Update on

[Guest guest]

Loretta,

I am so glad to hear from you. I don't know if you will remember me,

but I met you on Wednesday evening in Chicago, waiting around in

front of where Dr. H was doing her check-ups. My son, was in

the stroller that and Connor was having fun playing with. I

have a picture of the three of them together that is just precious.

I would love to email it to you if you would like. If you would,

email me at rollison @core.com.

Anyway, to my point! LOL! ) I am so glad to hear that is

doing so well. She definitely is a cutey and I think was quit

smitten with her, as she was the only one the whole time we were in

Chicago that he was happy to be around! LOL. He is such a funny

guy. I think he was a little overwhelmed with all the people around

as time went on. He had fun playing with her and Connor, too. I

hope that all goes well for you guys and that your insurance will

approve the ght without any trouble.

So, cool on the potty training thing. How, or what is she doing to

train herself? is doing well with his potty. Every time I am

in there, he sits on his and says, " I go potty, Momma. I go potty. "

It is too cute. I guess I will just have to buckle down and really

get on it because maybe he is ready. I just don't know what I will

do at night since he has his tube. But, I guess we could do pull-ups

at night for a while.

I am so glad to hear from you and I hope you can email me so I can

send you those cute pictuers! )

Talk to you soon,

Jodi R.

> Hello everyone,

> Welcome to all the new people here. I do not get to post

much,but

> want to let you know how has been doing.

> She will be 2 next month. She is currently 28.5 in. and 13# 14oz.

> She will a wt. check again at the end of the month.

> The endo here does not like the response from the periactin

alone

> so she wnats to start her on GHT as soon as the insurance approves

> it. She does not feel a feeding tube is needed yet.

> continues to have OT PT and will start ST this week.

> She is walking around and trying to repeat every thing she hears.

She

> did get braces for the ankle on the right and to stop the foot

> rolling on the left, which also has a lift on it.

> has started to potty train herself, so we are working on

> that also. She as been the easiest one to train in that dept. so

far.

> Well I think I hit the highlights, so I'll close for now

> Take care all,

> Loretta, mom to plus 3

[Guest guest]

Loretta,

I was reading your post regarding and possibly beginning GHT.

soon. Just wanted to add my two cents worth. 's weight seems

to be still low for an RSS two year old. My son wasn't able to begin

ght until he had adequate catch-up growth. For him to do that he

required a feeding tube placed when he was 18 months old weighing only

15 pounds and he also takes periactin. He was finally able to start

ght when he was just shy of three once he had grown more.

Please don't take this message the wrong way, I just want to share our

experience. Once you begin ght you need even more calories to keep up

with the extra growth. Without his g-tube this would not have been

possible. I know my son is growing at something like twice the normal

rate, this requires extra calories. I'm not saying you need a g-tube

for , I just want you to be aware of the extra calories she

will need to take in.

Again, just wanted to share our exerience.

Alison

> Hello everyone,

> Welcome to all the new people here. I do not get to post much,but

> want to let you know how has been doing.

> She will be 2 next month. She is currently 28.5 in. and 13# 14oz.

> She will a wt. check again at the end of the month.

> The endo here does not like the response from the periactin alone

> so she wnats to start her on GHT as soon as the insurance approves

> it. She does not feel a feeding tube is needed yet.

> continues to have OT PT and will start ST this week.

> She is walking around and trying to repeat every thing she hears. She

> did get braces for the ankle on the right and to stop the foot

> rolling on the left, which also has a lift on it.

> has started to potty train herself, so we are working on

> that also. She as been the easiest one to train in that dept. so far.

> Well I think I hit the highlights, so I'll close for now

> Take care all,

> Loretta, mom to plus 3

[Guest guest]

Hi Alison,

Thanks for the reply. I was not offended by your concerns and experience.

Dr. H. did mention the G-tube and nissen if the change in the periactin

administration did not give her a bust after 3 mos. The conflict is with my

endo .here. She wants to use the tab form and feels weather it is the liquid

or tab. it is not going to be enough without the ght. She does not want to

use a feeding tube since she eats well on her own and cause other issues

with feeding etc.

What is considered adequate caloric catch-up growth?

I am now again uneasy about if we are doing the right or best thing for

. I just pray to God that he helps us to choice what is best for her.

