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UGH. I'll cross my fingers for you. So far we have been really lucky with

Drew. He has always had this sniff/cough/hack thing and the allergist has

tested him 2 times for lung function (off the charts for a child and very

high capacity for an adult!). It was an amazing thing when he had his

adenoids removed last spring, not only is he sleeping better but that darn

noise he was always making is all but gone! He had his tonsils out at the

same time and has been a very healthy kid for the most part (unresponsive

strep infection for six months tends to take a toll on the body).

Anyhow I hope that you can keep out of the asthma category!

Drew, 7.5 years, anaphylactic to peanuts, allergic to dogs, environmental

allergies, severe eczema, outgrown dairy!

Mattie, 5 years, no known allergies

, 15 months, no known allergies but avoiding all nuts until she is much

older!

----- Original Message -----

The allergist said that he will probably develop asthma. Last week

he was wheezing to high heaven and the doctor said his allergies

basically is causing that.\

Amy

(4) no allergies, but has what the doctors called Preasthma

(2) no allergies

Gavin, Bermuda grass,Ryegrass, dog, wheat, peanut, soy, egg, milk,

dust, feather mix (?)

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Our allergist told us that there was an 85% chance that Drew will develop

asthma due to the young age he started reacting to foods. But then again

they told us that there was about a 2% chance that dairy was causing his

eczema (and it was). I figure if he keeps beating the odds like this I'm

going to have him start picking lottery numbers for me ;-)

Drew, 7.5 years, anaphylactic to peanuts, allergic to dogs, environmental

allergies, severe eczema, outgrown dairy!

Mattie, 5 years, no known allergies

, 15 months, no known allergies but avoiding all nuts until she is much

older!

----- Original Message -----

Amy

I sure hope you don't have to deal with that, but it seems to be pretty

common with allergy kids. It sure has caused more problems than I would

like with Sam. He was in the hospital twice last year just b/c his asthma

flared and he couldn't fight anything off! We are hoping for a better year!

As for the feather mix- I would guess that some of the feather pillows and

such have feather mixes in them! I don't know what that mix is- other than

like goose and turkey. So I'm no help! :)

Trish

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  • 2 weeks later...

They suggested that I wait until I'm pregnant to see if there's

enough tissue there to actually put in a vaginal cerclage. But, I'm

wondering if I shouldn't push to get the abdominal cerclage prior to

fertility treatments? Wouldn't it be safer to do the abdominal

cerclage prophylatically rather than as an emergent rescue?

Anyone have any thoughts? Needless to say the thought of losing a

baby during the second trimester scares me (with just the vaginal

cerclage).

Sigh.

Advice?

C

I would push for some answers. I too have IC and due to a cervical biopsy at 17. I had lost a little boy at 18 weeks due to IC and then when dx with IC I had two vaginal cerclages placed at 16 weeks with twin girls and they failed and the drs rushed me to have a rescue ab cerclage (my sacs where already hourglassing into my cervical canal) and I lost my girls.

I went through IVF in 2002 and had an ab cerclage placed at 12-13 weeks and have a lil boy and now pregnant again (30 weeks) and successfully carrying.

Do your homework now. because you dont want to wait till later.

I myself had failed with the vaginal cerclage. So really push drs opionions. How much cervix do you have? Why wont they consider the ab cerclage first since you have had so much done to your cervix? What is their experience with ab cerclages?

I also would seek second opinions as well. Depending where you live (city,state) maybe one of our members can refer you to some drs.

ask away we are here/

with love

trish

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I would push for the ab cerclage pre pregnancy just based on the success of women on the list in your situation. I would not want to risk the loss and try the vaginal. It is not worth the pain. Go for the ab cerclage and convince them that is best!!

Love,Brayden Austin 06-02-03}Angel{ Trustin Cody 07-17-02}Angel{ Cheyenne 6-12-00

New Member

Hi All,I'm new to this site and am so relieved that there are others of you out there. No one I know has even heard of the abdominal cerclage. I have never been pregnant - now I'm thinking it's due in part to the shortness of my cervix (after two leeps and a cone). Anyway - was going to start fertility treatments (IUI + Clomid) in about a month but was shocked to learn from a perinatology visit that it looks as though I have an incompetent cervix - no one ever spoke of this before.They suggested that I wait until I'm pregnant to see if there's enough tissue there to actually put in a vaginal cerclage. But, I'm wondering if I shouldn't push to get the abdominal cerclage prior to fertility treatments? Wouldn't it be safer to do the abdominal cerclage prophylatically rather than as an emergent rescue?Anyone have any thoughts? Needless to say the thought of losing a baby during the second trimester scares me (with just the vaginal cerclage).Sigh.Advice?C

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I would push for the ab cerclage pre pregnancy just based on the success of women on the list in your situation. I would not want to risk the loss and try the vaginal. It is not worth the pain. Go for the ab cerclage and convince them that is best!!

