shortness of breath

[Guest guest]

Sam had terrible shortness of breath for several months at least, and went

to a pulmonary specialist--everything fine there, absolutely nothing

wrong. Subsequent heart tests (during a n overnight hospital stay after a

fainting spell in a supermarket where he was out for 5 minutes or more) and

he has a very strong heart. Happily, the shortness of breath is no longer

a problem--has disappeared. Who knows why, but we'll take it. Lou

Reynolds

[Guest guest]

MB

Should have just looked back at them with the " you people didn't see

what just happened? oh you missed something big in the movie. "

> >

> > From: Beth mbmurtha (AT) yahoo (DOT) com>

> > Subject: Re: Shortness of Breath

> > To: Breathe-Support@ yahoogroups. com

> > Date: Thursday, March 26, 2009, 6:23 PM

> >

> >

> > Hi,

> > I'm not certain at all why that happens but what you describe has

been happening to me since prior to my diagnosis. It's almost like a

small involuntary gasp. Is that what you mean? Unfortunately I can't

tell you anything about what it is and why it happens. No one has ever

been able to tell me.

> > But you're not alone. Maybe someone else will know. Bruce???

> >

> > Beth

> > Moderator

> > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: vella_vesture bpello (AT) comcast (DOT) net>

> > To: Breathe-Support@ yahoogroups. com

> > Sent: Thursday, March 26, 2009 6:07:01 PM

> > Subject: Shortness of Breath

> >

> >

> > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I

noticed I had shortness of breath upon lifting heavy objects and

sweeping floor. It comes and goes and I even have good times when I can

walk a tred mill. I have not tested positive for RA but did have lung

studies and have been diagnosed with pulmonay fibrosis. I am now

experiencing something strange which can't get a satisfactory answer

for. At rest I suddenly have a spasm of my diaphragm with causes me to

take a sudden rapid deep breath. I have no control over this and it is

getting painful. Any ideas of what is happening. Thanks

> >

>

[Guest guest]

I actually do have short gasps of breath like this at rest and it feels like a knot of air stuck inside my chest. It is caused from bleeding GI ulcers and I have a very large hiatal hernia. Not saying this is the case here, but wouldn't hurt to ask about it. CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Friday, March 27, 2009 7:13:46 AMSubject: Re: Shortness of Breath

Joyce,

Thanks! If I sounded sharp it was unintentional. I'm sorry if I hurt your feelings...wouldn' t do that on purpose for anything in the world.

And as we've discussed there may be a couple of different things going on with a similar symptom and you are correct it's always good to explore all the possibilities, including reflux with our doctors.

Hugs,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 8:08:23 AMSubject: Re: Shortness of Breath

thanks for responding, it was just a suiggestion

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 6:23 PM

Hi,

I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me.

But you're not alone. Maybe someone else will know. Bruce???

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath

I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks

[Guest guest]

I actually do have short gasps of breath like this at rest and it feels like a knot of air stuck inside my chest. It is caused from bleeding GI ulcers and I have a very large hiatal hernia. Not saying this is the case here, but wouldn't hurt to ask about it. CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Friday, March 27, 2009 7:13:46 AMSubject: Re: Shortness of Breath

Joyce,

Thanks! If I sounded sharp it was unintentional. I'm sorry if I hurt your feelings...wouldn' t do that on purpose for anything in the world.

And as we've discussed there may be a couple of different things going on with a similar symptom and you are correct it's always good to explore all the possibilities, including reflux with our doctors.

Hugs,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 8:08:23 AMSubject: Re: Shortness of Breath

thanks for responding, it was just a suiggestion

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 6:23 PM

Hi,

I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me.

But you're not alone. Maybe someone else will know. Bruce???

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath

I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks

[Guest guest]

Bruce not to change the subject but I need any male help I can get. A close friend has a husband who just was diagnoised with pf. He belongs to the three stooges woman haters club so he will not listen to me! I "am just helping because she is a dear friend. Please guys tell me if I'am wrong:

A) you must stay hydrated because your lungs need water ( coffee in the morning and beer at night does not count.) He is also on lasix which I have felt great thirst on lasix at times.

exercise is important to keep heart and body strong and since he is not on o2 or is not progressed lung volume is better thru exercise.( I think Jack is living proof of the value of exercise.)walking to the refrigerator and poping open a can of beer does not count.

C) if your mouth feels dry it means you need water and tightness, not short of breath, is also a sign to get hydrated. if I am wrong on any of these points please correct me (Sheez, Men cant live with them and can't kill them)

sharon p asthma ph 2008

Subject: Re: Shortness of BreathTo: Breathe-Support Date: Thursday, March 26, 2009, 10:46 PM

I think we're talking about a number of very similar sounding butslightly different things. The sudden shortness is pretty much common toall of us as lack of oxygen and an extra need. When I first lay down myoxygen also takes a plunge downward and then starts back up. I can be ontwo liters and 95%, lay down and watch it fall to 86-88%, and then watchit steadily rise 1% at a time until its around 98%.Another situation is where it feels like a spasm or hiccup or anotherform of sudden gasping when somehow we have an impactful shortage. Thiscan be through eating too much, through positioning and compression,through just a poor breathing habit for an instant, but its here andgone.Still another is when there is a spasm which may be in our esophagusarea or elsewhere and explained through many disparate causes. This ismore muscular in nature and may be caused by acid or many other things.The

esophagus is especially prone because of the number of muscles thatmake it up. Sometimes these muscular issues are unexplained too.One very common cause of this spasm feeling too, which I overlooked, isa hiatal hernia. Many of us do have hiatal hernias and they willperiodically cause spasms.Now, someone mentioned lifting. For me lifting or bending over is a verysignificant and sudden drop. However, this is explained by understandingthat lifting is an anaeroebic and our bodies need to draw on more thanthe oxygen we're breathing, but the oxygen our muscles would normallysupply. They will effect many of us much more significantly. Also,whether we realize it or not, we tend to hold our breath when we lift.Obviously this makes the problem greater.There is one other issue that is more common with asthma sufferers butcan impact us at certain times and feel like a spasm and that is when wehave

some form of obstruction or a movement that suddenly the CO2 we'reforcing out gets caught for a moment.Guess this subject is pretty complex but while these various things seemsimilar when we describe them we may be experiencing them quitedifferently.> > >> > > Hi,> > > I'm not certain at all why that happens but what you describe has> been> > happening to me since prior to my diagnosis. It's almost like asmall> > involuntary gasp. Is that what you mean? Unfortunately I can't tell> you> > anything about what it is and why it happens. No one has ever been> able> > to tell me.> > > But you're not alone. Maybe someone else will know. Bruce???> > >> > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >> > >> >

