Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 and > journaling when I feel up to it. The list of symptoms is > endless,blurred vision,ringing in my ears,sleep problems - I > sometimes feel as if I have spent the night floating above the bed > rather than sleeping in it.I suffer from a very dry mouth, and it > sometimes is covered in ulcers, I can't sit out in the sun which is > tragic as we get very little here in England! > The best thing is a sense of humour so I look at the joke sites on > the net. Lots oflove to you all, sara Sara, Have you been tested for Sjorgen's(sp?)? The dry mouth and ulcers sound like it. Do you have very dry skin and eyes? Just a thought. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 and > journaling when I feel up to it. The list of symptoms is > endless,blurred vision,ringing in my ears,sleep problems - I > sometimes feel as if I have spent the night floating above the bed > rather than sleeping in it.I suffer from a very dry mouth, and it > sometimes is covered in ulcers, I can't sit out in the sun which is > tragic as we get very little here in England! > The best thing is a sense of humour so I look at the joke sites on > the net. Lots oflove to you all, sara Sara, Have you been tested for Sjorgen's(sp?)? The dry mouth and ulcers sound like it. Do you have very dry skin and eyes? Just a thought. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Sara, what is the RSD and how does it appear? The dry mouth is a major symptom of Sjorn's Blessings, Marie www.anaturalplace.com ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 << I have heard on other ACM person say they had these symptoms.......just wanted to know if there were more........ Itching like something is crawling on you......it almost feels like an allergic reation........but when tested nothing shows up. Dana - this can be a caused by a nerve being under increased presure and related to nerve dysfunction CAUSED BY increased csf fluid caused presure on the nerve . Since it's troubling you quite a bit I'd ask your primary care doctor or neurologist if trying one of the antidepressant or anticonvulsant medications used to treat dammaged nerve symptoms would be a safe thing for you to do . Other sensations that can be related to this include a deep burning / tingling or intermittantly numb sensation like your body part has " fallen asleap " and is in that waking up stage for examples ...it's often a form of " neuropathic pain " and it can be intense /severe and move around too .. I had to giggle that I was getting little ZAPPY /squigly sensations on various parts of my scalp that felt like an INSECT crawling around in my hair ( LICE __ YIKES ) sensations WITH an itchy component that had me instantly reaching up to scratch . No lice -- eventually it stoped . A year or so latter back this came and I did my best to ignore it - BIG mistake ...I'd been babysitting neighbor kids ...AND gotten lice !! BEST NOT to ignore this one again ...I know now to have someone check carefully if it ever starts back up again !! ( Hope that gives everyone a chuckle like the memory of the whole thing does me - but I should add that I turned out to be HIGHLY ALLERGIC to the commonly used treatments for lice OR the lice " saliva - numbing junk " they inject as the bite site to get a blood meal - the doctors wern't sure which. But I ended up with head to toe hives and a SERIOUS medical condition as a result too ...on 6 different meds just to get the ALLERGY STUFF back under control ....and learned from the dermatologist a NON CHEMICAL way to kill of the lice as well - anyone needing that info just write to me offlist since its NOT chairi related -- LOL . ) " " Its driving me nuts today. I have also had heart palpitations....racing at times >> " " This is a much more SERIOUS symptom ...and should be checked out pronto by your primary care /neurologist or neurosurgeon . They may want to have you wear a halter monitor to record your heart for a couple /few days ...or have cardiac testing /and or a tilt table test to look for the underlying problem ....IN A SMALL percentage of chiari patients this can be caused by presure on your brainstem which controls your heart and could lead to SERIOUS complecations like a stroke ( often during sleeping ) . Cardic irregularity symtpoms is one of the THREE that the doctors URGE us to take seriously and ASK OUR PRIMARY CARE or neurologist to do the same thing if we experience them . AT times they will turn out to be within the scope of safely taking a wait and watch approch too ..but we SHOULDN " T try to make that judgement ourselves . The other two symtpoms they urge us to take very seriously are having either drop attacks or passing out ...and having swollowing difficulties that lead to aspriating either food or liquids . ALL THREE of these should be red flags to get fast attention from your doctors . It's not something to wait /and watch by instead deserves your doctors QUICK attention to sort through finding the cause . PLease call your primary care doctor for the first available