good news

[Guest guest]

Yahhooo! Isn't this surgery a wonder!!!>>>>

You bet it is, Dawn! Remember my concern that you got into size 10 at 165

and I couldnt do it? Well, now I can get into size 12 shorts with elastic

waist! Im not far behind the 10 now and Im 162! Maybe when I hit 155 I

will get into the 10? Ill get there!!

Hugs, Judie

[Guest guest]

Hurray Ellen!!! BTW, size 14? Just what does that look like? Meli-

-- In duodenalswitch@y..., Beauby1022050943@a... wrote:

> I fit into a size 14 jeans. I am a happy person.Ellen(Pam

[Guest guest]

well Thank you Heidi for the updates! I was going to call Joan tonight. maybe I can call her in a few days and update everyone again.

Wow, you got a lot done today. We love our phone bandit.

Lu

[Guest guest]

well Thank you Heidi for the updates! I was going to call Joan tonight. maybe I can call her in a few days and update everyone again.

Wow, you got a lot done today. We love our phone bandit.

Lu

[Guest guest]

Thank you Heidi on all the updates... I will get all those funny cards off

this weekend.

hugs

[Guest guest]

Thank you Heidi on all the updates... I will get all those funny cards off

this weekend.

hugs

[Guest guest]

Heidi

Thanks for the updates. Well it's off to the store again to buy cards. What would we do without you?

Lots of LoveGlenda

**Yesterday is history...Tomorrow is a mystery...Today is a gift**

[Guest guest]

Heidi

Thanks for the updates. Well it's off to the store again to buy cards. What would we do without you?

Lots of LoveGlenda

**Yesterday is history...Tomorrow is a mystery...Today is a gift**

[Guest guest]

Kimber,

I was so relieved to hear the good news. From as much as I know you, I can

imagine that you work very hard to maintain meticulous records, dotting those

I's and crossing those T's. I was thinking about that the other day, about

what an incredible asset you have been to your previous employers and how

hard that much have been to not be able to maintain that level of

performance. I wanted you to know that I am looking forward to the future

when you will have had time to work past the disability, adjust to your new

lifestyle, etc. You have so much to offer and it will be fun to get together

on some projects or something. I find your hobbies interesting, too.

Blessings,

Karyn , RN

Executive Director, PAI

Symposium August 28 & 29, 2003

[Guest guest]

karen wrote:

> I got my lab results from Monday and they were great. My GI

doc told me that he would start tapering my prednisone down

further if my labs were good. I am so anxious to begin the

process of getting off of the prednisone. My face is beginning to

show signs of the typical moon or roundness that goes along

with long term prednisone use. My weight was up 10 lbs,

although for some reason Tuesday morning it was down 5 lbs

from what it had been on Monday. The sudden drop just

convinces me all the more that my weight being up is most likely

just from the prednisone.

it will be several months before I can get off of it completely but it

will feel so wonderful to be moving the dose down!

Dear ,

It's so great to hear good news. I'm sure you're delighted to be

able to get your prednisone dosage decreased. My dear SIL has

lupus, and was going through that same battle as you are last

year. Her weight was up to 280, she'd developed the moon face

features and would turn black and blue at just the slightest bump

against her skin. For several months she was miserable, but

she kept fighting, and was eventually able to get her dosage

reduced, her weight declined and back into much better health.

She, like you, has all kinds of autoimmune problems and has, in

her lifetime, been through H--- and back!

She is doing wonderfully now and so much happier. I'm hoping

that you have the same kind of progress that she has had.

Please keep us up to date on how you're doing.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments and advice are personal opinion only, and

should not be substituted for professional medical consultation.

" What lies behind us and what lies before us are tiny matters

compared to what lies within us. " - Ralph Waldo Emerson

>

>

[Guest guest]

karen wrote:

> I got my lab results from Monday and they were great. My GI

doc told me that he would start tapering my prednisone down

further if my labs were good. I am so anxious to begin the

process of getting off of the prednisone. My face is beginning to

show signs of the typical moon or roundness that goes along

with long term prednisone use. My weight was up 10 lbs,

although for some reason Tuesday morning it was down 5 lbs

from what it had been on Monday. The sudden drop just

convinces me all the more that my weight being up is most likely

just from the prednisone.

it will be several months before I can get off of it completely but it

will feel so wonderful to be moving the dose down!

