Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hi Kate, There are different kinds of depressions. Situation depressions only require the use of antidepressants for short term. However, if your brain is not wired correctly, you may need them for life just as a diabetic needs insulin for life. No difference, it is a medical problem that needs help to be controlled. We cannot will it to be better ourselves. We have already won when we believe it in our hearts. ICQ: 67869779 AIM: joydenisek > I just have *issues* with taking anti-depressants as a long-term part of my > life. I have a recurring belief that medication of this sort is not > something I want to commit to for my lifetime. I prefer to use it as a > situational aid, and my situation seems to have stablilized. > > Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hi Kate, There are different kinds of depressions. Situation depressions only require the use of antidepressants for short term. However, if your brain is not wired correctly, you may need them for life just as a diabetic needs insulin for life. No difference, it is a medical problem that needs help to be controlled. We cannot will it to be better ourselves. We have already won when we believe it in our hearts. ICQ: 67869779 AIM: joydenisek > I just have *issues* with taking anti-depressants as a long-term part of my > life. I have a recurring belief that medication of this sort is not > something I want to commit to for my lifetime. I prefer to use it as a > situational aid, and my situation seems to have stablilized. > > Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 > I just have *issues* with taking anti-depressants as a long-term part of my > life. I have a recurring belief that medication of this sort is not > something I want to commit to for my lifetime. I prefer to use it as a > situational aid, and my situation seems to have stablilized. If you had diabetes, would you have issues with using insulin for the rest of your life? I see antidepressants as a similar thing. Your body has a chemical imbalance (in most cases of depression), and medication helps bring back the balance. Stopping the medication throws the balance off again. If you must get off of them, please do it gradually, and make sure your physician is in agreement with this plan. ~~ Lyn G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 > I just have *issues* with taking anti-depressants as a long-term part of my > life. I have a recurring belief that medication of this sort is not > something I want to commit to for my lifetime. I prefer to use it as a > situational aid, and my situation seems to have stablilized. If you had diabetes, would you have issues with using insulin for the rest of your life? I see antidepressants as a similar thing. Your body has a chemical imbalance (in most cases of depression), and medication helps bring back the balance. Stopping the medication throws the balance off again. If you must get off of them, please do it gradually, and make sure your physician is in agreement with this plan. ~~ Lyn G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 Try the post office, they give away coloring books and other things related to po and stamp collecting. Won't be small book size but free! Tina Mom to Christian 11 yowcf and 19 yowocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 thanks so much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 thanks so much for your help. yous are the best Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 thanks so much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi, My daughter sounded clear at least one time when she had pneumonia. The chest x-ray showed the pneumonia. Your Son shouldn't be retracting if his airways are clear and he isn't having a flare up. I would ask for a chest x-ray anyway. (unknown) Hello everyone, I have a few Questions. First- My son is ALWAYS retracting even when he is very clear.All day long he breathes like he just finished running a marathon. Thats what has my local ped. dr. puzzled and also the pulm. we were seeing before he refered us to a cf clinic. They say how concerned the are w/ how hard hes working to breath. When I asked what could cause this they dont really give me an awnser, Does anyone have similar situations? In the past when he gets pnemonia I can understand the struggle but why when hes so clear? They ruled out asthma, if it is cf and he has some built up mucus is it poss. for him to still sound clear? Im confused! I asked if breathing so hard can hurt his heart and so they checked w/ EKG and said it was fine, but when the checked the gases in him he said he actully had to much which means hes overbreathing- Well DUH! That only obvious by watching him. Anyhow we go to our first cf appt. tommorow and I was wondering what type of Questions I should ask and is there any other advice for when I get there? Also, the nurse called genezymes and asked about the test res. and they said it was still out at the 2nd lab and it will be in early next week, today is 3 weeks since they drew his blood. On another note -j has started to let go and take one step-only one but thats 2 mo. earlier than my daughter. Thanks- Kari mom of 2-1 may have cf- 1 known copy of d-f508 2nd test pending Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 --Hi ,I started to wonder if any one new what I was talking about or if no one read my post- so thank you for responding. He has more x rays than I can count and only one came out clear, all the rest showed pnem. or bronc. this is all since sept. We had a 7 day in the hosp. at the first of the month and since then hes been well but still always retracting and it is an every day thing not a come & go thing. Thats why Im confused I understand when he has pnem, but not on good days as well! He breathes so hard and fast and his oxogen level is always good though. Oh I dont know ..... thanks Kari - In cfparents , <drea@m...