(unknown)

May 10, 2003

In a message dated 5/10/03 10:19:42 PM Eastern Daylight Time,

tamara_b73@... writes:

> HAPPY MOTHER'S DAY!!!!!!!!!!!!!!!!!!

>

> I hope everyone has a very relaxing, peaceful mother's day. We all deserve

> it.....even if we don't get it. lol

>

Thanks and the same to you and all the wonderful moms here.

The Grammas & Keion

May 11, 2003

>

> HAPPY MOTHER'S DAY!!!!!!!!!!!!!!!!!!

>

> I hope everyone has a very relaxing, peaceful mother's day.

Yeah, right, we live on the wrong planet, Tamara!

But you knew that and thanks anyway!

Salli

May 11, 2003

>

> HAPPY MOTHER'S DAY!!!!!!!!!!!!!!!!!!

>

> I hope everyone has a very relaxing, peaceful mother's day. We all

deserve

> it.....even if we don't get it. lol

Yep, was up and raring to go at 7 this morning! Oh well, it's still

better than the 5:30 that I usually get up at.

Happy Mother's Day to all the mommy's!

Sue

June 23, 2003

Trish & hubby!

Thank you so much for the recipes. I do have the Ener G Egg replacer already and you're right...the box recipe produces nasty little rubber disks!

I will give both recipes a shot!

Missy

June 25, 2003

Cool! Thanks for sending this one in too!!!

Alyssa

(unknown)

These are M,E,S, freePizza crust (dh worked in a pizza shop- so it is yummy)Hello this is dh.I don't know how accurate this recipe is - I just add ingredients until it's the right consistency. This recipe will make 2 thin 14" pizzas.1½ cups of warm water.2 Tablespoons honey (or other sweetner)2-4 Tablespoons olive oil (I like it with 4)1 teaspoon salt1 teaspoon active dry yeast-Mix together and let sit until the yeast is nice and foamy.3 cups flour (or thereabouts). Try using wheat for one of the cups sometime for a nice, flavorful change. I add 2 cups immediately and start mixing, adding the third as I go. If you over-flour and it needs more water, add it sooner rather than later - once the gluten begins to develop it's really hard to add water. Mix with dough hook in a Kitchen Aid, or fold and knead like crazy. It should be rubbery. Form into a dough ball and let stand for 10 or so minutes; until it's a bit larger than normal size - keep from drying out by spraying with olive oil or Pam. Get your nearest pizza chef to stretch and toss the dough!No Egg or Milk Pancakes:This recipe uses "Ener-G Egg Replacer - A culinary egg substitute". It's a potato and tapioca starch product. The recipe is a highly modified version of the recipe on the box. The box recipe will make cute little rubber disks with no flavor.1¼ cups all purpose flour¼ teaspoon salt1-2 Tablespoons Baking Powder (how fluffy would you like?)1-2 Tablespoons honey or other sweetner (how sweet do you like?)1¼ cups water - or so (add until the right consistency)1 Tablespoon oil - if you can find a butter flavored safe oil, yum!1 Tablespoon hot water1 teaspoon Ener-G Egg Replacer½-1 cups fresh or melted frozen blueberries (how blue do you like?)Start with the hot water - dissolve the Ener-G Egg Replacer in it. Add one cup flour, then dip another ¼ cup or so and mix the baking powder with it before throwing it in. It doesn't like being undiluted. Add everything else and stir. Add more water until a nice pancake batter consistency. Fry 'em up!

June 25, 2003

Cool! Thanks for sending this one in too!!!

Alyssa

(unknown)

These are M,E,S, freePizza crust (dh worked in a pizza shop- so it is yummy)Hello this is dh.I don't know how accurate this recipe is - I just add ingredients until it's the right consistency. This recipe will make 2 thin 14" pizzas.1½ cups of warm water.2 Tablespoons honey (or other sweetner)2-4 Tablespoons olive oil (I like it with 4)1 teaspoon salt1 teaspoon active dry yeast-Mix together and let sit until the yeast is nice and foamy.3 cups flour (or thereabouts). Try using wheat for one of the cups sometime for a nice, flavorful change. I add 2 cups immediately and start mixing, adding the third as I go. If you over-flour and it needs more water, add it sooner rather than later - once the gluten begins to develop it's really hard to add water. Mix with dough hook in a Kitchen Aid, or fold and knead like crazy. It should be rubbery. Form into a dough ball and let stand for 10 or so minutes; until it's a bit larger than normal size - keep from drying out by spraying with olive oil or Pam. Get your nearest pizza chef to stretch and toss the dough!No Egg or Milk Pancakes:This recipe uses "Ener-G Egg Replacer - A culinary egg substitute". It's a potato and tapioca starch product. The recipe is a highly modified version of the recipe on the box. The box recipe will make cute little rubber disks with no flavor.1¼ cups all purpose flour¼ teaspoon salt1-2 Tablespoons Baking Powder (how fluffy would you like?)1-2 Tablespoons honey or other sweetner (how sweet do you like?)1¼ cups water - or so (add until the right consistency)1 Tablespoon oil - if you can find a butter flavored safe oil, yum!1 Tablespoon hot water1 teaspoon Ener-G Egg Replacer½-1 cups fresh or melted frozen blueberries (how blue do you like?)Start with the hot water - dissolve the Ener-G Egg Replacer in it. Add one cup flour, then dip another ¼ cup or so and mix the baking powder with it before throwing it in. It doesn't like being undiluted. Add everything else and stir. Add more water until a nice pancake batter consistency. Fry 'em up!