appt or cancelation - waiting the normal time for a " non emergency " appt of two or three weeks ect isn't a good idea . When in doubt go to ER if you can't be seen soon . IF you experience any warning signs of either a stroke or heart attack please call 911 and have the paramedics get you to ER for immediate evaluation too ....it's not worth risking the aftermath or posiblity it's either one !! ( DON " T wait and write the list hoping well all reasure you ...we CAN " T do so / we arn't doctors here and would do everyone a BIG diservice to try and GUESS / we might well be wrong !! - and you could miss that early treatment window for stroke medications that can lessen the severity too ! ) in Paradise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 << I have heard on other ACM person say they had these symptoms.......just wanted to know if there were more........ Itching like something is crawling on you......it almost feels like an allergic reation........but when tested nothing shows up. Dana - this can be a caused by a nerve being under increased presure and related to nerve dysfunction CAUSED BY increased csf fluid caused presure on the nerve . Since it's troubling you quite a bit I'd ask your primary care doctor or neurologist if trying one of the antidepressant or anticonvulsant medications used to treat dammaged nerve symptoms would be a safe thing for you to do . Other sensations that can be related to this include a deep burning / tingling or intermittantly numb sensation like your body part has " fallen asleap " and is in that waking up stage for examples ...it's often a form of " neuropathic pain " and it can be intense /severe and move around too .. I had to giggle that I was getting little ZAPPY /squigly sensations on various parts of my scalp that felt like an INSECT crawling around in my hair ( LICE __ YIKES ) sensations WITH an itchy component that had me instantly reaching up to scratch . No lice -- eventually it stoped . A year or so latter back this came and I did my best to ignore it - BIG mistake ...I'd been babysitting neighbor kids ...AND gotten lice !! BEST NOT to ignore this one again ...I know now to have someone check carefully if it ever starts back up again !! ( Hope that gives everyone a chuckle like the memory of the whole thing does me - but I should add that I turned out to be HIGHLY ALLERGIC to the commonly used treatments for lice OR the lice " saliva - numbing junk " they inject as the bite site to get a blood meal - the doctors wern't sure which. But I ended up with head to toe hives and a SERIOUS medical condition as a result too ...on 6 different meds just to get the ALLERGY STUFF back under control ....and learned from the dermatologist a NON CHEMICAL way to kill of the lice as well - anyone needing that info just write to me offlist since its NOT chairi related -- LOL . ) " " Its driving me nuts today. I have also had heart palpitations....racing at times >> " " This is a much more SERIOUS symptom ...and should be checked out pronto by your primary care /neurologist or neurosurgeon . They may want to have you wear a halter monitor to record your heart for a couple /few days ...or have cardiac testing /and or a tilt table test to look for the underlying problem ....IN A SMALL percentage of chiari patients this can be caused by presure on your brainstem which controls your heart and could lead to SERIOUS complecations like a stroke ( often during sleeping ) . Cardic irregularity symtpoms is one of the THREE that the doctors URGE us to take seriously and ASK OUR PRIMARY CARE or neurologist to do the same thing if we experience them . AT times they will turn out to be within the scope of safely taking a wait and watch approch too ..but we SHOULDN " T try to make that judgement ourselves . The other two symtpoms they urge us to take very seriously are having either drop attacks or passing out ...and having swollowing difficulties that lead to aspriating either food or liquids . ALL THREE of these should be red flags to get fast attention from your doctors . It's not something to wait /and watch by instead deserves your doctors QUICK attention to sort through finding the cause . PLease call your primary care doctor for the first available appt or cancelation - waiting the normal time for a " non emergency " appt of two or three weeks ect isn't a good idea . When in doubt go to ER if you can't be seen soon . IF you experience any warning signs of either a stroke or heart attack please call 911 and have the paramedics get you to ER for immediate evaluation too ....it's not worth risking the aftermath or posiblity it's either one !! ( DON " T wait and write the list hoping well all reasure you ...we CAN " T do so / we arn't doctors here and would do everyone a BIG diservice to try and GUESS / we might well be wrong !! - and you could miss that early treatment window for stroke medications that can lessen the severity too ! ) in Paradise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 << I have heard on other ACM person say they had these symptoms.......just wanted to know if there were more........ Itching like something is crawling on you......it almost feels like an allergic reation........but when tested nothing shows up. Dana - this can be a caused by a nerve being under increased presure and related to nerve dysfunction CAUSED BY increased csf fluid caused presure on the nerve . Since it's troubling you quite a bit I'd ask your primary care doctor or neurologist if trying one of the antidepressant or anticonvulsant medications used to treat dammaged nerve symptoms would be a safe thing for you to do . Other sensations that can be related to this include a deep burning / tingling or intermittantly numb sensation like your body part has " fallen asleap " and is in that waking up stage for examples ...it's often a form of " neuropathic pain " and it can be intense /severe and move around too .. I had to giggle that I was getting little ZAPPY /squigly sensations on various parts of my scalp that felt like an INSECT crawling around in my hair ( LICE __ YIKES ) sensations WITH an itchy component that had me instantly reaching up to scratch . No lice -- eventually it stoped . A year or so latter back this came and I did my best to ignore it - BIG mistake ...I'd been babysitting neighbor kids ...AND gotten lice !! BEST NOT to ignore this one again ...I know now to have someone check carefully if it ever starts back up again !! ( Hope that gives everyone a chuckle like the memory of the whole thing does me - but I should add that I turned out to be HIGHLY ALLERGIC to the commonly used treatments for lice OR the lice " saliva - numbing junk " they inject as the bite site to get a blood meal - the doctors wern't sure which. But I ended up with head to toe hives and a SERIOUS medical condition as a result too ...on 6 different meds just to get the ALLERGY STUFF back under control ....and learned from the dermatologist a NON CHEMICAL way to kill of the lice as well - anyone needing that info just write to me offlist since its NOT chairi related -- LOL . ) " " Its driving me nuts today. I have also had heart palpitations....racing at times >> " " This is a much more SERIOUS symptom ...and should be checked out pronto by your primary care /neurologist or neurosurgeon . They may want to have you wear a halter monitor to record your heart for a couple /few days ...or have cardiac testing /and or a tilt table test to look for the underlying problem ....IN A SMALL percentage of chiari patients this can be caused by presure on your brainstem which controls your heart and could lead to SERIOUS complecations like a stroke ( often during sleeping ) . Cardic irregularity symtpoms is one of the THREE that the doctors URGE us to take seriously and ASK OUR PRIMARY CARE or neurologist to do the same thing if we experience them . AT times they will turn out to be within the scope of safely taking a wait and watch approch too ..but we SHOULDN " T try to make that judgement ourselves . The other two symtpoms they urge us to take very seriously are having either drop attacks or passing out ...and having swollowing difficulties that lead to aspriating either food or liquids . ALL THREE of these should be red flags to get fast attention from your doctors . It's not something to wait /and watch by instead deserves your doctors QUICK attention to sort through finding the cause . PLease call your primary care doctor for the first available appt or cancelation - waiting the normal time for a " non emergency " appt of two or three weeks ect isn't a good idea . When in doubt go to ER if you can't be seen soon . IF you experience any warning signs of either a stroke or heart attack please call 911 and have the paramedics get you to ER for immediate evaluation too ....it's not worth risking the aftermath or posiblity it's either one !! ( DON " T wait and write the list hoping well all reasure you ...we CAN " T do so / we arn't doctors here and would do everyone a BIG diservice to try and GUESS / we might well be wrong !! - and you could miss that early treatment window for stroke medications that can lessen the severity too ! ) in Paradise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 When I am having a " pressure filled head day, " I notice that my face and neck feel dry, itchy and warm. I actually get red patches on my face and neck. The feeling extends down my upper arm up to my elbow. If I stretch my arms, the skin feels dry and burns. The other night the burning sensation was a little like I was baking in the sun without lotion on. I scratch the top of my arms sometimes until the skin actually opens up. I try putting cover up (makeup) on my face and the red just shows through. I do have a Mitral valve prolapse which causes heart palpitations at times. The other day I was just washing my dishes and it took my breath away. I have lived with the MVP since I was 17. I can say that the palpitations have become more frequent since my apparent Chiari symptoms have been coming out. I am seeing my doctor on Tuesday next week to check my heart for me. Unfortunately, he is on vacation this week. If I continue to get these feelings, I will go to the emergency room. One last strange thing is sweating under my arms. No where else, just my arms. So bad that at times I change my shirt throughout the day. For a 39 year old woman, this is not only humiliating, but downright yucky. I have no idea why this happens. I can only wear certain types of materials. I certainly hope my visit to North Shore in May helps me to understand some of these things. I can't stand looking in the mirror at this red patched sweaty woman anymore. LOL Oh wait, did I forget the puffy eyes....I am certainly a sight for sore eyes. Thank God my husband still thinks I'm beautiful...I think he should get his eyes checked. