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Posted

..........that doctors are a total waste of energy, time, and mind. Argh....I

know I've finally learned my lesson, once and for all to stay away from them.

So, yesterday was 's Allergist appointment. What a waste of time. This

doctor....young girl probably no older than 30....was condescending, and all she

wanted to do was load him up on meds. I explained multiple times that he does

not do well on medications, because they change his behavior, and that behavior

is his worst nightmare with being autistic....not to mention our past nightmare

experience with medications and my mind set against medicating. She proceeds to

hand me three scrips for; Singular, Hydroxyzine and Zyrtec. I tried to tell her

Zyrtec is worthless. He does well on Allegra, but not Zyrtec. If it ain't

broke....don't fix it!! Singular?????????? He does not have asthma....not to

mention that one of the side effects is aggressive behavior...yeah I need that!

Hydroxyzine?????? WTF.....I don't want him drugged out on that stuff! She

prescribed it for scratching in the night! He sleeps well at night. He

scratches during the day. Like I'm going to drug him for scratching! She also

wanted him to have skin tests.....get this....one needle at a time!

Ha!!!!Ha!!!Ha....I said...good luck! He's autistic.....one pin prick and it is

all over lady. You will unleash your worst nightmare in less than 30 seconds.

It would almost be worth watching, just to see the look on her face when he goes

from Dr. Jeckyl to Mr. Hyde. I asked her, " How many people you got to hold him

down?....and, " I hope you wear padded gloves, because his bite will most likely

break the skin of whoever is the unfortunate victim. " I told her I wanted blood

tests only. She poohed me on that. They aren't accurate. I'm convinced his

runny nose, and shiners are food related. She said highly unlikely. It is

probably dust mites. This shiner thing just started three months ago. My house

has had dust for years, but I'm also a very neat, tighty person. The house is

cleaned weekly. She still doesn't want to test for foods, because at his age

he's most likely outgrown food allergies. She then proceeds to tell me that I

can give him dairy and wheat, because he's probably outgrown his allergy! I'm

like, I don't think so! I told her he vomits when he eats dairy. She felt it

was impossible that dairy would do that to him.

Ok, so to make a long story short, she got the distinct impression I was not

pleased. She ended our session by saying, " Well, if you decide you want

testing, call our office back, but I get the impression this is not the avenue

you wish to pursue. "

So, here I am....back to the only place I ever get help....you guys and myself.

I guess I have finally learned that the medical community will never understand,

and us parents will only get help from a very select group of medical

professionals, and have to rely on ourselves to help our children best. I have

to figure out what food(s) is causing him problems. I'm not sure where to

begin, because loves all foods. He's a hearty eater, and does not have a

limited diet. He in general....loves to eat.

Suggestions are welcome, and I'm glad to be back in the " real " world.

God........to think I was 2-1/2 years into my schooling to become an RN when

was diagnosed, and I quit to stay home with him. Thank god, I'm not one of

those medical psycho's who do not get the big picture, and forget they are

suppose to help people, not just collect money.

a - Peoria IL

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Posted

>>I told her I wanted blood tests only. She poohed me on that. They

aren't accurate. I'm convinced his runny nose, and shiners are food

related. She said highly unlikely. It is probably dust mites. This

shiner thing just started three months ago. My house has had dust for

years, but I'm also a very neat, tighty person. The house is cleaned

weekly. She still doesn't want to test for foods, because at his age

he's most likely outgrown food allergies. She then proceeds to tell

me that I can give him dairy and wheat, because he's probably outgrown

his allergy! I'm like, I don't think so! I told her he vomits when

he eats dairy. She felt it was impossible that dairy would do that to

him.

My SIL was having major coughing spells, so violent they would make

her throw up. I told her that when I had those spells, it was related

to foods. She said her doctor told her it was an environmental

allergy. None of the allergy medications they gave her were working.

So she chose to have surgery to reduce inflammation in her throat

area. The surgery caused her to lose most of her sense of taste, and

she was still having coughing spells, altho they were somewhat less

violent. But still she would throw up sometimes.

Turns out, she ate a salad almost every day, and she discovered she

was coughing because of the lettuce. So now she believes me that it

is food related.

My SIL is over 40 years old, and she NEVER had this problem until

recently. The doctor STILL does not believe her.

>>I have to figure out what food(s) is causing him problems. I'm not

sure where to begin, because loves all foods. He's a hearty

eater, and does not have a limited diet. He in general....loves to eat.

My son ate a LOT of food, and was not picky, and it turns out he did

not tolerate any foods.

Do you use enzymes? HNI enzymes were wonderful for my son. He still

did not tolerate certain foods [rice, corn, lutein/carotene,

artificials], but the enzymes addressed most of them. Then ALA

chelation plus in my opinion the enzymes and B6, healed his gut and

now he can eat anything he wants, even without enzymes.

Dana

Posted

>>>>>>Turns out, she ate a salad almost every day, and she discovered she was

coughing because of the lettuce. So now she believes me that it is food

related.>>>>>>>>

Oh don't I know. I had ate corn products for years. Somewhere around the age

of 28 I began having horrible stomach pains and I would end up vomiting. I

finally figured out it was after eating a corn product. I still can not eat

anything that has a high amount of corn in it. Trace amounts don't bother me,

but anything more does.

My SIL is over 40 years old, and she NEVER had this problem until

recently. The doctor STILL does not believe her.

>>>>>>>>Do you use enzymes? HNI enzymes were wonderful for my son. He still

did not tolerate certain foods [rice, corn, lutein/carotene,

artificials], but the enzymes addressed most of them. Then ALA

chelation plus in my opinion the enzymes and B6, healed his gut and

now he can eat anything he wants, even without enzymes.>>>>>>>

Well, we tried it a couple of years back and he became too hyper on the enzyme.

However, B6 a few years ago made him hyper, but now he tolerates B6. I'll have

to order the HNI and give it a shot. It probably is a good starting point.

Thanks!

a

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Posted

a,

My daughter is allergic to peanuts and legumes. We didn't figure that

out until she was about 8 years old. The peanut and soya allergies

were confirmed by blood tests.

