cheating?

[Guest guest]

Actually, that is a pretty standard cost for ABA schools. Anywhere

from $50,000 to $70,000 is the norm, depending on the cost of living

in your area. For that we get 6 hours of one-on-one therapy 5 days a

week, 2 PhDs, a masters degree BCBS, speech therapy, and

occupational therapy, and 5 hours of an ABA-trained aide with social

skill support in his typical preschool setting.

It's an excellent education, and my son is doing very well with it.

By the time I accumulated all those different degrees myself, my son

would be an adult. He needs it now. I don't have luxury of time to

go back to school and get educated in all those specialty areas fast

enough to teach him myself. It would be nice if I had what he

needed, but I have an MBA, and the best thing that I can do for him

now is to earn as much money as I can to pay for trained experts to

educate him. His school is wonderful, and I couldn't ask for

anything better for him. I'm happy to pay the price - and believe

me, nobody at the school is getting rich. Even the director drives

an old car and lives in a modest house. It just really costs that

much to deliver this quality education for autistic children.

What keeps me going is several support groups and being able to talk

to other moms, like here. At least there are some people who

understand what we're going through. We have an ARC support group,

but the ARC doesn't provide respite care. At most of the support

groups I attend though, there is childcare provided, and so at least

there my son can be safely cared for and I can have an hour or two

free to talk to other moms. I take my breaks where I can get them.

Yesterday I drove 2 hours just to go to a biomed support group where

there was childcare. It was heaven!

We have thought about moving, and it continues to be an option,

especially as I look for new jobs. But my husband now has, at long

last, a wonderful job that provides a lot of flexibility - he is

able to work from home when needed and help with driving my son to

therapy, and that's difficult to find. Plus, he's an attorney,

trained and licensed in Virginia, so it would be hard for him to

move his practice to another state.

We probably should consider enzymes. The ingredients and his

allergies make it difficult to find one that's safe ... never mind

one that's also SCD legal!

Suzanne

> > > " Convenience food " deserves a better name. How about " saving

> mommy

> > > from the loony bin " food?

> > >

> > > Off to cook,

> > > Suzanne

> > >

> > Suzanne,

> > I am going to just run the idea by you once more of hiring

someone

> or enlisting a friend

> > for a day to prepare food in advance that can be portion packed

in

> Ziploc type containers

> > and frozen.

> >

> > Assuming there was more convenience food, there couldn't be

enough

> to address all your

> > needs. A helper can make your favorite SCD recipes and baked

goods

> that freeze well.

> >

> > Spending hours cooking must be daunting for you under the

> circumstances. If you find the

> > diet is working, it will get easier and be worth it.

> >

> > I don';t sleep well and sympathize with what a nightmare to also

> have a husband and

> > children to look after that need plenty of extra attention.

> >

> > Carol F.

> > SCD, 6 years celiac

> >

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

Actually, that is a pretty standard cost for ABA schools. Anywhere

from $50,000 to $70,000 is the norm, depending on the cost of living

in your area. For that we get 6 hours of one-on-one therapy 5 days a

week, 2 PhDs, a masters degree BCBS, speech therapy, and

occupational therapy, and 5 hours of an ABA-trained aide with social

skill support in his typical preschool setting.

It's an excellent education, and my son is doing very well with it.

By the time I accumulated all those different degrees myself, my son

would be an adult. He needs it now. I don't have luxury of time to

go back to school and get educated in all those specialty areas fast

enough to teach him myself. It would be nice if I had what he

needed, but I have an MBA, and the best thing that I can do for him

now is to earn as much money as I can to pay for trained experts to

educate him. His school is wonderful, and I couldn't ask for

anything better for him. I'm happy to pay the price - and believe

me, nobody at the school is getting rich. Even the director drives

an old car and lives in a modest house. It just really costs that

much to deliver this quality education for autistic children.

