Update on

November 2, 2004

Hi Jodie,

Thanks for the response. is on Periactin as well. She takes 2mg tab

in the morning and 2 mg. tab at night

She is on 0.4mg genotropin gh. I hope I am getting enough cals. into her.

What tricks do you use to add cals. to christopher foods?

I hope all is well at your home front,

Loretta, mom to 2 yrs. 14lbs 13 oz. 29.5 in

Re: update on

>

> hey lorreta!!

> allison sounds like she had fun trick or treating!!! your walk went

> well even though the weather didnt, after walking 10miles know

> wonder you are sore!!! sounds like she is doing realluy well on the

> ght, is she on periactin as well? it is important that she takes in

> 1 1/2xmore calories to gain the weight as she grows on the ght!!

> good luck!!

>

> jodie c.

>

> >

> > Hi everyone,

> >

> > I just wanted to give you a quick update on . She turned

> 2

> > on Oct. 16. We had our walk for MAGIC on Oct. 24 among the rain

> > drops. I walked 10 miles and I am still feeling some of the aches

> > from it. We collected $1190. started speech therapy in

> Sept.

> > and started GHT on Sept. 29. She does very well with the

> injection.

> > At her 2 yr. Check up she grew 1/2 in. and gained only 2oz. She is

> 14

> > lbs. 13oz. and 29.5 in. She does have sinus congestion which of

> > course caused her to also develope ear infections So on the

> > Amoxicillin she went. She will be getting a lift for in her left

> shoe

> > soon. She had fun trick or treating tonight and loves that candy.

> I

> > hope you recieved more treats then tricks tonight.

> > Loretta

>

November 2, 2004

le, HI,

Thanks for responding. I would love to have the pictures from the

convention of the kids. It is great that Colby is doing so well, and is so

big. I wish was closer to that 20lb mark!

Take care,

Loretta

Re: update on

>

> Hi Loretta,

>

> It's soooooo great to hear from you. I was just editing the pics of

> Coby, , and Pippin from the convention. I can send them to

> you as soon as I get the chance.

>

> Glad to hear is doing well. The ear infections are nasty.

> Coby has had tubes 2 times so far, but the 2nd set have done the

> trick.

>

> le, mom to:

> Shye almost 10, Brock 8, and Coby (rss) & Carlee 2

> Coby's new stats: 20.2 lbs 31 3/4 in Humatrope GH & Periactin

>

November 4, 2004

hey loretta!!

i add olive or veg. oil to his soups and noodles, half and half to

his milk as well as carnation instant breakfast. i make him a high

cal milk shake a couple of nights a week-1cup whole milk, 4 TBSP of

half and half, 2 TBSP of hershey syrup (chocolate or strawberry), 1

packet of carnation instant breakfast (any flavor or if i have none

i use hot chocolate mix), 1 cup of edey's dreamery ice cream, and 1

cup of another brand ice cream. it comes out to around 1200cal

depending on the ice cream used!!! i put cheese on his hot dogs.

peanut butter on his bagels. and i look for snacks that are high

cal. nabisco makes these snacks now that are 100cal per packet

(oreo, chocolate chip, cheese crackers, wheat thins, and fruit

snacks) good luck!!!

jodie c.

> > >

> > > Hi everyone,

> > >

> > > I just wanted to give you a quick update on . She

turned

> > 2

> > > on Oct. 16. We had our walk for MAGIC on Oct. 24 among the rain

> > > drops. I walked 10 miles and I am still feeling some of the

aches

> > > from it. We collected $1190. started speech therapy in

> > Sept.

> > > and started GHT on Sept. 29. She does very well with the

> > injection.

> > > At her 2 yr. Check up she grew 1/2 in. and gained only 2oz.

She is

> > 14

> > > lbs. 13oz. and 29.5 in. She does have sinus congestion which of

> > > course caused her to also develope ear infections So on the

> > > Amoxicillin she went. She will be getting a lift for in her

left

> > shoe

> > > soon. She had fun trick or treating tonight and loves that

candy.