She has always had a chronic stuffy nose. Recently I started to

wonder about foods again. We picked out the foods that were suspect

and took samples to a naturopath/ homeopath. This guy is a wizard. I

don't expect that they are all as good. He tested the foods on her

with pulse testing (he feels her pulse and then feels if the pulse

goes faster when the food is touched to her). He determined that she

reacted to eggs, cheese. Since we took these out of her diet her

stuffy nose has been so so much better. She doesn't get sick as often

and the sicknesses don't go on and on and on like they used to.

Skin prick tests are absolutely useless for food allergies.

Another way to test is to avoid the food completely and absolutely,

including trace amounts, for 4 days and then on the fifth day eat as

much of the food as is possible and then note any changes in how the

person feels. I actually used this method to test eggs on my daughter

but I only did it once and didn't pick up on the difference. Now I

know for sure that eggs make a huge difference for her.

If you are already avoiding wheat and dairy there aren't too many

things to test - eggs, corn, nuts, legumes, seafood, shellfish, can

anyone think of other potent allergens??

Another clue, (from the retired allergist who helped me so much and

whose opinions were very different from the other 15 that we saw.)

Suspect the foods that the person hates and the ones that they love.

My daughter hated peanuts and legumes, and turned out to be deathly

allergic to them. She also loved eggs and cheese, and turned out to

be sensitive to them.

There are blood tests that you can pay for.....

My son's stuffy noses are related to an allergy to rodents. Most old

schools where we live have rodent infestations in the *fresh* air

circulation system. Learned that from the exceptional allergist too.

>

> .........that doctors are a total waste of energy, time, and mind.

Argh....I know I've finally learned my lesson, once and for all to

stay away from them.

>

> So, yesterday was 's Allergist appointment. What a waste of

time. This doctor....young girl probably no older than 30....was

condescending, and all she wanted to do was load him up on meds. I

explained multiple times that he does not do well on medications,

because they change his behavior, and that behavior is his worst

nightmare with being autistic....not to mention our past nightmare

experience with medications and my mind set against medicating. She

proceeds to hand me three scrips for; Singular, Hydroxyzine and

Zyrtec. I tried to tell her Zyrtec is worthless. He does well on

Allegra, but not Zyrtec. If it ain't broke....don't fix it!!

Singular?????????? He does not have asthma....not to mention that one

of the side effects is aggressive behavior...yeah I need that!

Hydroxyzine?????? WTF.....I don't want him drugged out on that stuff!

She prescribed it for scratching in the night! He sleeps well at

night. He scratches during the day. Like I'm going to drug him for

scratching! She also wanted him to have skin tests.....get

this....one needle at a time! Ha!!!!Ha!!!Ha....I said...good luck!

He's autistic.....one pin prick and it is all over lady. You will

unleash your worst nightmare in less than 30 seconds. It would almost

be worth watching, just to see the look on her face when he goes from

Dr. Jeckyl to Mr. Hyde. I asked her, " How many people you got to hold

him down?....and, " I hope you wear padded gloves, because his bite

will most likely break the skin of whoever is the unfortunate victim. "

I told her I wanted blood tests only. She poohed me on that. They

aren't accurate. I'm convinced his runny nose, and shiners are food

related. She said highly unlikely. It is probably dust mites. This

shiner thing just started three months ago. My house has had dust for

years, but I'm also a very neat, tighty person. The house is cleaned

weekly. She still doesn't want to test for foods, because at his age

he's most likely outgrown food allergies. She then proceeds to tell

me that I can give him dairy and wheat, because he's probably outgrown

his allergy! I'm like, I don't think so! I told her he vomits when

he eats dairy. She felt it was impossible that dairy would do that to

him.

>

> Ok, so to make a long story short, she got the distinct impression I

was not pleased. She ended our session by saying, " Well, if you

decide you want testing, call our office back, but I get the

impression this is not the avenue you wish to pursue. "

>

> So, here I am....back to the only place I ever get help....you guys

and myself. I guess I have finally learned that the medical community

will never understand, and us parents will only get help from a very

select group of medical professionals, and have to rely on ourselves

to help our children best. I have to figure out what food(s) is

causing him problems. I'm not sure where to begin, because loves

all foods. He's a hearty eater, and does not have a limited diet. He

in general....loves to eat.

>

> Suggestions are welcome, and I'm glad to be back in the " real "

world. God........to think I was 2-1/2 years into my schooling to

become an RN when was diagnosed, and I quit to stay home with

him. Thank god, I'm not one of those medical psycho's who do not get

the big picture, and forget they are suppose to help people, not just

collect money.

>

> a - Peoria IL

Posted

And, a

When my daughter was about 8 years old she hit the roof when one

allergist tested 65 things on her back (the retired allergist told me

that the test was completely useless because he pricked too hard), and

also when she had an immunization, and also when the blood was drawn

for the allergy blood test. She isn't autistic.

Trust your instincts.

>

> .........that doctors are a total waste of energy, time, and mind.

Argh....I know I've finally learned my lesson, once and for all to

stay away from them.

>

Posted

Wow. The scariest/saddest thing to me is that she is newly

trained! Is this what they teach in residency?

Run...

Pam

>

> .........that doctors are a total waste of energy, time, and

mind. Argh....I know I've finally learned my lesson, once and for

all to stay away from them.

>

> So, yesterday was 's Allergist appointment. What a waste of

time. This doctor....young girl probably no older than 30....was

condescending, and all she wanted to do was load him up on meds. I

explained multiple times that he does not do well on medications,

because they change his behavior, and that behavior is his worst

nightmare with being autistic....not to mention our past nightmare

experience with medications and my mind set against medicating. She

proceeds to hand me three scrips for; Singular, Hydroxyzine and

Zyrtec. I tried to tell her Zyrtec is worthless. He does well on

Allegra, but not Zyrtec. If it ain't broke....don't fix it!!

Singular?????????? He does not have asthma....not to mention that

one of the side effects is aggressive behavior...yeah I need that!