Thanks for the food for thought.

Loretta

Re: update on

> Loretta,

>

> I was reading your post regarding and possibly beginning GHT.

> soon. Just wanted to add my two cents worth. 's weight seems

> to be still low for an RSS two year old. My son wasn't able to begin

> ght until he had adequate catch-up growth. For him to do that he

> required a feeding tube placed when he was 18 months old weighing only

> 15 pounds and he also takes periactin. He was finally able to start

> ght when he was just shy of three once he had grown more.

>

> Please don't take this message the wrong way, I just want to share our

> experience. Once you begin ght you need even more calories to keep up

> with the extra growth. Without his g-tube this would not have been

> possible. I know my son is growing at something like twice the normal

> rate, this requires extra calories. I'm not saying you need a g-tube

> for , I just want you to be aware of the extra calories she

> will need to take in.

>

> Again, just wanted to share our exerience.

>

> Alison

>

>

>

> > Hello everyone,

> > Welcome to all the new people here. I do not get to post much,but

> > want to let you know how has been doing.

> > She will be 2 next month. She is currently 28.5 in. and 13# 14oz.

> > She will a wt. check again at the end of the month.

> > The endo here does not like the response from the periactin alone

> > so she wnats to start her on GHT as soon as the insurance approves

> > it. She does not feel a feeding tube is needed yet.

> > continues to have OT PT and will start ST this week.

> > She is walking around and trying to repeat every thing she hears. She

> > did get braces for the ankle on the right and to stop the foot

> > rolling on the left, which also has a lift on it.

> > has started to potty train herself, so we are working on

> > that also. She as been the easiest one to train in that dept. so far.

> > Well I think I hit the highlights, so I'll close for now

> > Take care all,

> > Loretta, mom to plus 3

>

>

>

>

>

>

[Guest guest]

Loretta,

I wish I could tell you just exactly what made Dr. H say Jake had

reached adequate catch-up growth. I'm not sure what her magical

formula is...maybe someone else on the board can help out here. I

can tell you that Jake was two months shy of 3 years old and was 84

cm in length and weighed 23 pounds when he began GHT. In just 20

months he has gained 8 pounds and a little over 6 inches in length.

I also wanted to add that Jake has a g-tube, but only uses it at

night when he sleeps. He eats three meals a day, plus snacks. We

pretend he doesn't have a tube during the day, because we worked way

to hard to let him slip and take the easy way out. Ha! (Unless he is

sick, then we use it during the day!) So, a g-tube can be used on a

limited basis if need be.

Best of luck in your decision, you will make the right one. Parents

always have to stick to their intuition....it never fails us!

Alison

> > > Hello everyone,

> > > Welcome to all the new people here. I do not get to post

much,but

> > > want to let you know how has been doing.

> > > She will be 2 next month. She is currently 28.5 in. and 13#

14oz.

> > > She will a wt. check again at the end of the month.

> > > The endo here does not like the response from the periactin

alone

> > > so she wnats to start her on GHT as soon as the insurance

approves

> > > it. She does not feel a feeding tube is needed yet.

> > > continues to have OT PT and will start ST this week.

> > > She is walking around and trying to repeat every thing she

hears. She

> > > did get braces for the ankle on the right and to stop the foot

> > > rolling on the left, which also has a lift on it.

> > > has started to potty train herself, so we are

working on

> > > that also. She as been the easiest one to train in that dept.

so far.

> > > Well I think I hit the highlights, so I'll close for now

> > > Take care all,

> > > Loretta, mom to plus 3

> >

> >

> >

> >

> >

> >

[Guest guest]

Loretta-

I so glad to hear that is doing well. I know that our Endo

will not consider GH for Pippin because he feels her catch up growth

has not stopped yet...Dr H agrees. She also is on the GT mostly at

night and only 3x per day for only 45 min after meals. Go with your

gut, I still question if getting Pippin the GT was the correct

decision...

Once she starts eating better orally, we will offer periactian. I

don't want to make her hungry...and then have her not be able to

eat...for some reason she doesn't like to swallow anything without

the consistency of refried beans, yogurt, mashed pot...etc..but every

week with her feeding therapy she's getting better. I figure by the

time she's 2 she'll be on it

But more importantly Pippin is also wanting to potty train lately!