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 When I am having a " pressure filled head day, " I notice that my face and neck feel dry, itchy and warm. I actually get red patches on my face and neck. The feeling extends down my upper arm up to my elbow. If I stretch my arms, the skin feels dry and burns. The other night the burning sensation was a little like I was baking in the sun without lotion on. I scratch the top of my arms sometimes until the skin actually opens up. I try putting cover up (makeup) on my face and the red just shows through. I do have a Mitral valve prolapse which causes heart palpitations at times. The other day I was just washing my dishes and it took my breath away. I have lived with the MVP since I was 17. I can say that the palpitations have become more frequent since my apparent Chiari symptoms have been coming out. I am seeing my doctor on Tuesday next week to check my heart for me. Unfortunately, he is on vacation this week. If I continue to get these feelings, I will go to the emergency room. One last strange thing is sweating under my arms. No where else, just my arms. So bad that at times I change my shirt throughout the day. For a 39 year old woman, this is not only humiliating, but downright yucky. I have no idea why this happens. I can only wear certain types of materials. I certainly hope my visit to North Shore in May helps me to understand some of these things. I can't stand looking in the mirror at this red patched sweaty woman anymore. LOL Oh wait, did I forget the puffy eyes....I am certainly a sight for sore eyes. Thank God my husband still thinks I'm beautiful...I think he should get his eyes checked. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Re: Symptoms > > > > When I am having a " pressure filled head day, " I notice that my face and neck > > feel dry, itchy and warm. I actually get red patches on my face and neck. > > The feeling extends down my upper arm up to my elbow. If I stretch my arms, > > the skin feels dry and burns. The other night the burning sensation was a > > little like I was baking in the sun without lotion on. I scratch the top of > > my arms sometimes until the skin actually opens up. I try putting cover up > > (makeup) on my face and the red just shows through. > > > > I do have a Mitral valve prolapse which causes heart palpitations at times. > > The other day I was just washing my dishes and it took my breath away. I > > have lived with the MVP since I was 17. I can say that the palpitations have > > become more frequent since my apparent Chiari symptoms have been coming out. > > I am seeing my doctor on Tuesday next week to check my heart for me. > > Unfortunately, he is on vacation this week. If I continue to get these > > feelings, I will go to the emergency room. > > > > One last strange thing is sweating under my arms. No where else, just my > > arms. So bad that at times I change my shirt throughout the day. For a 39 > > year old woman, this is not only humiliating, but downright yucky. I have no > > idea why this happens. I can only wear certain types of materials. > > > > I certainly hope my visit to North Shore in May helps me to understand some > > of these things. I can't stand looking in the mirror at this red patched > > sweaty woman anymore. LOL Oh wait, did I forget the puffy eyes....I am > > certainly a sight for sore eyes. Thank God my husband still thinks I'm > > beautiful...I think he should get his eyes checked. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Re: Symptoms > > > > When I am having a " pressure filled head day, " I notice that my face and neck > > feel dry, itchy and warm. I actually get red patches on my face and neck. > > The feeling extends down my upper arm up to my elbow. If I stretch my arms, > > the skin feels dry and burns. The other night the burning sensation was a > > little like I was baking in the sun without lotion on. I scratch the top of > > my arms sometimes until the skin actually opens up. I try putting cover up > > (makeup) on my face and the red just shows through. > > > > I do have a Mitral valve prolapse which causes heart palpitations at times. > > The other day I was just washing my dishes and it took my breath away. I > > have lived with the MVP since I was 17. I can say that the palpitations have > > become more frequent since my apparent Chiari symptoms have