Dear ,

It's so great to hear good news. I'm sure you're delighted to be

able to get your prednisone dosage decreased. My dear SIL has

lupus, and was going through that same battle as you are last

year. Her weight was up to 280, she'd developed the moon face

features and would turn black and blue at just the slightest bump

against her skin. For several months she was miserable, but

she kept fighting, and was eventually able to get her dosage

reduced, her weight declined and back into much better health.

She, like you, has all kinds of autoimmune problems and has, in

her lifetime, been through H--- and back!

She is doing wonderfully now and so much happier. I'm hoping

that you have the same kind of progress that she has had.

Please keep us up to date on how you're doing.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments and advice are personal opinion only, and

should not be substituted for professional medical consultation.

" What lies behind us and what lies before us are tiny matters

compared to what lies within us. " - Ralph Waldo Emerson

>

>

[Guest guest]

That is such great news..i am so happy for you.

> Hi everyone,

>

> Just had to share. (and Becca) eat dinner at 6 pm. We

usually

> bolus at 8 and then hook him to his pump at 8:30 when he

goes

> to bed.

>

> At 8:15 ASKED FOR FOOD!!!!!!!!!!!!!!!!!! He NEVER asks for

> food. He said " I want a hot dog. " Needless to say, I ran for my

> microwave. Wouldn't you know, he ate the whole thing!!!!!!

>

> We were so happy.

>

> Judith, Steve, (RSS) and (non RSS) 3yr 10 mo twins

[Guest guest]

hi judith!

that is really great news!! i hope you have many more days to come

like this. i dont know what you are going through because christopher

does not have a feeding tube but i can only image how you must feel.

i hope jason and the rest of your family is doing well.

jodie

(nicholas-5 nonrss, christopher-2 1/2 rss, johnathon-5months nonrss)

> Hi everyone,

>

> Just had to share. (and Becca) eat dinner at 6 pm. We

usually

> bolus at 8 and then hook him to his pump at 8:30 when he goes

> to bed.

>

> At 8:15 ASKED FOR FOOD!!!!!!!!!!!!!!!!!! He NEVER asks for

> food. He said " I want a hot dog. " Needless to say, I ran for my

> microwave. Wouldn't you know, he ate the whole thing!!!!!!

>

> We were so happy.

>

> Judith, Steve, (RSS) and (non RSS) 3yr 10 mo twins

[Guest guest]

> hi judith

isn't it funny how when our kids who don't eat ask for some sort of

food out of the blue that we run no matter where to or what time it

is to get it for them.

avery has always been tube feed due to his reflux, never even

wanting to try anything ask me for milk the other day. i could not

have gotten it fast enough. he took two drinks and was done. we were

so happy. on the other hand my ii 1/2 yr old ask for ice cream at 9pm

on a school night, i say are you crazy, you got to get to bed. avery

ask and i on it. hahahaha

lucky for me our older kids understand and laugh it off.

what a great feeling huh?

amy pasz- avery rss

>

[Guest guest]

Go !!

A whole hot dog. . . .Awesome!

Dayna, Mom to Alyssa

[Guest guest]

Hi Judith and Steve,

MERRRY CHRISTMAS !!!!!

Ken M

> Hi everyone,

>

> Just had to share. (and Becca) eat dinner at 6 pm. We

usually

> bolus at 8 and then hook him to his pump at 8:30 when he goes

> to bed.

>

> At 8:15 ASKED FOR FOOD!!!!!!!!!!!!!!!!!! He NEVER asks for

> food. He said " I want a hot dog. " Needless to say, I ran for my

> microwave. Wouldn't you know, he ate the whole thing!!!!!!

>

> We were so happy.

>

> Judith, Steve, (RSS) and (non RSS) 3yr 10 mo twins

[Guest guest]

Hi Jodie...that's great! Unfortunately Imogen who is 6 is fine in the day but

has to have a nappy at night. Are we the only ones with an older RSS child with

this problem?