> > I

> > > hope you recieved more treats then tricks tonight.

> > > Loretta

> >

July 6, 2005

I'm glad you can finally get some sleep! We have had the same

experience with the ponseti brace vs. the markells... I wish we had

gotten them sooner - maybe we would have avoided the second tenotomy

had we been able to get her (and keep her) in her shoes from the get-

go. Who knows. But thank goodness for the s!

Darby

Livi 3.15.04 bi cf p/m fab 16/7

> Hi all,

> My (18 weeks) received his Ponseti AFO ( sandals

> and bar) yesterday. What a difference from the markells!! (We

> tried the Markells for over two weeks and Nick was able to get out

> of them EVERY single time...turns out his foot was not fully

> corrected, and he has a very flat heel on his cf, so his heel would

> not get down enough.) Anyhoo, I was thinking that I would hear

> alot of fussing and crying from him yesterday when he received them

> at 5pm, but that just did not happen. (With the Markells he cried

so

> hard that he forgot to breathe, it was terrifying) It was awesome.

> He went to bed at 7:30 and didn't wake up til 6:45am.. Its

actually

> the longest he's ever slept at night, go figure. I'm sure it had

> nothing to do with the shoes. Just trying to say that the Ponseti

> AFO is certainly a kinder and gentler approach to the DBB (Markell

> laceups).and if you're having GREAT difficulty like we did with the

> Markells, its certainly worth a try. I hope all of you are doing

> well. Thank you all so much for your companionship and good advice

> while coping with difficult fit of the Markells, etc..

>

> Kittredge

> 3-1-05 (left clubfoot)

> 3-28-01 (perfect feet!)

July 6, 2005

I'm glad you can finally get some sleep! We have had the same

experience with the ponseti brace vs. the markells... I wish we had

gotten them sooner - maybe we would have avoided the second tenotomy

had we been able to get her (and keep her) in her shoes from the get-

go. Who knows. But thank goodness for the s!

Darby

Livi 3.15.04 bi cf p/m fab 16/7

> Hi all,

> My (18 weeks) received his Ponseti AFO ( sandals

> and bar) yesterday. What a difference from the markells!! (We

> tried the Markells for over two weeks and Nick was able to get out

> of them EVERY single time...turns out his foot was not fully

> corrected, and he has a very flat heel on his cf, so his heel would

> not get down enough.) Anyhoo, I was thinking that I would hear

> alot of fussing and crying from him yesterday when he received them

> at 5pm, but that just did not happen. (With the Markells he cried

so

> hard that he forgot to breathe, it was terrifying) It was awesome.

> He went to bed at 7:30 and didn't wake up til 6:45am.. Its

actually

> the longest he's ever slept at night, go figure. I'm sure it had

> nothing to do with the shoes. Just trying to say that the Ponseti

> AFO is certainly a kinder and gentler approach to the DBB (Markell

> laceups).and if you're having GREAT difficulty like we did with the

> Markells, its certainly worth a try. I hope all of you are doing

> well. Thank you all so much for your companionship and good advice

> while coping with difficult fit of the Markells, etc..

>

> Kittredge

> 3-1-05 (left clubfoot)

> 3-28-01 (perfect feet!)

July 6, 2005

Yeah! Good for you!! Nothing like a full night's sleep to make

everything happy again!

SHannon, mommy of:

Guinevere, on & Ava 8/4/04 RCF ABS FAB 16/7

> Hi all,

> My (18 weeks) received his Ponseti AFO (

sandals

> and bar) yesterday. What a difference from the markells!! (We

> tried the Markells for over two weeks and Nick was able to get

out

> of them EVERY single time...turns out his foot was not fully

> corrected, and he has a very flat heel on his cf, so his heel

would

> not get down enough.) Anyhoo, I was thinking that I would hear

> alot of fussing and crying from him yesterday when he received

them

> at 5pm, but that just did not happen. (With the Markells he cried

so

> hard that he forgot to breathe, it was terrifying) It was

awesome.