What keeps me going is several support groups and being able to talk

to other moms, like here. At least there are some people who

understand what we're going through. We have an ARC support group,

but the ARC doesn't provide respite care. At most of the support

groups I attend though, there is childcare provided, and so at least

there my son can be safely cared for and I can have an hour or two

free to talk to other moms. I take my breaks where I can get them.

Yesterday I drove 2 hours just to go to a biomed support group where

there was childcare. It was heaven!

We have thought about moving, and it continues to be an option,

especially as I look for new jobs. But my husband now has, at long

last, a wonderful job that provides a lot of flexibility - he is

able to work from home when needed and help with driving my son to

therapy, and that's difficult to find. Plus, he's an attorney,

trained and licensed in Virginia, so it would be hard for him to

move his practice to another state.

We probably should consider enzymes. The ingredients and his

allergies make it difficult to find one that's safe ... never mind

one that's also SCD legal!

Suzanne

> > > " Convenience food " deserves a better name. How about " saving

> mommy

> > > from the loony bin " food?

> > >

> > > Off to cook,

> > > Suzanne

> > >

> > Suzanne,

> > I am going to just run the idea by you once more of hiring

someone

> or enlisting a friend

> > for a day to prepare food in advance that can be portion packed

in

> Ziploc type containers

> > and frozen.

> >

> > Assuming there was more convenience food, there couldn't be

enough

> to address all your

> > needs. A helper can make your favorite SCD recipes and baked

goods

> that freeze well.

> >

> > Spending hours cooking must be daunting for you under the

> circumstances. If you find the

> > diet is working, it will get easier and be worth it.

> >

> > I don';t sleep well and sympathize with what a nightmare to also

> have a husband and

> > children to look after that need plenty of extra attention.

> >

> > Carol F.

> > SCD, 6 years celiac

> >

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

{{{Suzanne}}} I don't have any suggestions for you, just wanted to

say, i hear ya!! I was personally quite offended by the suggestion

that we parents should whine less and cook more. I am a single mom

with a spinal cord injury, trying to balance the ongoing cooking for

SCD with the challanges of raising a young child with autism and CP,

and the daily rigors of the therapy etc that that entails. I don't

complain about about the task, but would it be helpful to be able to

buy applesauce once in a while, you bet! I would hope that we can

support one another here, without the judgements, and realize that we

all have different situations, but that we are all doing our best.

Cindy, IBD,SCD 10 months

Brady 5, ASD, CP, SCD 10 months

[Guest guest]

{{{Suzanne}}} I don't have any suggestions for you, just wanted to

say, i hear ya!! I was personally quite offended by the suggestion

that we parents should whine less and cook more. I am a single mom

with a spinal cord injury, trying to balance the ongoing cooking for

SCD with the challanges of raising a young child with autism and CP,

and the daily rigors of the therapy etc that that entails. I don't

complain about about the task, but would it be helpful to be able to

buy applesauce once in a while, you bet! I would hope that we can

support one another here, without the judgements, and realize that we

all have different situations, but that we are all doing our best.

Cindy, IBD,SCD 10 months

Brady 5, ASD, CP, SCD 10 months

[Guest guest]

{{{Suzanne}}} I don't have any suggestions for you, just wanted to

say, i hear ya!! I was personally quite offended by the suggestion

that we parents should whine less and cook more. I am a single mom

with a spinal cord injury, trying to balance the ongoing cooking for

SCD with the challanges of raising a young child with autism and CP,

and the daily rigors of the therapy etc that that entails. I don't

complain about about the task, but would it be helpful to be able to

buy applesauce once in a while, you bet! I would hope that we can

support one another here, without the judgements, and realize that we

all have different situations, but that we are all doing our best.

Cindy, IBD,SCD 10 months

Brady 5, ASD, CP, SCD 10 months

[Guest guest]

Let's not get into ABA bashing here, or telling parents they should

choose one therapy over another. I really don't want to get into the

ABA vs. Biomed/diet debate. For most of our kids, it's a

combination of approaches, not just one thing, that helps them.