Love,Brayden Austin 06-02-03}Angel{ Trustin Cody 07-17-02}Angel{ Cheyenne 6-12-00

New Member

Hi All,I'm new to this site and am so relieved that there are others of you out there. No one I know has even heard of the abdominal cerclage. I have never been pregnant - now I'm thinking it's due in part to the shortness of my cervix (after two leeps and a cone). Anyway - was going to start fertility treatments (IUI + Clomid) in about a month but was shocked to learn from a perinatology visit that it looks as though I have an incompetent cervix - no one ever spoke of this before.They suggested that I wait until I'm pregnant to see if there's enough tissue there to actually put in a vaginal cerclage. But, I'm wondering if I shouldn't push to get the abdominal cerclage prior to fertility treatments? Wouldn't it be safer to do the abdominal cerclage prophylatically rather than as an emergent rescue?Anyone have any thoughts? Needless to say the thought of losing a baby during the second trimester scares me (with just the vaginal cerclage).Sigh.Advice?C

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Welcome to the group. I had 2 leaps done

in 2001 that left me w no cx. I had a vaginal at 15

weeks then started to funnel and had a rescue placed at 22 weeks. I stayed in

the hospital and delivered at 25 weeks due to ptl. I must

say that the ab is the way to go. The vaginal is not

an option. I wish I knew about the ab before hand. It

could have saved my son. They is no great pain then losing a baby. I hope you

never know what that feels like. I will pray that God will help you make a

decision and to find a doc. I would get a doc lined up first before getting pg.

I did this and it was great. When I did get pg the doc and my hd already had a game plan ready so their were no

surprises. I knew ahead of time what I was getting getting

into. I also checked out our insurance to make sure that all was covered. Good luck.

God bless,

Taryn

New Member

Hi All,

I'm new to this site and am so relieved that there

are others of you

out there. No one I know has even heard of

the abdominal cerclage.

I have never been pregnant - now I'm thinking it's

due in part to the

shortness of my cervix (after two leeps and a

cone). Anyway - was

going to start fertility treatments (IUI + Clomid)

in about a month

but was shocked to learn from a perinatology visit

that it looks as

though I have an incompetent cervix - no one ever spoke

of this

before.

They suggested that I wait until I'm pregnant to

see if there's

enough tissue there to actually put in a vaginal

cerclage. But, I'm

wondering if I shouldn't push to get the abdominal

cerclage prior to

fertility treatments? Wouldn't it be safer to do

the abdominal

cerclage prophylatically rather than as an

emergent rescue?

Anyone have any thoughts? Needless to say

the thought of losing a

baby during the second trimester scares me (with

just the vaginal

cerclage).

Sigh.

Advice?

C

Yahoo!

Groups Links

·

To visit your group on the

web, go to:

http://groups.yahoo.com/group/Abbyloopers/

·

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  • 3 weeks later...

Welcome, .

I've never had tongue therapy (never even heard of it), but I'm sure there is

someone on here who can help you. I, too, am 42 and I had upper and lower

surgery on 30 Oct 2003. My recovery is going very well and I can assure you

that, although the recovery is hard, the waiting for the surgery was the worst

part. I was not scared about having the surgery...I actually looked forward to

it.

Anyway, I just wanted to welcome you to the group and to encourage you to ask,

ask, ask questions. The more you know, the more prepared you will be. As hard

as it may seem, try not to focus on the surgery 24/7. Do something to get your

mind off of it sometimes and it will be easier to handle.

