New Member

[Guest guest]

Dr. Dobbs is our doctor and the more i read on the internet and the people that

I talk to do nothing but praise him. We are very very lucky.

Sydney is doing better with her casts this afternoon. She is already lifting

them. Right now as i look at her while she is sleeping she has her legs in the

air and when she gets tired she puts them back on the pillow.

It has just been hard not knowing the cause and the terminology and treatment.

But i am getting more positive as the day goes on because she isnt acting like

she is as bugged with the casts.

---------------------------------

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[Guest guest]

Dr. Dobbs is our doctor and the more i read on the internet and the people that

I talk to do nothing but praise him. We are very very lucky.

Sydney is doing better with her casts this afternoon. She is already lifting

them. Right now as i look at her while she is sleeping she has her legs in the

air and when she gets tired she puts them back on the pillow.

It has just been hard not knowing the cause and the terminology and treatment.

But i am getting more positive as the day goes on because she isnt acting like

she is as bugged with the casts.

---------------------------------

Discover Yahoo!

Find restaurants, movies, travel & more fun for the weekend. Check it out!

[Guest guest]

,

First let me say Congratulations as well. If you are taking Sydney to

Shriners you do have the opportunity to see one of the best clubfoot

doctors there is, Dr. Dobbs. If he is not Sydney's doctor I

would highly recommend switching to him. I am not familiar with the

other doctors who do clubfoot corrections at St. Louis Shriners but I

know that Dr. Dobbs is the best -- If he is already Sydney's doctor

then you have nothing to worry about, you are in great hands. It is

common for babies to be fussy for the first day after getting a cast,

sometimes even a couple days but they usually adjust very quickly.

Some parents have found that putting a rolled up towel or blanket

under the casted leg (or legs) helps as this may make it more

comfortable for her. You should check to be sure she has good

circulation (you can check by pressing her toes, they should turn

white when you put pressure on them and then when you release the

color will return), also be sure her foot is not slipping in the cast

(toes should stay in the same spot, not slipping back in cast at all).

If you experience these problems call your doctor right away -- and

again, especially if you are experiencing problems, I would definitely

check out Dr. Dobbs if he is not already your doctor.

Best of luck,

Jenna (4/7/01) & Sammy (9/25/04, RCF Dobbs Brace 16-18/7)

> > Hi guys, My name is . My daughter Sydney is thirteen days old

> > and we are seeing a dr in St. Louis. We are learning about club feet

> > right now becuase no one else in our families has it. I would

> > appreciate any information that anyone can offer because i have been

> > having a tough time with it all; she is my first child. We went to

> > Shriner's in St. Louis yesterday and they started the casting

> process.

> > She has been extremely fussy since we got home and she did NOT sleep

> > at all last night, so now I have been up for a very long time. So if

> > anyone has any info on anything please feel free to help me out. God

> > Bless.

[Guest guest]

,

First let me say Congratulations as well. If you are taking Sydney to

Shriners you do have the opportunity to see one of the best clubfoot

doctors there is, Dr. Dobbs. If he is not Sydney's doctor I

would highly recommend switching to him. I am not familiar with the

other doctors who do clubfoot corrections at St. Louis Shriners but I

know that Dr. Dobbs is the best -- If he is already Sydney's doctor

then you have nothing to worry about, you are in great hands. It is

common for babies to be fussy for the first day after getting a cast,

sometimes even a couple days but they usually adjust very quickly.

Some parents have found that putting a rolled up towel or blanket

under the casted leg (or legs) helps as this may make it more

comfortable for her. You should check to be sure she has good

circulation (you can check by pressing her toes, they should turn

white when you put pressure on them and then when you release the

color will return), also be sure her foot is not slipping in the cast

(toes should stay in the same spot, not slipping back in cast at all).

If you experience these problems call your doctor right away -- and

again, especially if you are experiencing problems, I would definitely

check out Dr. Dobbs if he is not already your doctor.

Best of luck,

Jenna (4/7/01) & Sammy (9/25/04, RCF Dobbs Brace 16-18/7)

> > Hi guys, My name is . My daughter Sydney is thirteen days old

> > and we are seeing a dr in St. Louis. We are learning about club feet

> > right now becuase no one else in our families has it. I would

> > appreciate any information that anyone can offer because i have been

> > having a tough time with it all; she is my first child. We went to

> > Shriner's in St. Louis yesterday and they started the casting

> process.

> > She has been extremely fussy since we got home and she did NOT sleep

> > at all last night, so now I have been up for a very long time. So if

> > anyone has any info on anything please feel free to help me out. God

> > Bless.