Hydroxyzine?????? WTF.....I don't want him drugged out on that

stuff! She prescribed it for scratching in the night! He sleeps

well at night. He scratches during the day. Like I'm going to drug

him for scratching! She also wanted him to have skin tests.....get

this....one needle at a time! Ha!!!!Ha!!!Ha....I said...good luck!

He's autistic.....one pin prick and it is all over lady. You will

unleash your worst nightmare in less than 30 seconds. It would

almost be worth watching, just to see the look on her face when he

goes from Dr. Jeckyl to Mr. Hyde. I asked her, " How many people you

got to hold him down?....and, " I hope you wear padded gloves,

because his bite will most likely break the skin of whoever is the

unfortunate victim. " I told her I wanted blood tests only. She

poohed me on that. They aren't accurate. I'm convinced his runny

nose, and shiners are food related. She said highly unlikely. It

is probably dust mites. This shiner thing just started three months

ago. My house has had dust for years, but I'm also a very neat,

tighty person. The house is cleaned weekly. She still doesn't want

to test for foods, because at his age he's most likely outgrown food

allergies. She then proceeds to tell me that I can give him dairy

and wheat, because he's probably outgrown his allergy! I'm like, I

don't think so! I told her he vomits when he eats dairy. She felt

it was impossible that dairy would do that to him.

>

> Ok, so to make a long story short, she got the distinct impression

I was not pleased. She ended our session by saying, " Well, if you

decide you want testing, call our office back, but I get the

impression this is not the avenue you wish to pursue. "

>

> So, here I am....back to the only place I ever get help....you

guys and myself. I guess I have finally learned that the medical

community will never understand, and us parents will only get help

from a very select group of medical professionals, and have to rely

on ourselves to help our children best. I have to figure out what

food(s) is causing him problems. I'm not sure where to begin,

because loves all foods. He's a hearty eater, and does not

have a limited diet. He in general....loves to eat.

>

> Suggestions are welcome, and I'm glad to be back in the " real "

world. God........to think I was 2-1/2 years into my schooling to

become an RN when was diagnosed, and I quit to stay home with

him. Thank god, I'm not one of those medical psycho's who do not

get the big picture, and forget they are suppose to help people, not

just collect money.

>

> a - Peoria IL

>

>

>

> ________________________________________________________________

> Juno Gift Certificates

> Give the gift of Internet access this holiday season.

> http://www.juno.com/give

Posted

A couple of other things to check out.

My husband is allergic to the mold that comes with processed tomato

sauces and citrus juices. He can tolerate fresh tomatoes and citrus.

He also seems to be allergic to bananas. He's ok if he avoids these

things. Can't remember how long it took me to figure that out.

I have to figure out what food(s) is causing him problems. I'm not

sure where to begin, because loves all foods.

Posted

I'm just throwing this out there. There are some foods we eat regularly, since

he is gfcf. He eats rice bread daily, and rice a few times per week. He also

eats potatoes a few days per week. For morning breakfast he eats either rice

waffles, peanut butter toast, jelly toast, or a handful of rice and/corn based

cereals. Lunch is typical....he likes sandwiches; pepperoni, turkey or peanut

butter. Dinner varies.....chicken, pork, beef, pizza, pasta. Sides are either

green beans, carrots, corn, potato or rice.

His main staples are definitely potato and rice, followed by corn based stuff.

He does not consume soy products too much, but lately he has been interested in

having cheese sandwiches for lunch. The cheese is soy based. It has not been

daily though.

He only drinks water and juice. I buy 100% berry based juice.

It would be pretty easy to test him for foods, I think. All meats, corn, rice,

potato, soy, berries, apples, beans, peanut, carrot, cucumber, tomato and green

bean, should cover the list. I can't really think of anything else he consumes,

other than garlic, onion and spices.

As far as what he hates....nothing I can think of. He's the first to try

anything. The only things he does not like are things with weird texture,

gravy, oranges or anything sour. He hates gravy, but that is a sensory thing,

more than anything. This is a kid who even tried tofu, simply out of curiosity.

a

-- " lindajaytee " <lindajaytee@...> wrote:

A couple of other things to check out.

My husband is allergic to the mold that comes with processed tomato

sauces and citrus juices. He can tolerate fresh tomatoes and citrus.

He also seems to be allergic to bananas. He's ok if he avoids these

things. Can't remember how long it took me to figure that out.

________________________________________________________________

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Give the gift of Internet access this holiday season.

http://www.juno.com/give

Posted

Sounds like potato, rice, corn and peanut are the first to test. I

remember now that when I tested my daughter for cheese she felt so

good on the four days off that she didn't want to eat any on the fifth

day. And when I tested her for egg, before the cheese, she was

probably still eating cheese so that's probably why I didn't pick up

on the egg.

What about egg? Does your son eat egg? Egg and soya are hidden in so

many things. The tomato sauce comes with the pasta and pizza.

There is something called birch tree pollen syndrome or something like

that. People who are allergic to birch tree pollen are often allergic

to apples and other foods. I can look it up if you want. Or search

" Calgary Allergy " for a good food allergy site.

>

> I'm just throwing this out there. There are some foods we eat

regularly, since he is gfcf. He eats rice bread daily, and rice a few

times per week. He also eats potatoes a few days per week. For

morning breakfast he eats either rice waffles, peanut butter toast,

jelly toast, or a handful of rice and/corn based cereals. Lunch is

typical....he likes sandwiches; pepperoni, turkey or peanut butter.

Dinner varies.....chicken, pork, beef, pizza, pasta. Sides are either

green beans, carrots, corn, potato or rice.

>

> His main staples are definitely potato and rice, followed by corn

based stuff. He does not consume soy products too much, but lately he

has been interested in having cheese sandwiches for lunch. The cheese

is soy based. It has not been daily though.

>

> He only drinks water and juice. I buy 100% berry based juice.

>

> It would be pretty easy to test him for foods, I think. All meats,

corn, rice, potato, soy, berries, apples, beans, peanut, carrot,

cucumber, tomato and green bean, should cover the list. I can't

really think of anything else he consumes, other than garlic, onion

and spices.