>> > >> > > ____________ _________ _________ __> > > From: vella_vesture bpello@> > > To: Breathe-Support@ yahoogroups. com> > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > Subject: Shortness of Breath> > >> > >> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onsetI> > noticed I had shortness of breath upon lifting heavy objects and> > sweeping floor. It comes and goes and I even have good times when I> can> > walk a tred mill. I have not tested positive for RA but did havelung> > studies and have been diagnosed with pulmonay fibrosis. I am now> > experiencing something strange which can't get a satisfactory answer> > for. At rest I suddenly have a spasm of my diaphragm with causes meto> > take a sudden rapid

deep breath. I have no control over this and itis> > getting painful. Any ideas of what is happening. Thanks> > >> >>

[Guest guest]

Bruce not to change the subject but I need any male help I can get. A close friend has a husband who just was diagnoised with pf. He belongs to the three stooges woman haters club so he will not listen to me! I "am just helping because she is a dear friend. Please guys tell me if I'am wrong:

A) you must stay hydrated because your lungs need water ( coffee in the morning and beer at night does not count.) He is also on lasix which I have felt great thirst on lasix at times.

exercise is important to keep heart and body strong and since he is not on o2 or is not progressed lung volume is better thru exercise.( I think Jack is living proof of the value of exercise.)walking to the refrigerator and poping open a can of beer does not count.

C) if your mouth feels dry it means you need water and tightness, not short of breath, is also a sign to get hydrated. if I am wrong on any of these points please correct me (Sheez, Men cant live with them and can't kill them)

sharon p asthma ph 2008

Subject: Re: Shortness of BreathTo: Breathe-Support Date: Thursday, March 26, 2009, 10:46 PM

I think we're talking about a number of very similar sounding butslightly different things. The sudden shortness is pretty much common toall of us as lack of oxygen and an extra need. When I first lay down myoxygen also takes a plunge downward and then starts back up. I can be ontwo liters and 95%, lay down and watch it fall to 86-88%, and then watchit steadily rise 1% at a time until its around 98%.Another situation is where it feels like a spasm or hiccup or anotherform of sudden gasping when somehow we have an impactful shortage. Thiscan be through eating too much, through positioning and compression,through just a poor breathing habit for an instant, but its here andgone.Still another is when there is a spasm which may be in our esophagusarea or elsewhere and explained through many disparate causes. This ismore muscular in nature and may be caused by acid or many other things.The

esophagus is especially prone because of the number of muscles thatmake it up. Sometimes these muscular issues are unexplained too.One very common cause of this spasm feeling too, which I overlooked, isa hiatal hernia. Many of us do have hiatal hernias and they willperiodically cause spasms.Now, someone mentioned lifting. For me lifting or bending over is a verysignificant and sudden drop. However, this is explained by understandingthat lifting is an anaeroebic and our bodies need to draw on more thanthe oxygen we're breathing, but the oxygen our muscles would normallysupply. They will effect many of us much more significantly. Also,whether we realize it or not, we tend to hold our breath when we lift.Obviously this makes the problem greater.There is one other issue that is more common with asthma sufferers butcan impact us at certain times and feel like a spasm and that is when wehave

some form of obstruction or a movement that suddenly the CO2 we'reforcing out gets caught for a moment.Guess this subject is pretty complex but while these various things seemsimilar when we describe them we may be experiencing them quitedifferently.> > >> > > Hi,> > > I'm not certain at all why that happens but what you describe has> been> > happening to me since prior to my diagnosis. It's almost like asmall> > involuntary gasp. Is that what you mean? Unfortunately I can't tell> you> > anything about what it is and why it happens. No one has ever been> able> > to tell me.> > > But you're not alone. Maybe someone else will know. Bruce???> > >> > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >> > >> >

>> > >> > > ____________ _________ _________ __> > > From: vella_vesture bpello@> > > To: Breathe-Support@ yahoogroups. com> > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > Subject: Shortness of Breath> > >> > >> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onsetI> > noticed I had shortness of breath upon lifting heavy objects and> > sweeping floor. It comes and goes and I even have good times when I> can> > walk a tred mill. I have not tested positive for RA but did havelung> > studies and have been diagnosed with pulmonay fibrosis. I am now> > experiencing something strange which can't get a satisfactory answer> > for. At rest I suddenly have a spasm of my diaphragm with causes meto> > take a sudden rapid

deep breath. I have no control over this and itis> > getting painful. Any ideas of what is happening. Thanks> > >> >>

[Guest guest]

Sharon

You're not just right but its even more so than you said. Hydration

issues and dry mouth can be indications of other problems too. Tightness

rather than just shortness of breath can also be an additional issue.

This or any disease doesn't allow us to ignore it. We preach here about

living life the best you can and I've learned so much about that from

the board members. But, that doesn't mean live it exactly as you always

have. It means in many ways to get smarter. I've exercised more with PF

than I did before. I do watch my hydration as I love water but around

the house can just forget to drink it if not careful. We also have to

recognize other signs that need attention.

Yes, we have to see doctors. Yes, we have to take better care of

ourselves. Yes, we have to manage our health best we can. Those things

are what allow us to say " I'm doing pretty well " when we're walking

around with a terminal disease and a total of 15-20 conditions or

diagnoses and having seen 17 diffferent doctors in one year. Because,

the reality is I do feel I'm doing well. I look healthy. I can get

around. I can enjoy life. But, that doesn't mean ignore taking care of

myself and managing my condition.

> > > >

> > > > Hi,

> > > > I'm not certain at all why that happens but what you describe

has

> > been

> > > happening to me since prior to my diagnosis. It's almost like a

> small

> > > involuntary gasp. Is that what you mean? Unfortunately I can't

tell

> > you

> > > anything about what it is and why it happens. No one has ever been

> > able

> > > to tell me.

> > > > But you're not alone. Maybe someone else will know. Bruce???

