(no subject)

[Guest guest]

Judee,

This is a great one, going to print this one up. Thanks...

Sandy

>

> >

> > >

> > > Dr. Seuss in the GOLDEN YEARS

> > > >

> > > > I cannot see

> > > > I cannot pee

> > > > I cannot chew

> > > > I cannot screw

> > > > My memory shrinks

> > > > My hearing stinks

> > > > No sense of smell

> > > > I look like hell

> > > > My body's drooping

> > > > Have trouble pooping

> > > > The Golden Years have come at last

> > > > The Golden Years can kiss my ass

> > >

> >

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Judee,

This is a great one, going to print this one up. Thanks...

Sandy

>

> >

> > >

> > > Dr. Seuss in the GOLDEN YEARS

> > > >

> > > > I cannot see

> > > > I cannot pee

> > > > I cannot chew

> > > > I cannot screw

> > > > My memory shrinks

> > > > My hearing stinks

> > > > No sense of smell

> > > > I look like hell

> > > > My body's drooping

> > > > Have trouble pooping

> > > > The Golden Years have come at last

> > > > The Golden Years can kiss my ass

> > >

> >

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Pam/Ellen--not sure what i missed--why would we send our rx for adeks

to cystic fibrosis? just wondering... i had my pharmacy order the

adeks for me & they came in the next day, but from what i see posted

here, we can get a perscription for them & then they would probably

only cost the amount of our co-pay..is this correct?

ogretta

pre-op & ready

may 11, 2001

dr inabnet

> Hi everyone. A question about Adeks. I got my presription and need

the phone

> # or address to send it in the Cystic Fibrosis. I would appreciate

anyones

> help. I don't have a fax so I will probably have to mail it.

Thanks

> Ellen(Pam)

[Guest guest]

Pam/Ellen--not sure what i missed--why would we send our rx for adeks

to cystic fibrosis? just wondering... i had my pharmacy order the

adeks for me & they came in the next day, but from what i see posted

here, we can get a perscription for them & then they would probably

only cost the amount of our co-pay..is this correct?

ogretta

pre-op & ready

may 11, 2001

dr inabnet

> Hi everyone. A question about Adeks. I got my presription and need

the phone

> # or address to send it in the Cystic Fibrosis. I would appreciate

anyones

> help. I don't have a fax so I will probably have to mail it.

Thanks

> Ellen(Pam)

[Guest guest]

Pam/Ellen--not sure what i missed--why would we send our rx for adeks

to cystic fibrosis? just wondering... i had my pharmacy order the

adeks for me & they came in the next day, but from what i see posted

here, we can get a perscription for them & then they would probably

only cost the amount of our co-pay..is this correct?

ogretta

pre-op & ready

may 11, 2001

dr inabnet

> Hi everyone. A question about Adeks. I got my presription and need

the phone

> # or address to send it in the Cystic Fibrosis. I would appreciate

anyones

> help. I don't have a fax so I will probably have to mail it.

Thanks

> Ellen(Pam)

[Guest guest]

Judy, so sorry to hear about your flare. I think we have all been there and

understand the frustration and depression that comes with the flare. Just

when we think things are going along fine. BAM!!! it hits us!

I always got frustrated when I had to up my meds, still do. What you are

feeling is normal. But.... It will get better. Honest. Maybe you just need

to try a different med. How long have you been on metho?

I upped my dose of Imuran today and it is making me sick too. Hope it only

lasts a couple of days like the last time.

Please know that you are in my thoughts, We will get through this. Come on

Judy, we were going to be the next to reach remission, remember.??? Let's

make it there together.

Know you are in my prayers

[Guest guest]

Judy,

So sorry to hear you are flaring and you have to go back up

on the meds. Praying it will be short lived and you'll be feeling better

real soon.

Love Ya,

Sandy

> Hey, guys, I am so bummed, and you are the only ones who will understand.

I'm

> flaring. Ears were red and tender last nite, got up this morning in

agony, I

> was praying for a double ear infection. Went to my rheumy this morning

(on

> an emergency basis), he checked it out and said I'm flaring. Now the

metho

> goes back up to 15 mg plus 20 mg of pred. I''ve also been having really

> nasty problems with my knees, I asked if they needed to be scoped again,

but

> he said you can't do anything during a flare. I was truly planning on a

> nice, long remission, and here I am back at square one. My family is all

> being very suppportive, but the just don't understand! Hell, I don't

> understand. Why oh why can't they find out what causes this stupid

disease,

> and cure it?

