new member

Report post · May 1, 2002

---Hi , Welcome, I hope we can help you understand this fibro,

it is something you will have to deal with every day but I guess you

all ready know that, how somedays are better than others. I have had

this for several years and I don't have many answers. One good thing

about this place is when you can't sleep in the middle of the night

you will have some one to talk to that understand. Audie

In @y..., wrote:

>

> Hi, My name is and I am from So. Cal.

>

> Age range: 50

>

> Male/female: Male

>

> What are the symptoms? Burning, aching, tingling pain in all of

the points. And then some.

>

> Has you illness been diagnosed? Yes, last December

>

> How long did you suffer before you got help? Probably at least a

few years. I also have spinal problems with similar symptoms.

>

> Is there a time that you can remember when it started? I think

after a near divorce, just before my last neck surgery.

>

> Some of us have found lack of exercise we are overweight. Have you

> found this to be a problem also? I weigh 215 and am 5'11''. Not

to well in proportion though.

>

> Are you on disability? Disibility retirement, still working on

Social Security.

>

> If you are any pointers for others trying to get on disability?

Start as soon as possible as it takes a long time.

>

> What have you found that helps ease the pain, warm baths,

medications

> etc.? Warm bathes, showers, spas help and I am on alot of Vicodin

for the ortho stuff which helps. Often though I cant tell where the

pain originates from.

>

> Do you have sleep problems? How do you deal with it? Yes, Ambien

worked for awhile, not so well now. Elavil helps be sleep but i dont

like the effect. Have been on a number of anti-depressants but cant

tolerate them. Again dont remember which came first, the pain or the

depression.

>

> Do you have family that understands your illness? Somewhat but it

is a strain on everyone. Findind info on Fibro has helped greatly. I

thought I was going crazy before i found place like this.

>

> Some have found certain foods causes problems with CFS or Fibro,

have

> you? Nothing yet.

>

> What type of Doctor have you found that has helped you the most?

No one really.

>

> I have been in pain for so long I really cant remember when it all

started. Memory is another problem. I often feel Flu like symptoms.

I get feverish and sweaty with no temperature after little exertion.

Always tired and irratable bowel. I do occasionally feel like it

goes away for a short time and then it returns. I hope this helps

someone!!

>

> ---------------------------------

>

Report post · May 1, 2002

---Hi , Welcome, I hope we can help you understand this fibro,

it is something you will have to deal with every day but I guess you

all ready know that, how somedays are better than others. I have had

this for several years and I don't have many answers. One good thing

about this place is when you can't sleep in the middle of the night

you will have some one to talk to that understand. Audie

In @y..., wrote:

>

> Hi, My name is and I am from So. Cal.

>

> Age range: 50

>

> Male/female: Male

>

> What are the symptoms? Burning, aching, tingling pain in all of

the points. And then some.

>

> Has you illness been diagnosed? Yes, last December

>

> How long did you suffer before you got help? Probably at least a

few years. I also have spinal problems with similar symptoms.

>

> Is there a time that you can remember when it started? I think

after a near divorce, just before my last neck surgery.

>

> Some of us have found lack of exercise we are overweight. Have you

> found this to be a problem also? I weigh 215 and am 5'11''. Not

to well in proportion though.

>

> Are you on disability? Disibility retirement, still working on

Social Security.

>

> If you are any pointers for others trying to get on disability?

Start as soon as possible as it takes a long time.

>

> What have you found that helps ease the pain, warm baths,

medications

> etc.? Warm bathes, showers, spas help and I am on alot of Vicodin

for the ortho stuff which helps. Often though I cant tell where the

pain originates from.

>

> Do you have sleep problems? How do you deal with it? Yes, Ambien

worked for awhile, not so well now. Elavil helps be sleep but i dont

like the effect. Have been on a number of anti-depressants but cant

tolerate them. Again dont remember which came first, the pain or the

depression.

>

> Do you have family that understands your illness? Somewhat but it

is a strain on everyone. Findind info on Fibro has helped greatly. I

thought I was going crazy before i found place like this.

>

> Some have found certain foods causes problems with CFS or Fibro,

have

> you? Nothing yet.