[Guest guest]

,

You have come to the right place to learn about club feet. I'm still learning,

but there are others here that just know so much about the monkey feet. If you

have a good Ponseti doctor that is about 75 % of the battle. Those little feet

will look so good in a few months they will take your breath away. That said,

it is still hard. And guess what, it is okay to have a tough time. You will no

doubt here, " it could be worse " . And yes, it could be. Never let anyone tell

you that since it could be worse, what you are doing is not tough. It is okay

to struggle and it doesn't make you less of a mommy if you struggle. A new baby

is a huge adjustment without the monkey feet. Postpartum emotions and lack of

sleep don't help much either. On the other end, you can't let yourself get too

discouraged. This list is a great resource and there is always someone here

that can help you. So give yourself a hug, cry a little (or alot if you are

like me) and let's get those feetsies fixed.

If you baby is just very fussy, this is normal. I think the first cast is the

worst and each one after it gets better. We didn't start Ponseti, we went 4 1/2

months with another ortho who, thought he did his best, actually hindered rather

than helped. He did know when he was licked because he referred us out and the

Ponseti doc did wonders on Tenny's foot. Five weeks and a tenotomy later he has

a beautiful foot. The nonPonseti casts were so painful. Tenny always cried,

always. When we switched, the pain was gone, almost magically. I had a totally

different baby. So all that babble was to say, the cast shouldn't be painful.

If she is in pain, get her back to the doctor. I know it makes you tired to

have her not sleep. I can't give you much encouragement in that department

because I don't think I have slept well for many many years.

For us, holding Tenny was what he wanted. So I held a baby and held a baby and

held a baby. While this is not always possible for every mom, it worked for us.

(and yes, my house, husband, and other kids had to adjust). It is hard to do,

but when the frustrations come just remember that you a fixing a baby's foot.

It doesn't get the work done, it doesn't get you any sleep, it doesn't get you a

much needed shower, but it does help you to keep perspective. Babies don't

keep. The phrase " enjoy them while they are young, they grow up so fast " is

true (but most of the time I am too tired to enjoy anything).

It may seem like an eternity now, but it will come. They day that those casts

come off. Then comes the day when you get to reduce hours in the brace. And

the day when they stand on those beautiful feet that used to be so twisted. And

the day that they walk on those feet. (We are waiting for that day to come,

Tenny is 11 mo.) And then the day that they run. And finally the day they say

thanks mom for fixing my feet (at least I hope so). It is tough, but it is

worth it. You are doing this because you are a mommy and that is what mommies

do.

mom to

Tenny 7/15/04 FAB 18/7

and his crazy group of siblings.

new member

Hi guys, My name is . My daughter Sydney is thirteen days old

and we are seeing a dr in St. Louis. We are learning about club feet

right now becuase no one else in our families has it. I would

appreciate any information that anyone can offer because i have been

having a tough time with it all; she is my first child. We went to

Shriner's in St. Louis yesterday and they started the casting process.

She has been extremely fussy since we got home and she did NOT sleep

at all last night, so now I have been up for a very long time. So if

anyone has any info on anything please feel free to help me out. God

Bless.

[Guest guest]

,

You have come to the right place to learn about club feet. I'm still learning,

but there are others here that just know so much about the monkey feet. If you

have a good Ponseti doctor that is about 75 % of the battle. Those little feet

will look so good in a few months they will take your breath away. That said,

it is still hard. And guess what, it is okay to have a tough time. You will no

doubt here, " it could be worse " . And yes, it could be. Never let anyone tell

you that since it could be worse, what you are doing is not tough. It is okay

to struggle and it doesn't make you less of a mommy if you struggle. A new baby

is a huge adjustment without the monkey feet. Postpartum emotions and lack of

sleep don't help much either. On the other end, you can't let yourself get too

discouraged. This list is a great resource and there is always someone here

that can help you. So give yourself a hug, cry a little (or alot if you are

like me) and let's get those feetsies fixed.

If you baby is just very fussy, this is normal. I think the first cast is the

worst and each one after it gets better. We didn't start Ponseti, we went 4 1/2

months with another ortho who, thought he did his best, actually hindered rather

than helped. He did know when he was licked because he referred us out and the

Ponseti doc did wonders on Tenny's foot. Five weeks and a tenotomy later he has

a beautiful foot. The nonPonseti casts were so painful. Tenny always cried,

always. When we switched, the pain was gone, almost magically. I had a totally

different baby. So all that babble was to say, the cast shouldn't be painful.

If she is in pain, get her back to the doctor. I know it makes you tired to

have her not sleep. I can't give you much encouragement in that department

because I don't think I have slept well for many many years.

For us, holding Tenny was what he wanted. So I held a baby and held a baby and

held a baby. While this is not always possible for every mom, it worked for us.

(and yes, my house, husband, and other kids had to adjust). It is hard to do,

but when the frustrations come just remember that you a fixing a baby's foot.

