed babies are rarely

> constipated. And normal bowel activity in an infant can be all over

> the place.

>

> The link above is just a little info from a public health office.

>

>

>

>

[Guest guest]

Hi ,

I'm sorry to hear you may have these critters. And no, they are not

invisable, just teeney weeney. This is how I see them. I take a tub

in fairly hot water in epsom salt, a couple of cups, for about 40

minutes, and scrub well with my scrubby. I get out of the water and

let the water become still. I then lean over the tub until I see the

ceiling light reflection in the water. I can see these little nymphs,

young mites, floating on top of the water. You have to look hard and

be patient. My roomate thought I was crazy till he finally saw them.

In the bottom of the tub are these little black dots, the mature

adults. If you see this, it's a good indication you may have them.

You can also buy several sticky traps at Walmart or most hardware

stores, put a small bowl of hot water and a light in a quiet room

when it is dark in the early evening, where you think they have been

biting you the most. A bedroom may be the best, then put the traps

around the bowl of water, with the light over the water. I was able

to catch several adults, little black dots, which I was able to show

the exterminator. It went far in him believing I had a mite problem.

I can tell when I'm " swarming " when I walk in to a room and sit down.

I feel little things dropping down on me and start to move. I dont

really get bite marks or I have become immune to them, just a

crawling feeling when the land on me and start moving.

And yes, jump on these, especially if you see them in the tub. My Dr

said I had contact dermatitus so I let them get a good start of 3/4

weeks on my house...bad move. Start reading as many posts as you have

time, especially our recent ones on pest control officers and what

chemicals to use. I think the people that have the most success are

the early, hard hitters, using all methods togeather. I hate

chemicals but I knew I had to use them. My exterminator applied

everything in short sleeves and shorts so I hope they are not too

bad...

They do love my lower legs, ankles and feet for some reason but

everywhere also tastes good to them. They are not picky....

Go to your primary care Dr asap so he can see the bites. You need him

or her on your side. I use chemicals, medications and creams from my

Dr, and all the natural ways and I feel I am getting ahead of these.

Don't despair, just come out swinging hard and fast!

bob

>

> Hello, everyone. I just joined and have been reading some of the

> recent posts, but I have some questions that I haven't found

answers

> to yet. First, here's my situation.

>

> About four days ago, I noticed early in the day that I had some

itchy

> places on my legs. I began to scratch them and immediately the

> itching became more intense and then I noticed that these bumps

were

> covering both of my legs from the knee down. Later in the day I

> noticed that some of the bumps now had clear blisters on them. The

> itching would subside and the bumps would almost disappear and then

> later it would come back as strong as before. This pattern has

gone

> on ever since the itching began last week. I also have a few bumps

> on my arms and some on my upper thighs. I have had experience with

> flea bites and chiggers and my husband had scabies when he was

young,

> so we were able to eliminate those as the cause. I searched the

web

> because the itching is so bad at times and it is just such an odd

> occurance. I have eliminated one cause after another. Today, two

of

> my children began complaining of very itchy bites and when I looked

> at their legs and backs, I saw that the bites are identical to

mine.

> After much searching the thing that seems to describe our bites the

> best is the information I have found about bird mites. I am unaware

> of any bird nests near/in our house, but we are going to begin to

> look tomorrow. The itching is driving us crazy.

>

> My questions:

>

> In the stories I read, people describe swarms of invisible bugs.

How

> do they know they are swarming if they are invisible? I haven't

seen

> a bug yet, but we all feel like we are being bitten. Do all of you

> actually see the mites? How can I find proof of mites? Should I

> actually be able to see them on my skin?

>

> Is is unusual that we have all been attacked mainly on the bottom

> half of our bodies?

>

> If this is bird mites, does catching it early help to any great

> degree? I am already very worried after all the reading I've done

> today.

>

> Thank you so much!

>

>

>

[Guest guest]

Bob,

Thank you so much for your response. I am doing as much studying as I

can and I will try the bath, too.

[Guest guest]

Gosh, -

I am so sorry all of you are affected! I would try applying clear

packing tape over several areas where you are being bitten, and

different times of the day/night. Go out into the bright light and

use a good magnifying glass to see if you've captured anything on the

tape. Don't forget they will be VERY small!