Keep in mind that ABA is the ONE therapy that has absolutely been

scientifically proven (in study after study) to remediate autism.

That's something no other therapy, including SCD, can claim.

Yesterday I went to an NAA meeting and several of the parents there

were doing SCD. ALL of them were also providing ABA for their

children. Most parents I know do both biomed and therapy. For us, we

see that our kids need the biomed to address the myriad health

problems that contribute to their ASD, but biomed alone won't teach

the skills they need. Biomed won't teach them to talk, as it's doing

for my son.

If the schools would provide these therapies, as they're legally

required to do, and if insurance companies would pay for biomed

treatments then families like ours wouldn't have to go bankrupt.

There's where we could be putting our efforts, not fruitlessly

wasting our breaths arguing with each other over whether families

should choose biomed OR therapy.

Suzanne

> Summer I was afraid to speak up but you did it for me. ABA

although not to be discounted,

> is behavioral training and does not address the cause (or a

suspected cause) of the

> problem, Last year I cried as I watched a documentary on a major

network about a family

> that went bankrupt and the parents divorced because all their

money went to ABA. My

> objection was they never heard of or tried SCD. I tried to contact

them but never got a

> response.

>

> A one month SCD trial might have given them positive results and

hopes for the future.

> Worst of all the ABA rewards were candy and cookies.

>

> Carol F.

> SCD 6 years, celiac

>

[Guest guest]

Let's not get into ABA bashing here, or telling parents they should

choose one therapy over another. I really don't want to get into the

ABA vs. Biomed/diet debate. For most of our kids, it's a

combination of approaches, not just one thing, that helps them.

Keep in mind that ABA is the ONE therapy that has absolutely been

scientifically proven (in study after study) to remediate autism.

That's something no other therapy, including SCD, can claim.

Yesterday I went to an NAA meeting and several of the parents there

were doing SCD. ALL of them were also providing ABA for their

children. Most parents I know do both biomed and therapy. For us, we

see that our kids need the biomed to address the myriad health

problems that contribute to their ASD, but biomed alone won't teach

the skills they need. Biomed won't teach them to talk, as it's doing

for my son.

If the schools would provide these therapies, as they're legally

required to do, and if insurance companies would pay for biomed

treatments then families like ours wouldn't have to go bankrupt.

There's where we could be putting our efforts, not fruitlessly

wasting our breaths arguing with each other over whether families

should choose biomed OR therapy.

Suzanne

> Summer I was afraid to speak up but you did it for me. ABA

although not to be discounted,

> is behavioral training and does not address the cause (or a

suspected cause) of the

> problem, Last year I cried as I watched a documentary on a major

network about a family

> that went bankrupt and the parents divorced because all their

money went to ABA. My

> objection was they never heard of or tried SCD. I tried to contact

them but never got a

> response.

>

> A one month SCD trial might have given them positive results and

hopes for the future.

> Worst of all the ABA rewards were candy and cookies.

>

> Carol F.

> SCD 6 years, celiac

>

[Guest guest]

Thanks Marina. :-)

None of us have it easy ... the hardest part sometimes is the

choices and knowing if you're doing the right thing. ABA is teaching

my son to talk ... it's working, and it's amazing to watch his

language unfold. SCD is giving him the ability to learn, without

that, the ABA wouldn't make much progress. For us, it's not one or

the other, it's both in combination.

Suzanne

:

>

> All of us who have special needs children have to make choices

among a myriad of educational and biomedical methods. I think it's

unfair to categorize any of these as bad choices -- the research

will show that there are some kids who are strong responders to just

about every therapy out there. So, it's just as legitimate for

Suzanne to fund an ABA program as it is to try SCD, or GFCF, or

Floortime, or enzymes, or Pivotal Response Training, or whatever.

Speaking personally as a mom of two ASD kids, I think it's not fair

to say " you're wasting your time doing ABA, you should just be doing

SCD. " (By the way, I don't do ABA with mine.) Only time and

experimentation will show which therapy or diet or supplement will

make a difference for a particular child. I'd say most parents

spend a lot of time researching the alternatives out there, and make

the choices that make sense for their families -- and they should be

respected for that.

