Re: (unknown)

[Guest guest]

Hi Kate,

There are different kinds of depressions. Situation depressions only require

the use of antidepressants for short term. However, if your brain is not

wired correctly, you may need them for life just as a diabetic needs insulin

for life. No difference, it is a medical problem that needs help to be

controlled. We cannot will it to be better ourselves.

We have already won when we believe it in our hearts.

ICQ: 67869779

AIM: joydenisek

> I just have *issues* with taking anti-depressants as a long-term part of

my

> life. I have a recurring belief that medication of this sort is not

> something I want to commit to for my lifetime. I prefer to use it as a

> situational aid, and my situation seems to have stablilized.

>

> Kate

[Guest guest]

Hi Kate,

There are different kinds of depressions. Situation depressions only require

the use of antidepressants for short term. However, if your brain is not

wired correctly, you may need them for life just as a diabetic needs insulin

for life. No difference, it is a medical problem that needs help to be

controlled. We cannot will it to be better ourselves.

We have already won when we believe it in our hearts.

ICQ: 67869779

AIM: joydenisek

> I just have *issues* with taking anti-depressants as a long-term part of

my

> life. I have a recurring belief that medication of this sort is not

> something I want to commit to for my lifetime. I prefer to use it as a

> situational aid, and my situation seems to have stablilized.

>

> Kate

[Guest guest]

> I just have *issues* with taking anti-depressants as a long-term part of

my

> life. I have a recurring belief that medication of this sort is not

> something I want to commit to for my lifetime. I prefer to use it as a

> situational aid, and my situation seems to have stablilized.

If you had diabetes, would you have issues with using insulin for the rest

of your life? I see antidepressants as a similar thing. Your body has a

chemical imbalance (in most cases of depression), and medication helps bring

back the balance. Stopping the medication throws the balance off again. If

you must get off of them, please do it gradually, and make sure your

physician is in agreement with this plan.

~~ Lyn G

[Guest guest]

> I just have *issues* with taking anti-depressants as a long-term part of

my

> life. I have a recurring belief that medication of this sort is not

> something I want to commit to for my lifetime. I prefer to use it as a

> situational aid, and my situation seems to have stablilized.

If you had diabetes, would you have issues with using insulin for the rest

of your life? I see antidepressants as a similar thing. Your body has a

chemical imbalance (in most cases of depression), and medication helps bring

back the balance. Stopping the medication throws the balance off again. If

you must get off of them, please do it gradually, and make sure your

physician is in agreement with this plan.

~~ Lyn G

[Guest guest]

Try the post office, they give away coloring books and other things related

to po and stamp collecting. Won't be small book size but free!

Tina Mom to Christian 11 yowcf and 19 yowocf

[Guest guest]

thanks so much

[Guest guest]

thanks so much for your help. yous are the best

[Guest guest]

thanks so much

[Guest guest]

Hi, My daughter sounded clear at least one time when she had pneumonia. The

chest x-ray showed the pneumonia. Your Son shouldn't be retracting if his

airways are clear and he isn't having a flare up. I would ask for a chest x-ray

anyway.

(unknown)

Hello everyone, I have a few Questions. First- My son is ALWAYS

retracting even when he is very clear.All day long he breathes like

he just finished running a marathon. Thats what has my local ped. dr.

puzzled and also the pulm. we were seeing before he refered us to a

cf clinic. They say how concerned the are w/ how hard hes working to

breath. When I asked what could cause this they dont really give me

an awnser, Does anyone have similar situations? In the past when he

gets pnemonia I can understand the struggle but why when hes so

clear? They ruled out asthma, if it is cf and he has some built up

mucus is it poss. for him to still sound clear? Im confused! I asked

if breathing so hard can hurt his heart and so they checked w/ EKG

and said it was fine, but when the checked the gases in him he said

he actully had to much which means hes overbreathing- Well DUH! That

only obvious by watching him. Anyhow we go to our first cf appt.

