(no subject)

[Guest guest]

HOLY TOLEDO Diane, Fissures in the tongue!!!!!!!!!!!! I was BORN with a

tongue like that, same as my Grandma Robbins. Once when I asked her about

it she replied, straight-faced, that it is a sign of royalty!!! Now you

tell me it's iron deficiency!!!!!! I'm absolutely

devastated..............and will ask to have my ferritin levels checked on

my next VA visit.

My granddaughter too has the same kind of a tongue and we both derive

sadistic pleasure by displaying our tongues whenever the subject comes up.

:-))) Oh my!!!

Cheers!!

Jeanne and Mr. Biggles in a blizzard white-out in Poultney, VT

[Guest guest]

HOLY TOLEDO Diane, Fissures in the tongue!!!!!!!!!!!! I was BORN with a

tongue like that, same as my Grandma Robbins. Once when I asked her about

it she replied, straight-faced, that it is a sign of royalty!!! Now you

tell me it's iron deficiency!!!!!! I'm absolutely

devastated..............and will ask to have my ferritin levels checked on

my next VA visit.

My granddaughter too has the same kind of a tongue and we both derive

sadistic pleasure by displaying our tongues whenever the subject comes up.

:-))) Oh my!!!

Cheers!!

Jeanne and Mr. Biggles in a blizzard white-out in Poultney, VT

[Guest guest]

Group,

I too have those very painful fissures in my tounge at times and my dentsist

told me it was a form of herpiess and gave me an rx for it. Well, I was too

embarassed to have it filled...I can imagine the pharmasist having a chuckle

over how she got a herpies on her tounge so since it happens so seldom I just

live with it. If you find about anything that works please let me know....

Lee http://members.tripod.com/~webtv40/chickendance.gifhttp://members.tripod.com/~webtv40/chickendan...

[Guest guest]

Hi ,

I live in land and have RLS. What is the name of the company and

where is it???

janegf@...

---michael nortrup wrote:

>

>

>

> Fellow sufferers:

>

> Hey! I've won at least one small victory over our Friend. A medical

> company in land is developing specialized monitors that people

wear

> to measure RLS movements. And, they're paying RLS people to wear the

> things around the ankles or chest for a few days. I made 50 bucks

this

> week. In about a month, can make another $150 by wearing the stuff

for a

> week and staying in the sleep lab overnite, wired up like

enstein.

> While this doesn't QUITE pay for 15 years of misery, what the heck,

it's

> something, right?

>

> Hope all of u sleep better tonite than I probably will.

>

> Mike, 54

> York, pa.

>

>

------------------------------------------------------------------------

>

[Guest guest]

Dear :

My doctor has me on the following - and it's been working EXTREMELY WELL:

100 mg Zoloft first thing in morning

.125 g mirapex around 9:00 a.m.

.5 g xanax also around 9:00 a.m.

.125 mirapex at 1:00 p.m.

.5 g xanax at 1:00 p.m.

.125 mirapex at 7:00 p.m.

.5 g xanax around 10:00 p.m. which will allow me to sleep

I suffer from daytime RLS also which is why my dr. has me divide the

medication up during the three times a day. It's been about 3 months now on

this regimine and the RLS is comletely controllable - sometimes I even foget

it's there!

So, for me, right now, the above regimine has been a miracle.....now if I

could only find relief for the fibromyalgia!

Tina in Ohio

[Guest guest]

Hi and All,

I take at least 3 Sinimet (total of 75 mg carbodopa and 300 mg

levodopa) and 3 Mirapex (0.25 mg) in the evening. My neurologist

tried to get me off of Sinemet and onto Mirapex completely. I tried

(it was hell because I had to dose down off of Sinimet and go without

anything for a week and then dose up on Mirapex). I found that for me

Mirapex did not come close to Sinimet in terms of relieving my RLS. I

went back to Sinimet - I was able to slightly decrease my Sinimet

dosage by continuing to use Mirapex with it.

I had gotten up to 4 and sometimes 5 Sinimet at night.

I too have daytime symptoms ... have to leave meetings, etc. I have

to make sure I take Sinimet (don't bother with Mirapex in the daytime)

about an hour before going to a movie or anything like that.

The reason I don't bother with Mirapex in the daytime is because I

don't think it really does very much for me.

Like you, I worry about the medicine losing its effectiveness. I know

there are other medicines so I guess that's what you do then. Also I

understand that with Sinimet if it begins to be ineffective, you can

go onto something else for a while and then go back to Sinimet and it

will work for most people again. I don't know anything much about

other drugs, but generally if you take any drug in significant

amounts regularly, you're going to develop a tolerance for it. One

exception to this is Premarin (estrogen), but then you're a man and

you'll never have to worry about that one.