been coming out. > > I am seeing my doctor on Tuesday next week to check my heart for me. > > Unfortunately, he is on vacation this week. If I continue to get these > > feelings, I will go to the emergency room. > > > > One last strange thing is sweating under my arms. No where else, just my > > arms. So bad that at times I change my shirt throughout the day. For a 39 > > year old woman, this is not only humiliating, but downright yucky. I have no > > idea why this happens. I can only wear certain types of materials. > > > > I certainly hope my visit to North Shore in May helps me to understand some > > of these things. I can't stand looking in the mirror at this red patched > > sweaty woman anymore. LOL Oh wait, did I forget the puffy eyes....I am > > certainly a sight for sore eyes. Thank God my husband still thinks I'm > > beautiful...I think he should get his eyes checked. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Re: Symptoms > > > > When I am having a " pressure filled head day, " I notice that my face and neck > > feel dry, itchy and warm. I actually get red patches on my face and neck. > > The feeling extends down my upper arm up to my elbow. If I stretch my arms, > > the skin feels dry and burns. The other night the burning sensation was a > > little like I was baking in the sun without lotion on. I scratch the top of > > my arms sometimes until the skin actually opens up. I try putting cover up > > (makeup) on my face and the red just shows through. > > > > I do have a Mitral valve prolapse which causes heart palpitations at times. > > The other day I was just washing my dishes and it took my breath away. I > > have lived with the MVP since I was 17. I can say that the palpitations have > > become more frequent since my apparent Chiari symptoms have been coming out. > > I am seeing my doctor on Tuesday next week to check my heart for me. > > Unfortunately, he is on vacation this week. If I continue to get these > > feelings, I will go to the emergency room. > > > > One last strange thing is sweating under my arms. No where else, just my > > arms. So bad that at times I change my shirt throughout the day. For a 39 > > year old woman, this is not only humiliating, but downright yucky. I have no > > idea why this happens. I can only wear certain types of materials. > > > > I certainly hope my visit to North Shore in May helps me to understand some > > of these things. I can't stand looking in the mirror at this red patched > > sweaty woman anymore. LOL Oh wait, did I forget the puffy eyes....I am > > certainly a sight for sore eyes. Thank God my husband still thinks I'm > > beautiful...I think he should get his eyes checked. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 My symptoms at this point are only the rapid heart, that I am aware of anyways (and that was because the docs made me aware of it!). Physically I feel fine, although I tire early in the evening on work days. Is it possible that I have symptoms and don't know it? When would I consider them dangerous? This is all too new and confusing to me, so I am really thankful I found this group! Chris > > > Has anyone had their tsh come back up without any medication, RAI > > or > > > Surgery? Anyone using alternative methods to treat graves? > > > I went to Healthcheckusa for my latest blood test. I would > > definately > > > recommend them for blood work. Besides the price, they get the > > > results back to you fast. > > > I was diagnosed graves/ted Jan 02. Eye problem has since gone > > away. > > > Never any other Graves symptoms. > > > Here are the results. > > > Free T4 1.0 (.8 - 1.8) > > > Free T3 3.0 (2.3 - 4.2) > > > TSH 1.19 (.4 - 6) > > > > > > My tsh previously tested Jan 02 and Apr. 02 was .03 (barely found) > > > Free T4 Jan 02 was 1.4, no prior Free t3, but all previous thyroid > > > tests were within normal ranges except the TSH. > > > > > > I am not taking any medication, no RAI, no thyroidectomy. > > > any comments on the results would be apprcieated > > > > > > Thanks, > > > Nan > > > > > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > DISCLAIMER > > > > Advertisments placed on this yahoo groups list do not have the endorsement > of > > the listowner. I have no input as to what ads are attached to emails. > > ------------------------------------------------------------------ -------- > ------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 My symptoms at this point are only the rapid heart, that I am aware of anyways (and that was because the docs made me aware of it!). Physically I feel fine, although I tire early in the evening on work days. Is it possible that I have symptoms and don't know it? When would I consider them dangerous? This is all too new and confusing to me, so I am really thankful I found this group! Chris > > > Has anyone had their tsh come back up without any medication, RAI > > or > > > Surgery? Anyone using alternative methods to treat graves? > > > I went to Healthcheckusa for my latest blood test. I would > > definately > > > recommend them for blood work. Besides the