Bessie

>

> Hello, everyone. I just joined and have been reading some of the

> recent posts, but I have some questions that I haven't found

answers

> to yet. First, here's my situation.

>

> About four days ago, I noticed early in the day that I had some

itchy

> places on my legs. I began to scratch them and immediately the

> itching became more intense and then I noticed that these bumps

were

> covering both of my legs from the knee down. Later in the day I

> noticed that some of the bumps now had clear blisters on them. The

> itching would subside and the bumps would almost disappear and then

> later it would come back as strong as before. This pattern has

gone

> on ever since the itching began last week. I also have a few bumps

> on my arms and some on my upper thighs. I have had experience with

> flea bites and chiggers and my husband had scabies when he was

young,

> so we were able to eliminate those as the cause. I searched the

web

> because the itching is so bad at times and it is just such an odd

> occurance. I have eliminated one cause after another. Today, two

of

> my children began complaining of very itchy bites and when I looked

> at their legs and backs, I saw that the bites are identical to

mine.

> After much searching the thing that seems to describe our bites the

> best is the information I have found about bird mites. I am unaware

> of any bird nests near/in our house, but we are going to begin to

> look tomorrow. The itching is driving us crazy.

>

> My questions:

>

> In the stories I read, people describe swarms of invisible bugs.

How

> do they know they are swarming if they are invisible? I haven't

seen

> a bug yet, but we all feel like we are being bitten. Do all of you

> actually see the mites? How can I find proof of mites? Should I

> actually be able to see them on my skin?

>

> Is is unusual that we have all been attacked mainly on the bottom

> half of our bodies?

>

> If this is bird mites, does catching it early help to any great

> degree? I am already very worried after all the reading I've done

> today.

>

> Thank you so much!

>

>

>

[Guest guest]

http://www.low dose naltrexone.org/

>

> I am a physician and read briefly about LDN on Mercola.com.

>

> I have multiple autoimmune diseases: Hypothyroid, pernicious anemia,

type Ib DM.

>

> What are the best concise sources on LDN?

>

> What are experiences with type 1 DM?

>

> How many monitor objective antibody levels?

>

[Guest guest]

This is the main LDN website operated by Dr. Gluck:

http://www.low dose naltrexone.org/

Sammy Jo's site:

http://www.ldners.org/

's site:

http://ldn.proboards3.com/index.cgi

Crystal's site:

http://www.freewebs.com/crystalangel6267/index.htm

Dudley's site:

http://www.webspawner.com/users/introtoldn/index.html

Art

---

>

> I am a physician and read briefly about LDN on Mercola.com.

>

> I have multiple autoimmune diseases: Hypothyroid, pernicious

anemia, type Ib DM.

>

> What are the best concise sources on LDN?

>

> What are experiences with type 1 DM?

>

> How many monitor objective antibody levels?

>

[Guest guest]

>

> I am a physician and read briefly about LDN on Mercola.com.

>

> I have multiple autoimmune diseases: Hypothyroid, pernicious anemia,

type Ib DM.

>

> What are the best concise sources on LDN?

>

> What are experiences with type 1 DM?

>

> How many monitor objective antibody levels?

===========

Can someone provide the phone contact for Dr. Bihari for this doctor.

I think he could get best answers from Bihari.

[Guest guest]

BERNARD BIHARI, M.D.

139 East 33rd Street, #10K

New York, NY 10016

(212) 929-4196

> >

> > I am a physician and read briefly about LDN on Mercola.com.

> >

> > I have multiple autoimmune diseases: Hypothyroid, pernicious

anemia,

> type Ib DM.

> >

> > What are the best concise sources on LDN?

> >

> > What are experiences with type 1 DM?

> >

> > How many monitor objective antibody levels?

> ===========

> Can someone provide the phone contact for Dr. Bihari for this

doctor.

> I think he could get best answers from Bihari.

>

[Guest guest]

I emailed him Dr Bihari's contact information.