It doesn't get the work done, it doesn't get you any sleep, it doesn't get you a

much needed shower, but it does help you to keep perspective. Babies don't

keep. The phrase " enjoy them while they are young, they grow up so fast " is

true (but most of the time I am too tired to enjoy anything).

It may seem like an eternity now, but it will come. They day that those casts

come off. Then comes the day when you get to reduce hours in the brace. And

the day when they stand on those beautiful feet that used to be so twisted. And

the day that they walk on those feet. (We are waiting for that day to come,

Tenny is 11 mo.) And then the day that they run. And finally the day they say

thanks mom for fixing my feet (at least I hope so). It is tough, but it is

worth it. You are doing this because you are a mommy and that is what mommies

do.

mom to

Tenny 7/15/04 FAB 18/7

and his crazy group of siblings.

new member

Hi guys, My name is . My daughter Sydney is thirteen days old

and we are seeing a dr in St. Louis. We are learning about club feet

right now becuase no one else in our families has it. I would

appreciate any information that anyone can offer because i have been

having a tough time with it all; she is my first child. We went to

Shriner's in St. Louis yesterday and they started the casting process.

She has been extremely fussy since we got home and she did NOT sleep

at all last night, so now I have been up for a very long time. So if

anyone has any info on anything please feel free to help me out. God

Bless.

[Guest guest]

Welcome ! We were in the same position as you. No one in my family had

club feet and is our first. I know everything is a shock at first, and

you feel like you are just moving through everything in a haze. But, it will

get better. Sydney may be fussy at first, but should adjust in a day or so to

the casts. If she seems to be in more pain than necessary, you may want to

contact your doctor. She should have no pain, but the casts may be a little

buggy! Good luck with everything! You have come to the right place because

everyone here is SO wonderful!

11/19/04

new member

Hi guys, My name is . My daughter Sydney is thirteen days old

and we are seeing a dr in St. Louis. We are learning about club feet

right now becuase no one else in our families has it. I would

appreciate any information that anyone can offer because i have been

having a tough time with it all; she is my first child. We went to

Shriner's in St. Louis yesterday and they started the casting process.

She has been extremely fussy since we got home and she did NOT sleep

at all last night, so now I have been up for a very long time. So if

anyone has any info on anything please feel free to help me out. God

Bless.

[Guest guest]

Welcome ! We were in the same position as you. No one in my family had

club feet and is our first. I know everything is a shock at first, and

you feel like you are just moving through everything in a haze. But, it will

get better. Sydney may be fussy at first, but should adjust in a day or so to

the casts. If she seems to be in more pain than necessary, you may want to

contact your doctor. She should have no pain, but the casts may be a little

buggy! Good luck with everything! You have come to the right place because

everyone here is SO wonderful!

11/19/04

new member

Hi guys, My name is . My daughter Sydney is thirteen days old

and we are seeing a dr in St. Louis. We are learning about club feet

right now becuase no one else in our families has it. I would

appreciate any information that anyone can offer because i have been

having a tough time with it all; she is my first child. We went to

Shriner's in St. Louis yesterday and they started the casting process.

She has been extremely fussy since we got home and she did NOT sleep

at all last night, so now I have been up for a very long time. So if

anyone has any info on anything please feel free to help me out. God

Bless.

[Guest guest]

,

I have to second everything said. Dr. Dobbs is also my son's

doctor. My son will be four in August. He has been treated by Dr.

Dobbs since he was 2 weeks old. was fussy for a couple of days

with each cast change. We were originally scheduled with a doctor

besides Dr. Dobbs at Shriner's, but, thankfully, we changed to him.

Pam and (8-12-01)

> > > Hi guys, My name is . My daughter Sydney is thirteen days

old

> > > and we are seeing a dr in St. Louis. We are learning about club

feet

> > > right now becuase no one else in our families has it. I would

> > > appreciate any information that anyone can offer because i have

been

> > > having a tough time with it all; she is my first child. We went

to

> > > Shriner's in St. Louis yesterday and they started the casting

> > process.

> > > She has been extremely fussy since we got home and she did NOT

sleep

> > > at all last night, so now I have been up for a very long time.

So if

> > > anyone has any info on anything please feel free to help me

out. God

> > > Bless.

[Guest guest]

,

I have to second everything said. Dr. Dobbs is also my son's

doctor. My son will be four in August. He has been treated by Dr.

Dobbs since he was 2 weeks old. was fussy for a couple of days

with each cast change. We were originally scheduled with a doctor

besides Dr. Dobbs at Shriner's, but, thankfully, we changed to him.

