Treatment

[Guest guest]

,

Check out the 'files' section on this site. (to the left)

Here you can read some of the stories of peoples' treatment.

For myself, I did 30 days of doxycycline, but that was before I knew

better, after that I only used Buhner's herbs, and other supplements.

And I don't really feel like I have Lyme anymore.

ellen

---

In , Grpinfo@... wrote:

>

> In a message dated 1/17/07 4:21:40 PM, heather_rowley@... writes:

> < How many are treating Lyme & co-infetions only with herbs? with what

> results? >

>

>

> I had Lyme many years before being diagnosed. I am only using the

herbs in

> the core protocol (andrographis, cat's claw, resveratrol and

sarsparilla) to

> treat it at this time.

>

> I've had lots of improvement since I started this about 6 months ago

> (improvement in brain clarity, mood, energy, smell sensitivity,

light sensitivity,

> sleep, etc.).

>

> I worked up to the max dosages of 4 caps 4x daily as suggested in

the book,

> stayed at max for two months, and have since been adjusting the

amount of caps

> up and down 3x daily depending on how I'm feeling. Since my blood

pressure has

> gone even lower, I'm being more careful with andrographis and cat's

claw

> (though Buhner says effects of andro would likely level out).

>

> I don't know if I will try pharmaceutical antibiotics at any time

with the

> herbals or not.

>

> I hesitate to, but I am also curious if this would give me an extra

boost and

> may try it once. I've yet to decide.

>

> Ann

> >

> >

> >

>

>

>

>

[Guest guest]

Hi Ellen,

Thanks!

A person can supposedly go late-stage Lyme pretty quickly. What Lyme test was

able to tell you that you were late stage?

I agree your knee could get better! I like what you said about walking being

a sacrament. That's kind of how I feel about it after having knee surgeries

and not being able to walk at times.

Ann

In a message dated 1/18/07 7:04:51 AM, rasheedaas@... writes:

>

> Thanks, Ann.

>

> Glad to answer questions. I know how it is with memory. (smile - I

> have to print out your post cuz otherwise might forget your questions!}

>

> [bTW,I don't think in my case that memory problems are Lyme-related]

>

> " > How long were you symptomatic before you got dxed or tested last May? "

>

> I had a pain in my left calf, for 2 weeks, ignored it, until one

> evening it got so bad I wound up in the emergency room. Previous to

> this, I had no symptoms. My doctor did a ck test - creatine kenase - I

> think that's an enzyme found in muscle. Determined I had mscule

> damage. He said it was unusual that I could have muscle damage bad

> enough to have these symptoms, without knowing how I got damaged.

>

> Then, luckily, because I would never have thought of it, someone

> suggested I get tested for Lyme. I turned out positive. My doctor said

> my symptom, known as Lyme Myositis, is a rare manifestation of Lyme.

>

> The Lyme test showed that I had what he called 3rd stage Lyme, others

> call advanced stage, I don't know how long I had had it. It's weird

> cuz even when I think back I don't recall anything which could have

> been a manifestation, except one - a few years ago I had a flare-up of

> what I diagnosed as arthritis, in my fingers, very painful. Maybe that

> was Lyme. I treated that with Esberitox (super-charged Echinacea) and

> got rid of it.

>

> After diagnosis in May, I was on Buhner's herbs for 2 months at the

> maximum. (maximum for me was 4 pills 3 times a day).

>

> " > You mentioned two good weeks back in October. Has your improvement

> held

> > steady since then? "

> Gosh, I can't remember what was going on in Oct! But I'm sure it's

> been at least a couple of months that the following has been true -

> I'm now only taking 1 Co-Q-10, once day, 2 vit-C's twice a day, and 2

> Mag citrate twice a day. As I said in an earlier post, I walk 1 hour a

> day.

>

> {I think in the 'files' section there is a post re what my condition

> had been - barely able to walk, then walking with a cane, crushing

> fatigue, etc}

>

> Energy level is now absolutely normal for me. I used to, if I got

> stressed or particularly tired at end of day, I would get a slight

> headache, I haven't had that happen in a few weeks.

>

> It was just a few says ago that I realized I didn't have the headache,

> so now I call myself symptom-free.