price, they get the > > > results back to you fast. > > > I was diagnosed graves/ted Jan 02. Eye problem has since gone > > away. > > > Never any other Graves symptoms. > > > Here are the results. > > > Free T4 1.0 (.8 - 1.8) > > > Free T3 3.0 (2.3 - 4.2) > > > TSH 1.19 (.4 - 6) > > > > > > My tsh previously tested Jan 02 and Apr. 02 was .03 (barely found) > > > Free T4 Jan 02 was 1.4, no prior Free t3, but all previous thyroid > > > tests were within normal ranges except the TSH. > > > > > > I am not taking any medication, no RAI, no thyroidectomy. > > > any comments on the results would be apprcieated > > > > > > Thanks, > > > Nan > > > > > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > DISCLAIMER > > > > Advertisments placed on this yahoo groups list do not have the endorsement > of > > the listowner. I have no input as to what ads are attached to emails. > > ------------------------------------------------------------------ -------- > ------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 It is possible that you have just gotten used to your symptoms. After I started PTU and felt SOOO much better,I realized how shaky and starving I was before meds. If your heartrate is not dangerously high,then just have your blood drawn every month. My docs let me do that for over a year.~jen Re: symptoms > My symptoms at this point are only the rapid heart, that I am aware > of anyways (and that was because the docs made me aware of it!). > Physically I feel fine, although I tire early in the evening on work > days. Is it possible that I have symptoms and don't know it? When > would I consider them dangerous? This is all too new and confusing > to me, so I am really thankful I found this group! > > Chris > > > > > > Has anyone had their tsh come back up without any medication, > RAI > > > or > > > > Surgery? Anyone using alternative methods to treat graves? > > > > I went to Healthcheckusa for my latest blood test. I would > > > definately > > > > recommend them for blood work. Besides the price, they get the > > > > results back to you fast. > > > > I was diagnosed graves/ted Jan 02. Eye problem has since gone > > > away. > > > > Never any other Graves symptoms. > > > > Here are the results. > > > > Free T4 1.0 (.8 - 1.8) > > > > Free T3 3.0 (2.3 - 4.2) > > > > TSH 1.19 (.4 - 6) > > > > > > > > My tsh previously tested Jan 02 and Apr. 02 was .03 (barely > found) > > > > Free T4 Jan 02 was 1.4, no prior Free t3, but all previous > thyroid > > > > tests were within normal ranges except the TSH. > > > > > > > > I am not taking any medication, no RAI, no thyroidectomy. > > > > any comments on the results would be apprcieated > > > > > > > > Thanks, > > > > Nan > > > > > > > > > > > > ------------------------------------- > > > The Graves' list is intended for informational purposes only and > is not > > intended to replace expert medical care. > > > Please consult your doctor before changing or trying new > treatments. > > > ---------------------------------------- > > > DISCLAIMER > > > > > > Advertisments placed on this yahoo groups list do not have the > endorsement > > of > > > the listowner. I have no input as to what ads are attached to > emails. > > > ------------------------------------------------------------------ > -------- > > ------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 It is possible that you have just gotten used to your symptoms. After I started PTU and felt SOOO much better,I realized how shaky and starving I was before meds. If your heartrate is not dangerously high,then just have your blood drawn every month. My docs let me do that for over a year.~jen Re: symptoms > My symptoms at this point are only the rapid heart, that I am aware > of anyways (and that was because the docs made me aware of it!). > Physically I feel fine, although I tire early in the evening on work > days. Is it possible that I have symptoms and don't know it? When > would I consider them dangerous? This is all too new and confusing > to me, so I am really thankful I found this group! > > Chris > > > > > > Has anyone had their tsh come back up without any medication, > RAI > > > or > > > > Surgery? Anyone using alternative methods to treat graves? > > > > I went to Healthcheckusa for my latest blood test. I would > > > definately > > > > recommend them for blood work. Besides the price, they get the > > > > results back to you fast. > > > > I was diagnosed graves/ted Jan 02. Eye problem has since gone > > > away. > > > > Never any other Graves symptoms. > > > > Here are the results. > > > > Free T4 1.0 (.8 - 1.8) > > > > Free T3 3.0 (2.3 - 4.2) > > > > TSH 1.19 (.4 - 6) > > > > > > > > My tsh previously tested Jan 02 and Apr. 02 was .03 (barely > found) > > > > Free T4 Jan 02 was 1.4, no prior Free t3, but all previous > thyroid > > > > tests were within normal ranges except the TSH. > > > > > > > > I am not taking any medication, no RAI, no thyroidectomy. > > > > any comments on the results would be apprcieated > > > > > > > > Thanks, > > > > Nan > > > > > > > > > > > > ------------------------------------- > > > The