Did these 2 girls get a plan together in Chicago? (lol) Nobody can

go to the potty in our house without Pippin running in and sitting

herself down...and then she insists on sitting on the big potty! It

is too funny!

Pippin is attending Early Intervention Preschool again this year and

is really doing well. She goes 2x per week for an hour and 25

minutes.

Team Lapish

Jenyfer

[Guest guest]

!

That is so great. I can read your happiness in your letter and am

thrilled that all is going well!

Beth H.

> Hello everyone!

>

> This summer had an Upper G.I. and Milk Scan/stomach emptying

tests

> done and the results were no emptying delay, but absolutely reflux,

> moderate reflux. So his gastro stopped the Zantac and started

Prevacid.

> currently takes a 15 mg Prevacid SoluTab (awesome by the way,

he

> loves to let it melt in his mouth) in the morning and 1/2 a

SoluTab (7.5

> mg) before dinner, with the instruction that he can have one tums

if

> he's having pain or before bed. She told us that eventually we will

> probably stop the evening dose of Prevacid depending on how he

does or

> possibly switch to Zantac before bed. Right now we like the way

this is

> going and my husband usually gives a tums before bed just to

help.

> has told us that his throat doesn't burn as much!

>

> Also, has started morning preschool 5 days per week. He

attends an

> Elemantary school that is 30 minutes from us with a D/HOH

(deaf/hard of

> hearing) program housed within. My older son, , attended

last year

> and we had built some really good relationships with the staff, so

> getting accommodations for was extremely easy. 's takes

the bus

> with his brother in the morning (1 hour ride, ugh) and comes home

by

> himself at lunch time. Since his rides are long I was worried

about the

> time between having breakfast and the regularly schedule snacktime

at

> school, so we set up a schedule where eats a small snack as

soon as

> he gets to school, then he eats snack with his peers, and then one

more

> small snack before he leaves for the day. He is gone from 8:00

> a.m.-12:30 p.m. So, even with all of that snacking he is still

eating a

> really good lunch, afternoon snack, and dinner!

>

> has been around 26-27 pounds this summer and I think that

with the

> switch to Prevacid and all of the extra snacking at school has

> gained weight (I weighed him with his clothes on and he was almost

30

> lbs., so shave off a pound for clothing and he's got to be around

28-29.

> He is so excited because he doesn't fit his pants from last

> winter/spring because they are too short for him and I've had to

untie

> the ties in his elastic shorts because he couldn't pull them up,

they

> were too tight. He even stopped using the potty seat on the toilet

> because he says " I got bigger, I don't need it anymore. "

>

> I'm so proud of my little guy! I've gotten nothing but good notes

back

> from school that he is just happy there and such a delight and his

> teacher said that he has captured the hearts of the staff. We

couldn't

> be more thrilled!

>

>

>

> , (RSS, Prevacid, Periactin, tums), and

>

>

>

[Guest guest]

That is great news for . I hope he keeps feeling better and

keeps putting on some weight.

B

4 3/4 RSS and Kelli 2 Non RSS

> Hello everyone!

>

> This summer had an Upper G.I. and Milk Scan/stomach emptying

tests

> done and the results were no emptying delay, but absolutely reflux,

> moderate reflux. So his gastro stopped the Zantac and started

Prevacid.

> currently takes a 15 mg Prevacid SoluTab (awesome by the way,

he

> loves to let it melt in his mouth) in the morning and 1/2 a

SoluTab (7.5

> mg) before dinner, with the instruction that he can have one tums

if

> he's having pain or before bed. She told us that eventually we will

> probably stop the evening dose of Prevacid depending on how he

does or

> possibly switch to Zantac before bed. Right now we like the way

this is

> going and my husband usually gives a tums before bed just to

help.

> has told us that his throat doesn't burn as much!

>

> Also, has started morning preschool 5 days per week. He

attends an

> Elemantary school that is 30 minutes from us with a D/HOH

(deaf/hard of

> hearing) program housed within. My older son, , attended

last year

> and we had built some really good relationships with the staff, so

> getting accommodations for was extremely easy. 's takes

the bus

> with his brother in the morning (1 hour ride, ugh) and comes home

by

> himself at lunch time. Since his rides are long I was worried

about the

> time between having breakfast and the regularly schedule snacktime

at

> school, so we set up a schedule where eats a small snack as

soon as

> he gets to school, then he eats snack with his peers, and then one

more

> small snack before he leaves for the day. He is gone from 8:00

> a.m.-12:30 p.m. So, even with all of that snacking he is still

eating a

> really good lunch, afternoon snack, and dinner!