July 4, 2003

Hi:-)

If I were you I would start with a geneticist. Bring baby pictures to the

appointment too since the RSS " look " is less obvious to doctors as the

children grow older.

>

> Reply-To: RSS-Support

> Date: Fri, 04 Jul 2003 19:00:01 -0000

> To: RSS-Support

> Subject: (unknown)

>

> Hi,

>

> I have a two year old son who is short statured. He stands and walks

> with support. There are times when i have caught him standing without

> support but the moment he realises it he just sits down. otherwise he

> seems normal to me. He talks quite a lot but mostly he just repeats

> what we say. His pediatrician referred us to an endocrinoligst and we

> did a lot of tests for thyroid, grwth hormones etc. All the results

> were normal. But he weighs just 9 kgs and is about 74cms tall. I came

> upon RSS while doing some research on the net. He seems to have all

> the physical characteristics - large head, small triangular face,

> large low set ears. I would like to get him evaluated for RSS but

> have no idea where to start.

>

> Nisha

>

July 5, 2003

Hello Nisha,

From this list serve, it sounds like most people go first to a

geneticist, and then an endo. The MAGIC convention is July 24-27 in Chicago,

and would also be a good place to start. Dr Harbison (an endo from NY that

specializes in RSS) will be there, and she would be able to tell you whether

your son is RSS or not.

Hope this helps!

Pat (g-ma to , RSS, 18 months, 15# 3.5oz, 26.5 " , Zantac, GT)

July 5, 2003

Hello Nisha,

Welcome to the list. I think someone already mentioned a geneticist - that's

what worked for us. (We've actually not seen an endocronologist yet but it

looks to be in our future for growth hormone therapy.) My son is quite mild,

and the geneticist has yet to give us a 100% diagnosis but as he's very age

appropriate in everything besides size and has the " look " of many of the other

RSS kids I've seen, in my mind he has this condition. Have you checked out the

MAGIC foundation and joined yet? I would highly recommend that as a starting

point. They can even help you find a doctor in your area. Also, have you

looked at all the pictures that are posted at the listserve site? That helped

me a bunch when I first started researching.

Good Luck - you'll get to the bottom of this - you are already a great mom for

doing the research yourself!

Lindsey

Mom to Jack (RSS/SGA) & Joe, 19 mo old twins

Jack - about 17 pounds, 28 1/2 " , Joe - 27 pounds, 33 "

August 3, 2003

Sorry i read the response for some reason not all post are getting to my mail

box

please forgive

peggy

Smile and Count your blessings life is to short

August 3, 2003

Sorry i read the response for some reason not all post are getting to my mail

box

please forgive

peggy

Smile and Count your blessings life is to short

August 3, 2003

Sorry i read the response for some reason not all post are getting to my mail

box

please forgive

peggy

Smile and Count your blessings life is to short

August 3, 2003

Thanks for the response . I love hearing from you. I will take pen and paper.

Will she do anything to help me lose before surgery i am the verge of being put

on bp meds and i dont want them.

Thanks

peggy

322 waiting

Smile and Count your blessings life is to short

August 3, 2003

Thanks for the response . I love hearing from you. I will take pen and paper.

Will she do anything to help me lose before surgery i am the verge of being put

on bp meds and i dont want them.

Thanks

peggy

322 waiting

Smile and Count your blessings life is to short

August 3, 2003

Thanks for the response . I love hearing from you. I will take pen and paper.

Will she do anything to help me lose before surgery i am the verge of being put

on bp meds and i dont want them.

Thanks

peggy

322 waiting

Smile and Count your blessings life is to short

August 3, 2003

She there to HELP you with everything.Mine gave me her 800 number

and said to call if and questions or any trouble your have and help

you with losing some if you need to before surgery.I know I've lost

some Wt lately becuz some of my close are getting real loose and

baggy.I have had my surgery yet but I'm a nervous and I already

start eating what I'll be eatting after surgery.Like eatting with a

baby spoon and real slow.I know i have lost it everyone thought I

was pregant and going to have a baby beuz I bought it.But I'm tring

to change some now.Well I hope this help with some anwsers.God Bless

this Site and everyone that on here.Take Care talk later.a friend

debkroll of

Iowa.

> Thanks for the response . I love hearing from you. I will take pen

and paper. Will she do anything to help me lose before surgery i am

the verge of being put on bp meds and i dont want them.

> Thanks

> peggy

> 322 waiting

>

> Smile and Count your blessings life is to short

>

August 3, 2003