May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....No Relapses.....Crystal's MS,TM & LDN Websitehttp://www.freewebs.com/crystalangel6267/index.htm LDN Website http://ww.ldninfo.org/Crystal's LDN Support GroupLDN_Users/

LDN MySpace

http://www.myspace.com/low dose naltrexone

Cris - Case Health - Health Success Storieshttp://casehealth.com/case/about.html

Crystal's LDN Gift Shophttp://www.cafepress.com/crystalldngifts Skip's Compounding Pharmacyhttp://www.skipspharmacy.com/

From: Bren <TwisterAlley2@...>low dose naltrexone Sent: Tuesday, January 20, 2009 3:35:28 PMSubject: [low dose naltrexone] Re: New with questions

>> I am a physician and read briefly about LDN on Mercola.com. > > I have multiple autoimmune diseases: Hypothyroid, pernicious anemia, type Ib DM.> > What are the best concise sources on LDN? > > What are experiences with type 1 DM?> > How many monitor objective antibody levels?===========Can someone provide the phone contact for Dr. Bihari for this doctor. I think he could get best answers from Bihari.

[Guest guest]

Did you save the hair from his first haircut by any chance?  That's what we

mailed in.

From: karicreehan <karicreehan@...>

Subject: [ ] new with questions

Date: Wednesday, January 28, 2009, 5:27 PM

I got the following from the Doctor's Data website:

Toxic elements may be 200-300 times more highly concentrated in hair

than in blood or urine. Therefore, hair is the tissue of choice for

detection of recent exposure to elements such as arsenic, aluminum,

cadmium, lead, antimony, and mercury. The CDC acknowledges the value

of hair mercury levels as a maternal and infant marker for exposure to

neurotoxic methylmercury from fish.

It says hair is the tissue of choice for detection of RECENT exposure

to ...

how recent are we talking here? My son is 6 1/2...his porphyrin test

showed " discreet " levels of mercury. his arsenic was a little

elevated. We haven't given a vaccine for quite some time now...if he

suffered vaccine damage as an infant, would that still show up in a

hair sample?

thanks!

Kari

[Guest guest]

I don't know about how recent, but mercury showing up in hair means the body

is excreting it. If no mercury shows up in the hair test, you have to do the

counting rule on the essential elements to determine mercury toxicity.

My 4yo had higher mercury level in the hair, and he did consume seafood

almost weekly. We completely eliminated it, and I might do another hair test

in several months to see if it made any significant difference. He has mild

sensory processing disorder and candida overgrowth that attributes to his

behavioral problems. He's also a poor sleeper.

On Wed, Jan 28, 2009 at 8:30 PM, Elyse <ecrocks23@...> wrote:

> Did you save the hair from his first haircut by any chance? That's what we

> mailed in.

>

>

>

> From: karicreehan <karicreehan@...>

> Subject: [ ] new with questions

>

> Date: Wednesday, January 28, 2009, 5:27 PM

>

>

>

>

>

>

> I got the following from the Doctor's Data website:

>

> Toxic elements may be 200-300 times more highly concentrated in hair

> than in blood or urine. Therefore, hair is the tissue of choice for

> detection of recent exposure to elements such as arsenic, aluminum,

> cadmium, lead, antimony, and mercury. The CDC acknowledges the value

> of hair mercury levels as a maternal and infant marker for exposure to

> neurotoxic methylmercury from fish.

>

> It says hair is the tissue of choice for detection of RECENT exposure

> to ...

>

> how recent are we talking here? My son is 6 1/2...his porphyrin test

> showed " discreet " levels of mercury. his arsenic was a little

> elevated. We haven't given a vaccine for quite some time now...if he

> suffered vaccine damage as an infant, would that still show up in a

> hair sample?

>

> thanks!

> Kari

>

>

>

[Guest guest]

You need to apply counting rules to look for disordered mineral transport which

indicates mercury toxicity.

S S

new with questions

Posted by: " karicreehan " karicreehan@... karicreehan

Wed Jan 28, 2009 5:27 pm (PST)

I got the following from the Doctor's Data website:

Toxic elements may be 200-300 times more highly concentrated in hair

than in blood or urine. Therefore, hair is the tissue of choice for

detection of recent exposure to elements such as arsenic, aluminum,

cadmium, lead, antimony, and mercury. The CDC acknowledges the value

of hair mercury levels as a maternal and infant marker for exposure to

neurotoxic methylmercury from fish.

It says hair is the tissue of choice for detection of RECENT exposure

to ...

how recent are we talking here? My son is 6 1/2...his porphyrin test

showed " discreet " levels of mercury. his arsenic was a little

elevated. We haven't given a vaccine for quite some time now...if he

suffered vaccine damage as an infant, would that still show up in a

hair sample?

thanks!