Eileen(Imogen RSS 6.5yrs 36 " )

jlcals2003 jlcals2003@...> wrote:

hi everyone!

we have some exciting news to share, christopher has been using the

potty for the past couple of days and has been doing really well!!

hopefully in another week or so i'll only have to buy diapers for

one! also his ght should be starting around the middle of

january.will anyone be visiting dr h in april? we finnaly go on the

22nd. have a happy new year to all!

jodie

(nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6 months

nonrss)

[Guest guest]

No - Tim does at 8. He seemed almost ready to toatally potty train at

night just before he turned 7, but then he got a tube with night

feedings... He had started stooling at night with the big calorie levels

that cause him to over double his weight in a year and a half (with the

GH), but now that he's gone from less than the 1st % weight-to-height to

somewhere between the 50% and 75%, we are cutting back and he is not

stooling much. Perhaps if we can drop the bedtime feeds at some point,

that will do the trick...

Inga

At 06:07 PM 12/31/2003 +0000, you wrote:

>Hi Jodie...that's great! Unfortunately Imogen who is 6 is fine in the day

>but has to have a nappy at night. Are we the only ones with an older RSS

>child with this problem?

>Eileen(Imogen RSS 6.5yrs 36 " )

>

>jlcals2003 jlcals2003@...> wrote:

>hi everyone!

>we have some exciting news to share, christopher has been using the

>potty for the past couple of days and has been doing really well!!

>hopefully in another week or so i'll only have to buy diapers for

>one! also his ght should be starting around the middle of

>january.will anyone be visiting dr h in april? we finnaly go on the

>22nd. have a happy new year to all!

>

>jodie

>(nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6 months

>nonrss)

>

>

>

[Guest guest]

Hi Inga.......well we managed to free Imogen of the tube when she was 3 and a

half...so she eats normally...or as normally as any RSS kid does! It could be

the lack of muscle tone that some RSS kids have that does it? Or maybe she just

can't be bothered to get up in the night!!! Who knows!!!!

Eileen

Inga ihughes@...> wrote:

No - Tim does at 8. He seemed almost ready to toatally potty train at

night just before he turned 7, but then he got a tube with night

feedings... He had started stooling at night with the big calorie levels

that cause him to over double his weight in a year and a half (with the

GH), but now that he's gone from less than the 1st % weight-to-height to

somewhere between the 50% and 75%, we are cutting back and he is not

stooling much. Perhaps if we can drop the bedtime feeds at some point,

that will do the trick...

Inga

At 06:07 PM 12/31/2003 +0000, you wrote:

>Hi Jodie...that's great! Unfortunately Imogen who is 6 is fine in the day

>but has to have a nappy at night. Are we the only ones with an older RSS

>child with this problem?

>Eileen(Imogen RSS 6.5yrs 36 " )

>

>jlcals2003 jlcals2003@...> wrote:

>hi everyone!

>we have some exciting news to share, christopher has been using the

>potty for the past couple of days and has been doing really well!!

>hopefully in another week or so i'll only have to buy diapers for

>one! also his ght should be starting around the middle of

>january.will anyone be visiting dr h in april? we finnaly go on the

>22nd. have a happy new year to all!

>

>jodie

>(nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6 months

>nonrss)

>

>

>

[Guest guest]

Maybe a small bladder? Tim's is no longer so small, but we give him 2 cans

of food over the first 2 hours he sleeps...

At 02:19 AM 1/1/2004 +0000, you wrote:

>Hi Inga.......well we managed to free Imogen of the tube when she was 3 and

>a half...so she eats normally...or as normally as any RSS kid does! It

>could be the lack of muscle tone that some RSS kids have that does it? Or

>maybe she just can't be bothered to get up in the night!!! Who knows!!!!

>Eileen

>

>Inga ihughes@...> wrote:

>No - Tim does at 8. He seemed almost ready to toatally potty train at

>night just before he turned 7, but then he got a tube with night

>feedings... He had started stooling at night with the big calorie levels

>that cause him to over double his weight in a year and a half (with the

>GH), but now that he's gone from less than the 1st % weight-to-height to

>somewhere between the 50% and 75%, we are cutting back and he is not

>stooling much. Perhaps if we can drop the bedtime feeds at some point,

>that will do the trick...

>

>Inga

>

>At 06:07 PM 12/31/2003 +0000, you wrote:

>>Hi Jodie...that's great! Unfortunately Imogen who is 6 is fine in the day

>>but has to have a nappy at night. Are we the only ones with an older RSS

>>child with this problem?