>

> has been around 26-27 pounds this summer and I think that

with the

> switch to Prevacid and all of the extra snacking at school has

> gained weight (I weighed him with his clothes on and he was almost

30

> lbs., so shave off a pound for clothing and he's got to be around

28-29.

> He is so excited because he doesn't fit his pants from last

> winter/spring because they are too short for him and I've had to

untie

> the ties in his elastic shorts because he couldn't pull them up,

they

> were too tight. He even stopped using the potty seat on the toilet

> because he says " I got bigger, I don't need it anymore. "

>

> I'm so proud of my little guy! I've gotten nothing but good notes

back

> from school that he is just happy there and such a delight and his

> teacher said that he has captured the hearts of the staff. We

couldn't

> be more thrilled!

>

>

>

> , (RSS, Prevacid, Periactin, tums), and

>

>

>

[Guest guest]

,

Wow, it sounds like you had a GREAT summer with , and even got

some answers. That is so awesome. Thanks for posting your

encouraging news and showing us all how well he is doing. Congrats

on all of your success that you have had. Kye really sounds like he

is getting to be a big, independent boy! How cool is that!? )

Take care,

Jodi. R.

> Hello everyone!

>

> This summer had an Upper G.I. and Milk Scan/stomach emptying

tests

> done and the results were no emptying delay, but absolutely reflux,

> moderate reflux. So his gastro stopped the Zantac and started

Prevacid.

> currently takes a 15 mg Prevacid SoluTab (awesome by the way,

he

> loves to let it melt in his mouth) in the morning and 1/2 a SoluTab

(7.5

> mg) before dinner, with the instruction that he can have one tums if

> he's having pain or before bed. She told us that eventually we will

> probably stop the evening dose of Prevacid depending on how he does

or

> possibly switch to Zantac before bed. Right now we like the way

this is

> going and my husband usually gives a tums before bed just to

help.

> has told us that his throat doesn't burn as much!

>

> Also, has started morning preschool 5 days per week. He

attends an

> Elemantary school that is 30 minutes from us with a D/HOH

(deaf/hard of

> hearing) program housed within. My older son, , attended last

year

> and we had built some really good relationships with the staff, so

> getting accommodations for was extremely easy. 's takes

the bus

> with his brother in the morning (1 hour ride, ugh) and comes home by

> himself at lunch time. Since his rides are long I was worried about

the

> time between having breakfast and the regularly schedule snacktime

at

> school, so we set up a schedule where eats a small snack as

soon as

> he gets to school, then he eats snack with his peers, and then one

more

> small snack before he leaves for the day. He is gone from 8:00

> a.m.-12:30 p.m. So, even with all of that snacking he is still

eating a

> really good lunch, afternoon snack, and dinner!

>

> has been around 26-27 pounds this summer and I think that with

the

> switch to Prevacid and all of the extra snacking at school has

> gained weight (I weighed him with his clothes on and he was almost

30

> lbs., so shave off a pound for clothing and he's got to be around

28-29.

> He is so excited because he doesn't fit his pants from last

> winter/spring because they are too short for him and I've had to

untie

> the ties in his elastic shorts because he couldn't pull them up,

they

> were too tight. He even stopped using the potty seat on the toilet

> because he says " I got bigger, I don't need it anymore. "

>

> I'm so proud of my little guy! I've gotten nothing but good notes

back

> from school that he is just happy there and such a delight and his

> teacher said that he has captured the hearts of the staff. We

couldn't

> be more thrilled!

>

>

>

> , (RSS, Prevacid, Periactin, tums), and

>

>

>

[Guest guest]

Sounds like things are going well - congratS!!!

> Hello everyone!

>

> This summer had an Upper G.I. and Milk Scan/stomach emptying

tests

> done and the results were no emptying delay, but absolutely reflux,

> moderate reflux. So his gastro stopped the Zantac and started

Prevacid.