Kari

------------------------------------------------------------

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[Guest guest]

Iodine is used by every gland and mucosal lining in the body. You can read more in Dr. Brownstein's book on Iodine - www.drbrownstein.com (offering 10% off full order less shipping til the end of March) or on my website www.naturalthyroidchoices.com or www.optimox.com

Your doctor is wrong. You do need iodine even w/o a thyroid.

New with questions

Hi,I recently joined and have been doing a lot of reading. I had a subtotal thyroidectomy in '04 and have just felt wrong ever since. My thyroid was removed for goiter and nodules -- I only wish I had known enough to say no to the surgery at that time.I tried Lugol's about a month ago, just one drop per day and felt better immediately. It gave me an energy that I haven't felt since before the surgery.My question -- my doctor keeps telling me that I don't need iodine without a thyroid, but the iodine is obviously helping me. I tried not taking my single drop today and I was back to feeling weak and listless. How does iodine help someone like me if it is only used by the thyroid? If someone could refer me to a good source that explains that, I'd really appreciate it.Also, how should I proceed? I haven't done any testing, just the one drop of Lugol's per day. I am afraid of taking high amounts because I'm one of those people who is really sensitive to stuff and I don't ever seem to need a lot of anything. Is it necessary to take a high amount?Any advice would be appreciated!

[Guest guest]

The reason they suggest 50 mg of iodoral and more is becausemost of these folks have high levels of bromide in their bodies which takesyears to detox by taking iodine. They say it takes as many months to get well, asyears you've been sick. Plus it takes a while to fully saturate your body with iodine.Then you s/be on it for life because we are constantly being bombarded w/toxins(although once detoxed you take a lower dose.)I had severe detox symptoms at 50 mg, like headaches, so I slowlyworked my way up from 12.5 mg to 37.5, & will eventually go to 50mg.(Over a year's time). But I have Hypothyroidism. If I had cancer I definitelywould start at 50mg, & do the salt loading protocol a couple of times per day(I do it now about once per day),to alleviate the symptoms. As well as a regular liver detox.Hope that helps.AliOn Mar 11, 2009, at 1:51 PM, xandbar@... wrote:Hi,I recently joined and have been doing a lot of reading. I had a subtotal thyroidectomy in '04 and have just felt wrong ever since. My thyroid was removed for goiter and nodules -- I only wish I had known enough to say no to the surgery at that time.I tried Lugol's about a month ago, just one drop per day and felt better immediately. It gave me an energy that I haven't felt since before the surgery.My question -- my doctor keeps telling me that I don't need iodine without a thyroid, but the iodine is obviously helping me. I tried not taking my single drop today and I was back to feeling weak and listless. How does iodine help someone like me if it is only used by the thyroid? If someone could refer me to a good source that explains that, I'd really appreciate it.Also, how should I proceed? I haven't done any testing, just the one drop of Lugol's per day. I am afraid of taking high amounts because I'm one of those people who is really sensitive to stuff and I don't ever seem to need a lot of anything. Is it necessary to take a high amount?Any advice would be appreciated!

[Guest guest]

Hi Ali:

I've been taking 37.5 mg of Iodoral for about 6 wks and developed horrible mule-kick headaches. I lowered the dosage yet they persisted. I stopped taking it altogether and my headaches have mostly disappeared. Should I start again with 7.5 and then slowly up the dosage?

~Amber

-------Original Message-------

I had severe detox symptoms at 50 mg, like headaches, so I slowly

worked my way up from 12.5 mg to 37.5, & will eventually go to 50mg.

(Over a year's time). But I have Hypothyroidism. If I had cancer I definitely

would start at 50mg, & do the salt loading protocol a couple of times per day

(I do it now about once per day),

to alleviate the symptoms. As well as a regular liver detox.

Hope that helps.

Ali

..

[Guest guest]

Were you doing the salt?

Steph

Re: New with questions

Hi Ali:

I've been taking 37.5 mg of Iodoral for about 6 wks and developed horrible mule-kick headaches. I lowered the dosage yet they persisted. I stopped taking it altogether and my headaches have mostly disappeared. Should I start again with 7.5 and then slowly up the dosage?