> wrote: > Hi, My daughter sounded clear at least one time when she had pneumonia. The chest x-ray showed the pneumonia. Your Son shouldn't be retracting if his airways are clear and he isn't having a flare up. I would ask for a chest x-ray anyway. > > (unknown) > > > Hello everyone, I have a few Questions. First- My son is ALWAYS > retracting even when he is very clear.All day long he breathes like > he just finished running a marathon. Thats what has my local ped. dr. > puzzled and also the pulm. we were seeing before he refered us to a > cf clinic. They say how concerned the are w/ how hard hes working to > breath. When I asked what could cause this they dont really give me > an awnser, Does anyone have similar situations? In the past when he > gets pnemonia I can understand the struggle but why when hes so > clear? They ruled out asthma, if it is cf and he has some built up > mucus is it poss. for him to still sound clear? Im confused! I asked > if breathing so hard can hurt his heart and so they checked w/ EKG > and said it was fine, but when the checked the gases in him he said > he actully had to much which means hes overbreathing- Well DUH! That > only obvious by watching him. Anyhow we go to our first cf appt. > tommorow and I was wondering what type of Questions I should ask and > is there any other advice for when I get there? Also, the nurse > called genezymes and asked about the test res. and they said it was > still out at the 2nd lab and it will be in early next week, today is > 3 weeks since they drew his blood. On another note -j has > started to let go and take one step-only one but thats 2 mo. earlier > than my daughter. Thanks- > Kari mom of 2-1 may have cf- 1 known copy of d-f508 2nd test pending > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 I think the feeling is normal. I get freaked out sometimes at how much I can eat. But then I look at how much I could eat before. God I could never do that now. I was one of those that could definitely eat a whole medium pizza in one sitting and occasionally could actually eat a whole large pizza by myself. I think it is all relative. Just remember though that there are certain things we can eat more of. I can certainly eat more applesauce (for example) then I can chicken. Lori Owen - Denton, Texas CHF 4/14/01 479 lbs. SRVG 7/16/01 401 lbs. Current Weight 335 Dr. Ritter/Dr. Bryce On Sat, 29 Mar 2003 13:54:21 -0000 " ohc200248 " writes: > Hello Everyone!!! > > I am 1 year, and 12 days post op. i have lost a total of 175 lbs and > > my question is I can eat 4 to 6 ounces of food at one meal . > Sometimes i get freaked out if I eat 6 ounce cause i am terrified of > > stretching my pouch and the weigh gain. I exercise at least 3x's a > week at gold's Gym. Is this felin of nervousness normal? > > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 I think the feeling is normal. I get freaked out sometimes at how much I can eat. But then I look at how much I could eat before. God I could never do that now. I was one of those that could definitely eat a whole medium pizza in one sitting and occasionally could actually eat a whole large pizza by myself. I think it is all relative. Just remember though that there are certain things we can eat more of. I can certainly eat more applesauce (for example) then I can chicken. Lori Owen - Denton, Texas CHF 4/14/01 479 lbs. SRVG 7/16/01 401 lbs. Current Weight 335 Dr. Ritter/Dr. Bryce On Sat, 29 Mar 2003 13:54:21 -0000 " ohc200248 " writes: > Hello Everyone!!! > > I am 1 year, and 12 days post op. i have lost a total of 175 lbs and > > my question is I can eat 4 to 6 ounces of food at one meal . > Sometimes i get freaked out if I eat 6 ounce cause i am terrified of > > stretching my pouch and the weigh gain. I exercise at least 3x's a > week at gold's Gym. Is this felin of nervousness normal? > > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 , you and your daughter are in my prayers. My daughter hasn't been in for 2 years either and I am just waiting for an infection to land us there.. good luck. (unknown) Hi ! i dont write very often but i was writing for some prayers they just put my daughter in the hospital and i was wonder if my friends can say a prayer for a speedy recovery ,it is a 10 day IV i hope she hasnt been in the hospital for 2years so she was doing really good but i guess it was do . well have to run and get back to her thanks for everything karen mother of the 3year old with cf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi Nick, Your doctor may offer suggestions, but ultimately your decision is up to you. First of all though your doctor will want to lower your thyroid hormone levels to ensure that you're not a surgical risk. Usually, anti-thyroid drugs are used and their maximum effects take about 6-8 weeks. At this time, most people are euthyroid (normal thyroid hormone levels) or hypothyroid. If you were to stay on ATDs, your dose would be lowered and you'd stay on meds until your immune system stopped producing the antibodies responsible for hyperthyroidism. This can require frequent blood tests and taking meds for anywhere from a few months to several years. With surgery, most people stay home from work for about 10 days, but this depends on your general health. After surgery, most people eventually become hypothyroid and later regain some thyroid function. Ideally, you'd end up with normal thyroid function, but the majority of people become