>

[Guest guest]

Thanks Marina. :-)

None of us have it easy ... the hardest part sometimes is the

choices and knowing if you're doing the right thing. ABA is teaching

my son to talk ... it's working, and it's amazing to watch his

language unfold. SCD is giving him the ability to learn, without

that, the ABA wouldn't make much progress. For us, it's not one or

the other, it's both in combination.

Suzanne

:

>

> All of us who have special needs children have to make choices

among a myriad of educational and biomedical methods. I think it's

unfair to categorize any of these as bad choices -- the research

will show that there are some kids who are strong responders to just

about every therapy out there. So, it's just as legitimate for

Suzanne to fund an ABA program as it is to try SCD, or GFCF, or

Floortime, or enzymes, or Pivotal Response Training, or whatever.

Speaking personally as a mom of two ASD kids, I think it's not fair

to say " you're wasting your time doing ABA, you should just be doing

SCD. " (By the way, I don't do ABA with mine.) Only time and

experimentation will show which therapy or diet or supplement will

make a difference for a particular child. I'd say most parents

spend a lot of time researching the alternatives out there, and make

the choices that make sense for their families -- and they should be

respected for that.

>

[Guest guest]

Thanks Marina. :-)

None of us have it easy ... the hardest part sometimes is the

choices and knowing if you're doing the right thing. ABA is teaching

my son to talk ... it's working, and it's amazing to watch his

language unfold. SCD is giving him the ability to learn, without

that, the ABA wouldn't make much progress. For us, it's not one or

the other, it's both in combination.

Suzanne

:

>

> All of us who have special needs children have to make choices

among a myriad of educational and biomedical methods. I think it's

unfair to categorize any of these as bad choices -- the research

will show that there are some kids who are strong responders to just

about every therapy out there. So, it's just as legitimate for

Suzanne to fund an ABA program as it is to try SCD, or GFCF, or

Floortime, or enzymes, or Pivotal Response Training, or whatever.

Speaking personally as a mom of two ASD kids, I think it's not fair

to say " you're wasting your time doing ABA, you should just be doing

SCD. " (By the way, I don't do ABA with mine.) Only time and

experimentation will show which therapy or diet or supplement will

make a difference for a particular child. I'd say most parents

spend a lot of time researching the alternatives out there, and make

the choices that make sense for their families -- and they should be

respected for that.

>

[Guest guest]

>

> We use the microwave a lot, which helps shorten veggie cooking

> time.

I gave mine away, I wasn't happy with the way it jiggled the molecules from the

inside.

I also learned many years ago that vegetables that have been cooked and

refrigerated lose

nutrients. I realize with your schedule and burdens this stuff is secondary.

Also all the

suggestions I gave do not revolve around nuts.

Carol F.

SCD 6 years, celiac

[Guest guest]

>

> We use the microwave a lot, which helps shorten veggie cooking

> time.

I gave mine away, I wasn't happy with the way it jiggled the molecules from the

inside.

I also learned many years ago that vegetables that have been cooked and

refrigerated lose

nutrients. I realize with your schedule and burdens this stuff is secondary.

Also all the

suggestions I gave do not revolve around nuts.

Carol F.

SCD 6 years, celiac

[Guest guest]

>

> {{{Suzanne}}} I don't have any suggestions for you, just wanted to

> say, i hear ya!! I was personally quite offended by the suggestion

> that we parents should whine less and cook more.

Who said that?

My suggestion was to address the suspected internal cause. All the training in

the world

doesn't eliminate gut pain. I said try SCD, not DO ONLY SCD. I also never

accused anyone

of whining so I am going to assume you are referring to someone else.

Autism parents simply can't have a normal life and have a perfect right to feel

frustrated

and cheated and cursed. Fortunately in the past five years SCD was found to help

and fill

in another piece to the puzzle.