>

> As far as what he hates....nothing I can think of. He's the first

to try anything. The only things he does not like are things with

weird texture, gravy, oranges or anything sour. He hates gravy, but

that is a sensory thing, more than anything. This is a kid who even

tried tofu, simply out of curiosity.

>

> a

Posted

a,

How sad that you had that experience. When you stated that doctors are a total

waste, did you mean mainstream doctors or all doctors? In defense of our DAN!

dr, she has done wonders for our son. I don't think she operates like all of

these other DAN! drs either. She has a fairly large practice and has been doing

this for many years because her own child is autistic. She is very particular

about which clients she takes on because the ones she does she gives VIP

treatment to. She recently had a large right up published in Costco Magazine

(October issue) and listed all supplements and treatments including dosage

amounts. From that article she got many e-mails and phone calls and gave her

advice to parents all over the country. She said that she understood she could

not take them all on as clients, but she just wanted to get the word out there

that there were other treatment options besides medications. In addition she

helps families all over the country and the world. They are not ALL

bad.

Peace be with you,

pjand3kids <pjand3kids@...> wrote:

..........that doctors are a total waste of energy, time, and mind. Argh....I

know I've finally learned my lesson, once and for all to stay away from them.

So, yesterday was 's Allergist appointment. What a waste of time. This

doctor....young girl probably no older than 30....was condescending, and all she

wanted to do was load him up on meds. I explained multiple times that he does

not do well on medications, because they change his behavior, and that behavior

is his worst nightmare with being autistic....not to mention our past nightmare

experience with medications and my mind set against medicating. She proceeds to

hand me three scrips for; Singular, Hydroxyzine and Zyrtec. I tried to tell her

Zyrtec is worthless. He does well on Allegra, but not Zyrtec. If it ain't

broke....don't fix it!! Singular?????????? He does not have asthma....not to

mention that one of the side effects is aggressive behavior...yeah I need that!

Hydroxyzine?????? WTF.....I don't want him drugged out on that stuff! She

prescribed it for scratching in the night! He sleeps well at night. He

scratches during the day. Like I'm going to drug him

for scratching! She also wanted him to have skin tests.....get this....one

needle at a time! Ha!!!!Ha!!!Ha....I said...good luck! He's autistic.....one

pin prick and it is all over lady. You will unleash your worst nightmare in

less than 30 seconds. It would almost be worth watching, just to see the look

on her face when he goes from Dr. Jeckyl to Mr. Hyde. I asked her, " How many

people you got to hold him down?....and, " I hope you wear padded gloves, because

his bite will most likely break the skin of whoever is the unfortunate victim. "

I told her I wanted blood tests only. She poohed me on that. They aren't

accurate. I'm convinced his runny nose, and shiners are food related. She said

highly unlikely. It is probably dust mites. This shiner thing just started

three months ago. My house has had dust for years, but I'm also a very neat,

tighty person. The house is cleaned weekly. She still doesn't want to test for

foods, because at his age he's most likely outgrown

food allergies. She then proceeds to tell me that I can give him dairy and

wheat, because he's probably outgrown his allergy! I'm like, I don't think so!

I told her he vomits when he eats dairy. She felt it was impossible that dairy

would do that to him.

Ok, so to make a long story short, she got the distinct impression I was not

pleased. She ended our session by saying, " Well, if you decide you want

testing, call our office back, but I get the impression this is not the avenue

you wish to pursue. "

So, here I am....back to the only place I ever get help....you guys and myself.

I guess I have finally learned that the medical community will never understand,

and us parents will only get help from a very select group of medical

professionals, and have to rely on ourselves to help our children best. I have

to figure out what food(s) is causing him problems. I'm not sure where to

begin, because loves all foods. He's a hearty eater, and does not have a

limited diet. He in general....loves to eat.

Suggestions are welcome, and I'm glad to be back in the " real " world.

God........to think I was 2-1/2 years into my schooling to become an RN when

was diagnosed, and I quit to stay home with him. Thank god, I'm not one of

those medical psycho's who do not get the big picture, and forget they are

suppose to help people, not just collect money.

a - Peoria IL

________________________________________________________________

Juno Gift Certificates

Give the gift of Internet access this holiday season.

http://www.juno.com/give

=======================================================

Posted

I've had one, maybe two great experiences with a doctor, and I'm talking

mainstream, and one DAN doctor. Both were when I lived in Wisconsin.

a

-- Singh <michellesingh226@...> wrote:

They are not ALL bad.

________________________________________________________________

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Give the gift of Internet access this holiday season.

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Posted

I'd say he probably eats more egg than soy. I'm not a big soy person, so I try

to avoid it as much as possible. He eats a lot of foods that probably contain

egg, in small amounts, but on a daily basis.

Sure, send me the info.

a

-- " lindajaytee " <lindajaytee@...> wrote:

Sounds like potato, rice, corn and peanut are the first to test. I

remember now that when I tested my daughter for cheese she felt so

good on the four days off that she didn't want to eat any on the fifth

day. And when I tested her for egg, before the cheese, she was

probably still eating cheese so that's probably why I didn't pick up

on the egg.

What about egg? Does your son eat egg? Egg and soya are hidden in so

many things. The tomato sauce comes with the pasta and pizza.

There is something called birch tree pollen syndrome or something like

that. People who are allergic to birch tree pollen are often allergic

to apples and other foods. I can look it up if you want. Or search

" Calgary Allergy " for a good food allergy site.

>

> I'm just throwing this out there. There are some foods we eat

regularly, since he is gfcf. He eats rice bread daily, and rice a few

times per week. He also eats potatoes a few days per week. For

morning breakfast he eats either rice waffles, peanut butter toast,

jelly toast, or a handful of rice and/corn based cereals. Lunch is

typical....he likes sandwiches; pepperoni, turkey or peanut butter.

Dinner varies.....chicken, pork, beef, pizza, pasta. Sides are either

green beans, carrots, corn, potato or rice.

>

> His main staples are definitely potato and rice, followed by corn

based stuff. He does not consume soy products too much, but lately he

has been interested in having cheese sandwiches for lunch. The cheese

is soy based. It has not been daily though.

>

> He only drinks water and juice. I buy 100% berry based juice.