Graves' list is intended for informational purposes only and > is not > > intended to replace expert medical care. > > > Please consult your doctor before changing or trying new > treatments. > > > ---------------------------------------- > > > DISCLAIMER > > > > > > Advertisments placed on this yahoo groups list do not have the > endorsement > > of > > > the listowner. I have no input as to what ads are attached to > emails. > > > ------------------------------------------------------------------ > -------- > > ------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Have you looked at a checklist of symptoms? I found one on about.com, and also on my mom's medical software. I was amazed at how many I fit, especially the depression, mood swings, irritibility, etc. There were others like itchy skin and dry eyes that I attributed to the cold weather, the gas heat in my house, and my environmental allergies. The more common ones like a rapid heart beat, I had never noticed. I've been on Tapazole and Atenolol for 3 days and I already feel much better. I can sleep at night again, and I have no more hand shakes. Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Have you looked at a checklist of symptoms? I found one on about.com, and also on my mom's medical software. I was amazed at how many I fit, especially the depression, mood swings, irritibility, etc. There were others like itchy skin and dry eyes that I attributed to the cold weather, the gas heat in my house, and my environmental allergies. The more common ones like a rapid heart beat, I had never noticed. I've been on Tapazole and Atenolol for 3 days and I already feel much better. I can sleep at night again, and I have no more hand shakes. Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 FYI there's also an extended symptom list put together by this group, in the Files section of the home page. Terry > > Reply-To: graves_support > Date: Thu, 27 Feb 2003 22:19:17 -0000 > To: graves_support > Subject: Re: symptoms > > Have you looked at a checklist of symptoms? I found one on > about.com, and also on my mom's medical software. > > I was amazed at how many I fit, especially the depression, mood > swings, irritibility, etc. There were others like itchy skin and dry > eyes that I attributed to the cold weather, the gas heat in my house, > and my environmental allergies. The more common ones like a rapid > heart beat, I had never noticed. > > I've been on Tapazole and Atenolol for 3 days and I already feel much > better. I can sleep at night again, and I have no more hand shakes. > > Jennie > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 FYI there's also an extended symptom list put together by this group, in the Files section of the home page. Terry > > Reply-To: graves_support > Date: Thu, 27 Feb 2003 22:19:17 -0000 > To: graves_support > Subject: Re: symptoms > > Have you looked at a checklist of symptoms? I found one on > about.com, and also on my mom's medical software. > > I was amazed at how many I fit, especially the depression, mood > swings, irritibility, etc. There were others like itchy skin and dry > eyes that I attributed to the cold weather, the gas heat in my house, > and my environmental allergies. The more common ones like a rapid > heart beat, I had never noticed. > > I've been on Tapazole and Atenolol for 3 days and I already feel much > better. I can sleep at night again, and I have no more hand shakes. > > Jennie > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2003 Report Share Posted March 7, 2003 it would be nice if you gave the URL for this section- just cuz it can be confusing... Re: Re: symptoms In the files section from the home page for group there is an extended symptoms list that was put together in this group. Once you go over that list, even more things may be made more clear to you. J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2003 Report Share Posted March 7, 2003 it would be nice if you gave the URL for this section- just cuz it can be confusing... Re: Re: symptoms In the files section from the home page for group there is an extended symptoms list that was put together in this group. Once you go over that list, even more things may be made more clear to you. J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 hi i am interested in getting off this board does anyone know how to do this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 hi i am interested in getting off this board does anyone know how to do this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 you can't- you have to stay with us forever. there is no jumping ship, sorry Re: symptoms hi i am interested in getting off this board does anyone know how to do this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 you can't- you have to stay with us forever. there is no jumping ship, sorry Re: symptoms hi i am interested in getting off this board does anyone know how to do this. Quote Link to comment Share on other sites More sharing options...
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