Jane janegf@...>

---michael nortrup wrote:

>

>

>

>

>

>

> Dear Fellow Sufferers:

> I need a few thoughts on suggested meds. I take 3 .25mg tabs of

mirapex

> about 3 hrs. before bedtime. My docs have always stuck with one med

at a

> time for me but t seems like lot of you use mre than one medicine.

>

> I'M DIRECTING THIS TO THOSE WHO USE MRAPEX IN CMBINATION WITH ANTHER

> MEDICATON. Can you tell me what medicine you use in addition to

mirapex,

> how much you use, and what point in the day you take it? I also

suffer

> from terribe daytime symptoms when I have to sit in afternoon

meetings.

> What do you take for that? I hesitate to use the mirapex in the

daytime,

> too, because using it too much might diminish its effectiveness.

>

> If anybody as any suggestions, I'd love to hear from you.

>

> Thanks

>

> Mike, 54

> York, Pa.

> mikezpen@...

>

>

>

>

------------------------------------------------------------------------

>

[Guest guest]

Just went to my ortho doctor yesterday. He has lots of patients that have

CMT, and I feel his experience is very good. I found out that my

tendon/tendons is gone, the one that helps the ankle keeps the foot from

turning out. They are going to take the good tendons from my toes, cause he

said that those were the ones that I have been using to pick my foot. Those

good tendons from my toes will be used to correct the ankle. I think it is

going to be positioned somewhere near the inside of the foot, across from

the ankle. He mentioned the tibalis, sorry I can't be more specific for

you. I'm also have my high arch corrected. The numbness in my big toe he

feels is caused by my constantly clenching my toes when I walk. He also is

going to straigthen the toes out. So I will be walking flatter on the

ground and the foot drop will be better--perhaps gone? (although he did not

say that). I still wear a brace on the left but that foot has a regular AFO

whereas the right has a hinged brace but it is still not keeping the foot

from turning out. Much to my surprise I thought this was going to be in and

out surgery but found out I will be overnight/perhaps a few nights in the

hospital. Any other questions, don't hesitate to ask.

Re: (no subject)

>

> You did a great job explaining your situation and your situation sounds

just

>

> about like everyone else in this group. Good luck in sdale. The Mayo

> clinic there has a GREAT reputation. I used to live out there.

> a

>

> ------------------------------------------------------------------------

> 1.6 Million Digital Images!

> Download one Today from Corbis.com

> http://click.egroups.com/1/3356/7/_/616793/_/955605097/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Just went to my ortho doctor yesterday. He has lots of patients that have

CMT, and I feel his experience is very good. I found out that my

tendon/tendons is gone, the one that helps the ankle keeps the foot from

turning out. They are going to take the good tendons from my toes, cause he

said that those were the ones that I have been using to pick my foot. Those

good tendons from my toes will be used to correct the ankle. I think it is

going to be positioned somewhere near the inside of the foot, across from

the ankle. He mentioned the tibalis, sorry I can't be more specific for

you. I'm also have my high arch corrected. The numbness in my big toe he

feels is caused by my constantly clenching my toes when I walk. He also is

going to straigthen the toes out. So I will be walking flatter on the

ground and the foot drop will be better--perhaps gone? (although he did not

say that). I still wear a brace on the left but that foot has a regular AFO

whereas the right has a hinged brace but it is still not keeping the foot

from turning out. Much to my surprise I thought this was going to be in and

out surgery but found out I will be overnight/perhaps a few nights in the

hospital. Any other questions, don't hesitate to ask.

Re: (no subject)

>

> You did a great job explaining your situation and your situation sounds

just

>

> about like everyone else in this group. Good luck in sdale. The Mayo

> clinic there has a GREAT reputation. I used to live out there.

> a

>

> ------------------------------------------------------------------------

> 1.6 Million Digital Images!

> Download one Today from Corbis.com

> http://click.egroups.com/1/3356/7/_/616793/_/955605097/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Tresea in Raleigh,

I am in Durham and am scheduled to have the sugery July 20th. If I can get

an earlier date I will take it. Anyway, I would like to call you and talk to

you about your experiences. Is that possible. Or, you can call me at

419-0565.

Congratulations on your weight loss. I can't wait until my turn.