tommorow and I was wondering what type of Questions I should ask and

is there any other advice for when I get there? Also, the nurse

called genezymes and asked about the test res. and they said it was

still out at the 2nd lab and it will be in early next week, today is

3 weeks since they drew his blood. On another note -j has

started to let go and take one step-only one but thats 2 mo. earlier

than my daughter. Thanks-

Kari mom of 2-1 may have cf- 1 known copy of d-f508 2nd test pending

[Guest guest]

--Hi ,I started to wonder if any one new what I was talking

about or if no one read my post- so thank you for responding. He has

more x rays than I can count and only one came out clear, all the

rest showed pnem. or bronc. this is all since sept. We had a 7 day in

the hosp. at the first of the month and since then hes been well but

still always retracting and it is an every day thing not a come & go

thing. Thats why Im confused I understand when he has pnem, but not

on good days as well! He breathes so hard and fast and his oxogen

level is always good though. Oh I dont know ..... thanks Kari

- In cfparents , <drea@m...> wrote:

> Hi, My daughter sounded clear at least one time when she had

pneumonia. The chest x-ray showed the pneumonia. Your Son shouldn't

be retracting if his airways are clear and he isn't having a flare

up. I would ask for a chest x-ray anyway.

>

> (unknown)

>

>

> Hello everyone, I have a few Questions. First- My son is ALWAYS

> retracting even when he is very clear.All day long he breathes

like

> he just finished running a marathon. Thats what has my local ped.

dr.

> puzzled and also the pulm. we were seeing before he refered us to

a

> cf clinic. They say how concerned the are w/ how hard hes working

to

> breath. When I asked what could cause this they dont really give

me

> an awnser, Does anyone have similar situations? In the past when

he

> gets pnemonia I can understand the struggle but why when hes so

> clear? They ruled out asthma, if it is cf and he has some built

up

> mucus is it poss. for him to still sound clear? Im confused! I

asked

> if breathing so hard can hurt his heart and so they checked w/

EKG

> and said it was fine, but when the checked the gases in him he

said

> he actully had to much which means hes overbreathing- Well DUH!

That

> only obvious by watching him. Anyhow we go to our first cf appt.

> tommorow and I was wondering what type of Questions I should ask

and

> is there any other advice for when I get there? Also, the nurse

> called genezymes and asked about the test res. and they said it

was

> still out at the 2nd lab and it will be in early next week, today

is

> 3 weeks since they drew his blood. On another note -j has

> started to let go and take one step-only one but thats 2 mo.

earlier

> than my daughter. Thanks-

> Kari mom of 2-1 may have cf- 1 known copy of d-f508 2nd test

pending

>

>

>

[Guest guest]

I think the feeling is normal. I get freaked out sometimes at how much I

can eat. But then I look at how much I could eat before. God I could

never do that now. I was one of those that could definitely eat a whole

medium pizza in one sitting and occasionally could actually eat a whole

large pizza by myself. I think it is all relative. Just remember though

that there are certain things we can eat more of. I can certainly eat

more applesauce (for example) then I can chicken.

Lori Owen - Denton, Texas

CHF 4/14/01 479 lbs.

SRVG 7/16/01 401 lbs.

Current Weight 335

Dr. Ritter/Dr. Bryce

On Sat, 29 Mar 2003 13:54:21 -0000 " ohc200248 "

writes:

> Hello Everyone!!!

>

> I am 1 year, and 12 days post op. i have lost a total of 175 lbs and

>

> my question is I can eat 4 to 6 ounces of food at one meal .

> Sometimes i get freaked out if I eat 6 ounce cause i am terrified of

>

> stretching my pouch and the weigh gain. I exercise at least 3x's a

> week at gold's Gym. Is this felin of nervousness normal?

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

I think the feeling is normal. I get freaked out sometimes at how much I

can eat. But then I look at how much I could eat before. God I could

never do that now. I was one of those that could definitely eat a whole

medium pizza in one sitting and occasionally could actually eat a whole

large pizza by myself. I think it is all relative. Just remember though

that there are certain things we can eat more of. I can certainly eat

more applesauce (for example) then I can chicken.

Lori Owen - Denton, Texas

CHF 4/14/01 479 lbs.

SRVG 7/16/01 401 lbs.