>

> It would be pretty easy to test him for foods, I think. All meats,

corn, rice, potato, soy, berries, apples, beans, peanut, carrot,

cucumber, tomato and green bean, should cover the list. I can't

really think of anything else he consumes, other than garlic, onion

and spices.

>

> As far as what he hates....nothing I can think of. He's the first

to try anything. The only things he does not like are things with

weird texture, gravy, oranges or anything sour. He hates gravy, but

that is a sensory thing, more than anything. This is a kid who even

tried tofu, simply out of curiosity.

>

> a

=======================================================

Posted

I do know quite a few kids who are allergic to peanut, dairy and egg -

all three in the same child. My own child fits that too. I'm mercury

poisoned and I do best on a diet that excludes all three of those plus

gluten.

will send something later

>

>

>

>

> Sounds like potato, rice, corn and peanut are the first to test. I

Posted

Some other time I'll cheer you up with a story about our gi doc

falling asleep during our appt.

a

mom to

>

> .........that doctors are a total waste of energy, time, and mind.

Argh....I know I've finally learned my lesson, once and for all to

stay away from them.

>

> So, yesterday was 's Allergist appointment. What a waste of

time. This doctor....young girl probably no older than 30....was

condescending, and all she wanted to do was load him up on meds. I

explained multiple times that he does not do well on medications,

because they change his behavior, and that behavior is his worst

nightmare with being autistic....not to mention our past nightmare

experience with medications and my mind set against medicating. She

proceeds to hand me three scrips for; Singular, Hydroxyzine and

Zyrtec. I tried to tell her Zyrtec is worthless. He does well on

Allegra, but not Zyrtec. If it ain't broke....don't fix it!!

Singular?????????? He does not have asthma....not to mention that

one of the side effects is aggressive behavior...yeah I need that!

Hydroxyzine?????? WTF.....I don't want him drugged out on that

stuff! She prescribed it for scratching in the night! He sleeps

well at night. He scratches during the day. Like I'm going to drug

him for scratching! She also wanted him to have skin tests.....get

this....one needle at a time! Ha!!!!Ha!!!Ha....I said...good luck!

He's autistic.....one pin prick and it is all over lady. You will

unleash your worst nightmare in less than 30 seconds. It would

almost be worth watching, just to see the look on her face when he

goes from Dr. Jeckyl to Mr. Hyde. I asked her, " How many people you

got to hold him down?....and, " I hope you wear padded gloves, because

his bite will most likely break the skin of whoever is the

unfortunate victim. " I told her I wanted blood tests only. She

poohed me on that. They aren't accurate. I'm convinced his runny

nose, and shiners are food related. She said highly unlikely. It is

probably dust mites. This shiner thing just started three months

ago. My house has had dust for years, but I'm also a very neat,

tighty person. The house is cleaned weekly. She still doesn't want

to test for foods, because at his age he's most likely outgrown food

allergies. She then proceeds to tell me that I can give him dairy

and wheat, because he's probably outgrown his allergy! I'm like, I

don't think so! I told her he vomits when he eats dairy. She felt

it was impossible that dairy would do that to him.

>

> Ok, so to make a long story short, she got the distinct impression

I was not pleased. She ended our session by saying, " Well, if you

decide you want testing, call our office back, but I get the

impression this is not the avenue you wish to pursue. "

>

> So, here I am....back to the only place I ever get help....you guys

and myself. I guess I have finally learned that the medical

community will never understand, and us parents will only get help

from a very select group of medical professionals, and have to rely

on ourselves to help our children best. I have to figure out what

food(s) is causing him problems. I'm not sure where to begin,

because loves all foods. He's a hearty eater, and does not have

a limited diet. He in general....loves to eat.

>

> Suggestions are welcome, and I'm glad to be back in the " real "

world. God........to think I was 2-1/2 years into my schooling to

become an RN when was diagnosed, and I quit to stay home with

him. Thank god, I'm not one of those medical psycho's who do not get

the big picture, and forget they are suppose to help people, not just

collect money.

>

> a - Peoria IL

>

>

>

> ________________________________________________________________

> Juno Gift Certificates

> Give the gift of Internet access this holiday season.

> http://www.juno.com/give

Posted

a:

Too funny!! I can't wait.

[ ] Re: When will I learn..........

Some other time I'll cheer you up with a story about our gi doc

falling asleep during our appt.

a

mom to

>

> .........that doctors are a total waste of energy, time, and mind.

Argh....I know I've finally learned my lesson, once and for all to

stay away from them.

>

> So, yesterday was 's Allergist appointment. What a waste of

time. This doctor....young girl probably no older than 30....was

condescending, and all she wanted to do was load him up on meds. I

explained multiple times that he does not do well on medications,

because they change his behavior, and that behavior is his worst

nightmare with being autistic....not to mention our past nightmare

experience with medications and my mind set against medicating. She

proceeds to hand me three scrips for; Singular, Hydroxyzine and

Zyrtec. I tried to tell her Zyrtec is worthless. He does well on

Allegra, but not Zyrtec. If it ain't broke....don't fix it!!

Singular?????????? He does not have asthma....not to mention that

one of the side effects is aggressive behavior...yeah I need that!

Hydroxyzine?????? WTF.....I don't want him drugged out on that

stuff! She prescribed it for scratching in the night! He sleeps

well at night. He scratches during the day. Like I'm going to drug

him for scratching! She also wanted him to have skin tests.....get

this....one needle at a time! Ha!!!!Ha!!!Ha....I said...good luck!

He's autistic.....one pin prick and it is all over lady. You will

unleash your worst nightmare in less than 30 seconds. It would

almost be worth watching, just to see the look on her face when he

goes from Dr. Jeckyl to Mr. Hyde. I asked her, " How many people you

got to hold him down?....and, " I hope you wear padded gloves, because

his bite will most likely break the skin of whoever is the

unfortunate victim. " I told her I wanted blood tests only. She

poohed me on that. They aren't accurate. I'm convinced his runny

nose, and shiners are food related. She said highly unlikely. It is

probably dust mites. This shiner thing just started three months

ago. My house has had dust for years, but I'm also a very neat,

tighty person. The house is cleaned weekly. She still doesn't want

to test for foods, because at his age he's most likely outgrown food

allergies. She then proceeds to tell me that I can give him dairy

and wheat, because he's probably outgrown his allergy! I'm like, I

don't think so! I told her he vomits when he eats dairy. She felt

it was impossible that dairy would do that to him.