I spent many, many hours a day on this site (I was addicted to it), but not

every post was always about the surgery. We've talked about things from

different foods, to family problems, to vacations and humorous experiences. I

found the posts that were way off the subject to actually be very helpful to me

in that it helped me to focus on things other than the surgery...sort of a good

therapy. :-)

You will find yourself laughing quite a bit from some of these posts and some

will even make you cry. Feel free to post your own at any time. We'd love to

hear from you. We're like a huge extended family. :-)

Smooches

New Member

Hi everyone,

I am new to the group (and to internet groups in general). I found

this site a couple of months ago after my OS suggested I do an

internet search to get more information. I've been reading your

posts off and on since then. I'm 42 and scheduled for upper and

lower surgery on January 16. I'm on this journey to address

funtionality and to try and save my teeth. I had braces as a

teenager, but relapsed because my tongue thrust and jaw alignment

were never corrected. I have been in upper braces for about 2 years

and lower for about 18 months. I have also been in therapy with an

oral-facial myologist for about 2 years to learn how to swallow

properly. Has anyone else been in " tongue " therapy? I am really

nervous at this point. I want to thank everyone for their posts and

support. You all have answered many of my questions. I am

especially relieved to learn I am not the only adult having this

type of surgery. As scared as I am, I really want to get to the

other side.

Regards,

----------------------------------------------------------------------------

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You spelled the t-t thing just right!

I didn't have it, but have been told that a true one is hard to deal

with. However, at least one patient here has been reported to have

learned how to manage it successfully, post-op.

As best I understand, it can be a real nuisance. I know that sharp

and critical tongues can be powerful, but apparently kindly ones can

also wield a real wallop on those teeth.

Lots of us are on the second, or third! go round with orthodontia.

Sometimes (as in my case) it even gets better as you come back for

more. (I first had braces about 1956; they were awful, and the ones

installed in 2002 were much, much easier to deal with.) And the

surgery can indeed be a giant help. Hope it will for you. Ask away

whatever you want.

Cammie

> Welcome, .

>

> I've never had tongue therapy (never even heard of it), but I'm

sure there is someone on here who can help you. I, too, am 42 and I

had upper and lower surgery on 30 Oct 2003. My recovery is going

very well and I can assure you that, although the recovery is hard,

the waiting for the surgery was the worst part. I was not scared

about having the surgery...I actually looked forward to it.

>

> Anyway, I just wanted to welcome you to the group and to

encourage you to ask, ask, ask questions. The more you know, the

more prepared you will be. As hard as it may seem, try not to focus

on the surgery 24/7. Do something to get your mind off of it

sometimes and it will be easier to handle.

>

> I spent many, many hours a day on this site (I was addicted to

it), but not every post was always about the surgery. We've talked

about things from different foods, to family problems, to vacations

and humorous experiences. I found the posts that were way off the

subject to actually be very helpful to me in that it helped me to

focus on things other than the surgery...sort of a good therapy. :-)

>

> You will find yourself laughing quite a bit from some of these

posts and some will even make you cry. Feel free to post your own at

any time. We'd love to hear from you. We're like a huge extended

family. :-)

>

> Smooches

>

> New Member

>

>

> Hi everyone,

>

> I am new to the group (and to internet groups in general). I

found

> this site a couple of months ago after my OS suggested I do an

> internet search to get more information. I've been reading

your

> posts off and on since then. I'm 42 and scheduled for upper

and

> lower surgery on January 16. I'm on this journey to address

> funtionality and to try and save my teeth. I had braces as a

> teenager, but relapsed because my tongue thrust and jaw

alignment

> were never corrected. I have been in upper braces for about 2

years

> and lower for about 18 months. I have also been in therapy

with an

> oral-facial myologist for about 2 years to learn how to swallow

> properly. Has anyone else been in " tongue " therapy? I am

really

> nervous at this point. I want to thank everyone for their

posts and

> support. You all have answered many of my questions. I am

> especially relieved to learn I am not the only adult having

this

> type of surgery. As scared as I am, I really want to get to

the

> other side.

>

> Regards,

>

>

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You spelled the t-t thing just right!

I didn't have it, but have been told that a true one is hard to deal

with. However, at least one patient here has been reported to have

learned how to manage it successfully, post-op.

As best I understand, it can be a real nuisance. I know that sharp

and critical tongues can be powerful, but apparently kindly ones can

also wield a real wallop on those teeth.

Lots of us are on the second, or third! go round with orthodontia.

Sometimes (as in my case) it even gets better as you come back for

more. (I first had braces about 1956; they were awful, and the ones

installed in 2002 were much, much easier to deal with.) And the

surgery can indeed be a giant help. Hope it will for you. Ask away

whatever you want.