Current Weight 335

Dr. Ritter/Dr. Bryce

On Sat, 29 Mar 2003 13:54:21 -0000 " ohc200248 "

writes:

> Hello Everyone!!!

>

> I am 1 year, and 12 days post op. i have lost a total of 175 lbs and

>

> my question is I can eat 4 to 6 ounces of food at one meal .

> Sometimes i get freaked out if I eat 6 ounce cause i am terrified of

>

> stretching my pouch and the weigh gain. I exercise at least 3x's a

> week at gold's Gym. Is this felin of nervousness normal?

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

,

you and your daughter are in my prayers. My daughter hasn't been in for 2 years

either and I am just waiting for an infection to land us there.. good luck.

(unknown)

Hi ! i dont write very often but i was writing for some prayers they just put

my daughter in the hospital and i was wonder if my friends can say a prayer for

a speedy recovery ,it is a 10 day IV i hope she hasnt been in the hospital for

2years so she was doing really good but i guess it was do . well have to run and

get back to her thanks for everything karen mother of the 3year old with cf.

[Guest guest]

Hi Nick,

Your doctor may offer suggestions, but ultimately your decision is up to

you. First of all though your doctor will want to lower your thyroid hormone

levels to ensure that you're not a surgical risk. Usually, anti-thyroid drugs

are used and their maximum effects take about 6-8 weeks. At this time, most

people are euthyroid (normal thyroid hormone levels) or hypothyroid. If you

were to stay on ATDs, your dose would be lowered and you'd stay on meds until

your immune system stopped producing the antibodies responsible for

hyperthyroidism. This can require frequent blood tests and taking meds for

anywhere from a few months to several years.

With surgery, most people stay home from work for about 10 days, but this

depends on your general health. After surgery, most people eventually become

hypothyroid and later regain some thyroid function. Ideally, you'd end up

with normal thyroid function, but the majority of people become hypothyroid.

I have some articles on surgery on www.suite101.com that you can find by

searching for thyroidectomy or graves disease. Best to you, Elaine

[Guest guest]

-----BEGIN PGP SIGNED MESSAGE-----

Hash: SHA1

daisyelaine@... wrote:

>

> After surgery, most people eventually become

> hypothyroid and later regain some thyroid function. Ideally, you'd end up

> with normal thyroid function, but the majority of people become

hypothyroid.

Cough, that's because in the US they mostly do total or near total

thyroidectomy. I think the situation is the same as for RAI, which

almost universally leads to hypothyroidism now they use ablative doses,

rather than the smaller doses they use to use. Those Americans doctors

seem to have it in for people thyroids.

World J Surg 1992 Jul-Aug;16(4):647-52; for results from one study with

subtotal thyroidectomy (although as one who relapsed after a ST perhaps

I should keep quiet). Subtotal thyroidectomy is the way to go with

surgery for Graves, if you look at patient outcomes alone, and aren't

afraid of doing RAI, or ATD, if you relapse.

Afraid I missed Nick's original post.

Either way, as Elaine says, you have to normalise on ATD, so you might

as well try a course of the drugs first, although remission for men is

much rarer than for women if the drugs work well for you you might keep

your thyroid, but I would suggest trying to keep some of it if possible.

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[Guest guest]

Thinking of you. Hoping your daughter will feel better soon.

Jenna

[Guest guest]

Hi ,

I think the pancrease is formulated to be able to pass through the stomach

and then release it's inherent enzymes when it gets into the small intestine

after the acid bath of the stomach.

Best wishes, Poncho - GA

[Guest guest]

,

Aciphex reduces acid, but pancrease creates enzymes, which

is not the same as acid. The enzymes break the food down

enough to go into the intestines.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to

that of a licensed physician or health care professional.

[Guest guest]

Hi ,

I'm sorry to hear of your problem. But we would like to know you home area

(city, state, etc.) and how are you being currently treated.

Did the two Whipple procedures help at all?

What meds are you currently on and how are they doing for you?

This board might help as many of our posters mention things that have helped

them from time to time. Also, there are many useful sources of information on

the actual web site for this group.