> I still have to climb stairs, one stair at a time, and I can't jog,

> and I can kneel, slowly. So I have issues with the knee, but I don't

> feel like I have the Lyme. My doctor says it could be permanent damage

> from my immune system attacking the Lyme. I don't believe anything is

> necessarily permanent. I feel like there are many things which might

> completely restore my knee. But right now I don't have the money nor

> the mental energy [having other huge life situations to deal with] to

> attend to the knee. So I'm just living with it. And walking has become

> a sacrament! I love it! Even yesterday when it was so c-c-o-o-old.

>

> Hope this helps.

>

> ellen

>

>

> >

> > Wow Ellen!

> >

> > You don't feel like you have Lyme anymore?! Congrats!!!!

> >

> > I reread the posts you mentioned in Files folder. Some questions,

> only if you

> > have the time and energyD+$¢®

> >

> > How long were you symptomatic before you got dxed or tested last May?

> >

> > (Okay, if I read it, I've already forgotten how long you've been on

> any of

> > the herbals- note: short term memory needs work!)

> >

> > You mentioned two good weeks back in October. Has your improvement held

> > steady since then?

> >

> > If you have the time and energy, would you update us on what you've

> been

> > doing for treatment?

> >

> > Ann

> >

> >

> >

> > In a message dated 1/17/07 6:07:59 PM, rasheedaas@. In a mess

> >

> > > ,

> > > Check out the 'files' section on this site. (to the left)

> > >

> > > Here you can read some of the stories of peoples' treatment.

> > >

> > > For myself, I did 30 days of doxycycline, but that was before I knew

> > > better, after that I only used Buhner's herbs, and other supplements.

> > > And I don't really feel like I have Lyme anymore.

> > >

> > > ellen

>

>

[Guest guest]

I personally think the abx set ME back when I used them a year ago for almost

two months. I was doing better with just the herbs before that. Took me a

long time to recover.

I am currently taking a light dose of amoxicillan, 500 mg a day for pains I

have had in the penile/prostate area. That is low dose compared to the 4000 to

7000mg people are using as I found out on LymeNet today. I may up my dose a

little but don't think I would go over 1000mg a day.

I am self treating right now, as my duck is not much help to me, and i bought

the bottle of 100 capsules a year ago and it is about to expire this spring and

from what I have read this is an abx of choice for this condition.

I have had flare-ups of some of my Lyme symptoms the last few days, so the abx

MAY be the cause of it, not sure.

Jim

###

Grpinfo@... wrote:

In a message dated 1/17/07 4:21:40 PM, heather_rowley@...

writes:

< How many are treating Lyme & co-infetions only with herbs? with what

results? >

I had Lyme many years before being diagnosed. I am only using the herbs in

the core protocol (andrographis, cat's claw, resveratrol and sarsparilla) to

treat it at this time.

I've had lots of improvement since I started this about 6 months ago

(improvement in brain clarity, mood, energy, smell sensitivity, light

sensitivity,

sleep, etc.).

I worked up to the max dosages of 4 caps 4x daily as suggested in the book,

stayed at max for two months, and have since been adjusting the amount of caps

up and down 3x daily depending on how I'm feeling. Since my blood pressure has

gone even lower, I'm being more careful with andrographis and cat's claw

(though Buhner says effects of andro would likely level out).

I don't know if I will try pharmaceutical antibiotics at any time with the

herbals or not.

I hesitate to, but I am also curious if this would give me an extra boost and

may try it once. I've yet to decide.

Ann

>

>

>

[Guest guest]

In a message dated 1/18/07 11:03:26 AM, rasheedaas@... writes:

> When you say 'go late-stage pretty quickly', how long did you mean?

> I was under the impression that late-stage meant several months

> between bite and diagnosis.

> The test was the Western Blot, and my doctor uses only the CDC criteria-

>

>

Ellen,

I don't recall exactly how soon someone can supposedly go into late-stage

Lyme. However, it's said the spirochetes can go into the central nervous system

in less than a day, so I'm guessing you could go late-stage in maybe even as

little as that, or a few days or weeks. If I come across more specific info (I'm

sure I have it somewhere in the ton of Lyme research I've collected), I'll

get back to you on it.

I guess the way your doc knew you were " late-stage " was that you tested

positive on either the Igm or IgG Western Blot, or both. I also forget which one

indicates you're in later stage, but I believe it's the IgM. My memory obviously

has late-stage Lyme!