Pam and (8-12-01)

> > > Hi guys, My name is . My daughter Sydney is thirteen days

old

> > > and we are seeing a dr in St. Louis. We are learning about club

feet

> > > right now becuase no one else in our families has it. I would

> > > appreciate any information that anyone can offer because i have

been

> > > having a tough time with it all; she is my first child. We went

to

> > > Shriner's in St. Louis yesterday and they started the casting

> > process.

> > > She has been extremely fussy since we got home and she did NOT

sleep

> > > at all last night, so now I have been up for a very long time.

So if

> > > anyone has any info on anything please feel free to help me

out. God

> > > Bless.

[Guest guest]

,

Well that just made me all weepy, the " Thanks, Mommy for fixing my

feet " thing...and when I get weepy I have to tell everyone in this

group thank you again, I just can't imagine having gone through this

whole thing without you guys. I just marvel at you all, all the

mommies (and daddies too) give yourselves a big pat on the back

because you all are doing a great thing here. ((((Group Hug!!!))))

Jenna (4/7/01) & Sammy (9/25/04, RCF Dobbs brace 16-18/7)

> ,

>

> You have come to the right place to learn about club feet. I'm

still learning, but there are others here that just know so much

about the monkey feet. If you have a good Ponseti doctor that is

about 75 % of the battle. Those little feet will look so good in a

few months they will take your breath away. That said, it is still

hard. And guess what, it is okay to have a tough time. You will no

doubt here, " it could be worse " . And yes, it could be. Never let

anyone tell you that since it could be worse, what you are doing is

not tough. It is okay to struggle and it doesn't make you less of a

mommy if you struggle. A new baby is a huge adjustment without the

monkey feet. Postpartum emotions and lack of sleep don't help much

either. On the other end, you can't let yourself get too

discouraged. This list is a great resource and there is always

someone here that can help you. So give yourself a hug, cry a little

(or alot if you are like me) and let's get those feetsies fixed.

> If you baby is just very fussy, this is normal. I think the first

cast is the worst and each one after it gets better. We didn't start

Ponseti, we went 4 1/2 months with another ortho who, thought he did

his best, actually hindered rather than helped. He did know when he

was licked because he referred us out and the Ponseti doc did wonders

on Tenny's foot. Five weeks and a tenotomy later he has a beautiful

foot. The nonPonseti casts were so painful. Tenny always cried,

always. When we switched, the pain was gone, almost magically. I

had a totally different baby. So all that babble was to say, the

cast shouldn't be painful. If she is in pain, get her back to the

doctor. I know it makes you tired to have her not sleep. I can't

give you much encouragement in that department because I don't think

I have slept well for many many years.

> For us, holding Tenny was what he wanted. So I held a baby and

held a baby and held a baby. While this is not always possible for

every mom, it worked for us. (and yes, my house, husband, and other

kids had to adjust). It is hard to do, but when the frustrations

come just remember that you a fixing a baby's foot. It doesn't get

the work done, it doesn't get you any sleep, it doesn't get you a

much needed shower, but it does help you to keep perspective. Babies

don't keep. The phrase " enjoy them while they are young, they grow

up so fast " is true (but most of the time I am too tired to enjoy

anything).

> It may seem like an eternity now, but it will come. They day that

those casts come off. Then comes the day when you get to reduce

hours in the brace. And the day when they stand on those beautiful

feet that used to be so twisted. And the day that they walk on those

feet. (We are waiting for that day to come, Tenny is 11 mo.) And

then the day that they run. And finally the day they say thanks mom

for fixing my feet (at least I hope so). It is tough, but it is

worth it. You are doing this because you are a mommy and that is

what mommies do.

> mom to

> Tenny 7/15/04 FAB 18/7

> and his crazy group of siblings.

>

> new member

>

>

> Hi guys, My name is . My daughter Sydney is thirteen days

old

> and we are seeing a dr in St. Louis. We are learning about club

feet

> right now becuase no one else in our families has it. I would

> appreciate any information that anyone can offer because i have

been

> having a tough time with it all; she is my first child. We went

to

> Shriner's in St. Louis yesterday and they started the casting

process.

> She has been extremely fussy since we got home and she did NOT

sleep

> at all last night, so now I have been up for a very long time. So

if

> anyone has any info on anything please feel free to help me out.

God

> Bless.

>

>

>

>

>

>

>

[Guest guest]

,

Well that just made me all weepy, the " Thanks, Mommy for fixing my

feet " thing...and when I get weepy I have to tell everyone in this

group thank you again, I just can't imagine having gone through this

whole thing without you guys. I just marvel at you all, all the

mommies (and daddies too) give yourselves a big pat on the back

because you all are doing a great thing here. ((((Group Hug!!!))))