>

> It's pretty easy to imagine that none of the bad stuff will happen to me

when

> I'm feeling fine, then a sneaky little flare hits me right in the ears!!

>

> Thanks for listening, It will be better Wednesday! Love, Judy

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

An updated Cat in the Hat! Too many of these are true! Pits! Love, Judy

[Guest guest]

Thanks, Sandy, It'll get better!. Love, Judy

[Guest guest]

Thanks, Sandy, It'll get better!. Love, Judy

[Guest guest]

Thanks, Sandy, It'll get better!. Love, Judy

[Guest guest]

, thanks so much! I know I'll get thru this! This group is such a

big part of getting thru it. I think the doc is hesitaant to stop the Metho

because it works. Taking half in the morning and half at night helps too. I

actually think the Pred (as much as I HATE it) helped too! So much for one

flare and a permanent remission! OK, now I'll only have two flares and a

permanant remission! I guess we just keep on keeping on.

How's your nose and the rest of your body feeling. Couldn't you try some

nice exercize in a pool? That's supposed to be so much easier on the joints

(well, it won't help your nose, will it?. Thanks for caring and you don't

have to worry about me, they'll take me out of here kicking, screaming, and

hanging on by my toenails!!!! Love,Judy

[Guest guest]

, missed something, I think I've been on the Methotrexate for about 8

months. Judy

[Guest guest]

In a message dated 4/12/01 2:28:27 PM Pacific Daylight Time, JOstry93@...

writes:

<< . I think the doc is hesitaant to stop the Metho

because it works. Taking half in the morning and half at night helps too.

I

actually think the Pred (as much as I HATE it) helped too! >>

Judy, I'm so glad that the meds are working for you. This is our goal, to

find the right ones that will work for us. I think the Imuran is going to

work for me. I have been able to decrease my pred down to 18mg and haven't

had a flare yet. (Knock on wood) LOL I did increase the Imuran to 100mg a

day. Was pretty sick for a few days but seem to be fine now except for the

fatigue.

I've recovered from the fall. LOL I'm the worlds biggest clutz.!! And no, I

don't think you have me beat there. LOL We can compare bruises in Sept.LOL

The Tai chi is a very slow and easy exercise. I is mostly deep breathing and

relaxation. I just have to take it slow. I think it will be one exercise

that I can actually do. In the summer I do water exercise. Just tooo cold

now. LOL Would never know by looking at me that I even exercise. LOL

Keep up the good work on the meds. I'm glad that splitting the dose is

helping. Makes for a little better Tuesday huh?

Know you are in my thoughts and prayers.

hugs

C

[Guest guest]

In a message dated 4/12/01 2:28:27 PM Pacific Daylight Time, JOstry93@...

writes:

<< . I think the doc is hesitaant to stop the Metho

because it works. Taking half in the morning and half at night helps too.

I

actually think the Pred (as much as I HATE it) helped too! >>

Judy, I'm so glad that the meds are working for you. This is our goal, to

find the right ones that will work for us. I think the Imuran is going to

work for me. I have been able to decrease my pred down to 18mg and haven't

had a flare yet. (Knock on wood) LOL I did increase the Imuran to 100mg a

day. Was pretty sick for a few days but seem to be fine now except for the

fatigue.

I've recovered from the fall. LOL I'm the worlds biggest clutz.!! And no, I

don't think you have me beat there. LOL We can compare bruises in Sept.LOL

The Tai chi is a very slow and easy exercise. I is mostly deep breathing and

relaxation. I just have to take it slow. I think it will be one exercise

that I can actually do. In the summer I do water exercise. Just tooo cold

now. LOL Would never know by looking at me that I even exercise. LOL

Keep up the good work on the meds. I'm glad that splitting the dose is

helping. Makes for a little better Tuesday huh?

Know you are in my thoughts and prayers.

hugs

C

[Guest guest]

In a message dated 4/12/01 2:28:27 PM Pacific Daylight Time, JOstry93@...

writes:

<< . I think the doc is hesitaant to stop the Metho

because it works. Taking half in the morning and half at night helps too.

I

actually think the Pred (as much as I HATE it) helped too! >>

Judy, I'm so glad that the meds are working for you. This is our goal, to

find the right ones that will work for us. I think the Imuran is going to

work for me. I have been able to decrease my pred down to 18mg and haven't

had a flare yet. (Knock on wood) LOL I did increase the Imuran to 100mg a

day. Was pretty sick for a few days but seem to be fine now except for the

fatigue.