hypothyroid. I have some articles on surgery on www.suite101.com that you can find by searching for thyroidectomy or graves disease. Best to you, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 daisyelaine@... wrote: > > After surgery, most people eventually become > hypothyroid and later regain some thyroid function. Ideally, you'd end up > with normal thyroid function, but the majority of people become hypothyroid. Cough, that's because in the US they mostly do total or near total thyroidectomy. I think the situation is the same as for RAI, which almost universally leads to hypothyroidism now they use ablative doses, rather than the smaller doses they use to use. Those Americans doctors seem to have it in for people thyroids. World J Surg 1992 Jul-Aug;16(4):647-52; for results from one study with subtotal thyroidectomy (although as one who relapsed after a ST perhaps I should keep quiet). Subtotal thyroidectomy is the way to go with surgery for Graves, if you look at patient outcomes alone, and aren't afraid of doing RAI, or ATD, if you relapse. Afraid I missed Nick's original post. Either way, as Elaine says, you have to normalise on ATD, so you might as well try a course of the drugs first, although remission for men is much rarer than for women if the drugs work well for you you might keep your thyroid, but I would suggest trying to keep some of it if possible. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+sYr2GFXfHI9FVgYRAmlaAJ9AGM0/BvdLLNd4b8P5Yb1rzDYQ8QCfU2bb hQ4Of1+9hNsQTNc2pNeL4Zc= =DhmO -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 Thinking of you. Hoping your daughter will feel better soon. Jenna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hi , I think the pancrease is formulated to be able to pass through the stomach and then release it's inherent enzymes when it gets into the small intestine after the acid bath of the stomach. Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 , Aciphex reduces acid, but pancrease creates enzymes, which is not the same as acid. The enzymes break the food down enough to go into the intestines. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hi , I'm sorry to hear of your problem. But we would like to know you home area (city, state, etc.) and how are you being currently treated. Did the two Whipple procedures help at all? What meds are you currently on and how are they doing for you? This board might help as many of our posters mention things that have helped them from time to time. Also, there are many useful sources of information on the actual web site for this group. Have a good day, Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Hi HD- I just don't think taking Cytomel alone is a good idea. Even if you have problems converting T4 to T3. You cannot get past that short 1/2 life so that part of the time you're flooded with T3 (hyper) and part of the time your're deficient (hypo). Your doctor shouldn't do this unless there are tests confirming that you aren't converting T4 to T3 at all. I've heard of people being inefficient at converting (myself included) but I've never heard of someone not being able to convert at all. I do know of one lady that took T3 alone for years and she has some pretty severe osteoporosis. Since I'm on a large dose of Cytomel, I take it 4x/day to avoid fluctuations but they still happen. The worst one is in the morning. Anyhow, I want to reduce the Cytomel to a 1:10 ratio. I hate being at the mercy of a drug. And with a drug with as short a 1/2 life and as potent as Cytomel, if you can do with less of it the better. Take care, dx & RAI 1987 (at age 24) I have posted here a few time and I am in the middle of trying to get this hypo straight. I had RAI for Graves in 95. I tried Synthroid alone. I have tried Armour alone. On armour I felt better but I always reach a point a 2 grains 120 that I cannot take anymore becasue it makes me hyper but 120 I am hypo feeling stil. As I have said I split it into twice a day wich helps but still not right. I alternated every other day between 135 and 120 and had my levels checked and came in normal (less than .35 hyper and I came in at .48) but I still did not feel right. Last week my doc let me add 12.5 (half of a 25 of synthroid) I took it 6 days and developed hyper symptoms that got worse as I went along. At 120 it feels like if I had just alittle more of something (T4 or T3 that I would feel ok) because anything above 120 on armour alone makes me feel hyper. I going to see the doc tommorrow and talk to him about adding just T3 (cytomal) to the Amrour or Just taking T3 (Cytoaml) alone and dropping the Armour. I have discussed the T3 alone thing with him and read on the net myself that 2 grains of armour= 50 mcg of cytomal. If he puts me on T3 alone I am afraid to start this high as I have had too much thyroid before and it is no fun. More like try 12.5 in am and 12.5 in pm of cytomal alone and if after a couple days on that raise it to 25 am then 25 pm. Does anyone here take Cytomal alone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 , How much Cytomal are you on? Also do you need to take it on an empty stomach then wait an hour to eat? Re: (unknown) Hi HD- I just don't think taking Cytomel alone is a good idea. Even if you have problems converting T4 to T3. You cannot get past that short 1/2 life so that part of the time you're flooded with T3 (hyper) and part of the time your're deficient (hypo). Your doctor shouldn't do this unless there are tests confirming that you aren't converting T4 to T3 at all. I've heard of people being inefficient at converting (myself included) but I've never heard of someone not being able to convert at all. I do know of one lady that