Cammie

> Welcome, .

>

> I've never had tongue therapy (never even heard of it), but I'm

sure there is someone on here who can help you. I, too, am 42 and I

had upper and lower surgery on 30 Oct 2003. My recovery is going

very well and I can assure you that, although the recovery is hard,

the waiting for the surgery was the worst part. I was not scared

about having the surgery...I actually looked forward to it.

>

> Anyway, I just wanted to welcome you to the group and to

encourage you to ask, ask, ask questions. The more you know, the

more prepared you will be. As hard as it may seem, try not to focus

on the surgery 24/7. Do something to get your mind off of it

sometimes and it will be easier to handle.

>

> I spent many, many hours a day on this site (I was addicted to

it), but not every post was always about the surgery. We've talked

about things from different foods, to family problems, to vacations

and humorous experiences. I found the posts that were way off the

subject to actually be very helpful to me in that it helped me to

focus on things other than the surgery...sort of a good therapy. :-)

>

> You will find yourself laughing quite a bit from some of these

posts and some will even make you cry. Feel free to post your own at

any time. We'd love to hear from you. We're like a huge extended

family. :-)

>

> Smooches

>

> New Member

>

>

> Hi everyone,

>

> I am new to the group (and to internet groups in general). I

found

> this site a couple of months ago after my OS suggested I do an

> internet search to get more information. I've been reading

your

> posts off and on since then. I'm 42 and scheduled for upper

and

> lower surgery on January 16. I'm on this journey to address

> funtionality and to try and save my teeth. I had braces as a

> teenager, but relapsed because my tongue thrust and jaw

alignment

> were never corrected. I have been in upper braces for about 2

years

> and lower for about 18 months. I have also been in therapy

with an

> oral-facial myologist for about 2 years to learn how to swallow

> properly. Has anyone else been in " tongue " therapy? I am

really

> nervous at this point. I want to thank everyone for their

posts and

> support. You all have answered many of my questions. I am

> especially relieved to learn I am not the only adult having

this

> type of surgery. As scared as I am, I really want to get to

the

> other side.

>

> Regards,

>

>

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You spelled the t-t thing just right!

I didn't have it, but have been told that a true one is hard to deal

with. However, at least one patient here has been reported to have

learned how to manage it successfully, post-op.

As best I understand, it can be a real nuisance. I know that sharp

and critical tongues can be powerful, but apparently kindly ones can

also wield a real wallop on those teeth.

Lots of us are on the second, or third! go round with orthodontia.

Sometimes (as in my case) it even gets better as you come back for

more. (I first had braces about 1956; they were awful, and the ones

installed in 2002 were much, much easier to deal with.) And the

surgery can indeed be a giant help. Hope it will for you. Ask away

whatever you want.

Cammie

> Welcome, .

>

> I've never had tongue therapy (never even heard of it), but I'm

sure there is someone on here who can help you. I, too, am 42 and I

had upper and lower surgery on 30 Oct 2003. My recovery is going

very well and I can assure you that, although the recovery is hard,

the waiting for the surgery was the worst part. I was not scared

about having the surgery...I actually looked forward to it.

>

> Anyway, I just wanted to welcome you to the group and to

encourage you to ask, ask, ask questions. The more you know, the

more prepared you will be. As hard as it may seem, try not to focus

on the surgery 24/7. Do something to get your mind off of it

sometimes and it will be easier to handle.

>

> I spent many, many hours a day on this site (I was addicted to

it), but not every post was always about the surgery. We've talked

about things from different foods, to family problems, to vacations

and humorous experiences. I found the posts that were way off the

subject to actually be very helpful to me in that it helped me to

focus on things other than the surgery...sort of a good therapy. :-)

>

> You will find yourself laughing quite a bit from some of these

posts and some will even make you cry. Feel free to post your own at

any time. We'd love to hear from you. We're like a huge extended

family. :-)

>

> Smooches

>

> New Member

>

>

> Hi everyone,

>

> I am new to the group (and to internet groups in general). I

found

> this site a couple of months ago after my OS suggested I do an

> internet search to get more information. I've been reading

your

> posts off and on since then. I'm 42 and scheduled for upper

and

> lower surgery on January 16. I'm on this journey to address

> funtionality and to try and save my teeth. I had braces as a

> teenager, but relapsed because my tongue thrust and jaw

alignment

> were never corrected. I have been in upper braces for about 2

years

> and lower for about 18 months. I have also been in therapy

with an

> oral-facial myologist for about 2 years to learn how to swallow

> properly. Has anyone else been in " tongue " therapy? I am

really

> nervous at this point. I want to thank everyone for their

posts and

> support. You all have answered many of my questions. I am

> especially relieved to learn I am not the only adult having

this

> type of surgery. As scared as I am, I really want to get to

the

> other side.