Jenna (4/7/01) & Sammy (9/25/04, RCF Dobbs brace 16-18/7)

> ,

>

> You have come to the right place to learn about club feet. I'm

still learning, but there are others here that just know so much

about the monkey feet. If you have a good Ponseti doctor that is

about 75 % of the battle. Those little feet will look so good in a

few months they will take your breath away. That said, it is still

hard. And guess what, it is okay to have a tough time. You will no

doubt here, " it could be worse " . And yes, it could be. Never let

anyone tell you that since it could be worse, what you are doing is

not tough. It is okay to struggle and it doesn't make you less of a

mommy if you struggle. A new baby is a huge adjustment without the

monkey feet. Postpartum emotions and lack of sleep don't help much

either. On the other end, you can't let yourself get too

discouraged. This list is a great resource and there is always

someone here that can help you. So give yourself a hug, cry a little

(or alot if you are like me) and let's get those feetsies fixed.

> If you baby is just very fussy, this is normal. I think the first

cast is the worst and each one after it gets better. We didn't start

Ponseti, we went 4 1/2 months with another ortho who, thought he did

his best, actually hindered rather than helped. He did know when he

was licked because he referred us out and the Ponseti doc did wonders

on Tenny's foot. Five weeks and a tenotomy later he has a beautiful

foot. The nonPonseti casts were so painful. Tenny always cried,

always. When we switched, the pain was gone, almost magically. I

had a totally different baby. So all that babble was to say, the

cast shouldn't be painful. If she is in pain, get her back to the

doctor. I know it makes you tired to have her not sleep. I can't

give you much encouragement in that department because I don't think

I have slept well for many many years.

> For us, holding Tenny was what he wanted. So I held a baby and

held a baby and held a baby. While this is not always possible for

every mom, it worked for us. (and yes, my house, husband, and other

kids had to adjust). It is hard to do, but when the frustrations

come just remember that you a fixing a baby's foot. It doesn't get

the work done, it doesn't get you any sleep, it doesn't get you a

much needed shower, but it does help you to keep perspective. Babies

don't keep. The phrase " enjoy them while they are young, they grow

up so fast " is true (but most of the time I am too tired to enjoy

anything).

> It may seem like an eternity now, but it will come. They day that

those casts come off. Then comes the day when you get to reduce

hours in the brace. And the day when they stand on those beautiful

feet that used to be so twisted. And the day that they walk on those

feet. (We are waiting for that day to come, Tenny is 11 mo.) And

then the day that they run. And finally the day they say thanks mom

for fixing my feet (at least I hope so). It is tough, but it is

worth it. You are doing this because you are a mommy and that is

what mommies do.

> mom to

> Tenny 7/15/04 FAB 18/7

> and his crazy group of siblings.

>

> new member

>

>

> Hi guys, My name is . My daughter Sydney is thirteen days

old

> and we are seeing a dr in St. Louis. We are learning about club

feet

> right now becuase no one else in our families has it. I would

> appreciate any information that anyone can offer because i have

been

> having a tough time with it all; she is my first child. We went

to

> Shriner's in St. Louis yesterday and they started the casting

process.

> She has been extremely fussy since we got home and she did NOT

sleep

> at all last night, so now I have been up for a very long time. So

if

> anyone has any info on anything please feel free to help me out.

God

> Bless.

>

>

>

>

>

>

>

[Guest guest]

Hello and welcome.

I agree with the others, if you are in St. Louis, hopefully you are seeing

Dr. Dobbs. If not, switch immediately! It is hard to get through the

first few cast changes emotionally. Your hormones are still off the

charts and it is only natural to cry and feel so badly for your daughter.

Please know that it does get easier day by day

and before you know it, your down to nights and naptime with the brace.

Also, the good thing is the baby doesn't know any different and it becomes

the norm for her. She will adjust very quickly and even surprise you!

Someone did mention to check the toes to make sure there is circulation.

Also, it doesn't hurt to give the baby a little Motrin or Tylenol to make

them more comfortable.

Hang in there, .

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

Hello and welcome.

I agree with the others, if you are in St. Louis, hopefully you are seeing

Dr. Dobbs. If not, switch immediately! It is hard to get through the

first few cast changes emotionally. Your hormones are still off the

charts and it is only natural to cry and feel so badly for your daughter.

Please know that it does get easier day by day

and before you know it, your down to nights and naptime with the brace.

Also, the good thing is the baby doesn't know any different and it becomes

the norm for her. She will adjust very quickly and even surprise you!

Someone did mention to check the toes to make sure there is circulation.

Also, it doesn't hurt to give the baby a little Motrin or Tylenol to make

them more comfortable.

Hang in there, .

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

Hi ,

My son Aidan is on his 8th set of casts. He was born 3/30 with bi-

lateral clubfoot. He did not tolerate the first set of casts well

either. I called the nurse the next day to make sure this was normal.