Again I don't know who used the word " whining, " but be clear it wasn't I. When

my puppy

is sick for two days I am frantic and on edge the whole time and sure can

relate!.

We have to cook to eat. Actually a lot of raw foodists say their food takes

longer to prepare

than cooking. How many of us existed mostly on convenience food before? How did

it

help your health? Time is money but health means more. I tried to make a few

suggestions for some quick SCD foods. Not all can be made quickly that is

obvious.

Commiting to major lifestyles often requires a gigantic effort but when you

succeed and

look back it sure was worth it.

I just came from the supermarket with salad greens, chicken breasts, peppers,

tangerines,

berries, cheese, honey, prosciutto, salmon, goat's milk ginger, pears, blanched

almonds

and a few dates. The woman in front had white bread, Mac 'n Cheese boxes,

cartons of

juice drinks, donuts, Minute Rice and breaded fish sticks. One wonders what she

will do

with the time she is going to save.

carol F.

[Guest guest]

>

> {{{Suzanne}}} I don't have any suggestions for you, just wanted to

> say, i hear ya!! I was personally quite offended by the suggestion

> that we parents should whine less and cook more.

Who said that?

My suggestion was to address the suspected internal cause. All the training in

the world

doesn't eliminate gut pain. I said try SCD, not DO ONLY SCD. I also never

accused anyone

of whining so I am going to assume you are referring to someone else.

Autism parents simply can't have a normal life and have a perfect right to feel

frustrated

and cheated and cursed. Fortunately in the past five years SCD was found to help

and fill

in another piece to the puzzle.

Again I don't know who used the word " whining, " but be clear it wasn't I. When

my puppy

is sick for two days I am frantic and on edge the whole time and sure can

relate!.

We have to cook to eat. Actually a lot of raw foodists say their food takes

longer to prepare

than cooking. How many of us existed mostly on convenience food before? How did

it

help your health? Time is money but health means more. I tried to make a few

suggestions for some quick SCD foods. Not all can be made quickly that is

obvious.

Commiting to major lifestyles often requires a gigantic effort but when you

succeed and

look back it sure was worth it.

I just came from the supermarket with salad greens, chicken breasts, peppers,

tangerines,

berries, cheese, honey, prosciutto, salmon, goat's milk ginger, pears, blanched

almonds

and a few dates. The woman in front had white bread, Mac 'n Cheese boxes,

cartons of

juice drinks, donuts, Minute Rice and breaded fish sticks. One wonders what she

will do

with the time she is going to save.

carol F.

[Guest guest]

Not once did I, or anyone else's post I read bash ABA. Not once did I say choose

one therapy over another. My comment was about the price and unfortunate lack or

resources. I share things that work for my family. Where have I ever picked

apart therapies? I do whole heartedly mention that my son's language had

non-existant progress with therapies, and after my sons brains cleared up being

on SCD, and use of digestive enzymes (it is theorized and some reseach has shown

a correlation between unbroken peptides affecting the nervous system) they were

able to speak spontaneously. I homeschool them, and work on speech therapy with

them myself. It takes time for the healing on SCD, and I am grateful for it. The

first year, especially the first 6 months are the roughest. Life is different

for us with children that have autism.

In discussion, I naturally question everything. In sharing and hearing

different viewpoints, different paths people take, this is all important. People

do take different paths. There is not one doctor or professional I do not

question throughly, from a school teacher to a therapist, a car mechanic to a

surgeon. It is not bashing to question what one is doing. I have done this

myself, every step of the way.

It is unfortunate where you live it does cost so much. I only mention an idea,

living by a huge science university, like OHSU, and perhaps this is true for the

other ones too in other areas, they offer ABA and a whole list of therapies

through the school system. In other words, what was offered to us, we started

public school, their therapists came and tested us, and offered their services

directly for these items, so they can compile data. Directly through the

University on the campus!