>

> Regards,

>

>

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Thank you for responding to my post! I agree that the braces I have

on now are MUCH better than the ones I had in the early '70s. I very

much hope I don't have to do it again and that between the ortho and

the upcoming surgery, my mouth will be in better shape.

I work full time and have some extended family issues going on right

now, so my plate is pretty full. I don't have a lot of time to be on

the computer, and I mostly only worry when there is not something

else needing attention :) I have my pre-op appointment later this

week, cleaning and surgical hooks scheduled for early next week. I'm

scared and excited all at the same time. I am ready to get the

surgery (and anticipation) over with.

, I was very interested in what your OS had to say. I, too,

have a very narrow upper palate which will be widened during

surgery. My therapist keeps telling me once everything gets lined

up, chewing and swallowing will be easier. I sure hope so. I'm

tired of biting my cheeks and tongue when I eat. I'm interested to

see how it works out for you with the SARPE.

My ortho told me she would not agree to take my case on unless I

agreed to go through the tongue therapy. I had never heard of it

either before then - but I knew I wanted my mouth fixed and was

willing to do whatever she wanted. After reading the posts about

difficulty swallowing, I am hopeful that my months of exercises and

practice will be helpful. I'm feeling pretty good about my team,

they are all working together and communicating with each other -

makes it easier on me!

Again, thank you all for your encouragement. My husband and family

are great, but it sure is nice to communicate with people who are

taking a similar journey.

> > Welcome, .

> >

> > I've never had tongue therapy (never even heard of it), but I'm

> sure there is someone on here who can help you. I, too, am 42 and

I

> had upper and lower surgery on 30 Oct 2003. My recovery is going

> very well and I can assure you that, although the recovery is hard,

> the waiting for the surgery was the worst part. I was not scared

> about having the surgery...I actually looked forward to it.

> >

> > Anyway, I just wanted to welcome you to the group and to

> encourage you to ask, ask, ask questions. The more you know, the

> more prepared you will be. As hard as it may seem, try not to

focus

> on the surgery 24/7. Do something to get your mind off of it

> sometimes and it will be easier to handle.

> >

> > I spent many, many hours a day on this site (I was addicted to

> it), but not every post was always about the surgery. We've talked

> about things from different foods, to family problems, to vacations

> and humorous experiences. I found the posts that were way off the

> subject to actually be very helpful to me in that it helped me to

> focus on things other than the surgery...sort of a good therapy. :-

)

> >

> > You will find yourself laughing quite a bit from some of these

> posts and some will even make you cry. Feel free to post your own

at

> any time. We'd love to hear from you. We're like a huge extended

> family. :-)

> >

> > Smooches

> >

> > New Member

> >

> >

> > Hi everyone,

> >

> > I am new to the group (and to internet groups in general). I

> found

> > this site a couple of months ago after my OS suggested I do

an

> > internet search to get more information. I've been reading

> your

> > posts off and on since then. I'm 42 and scheduled for upper

> and

> > lower surgery on January 16. I'm on this journey to address

> > funtionality and to try and save my teeth. I had braces as a

> > teenager, but relapsed because my tongue thrust and jaw

> alignment

> > were never corrected. I have been in upper braces for about

2

> years

> > and lower for about 18 months. I have also been in therapy

> with an

> > oral-facial myologist for about 2 years to learn how to

swallow

> > properly. Has anyone else been in " tongue " therapy? I am

> really

> > nervous at this point. I want to thank everyone for their

> posts and

> > support. You all have answered many of my questions. I am

> > especially relieved to learn I am not the only adult having

> this

> > type of surgery. As scared as I am, I really want to get to

> the

> > other side.