Ann

[Guest guest]

Thanks, Ann.

Glad to answer questions. I know how it is with memory. (smile - I

have to print out your post cuz otherwise might forget your questions!}

[bTW,I don't think in my case that memory problems are Lyme-related]

" > How long were you symptomatic before you got dxed or tested last May? "

I had a pain in my left calf, for 2 weeks, ignored it, until one

evening it got so bad I wound up in the emergency room. Previous to

this, I had no symptoms. My doctor did a ck test - creatine kenase - I

think that's an enzyme found in muscle. Determined I had mscule

damage. He said it was unusual that I could have muscle damage bad

enough to have these symptoms, without knowing how I got damaged.

Then, luckily, because I would never have thought of it, someone

suggested I get tested for Lyme. I turned out positive. My doctor said

my symptom, known as Lyme Myositis, is a rare manifestation of Lyme.

The Lyme test showed that I had what he called 3rd stage Lyme, others

call advanced stage, I don't know how long I had had it. It's weird

cuz even when I think back I don't recall anything which could have

been a manifestation, except one - a few years ago I had a flare-up of

what I diagnosed as arthritis, in my fingers, very painful. Maybe that

was Lyme. I treated that with Esberitox (super-charged Echinacea) and

got rid of it.

After diagnosis in May, I was on Buhner's herbs for 2 months at the

maximum. (maximum for me was 4 pills 3 times a day).

" > You mentioned two good weeks back in October. Has your improvement

held

> steady since then? "

Gosh, I can't remember what was going on in Oct! But I'm sure it's

been at least a couple of months that the following has been true -

I'm now only taking 1 Co-Q-10, once day, 2 vit-C's twice a day, and 2

Mag citrate twice a day. As I said in an earlier post, I walk 1 hour a

day.

{I think in the 'files' section there is a post re what my condition

had been - barely able to walk, then walking with a cane, crushing

fatigue, etc}

Energy level is now absolutely normal for me. I used to, if I got

stressed or particularly tired at end of day, I would get a slight

headache, I haven't had that happen in a few weeks.

It was just a few says ago that I realized I didn't have the headache,

so now I call myself symptom-free.

I still have to climb stairs, one stair at a time, and I can't jog,

and I can kneel, slowly. So I have issues with the knee, but I don't

feel like I have the Lyme. My doctor says it could be permanent damage

from my immune system attacking the Lyme. I don't believe anything is

necessarily permanent. I feel like there are many things which might

completely restore my knee. But right now I don't have the money nor

the mental energy [having other huge life situations to deal with] to

attend to the knee. So I'm just living with it. And walking has become

a sacrament! I love it! Even yesterday when it was so c-c-o-o-old.

Hope this helps.

ellen

>

> Wow Ellen!

>

> You don't feel like you have Lyme anymore?! Congrats!!!!

>

> I reread the posts you mentioned in Files folder. Some questions,

only if you

> have the time and energy…

>

> How long were you symptomatic before you got dxed or tested last May?

>

> (Okay, if I read it, I've already forgotten how long you've been on

any of

> the herbals- note: short term memory needs work!)

>

> You mentioned two good weeks back in October. Has your improvement held

> steady since then?

>

> If you have the time and energy, would you update us on what you've

been

> doing for treatment?

>

> Ann

>

>

>

> In a message dated 1/17/07 6:07:59 PM, rasheedaas@... writes:

>

> > ,

> > Check out the 'files' section on this site. (to the left)

> >

> > Here you can read some of the stories of peoples' treatment.

> >

> > For myself, I did 30 days of doxycycline, but that was before I knew

> > better, after that I only used Buhner's herbs, and other supplements.

> > And I don't really feel like I have Lyme anymore.

> >

> > ellen

> >

>

>

>

>

[Guest guest]

Ellen, so glad for you!!!! Congratulations. I love walking too.

And TODAY we're having a very very WINDY DAY here in SWITZERLAND!!!

My daughter asked me " mom, is this a cyclone? " She just turned 3 this

month!

Selma

[Guest guest]

Hi Ann,

When you say 'go late-stage pretty quickly', how long did you mean?