I've recovered from the fall. LOL I'm the worlds biggest clutz.!! And no, I

don't think you have me beat there. LOL We can compare bruises in Sept.LOL

The Tai chi is a very slow and easy exercise. I is mostly deep breathing and

relaxation. I just have to take it slow. I think it will be one exercise

that I can actually do. In the summer I do water exercise. Just tooo cold

now. LOL Would never know by looking at me that I even exercise. LOL

Keep up the good work on the meds. I'm glad that splitting the dose is

helping. Makes for a little better Tuesday huh?

Know you are in my thoughts and prayers.

hugs

C

[Guest guest]

, thanks for your good thoughts and prayers. I'm not so sure if it

the Pred that's making it more tolerable, but something is! The only trouble

with that is that I do NOT want to stay on Pred if I do not HAVE to, do you

understand? I've been on it so many tilmes in my life, prior to RP and I

hate the side effects! Oh well, I see the Rheumy on Thursday, and I think I

see the ENT on Wednesday, so maybe he can do his thing with the scope down my

throat and give the Rheumy and me some answers. It's scary 'cause things I

never thought about are jumping up like red flags to make me wonder just how

long I've had this? I guess I'll find out soon enough! Why is your balance

so bad? I know mine has multiple reasons, I'm deaf in one ear and I've had

multiple strokes, so I can walk down a wide halway and eventually bounce of

both walls! Also my bruising is also caused by the Plavix which leaves me

incredibly susceptible to bruising! I durrently have a lovely set on the

inside of my right leg that looks like fingerprints! I asked Jim if he hit

me, he said if he had, it wouldn't have been there! He'd rather smack my

butt! So who knows! Maybe, just maybe, we won't have any bruises when we go

to OK. - granted the chances are slim (and none), but you never know! Love,

Judy

[Guest guest]

In a message dated 4/16/01 10:33:19 AM Pacific Daylight Time,

JOstry93@... writes:

<< The only trouble

with that is that I do NOT want to stay on Pred if I do not HAVE to, do you

understand? I' >>

Oh Judy, I understand perfectly. I want OFF the darn stuff too. It is my

main goal. Hey. I lowered it to 17mg today. Keep your fingers crossed.

LOL I know we can make it through this... We WILL !! Good luck with your

scope, I will keep you in my prayers.

Hugs

PS Good job on the chips!!! LOL

[Guest guest]

Hi , did you try taking the Zantac 1/2 hour before the Pred. For some reason it seemed to help me tolerate it better. Sue

[Guest guest]

Hi , did you try taking the Zantac 1/2 hour before the Pred. For some reason it seemed to help me tolerate it better. Sue

[Guest guest]

Note: forwarded message attached.

Boy can I relate to this disorder! Enjoy, Sharon

=====

http://www.iwin.com/register.asp?sisterslk (AT) yahoo (DOT) com

__________________________________________________

[Guest guest]

Note: forwarded message attached.

Boy can I relate to this disorder! Enjoy, Sharon

=====

http://www.iwin.com/register.asp?sisterslk (AT) yahoo (DOT) com

__________________________________________________

[Guest guest]

Note: forwarded message attached.

Boy can I relate to this disorder! Enjoy, Sharon

=====

http://www.iwin.com/register.asp?sisterslk (AT) yahoo (DOT) com

__________________________________________________

[Guest guest]

Hi Cali~ Yes . I used Proactive for about 5 years...back when my cea was

very minor and just

starting. It helped with breakouts pretty well, but the cleanser contains little

granules...not sharp, but

nonetheless I started to think that maybe it was aggravating the condition. The

cleanser was one of few I

was able to tolerate with sensitive skin and the toner is nice and the cream is

a Benzoil Peroxide solution

that you can get in Neutrogena for a lot less money. If your problem is just

acne I'd say give it a whirl but

for cea...I dunno. I am on the search for a more natural, gentle

cleanser...I'm going to try Zia Natural

Skincare products....I will post at the board with my findings regarding it.

Good luck~ Diane

> Helloeveryone! I am a new member to this rosacea group - I can't express how

> happy I am that this group exists. I have been reading most of the past

> e-mails -- members sharing their stories, experiences, regimens, theories. I

> had heard about the existence of the group from my dermatologist.