> >

> > Regards,

> >

> >

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Hey Krystal...I too am going for upper & lower surgery, but much

sooner than you...March 8th is my date. I share the same concerns,

have all the same questions, etc...but definitely do not freak out

from all these stories. Truth is, everyone reacts differently to

surgery and heals/recovers in different ways, speeds, etc. Keep in

mind how many people have posted messages on this board, so there's

bound to be some horror stories...but mostly everyone is extremely

thrilled with the results and their choice to proceed with the

surgery. Its very difficult for people not in our situation to

understand what it's like to NOT have a comfortable bite and/or

associated pain. So, as my date approaches I'll be sure to share what

info I have with you and and everyone else.

Best of luck...

> hello everyone my name is krystal im 18 and a college student and

im

> going for the upper and lower surgey to correct my underbite on

june

> 8(after spring semester). im very excited but all these stories are

> freaking me out. i understand theres going to be pain and swelling,

> but is it going to be unbearable? and the eating afterwards,

exactly

> how does that work? soup and juice for a few months? i have a lot

of

> questions because i havent gone for my evaluation (its feb.20) but

i

> want to be a little aware when i go. id appreciate the support from

> you all. thank you.

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Krystal, ,

I'm 10 weeks post-op (almost) and I can tell you from my own experience and

from reading posts from others that the pain after the surgery is not bad at

all. Most have had little or no pain at all. The worst part is waiting for the

surgery. T

here is a lot of discomfort after surgery, but it's not unbearable. The

swelling is also different from person to person. It ranges from none at all to

being a balloon head...I, unfortunately, was the balloon head - I looked like

Professor Klump. However, now, I'm almost back to normal. Most people don't

even notice my swelling.

Eating is a different story. It depends on your doctor. Some have been put

on liquid diets with variable time limits - I was on liquids for 6 weeks. Some

have been put on a soft-chew/non-chew diet from day one. Chewing will be

difficult because your bite will be different so you have to re-learn how to

chew all over again.

Any more questions, feel free to ask. Check out some of the past posts.

There is so much information in them and different experiences that will help

you.

Smooches

new member

hello everyone my name is krystal im 18 and a college student and im

going for the upper and lower surgey to correct my underbite on june

8(after spring semester). im very excited but all these stories are

freaking me out. i understand theres going to be pain and swelling,

but is it going to be unbearable? and the eating afterwards, exactly

how does that work? soup and juice for a few months? i have a lot of

questions because i havent gone for my evaluation (its feb.20) but i

want to be a little aware when i go. id appreciate the support from

you all. thank you.

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  • 4 weeks later...

42 years old...had upper and lower surgery in oct.... blue cross of

california did not pay ( only about 2700) ..yet i went out of network and out

of

state.... so maybe you would have a chance. Many of these posts lists all

positive things....from my experience,,, my teeth are straight..no crossbite or

overbite..... breathing is better...dont love the cosmetic change.... and Theere

so

much altered sensation in my mouth numbness, on upper palate...dont feel

comfortable with hot foods.... and novacaine type feeling on lower lip.... ..i

went to a very reputable nyc surgeon---- but let me tell you this is a very

tough surgery...and despite what everyone says..you really should think long and

hard about this... my conclusion....dont do it unless your teeth are in such

bad shape they are going to fall out.... just my thoughts..... you will

survive.... if you do it.... but your face just might never feel the same.. many

on

this board would disagree with me....these are just my thoughts

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Always, it is best to consider all experiences -- the good ones and

the bad ones.

I am so sorry that yours was unsatisfactory, and hope that there is

still a possibility of improvement. Time since october is relatively

short, yet, believe it or not.

As my doc told me, no matter what the overall averages are, that

doesn't help, if you're the one who is the one in a hundred, or a

thousand, or even a million.

I will hope fervently that you find your changes agree with you more

as time passes. And I thank you for posting.

Best,

Cammie

> 42 years old...had upper and lower surgery in oct.... blue cross

of

> california did not pay ( only about 2700) ..yet i went out of

network and out of

> state.... so maybe you would have a chance. Many of these posts

lists all

> positive things....from my experience,,, my teeth are straight..no

crossbite or

> overbite..... breathing is better...dont love the cosmetic

change.... and Theere so

> much altered sensation in my mouth numbness, on upper

palate...dont feel

> comfortable with hot foods.... and novacaine type feeling on lower

lip.... ..i

> went to a very reputable nyc surgeon---- but let me tell you this

is a very

> tough surgery...and despite what everyone says..you really should

think long and

> hard about this... my conclusion....dont do it unless your teeth

are in such

> bad shape they are going to fall out.... just my thoughts..... you

will

> survive.... if you do it.... but your face just might never feel

the same.. many on

> this board would disagree with me....these are just my thoughts

>

>

>

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It's scary, I know.