> > > >

> > > > Beth

> > > > Moderator

> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > > >

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: vella_vesture bpello@

> > > > To: Breathe-Support@ yahoogroups. com

> > > > Sent: Thursday, March 26, 2009 6:07:01 PM

> > > > Subject: Shortness of Breath

> > > >

> > > >

> > > > I was diagnosed with polymyalgia rheumatica in 1997. At the

onset

> I

> > > noticed I had shortness of breath upon lifting heavy objects and

> > > sweeping floor. It comes and goes and I even have good times when

I

> > can

> > > walk a tred mill. I have not tested positive for RA but did have

> lung

> > > studies and have been diagnosed with pulmonay fibrosis. I am now

> > > experiencing something strange which can't get a satisfactory

answer

> > > for. At rest I suddenly have a spasm of my diaphragm with causes

me

> to

> > > take a sudden rapid deep breath. I have no control over this and

it

> is

> > > getting painful. Any ideas of what is happening. Thanks

> > > >

> > >

> >

>

[Guest guest]

Sharon

You're not just right but its even more so than you said. Hydration

issues and dry mouth can be indications of other problems too. Tightness

rather than just shortness of breath can also be an additional issue.

This or any disease doesn't allow us to ignore it. We preach here about

living life the best you can and I've learned so much about that from

the board members. But, that doesn't mean live it exactly as you always

have. It means in many ways to get smarter. I've exercised more with PF

than I did before. I do watch my hydration as I love water but around

the house can just forget to drink it if not careful. We also have to

recognize other signs that need attention.

Yes, we have to see doctors. Yes, we have to take better care of

ourselves. Yes, we have to manage our health best we can. Those things

are what allow us to say " I'm doing pretty well " when we're walking

around with a terminal disease and a total of 15-20 conditions or

diagnoses and having seen 17 diffferent doctors in one year. Because,

the reality is I do feel I'm doing well. I look healthy. I can get

around. I can enjoy life. But, that doesn't mean ignore taking care of

myself and managing my condition.

> > > >

> > > > Hi,

> > > > I'm not certain at all why that happens but what you describe

has

> > been

> > > happening to me since prior to my diagnosis. It's almost like a

> small

> > > involuntary gasp. Is that what you mean? Unfortunately I can't

tell

> > you

> > > anything about what it is and why it happens. No one has ever been

> > able

> > > to tell me.

> > > > But you're not alone. Maybe someone else will know. Bruce???

> > > >

> > > > Beth

> > > > Moderator

> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > > >

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: vella_vesture bpello@

> > > > To: Breathe-Support@ yahoogroups. com

> > > > Sent: Thursday, March 26, 2009 6:07:01 PM

> > > > Subject: Shortness of Breath

> > > >

> > > >

> > > > I was diagnosed with polymyalgia rheumatica in 1997. At the

onset

> I

> > > noticed I had shortness of breath upon lifting heavy objects and

> > > sweeping floor. It comes and goes and I even have good times when

I

> > can

> > > walk a tred mill. I have not tested positive for RA but did have

> lung

> > > studies and have been diagnosed with pulmonay fibrosis. I am now

> > > experiencing something strange which can't get a satisfactory

answer

> > > for. At rest I suddenly have a spasm of my diaphragm with causes

me

> to

> > > take a sudden rapid deep breath. I have no control over this and

it

> is

> > > getting painful. Any ideas of what is happening. Thanks

> > > >

> > >

> >

>

[Guest guest]

Sharon.... you write 'he' won't listen to you. Will he listen to his wife?

If so tell her and she can tell him.

If not, I would imagine this guy is still in shock if he was 'just dx'. He doesn't want to hear anything right now.

Sorry for butting in, my curiosity made me do it.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Shortness of Breath> > >> > >> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onsetI> > noticed I had shortness of breath upon lifting heavy objects and> > sweeping floor. It comes and goes and I even have good times when I> can> > walk a tred mill. I have not tested positive for RA but did havelung> > studies and have been diagnosed with pulmonay fibrosis. I am now> > experiencing something strange which can't get a satisfactory answer> > for. At rest I suddenly have a spasm of my diaphragm with causes meto> > take a sudden rapid deep breath. I have no control over this and itis> > getting painful. Any ideas of what is happening. Thanks> > >> >>

[Guest guest]

Sharon.... you write 'he' won't listen to you. Will he listen to his wife?

If so tell her and she can tell him.

If not, I would imagine this guy is still in shock if he was 'just dx'. He doesn't want to hear anything right now.

Sorry for butting in, my curiosity made me do it.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Shortness of Breath> > >> > >> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onsetI> > noticed I had shortness of breath upon lifting heavy objects and> > sweeping floor. It comes and goes and I even have good times when I> can> > walk a tred mill. I have not tested positive for RA but did havelung> > studies and have been diagnosed with pulmonay fibrosis. I am now> > experiencing something strange which can't get a satisfactory answer> > for. At rest I suddenly have a spasm of my diaphragm with causes meto> > take a sudden rapid deep breath. I have no control over this and itis> > getting painful. Any ideas of what is happening. Thanks> > >> >>

[Guest guest]

Sher

It points out many things. One is the difference between " stubborn " and

" strong willed " . Stubborn is more resistant and refusal while strong

willed is determination as we normally perceive them. I think you're

right about newly diagnosed but I think men handle it often poorer than

women. There is that refusal to admit that you're " weak' in some respect

and that there is something you can't fight and defeat. But, in reality

you can defeat it. You can't cure it, but if you live your life to the

fullest in spite of it, you win.

We tend to immediately focus on all those things we think we can't do

instead of all those we can do.

In many respects dealing with PF is no different than dealing with

aging, just faster and sooner. Everyone at some point in their life

loses some abilities they had before and the longer they live the more

they lose. Unfortunately, we often tend to place our self value on what

we do or what we can do. It isn't. It's who we are that is our value.

Then within that we just do what we can. I am not less of a person

because I can't do all the things I could before. I'm the same. In a

society geared on productivity and accomplishment that may be hard to

understand. Many here are grandmothers. That's a huge value. Not what

you do, just being one to a child. Your grandchildren's biggest

treasures won't be the presents you give them. They will be the memories

of your smile, your voice, your comfort. They will be the times you held

them or sat beside them or talked to them on the phone.

> > > >

> > > > Hi,

> > > > I'm not certain at all why that happens but what you

describe has

> > been

> > > happening to me since prior to my diagnosis. It's almost

like a

> small

> > > involuntary gasp. Is that what you mean? Unfortunately I

can't tell

> > you

> > > anything about what it is and why it happens. No one has

ever been

> > able

> > > to tell me.

> > > > But you're not alone. Maybe someone else will know.

Bruce???