~Amber

-------Original Message-------

I had severe detox symptoms at 50 mg, like headaches, so I slowly

worked my way up from 12.5 mg to 37.5, & will eventually go to 50mg.

(Over a year's time). But I have Hypothyroidism. If I had cancer I definitely

would start at 50mg, & do the salt loading protocol a couple of times per day

(I do it now about once per day),

to alleviate the symptoms. As well as a regular liver detox.

Hope that helps.

Ali

..

[Guest guest]

>

> The reason they suggest 50 mg of iodoral and more is because

> most of these folks have high levels of bromide in their bodies which

> takes

> years to detox by taking iodine. They say it takes as many months to

> get well, as

> years you've been sick. Plus it takes a while to fully saturate your

> body with iodine.

> Then you s/be on it for life because we are constantly being bombarded

> w/toxins

> (although once detoxed you take a lower dose.)

>

> I had severe detox symptoms at 50 mg, like headaches, so I slowly

> worked my way up from 12.5 mg to 37.5, & will eventually go to 50mg.

> (Over a year's time). But I have Hypothyroidism. If I had cancer I

> definitely

> would start at 50mg, & do the salt loading protocol a couple of times

> per day

> (I do it now about once per day),

> to alleviate the symptoms. As well as a regular liver detox.

> Hope that helps.

> Ali

Thanks Ali! That is helpful information for me. I get headaches easily because

of a venous malformation in my brain so I always have to be careful with die off

symptoms and take it slowly. I think I will do it like you and just ease my way

up.

I think I need to read the recommended book too so I understand all this better.

[Guest guest]

I was not using salt Steph. Can you explain how much to use and how?

~Amber

-------Original Message-------

From: ladybugsandbees

Were you doing the salt?

Steph

..

[Guest guest]

At the very basic level you make sure you get 1/2-3/4 tsp of unrefined salt (celtic, Himalayan, redmonds) per day. The chloride in the salt binds to the bromide in the blood stream and carries it out of the body. When you experience detox symptoms like headaches or joint pain for instance just take 1/2 tsp in water - it is described on my website http://www.naturalthyroidchoices.com/SaltAdrenal.html

Re: New with questions

I was not using salt Steph. Can you explain how much to use and how?

~Amber

-------Original Message-------

From: ladybugsandbees

Were you doing the salt?

Steph

..

[Guest guest]

I can't reply to all of your questions but just to 1 and 2:

1. There are (at least here in Germany) several (4 or 5) cases of people

(Including myself) diagnosed with Conn's first without being continuelly

hypertensive and hypokalemic. In all of those cases known to me people were

ultimately diagnosed with nothing even if their blood clearly shows Primary

Hyperaldosteronism. The exclusion was done via Fludrocortison-surpression

test - so be sure you get that. The doctos here don't know where exactly

those high aldosterone (and often low renin) cases come from, but they tell

me every time it's neither the adrenal glands nor some kind of secondary

hyperaldosteronism, as beside the endocrinologic hypes I'm completely

healthy. My doc tells me, he'll keep thinking about it, but as the

Pseudo-Conn's are even less than the Conn's, I shouldn't hope for a quick

solution.

2. I do sufer from temporary increases of blood pressure and quite often

from potassium decreases. For the blood pressure I try to keep my natrium in

check and do more exercise again, even if it's hard. went up from 100/60 to

125/85, but Sometimes I go up to 160/110 for a short time and to 140/90 even

for some hours. NOthing compared to the " real Conn's " , but it's quite

exhausting if you're used to 100/60.

For the potassium I just keep nutrient supply on hand whereever I go and Eat

loaads of potasium rich fruit and veggies. It might be a more psychological

thing though, because I also have Magnesium problems and my potassium is

fine in 75% of the blood/urine tests.

Can't say much for the rest and I really am a weird case, but your questions

just striked on me, so I thought about telling what I got to know during the

past few months - even if it is all very confusing.

But as for me, I'm pretty fine again after a 6 months period of just running

from doc to doc to hospital and hospital. I'll never be completely healthy

again and I'll probably won't get a good diagnosis for years or even never,

as I'm a weird case in just everything but I can walk, work, live again - so

everything is managable. And sometimes you just have to accept not being

normal - so try everything you can get medicinally, but if you can't go

further, just find your own solutions.