> currently takes a 15 mg Prevacid SoluTab (awesome by the way,

he

> loves to let it melt in his mouth) in the morning and 1/2 a SoluTab

(7.5

> mg) before dinner, with the instruction that he can have one tums if

> he's having pain or before bed. She told us that eventually we will

> probably stop the evening dose of Prevacid depending on how he does

or

> possibly switch to Zantac before bed. Right now we like the way

this is

> going and my husband usually gives a tums before bed just to

help.

> has told us that his throat doesn't burn as much!

>

> Also, has started morning preschool 5 days per week. He

attends an

> Elemantary school that is 30 minutes from us with a D/HOH

(deaf/hard of

> hearing) program housed within. My older son, , attended last

year

> and we had built some really good relationships with the staff, so

> getting accommodations for was extremely easy. 's takes

the bus

> with his brother in the morning (1 hour ride, ugh) and comes home by

> himself at lunch time. Since his rides are long I was worried about

the

> time between having breakfast and the regularly schedule snacktime

at

> school, so we set up a schedule where eats a small snack as

soon as

> he gets to school, then he eats snack with his peers, and then one

more

> small snack before he leaves for the day. He is gone from 8:00

> a.m.-12:30 p.m. So, even with all of that snacking he is still

eating a

> really good lunch, afternoon snack, and dinner!

>

> has been around 26-27 pounds this summer and I think that with

the

> switch to Prevacid and all of the extra snacking at school has

> gained weight (I weighed him with his clothes on and he was almost

30

> lbs., so shave off a pound for clothing and he's got to be around

28-29.

> He is so excited because he doesn't fit his pants from last

> winter/spring because they are too short for him and I've had to

untie

> the ties in his elastic shorts because he couldn't pull them up,

they

> were too tight. He even stopped using the potty seat on the toilet

> because he says " I got bigger, I don't need it anymore. "

>

> I'm so proud of my little guy! I've gotten nothing but good notes

back

> from school that he is just happy there and such a delight and his

> teacher said that he has captured the hearts of the staff. We

couldn't

> be more thrilled!

>

>

>

> , (RSS, Prevacid, Periactin, tums), and

>

>

>

[Guest guest]

,

Thanks for telling us about . I love those stories that give us hope. He

sounds like he is doing great.

Kathy (Jack, non RSS, 5 and Willie, RSS, 3 1/2, 24-ish lbs, Periactin,

Zantac)

[Guest guest]

Way to go and mom!!!

Coby had the same response the first couple of weeks. Periactin is a

miricle drug.

Great news, thanks for sharing.

le, mom to:

Shye, Brock and twins Coby(rss) and Carlee

20.2 lbs, 31.75 in, Humatrope GH and Periactin

[Guest guest]

Jane,

WOW! That's great!

mom to Autumn

>

> Just sharing with you all. I started on Periactin (1 week

ago today). When we started the Periactin she weighed 13# 15oz -

today we went in for a weight check and was 14# 10oz - AMAZING!!!

She did actually have some severe reflux once I started the

Periactin - so I called the Dr. and we started her on Zantac - not

one incident since. By the way - her dose for Zantac is .6ml 2X/day -

does this sound correct? I just wanted to share the good news!

Jane, mom to 13 months 14# 10oz, 26 " , Periactin, Zantac -

Gavin 4 and Aidan 2.

[Guest guest]

Congratulations on the weight gain, that is awesome!

le

[Guest guest]

My son, non SGA or RSS was very slim. I found a brand called Friends

at Filene's dept store that had velco-close pants so you could adjust

the waist. I also use sweatpants with drawstrings and have found

sometimes Old Navy pants are little bit narrower in the waist than

others.

>

> Hi all I haven't been able to get on the group latley, I have been

> sick, I wanted to give an update on , He HAS GROWN!!! We

> have been on the Growth Hormones now for over 6 months now and has

> grown 1 inch !! I am so excited . I had to buy new pants for the

> first time in a long time,I cried but didn't let him see me, It is

> so cool to buy him clothes, we need to try try to find a belt but

> they make them so big.He is doing wonderful in Kindergarten and his

> behavior at School is doing wonderful, home is a different story.I

> want to try to catch up on the posts on here and see how everyone

is

> doing I will pray for those sick and congrats the one's who are

> doing great!!! Talk with you all soon 28

> pounds 39 inches can wear 18 to 24 month clothes now!! Prevacid and

> Nutropin G H

[Guest guest]

Hi! Congrats on the growth! As for a small belt, I had the same

problem with my son who is non RSS/SGA but is small and very skinny.