> He went to bed at 7:30 and didn't wake up til 6:45am.. Its

actually

> the longest he's ever slept at night, go figure. I'm sure it had

> nothing to do with the shoes. Just trying to say that the Ponseti

> AFO is certainly a kinder and gentler approach to the DBB (Markell

> laceups).and if you're having GREAT difficulty like we did with

the

> Markells, its certainly worth a try. I hope all of you are doing

> well. Thank you all so much for your companionship and good

advice

> while coping with difficult fit of the Markells, etc..

>

> Kittredge

> 3-1-05 (left clubfoot)

> 3-28-01 (perfect feet!)

July 6, 2005

Yeah! Good for you!! Nothing like a full night's sleep to make

everything happy again!

SHannon, mommy of:

Guinevere, on & Ava 8/4/04 RCF ABS FAB 16/7

> Hi all,

> My (18 weeks) received his Ponseti AFO (

sandals

> and bar) yesterday. What a difference from the markells!! (We

> tried the Markells for over two weeks and Nick was able to get

out

> of them EVERY single time...turns out his foot was not fully

> corrected, and he has a very flat heel on his cf, so his heel

would

> not get down enough.) Anyhoo, I was thinking that I would hear

> alot of fussing and crying from him yesterday when he received

them

> at 5pm, but that just did not happen. (With the Markells he cried

so

> hard that he forgot to breathe, it was terrifying) It was

awesome.

> He went to bed at 7:30 and didn't wake up til 6:45am.. Its

actually

> the longest he's ever slept at night, go figure. I'm sure it had

> nothing to do with the shoes. Just trying to say that the Ponseti

> AFO is certainly a kinder and gentler approach to the DBB (Markell

> laceups).and if you're having GREAT difficulty like we did with

the

> Markells, its certainly worth a try. I hope all of you are doing

> well. Thank you all so much for your companionship and good

advice

> while coping with difficult fit of the Markells, etc..

>

> Kittredge

> 3-1-05 (left clubfoot)

> 3-28-01 (perfect feet!)

July 6, 2005

My son has always woken up 2 or 3 times a night and I have always blamed

his FAB then coincidently he got a new pair of shoes about 6 weeks ago and I

also noticed one day that he had ALL of his teeth through and he suddenly

started sleeping completely through the night. So now I don't know if he has

always had teething problems and now its gone or we have finally got a pair

of shoes just right. Now with the lighter mornings he does tend to wake up

early (sometimes 5.30/6.30 and has gone to 7.30am) and is ready to start the

day - but I can cope with that more that getting up all night wondering what

is wrong........ If he gets up at 6.30 I usually manage to get to work on

time so that is a bonus!!!

Rach, Steve & Connor age 27 months.

-- Re: Update on

Yeah! Good for you!! Nothing like a full night's sleep to make

everything happy again!

SHannon, mommy of:

Guinevere, on & Ava 8/4/04 RCF ABS FAB 16/7

> Hi all,

> My (18 weeks) received his Ponseti AFO (

sandals

> and bar) yesterday. What a difference from the markells!! (We

> tried the Markells for over two weeks and Nick was able to get

out

> of them EVERY single time...turns out his foot was not fully

> corrected, and he has a very flat heel on his cf, so his heel

would

> not get down enough.) Anyhoo, I was thinking that I would hear

> alot of fussing and crying from him yesterday when he received

them

> at 5pm, but that just did not happen. (With the Markells he cried

so

> hard that he forgot to breathe, it was terrifying) It was

awesome.

> He went to bed at 7:30 and didn't wake up til 6:45am.. Its

actually

> the longest he's ever slept at night, go figure. I'm sure it had

> nothing to do with the shoes. Just trying to say that the Ponseti

> AFO is certainly a kinder and gentler approach to the DBB (Markell

> laceups).and if you're having GREAT difficulty like we did with

the

> Markells, its certainly worth a try. I hope all of you are doing

> well. Thank you all so much for your companionship and good

advice

> while coping with difficult fit of the Markells, etc..

>

> Kittredge

> 3-1-05 (left clubfoot)

> 3-28-01 (perfect feet!)

July 6, 2005