Have a good day,

Best wishes, Poncho - GA

[Guest guest]

Hi HD-

I just don't think taking Cytomel alone is a good idea. Even if you have

problems converting T4 to T3. You cannot get past that short 1/2 life so

that part of the time you're flooded with T3 (hyper) and part of the time

your're deficient (hypo). Your doctor shouldn't do this unless there are

tests confirming that you aren't converting T4 to T3 at all. I've heard of

people being inefficient at converting (myself included) but I've never

heard of someone not being able to convert at all.

I do know of one lady that took T3 alone for years and she has some pretty

severe osteoporosis.

Since I'm on a large dose of Cytomel, I take it 4x/day to avoid fluctuations

but they still happen. The worst one is in the morning. Anyhow, I want to

reduce the Cytomel to a 1:10 ratio. I hate being at the mercy of a drug.

And with a drug with as short a 1/2 life and as potent as Cytomel, if you

can do with less of it the better.

Take care,

dx & RAI 1987 (at age 24)

I have posted here a few time and I am in the middle of trying to get

this hypo straight.

I had RAI for Graves in 95. I tried Synthroid alone. I have tried

Armour alone.

On armour I felt better but I always reach a point a 2 grains 120

that I cannot take anymore becasue it makes me hyper but 120 I am

hypo feeling stil. As I have said I split it into twice a day wich

helps but still not right. I alternated every other day between 135

and 120 and had my levels checked and came in normal (less than .35

hyper and I came in at .48) but I still did not feel right.

Last week my doc let me add 12.5 (half of a 25 of synthroid) I took

it 6 days and developed hyper symptoms that got worse as I went along.

At 120 it feels like if I had just alittle more of something (T4 or

T3 that I would feel ok) because anything above 120 on armour alone

makes me feel hyper.

I going to see the doc tommorrow and talk to him about adding just T3

(cytomal) to the Amrour or

Just taking T3 (Cytoaml) alone and dropping the Armour. I have

discussed the T3 alone thing with him and read on the net myself that

2 grains of armour= 50 mcg of cytomal. If he puts me on T3 alone I am

afraid to start this high as I have had too much thyroid before and

it is no fun. More like try 12.5 in am and 12.5 in pm of cytomal

alone and if after a couple days on that raise it to 25 am then 25 pm.

Does anyone here take Cytomal alone?

[Guest guest]

,

How much Cytomal are you on? Also do you need to take it on an empty stomach

then wait an hour to eat?

Re: (unknown)

Hi HD-

I just don't think taking Cytomel alone is a good idea. Even if you have

problems converting T4 to T3. You cannot get past that short 1/2 life so

that part of the time you're flooded with T3 (hyper) and part of the time

your're deficient (hypo). Your doctor shouldn't do this unless there are

tests confirming that you aren't converting T4 to T3 at all. I've heard of

people being inefficient at converting (myself included) but I've never

heard of someone not being able to convert at all.

I do know of one lady that took T3 alone for years and she has some pretty

severe osteoporosis.

Since I'm on a large dose of Cytomel, I take it 4x/day to avoid fluctuations

but they still happen. The worst one is in the morning. Anyhow, I want to

reduce the Cytomel to a 1:10 ratio. I hate being at the mercy of a drug.

And with a drug with as short a 1/2 life and as potent as Cytomel, if you

can do with less of it the better.

Take care,

dx & RAI 1987 (at age 24)

I have posted here a few time and I am in the middle of trying to get

this hypo straight.

I had RAI for Graves in 95. I tried Synthroid alone. I have tried

Armour alone.

On armour I felt better but I always reach a point a 2 grains 120

that I cannot take anymore becasue it makes me hyper but 120 I am

hypo feeling stil. As I have said I split it into twice a day wich

helps but still not right. I alternated every other day between 135

and 120 and had my levels checked and came in normal (less than .35

hyper and I came in at .48) but I still did not feel right.

Last week my doc let me add 12.5 (half of a 25 of synthroid) I took

it 6 days and developed hyper symptoms that got worse as I went along.

At 120 it feels like if I had just alittle more of something (T4 or

T3 that I would feel ok) because anything above 120 on armour alone

makes me feel hyper.