>

> Ok, so to make a long story short, she got the distinct impression

I was not pleased. She ended our session by saying, " Well, if you

decide you want testing, call our office back, but I get the

impression this is not the avenue you wish to pursue. "

>

> So, here I am....back to the only place I ever get help....you guys

and myself. I guess I have finally learned that the medical

community will never understand, and us parents will only get help

from a very select group of medical professionals, and have to rely

on ourselves to help our children best. I have to figure out what

food(s) is causing him problems. I'm not sure where to begin,

because loves all foods. He's a hearty eater, and does not have

a limited diet. He in general....loves to eat.

>

> Suggestions are welcome, and I'm glad to be back in the " real "

world. God........to think I was 2-1/2 years into my schooling to

become an RN when was diagnosed, and I quit to stay home with

him. Thank god, I'm not one of those medical psycho's who do not get

the big picture, and forget they are suppose to help people, not just

collect money.

>

> a - Peoria IL

>

>

>

> ________________________________________________________________

> Juno Gift Certificates

> Give the gift of Internet access this holiday season.

> http://www.juno.com/give

=======================================================

Posted

> Well, we tried it a couple of years back and he became too hyper on

the enzyme. However, B6 a few years ago made him hyper, but now he

tolerates B6. I'll have to order the HNI and give it a shot. It

probably is a good starting point.

My son did get hyper with the enzymes, but I discovered they did not

help him tolerate rice, corn, lutein/carotene [orange and green foods]

and artificials.

If you know that you have a corn issue, corn was one of my son's worst

foods. Rice made him WILDLY hyper, almost as bad as artificials.

Egg yolks, being orange, were also bad.

Your son might not have the same issues as mine did, but my son lost

ALL his foods issues at the end of ALA chelation, so you might

consider that also.

Dana

Posted

>>Lunch is typical....he likes sandwiches; pepperoni, turkey or peanut

butter.

If any of those lunch meats contain nitrates, you might consider

dropping them, or keep a journal and see if his behaviors are

correlated with eating them.

>>Dinner varies.....chicken, pork, beef, pizza, pasta. Sides are

either green beans, carrots, corn, potato or rice.

My son tolerated none of those sides, even with enzymes, except potatoes.

> He only drinks water and juice. I buy 100% berry based juice.

Most berries were bad for my son. With No-Fenol, he could have apple

juice, pear juice, and white grape juice. Nothing red.

> It would be pretty easy to test him for foods, I think. All meats,

corn, rice, potato, soy, berries, apples, beans, peanut, carrot,

cucumber, tomato and green bean, should cover the list. I can't

really think of anything else he consumes, other than garlic, onion

and spices.

Most spices were NASTY for my son.

Anyway, my point is not that your son might be the same, just that you

might not notice any difference by removing just ONE food. It can be

very frustrating if it is multiple foods, but hopefully your son might

have issues with only one or two foods.

Enzymes can definitely help tho.

Good luck.

Dana

Posted

>

> I'm just throwing this out there.

May I suggest you do a simple Mannitol/Lactulose test to see if the

kid has increased permeability in his gut.

Ex:

http://www.alternative-doctor.com/allergydotcom/leakygut.htm

http://www.liverdoctor.com/Section2/11_leakygut.asp

If that is so and if you heal the intestines the allergy might go

away. There are protocols for healing the gut. If the allergy doesnt

go away though the intestines are healed, the kid is 'non-toxic' and

stays away from refined sugar and the standard american diet, there is

no reason for the immunesystem to react the way it does, so take him

to a GOOD & EXPERIENCED homeopath and treat the allergy. This is the

plan for myself at least, after I got all the mercury 'silverfillings'

replaced.

Here's a recipe, servings for two:

1 cup Green beans (We call them mung beans?)

2 Tomatoes

1 Avocado

1 small Red onion

2-3 tablespoons olive oil.

LOTS of fresh green salad. This is the MAIN thing so use a lot. Salad

is nutrient dense, EASY to digest and does lots of good passing the

digestive system. Lemon juice is to be avoided in the salad and all

raw vegetables because of risk for ulcer. (The key to health, Are

Waerland) I got a really bad ulcer after two months of raw food with

lemon juice. :-P Took over 6 months to heal.

So let the green beans soak over night in two cups of water. Throw

away the soaking water, rinse and boil i 1.5 cup of water for 15

minutes.

Cut the sallad leaves and put in a large bowl.

Cut the tomatoes and put in bowl.

Spoon pieces of avocado put in bowl.

Slice red onion stripes -> bowl.

Pour olive oil all over.

Pour the green beans in the sallad and serve up.

Remember to chew every small piece of salad thoroughly for digestive

health. :-)

A few hours after this meal, follow up and eat your fill of watermelon

or other juicy fruit.

An hour after that eat another ordinary meal, but first evaluate how

you felt on 80% raw food.

This is a cleansing diet. If you keep going with this type of meals

you may feel weak when the body cleanses itself. This will pass,

faster the less toxic you are.

All is free to comment.

Best regards,

Posted

Let's see, 7cm tumor in voice box undiagnosed by Kaiser (HMO) and with chiro

xrays in hand told must be food lodged in trachea?

Or 99% blocked coronary artery " diagnosed " at arthritis of neck?

Or the nurse who said that the head to foot ulcers and 102 degree fever were

caused - not by the third incorrect antibiotic - but from wearing a coat in

summer! [That infection lead to enough damage to cause a trip to the ER and a

heart murmur.]

Or what about a quick $650. 00 intial visit w/ DAN! doc in Pleasanton, CA who

spent 45 minutes with my extraordinarily verbal 6th grader (Asperger's) - her

diagnosis? " Oh, I don't see anything wrong at all except she's very upset at you

for ruining her social life. " Or the Kaiser dev.pedi who spent another 45 min

intake with the same kid in the same week and called her " obese " to her face,

and predicted her serious autistic symptoms will only get worse with age. Nice.