It was. I still dread the weekly casts changes. Our orthopedic told

us he hasn't had a child dislike it as much as our son. Some kids

don't mind them at all. Hopefully that will be Sydney.

My husbands brother and cousin both had clubfoot so I feel that there

is a genetic connection.

I hope that things have gotten better for you already. Hang in there

and be sure to ask lots of questions.

Lynn

> Hi guys, My name is . My daughter Sydney is thirteen days old

> and we are seeing a dr in St. Louis. We are learning about club feet

> right now becuase no one else in our families has it. I would

> appreciate any information that anyone can offer because i have been

> having a tough time with it all; she is my first child. We went to

> Shriner's in St. Louis yesterday and they started the casting

process.

> She has been extremely fussy since we got home and she did NOT sleep

> at all last night, so now I have been up for a very long time. So if

> anyone has any info on anything please feel free to help me out. God

> Bless.

[Guest guest]

Hi ,

My son Aidan is on his 8th set of casts. He was born 3/30 with bi-

lateral clubfoot. He did not tolerate the first set of casts well

either. I called the nurse the next day to make sure this was normal.

It was. I still dread the weekly casts changes. Our orthopedic told

us he hasn't had a child dislike it as much as our son. Some kids

don't mind them at all. Hopefully that will be Sydney.

My husbands brother and cousin both had clubfoot so I feel that there

is a genetic connection.

I hope that things have gotten better for you already. Hang in there

and be sure to ask lots of questions.

Lynn

> Hi guys, My name is . My daughter Sydney is thirteen days old

> and we are seeing a dr in St. Louis. We are learning about club feet

> right now becuase no one else in our families has it. I would

> appreciate any information that anyone can offer because i have been

> having a tough time with it all; she is my first child. We went to

> Shriner's in St. Louis yesterday and they started the casting

process.

> She has been extremely fussy since we got home and she did NOT sleep

> at all last night, so now I have been up for a very long time. So if

> anyone has any info on anything please feel free to help me out. God

> Bless.

[Guest guest]

Hi ,

I infrequently check this site so I'm catching up on emails as I can.

We are in Melbourne and have two boys. Our second, Harvey, was born in April 04

with CF in both feet. He is at the severe end of the spectrum. We were

referred to Dr Minoo Patel who operates out of the Epworth in Richmond and

Cabrini in Malvern. He is excellent. We highly recommend him. Manner,

professionalism, outlook, treatment - the works.

Harvey is walking and chasing his brother around the house. He's still

wearing the DBboots at night but the prognosis is good.

The best email to get me on is work amoore@...

Happy to chat further if you like.

Rgds,

-

alex_ronderos wrote:

Hi everyone

I have just joined this chat group as I have found out that my son to

be (I am 22 weeks pregnant)has a club foot on the right foot. Based

on all the internet research we have done, my hsuband and I are

determined to use the Ponseti method. We are currently located in the

London but will be returning home to Australia for the birth (or at

least we planned till we found out the news). We just wanted to know

if any of you have used the Ponseti method in Australia or in London

and your experiences. My husband and I are seriously considering

about moving temporarily to Iowa for the treatment to assure us that

he will be receiving the best in the world. Any opinions?

I appreciate your help.

Cheers,

(andra) Ronderos

[Guest guest]

Hi ,

I infrequently check this site so I'm catching up on emails as I can.

We are in Melbourne and have two boys. Our second, Harvey, was born in April 04

with CF in both feet. He is at the severe end of the spectrum. We were

referred to Dr Minoo Patel who operates out of the Epworth in Richmond and

Cabrini in Malvern. He is excellent. We highly recommend him. Manner,

professionalism, outlook, treatment - the works.

Harvey is walking and chasing his brother around the house. He's still

wearing the DBboots at night but the prognosis is good.

The best email to get me on is work amoore@...

Happy to chat further if you like.

Rgds,

-

alex_ronderos wrote:

Hi everyone

I have just joined this chat group as I have found out that my son to

be (I am 22 weeks pregnant)has a club foot on the right foot. Based

on all the internet research we have done, my hsuband and I are

determined to use the Ponseti method. We are currently located in the

London but will be returning home to Australia for the birth (or at

least we planned till we found out the news). We just wanted to know

if any of you have used the Ponseti method in Australia or in London

and your experiences. My husband and I are seriously considering

about moving temporarily to Iowa for the treatment to assure us that

he will be receiving the best in the world. Any opinions?

I appreciate your help.