I had braces as a child, and thought I was well done with all this

stuff. At age 56 I discovered that my bite was destroying my teeth.

So, after much reluctance, I headed for an ortho recommended by my

periodontist, only to hear that not only did I need a mouthful of

brackets and wires, but that I also needed surgery on the lower jaw,

if we were to fix the true problem with any hope of retention.

Many tears, many fears later, I learned that these procedures were

not only possible, but really nowhere near as fearsome as I'd thought.

First thing to do, I think, is find out just what is being suggested.

Are they talking one jaw or two? Are they talking an expansion of the

upper palate through surgery, as well as changes in the alignment of

the jaws? What's recommended?

Your ortho can probably give you a pretty good idea, but that idea

may change as you go through the process. I'd also want an

appointment with the surgeon (and perhaps with more than one,

although I only had one consult) to see what's suggested.

You want an ortho and a surgeon who work well together, but you also

want both of them to be people who have dealt with these troubles

many times, done many operations of this nature, and in short, know

what they're doing.

And especially, you want them to be people you can work with. There

are some who have good " bedside manners " and others who are cold and

aloof. All can be excellent docs and give you good results. (there

are also some lousy apples in the crate, and you for sure don't want

one of them.) Figure out what your risks and benefits are, and how

you want to go at it.

Ask your ortho and your surgeon whether they can enlighten you about

insurance -- both of mine knew that while the braces are only

partially (minimally, actually) covered, the surgery was completely

so, under my major MEDICAL, not dental, policy.

And no. I was neither wired nor banded (elastic bands to hold the

jaws together) immediately post op. I had work on lower jaw only. at

age 56.

Good wishes,

Cammie

> Hi!

>

> I was just told a few days ago that I needed orthognathic surgery.

> I'm 41 years old and didn't even know that I had a problem(I have a

> deep overbite and also a crossbite) until my new dentist advised

that

> I see an orthodontist. I saw three different orthodontists and was

> told that braces alone wouldn't be enough. The one that I've chosen

> to work with flat out refuses to put the braces on unless I consent

> to having the surgery also.

>

> This is all so new to me and I don't know quite what to think of

it.

> At this point I don't even know if my insurance (Blue Cross) will

> cover the surgery or not. I've also read online that not everyone

> has to have their jaws wired shut after the surgery.

>

> I would love to talk to someone who's been through all of this

> already!

>

> Sue

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Wow, sounds like you had a rough time of it. I tend to be a little

hesitant about this also because I can't help wondering why no one

has noticed that I have a problem before now? I know that my mouth

has always been a little awkward and I slur my words sometimes but

I've had plenty of dental work and no one's said anything so I just

assumed that I was worrying about nothing.

I've been told that my treatment will take at least 3 years and the

braces alone will be almost $7,000 (I have no orthodontic coverage).

I have to admit that the idea of having my mouth wired shut doesn't

thrill me much either. But for once in my life I would like to have

an attractive smile. My teeth are relatively straight but the top

ones curve in and my molars don't meet at all on the left side. I've

also developed alot of clicking in my jaws and " popping " in my right

ear (kind of like what your ears do at high altitudes. Has anyone

else experienced this?). I'm worried that if I don't have the surgery

that I'm going to end up with TMJ.

Gotta go now. Thanks for listening!

Sue

> 42 years old...had upper and lower surgery in oct.... blue cross

of

> california did not pay ( only about 2700) ..yet i went out of

network and out of

> state.... so maybe you would have a chance. Many of these posts

lists all

> positive things....from my experience,,, my teeth are straight..no

crossbite or

> overbite..... breathing is better...dont love the cosmetic

change.... and Theere so

> much altered sensation in my mouth numbness, on upper

palate...dont feel

> comfortable with hot foods.... and novacaine type feeling on lower

lip.... ..i

> went to a very reputable nyc surgeon---- but let me tell you this

is a very

> tough surgery...and despite what everyone says..you really should

think long and

> hard about this... my conclusion....dont do it unless your teeth

are in such

> bad shape they are going to fall out.... just my thoughts..... you

will

> survive.... if you do it.... but your face just might never feel

the same.. many on

> this board would disagree with me....these are just my thoughts

>

>

>

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  • 2 weeks later...