[The research posts about thyroid and other metabolism problems, mitochondria,

and so forth, apparently don't interest that doc. Oh, one of her collegues

quotes her saying that she's " burned-out and fed-up with autism and autistic

kids " - now that her own HFA child is 19.]

Of course, both docs were very diligent in questioning me clearly three

different times (is there a Med School Seminar or Insurance Seminar that teaches

them to ask 3x ???) about medications for DD's behavior just to make certain I

wasn't passing up the " medically correct " help.

Yeah, I'd say we're sittin' in the same pew you're sittin' in, a!

....C

Oh, yeah, Merry Christmas! to those who are trying to juggle and celebrate as we

are...

[ ] Re: When will I learn..........

Some other time I'll cheer you up with a story about our gi doc

falling asleep during our appt.

a

mom to

>

> .........that doctors are a total waste of energy, time, and mind.

Argh....I know I've finally learned my lesson, once and for all to

stay away from them.

>

> So, yesterday was 's Allergist appointment. What a waste of

time. This doctor....young girl probably no older than 30....was

condescending, and all she wanted to do was load him up on meds. I

explained multiple times that he does not do well on medications,

because they change his behavior, and that behavior is his worst

nightmare with being autistic....not to mention our past nightmare

experience with medications and my mind set against medicating. She

proceeds to hand me three scrips for; Singular, Hydroxyzine and

Zyrtec. I tried to tell her Zyrtec is worthless. He does well on

Allegra, but not Zyrtec. If it ain't broke....don't fix it!!

Singular?????????? He does not have asthma....not to mention that

one of the side effects is aggressive behavior...yeah I need that!

Hydroxyzine?????? WTF.....I don't want him drugged out on that

stuff! She prescribed it for scratching in the night! He sleeps

well at night. He scratches during the day. Like I'm going to drug

him for scratching! She also wanted him to have skin tests.....get

this....one needle at a time! Ha!!!!Ha!!!Ha....I said...good luck!

He's autistic.....one pin prick and it is all over lady. You will

unleash your worst nightmare in less than 30 seconds. It would

almost be worth watching, just to see the look on her face when he

goes from Dr. Jeckyl to Mr. Hyde. I asked her, " How many people you

got to hold him down?....and, " I hope you wear padded gloves, because

his bite will most likely break the skin of whoever is the

unfortunate victim. " I told her I wanted blood tests only. She

poohed me on that. They aren't accurate. I'm convinced his runny

nose, and shiners are food related. She said highly unlikely. It is

probably dust mites. This shiner thing just started three months

ago. My house has had dust for years, but I'm also a very neat,

tighty person. The house is cleaned weekly. She still doesn't want

to test for foods, because at his age he's most likely outgrown food

allergies. She then proceeds to tell me that I can give him dairy

and wheat, because he's probably outgrown his allergy! I'm like, I

don't think so! I told her he vomits when he eats dairy. She felt

it was impossible that dairy would do that to him.

>

> Ok, so to make a long story short, she got the distinct impression

I was not pleased. She ended our session by saying, " Well, if you

decide you want testing, call our office back, but I get the

impression this is not the avenue you wish to pursue. "

>

> So, here I am....back to the only place I ever get help....you guys

and myself. I guess I have finally learned that the medical

community will never understand, and us parents will only get help

from a very select group of medical professionals, and have to rely

on ourselves to help our children best. I have to figure out what

food(s) is causing him problems. I'm not sure where to begin,

because loves all foods. He's a hearty eater, and does not have

a limited diet. He in general....loves to eat.

>

> Suggestions are welcome, and I'm glad to be back in the " real "

world. God........to think I was 2-1/2 years into my schooling to

become an RN when was diagnosed, and I quit to stay home with

him. Thank god, I'm not one of those medical psycho's who do not get

the big picture, and forget they are suppose to help people, not just

collect money.

>

> a - Peoria IL

>

Posted

,

Did you test and find out that you have a leaky gut?

Did you heal it?

What was on your list of foods to avoid?

(I notice that you mention to avoid the standard

american diet, just wondering about the details)

> >

> > I'm just throwing this out there.

>

> May I suggest you do a simple Mannitol/Lactulose test to see if the

> kid has increased permeability in his gut.

>

> Ex:

> http://www.alternative-doctor.com/allergydotcom/leakygut.htm

> http://www.liverdoctor.com/Section2/11_leakygut.asp

>

> If that is so and if you heal the intestines the allergy might go

> away. There are protocols for healing the gut. If the allergy doesnt

> go away though the intestines are healed, the kid is 'non-toxic' and

> stays away from refined sugar and the standard american diet, there is

> no reason for the immunesystem to react the way it does, so take him

> to a GOOD & EXPERIENCED homeopath and treat the allergy. This is the

> plan for myself at least, after I got all the mercury 'silverfillings'

> replaced.

>

> Here's a recipe, servings for two:

>

> 1 cup Green beans (We call them mung beans?)

> 2 Tomatoes

> 1 Avocado

> 1 small Red onion

> 2-3 tablespoons olive oil.

> LOTS of fresh green salad. This is the MAIN thing so use a lot. Salad

> is nutrient dense, EASY to digest and does lots of good passing the

> digestive system. Lemon juice is to be avoided in the salad and all

> raw vegetables because of risk for ulcer. (The key to health, Are

> Waerland) I got a really bad ulcer after two months of raw food with

> lemon juice. :-P Took over 6 months to heal.

>

> So let the green beans soak over night in two cups of water. Throw

> away the soaking water, rinse and boil i 1.5 cup of water for 15

> minutes.

>

> Cut the sallad leaves and put in a large bowl.

> Cut the tomatoes and put in bowl.

> Spoon pieces of avocado put in bowl.

> Slice red onion stripes -> bowl.

> Pour olive oil all over.

> Pour the green beans in the sallad and serve up.