>

> What type of Doctor have you found that has helped you the most?

No one really.

>

> I have been in pain for so long I really cant remember when it all

started. Memory is another problem. I often feel Flu like symptoms.

I get feverish and sweaty with no temperature after little exertion.

Always tired and irratable bowel. I do occasionally feel like it

goes away for a short time and then it returns. I hope this helps

someone!!

>

> ---------------------------------

>

Report post · May 1, 2002

Welcome, to our list. This is a very good list. We are very caring,

loving and supportive. If you have any question, let us know. Someone will

more than likely have the answer. If you have something to say, just sump

right in. We have all had our times at being angry and upset about this

fibro and we say so. Out loud. So if you want to vent, feel free.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

Report post · May 4, 2002

Hi everyone and hello to our new members. You've come to the right group. I

went to the doctors yesterday for my son I ended up having an appt to. He

squeezed me in. Well, he put me on flexeril/cyclobenzaprine for my pain and I

went back on wellbutrin SR(anti-depressant). He told me it would help my

baseline. I was on it before. My cardiologist prescribed it for my neurocronigic

sycope. When I went off of it before I noticed more pain. My family dr also gave

me a prescription for massage therapy. I need to call the insurance company

though. I hope they cover it. I still have alot of pain in my back and it

radiates up to my sternum. I hope that I start feeling better. I need to go

plant my veggies in the garden. Well, I thought I'd let you know that I went to

the doctor. He is very attentive and listens to what my symptoms are. He does

help out alot. Well, everyone have a great evening everyone!!

rox6602000 rox660@...> wrote: a lot

---------------------------------

Report post · May 22, 2002

Cinda, welcome to our group. It is a very good one. The people are

friendly, caring, loving and very supportive. If you have anymore questions,

ask away, someone will probably have the answer. if you feel like venting,

this is the place to do it. There is always someone to listen.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

Report post · May 22, 2002

Cinda, welcome to our group. It is a very good one. The people are

friendly, caring, loving and very supportive. If you have anymore questions,

ask away, someone will probably have the answer. if you feel like venting,

this is the place to do it. There is always someone to listen.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

Report post · May 27, 2002

Hi ,

when I was reading your life story, haha boy it sound like me. In

March of 2001 I was slurry my words, dropping things, tripping over

my feet for no reason at all, I had pain thru out my body. went thru

so many tests and they thought I was dx with a stoke, but that was

not it, so they couldn';t find anything wrong with me. In october

2001, I lost my memory, went thru more tests and the doc said that I

was faking and trying to get attention; and get this, she said that

my kids were out of control. What does that have to do with my test

results? Well I didn;t get the test results until about month ago

saying that I cheating, faked my tests. Tell me something WHY would

I do that... I just can't belieive some of this doctors, so I know

how you feel .

I was dx with FM in the last 3 months ago, and it is a big pain. So

let me ask a Question, my doc will not rx me any pain killers..its

because of my Bi-polar, and ADD, will along my Boardline personity

disorder, the question is , where can I get some relief for my pain?

Help!!!

In @y..., " evilwoman_21 " wrote:

> Hi everyone,

> I just wanted to give a brief hello. I was diagnosed with FM about

> a year ago and have been on ultram for pain and flexaril for

> restless leg. I however was diagnosed with FM but i do not have

the

> common pain points. As a matter of fact i only have 1 pain point

in

> my neck. I do however have mystery pain throughout my intire body

> and it is different from week to week. After seeing countless

> doctors and being told it was all in my head I finally found one

> that would believe me and is working with me to control my pain. I

> guess I am lucky though because my family doctor is great and he

> doesnt cut everything off as being " faked " . I actually had an

> orthopedist tell my family doctor that there was nothing wrong with

> me i was faking for attention. Like i really want to pay $2,000.00

> for an overnights stay in the hospital for attention. I cant

> believe some doctors these days and their bedside manner. I also

am

> pretty lucky because i dont have depression either. I do however

> have my moments just as everyone does. Well I am starting to write

> a book here and I only wanted to say hi.

> Thanks For hearing me

> stephanie

Report post · May 27, 2002