took T3 alone for years and she has some pretty severe osteoporosis. Since I'm on a large dose of Cytomel, I take it 4x/day to avoid fluctuations but they still happen. The worst one is in the morning. Anyhow, I want to reduce the Cytomel to a 1:10 ratio. I hate being at the mercy of a drug. And with a drug with as short a 1/2 life and as potent as Cytomel, if you can do with less of it the better. Take care, dx & RAI 1987 (at age 24) I have posted here a few time and I am in the middle of trying to get this hypo straight. I had RAI for Graves in 95. I tried Synthroid alone. I have tried Armour alone. On armour I felt better but I always reach a point a 2 grains 120 that I cannot take anymore becasue it makes me hyper but 120 I am hypo feeling stil. As I have said I split it into twice a day wich helps but still not right. I alternated every other day between 135 and 120 and had my levels checked and came in normal (less than .35 hyper and I came in at .48) but I still did not feel right. Last week my doc let me add 12.5 (half of a 25 of synthroid) I took it 6 days and developed hyper symptoms that got worse as I went along. At 120 it feels like if I had just alittle more of something (T4 or T3 that I would feel ok) because anything above 120 on armour alone makes me feel hyper. I going to see the doc tommorrow and talk to him about adding just T3 (cytomal) to the Amrour or Just taking T3 (Cytoaml) alone and dropping the Armour. I have discussed the T3 alone thing with him and read on the net myself that 2 grains of armour= 50 mcg of cytomal. If he puts me on T3 alone I am afraid to start this high as I have had too much thyroid before and it is no fun. More like try 12.5 in am and 12.5 in pm of cytomal alone and if after a couple days on that raise it to 25 am then 25 pm. Does anyone here take Cytomal alone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Why don't you try synthroid and cytomel together. That is what I take. We had to lower my synthroid just a bit, got just a bit hyper, but I feel fab on the to together. Jen M (unknown) I have posted here a few time and I am in the middle of trying to get this hypo straight. I had RAI for Graves in 95. I tried Synthroid alone. I have tried Armour alone. On armour I felt better but I always reach a point a 2 grains 120 that I cannot take anymore becasue it makes me hyper but 120 I am hypo feeling stil. As I have said I split it into twice a day wich helps but still not right. I alternated every other day between 135 and 120 and had my levels checked and came in normal (less than .35 hyper and I came in at .48) but I still did not feel right. Last week my doc let me add 12.5 (half of a 25 of synthroid) I took it 6 days and developed hyper symptoms that got worse as I went along. At 120 it feels like if I had just alittle more of something (T4 or T3 that I would feel ok) because anything above 120 on armour alone makes me feel hyper. I going to see the doc tommorrow and talk to him about adding just T3 (cytomal) to the Amrour or Just taking T3 (Cytoaml) alone and dropping the Armour. I have discussed the T3 alone thing with him and read on the net myself that 2 grains of armour= 50 mcg of cytomal. If he puts me on T3 alone I am afraid to start this high as I have had too much thyroid before and it is no fun. More like try 12.5 in am and 12.5 in pm of cytomal alone and if after a couple days on that raise it to 25 am then 25 pm. Does anyone here take Cytomal alone? ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. ---------------------------------------------------------------------------- ---------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 I'm on 35 mcg/day of Cytomel right now. I was on 37 1/2 but that required splitting pills and I couldn't split the pills evenly so I opted for the 5 mcg pills (10 mcg 3x/day and 5 mcg at bedtime). I'm also on 125 mcg of Synthroid (1x/day). And, yes, I take it on an empty stomach (2-3 hrs after eating) then wait another hour to eat. That wasn't too hard before but now that I'm breastfeeding twins, doing that 4x/day is causing tremendous problems. When I wasn't pregnant or lactating, I was pretty compliant about taking my meds and didn't find it difficult. Take care, > How much Cytomal are you on? Also do you need to take it on an empty stomach then wait an hour to eat? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 Boy can I identify with you. I too am having trouble with the exercise. I was never all that active but I could at least walk.....now I get so tired - and I am 2.5 monthes out. Of course it doesnt help I have arthritis in knees and hips, the hips really hurt when I walk more than a block. I do own a pool and can swim, and I know this is going to sound whiney, but now I always feel so darn cold!! The idea of getting ihn the pool if the temp is under 90 makes me shiver. Well, whine whine whine.......I wish I had advice for you but maybe someone out there will give us some ideas or verbally kick us in the butts!! Ann Elliot RNY with choly July 18 2003 291/244/hoping for 150 I will not give up the fight!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2003 Report Share Posted October 6, 2003 Hi , Yes there is a support group. The next meeting is this Thursday Night, Oct. 9 and the time is 6PM. It will be downstairs on the ground floor in the auditorium of Mobile Infirmary. The information telephone number is 435-5656. Stay in touch. Where about in the Mobile area do you live? I live in Irvington. A. B. LAP RNY 3/22/03 Dr. Steve Weinstein, MD. Mobile, Alabama BMI 65/51 386/303 - 83 LBS. Quote Link to comment Share on other sites More sharing options...
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