>

> Remember to chew every small piece of salad thoroughly for digestive

> health. :-)

>

> A few hours after this meal, follow up and eat your fill of watermelon

> or other juicy fruit.

>

> An hour after that eat another ordinary meal, but first evaluate how

> you felt on 80% raw food.

>

> This is a cleansing diet. If you keep going with this type of meals

> you may feel weak when the body cleanses itself. This will pass,

> faster the less toxic you are.

>

> All is free to comment.

>

>

> Best regards,

>

>

Posted

> ,

> Did you test and find out that you have a leaky gut?

No I haven't. I will when I find somewhere to do it here in

Sweden.

The following are my thoughts, but I can't guarantee everything is

correct.

If I fast for a day my allergy against mold disappears. Until I eat

again. So thats one clue. Another is that if I take for example

chestnut drops, or colostrum which is another powerful healer plugging

the leaks, the mold sensitivity also disappears. Chestnut drops

contain allantoin which heals wounds like crazy. But I dont recommend

you use it because the problem will only reappear as long as the

underlying problem is there. It seems that to CURE it for good you

have to follow a protocol that adresses several things at

simultaneously and keep at it for several months.

> Did you heal it?

No again. First I adjusted my diet to vegetarian and thought that

would do it, but it didnt. I feel MUCH better on vego diet and raw

foods so I won't switch back though. Been at it 1.5 years. The thing

seems to be, as long as you have many amalgam fillings, leaky gut

probably cannot be healed. This is because the intestines produce lots

of mucosa to protect itself from the mercury that is trickling through

the intestines daily. And this mucosa, I am told, creates an anaerobic

situation with too little oxygen in the small intestines which bad

microbes like. This hurts the small intestine. But many things can

create leaky gut. A few times I have had much pain in the guts and

then I have taken some ColoZone. It cleanses the colon, oxygenates

the intestines and thereby corrects microbial dysbios. In 1-3 days

mortal pain have been totally gone. I dont know what I would have done

without it. Maybe someone else has the same problem and can use it.

Now, It is my understanding that inside the small intestines there

should be a layer of IG-G antibodies that disables the random " bad

stuff " that accidentally passes the healthy layer of mucosa. If the

IG-G layer is damaged the " bad stuff " will get into the blood stream.

There it will upset the immunesystem. Maybe you will be " allergic " . If

this is correct, the problem is not really with the food but with the

body that lets bad stuff in. Everything that irritates or creates

inflammation in the digestive tract will keep the IG-G layer from

being repaired. This is the information I have gathered so far, I hope

its correct because it explains a lot about allergies and mental

problems too. Toxins in the bloodstream can make anyone a little mad.

And I hope this explains my rationale for suggesting the leaky gut

test.

In the reviews of the book " Breaking the Vicious Cycle " by Elaine

Gottschall (www.amazon.com) there is lots of talk of autistic and

other children getting well by Elaine's methods. Not many books on

amazon have 130 rave reviews. The diet doesnt seem too easy to follow

though, but you could do a 1 month experiment.

Also, in the book " Be your own doctor " , the author explains she helped

heal lots of people with other severe mental problems by fasting them

to let healing occur and then avoid food they didnt tolerate.

From the books about health that I've read I remember many of them

speak of mental problems disappearing when problems in the gut is

remedied.

> (I notice that you mention to avoid the standard

> american diet, just wondering about the details)

>

>

>

> > >

> > > I'm just throwing this out there.

> >

> > May I suggest you do a simple Mannitol/Lactulose test to see if

the

> > kid has increased permeability in his gut.

> >

> > Ex:

> > http://www.alternative-doctor.com/allergydotcom/leakygut.htm

> > http://www.liverdoctor.com/Section2/11_leakygut.asp

> >

> > If that is so and if you heal the intestines the allergy might go

> > away. There are protocols for healing the gut. If the allergy

doesnt

> > go away though the intestines are healed, the kid is 'non-toxic'

and

> > stays away from refined sugar and the standard american diet,

there is

> > no reason for the immunesystem to react the way it does, so take

him

> > to a GOOD & EXPERIENCED homeopath and treat the allergy. This is

the

> > plan for myself at least, after I got all the mercury

'silverfillings'

> > replaced.

> >

> > Here's a recipe, servings for two:

> >

> > 1 cup Green beans (We call them mung beans?)

> > 2 Tomatoes

> > 1 Avocado

> > 1 small Red onion

> > 2-3 tablespoons olive oil.

> > LOTS of fresh green salad. This is the MAIN thing so use a lot.

Salad

> > is nutrient dense, EASY to digest and does lots of good passing

the

> > digestive system. Lemon juice is to be avoided in the salad and

all

> > raw vegetables because of risk for ulcer. (The key to health, Are

> > Waerland) I got a really bad ulcer after two months of raw food

with

> > lemon juice. :-P Took over 6 months to heal.

> >

> > So let the green beans soak over night in two cups of water. Throw

> > away the soaking water, rinse and boil i 1.5 cup of water for 15

> > minutes.

> >

> > Cut the sallad leaves and put in a large bowl.

> > Cut the tomatoes and put in bowl.

> > Spoon pieces of avocado put in bowl.

> > Slice red onion stripes -> bowl.

> > Pour olive oil all over.

> > Pour the green beans in the sallad and serve up.

> >

> > Remember to chew every small piece of salad thoroughly for

digestive

> > health. :-)

> >

> > A few hours after this meal, follow up and eat your fill of

watermelon

> > or other juicy fruit.

> >

> > An hour after that eat another ordinary meal, but first evaluate

how

> > you felt on 80% raw food.

> >

> > This is a cleansing diet. If you keep going with this type of

meals

> > you may feel weak when the body cleanses itself. This will pass,

> > faster the less toxic you are.

> >

> > All is free to comment.

> >

> >

> > Best regards,

> >

> >

Posted

I had the same thing happen with a dust mite sensitivity. It also disappeared

with the Hay diet (eating proteins and carbohydrates at least 4 hours appart and

eating lots of fruit and veg). I was fianally able to get of antihistamines.

Dagmar.

If I fast for a day my allergy against mold disappears. Until I eat

again. So thats one clue.

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