I going to see the doc tommorrow and talk to him about adding just T3

(cytomal) to the Amrour or

Just taking T3 (Cytoaml) alone and dropping the Armour. I have

discussed the T3 alone thing with him and read on the net myself that

2 grains of armour= 50 mcg of cytomal. If he puts me on T3 alone I am

afraid to start this high as I have had too much thyroid before and

it is no fun. More like try 12.5 in am and 12.5 in pm of cytomal

alone and if after a couple days on that raise it to 25 am then 25 pm.

Does anyone here take Cytomal alone?

[Guest guest]

Why don't you try synthroid and cytomel together. That is what I take. We

had to lower my synthroid just a bit, got just a bit hyper, but I feel fab

on the to together.

Jen M

(unknown)

I have posted here a few time and I am in the middle of trying to get

this hypo straight.

I had RAI for Graves in 95. I tried Synthroid alone. I have tried

Armour alone.

On armour I felt better but I always reach a point a 2 grains 120

that I cannot take anymore becasue it makes me hyper but 120 I am

hypo feeling stil. As I have said I split it into twice a day wich

helps but still not right. I alternated every other day between 135

and 120 and had my levels checked and came in normal (less than .35

hyper and I came in at .48) but I still did not feel right.

Last week my doc let me add 12.5 (half of a 25 of synthroid) I took

it 6 days and developed hyper symptoms that got worse as I went along.

At 120 it feels like if I had just alittle more of something (T4 or

T3 that I would feel ok) because anything above 120 on armour alone

makes me feel hyper.

I going to see the doc tommorrow and talk to him about adding just T3

(cytomal) to the Amrour or

Just taking T3 (Cytoaml) alone and dropping the Armour. I have

discussed the T3 alone thing with him and read on the net myself that

2 grains of armour= 50 mcg of cytomal. If he puts me on T3 alone I am

afraid to start this high as I have had too much thyroid before and

it is no fun. More like try 12.5 in am and 12.5 in pm of cytomal

alone and if after a couple days on that raise it to 25 am then 25 pm.

Does anyone here take Cytomal alone?

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

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Advertisments placed on this yahoo groups list do not have the endorsement

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the listowner. I have no input as to what ads are attached to emails.

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[Guest guest]

I'm on 35 mcg/day of Cytomel right now. I was on 37 1/2 but that required

splitting pills and I couldn't split the pills evenly so I opted for the 5

mcg pills (10 mcg 3x/day and 5 mcg at bedtime). I'm also on 125 mcg of

Synthroid (1x/day).

And, yes, I take it on an empty stomach (2-3 hrs after eating) then wait

another hour to eat. That wasn't too hard before but now that I'm

breastfeeding twins, doing that 4x/day is causing tremendous problems.

When I wasn't pregnant or lactating, I was pretty compliant about taking my

meds and didn't find it difficult.

Take care,

> How much Cytomal are you on? Also do you need to take it on an empty

stomach then wait an hour to eat?

[Guest guest]

Boy can I identify with you. I too am having trouble with the exercise.

I was never all that active but I could at least walk.....now I get so

tired - and I am 2.5 monthes out. Of course it doesnt help I have

arthritis in knees and hips, the hips really hurt when I walk more than

a block.

I do own a pool and can swim, and I know this is going to sound whiney,

but now I always feel so darn cold!! The idea of getting ihn the pool if

the temp is under 90 makes me shiver. Well, whine whine whine.......I

wish I had advice for you but maybe someone out there will give us some

ideas or verbally kick us in the butts!!

Ann Elliot

RNY with choly July 18 2003

291/244/hoping for 150

I will not give up the fight!!!!

[Guest guest]

Hi , Yes there is a support group. The next meeting is this Thursday

Night, Oct. 9 and the time is 6PM. It will be downstairs on the ground floor

in the auditorium of Mobile Infirmary. The information telephone number is

435-5656.

Stay in touch. Where about in the Mobile area do you live? I live in

Irvington.

A. B.

LAP RNY 3/22/03

Dr. Steve Weinstein, MD.

Mobile, Alabama

BMI 65/51

386/303 - 83 LBS.