We would buy a small boys leather belt and poke our own holes into it

where they are needed or find one you can cut and adjust to the size

you need. WE also often puchased pants with a built in belt or

adjustment strap...some jeans are now made with these and are great!

My son is 6 and is also in Kindergarten. I only wish he acted as

good at home as he does in school!

Mom to Autumn 9 1/2 mos RSS 13lbs 4 oz 24 1/2 inches, Skye 6 yrs non

RSS 42 inches 35 lbs, and Ocean 2 (terrible 2's!) years non RSS 27

lbs 35 inches.

>

> Hi all I haven't been able to get on the group latley, I have been

> sick, I wanted to give an update on , He HAS GROWN!!! We

> have been on the Growth Hormones now for over 6 months now and has

> grown 1 inch !! I am so excited . I had to buy new pants for the

> first time in a long time,I cried but didn't let him see me, It is

> so cool to buy him clothes, we need to try try to find a belt but

> they make them so big.He is doing wonderful in Kindergarten and his

> behavior at School is doing wonderful, home is a different story.I

> want to try to catch up on the posts on here and see how everyone

is

> doing I will pray for those sick and congrats the one's who are

> doing great!!! Talk with you all soon 28

> pounds 39 inches can wear 18 to 24 month clothes now!! Prevacid and

> Nutropin G H

[Guest guest]

Congratulations - how terrific. I get so excited to hear these stories!

Jane mom to

[Guest guest]

Hi Loretta,

It's soooooo great to hear from you. I was just editing the pics of

Coby, , and Pippin from the convention. I can send them to

you as soon as I get the chance.

Glad to hear is doing well. The ear infections are nasty.

Coby has had tubes 2 times so far, but the 2nd set have done the

trick.

le, mom to:

Shye almost 10, Brock 8, and Coby (rss) & Carlee 2

Coby's new stats: 20.2 lbs 31 3/4 in Humatrope GH & Periactin

[Guest guest]

- Hi thank you for the response! I haven't heard or those kind of

pants, I will have to check in on those I do like OLd Navy though I

can get him so sweatpants there to! Thank you so much for the

suggestions, it is so funny to see him with a pair of pants on and

they just fall right off.The pants that I finally found were at

target they don't have the snaps in the bottom he can't stand those!

Well again thank you and I will keep my eye out on them

-- In RSS-

Support , " " <mbdonnell@h...> wrote:

>

> My son, non SGA or RSS was very slim. I found a brand called

Friends

> at Filene's dept store that had velco-close pants so you could

adjust

> the waist. I also use sweatpants with drawstrings and have found

> sometimes Old Navy pants are little bit narrower in the waist than

> others.

>

>

> >

> > Hi all I haven't been able to get on the group latley, I have

been

> > sick, I wanted to give an update on , He HAS GROWN!!! We

> > have been on the Growth Hormones now for over 6 months now and

has

> > grown 1 inch !! I am so excited . I had to buy new pants for the

> > first time in a long time,I cried but didn't let him see me, It

is

> > so cool to buy him clothes, we need to try try to find a belt

but

> > they make them so big.He is doing wonderful in Kindergarten and

his

> > behavior at School is doing wonderful, home is a different

story.I

> > want to try to catch up on the posts on here and see how

everyone

> is

> > doing I will pray for those sick and congrats the one's who are

> > doing great!!! Talk with you all soon 28

> > pounds 39 inches can wear 18 to 24 month clothes now!! Prevacid

and

> > Nutropin G H

[Guest guest]

-Hi thanks for the Idea's I will look into those I haven't heard of

those kind of pants do you know what store? I found a leather tweed

belt and we were able to poke holes in it, thanks I will try the

leather one to! acts awful here at home I don't know what his

problem is latley, does great in school then comes home and whew

watch out he argues and I try to ignore it but he goes on and

on,Hopefully this is just a phase! Thank you for writting and giving

me the info on the pants and belt! Talk soon

--

In RSS-Support , " anderkat3 " <anderkat3@y...> wrote:

>

> Hi! Congrats on the growth! As for a small belt, I had the same

> problem with my son who is non RSS/SGA but is small and very

skinny.