Cheers,

(andra) Ronderos

[Guest guest]

Marci,

Welcome to the group. Many of us here are in the same

boat as you. My daughter Kelsey started treatment

with our local doctor and after 9 months, an AFO and

the FAB brace, we were no further along than the day

she was born. I was not well-versed enough in the

Ponseti method and incorrectly assumed that because

our 1st doctor was using serial casting, that is was

the same thing. After more research, I learned

otherwise. We are in Ohio and also travel to Dr. Von

Stein in Cincinnati but fortunately for us, it is only

a one hour trip to get there. Kelsey was 12 months

old when we completed our casting and then wore the

FAB for 3 monrhs 23/7. Now, however, she has a

beautiful foot and she runs around this house like

crazy so I just feel blessed that we made the move

when we did and did not end up with surgery first.

Good luck with Mollie's treatment. I have never met

Dr. Dobbs but from what I have read about him, Mollie

is in excellent hands.

Jenni

--- marci21175 wrote:

> Hi everyone. I am new and want to introduce myself.

> My name is

> Marci. I am from Indiana. My husband and I had our

> first baby,

> Mollie, in May. She has bilateral clubfoot. We

> started out going to

> our local orthopedic dr. After six weeks of

> casting, he told us he

> wasn't making any progress and told us to look into

> getting in a

> Shriner's hospital. After almost a month of getting

> paper work

> gathered up and waiting to hear something, we are

> now going to Dr.

> Dobbs in St. Louis. Mollie is now in her second set

> of casts from

> him. It is a little hard to be the casts again, but

> after seeing all

> the kids there running around like there was never

> any problem is very

> encouraging. Also, all the stuff I've read online

> about the Ponsetti

> Method helps me think I'm in the right place now. I

> wish I had known

> from the beginning, we'd be done with casts by now

> and in our brace.

> Not to mention less a $1600 dr bill that was

> useless. I am very glad

> to have a place to come to get advice from others

> that are going

> through this. I'm looking forward to getting to

> know everyone.

>

>

>

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

Marci,

Welcome to the group. Many of us here are in the same

boat as you. My daughter Kelsey started treatment

with our local doctor and after 9 months, an AFO and

the FAB brace, we were no further along than the day

she was born. I was not well-versed enough in the

Ponseti method and incorrectly assumed that because

our 1st doctor was using serial casting, that is was

the same thing. After more research, I learned

otherwise. We are in Ohio and also travel to Dr. Von

Stein in Cincinnati but fortunately for us, it is only

a one hour trip to get there. Kelsey was 12 months

old when we completed our casting and then wore the

FAB for 3 monrhs 23/7. Now, however, she has a

beautiful foot and she runs around this house like

crazy so I just feel blessed that we made the move

when we did and did not end up with surgery first.

Good luck with Mollie's treatment. I have never met

Dr. Dobbs but from what I have read about him, Mollie

is in excellent hands.

Jenni

--- marci21175 wrote:

> Hi everyone. I am new and want to introduce myself.

> My name is

> Marci. I am from Indiana. My husband and I had our

> first baby,

> Mollie, in May. She has bilateral clubfoot. We

> started out going to

> our local orthopedic dr. After six weeks of

> casting, he told us he

> wasn't making any progress and told us to look into

> getting in a

> Shriner's hospital. After almost a month of getting

> paper work

> gathered up and waiting to hear something, we are

> now going to Dr.

> Dobbs in St. Louis. Mollie is now in her second set

> of casts from

> him. It is a little hard to be the casts again, but

> after seeing all

> the kids there running around like there was never

> any problem is very

> encouraging. Also, all the stuff I've read online

> about the Ponsetti

> Method helps me think I'm in the right place now. I

> wish I had known

> from the beginning, we'd be done with casts by now

> and in our brace.

> Not to mention less a $1600 dr bill that was

> useless. I am very glad

> to have a place to come to get advice from others

> that are going

> through this. I'm looking forward to getting to

> know everyone.

>

>

>

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

Marci! Welcome! I am from Indiana as well, and started with a local doctor.

We were lucky that he casted correctly, but wanted to modify the after care, so

we switched to Dr. Von Stein in Cincinnati. It is nice to see someone else from

Indiana here. Unfortunately, there use to be a Ponseti doctor here, but he has

moved to Wisconsin.

Hopefully soon, parents will not have to travel as we have.

11/19/04

new member

Hi everyone. I am new and want to introduce myself. My name is

Marci. I am from Indiana. My husband and I had our first baby,

Mollie, in May. She has bilateral clubfoot. We started out going to

our local orthopedic dr. After six weeks of casting, he told us he

wasn't making any progress and told us to look into getting in a

Shriner's hospital. After almost a month of getting paper work

gathered up and waiting to hear something, we are now going to Dr.

Dobbs in St. Louis. Mollie is now in her second set of casts from

him. It is a little hard to be the casts again, but after seeing all

the kids there running around like there was never any problem is very

encouraging. Also, all the stuff I've read online about the Ponsetti

Method helps me think I'm in the right place now. I wish I had known

from the beginning, we'd be done with casts by now and in our brace.