[Guest guest]

Tresea in Raleigh,

I am in Durham and am scheduled to have the sugery July 20th. If I can get

an earlier date I will take it. Anyway, I would like to call you and talk to

you about your experiences. Is that possible. Or, you can call me at

419-0565.

Congratulations on your weight loss. I can't wait until my turn.

[Guest guest]

Tresea in Raleigh,

I am in Durham and am scheduled to have the sugery July 20th. If I can get

an earlier date I will take it. Anyway, I would like to call you and talk to

you about your experiences. Is that possible. Or, you can call me at

419-0565.

Congratulations on your weight loss. I can't wait until my turn.

[Guest guest]

In a message dated 6/28/00 8:26:07 AM Central Daylight Time, rahango@...

writes:

<< Tresea in Raleigh,

I am in Durham and am scheduled to have the sugery July 20th. If I can get

an earlier date I will take it. Anyway, I would like to call you and talk

to

you about your experiences. Is that possible. Or, you can call me at

419-0565.

Congratulations on your weight loss. I can't wait until my turn.

>>

I guess you mean me () My name has been spelled many ways!!, but this

is the correct version!! LOL!!

Please feel free to call me anytime...... I love to talk MGB and

I have been out of the loop the last three weeks due to a computer crash. The

best time to call is mornings before 11 am or after 7:00 pm. Look forward to

talking to you!

from Raleigh

[Guest guest]

In a message dated 6/28/00 8:26:07 AM Central Daylight Time, rahango@...

writes:

<< Tresea in Raleigh,

I am in Durham and am scheduled to have the sugery July 20th. If I can get

an earlier date I will take it. Anyway, I would like to call you and talk

to

you about your experiences. Is that possible. Or, you can call me at

419-0565.

Congratulations on your weight loss. I can't wait until my turn.

>>

I guess you mean me () My name has been spelled many ways!!, but this

is the correct version!! LOL!!

Please feel free to call me anytime...... I love to talk MGB and

I have been out of the loop the last three weeks due to a computer crash. The

best time to call is mornings before 11 am or after 7:00 pm. Look forward to

talking to you!

from Raleigh

[Guest guest]

These are laughable and cute thoughts! for women! by women!: > > > > The hardest years in life are those between ten and seventy. --Helen > > (at 73) > > > > I refuse to think of them as chin hairs. I think of them as stray > eyebrows. > > --Janette Barber > > > > Who ever thought up the word "Mammogram"? Every time I hear it, I think > > -I'm supposed to put my breast in an envelope and send it to > someone. --Jan > > King > > > > A few weeks after my [breast cancer] surgery, I went out to play catch > with > > my golden retriever. When I bent over to pick up the ball, my prosthesis > > fell out. The dog snatched it, and I found myself chasing him down the > > road yelling "Hey, come back here with my breast!" -- Ellerbee > > > > Things are going to get a lot worse before they get worse.--Lily Tomlin > > > > You know the hardest thing about having cerebral palsy and being a woman? > > It's plucking your eyebrows. That's how I originally got pierced ears. > > --Geri Jewell > > > > A male gynecologist is like an auto mechanic who never owned a > car.-- > > Snow > > > > Laugh and the world laughs with you. Cry and you cry with your > girlfriends. > > --Laurie Kuslansky > > > > My second favorite household chore is ironing. My first being hitting my > > head on the top bunk bed until I faint. --Erma Bombeck > > > > Old age ain't no place for sissies. --Bette > > > > A man's got to do what a man's got to do. A woman must do what he can't. > > --Rhonda Hansome > > > > The phrase "working mother" is redundant. --Jane Sellman > > > > Every time I close the door on reality it comes in through the windows. > > -- Unlimited > > > > Whatever women must do they must do twice as well as men to be thought > half > > as good. Luckily, this is not difficult. --Charlotte Whitton > > > > Thirty-five is when you finally get your head together and your body > starts > > falling apart. > > --Caryn Leschen > > > > If you can't be a good example, then you'll just have to serve as a > > horrible warning. > > -- Aird > > When I was young, I was put in a school for retarded kids for two years > > before they realized I actually had a hearing loss...and they called ME > > slow! > > --Kathy Buckley > > > > Behind every successful woman...is a substantial amount of coffee. > > -- Piro > > > > Behind every successful woman ...... is a basket of dirty laundry. --Sally > > Forth > > > > Top Ten Things Only Women Understand > > > > 10. Why it's good to have five pairs of black shoes. > > 9. The difference between cream, ivory, and off-white. > > 8. Crying can be fun. > > 7. FAT CLOTHES. > > 6. A salad, diet drink, and a hot fudge sundae make a balanced lunch. > > 5. Discovering a designer dress on the clearance rack can be considered a > > peak > > life experience. > > 4. The inaccuracy of every bathroom scale ever made. > > 3. A good man might be hard to find, but a good hairdresser is next to > > impossible. > > 2. Why a phone call between two women never lasts under ten minutes. > > AND THE NUMBER ONE THING ONLY WOMEN UNDERSTAND: > > 1. OTHER WOMEN! > > (Send this on to all the women you are grateful to have as friends) > > > > > > > > >