I was under the impression that late-stage meant several months

between bite and diagnosis.

The test was the Western Blot, and my doctor uses only the CDC criteria-

I had 3 tests - May 1, June 26, Aug 30.

In all three, the IGM were all nonreactive.

As far as the IGG, I went from 10 reactive on May 1, then 2 of 10

nonreactive, then 1 of 10 being nonreactive on Aug 30.

So I'm not sure what if anything this test proves.

Two doctors told me it was late stage bec -if I recall correctly - the

IGG were reactive.

Are the terms 'late-stage', 'disseminated' and 'chronic' interchangeable?

ellen

> > >

> > > Wow Ellen!

> > >

> > > You don't feel like you have Lyme anymore?! Congrats!!!!

> > >

> > > I reread the posts you mentioned in Files folder. Some questions,

> > only if you

> > > have the time and energyD+$¢®

> > >

> > > How long were you symptomatic before you got dxed or tested last

May?

> > >

> > > (Okay, if I read it, I've already forgotten how long you've been on

> > any of

> > > the herbals- note: short term memory needs work!)

> > >

> > > You mentioned two good weeks back in October. Has your

improvement held

> > > steady since then?

> > >

> > > If you have the time and energy, would you update us on what you've

> > been

> > > doing for treatment?

> > >

> > > Ann

> > >

> > >

> > >

> > > In a message dated 1/17/07 6:07:59 PM, rasheedaas@ In a mess

> > >

> > > > ,

> > > > Check out the 'files' section on this site. (to the left)

> > > >

> > > > Here you can read some of the stories of peoples' treatment.

> > > >

> > > > For myself, I did 30 days of doxycycline, but that was before

I knew

> > > > better, after that I only used Buhner's herbs, and other

supplements.

> > > > And I don't really feel like I have Lyme anymore.

> > > >

> > > > ellen

> >

> >

>

>

>

>

[Guest guest]

In a message dated 1/19/07 11:41:15 AM, wyomin@... writes:

> Ann, A little 'trick' I've developed to remember which, IGM or IGG,

> means past infestion; I now think of IGG as IGGONE. Therefore, IGM means

> current infection. jo

>

Hey, cool!

And IgM (for me), can be " IgMemory used to be better " !

I'm always using memory tricks, too (maybe we're developing new neural

networks by doing this to " compensate " ), but I hadn't thought of one for IgG vs

IgM.

Thanks Jo!

>

>

[Guest guest]

Ann, A little 'trick' I've developed to remember which, IGM or IGG,

means past infestion; I now think of IGG as IGGONE. Therefore, IGM means

current infection. jo

[Guest guest]

Hi Cheryl,

Whew! I'm not sure what the connection is with the prednisone and

psychosis, but I do know everything I've read indicates that steroids

are not to be used long term and that they are at best a short term

quick fix.

How is he doing with the MTX & Enbel?? Any relief?

I know he probably doesn't feel like excercising, but he really

should try some light movement like walking, as long as he isn't in

alot of pain.

As I said, I don't know anything about Pschological/Psychiartric

drugs, but my guess is that if your husband is getting some relief

from the MTX/Enbrel, and he is still lethargic, it is likely due to

the P/P drugs. Perhaps the P/P doctors can make suggestions about

being more active.

If Your husband is still having pain,swelling etc, after this much

time, he probably needs to try something different, should talk with

his rheumy. 8months is a long time to not see any results.

As far as diet, well obviously NO alcohol, but some folks say that

they have experienced some relief, by avoiding nightshades like

tomatoes, etc. I'm fairly certain that there haven't been many if

any scientific studies that substantiate that claim, but it probably

couldn't hurt, so might be worth a try. Others advocate Macrobiotics.

Again, I'm not sure if there is any scientific back up.

I believe dietary issues are can't hurt/might help topics.

Stay Well,

[Guest guest]

Hello Cheryl;

I am very sorry to hear of what you have been through. I am

including an abstract from a paper I have seen with a little info -

but steroid induced phsychosis is not uncommon and I am shocked that

your husbands rheum was so unwilling to see it. I will say though

that everything I have read indicats that most patients should

return to normal within 3-11 months of stopping steroids. Is it

possible that something else is going on now? Has your husband been

evaluated for lupus, which can have neuropsych problems associated

with it, or had other possible diagnosis explored? Keep in mind that

arthritis patients have higher incidence of vitamin deficiencies (B

vitamins and D vitamins) so you could have the doc check for these

as well.