Good luck

Eva

2009/3/20 cwguin <cwguin@...>

> Am new. Only have a few questions at this time. Declined Dr. Grim's

> consultation fee, so would like to ask group my few general questions.

> Appreciative of replies -

>

> 1. Can someone have apparent clinical evidence of Conn's/primary

> hyperaldosteronism without being symptomatically hypertensive or

> hypokalemic?

>

> 2. Can periodic, temporary slight to moderate increases in blood pressure

> and/or decreases in potassium be attributed to Conn's/primary

> hyperaldosteronism?

>

> 3. Is anxiety a symptom of Conn's/hyperaldosteronism? If so, how is it

> experienced and mamaged?

>

> 4. What are the " personality changes " sometimes mentioned in literature

> associated with Conn's/hyperaldosteronism? How are they experienced and

> managed?

>

> 5. Can Conn's/primary hyperaldosteronism be sufficiently managed by diet

> and life style modifications alone?

>

> 5. Any recommendations of doctor's/medical facilities on the East Coast of

> the USA sufficient for diagnosing/treating adrenal disorders?

>

> Ahead of time - thanks for your time and consideration

>

>

>

[Guest guest]

On Mar 20, 2009, at 10:27 AM, cwguin wrote:

> Am new. Only have a few questions at this time. Declined Dr. Grim's

> consultation fee, so would like to ask group my few general

> questions. Appreciative of replies -

>

> 1. Can someone have apparent clinical evidence of Conn's/primary

> hyperaldosteronism without being symptomatically hypertensive or

> hypokalemic?

>

> Yes

> 2. Can periodic, temporary slight to moderate increases in blood

> pressure and/or decreases in potassium be attributed to Conn's/

> primary hyperaldosteronism?

> Yes

>

> 3. Is anxiety a symptom of Conn's/hyperaldosteronism? If so, how is

> it experienced and mamaged?

>

> Seems to be a common symptom in our group.

>

>

> 4. What are the " personality changes " sometimes mentioned in

> literature associated with Conn's/hyperaldosteronism? How are they

> experienced and managed?

>

>

> Low K

>

> 5. Can Conn's/primary hyperaldosteronism be sufficiently managed by

> diet and life style modifications alone?

>

> Yes

>

> DASH

>

>

> 5. Any recommendations of doctor's/medical facilities on the East

> Coast of the USA sufficient for diagnosing/treating adrenal disorders?

>

>

> Well the east coast is a big place.

>

> Ahead of time - thanks for your time and consideration

>

>

>

[Guest guest]

See my notes below:

On Mar 20, 2009, at 10:27 AM, cwguin wrote:

> Am new. Only have a few questions at this time. Declined Dr. Grim's

> consultation fee, so would like to ask group my few general

> questions. Appreciative of replies -

>

> 1. Can someone have apparent clinical evidence of Conn's/primary

> hyperaldosteronism without being symptomatically hypertensive or

> hypokalemic?

>

> 2. Can periodic, temporary slight to moderate increases in blood

> pressure and/or decreases in potassium be attributed to Conn's/

> primary hyperaldosteronism?

>

> 3. Is anxiety a symptom of Conn's/hyperaldosteronism? If so, how is

> it experienced and mamaged?

>

> 4. What are the " personality changes " sometimes mentioned in

> literature associated with Conn's/hyperaldosteronism? How are they

> experienced and managed?

>

> 5. Can Conn's/primary hyperaldosteronism be sufficiently managed by

> diet and life style modifications alone?

>

> 5. Any recommendations of doctor's/medical facilities on the East

> Coast of the USA sufficient for diagnosing/treating adrenal disorders?

>

> Ahead of time - thanks for your time and consideration

>

>

>

Welcome

1. Read my article in our files on the evolution of PA and take to

all members of health care team. Tell us what stage you believe you

are in.

2. Read our Conn's stories files and then give us your own in as

much detail as you can.

3. Get the DASH diet book by T. et al, read it and use it. $8

in paperback at your local bookstore.

4. Go to familyhistory.hhs.gov and do your detailed family medical

history so we can review with you to help Dx familial causes of high

blood pressure and heart disease.

CE Grim BS, MS, MD

Clinical Professor of Medicine at the Medical College of Wisconsin.

Specializing in difficult to treat high blood pressure and Conn's

Syndrome.