There is no Biomed/Diet Debate. That is somewhere else. When I post what works

for us, I only do so to share. I read with rapture what others who have

recovering kids are doing. I question what they do, I question what I do, and if

something seems necessary to add, I add it to our protocol.

Below, besides resource talk, a show was mentionned that highlights our

realities only too closely, and it is not right. That is not ABA bashing, when

parents in this society have no societal and financial support for their special

needs kids. This is society bashing. lol My own children are recovering from

SCD, as well as this mom here from some pretty vicious autoimmune problems. We

owe alot to SCD, and things like digestive enzymes.

Summer

Suzanne szmidford@...> wrote:

Let's not get into ABA bashing here, or telling parents they should

choose one therapy over another. I really don't want to get into the

ABA vs. Biomed/diet debate. For most of our kids, it's a

combination of approaches, not just one thing, that helps them.

Keep in mind that ABA is the ONE therapy that has absolutely been

scientifically proven (in study after study) to remediate autism.

That's something no other therapy, including SCD, can claim.

Yesterday I went to an NAA meeting and several of the parents there

were doing SCD. ALL of them were also providing ABA for their

children. Most parents I know do both biomed and therapy. For us, we

see that our kids need the biomed to address the myriad health

problems that contribute to their ASD, but biomed alone won't teach

the skills they need. Biomed won't teach them to talk, as it's doing

for my son.

If the schools would provide these therapies, as they're legally

required to do, and if insurance companies would pay for biomed

treatments then families like ours wouldn't have to go bankrupt.

There's where we could be putting our efforts, not fruitlessly

wasting our breaths arguing with each other over whether families

should choose biomed OR therapy.

Suzanne

> Summer I was afraid to speak up but you did it for me. ABA

although not to be discounted,

> is behavioral training and does not address the cause (or a

suspected cause) of the

> problem, Last year I cried as I watched a documentary on a major

network about a family

> that went bankrupt and the parents divorced because all their

money went to ABA. My

> objection was they never heard of or tried SCD. I tried to contact

them but never got a

> response.

>

> A one month SCD trial might have given them positive results and

hopes for the future.

> Worst of all the ABA rewards were candy and cookies.

>

> Carol F.

> SCD 6 years, celiac

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Not once did I, or anyone else's post I read bash ABA. Not once did I say choose

one therapy over another. My comment was about the price and unfortunate lack or

resources. I share things that work for my family. Where have I ever picked

apart therapies? I do whole heartedly mention that my son's language had

non-existant progress with therapies, and after my sons brains cleared up being

on SCD, and use of digestive enzymes (it is theorized and some reseach has shown

a correlation between unbroken peptides affecting the nervous system) they were

able to speak spontaneously. I homeschool them, and work on speech therapy with

them myself. It takes time for the healing on SCD, and I am grateful for it. The

first year, especially the first 6 months are the roughest. Life is different

for us with children that have autism.

In discussion, I naturally question everything. In sharing and hearing

different viewpoints, different paths people take, this is all important. People

do take different paths. There is not one doctor or professional I do not

question throughly, from a school teacher to a therapist, a car mechanic to a

surgeon. It is not bashing to question what one is doing. I have done this

myself, every step of the way.

It is unfortunate where you live it does cost so much. I only mention an idea,

living by a huge science university, like OHSU, and perhaps this is true for the

other ones too in other areas, they offer ABA and a whole list of therapies

through the school system. In other words, what was offered to us, we started

public school, their therapists came and tested us, and offered their services

directly for these items, so they can compile data. Directly through the

University on the campus!

There is no Biomed/Diet Debate. That is somewhere else. When I post what works

for us, I only do so to share. I read with rapture what others who have

recovering kids are doing. I question what they do, I question what I do, and if

something seems necessary to add, I add it to our protocol.

Below, besides resource talk, a show was mentionned that highlights our

realities only too closely, and it is not right. That is not ABA bashing, when

parents in this society have no societal and financial support for their special

needs kids. This is society bashing. lol My own children are recovering from

SCD, as well as this mom here from some pretty vicious autoimmune problems. We

owe alot to SCD, and things like digestive enzymes.