> > > >

> > > > Beth

> > > > Moderator

> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > > >

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: vella_vesture bpello@

> > > > To: Breathe-Support@ yahoogroups. com

> > > > Sent: Thursday, March 26, 2009 6:07:01 PM

> > > > Subject: Shortness of Breath

> > > >

> > > >

> > > > I was diagnosed with polymyalgia rheumatica in 1997.

At the onset

> I

> > > noticed I had shortness of breath upon lifting heavy

objects and

> > > sweeping floor. It comes and goes and I even have good

times when I

> > can

> > > walk a tred mill. I have not tested positive for RA but

did have

> lung

> > > studies and have been diagnosed with pulmonay fibrosis.

I am now

> > > experiencing something strange which can't get a

satisfactory answer

> > > for. At rest I suddenly have a spasm of my diaphragm

with causes me

> to

> > > take a sudden rapid deep breath. I have no control over

this and it

> is

> > > getting painful. Any ideas of what is happening. Thanks

> > > >

> > >

> >

>

[Guest guest]

Sher

It points out many things. One is the difference between " stubborn " and

" strong willed " . Stubborn is more resistant and refusal while strong

willed is determination as we normally perceive them. I think you're

right about newly diagnosed but I think men handle it often poorer than

women. There is that refusal to admit that you're " weak' in some respect

and that there is something you can't fight and defeat. But, in reality

you can defeat it. You can't cure it, but if you live your life to the

fullest in spite of it, you win.

We tend to immediately focus on all those things we think we can't do

instead of all those we can do.

In many respects dealing with PF is no different than dealing with

aging, just faster and sooner. Everyone at some point in their life

loses some abilities they had before and the longer they live the more

they lose. Unfortunately, we often tend to place our self value on what

we do or what we can do. It isn't. It's who we are that is our value.

Then within that we just do what we can. I am not less of a person

because I can't do all the things I could before. I'm the same. In a

society geared on productivity and accomplishment that may be hard to

understand. Many here are grandmothers. That's a huge value. Not what

you do, just being one to a child. Your grandchildren's biggest

treasures won't be the presents you give them. They will be the memories

of your smile, your voice, your comfort. They will be the times you held

them or sat beside them or talked to them on the phone.

> > > >

> > > > Hi,

> > > > I'm not certain at all why that happens but what you

describe has

> > been

> > > happening to me since prior to my diagnosis. It's almost

like a

> small

> > > involuntary gasp. Is that what you mean? Unfortunately I

can't tell

> > you

> > > anything about what it is and why it happens. No one has

ever been

> > able

> > > to tell me.

> > > > But you're not alone. Maybe someone else will know.

Bruce???

> > > >

> > > > Beth

> > > > Moderator

> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > > >

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: vella_vesture bpello@

> > > > To: Breathe-Support@ yahoogroups. com

> > > > Sent: Thursday, March 26, 2009 6:07:01 PM

> > > > Subject: Shortness of Breath

> > > >

> > > >

> > > > I was diagnosed with polymyalgia rheumatica in 1997.

At the onset

> I

> > > noticed I had shortness of breath upon lifting heavy

objects and

> > > sweeping floor. It comes and goes and I even have good

times when I

> > can

> > > walk a tred mill. I have not tested positive for RA but

did have

> lung

> > > studies and have been diagnosed with pulmonay fibrosis.

I am now

> > > experiencing something strange which can't get a

satisfactory answer

> > > for. At rest I suddenly have a spasm of my diaphragm

with causes me

> to

> > > take a sudden rapid deep breath. I have no control over

this and it

> is

> > > getting painful. Any ideas of what is happening. Thanks

> > > >

> > >

> >

>

[Guest guest]

I also do this. I have always just assumed it is my body's way of telling my

lungs to breathe when they need more air. It happens especially when resting or

sleeping. I sometimes wake up gasping for air even with the O2 on. Just as

soon as I meet my deductible in the next month or so I am going to have a sleep

study. Hubby is convinced I have sleep apnea like so many of us do.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

> > From: Beth

> > Subject: Re: Shortness of Breath

> > To: Breathe-Support

> > Date: Thursday, March 26, 2009, 6:23 PM

> > Hi,

> > I'm not certain at all why that happens but what you

> > describe has been happening to me since prior to my

> > diagnosis. It's almost like a small involuntary gasp. Is

> > that what you mean? Unfortunately I can't tell you

> > anything about what it is and why it happens. No one has

> > ever been able to tell me.

> > But you're not alone. Maybe someone else will know.

> > Bruce???

> >  

> > Beth

> > Moderator

> > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> >

> >

> >

> >

> > ________________________________

> > From: vella_vesture

> > To: Breathe-Support

> > Sent: Thursday, March 26, 2009 6:07:01 PM

> > Subject: Shortness of Breath

> >

> >

> > I was diagnosed with polymyalgia rheumatica in 1997. At the

> > onset I noticed I had shortness of breath upon lifting heavy

> > objects and sweeping floor. It comes and goes and I even

> > have good times when I can walk a tred mill. I have not

> > tested positive for RA but did have lung studies and have

> > been diagnosed with pulmonay fibrosis. I am now experiencing

> > something strange which can't get a satisfactory answer

> > for. At rest I suddenly have a spasm of my diaphragm with

> > causes me to take a sudden rapid deep breath. I have no

> > control over this and it is getting painful. Any ideas of

> > what is happening. Thanks

>

[Guest guest]

I also do this. I have always just assumed it is my body's way of telling my

lungs to breathe when they need more air. It happens especially when resting or

sleeping. I sometimes wake up gasping for air even with the O2 on. Just as

soon as I meet my deductible in the next month or so I am going to have a sleep

study. Hubby is convinced I have sleep apnea like so many of us do.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

> > From: Beth

> > Subject: Re: Shortness of Breath

> > To: Breathe-Support

> > Date: Thursday, March 26, 2009, 6:23 PM

> > Hi,

> > I'm not certain at all why that happens but what you

> > describe has been happening to me since prior to my

> > diagnosis. It's almost like a small involuntary gasp. Is

> > that what you mean? Unfortunately I can't tell you

> > anything about what it is and why it happens. No one has

> > ever been able to tell me.

> > But you're not alone. Maybe someone else will know.

> > Bruce???