>>Eileen(Imogen RSS 6.5yrs 36 " )

>>

>>jlcals2003 jlcals2003@...> wrote:

>>hi everyone!

>>we have some exciting news to share, christopher has been using the

>>potty for the past couple of days and has been doing really well!!

>>hopefully in another week or so i'll only have to buy diapers for

>>one! also his ght should be starting around the middle of

>>january.will anyone be visiting dr h in april? we finnaly go on the

>>22nd. have a happy new year to all!

>>

>>jodie

>>(nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6 months

>>nonrss)

>>

>>

>>

[Guest guest]

Hi Eileen!

don't fret my 5 1/2 yr old non-rss child still has accidents at

night! three this week actually! he does well for a while and then

we go through a week of accidents. christopher though woke up dry

this morning!! have you ever tried using those huggies goodnites, we

use to i told nicholas if he keeps up the accidents we will go back

so i dont have a big mess every morning, he actually liked wearing

him because his clothes and bed stayed dry. have a happy new year!

jodie

(nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6 m

nonrss)-

-- In RSS-Support , EILEEN REID

wrote:

> Hi Jodie...that's great! Unfortunately Imogen who is 6 is fine in

the day but has to have a nappy at night. Are we the only ones with

an older RSS child with this problem?

> Eileen(Imogen RSS 6.5yrs 36 " )

>

> jlcals2003 wrote:

> hi everyone!

> we have some exciting news to share, christopher has been using

the

> potty for the past couple of days and has been doing really well!!

> hopefully in another week or so i'll only have to buy diapers for

> one! also his ght should be starting around the middle of

> january.will anyone be visiting dr h in april? we finnaly go on

the

> 22nd. have a happy new year to all!

>

> jodie

> (nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6

months

> nonrss)

>

>

>

[Guest guest]

Thanks for that Jodie.......I don't think the huggies would make much difference

cos she wees in her sleep.....I'm sure it's one of those things that gets better

as she gets older.....there can;t be anything seriously wrong because she can

control her bladder during the day.....

At least because of her size the nappies we buy are the cheaper

ones....Midi...up to 20lbs!

Happy New Year

Eileen

jlcals2003 jlcals2003@...> wrote:

Hi Eileen!

don't fret my 5 1/2 yr old non-rss child still has accidents at

night! three this week actually! he does well for a while and then

we go through a week of accidents. christopher though woke up dry

this morning!! have you ever tried using those huggies goodnites, we

use to i told nicholas if he keeps up the accidents we will go back

so i dont have a big mess every morning, he actually liked wearing

him because his clothes and bed stayed dry. have a happy new year!

jodie

(nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6 m

nonrss)-

-- In RSS-Support , EILEEN REID

wrote:

> Hi Jodie...that's great! Unfortunately Imogen who is 6 is fine in

the day but has to have a nappy at night. Are we the only ones with

an older RSS child with this problem?

> Eileen(Imogen RSS 6.5yrs 36 " )

>

> jlcals2003 wrote:

> hi everyone!

> we have some exciting news to share, christopher has been using

the

> potty for the past couple of days and has been doing really well!!

> hopefully in another week or so i'll only have to buy diapers for

> one! also his ght should be starting around the middle of

> january.will anyone be visiting dr h in april? we finnaly go on

the

> 22nd. have a happy new year to all!

>

> jodie

> (nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6

months

> nonrss)

>

>

>

[Guest guest]

Congrats on your approval Starlet!

~H.

Marietta, GA

Lap RNY 10/13/03

292/237/150

~Nothing tastes as good as being thin feels~

[Guest guest]

Congrats on your approval Starlet!

~H.

Marietta, GA

Lap RNY 10/13/03

292/237/150

~Nothing tastes as good as being thin feels~

[Guest guest]

Congrats Jayne on your approval!

~H.

Marietta, GA

Lap RNY 10/13/03

292/237/150

~Nothing tastes as good as being thin feels~

In a message dated 1/15/04 9:27:09 PM Eastern Standard Time,

jcapers@... writes:

Me too....I got approved today too. It was floods of happy tears

ALL OVER the place. Yeah US! Soon we'll be big time losers!