[Guest guest]

These are laughable and cute thoughts! for women! by women!: > > > > The hardest years in life are those between ten and seventy. --Helen > > (at 73) > > > > I refuse to think of them as chin hairs. I think of them as stray > eyebrows. > > --Janette Barber > > > > Who ever thought up the word "Mammogram"? Every time I hear it, I think > > -I'm supposed to put my breast in an envelope and send it to > someone. --Jan > > King > > > > A few weeks after my [breast cancer] surgery, I went out to play catch > with > > my golden retriever. When I bent over to pick up the ball, my prosthesis > > fell out. The dog snatched it, and I found myself chasing him down the > > road yelling "Hey, come back here with my breast!" -- Ellerbee > > > > Things are going to get a lot worse before they get worse.--Lily Tomlin > > > > You know the hardest thing about having cerebral palsy and being a woman? > > It's plucking your eyebrows. That's how I originally got pierced ears. > > --Geri Jewell > > > > A male gynecologist is like an auto mechanic who never owned a > car.-- > > Snow > > > > Laugh and the world laughs with you. Cry and you cry with your > girlfriends. > > --Laurie Kuslansky > > > > My second favorite household chore is ironing. My first being hitting my > > head on the top bunk bed until I faint. --Erma Bombeck > > > > Old age ain't no place for sissies. --Bette > > > > A man's got to do what a man's got to do. A woman must do what he can't. > > --Rhonda Hansome > > > > The phrase "working mother" is redundant. --Jane Sellman > > > > Every time I close the door on reality it comes in through the windows. > > -- Unlimited > > > > Whatever women must do they must do twice as well as men to be thought > half > > as good. Luckily, this is not difficult. --Charlotte Whitton > > > > Thirty-five is when you finally get your head together and your body > starts > > falling apart. > > --Caryn Leschen > > > > If you can't be a good example, then you'll just have to serve as a > > horrible warning. > > -- Aird > > When I was young, I was put in a school for retarded kids for two years > > before they realized I actually had a hearing loss...and they called ME > > slow! > > --Kathy Buckley > > > > Behind every successful woman...is a substantial amount of coffee. > > -- Piro > > > > Behind every successful woman ...... is a basket of dirty laundry. --Sally > > Forth > > > > Top Ten Things Only Women Understand > > > > 10. Why it's good to have five pairs of black shoes. > > 9. The difference between cream, ivory, and off-white. > > 8. Crying can be fun. > > 7. FAT CLOTHES. > > 6. A salad, diet drink, and a hot fudge sundae make a balanced lunch. > > 5. Discovering a designer dress on the clearance rack can be considered a > > peak > > life experience. > > 4. The inaccuracy of every bathroom scale ever made. > > 3. A good man might be hard to find, but a good hairdresser is next to > > impossible. > > 2. Why a phone call between two women never lasts under ten minutes. > > AND THE NUMBER ONE THING ONLY WOMEN UNDERSTAND: > > 1. OTHER WOMEN! > > (Send this on to all the women you are grateful to have as friends) > > > > > > > > >

[Guest guest]