> >  

> > Beth

> > Moderator

> > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> >

> >

> >

> >

> > ________________________________

> > From: vella_vesture

> > To: Breathe-Support

> > Sent: Thursday, March 26, 2009 6:07:01 PM

> > Subject: Shortness of Breath

> >

> >

> > I was diagnosed with polymyalgia rheumatica in 1997. At the

> > onset I noticed I had shortness of breath upon lifting heavy

> > objects and sweeping floor. It comes and goes and I even

> > have good times when I can walk a tred mill. I have not

> > tested positive for RA but did have lung studies and have

> > been diagnosed with pulmonay fibrosis. I am now experiencing

> > something strange which can't get a satisfactory answer

> > for. At rest I suddenly have a spasm of my diaphragm with

> > causes me to take a sudden rapid deep breath. I have no

> > control over this and it is getting painful. Any ideas of

> > what is happening. Thanks

>

[Guest guest]

It’s

nice to know that others have these sharp intakes of breath. I have them on an

irregular basis, normally when in bed or just relaxed, and it comes as a

complete surprise. Also comes with a sound that completely startles my wife. The

really surprising thing is that it doesn’t kick off the cough as happens

when I deliberately take a deep breath.

Bob

IPF 04/07

[Guest guest]

Holy cow, Bruce..........you continue to amaze me............ jim

Subject: Re: Shortness of BreathTo: Breathe-Support Date: Friday, March 27, 2009, 9:34 AM

SherIt points out many things. One is the difference between "stubborn" and"strong willed". Stubborn is more resistant and refusal while strongwilled is determination as we normally perceive them. I think you'reright about newly diagnosed but I think men handle it often poorer thanwomen. There is that refusal to admit that you're "weak' in some respectand that there is something you can't fight and defeat. But, in realityyou can defeat it. You can't cure it, but if you live your life to thefullest in spite of it, you win.We tend to immediately focus on all those things we think we can't doinstead of all those we can do.In many respects dealing with PF is no different than dealing withaging, just faster and sooner. Everyone at some point in their lifeloses some abilities they had before and the longer they live the morethey lose. Unfortunately, we often tend to place our self value

on whatwe do or what we can do. It isn't. It's who we are that is our value.Then within that we just do what we can. I am not less of a personbecause I can't do all the things I could before. I'm the same. In asociety geared on productivity and accomplishment that may be hard tounderstand. Many here are grandmothers. That's a huge value. Not whatyou do, just being one to a child. Your grandchildren' s biggesttreasures won't be the presents you give them. They will be the memoriesof your smile, your voice, your comfort. They will be the times you heldthem or sat beside them or talked to them on the phone.> > > >> > > > Hi,> > > > I'm not certain at all why that happens but what youdescribe has> > been> > > happening to me since prior to my diagnosis. It's almostlike a> small> > > involuntary gasp. Is that what you mean? Unfortunately Ican't tell> > you> > > anything about what it is and why it

happens. No one hasever been> > able> > > to tell me.> > > > But you're not alone. Maybe someone else will know.Bruce???> > > >> > > > Beth> > > > Moderator> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > >> > > >> > > >> > > >> > > > ____________ _________ _________ __> > > > From: vella_vesture bpello@> > > > To: Breathe-Support@ yahoogroups. com> > > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > > Subject: Shortness of Breath> > > >> > > >> > > > I was diagnosed with polymyalgia rheumatica in 1997.At the onset> I> > > noticed I had shortness of breath upon lifting heavyobjects and> >

> sweeping floor. It comes and goes and I even have goodtimes when I> > can> > > walk a tred mill. I have not tested positive for RA butdid have> lung> > > studies and have been diagnosed with pulmonay fibrosis.I am now> > > experiencing something strange which can't get asatisfactory answer> > > for. At rest I suddenly have a spasm of my diaphragmwith causes me> to> > > take a sudden rapid deep breath. I have no control overthis and it> is> > > getting painful. Any ideas of what is happening. Thanks> > > >> > >> >>

[Guest guest]

Bob,

I never thought about that but that's the way it is for me too. That little gasp doesn't make me cough but if I sit here and breathe deeply deliberately, I'll be coughing after one or two breaths. Weird isn't it?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, March 27, 2009 4:14:06 PMSubject: Re: Shortness of Breath

It’s nice to know that others have these sharp intakes of breath. I have them on an irregular basis, normally when in bed or just relaxed, and it comes as a complete surprise. Also comes with a sound that completely startles my wife. The really surprising thing is that it doesn’t kick off the cough as happens when I deliberately take a deep breath.

Bob IPF 04/07

[Guest guest]

Sharon,

You know what they say............."you can lead a man to water, but you can't make him wash." I know that others will give you a more thoughtful and helpfull answer.I tend to be (character flaw) short and direct......the guy will find his way,whatever that me be. I remember my first year....total insanity. jim

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 10:46 PM

I think we're talking about a number of very similar sounding butslightly different things. The sudden shortness is pretty much common toall of us as lack of oxygen and an extra need. When I first lay down myoxygen also takes a plunge downward and then starts back up. I can be ontwo liters and 95%, lay down and watch it fall to 86-88%, and then watchit steadily rise 1% at a time until its around 98%.Another situation is where it feels like a spasm or hiccup or anotherform of sudden gasping when somehow we have an impactful shortage. Thiscan be through eating too much, through positioning and compression,through just a poor breathing habit for an instant, but its here andgone.Still another is when there is a spasm which may be in our esophagusarea or elsewhere and explained through many disparate causes. This ismore muscular in nature and may be caused by acid or many other things.The

esophagus is especially prone because of the number of muscles thatmake it up. Sometimes these muscular issues are unexplained too.One very common cause of this spasm feeling too, which I overlooked, isa hiatal hernia. Many of us do have hiatal hernias and they willperiodically cause spasms.Now, someone mentioned lifting. For me lifting or bending over is a verysignificant and sudden drop. However, this is explained by understandingthat lifting is an anaeroebic and our bodies need to draw on more thanthe oxygen we're breathing, but the oxygen our muscles would normallysupply. They will effect many of us much more significantly. Also,whether we realize it or not, we tend to hold our breath when we lift.Obviously this makes the problem greater.There is one other issue that is more common with asthma sufferers butcan impact us at certain times and feel like a spasm and that is when wehave

some form of obstruction or a movement that suddenly the CO2 we'reforcing out gets caught for a moment.Guess this subject is pretty complex but while these various things seemsimilar when we describe them we may be experiencing them quitedifferently.> > >> > > Hi,> > > I'm not certain at all why that happens but what you describe has> been> > happening to me since prior to my diagnosis. It's almost like asmall> > involuntary gasp. Is that what you mean? Unfortunately I can't tell> you> > anything about what it is and why it happens. No one has ever been> able> > to tell me.> > > But you're not alone. Maybe someone else will know. Bruce???> > >> > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >> > >> > >> > >> > > ____________ _________ _________ __> > > From: vella_vesture bpello@> > > To:

Breathe-Support@ yahoogroups. com> > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > Subject: Shortness of Breath> > >> > >> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onsetI> > noticed I had shortness of breath upon lifting heavy objects and> > sweeping floor. It comes and goes and I even have good times when I> can> > walk a tred mill. I have not tested positive for RA but did havelung> > studies and have been diagnosed with pulmonay fibrosis. I am now> > experiencing something strange which can't get a satisfactory answer> > for. At rest I suddenly have a spasm of my diaphragm with causes meto> > take a sudden rapid deep breath. I have no control over this and itis> > getting painful. Any ideas of what is happening. Thanks> >

>> >>

[Guest guest]

Jim, For that! I thank Yousharon p ph asthma 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 10:46 PM

I think we're talking about a number of very similar sounding butslightly different things. The sudden shortness is pretty much common toall of us as lack of oxygen and an extra need. When I first lay down myoxygen also takes a plunge downward and then starts back up. I can be ontwo liters and 95%, lay down and watch it fall to 86-88%, and then watchit steadily rise 1% at a time until its around 98%.Another situation is where it feels like a spasm or hiccup or anotherform of sudden gasping when somehow we have an impactful shortage. Thiscan be through eating too much, through positioning and compression,through just a poor breathing habit for an instant, but its here andgone.Still another is when there is a spasm which may be in our esophagusarea or elsewhere and explained through many disparate causes. This ismore muscular in nature and may be caused by acid or many other things.The

esophagus is especially prone because of the number of muscles thatmake it up. Sometimes these muscular issues are unexplained too.One very common cause of this spasm feeling too, which I overlooked, isa hiatal hernia. Many of us do have hiatal hernias and they willperiodically cause spasms.Now, someone mentioned lifting. For me lifting or bending over is a verysignificant and sudden drop. However, this is explained by understandingthat lifting is an anaeroebic and our bodies need to draw on more thanthe oxygen we're breathing, but the oxygen our muscles would normallysupply. They will effect many of us much more significantly. Also,whether we realize it or not, we tend to hold our breath when we lift.Obviously this makes the problem greater.There is one other issue that is more common with asthma sufferers butcan impact us at certain times and feel like a spasm and that is when wehave

some form of obstruction or a movement that suddenly the CO2 we'reforcing out gets caught for a moment.Guess this subject is pretty complex but while these various things seemsimilar when we describe them we may be experiencing them quitedifferently.> > >> > > Hi,> > > I'm not certain at all why that happens but what you describe has> been> > happening to me since prior to my diagnosis. It's almost like asmall> > involuntary gasp. Is that what you mean? Unfortunately I can't tell> you> > anything about what it is and why it happens. No one has ever been> able> > to tell me.> > > But you're not alone. Maybe someone else will know. Bruce???> > >> > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >> > >> > >> > >> > > ____________ _________ _________ __> > > From: vella_vesture bpello@> > > To:

Breathe-Support@ yahoogroups. com> > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > Subject: Shortness of Breath> > >> > >> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onsetI> > noticed I had shortness of breath upon lifting heavy objects and> > sweeping floor. It comes and goes and I even have good times when I> can> > walk a tred mill. I have not tested positive for RA but did havelung> > studies and have been diagnosed with pulmonay fibrosis. I am now> > experiencing something strange which can't get a satisfactory answer> > for. At rest I suddenly have a spasm of my diaphragm with causes meto> > take a sudden rapid deep breath. I have no control over this and itis> > getting painful. Any ideas of what is happening. Thanks> >

>> >>

[Guest guest]

Sharon, I am a great believer in hydration. One can measure his hydration level by his urine. If it's dark colored, he is in great need of more liquids, preferably only water, although I have heard doctors say that

sodas and juices will help. If one is properly hydrated, his urine will be a very light yellow or clear. Clear is the ultimate goal. Dehydration is damaging to your organs and your body. Of course, this applies to the ladies as well as the men.

Yes, some exercies daily is best but three times a week is good. I stick to muscle exercies with barbells, but one should start with a lighter weight. Once one reaches 12 lifts or bends with his weight, he should go to the next highest, and so forth. I also do at the least a 30 minute walk as brisk as I can short of getting SOB. I also use my stationary bike when the weather is too cold or too wet.

All of this is very simple, does not take a lot of time, does not require a lot of expensive equipment, and can done a home in your pajamas or underwear, if you like. If you do it in the bedroom, you can collapse

on the bed to rest. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, March 27, 2009 1:06:44 PMSubject: Re: Re: Shortness of Breath

Bruce not to change the subject but I need any male help I can get. A close friend has a husband who just was diagnoised with pf. He belongs to the three stooges woman haters club so he will not listen to me! I "am just helping because she is a dear friend. Please guys tell me if I'am wrong:

A) you must stay hydrated because your lungs need water ( coffee in the morning and beer at night does not count.) He is also on lasix which I have felt great thirst on lasix at times.

exercise is important to keep heart and body strong and since he is not on o2 or is not progressed lung volume is better thru exercise.( I think Jack is living proof of the value of exercise.)walking to the refrigerator and poping open a can of beer does not count.

C) if your mouth feels dry it means you need water and tightness, not short of breath, is also a sign to get hydrated. if I am wrong on any of these points please correct me (Sheez, Men cant live with them and can't kill them)

sharon p asthma ph 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 10:46 PM