Summer

Suzanne szmidford@...> wrote:

Let's not get into ABA bashing here, or telling parents they should

choose one therapy over another. I really don't want to get into the

ABA vs. Biomed/diet debate. For most of our kids, it's a

combination of approaches, not just one thing, that helps them.

Keep in mind that ABA is the ONE therapy that has absolutely been

scientifically proven (in study after study) to remediate autism.

That's something no other therapy, including SCD, can claim.

Yesterday I went to an NAA meeting and several of the parents there

were doing SCD. ALL of them were also providing ABA for their

children. Most parents I know do both biomed and therapy. For us, we

see that our kids need the biomed to address the myriad health

problems that contribute to their ASD, but biomed alone won't teach

the skills they need. Biomed won't teach them to talk, as it's doing

for my son.

If the schools would provide these therapies, as they're legally

required to do, and if insurance companies would pay for biomed

treatments then families like ours wouldn't have to go bankrupt.

There's where we could be putting our efforts, not fruitlessly

wasting our breaths arguing with each other over whether families

should choose biomed OR therapy.

Suzanne

> Summer I was afraid to speak up but you did it for me. ABA

although not to be discounted,

> is behavioral training and does not address the cause (or a

suspected cause) of the

> problem, Last year I cried as I watched a documentary on a major

network about a family

> that went bankrupt and the parents divorced because all their

money went to ABA. My

> objection was they never heard of or tried SCD. I tried to contact

them but never got a

> response.

>

> A one month SCD trial might have given them positive results and

hopes for the future.

> Worst of all the ABA rewards were candy and cookies.

>

> Carol F.

> SCD 6 years, celiac

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Hi Suzanne;

I agree with you wholeheartedly - it is a combination of approaches that will

recover our ASD children. And yes, I too spend over $40,000 a year for

different treatments for my child (including ABA) - you're right, it is the

norm. You're not alone... you're doing a great job Mommy!!

Kim :-)

[Guest guest]

Hi Suzanne;

I agree with you wholeheartedly - it is a combination of approaches that will

recover our ASD children. And yes, I too spend over $40,000 a year for

different treatments for my child (including ABA) - you're right, it is the

norm. You're not alone... you're doing a great job Mommy!!

Kim :-)

[Guest guest]

Hi Suzanne;

I agree with you wholeheartedly - it is a combination of approaches that will

recover our ASD children. And yes, I too spend over $40,000 a year for

different treatments for my child (including ABA) - you're right, it is the

norm. You're not alone... you're doing a great job Mommy!!

Kim :-)

[Guest guest]

Please consider looking into RDI instead of ABA. You could be the one to

teach your child what they were unable to learn prior to 2 years of age - to

learn from your example. Instead of rushing to make our children functional

and appear typical we could teach our children flexible thinking and problem

solving through RDI at the low cost of about $250.00 a month to consult with

an RDI consultant. www. rdiconnect.com

Convinced that RDI and SCD can truly make my child " typical " again

Re: cheating?

Boy, it sure would be great if that were an option. We could use the

help. Hiring someone is out of the question. We're paying $60,000 a

year for Tom's ABA therapy, and I just lost my job. Our old friends

don't understand our life AT ALL and we rarely see them. We've asked

for help from our family and they just think we're complaining. Our

new friends, the ones who get it, are parents of autistic kids of

their own, and of course they already have their hands full. We live

in a state that provides no respite care funding.

I wish it were easy to get help, but we sure have tried in the past

and we've never found any.

Suzanne

> > " Convenience food " deserves a better name. How about " saving

mommy

> > from the loony bin " food?

> >

> > Off to cook,

> > Suzanne

> >

> Suzanne,

> I am going to just run the idea by you once more of hiring someone

or enlisting a friend

> for a day to prepare food in advance that can be portion packed in

Ziploc type containers

> and frozen.