These are laughable and cute thoughts! for women! by women!: > > > > The hardest years in life are those between ten and seventy. --Helen > > (at 73) > > > > I refuse to think of them as chin hairs. I think of them as stray > eyebrows. > > --Janette Barber > > > > Who ever thought up the word "Mammogram"? Every time I hear it, I think > > -I'm supposed to put my breast in an envelope and send it to > someone. --Jan > > King > > > > A few weeks after my [breast cancer] surgery, I went out to play catch > with > > my golden retriever. When I bent over to pick up the ball, my prosthesis > > fell out. The dog snatched it, and I found myself chasing him down the > > road yelling "Hey, come back here with my breast!" -- Ellerbee > > > > Things are going to get a lot worse before they get worse.--Lily Tomlin > > > > You know the hardest thing about having cerebral palsy and being a woman? > > It's plucking your eyebrows. That's how I originally got pierced ears. > > --Geri Jewell > > > > A male gynecologist is like an auto mechanic who never owned a > car.-- > > Snow > > > > Laugh and the world laughs with you. Cry and you cry with your > girlfriends. > > --Laurie Kuslansky > > > > My second favorite household chore is ironing. My first being hitting my > > head on the top bunk bed until I faint. --Erma Bombeck > > > > Old age ain't no place for sissies. --Bette > > > > A man's got to do what a man's got to do. A woman must do what he can't. > > --Rhonda Hansome > > > > The phrase "working mother" is redundant. --Jane Sellman > > > > Every time I close the door on reality it comes in through the windows. > > -- Unlimited > > > > Whatever women must do they must do twice as well as men to be thought > half > > as good. Luckily, this is not difficult. --Charlotte Whitton > > > > Thirty-five is when you finally get your head together and your body > starts > > falling apart. > > --Caryn Leschen > > > > If you can't be a good example, then you'll just have to serve as a > > horrible warning. > > -- Aird > > When I was young, I was put in a school for retarded kids for two years > > before they realized I actually had a hearing loss...and they called ME > > slow! > > --Kathy Buckley > > > > Behind every successful woman...is a substantial amount of coffee. > > -- Piro > > > > Behind every successful woman ...... is a basket of dirty laundry. --Sally > > Forth > > > > Top Ten Things Only Women Understand > > > > 10. Why it's good to have five pairs of black shoes. > > 9. The difference between cream, ivory, and off-white. > > 8. Crying can be fun. > > 7. FAT CLOTHES. > > 6. A salad, diet drink, and a hot fudge sundae make a balanced lunch. > > 5. Discovering a designer dress on the clearance rack can be considered a > > peak > > life experience. > > 4. The inaccuracy of every bathroom scale ever made. > > 3. A good man might be hard to find, but a good hairdresser is next to > > impossible. > > 2. Why a phone call between two women never lasts under ten minutes. > > AND THE NUMBER ONE THING ONLY WOMEN UNDERSTAND: > > 1. OTHER WOMEN! > > (Send this on to all the women you are grateful to have as friends) > > > > > > > > >

[Guest guest]

Judee, thanks, I loved this!!!

hugs

[Guest guest]

Judee, I don't know where you get the, but keep 'em coming! Thanks! LOL,

Judy O

[Guest guest]

On Tue, 6 Mar 2001 10:29:30 EST boogiebarbeque@... writes:

> I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> Just having a bad day!!!

>

> thanks for the vent.....

> Ann in Memphis

>

*

I agree and now you made me cry! Here's a hug [[[[[[[ANN]]]]]]]]]]]

on Long Island New York

________________________________________________________________

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[Guest guest]

Yikes, you're having a bad day already........ I hope it passes quickly.

Take care of yourself and a few deep breathes now and then. Much lve,

(no subject)

> I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> Just having a bad day!!!

>

> thanks for the vent.....

> Ann in Memphis

>

>

>

[Guest guest]

I am part American Indian (swear!), instead of a rain dance, I will start

working on a Autism go away dance.

Hugs

A Jeffs mom

Re: (no subject)

Yikes, you're having a bad day already........ I hope it

passes quickly.

Take care of yourself and a few deep breathes now and then.

Much lve,

(no subject)

> I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> Just having a bad day!!!

>

> thanks for the vent.....

> Ann in Memphis

>

>

>

[Guest guest]

I'll dance with you!!!!!!!!! I'm german and swedish tho...ain't got too much

rythum. :~)

P.S. - , she's napping!!!!!!!!!!!

Re: (no subject)

>

> Yikes, you're having a bad day already........ I hope it

>passes quickly.

> Take care of yourself and a few deep breathes now and then.

>Much lve,

>

> (no subject)

>

>

> > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!!

> >

> > Just having a bad day!!!

> >

> > thanks for the vent.....

> > Ann in Memphis

> >

> >

> >

[Guest guest]

I'll dance with you!!!!!!!!! I'm german and swedish tho...ain't got too much

rythum. :~)

P.S. - , she's napping!!!!!!!!!!!

Re: (no subject)

>

> Yikes, you're having a bad day already........ I hope it

>passes quickly.

> Take care of yourself and a few deep breathes now and then.

>Much lve,

>

> (no subject)

>

>

> > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!!

> >

> > Just having a bad day!!!

> >

> > thanks for the vent.....

> > Ann in Memphis

> >

> >

> >

[Guest guest]

, that was great! I think I'll pass this one on! LOL, Judy O

[Guest guest]

, that was great! I think I'll pass this one on! LOL, Judy O