I think we're talking about a number of very similar sounding butslightly different things. The sudden shortness is pretty much common toall of us as lack of oxygen and an extra need. When I first lay down myoxygen also takes a plunge downward and then starts back up. I can be ontwo liters and 95%, lay down and watch it fall to 86-88%, and then watchit steadily rise 1% at a time until its around 98%.Another situation is where it feels like a spasm or hiccup or anotherform of sudden gasping when somehow we have an impactful shortage. Thiscan be through eating too much, through positioning and compression,through just a poor breathing habit for an instant, but its here andgone.Still another is when there is a spasm which may be in our esophagusarea or elsewhere and explained through many disparate causes. This ismore muscular in nature and may be caused by acid or many other things.The

esophagus is especially prone because of the number of muscles thatmake it up. Sometimes these muscular issues are unexplained too.One very common cause of this spasm feeling too, which I overlooked, isa hiatal hernia. Many of us do have hiatal hernias and they willperiodically cause spasms.Now, someone mentioned lifting. For me lifting or bending over is a verysignificant and sudden drop. However, this is explained by understandingthat lifting is an anaeroebic and our bodies need to draw on more thanthe oxygen we're breathing, but the oxygen our muscles would normallysupply. They will effect many of us much more significantly. Also,whether we realize it or not, we tend to hold our breath when we lift.Obviously this makes the problem greater.There is one other issue that is more common with asthma sufferers butcan impact us at certain times and feel like a spasm and that is when wehave

some form of obstruction or a movement that suddenly the CO2 we'reforcing out gets caught for a moment.Guess this subject is pretty complex but while these various things seemsimilar when we describe them we may be experiencing them quitedifferently.> > >> > > Hi,> > > I'm not certain at all why that happens but what you describe has> been> > happening to me since prior to my diagnosis. It's almost like asmall> > involuntary gasp. Is that what you mean? Unfortunately I can't tell> you> > anything about what it is and why it happens. No one has ever been> able> > to tell me.> > > But you're not alone. Maybe someone else will know. Bruce???> > >> > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >> > >> > >> > >> > > ____________ _________ _________ __> > > From: vella_vesture bpello@> > > To:

Breathe-Support@ yahoogroups. com> > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > Subject: Shortness of Breath> > >> > >> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onsetI> > noticed I had shortness of breath upon lifting heavy objects and> > sweeping floor. It comes and goes and I even have good times when I> can> > walk a tred mill. I have not tested positive for RA but did havelung> > studies and have been diagnosed with pulmonay fibrosis. I am now> > experiencing something strange which can't get a satisfactory answer> > for. At rest I suddenly have a spasm of my diaphragm with causes meto> > take a sudden rapid deep breath. I have no control over this and itis> > getting painful. Any ideas of what is happening. Thanks> >

>> >>

[Guest guest]

how much water should we be drinking per day?

why do the lungs need water?

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Shortness of BreathTo: Breathe-Support Date: Friday, March 27, 2009, 1:21 PM

SharonYou're not just right but its even more so than you said. Hydrationissues and dry mouth can be indications of other problems too. Tightnessrather than just shortness of breath can also be an additional issue.This or any disease doesn't allow us to ignore it. We preach here aboutliving life the best you can and I've learned so much about that fromthe board members. But, that doesn't mean live it exactly as you alwayshave. It means in many ways to get smarter. I've exercised more with PFthan I did before. I do watch my hydration as I love water but aroundthe house can just forget to drink it if not careful. We also have torecognize other signs that need attention.Yes, we have to see doctors. Yes, we have to take better care ofourselves. Yes, we have to manage our health best we can. Those thingsare what allow us to say "I'm doing pretty well" when we're walkingaround with a

terminal disease and a total of 15-20 conditions ordiagnoses and having seen 17 diffferent doctors in one year. Because,the reality is I do feel I'm doing well. I look healthy. I can getaround. I can enjoy life. But, that doesn't mean ignore taking care ofmyself and managing my condition.> > > >> > > > Hi,> > > > I'm not certain at all why that happens but what you describehas> > been> > > happening to me since prior to my diagnosis. It's almost like a> small> > > involuntary gasp. Is that what you mean? Unfortunately I can'ttell> > you> > > anything about what it is and why it happens. No one has ever been> > able> > > to tell me.> > > > But you're not alone. Maybe someone else will know. Bruce???> > > >> >

> > Beth> > > > Moderator> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > >> > > >> > > >> > > >> > > > ____________ _________ _________ __> > > > From: vella_vesture bpello@> > > > To: Breathe-Support@ yahoogroups. com> > > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > > Subject: Shortness of Breath> > > >> > > >> > > > I was diagnosed with polymyalgia rheumatica in 1997. At theonset> I> > > noticed I had shortness of breath upon lifting heavy objects and> > > sweeping floor. It comes and goes and I even have good times whenI> > can> > > walk a tred mill. I have not tested positive for RA but did have> lung> > >

studies and have been diagnosed with pulmonay fibrosis. I am now> > > experiencing something strange which can't get a satisfactoryanswer> > > for. At rest I suddenly have a spasm of my diaphragm with causesme> to> > > take a sudden rapid deep breath. I have no control over this andit> is> > > getting painful. Any ideas of what is happening. Thanks> > > >> > >> >>

[Guest guest]

thanks bruce

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Shortness of BreathTo: Breathe-Support Date: Friday, March 27, 2009, 6:43 PM

in a word........ ......... .hydration, hydration, hydration... ....hey, that's only one word. jim

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Friday, March 27, 2009, 2:39 PM

PinkAmong the many many things water does it helps transport oxygen.As to how much we need to drink, there is much discussion of that now.Traditionally we were told things like 8 glasses a day. Then I read asite that says one ounce for each two pounds of body weight. The realityis it probably varies by individual and how our bodies process it.Doctors are now saying its not necessarily the same for everyone.However, I think most of us find hydration pretty important. It helpswith many things, even sinuses.Now, if you're feeling an exceptional thirst and need for more, that'ssomething to discuss with your doctor as it can be a sign of otherproblems.> > > > >> > > > > Hi,> > > > > I'm not certain at all why that happens but what you describe> has> > > been> > > > happening to me since prior to my

diagnosis. It's almost like a> > small> > > > involuntary gasp. Is that what you mean? Unfortunately I can't> tell> > > you> > > > anything about what it is and why it happens. No one has everbeen> > > able> > > > to tell me.> > > > > But you're not alone. Maybe someone else will know. Bruce???> > > > >> > > > > Beth> > > > > Moderator> > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > >> > > > >> > > > >> > > > >> > > > > ____________ _________ _________ __> > > > > From: vella_vesture bpello@> > > > > To: Breathe-Support@ yahoogroups. com> > > > > Sent: Thursday, March 26, 2009 6:07:01 PM> >

> > > Subject: Shortness of Breath> > > > >> > > > >> > > > > I was diagnosed with polymyalgia rheumatica in 1997. At the> onset> > I> > > > noticed I had shortness of breath upon lifting heavy objects and> > > > sweeping floor. It comes and goes and I even have good timeswhen> I> > > can> > > > walk a tred mill. I have not tested positive for RA but did have> > lung> > > > studies and have been diagnosed with pulmonay fibrosis. I am now> > > > experiencing something strange which can't get a satisfactory> answer> > > > for. At rest I suddenly have a spasm of my diaphragm with causes> me> > to> > > > take a sudden rapid deep breath. I have no control over this and> it> >

is> > > > getting painful. Any ideas of what is happening. Thanks> > > > >> > > >> > >> >>

[Guest guest]

Hi all,

Yep, me too..Kinda reminds me of that cleansing breath after a good cry!