>

> Assuming there was more convenience food, there couldn't be enough

to address all your

> needs. A helper can make your favorite SCD recipes and baked goods

that freeze well.

>

> Spending hours cooking must be daunting for you under the

circumstances. If you find the

> diet is working, it will get easier and be worth it.

>

> I don';t sleep well and sympathize with what a nightmare to also

have a husband and

> children to look after that need plenty of extra attention.

>

> Carol F.

> SCD, 6 years celiac

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Please consider looking into RDI instead of ABA. You could be the one to

teach your child what they were unable to learn prior to 2 years of age - to

learn from your example. Instead of rushing to make our children functional

and appear typical we could teach our children flexible thinking and problem

solving through RDI at the low cost of about $250.00 a month to consult with

an RDI consultant. www. rdiconnect.com

Convinced that RDI and SCD can truly make my child " typical " again

Re: cheating?

Boy, it sure would be great if that were an option. We could use the

help. Hiring someone is out of the question. We're paying $60,000 a

year for Tom's ABA therapy, and I just lost my job. Our old friends

don't understand our life AT ALL and we rarely see them. We've asked

for help from our family and they just think we're complaining. Our

new friends, the ones who get it, are parents of autistic kids of

their own, and of course they already have their hands full. We live

in a state that provides no respite care funding.

I wish it were easy to get help, but we sure have tried in the past

and we've never found any.

Suzanne

> > " Convenience food " deserves a better name. How about " saving

mommy

> > from the loony bin " food?

> >

> > Off to cook,

> > Suzanne

> >

> Suzanne,

> I am going to just run the idea by you once more of hiring someone

or enlisting a friend

> for a day to prepare food in advance that can be portion packed in

Ziploc type containers

> and frozen.

>

> Assuming there was more convenience food, there couldn't be enough

to address all your

> needs. A helper can make your favorite SCD recipes and baked goods

that freeze well.

>

> Spending hours cooking must be daunting for you under the

circumstances. If you find the

> diet is working, it will get easier and be worth it.

>

> I don';t sleep well and sympathize with what a nightmare to also

have a husband and

> children to look after that need plenty of extra attention.

>

> Carol F.

> SCD, 6 years celiac

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Please consider looking into RDI instead of ABA. You could be the one to

teach your child what they were unable to learn prior to 2 years of age - to

learn from your example. Instead of rushing to make our children functional

and appear typical we could teach our children flexible thinking and problem

solving through RDI at the low cost of about $250.00 a month to consult with

an RDI consultant. www. rdiconnect.com

Convinced that RDI and SCD can truly make my child " typical " again

Re: cheating?

Boy, it sure would be great if that were an option. We could use the

help. Hiring someone is out of the question. We're paying $60,000 a

year for Tom's ABA therapy, and I just lost my job. Our old friends

don't understand our life AT ALL and we rarely see them. We've asked

for help from our family and they just think we're complaining. Our

new friends, the ones who get it, are parents of autistic kids of

their own, and of course they already have their hands full. We live

in a state that provides no respite care funding.

I wish it were easy to get help, but we sure have tried in the past

and we've never found any.

Suzanne

> > " Convenience food " deserves a better name. How about " saving

mommy

> > from the loony bin " food?

> >

> > Off to cook,

> > Suzanne

> >

> Suzanne,

> I am going to just run the idea by you once more of hiring someone

or enlisting a friend

> for a day to prepare food in advance that can be portion packed in

Ziploc type containers

> and frozen.

>

> Assuming there was more convenience food, there couldn't be enough

to address all your

> needs. A helper can make your favorite SCD recipes and baked goods

that freeze well.

>

> Spending hours cooking must be daunting for you under the

circumstances. If you find the

> diet is working, it will get easier and be worth it.

>

> I don';t sleep well and sympathize with what a nightmare to also

have a husband and

> children to look after that need plenty of extra attention.

>

> Carol F.

> SCD, 6 years celiac

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com