> We would buy a small boys leather belt and poke our own holes into

it

> where they are needed or find one you can cut and adjust to the

size

> you need. WE also often puchased pants with a built in belt or

> adjustment strap...some jeans are now made with these and are

great!

> My son is 6 and is also in Kindergarten. I only wish he acted as

> good at home as he does in school!

>

>

> Mom to Autumn 9 1/2 mos RSS 13lbs 4 oz 24 1/2 inches, Skye 6 yrs

non

> RSS 42 inches 35 lbs, and Ocean 2 (terrible 2's!) years non RSS 27

> lbs 35 inches.

>

>

>

>

> >

> > Hi all I haven't been able to get on the group latley, I have

been

> > sick, I wanted to give an update on , He HAS GROWN!!! We

> > have been on the Growth Hormones now for over 6 months now and

has

> > grown 1 inch !! I am so excited . I had to buy new pants for the

> > first time in a long time,I cried but didn't let him see me, It

is

> > so cool to buy him clothes, we need to try try to find a belt

but

> > they make them so big.He is doing wonderful in Kindergarten and

his

> > behavior at School is doing wonderful, home is a different

story.I

> > want to try to catch up on the posts on here and see how

everyone

> is

> > doing I will pray for those sick and congrats the one's who are

> > doing great!!! Talk with you all soon 28

> > pounds 39 inches can wear 18 to 24 month clothes now!! Prevacid

and

> > Nutropin G H

[Guest guest]

Congratulations on growing!! I can't weight until I can see the effects

of the humatrope on aubrey

tonya

wrote:

- Hi thank you for the response! I haven't heard or those kind of

pants, I will have to check in on those I do like OLd Navy though I

can get him so sweatpants there to! Thank you so much for the

suggestions, it is so funny to see him with a pair of pants on and

they just fall right off.The pants that I finally found were at

target they don't have the snaps in the bottom he can't stand those!

Well again thank you and I will keep my eye out on them

-- In RSS-

Support , " " <mbdonnell@h...> wrote:

>

> My son, non SGA or RSS was very slim. I found a brand called

Friends

> at Filene's dept store that had velco-close pants so you could

adjust

> the waist. I also use sweatpants with drawstrings and have found

> sometimes Old Navy pants are little bit narrower in the waist than

> others.

>

>

> >

> > Hi all I haven't been able to get on the group latley, I have

been

> > sick, I wanted to give an update on , He HAS GROWN!!! We

> > have been on the Growth Hormones now for over 6 months now and

has

> > grown 1 inch !! I am so excited . I had to buy new pants for the

> > first time in a long time,I cried but didn't let him see me, It

is

> > so cool to buy him clothes, we need to try try to find a belt

but

> > they make them so big.He is doing wonderful in Kindergarten and

his

> > behavior at School is doing wonderful, home is a different

story.I

> > want to try to catch up on the posts on here and see how

everyone

> is

> > doing I will pray for those sick and congrats the one's who are

> > doing great!!! Talk with you all soon 28

> > pounds 39 inches can wear 18 to 24 month clothes now!! Prevacid

and

> > Nutropin G H

[Guest guest]

hey jane!!

that is so great!!! good for katie!!!WHEN CHRISTOPHER FIRST STARTED

IT HE GAIN 1LB A MONTH FOR THE FIRST 3 MONTHS!!! oops hit the caps

lock key!! LOL!! take care!!

jodie c.

>

> Just sharing with you all. I started on Periactin (1 week

ago today). When we started the Periactin she weighed 13# 15oz -

today we went in for a weight check and was 14# 10oz - AMAZING!!!

She did actually have some severe reflux once I started the

Periactin - so I called the Dr. and we started her on Zantac - not

one incident since. By the way - her dose for Zantac is .6ml

2X/day - does this sound correct? I just wanted to share the good

news! Jane, mom to 13 months 14# 10oz, 26 " , Periactin,

Zantac - Gavin 4 and Aidan 2.

[Guest guest]

hey lorreta!!

allison sounds like she had fun trick or treating!!! your walk went

well even though the weather didnt, after walking 10miles know

wonder you are sore!!! sounds like she is doing realluy well on the

ght, is she on periactin as well? it is important that she takes in

1 1/2xmore calories to gain the weight as she grows on the ght!!

good luck!!

jodie c.