Not to mention less a $1600 dr bill that was useless. I am very glad

to have a place to come to get advice from others that are going

through this. I'm looking forward to getting to know everyone.

[Guest guest]

Marci! Welcome! I am from Indiana as well, and started with a local doctor.

We were lucky that he casted correctly, but wanted to modify the after care, so

we switched to Dr. Von Stein in Cincinnati. It is nice to see someone else from

Indiana here. Unfortunately, there use to be a Ponseti doctor here, but he has

moved to Wisconsin.

Hopefully soon, parents will not have to travel as we have.

11/19/04

new member

Hi everyone. I am new and want to introduce myself. My name is

Marci. I am from Indiana. My husband and I had our first baby,

Mollie, in May. She has bilateral clubfoot. We started out going to

our local orthopedic dr. After six weeks of casting, he told us he

wasn't making any progress and told us to look into getting in a

Shriner's hospital. After almost a month of getting paper work

gathered up and waiting to hear something, we are now going to Dr.

Dobbs in St. Louis. Mollie is now in her second set of casts from

him. It is a little hard to be the casts again, but after seeing all

the kids there running around like there was never any problem is very

encouraging. Also, all the stuff I've read online about the Ponsetti

Method helps me think I'm in the right place now. I wish I had known

from the beginning, we'd be done with casts by now and in our brace.

Not to mention less a $1600 dr bill that was useless. I am very glad

to have a place to come to get advice from others that are going

through this. I'm looking forward to getting to know everyone.

[Guest guest]

Marci,

Yeah! I'm so glad your doctor referred you to Shriners and that you

found Dr. Dobbs - he is truly one of the best. Mollie is in excellent

hands now and should be through the casting process in no time.

Let us know if you need any advice or have any specific questions. I

am also pleasantly surprised that your original ortho admitted he

wasn't having any luck and recommended you to someone more experienced

-- this is great, one step closer to converting doctors to doing the

right thing! Best of luck.

> Hi everyone. I am new and want to introduce myself. My name is

> Marci. I am from Indiana. My husband and I had our first baby,

> Mollie, in May. She has bilateral clubfoot. We started out going to

> our local orthopedic dr. After six weeks of casting, he told us he

> wasn't making any progress and told us to look into getting in a

> Shriner's hospital. After almost a month of getting paper work

> gathered up and waiting to hear something, we are now going to Dr.

> Dobbs in St. Louis. Mollie is now in her second set of casts from

> him. It is a little hard to be the casts again, but after seeing all

> the kids there running around like there was never any problem is very

> encouraging. Also, all the stuff I've read online about the Ponsetti

> Method helps me think I'm in the right place now. I wish I had known

> from the beginning, we'd be done with casts by now and in our brace.

> Not to mention less a $1600 dr bill that was useless. I am very glad

> to have a place to come to get advice from others that are going

> through this. I'm looking forward to getting to know everyone.

[Guest guest]

Marci,

Yeah! I'm so glad your doctor referred you to Shriners and that you

found Dr. Dobbs - he is truly one of the best. Mollie is in excellent

hands now and should be through the casting process in no time.

Let us know if you need any advice or have any specific questions. I

am also pleasantly surprised that your original ortho admitted he

wasn't having any luck and recommended you to someone more experienced

-- this is great, one step closer to converting doctors to doing the

right thing! Best of luck.

> Hi everyone. I am new and want to introduce myself. My name is

> Marci. I am from Indiana. My husband and I had our first baby,

> Mollie, in May. She has bilateral clubfoot. We started out going to

> our local orthopedic dr. After six weeks of casting, he told us he

> wasn't making any progress and told us to look into getting in a

> Shriner's hospital. After almost a month of getting paper work

> gathered up and waiting to hear something, we are now going to Dr.

> Dobbs in St. Louis. Mollie is now in her second set of casts from

> him. It is a little hard to be the casts again, but after seeing all

> the kids there running around like there was never any problem is very

> encouraging. Also, all the stuff I've read online about the Ponsetti

> Method helps me think I'm in the right place now. I wish I had known

> from the beginning, we'd be done with casts by now and in our brace.

> Not to mention less a $1600 dr bill that was useless. I am very glad

> to have a place to come to get advice from others that are going

> through this. I'm looking forward to getting to know everyone.

[Guest guest]

--- Goodin wrote:

> Marci! Welcome! I am from Indiana as well, and started with a local doctor.

> We were lucky that he casted correctly, but wanted to modify the after care,

> so we switched to Dr. Von Stein in Cincinnati. It is nice to see someone

> else from Indiana here. Unfortunately, there use to be a Ponseti doctor

> here, but he has moved to Wisconsin.

May I ask where the doctor moved to in Wisconsin?? I'd be interested in

knowing.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________

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