Roxanne, 58, South Carolina

2006 Asthma/ PF

2008 IPF/ Sarcoidosis/Gerd

Lady Slipper Orchid

>

> Subject: Re: Shortness of Breath

> To: Breathe-Support

> Date: Thursday, March 26, 2009, 6:23 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Hi,

> I'm not certain at all why that happens but

> what you describe has been happening to me since prior to my

> diagnosis. It's almost like a small involuntary gasp. Is

> that what you mean? Unfortunately I can't tell you

> anything about what it is and why it happens. No one has

> ever been able to tell me.

> But you're not alone. Maybe someone else

> will know. Bruce???

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06

> Dermatomyositis 11/08

>

>

>

>

>

>

> From:

> vella_vesture

> To:

> Breathe-Support@ yahoogroups. com

> Sent:

> Thursday, March 26, 2009 6:07:01 PM

> Subject:

> Shortness of Breath

>

>

>

> I was diagnosed with polymyalgia rheumatica in 1997. At

> the onset I noticed I had shortness of breath upon lifting

> heavy objects and sweeping floor. It comes and goes and I

> even have good times when I can walk a tred mill. I have not

> tested positive for RA but did have lung studies and have

> been diagnosed with pulmonay fibrosis. I am now experiencing

> something strange which can't get a satisfactory answer

> for. At rest I suddenly have a spasm of my diaphragm with

> causes me to take a sudden rapid deep breath. I have no

> control over this and it is getting painful. Any ideas of

> what is happening. Thanks

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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[Guest guest]

Bruce , thanks for your info. oh yeah by the way guys, forget about that can't live you and can't kill you thing I was just thinking out loud Happy Friday

sharon p ph asthma 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Friday, March 27, 2009, 2:39 PM

PinkAmong the many many things water does it helps transport oxygen.As to how much we need to drink, there is much discussion of that now.Traditionally we were told things like 8 glasses a day. Then I read asite that says one ounce for each two pounds of body weight. The realityis it probably varies by individual and how our bodies process it.Doctors are now saying its not necessarily the same for everyone.However, I think most of us find hydration pretty important. It helpswith many things, even sinuses.Now, if you're feeling an exceptional thirst and need for more, that'ssomething to discuss with your doctor as it can be a sign of otherproblems.> > > > >> > >

> > Hi,> > > > > I'm not certain at all why that happens but what you describe> has> > > been> > > > happening to me since prior to my diagnosis. It's almost like a> > small> > > > involuntary gasp. Is that what you mean? Unfortunately I can't> tell> > > you> > > > anything about what it is and why it happens. No one has everbeen> > > able> > > > to tell me.> > > > > But you're not alone. Maybe someone else will know. Bruce???> > > > >> > > > > Beth> > > > > Moderator> > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > >> > > > >> > > > >> > > > >> > > > > ____________ _________ _________ __>

> > > > From: vella_vesture bpello@> > > > > To: Breathe-Support@ yahoogroups. com> > > > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > > > Subject: Shortness of Breath> > > > >> > > > >> > > > > I was diagnosed with polymyalgia rheumatica in 1997. At the> onset> > I> > > > noticed I had shortness of breath upon lifting heavy objects and> > > > sweeping floor. It comes and goes and I even have good timeswhen> I> > > can> > > > walk a tred mill. I have not tested positive for RA but did have> > lung> > > > studies and have been diagnosed with pulmonay fibrosis. I am now> > > > experiencing something strange which can't get a satisfactory> answer> > > > for.

At rest I suddenly have a spasm of my diaphragm with causes> me> > to> > > > take a sudden rapid deep breath. I have no control over this and> it> > is> > > > getting painful. Any ideas of what is happening. Thanks> > > > >> > > >> > >> >>

[Guest guest]

Bruce , thanks for your info. oh yeah by the way guys, forget about that can't live you and can't kill you thing I was just thinking out loud Happy Friday

sharon p ph asthma 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Friday, March 27, 2009, 2:39 PM

PinkAmong the many many things water does it helps transport oxygen.As to how much we need to drink, there is much discussion of that now.Traditionally we were told things like 8 glasses a day. Then I read asite that says one ounce for each two pounds of body weight. The realityis it probably varies by individual and how our bodies process it.Doctors are now saying its not necessarily the same for everyone.However, I think most of us find hydration pretty important. It helpswith many things, even sinuses.Now, if you're feeling an exceptional thirst and need for more, that'ssomething to discuss with your doctor as it can be a sign of otherproblems.> > > > >> > >

> > Hi,> > > > > I'm not certain at all why that happens but what you describe> has> > > been> > > > happening to me since prior to my diagnosis. It's almost like a> > small> > > > involuntary gasp. Is that what you mean? Unfortunately I can't> tell> > > you> > > > anything about what it is and why it happens. No one has everbeen> > > able> > > > to tell me.> > > > > But you're not alone. Maybe someone else will know. Bruce???> > > > >> > > > > Beth> > > > > Moderator> > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > >> > > > >> > > > >> > > > >> > > > > ____________ _________ _________ __>

> > > > From: vella_vesture bpello@> > > > > To: Breathe-Support@ yahoogroups. com> > > > > Sent: Thursday, March 26, 2009 6:07:01 PM> > > > > Subject: Shortness of Breath> > > > >> > > > >> > > > > I was diagnosed with polymyalgia rheumatica in 1997. At the> onset> > I> > > > noticed I had shortness of breath upon lifting heavy objects and> > > > sweeping floor. It comes and goes and I even have good timeswhen> I> > > can> > > > walk a tred mill. I have not tested positive for RA but did have> > lung> > > > studies and have been diagnosed with pulmonay fibrosis. I am now> > > > experiencing something strange which can't get a satisfactory> answer> > > > for.

At rest I suddenly have a spasm of my diaphragm with causes> me> > to> > > > take a sudden rapid deep breath. I have no control over this and> it> > is> > > > getting painful. Any ideas of what is happening. Thanks> > > > >> > > >> > >> >>