>

>

> Hi everyone,

>

> I just wanted to give you a quick update on . She turned

2

> on Oct. 16. We had our walk for MAGIC on Oct. 24 among the rain

> drops. I walked 10 miles and I am still feeling some of the aches

> from it. We collected $1190. started speech therapy in

Sept.

> and started GHT on Sept. 29. She does very well with the

injection.

> At her 2 yr. Check up she grew 1/2 in. and gained only 2oz. She is

14

> lbs. 13oz. and 29.5 in. She does have sinus congestion which of

> course caused her to also develope ear infections So on the

> Amoxicillin she went. She will be getting a lift for in her left

shoe

> soon. She had fun trick or treating tonight and loves that candy.

I

> hope you recieved more treats then tricks tonight.

> Loretta

[Guest guest]

christine,

also try the braided leather belts you don't have to poke hole in them and you

can get small incerment in them

cara mom to jacob

wrote:

-Hi thanks for the Idea's I will look into those I haven't heard of

those kind of pants do you know what store? I found a leather tweed

belt and we were able to poke holes in it, thanks I will try the

leather one to! acts awful here at home I don't know what his

problem is latley, does great in school then comes home and whew

watch out he argues and I try to ignore it but he goes on and

on,Hopefully this is just a phase! Thank you for writting and giving

me the info on the pants and belt! Talk soon

--

In RSS-Support , " anderkat3 " <anderkat3@y...> wrote:

>

> Hi! Congrats on the growth! As for a small belt, I had the same

> problem with my son who is non RSS/SGA but is small and very

skinny.

> We would buy a small boys leather belt and poke our own holes into

it

> where they are needed or find one you can cut and adjust to the

size

> you need. WE also often puchased pants with a built in belt or

> adjustment strap...some jeans are now made with these and are

great!

> My son is 6 and is also in Kindergarten. I only wish he acted as

> good at home as he does in school!

>

>

> Mom to Autumn 9 1/2 mos RSS 13lbs 4 oz 24 1/2 inches, Skye 6 yrs

non

> RSS 42 inches 35 lbs, and Ocean 2 (terrible 2's!) years non RSS 27

> lbs 35 inches.

>

>

>

>

> >

> > Hi all I haven't been able to get on the group latley, I have

been

> > sick, I wanted to give an update on , He HAS GROWN!!! We

> > have been on the Growth Hormones now for over 6 months now and

has

> > grown 1 inch !! I am so excited . I had to buy new pants for the

> > first time in a long time,I cried but didn't let him see me, It

is

> > so cool to buy him clothes, we need to try try to find a belt

but

> > they make them so big.He is doing wonderful in Kindergarten and

his

> > behavior at School is doing wonderful, home is a different

story.I

> > want to try to catch up on the posts on here and see how

everyone

> is

> > doing I will pray for those sick and congrats the one's who are

> > doing great!!! Talk with you all soon 28

> > pounds 39 inches can wear 18 to 24 month clothes now!! Prevacid

and

> > Nutropin G H

[Guest guest]

Hi Loretta-

I'm glad to hear that is doing so well...I'm anxious to go to

Pippins 2year check up to make our decision on GH. I'm sure she'll

be on periactin first...So many decisions...Give your sweet little

girl a hug from Pippin

Team Lapish

[Guest guest]

Hey Jenyfer,

Glad to hear from you. I was not pleased with the 2 oz. wt gain because she

usually averages about 6 oz./mo. but she is more active and she has had the

sinus drainage that is makimg her vomit at night, plus the ear

infections,soooo i guess it was not to bad at least she gained. I hope next

month is a larger increase to help me feel better that the periactin and

genotropin gh is affective. How is everyone adjusting to little, or should

I say, big guy Ryker. Rest up now because you will need all the energy you

can get in a few months and years from now. busy,busy, busy! Really ihope

you are well. A big cyber hug to your cuties too.

take care

Loretta

Re: update on

>

>

> Hi Loretta-

>

> I'm glad to hear that is doing so well...I'm anxious to go to

> Pippins 2year check up to make our decision on GH. I'm sure she'll

> be on periactin first...So many decisions...Give your sweet little

> girl a hug from Pippin

>

> Team Lapish

>

>

>

>

>

>

>

>