Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha- I am so glad Karter seems to be doing better with his sores. I hope it keeps up. As for you and your hubby. I am so sorry for the bad news. I can only imagine the pain and saddness you feel, and I am sure it in no way compares to what you are feeling inside. I hope you find a trial that he feels good about participating in. Prayer is a wonderful and powerful thing, and I will keep your husband and your entire family in my prayers. 18 months bcf Yarolim wrote: Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 You and your family will be in my prayers, Tabitha. Carol update Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha- I'm so sorry to hear the prognosis. I pray that you will be able to find a clinical trial that will help him out and make him the most comfortable. Jenn > > Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. > > Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. > > Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. > > Tabitha > Brittanie 6 > Karter 22 months blcf > > > --------------------------------- > Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha, Sending prayers & love your way. Please let us know if there's anything we can help with from a distance. Kim Yarolim wrote: Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha, I am so sorry to hear of your husband's diagnosis. Cancer is a terrible thing. I will keep your whole family in my prayers. Jenni Yarolim wrote:Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha - You have our prayers.... Reid Jenni Cypher wrote: Tabitha, I am so sorry to hear of your husband's diagnosis. Cancer is a terrible thing. I will keep your whole family in my prayers. Jenni Yarolim wrote:Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha- thanks for the update! we have been thinking about you and your family. I am so sorry to hear about the prognosis. Know that your family is still and will be in our thoughts and prayers. Please let usknow if there is anything we can do to help! kathleen mom to david bcf fab 12/7 > > Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. > > Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. > > Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. > > Tabitha > Brittanie 6 > Karter 22 months blcf > > > --------------------------------- > Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha, I only joined a few months ago so don't know you, or anyone here, very well. I've followed all the posts including yours and I just want you to know that my prayers are with you and your family. Blessings, and -J'nee, bcf, born 01.7.06, DBB 23/7 > > Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. > > Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. > > Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. > > Tabitha > Brittanie 6 > Karter 22 months blcf > > > --------------------------------- > Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha, I am so sorry to hear your news. My family will keep yours in our prayers. There are new trials coming out all the time, so hopefully he can get into one of those. - Michele 5/18/02 and Maddie 9/6/05 bcf Yarolim wrote: Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Oh Tabitha, I " m so sorry to hear about your husband. Miracles happen and I hope you receive one. Joyce > Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. > > Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. > > Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. > > Tabitha > Brittanie 6 > Karter 22 months blcf > > > --------------------------------- > Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha, , Brittanie and Karter you are all very much in our thoughts and I wish you all the strength and love to deal with the difficult times both now and ahead. Kathy:) Yarolim wrote: Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Tabitha, You and your family are in our thoughts and prayers. Stacey > > Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. > > Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. > > Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. > > Tabitha > Brittanie 6 > Karter 22 months blcf > > > --------------------------------- > Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 My thoughts and prayers are with you and your family. Please know that I think of you when I pray. Would you like this posted to a prayer loop? Anne Huff > > Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. > > Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. > > Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. > > Tabitha > Brittanie 6 > Karter 22 months blcf > > > --------------------------------- > Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 Oh Tabitha, my heart goes out to you guys. It's so strange how you get to know people on here without ever seeing them and you feel like you're part of one big family. I know this is a crazy time for you all, but I'm just going to tell you what I would do - fight this cancer with all you've got. Be aggressive with the treatment, try new treatment options, etc. At least you'll know you gave it your all. I hope you don't get offended by my comment. I had a family member pass away from a cancer that seems to me (and later to everyone else) was left to its own accord. After the fact, everyone kept saying, " oh, we should have tried this, or we should have tried that " . I know many times it's out of our hands, but we always feel better when we know we tried. We'll continue to keep you guys in our prayers. Hugs to all of you. Yarolim wrote: Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. Tabitha Brittanie 6 Karter 22 months blcf --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 Yipeee! ee Mother of 3 Clubfooted Sons: - Bilateral Club Feet April 1998 Everett - Bilateral Club Feet September 2003 Garrison - Bilateral Club Feet March 2006 Visit us on the Web! www.WildlifeRevivalTaxidermy.com update Lily saw Dr. Ponseti yesterday and her time in the s was reduced to 16 hours. I was shocked and joyful! We went from 2 hours out to 8 hours out! Lily's feet are still slightly curved--her interior tendon is still stronger than her exterior tendon but Dr. P believes that will correct itself by her next visit through walking. He enoucraged me to continue to have some of her time standing as it is very good for her and to encourage her to get behind a walker. So good news for us! I think I will go get some Robeez for her today! ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.10.0/388 - Release Date: 7/13/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 Great news !! Have fun shoe shopping!!! & Grace > > Lily saw Dr. Ponseti yesterday and her time in the s was > reduced to 16 hours. I was shocked and joyful! We went from 2 hours > out to 8 hours out! Lily's feet are still slightly curved--her > interior tendon is still stronger than her exterior tendon but Dr. P > believes that will correct itself by her next visit through walking. > He enoucraged me to continue to have some of her time standing > as it is very good for her and to encourage her to get behind a > walker. So good news for us! I think I will go get some Robeez for > her today! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 Tabitha, I am so sorry to hear about your husband. I will keep him in my prayers. We all know God is able to do anything. Keep up the fight. Nan mother of Jaiden 6.5months blcf > > Well lets start with Karter's sores. They seem to be gone with the thicker gel pads that has sent us. That or my mother has the magic touch. He still gets very red when you first take him out of the shoes, but it goes away during the day. No dark red spots or open sores for 2 weeks. This is wonderful. I notice he gets the open sores when we have to go to the next hole in the straps, so if we can use the gel pads to pad it when we have to move that it will take care of the problem. We are keeping our fingers crossed. > > Well on to the hubby. We got some not so good news on his brain tumor. It is stage 4 cancer. It has also spread to the lining of the brain and spinal fluid. The type he has is incurable. They say he has maybe one year to live. We found this out Sat. and it is still processing in my head that my husband will not grow old with me. He will be starting chemo and radiation a week from Thursday. This they tell us will slow down the growth, but not stop it. Just prolong his life and releave the symptoms. We are ready to fight this thing and have looked into clinical trails that he might be able to do. I understand everything they are telling us in my brain, but it hurts and doesn't make sense in my heart. I have known my husband since I was 9 and am almost 27. Just all seems crazy. > > Thanks for everyone that has supported us and please wish us luck on this new journey we will be starting. > > Tabitha > Brittanie 6 > Karter 22 months blcf > > > --------------------------------- > Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 God's Blessings on all of you! MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there! From: Beth Sent: Wednesday, January 06, 2010 12:50 PM To: Breathe-Support Subject: update Hi all, First of all thank you to everyone for the love and prayers today. It's been a long long day. The biopsy is finally done and the surgeons are closing as I write this. Once they are finished will go to the ICU. It will be an hour and a half or so before my brother and sister in law get to speak to the doctor as they stick close to until she's awake and stable in the ICU. So that's all the info I have at the moment. I will post more as soon as I know more. Thanks again to everyone for everything! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.725 / Virus Database: 270.14.127/2603 - Release Date: 01/05/10 23:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 God's Blessings on all of you! MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there! From: Beth Sent: Wednesday, January 06, 2010 12:50 PM To: Breathe-Support Subject: update Hi all, First of all thank you to everyone for the love and prayers today. It's been a long long day. The biopsy is finally done and the surgeons are closing as I write this. Once they are finished will go to the ICU. It will be an hour and a half or so before my brother and sister in law get to speak to the doctor as they stick close to until she's awake and stable in the ICU. So that's all the info I have at the moment. I will post more as soon as I know more. Thanks again to everyone for everything! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.725 / Virus Database: 270.14.127/2603 - Release Date: 01/05/10 23:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 glad the surgery is over now the wait for recovery, and results starts i know you will keep us informed reading about sick kids brings tears to my eyes Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: updateTo: Breathe-Support Date: Wednesday, January 6, 2010, 3:50 PM Hi all, First of all thank you to everyone for the love and prayers today. It's been a long long day. The biopsy is finally done and the surgeons are closing as I write this. Once they are finished will go to the ICU. It will be an hour and a half or so before my brother and sister in law get to speak to the doctor as they stick close to until she's awake and stable in the ICU. So that's all the info I have at the moment. I will post more as soon as I know more. Thanks again to everyone for everything! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Wish a speedy recovery. Gale To: Breathe-Support Sent: Wed, January 6, 2010 2:50:28 PMSubject: update Hi all, First of all thank you to everyone for the love and prayers today. It's been a long long day. The biopsy is finally done and the surgeons are closing as I write this. Once they are finished will go to the ICU. It will be an hour and a half or so before my brother and sister in law get to speak to the doctor as they stick close to until she's awake and stable in the ICU. So that's all the info I have at the moment. I will post more as soon as I know more. Thanks again to everyone for everything! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Hey, Beth,Thoughts and prayers for you and yours. Hope recovery is uneventful for all. Sorry for the delay, have not been on for awhile. Take care of yourself.Later,IPF/NSIP 08 NCSubject: updateTo: Breathe-Support Date: Wednesday, January 6, 2010, 3:50 PM Hi all, First of all thank you to everyone for the love and prayers today. It's been a long long day. The biopsy is finally done and the surgeons are closing as I write this. Once they are finished will go to the ICU. It will be an hour and a half or so before my brother and sister in law get to speak to the doctor as they stick close to until she's awake and stable in the ICU. So that's all the info I have at the moment. I will post more as soon as I know more. Thanks again to everyone for everything! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2010 Report Share Posted May 27, 2010 Hey, , what is an EGD? Where were the ulcers? Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis CC: NSMods From: topdat1@...Date: Thu, 27 May 2010 11:13:12 -0500Subject: Update Hey guys, just wanted to let you all know that I've been in the hospital again.. about 3 weeks ago I had a colonoscopy and a EGD ran, I had a couple of polpys removed but everything else seemed normal.. however, I was having horrible pain in my upper R abdomen, I was swollen, sore to the touch, couldn't move,it hurt so bad.. still I was sent home, they thought it was just a gas bubble and that it would all just go away..anyway, 2 weeks later it hadn't gone away but I tried my best to make it go away..with suppositories, laxatives etc.. Mother's day I started passing blood through the bowels, (sorry for the TMI) so I went to see my regular physician she was pretty excited when she found that it was blood, she talked my GI into scoping me again this time he found 2 bleeding ulcers he said that they were huge. He told me to go home and if I started having problems to come back and he would admit me.. Well wouldn't you know that when I woke up Saturday morning I couldn't stand up straight, everytime I tried I'd black out.. So back to the hospital I go for 3 days.. but they did get the bleeding to stop. I've had a lot of pain and soreness in my Right side, but its slowly getting better.. I still have shakes, chills.. I go see my pcp tomorrow.. and I'm not even in a ranting mode.. haha Anyway, glad to be home.. To all of you guys, take care of yourselves.. Tracie, honey that means you too! Hugs, teresa NS Moderator The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Thanks...Now i begin the insurance fight. It never seems to end. Take carematt From: tracie feldhaus <tiodaat2001@ yahoo.com>Subject: Re: UpdateTo: Neurosarcoidosis@ yahoogroups. comDate: Thursday, June 3, 2010, 8:41 PM Matt, You so amaze me-- while you are having to walk in the fire of 's illness, you hold us in prayer! My friend-- thank you- we are all humbled. Where is Lehigh and Good Shephard Rehab-- I know many of our members would love to send a card or note-- Please get with the facilities social worker so that you can find out how to get the needed in home caregiver she needs. They should be able to help you co-ordinate this-- and guide you through the channels so that even if your insurance won't cover this-- that you can still make it happen without bankrupting yourself. My heart goes out to you, and again-- thank you for your graciousness. Tracie NS Co-owner/moderator From: D. <dmatt1960 (AT) yahoo (DOT) com>To: Neuro Sarc <Neurosarcoidosis@ yahoogroups. com>Sent: Thu, June 3, 2010 4:32:43 PM Subject: Update Been off line for several days while I have dealt with the issues stemming from 's illness. On Sat she had a seizure and in an attempt to get out of bed she fell face first into our heavy dresser in the bedroom. Needless to say she broke her nose and badly bruised her face. (She looked like a victim of domestic violence) She was sent to Lehigh Valley Hospital and remained there until yesterday when they sent her to The Good Shepherd Rehab facility. She will be there most likely for a couple weeks. Then I am not sure what they will do. In reality she needs at home care, and I am not sure the insurance comapny will honor it. I am trying to remain positive in the face of it all. I hope that everyone else in the group is doing as well as they can. I will continue to keep you all in my prayers. Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Thank you for your inputs ....I just don't know how to educate my doctors if they don't listen. I had one that blew me off as it is all in my head and most say "its not sarc"... I finally get a doctor who trained under the doctor in Southern California Um or ohm can't recall and so he is very knowledgable, and the only one to treat all my medical issues but is now leaving and moving to Texas To: Neurosarcoidosis Sent: Wed, June 9, 2010 8:53:35 PMSubject: Re: Update My MRI showed NO Sarc too. However, my Neurologist, said that the granulomas are so small, they don't always show up, and he pointed out where he believes I have the granulomas due to my symptoms, in the base of the brain and all down the spine. Also like Tracie said earlier, it could be vasculitis related to the Sarc. The hardest part of this Disease is it doesn't scream "Sarcodosis". Just because it's neg. does not mean it's not there. My Neurologist completely believes I have NeuroSarcodosis. So don't be down, just educate your docs., that's what many of us have had to do. Hang in there. Marla On Wed, Jun 9, 2010 at 5:47 PM, <dvoegele (AT) verizon (DOT) net> wrote: Had mri done. I have stenosis L4-S1 minor disk bulge and hemangioma throughout my thoracic spine. No sarc however. Sent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
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