Also, for me uncontrolled pain and disrupted sleep causes depression

and terrible, terrible fatigue. Your husband is a complicated case

for sure, I hope that by controlling the arthritis as well as

possible and keeping the steroids away that you can get some relief

for both of you.

Good luck;

Jill

[Guest guest]

Oops - I forgot to paste the abstract - here it is:

Steroid-induced psychiatric syndromes A report of 14 cases and a

review of the literature

A. and E.

Department of Psychiatry, University of Iowa Hospitals and Clinics,

Iowa City, IA 52242, U.S.A.

Received 8 February 1983; accepted 10 March 1983. Available online

2 May 2002.

Abstract

Although it is well-established that psychiatric symptoms can

develop in association with the administration of corticosteroids,

the nature of this relationship is poorly understood. We reviewed 14

previously unreported cases of steroid-induced psychiatric

syndromes, 79 cases from the literature and 29 studies of the

clinical efficacy of steroids in various medical illnesses. Our

findings indicate that severe psychiatric reactions occur in

approximately 5% of steroid-treated patients, and that a large

proportion of these patients have affective and/or psychotic

symptoms. Psychiatric disturbances usually occur early in the course

of steroid therapy. Female sex, systemic lupus erythematosus and

high doses of prednisone may be risk factors for the development of

a steroid-induced psychiatric syndrome. Treatment with steroid-

taper, neuroleptics or electroconvulsive therapy is generally

effective, although tricyclic antidepressants do not appear to be

useful therapeutic agents. Most patients recover within several

weeks of the onset of symptoms.

[Guest guest]

> actually eventually became psychotic from it. The rheumatologist did

> not and would not recognize this,

Hi Cheryl, My name is . I am very aware of the psychological

side effects of Prednisone. I took it for 5 days by the end of it I

was ripping peoples heads off for no reason, VERY CRANKY. I reported

this to my rheumy and he gave me mehtylpred instead. haven't had any

issues with it other than that I am becoming more depressed and don't

really feel myself. I take MTX and sulfasalazine also. Although I am

in the middle of a petty conflict at work right now, Hmmmmm.

[Guest guest]

Welcome Terry!

It would be helpful if you could be more specific about which treatments she

recommends on her site (I've never visited it). Many parents on this board are

doing multiple interventions including diet, yeast treatments, viral protocols,

and chelation.

Maggie

tgragg2 <tgragg2@...> wrote:

My name is Terry and I have a 9 year old autistic son. I am new to this

discussion group. I have been reading McCarthy's website. I was

wondering if anyone has tried the biomedical approach she recommends?

------------------------------------

=======================================================

[Guest guest]

I have a 9 month old daughter who needs treatment for brachycephaly. I

live nort of ville, florida ain Georgia. I was interested if

anyone knows of somplace to receive treatment other than Cranialtech in

Miami. thank you

[Guest guest]

There is a STARband provider in ville, FL:

Wolfson Children's Rehabilitation

Suzanne Barje, PT

Larry Chase, CO

841 Prudential Drive, Ste. 140

ville, FL 32207

904-292-1808 Fax: 904-288-8758

Email: suzanne.goeta-barje@...

www.wchjax.com/rehab

In Georgia there is a facility in Macon:

C.H. Company

Terry M. , CO

130 College Street

Macon, GA 31201

478-742-4331

FAX 478-738-0521

Email: terrythompson@...

www.chmartinco.com

and Atlanta:

Children's Healthcare of Atlanta

Giavedoni, CP; , CO, LO

5445 Meridian Mark Road, Suite 200

Atlanta, GA 30342

404-785-3229, FAX 404-785-5690

Email: .Giavedoni@...

Email: .@...

www.choa.org/orthopaedics/orthotics-sr.html

Hope this helps!

Molly

Novato, California

Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 5.5

, 8.5

Treatment

I have a 9 month old daughter who needs treatment for brachycephaly. I

live nort of ville, florida ain Georgia. I was interested if

anyone knows of somplace to receive treatment other than Cranialtech in

Miami. thank you

------------------------------------

For more plagio info