Sue,

I'm 42 and almost 15 weeks post-op. I was not wired. Feel free to email me

anytime with any questions.

Smooches

chicmyers@...

New member

Hi!

I was just told a few days ago that I needed orthognathic surgery.

I'm 41 years old and didn't even know that I had a problem(I have a

deep overbite and also a crossbite) until my new dentist advised that

I see an orthodontist. I saw three different orthodontists and was

told that braces alone wouldn't be enough. The one that I've chosen

to work with flat out refuses to put the braces on unless I consent

to having the surgery also.

This is all so new to me and I don't know quite what to think of it.

At this point I don't even know if my insurance (Blue Cross) will

cover the surgery or not. I've also read online that not everyone

has to have their jaws wired shut after the surgery.

I would love to talk to someone who's been through all of this

already!

Sue

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Hi Sandy,

Welcome to the group!

Shane can't have eggs either, and I'd love to exchange egg-free recipes with you. Always looking to add to Shane's variety of food.

DonnaShane - asthma - allergic to dairy, eggs, pickles, and olives. Minnesota

New Member

Hello! My name is Sandy and I just joined this group....thanks to "sarasmommy"! My son, , is almost 4 years old and has allergies to peanuts, eggs, dust mites and cats.I look forward to exchanging emails with all of you!Sandy

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Hi Sandy,

Welcome to the group!

Shane can't have eggs either, and I'd love to exchange egg-free recipes with you. Always looking to add to Shane's variety of food.

DonnaShane - asthma - allergic to dairy, eggs, pickles, and olives. Minnesota

New Member

Hello! My name is Sandy and I just joined this group....thanks to "sarasmommy"! My son, , is almost 4 years old and has allergies to peanuts, eggs, dust mites and cats.I look forward to exchanging emails with all of you!Sandy

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Welcome Sandy! Glad you made it here!! This is an excellent group! : )

Carol & Sara - Severe excema allergy to eggs, minor shellfish ("saras mommy") ; )

New Member

Hello! My name is Sandy and I just joined this group....thanks to "sarasmommy"! My son, , is almost 4 years old and has allergies to peanuts, eggs, dust mites and cats.I look forward to exchanging emails with all of you!Sandy

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Welcome Sandy! Glad you made it here!! This is an excellent group! : )

Carol & Sara - Severe excema allergy to eggs, minor shellfish ("saras mommy") ; )

New Member

Hello! My name is Sandy and I just joined this group....thanks to "sarasmommy"! My son, , is almost 4 years old and has allergies to peanuts, eggs, dust mites and cats.I look forward to exchanging emails with all of you!Sandy

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Welcome Sandy! Glad you made it here!! This is an excellent group! : )

Carol & Sara - Severe excema allergy to eggs, minor shellfish ("saras mommy") ; )

New Member

Hello! My name is Sandy and I just joined this group....thanks to "sarasmommy"! My son, , is almost 4 years old and has allergies to peanuts, eggs, dust mites and cats.I look forward to exchanging emails with all of you!Sandy

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  • 4 months later...
Guest guest

hi craig. welcome!

where does your work take you? i like to travel a bit. at the end of

july, i'm making my first trip out of north america since being

diagnosed last year, to china.

rach

> Thought I would stop and introduce myself and say thanks for the

> invite. My name is Craig and I am a 36 year old bachelor who was

> diagnosed with type 1 diabtes 24 years ago. I started using an

> insulin pump about a year ago. Being that I travel with my job

(and

> am often on the go), it has been a very positive experience. I

think

> the idea of a forum like this one is a great way to share

> experiences and ask questions.

> Thanks for having me,

> Craig

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Guest guest

Hey ,

I travel just within the US, and mostly in the midwest, but it all

depends sometimes. China, huh? Well that's quite a trip! I don't

travel much out of the country, but I have been to Australia. I take

cruises, but that's usually to Mexico or places warm, and it doesn't

even seem like places that are much different from here.

Craig

> > Thought I would stop and introduce myself and say thanks for the

> > invite. My name is Craig and I am a 36 year old bachelor who was

> > diagnosed with type 1 diabtes 24 years ago. I started using an

> > insulin pump about a year ago. Being that I travel with my job

> (and

> > am often on the go), it has been a very positive experience. I

> think

> > the idea of a forum like this one is a great way to share

> > experiences and ask questions.

> > Thanks for having me,

> > Craig

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