>

> I was diagnosed with rosacea when I was 18 ( I am 23 now ); that kinda

> dispells one of the theories that rosacea occurs in 30-somethings and above.

> It was horrible to be a teenager with a red face. People thought it was cute

> at first - " oh, you have naturally rosy cheeks! " Right!!! When the

> dermatologist told me it was a skin condition, I felt a little weird - like

> it's a disease or something. But as I grew older, it did comfort me to think

> that this condition, without a cure as of yet, is treatable and gathering

> from others' stories, it can be put under control.

>

> I am indeed a flusher - and I have papules and pustules. I tend to get more

> of the redness and bumps on my left side (as some have commneted in past

> messages). I had been on antibiotics (Tetracycline for 3 months, but I

> stopped. I hate the idea of taking those pills twice each day. And to think

> what it does to my body!). I was using Metrocreme, but my new derma switched

> me to Noritate. That I apply twice a day - morning and evening. I think it's

> pretty effective for the redness, but not so much for the papules/pustules.

> For some reason, I broke out with major pimples, most especially on my

> forehead. I have been using it for three weeks, and do not know if it is a

> normal reaction. Is it? Or, I do have another theory with it being connected

> to a woman's monthly cycle.

>

> Also, I would like to throw this out to the group: Has anyone heard about

> Proactiv? Any good news with the product? I saw an infomercial for it, and it

> claims to vanish acne. Given, it is a product designed for acne, but why

> can't it be used for my p&p? Anything anyone know out there to make p&p's

> calmer?

>

> Thanks for listening to me, and I hope to hear from you guys soon.

>

> Cali

>

>

>

>

[Guest guest]

Hello. I have a couple of comments (for whatever they're worth).

First: Don't be afraid of using long term antibiotics, particlarly

bacteriostatic broad spectrum antibiotics like the tetracyclines. The

effects on your body are minimal and, anyway, getting pustules over

and over in the same place isn't exactly healthy either.

Second: I have similar rosacea to yours, except my flushing is

minimal (so far....fingers crossed). You will find that most of the

products that improve your acne component (ie: the pustules) will

make the rosacea component (ie: the inflammation and redness) worse.

You might try a small sample of Redness and Blemish Cream from

www.purpleemu.com. It's a bit price, but it's worked wonders for many

members of the group, including me. Don't use the sample of emu oil

that comes with it, and expect things to get worse before they get

better.

Good luck.

-- In rosacea-support@y..., flipmim@a... wrote:

> Helloeveryone! I am a new member to this rosacea group - I can't

express how

> happy I am that this group exists. I have been reading most of the

past

> e-mails -- members sharing their stories, experiences, regimens,

theories. I

> had heard about the existence of the group from my dermatologist.

>

> I was diagnosed with rosacea when I was 18 ( I am 23 now ); that

kinda

> dispells one of the theories that rosacea occurs in 30-somethings

and above.

> It was horrible to be a teenager with a red face. People thought it

was cute

> at first - " oh, you have naturally rosy cheeks! " Right!!!

When the

> dermatologist told me it was a skin condition, I felt a little

weird - like

> it's a disease or something. But as I grew older, it did comfort me

to think

> that this condition, without a cure as of yet, is treatable and

gathering

> from others' stories, it can be put under control.

>

> I am indeed a flusher - and I have papules and pustules. I tend to

get more

> of the redness and bumps on my left side (as some have commneted in

past

> messages). I had been on antibiotics (Tetracycline for 3 months,

but I

> stopped. I hate the idea of taking those pills twice each day. And

to think

> what it does to my body!). I was using Metrocreme, but my new derma

switched

> me to Noritate. That I apply twice a day - morning and evening. I

think it's

> pretty effective for the redness, but not so much for the

papules/pustules.

> For some reason, I broke out with major pimples, most especially on

my

> forehead. I have been using it for three weeks, and do not know

if it is a

> normal reaction. Is it? Or, I do have another theory with it being

connected

> to a woman's monthly cycle.

>

> Also, I would like to throw this out to the group: Has anyone heard

about

> Proactiv? Any good news with the product? I saw an infomercial for

it, and it

> claims to vanish acne. Given, it is a product designed for acne,

but why

> can't it be used for my p&p? Anything anyone know out there to make

p&p's

> calmer?

>

> Thanks for listening to me, and I hope to hear from you guys soon.

>

> Cali

>

>

>

>