Re: (unknown)

[Guest guest]

My CT scan was most miserable experience in my life. Way more invasive

and humiliating than my colonoscopy...

I had to clean out ahead of time, drink this crap, and then he had to

give me an enema and hold it.. Once I got off the table

literally shit all over the floor and myself, and then had to leave that

room, wrapped in a shitty sheet go across the hall

to the bathroom to clean up and get dressed... Colonoscopy had to clean

out, and and drink one little bottle of stuff to make me clean out...

Was not near as troublesome. LOL... Thankfully my next CT scan is for my

back so don't have to go through any prep.

Jolene

Retirement2004@... wrote:

> A question please.

>

> Why does one have a colonoscopy and have to drink the awful solution.

> Would it be appropriate to have a PET and/or CT scan which is a lot

> less painful. However, I do want to do what is best to determine if

> there is a cancer. Also, would blood work show the cancer.

>

> Thank you - Bonnie

>

>

[Guest guest]

I did not find a colonoscopy painful at all. Actually the cleaning out stuff did

not taste that bad just the idea of it I think. You are given a IV and with me

it just relaxes me. Some people go to sleep with it and don't even know they had

a colonoscopy. I watch mine on the monitor and talk to the Dr while he is doing

it:)

With the CT scan you also need to drink some stuff which is not a laxative and

have a IV with the dye.

A Pet scan you are given radioactive stuff through a IV and have to sit for it

to go through your system then spend a hour getting scanned inside a tube. The

CT is more expensive then the colonoscopy and the PET Scan is extremely

expensive and I doubt any insurance company would pay for it without a good

reason. They probably would not pay for a CT without a good reason. I personally

feel the best way to detect colon cancer or to prevent it by removing any polyps

found is with the colonoscopy. They have a better view of your colon then

anything else. With your CT or PET scan they would not be able to remove any

polyps which could be cancer or precancer. If they find any and remove it you

won't feel a thing or maybe a slight pinch. The thought of having it done is

worse then the actual procedure. Please get one done ASAP. I really did not have

any symptoms except occasional constipation I was not even mentioning to my Dr.

Thankfully one day I casually mentioned it and a colonosopy was ordered. It

saved my life as it caught it at stage 2. I have been scared silly of all these

tests but now had them all I worried for nothing.

Hil

(unknown)

A question please.

Why does one have a colonoscopy and have to drink the awful solution. Would

it be appropriate to have a PET and/or CT scan which is a lot less painful.

However, I do want to do what is best to determine if there is a cancer. Also,

would blood work show the cancer.

Thank you - Bonnie

[Guest guest]

I took the pills to clean out for the colonoscopy, it was great and easy. And

yes, the procedure itself is a breeze. A piece of cake. ~~Dianna

Hil hilsshop@...> wrote:I did not find a colonoscopy painful at

all. Actually the cleaning out stuff did not taste that bad just the idea of it

I think. You are given a IV and with me it just relaxes me. Some people go to

sleep with it and don't even know they had a colonoscopy. I watch mine on the

monitor and talk to the Dr while he is doing it:)

With the CT scan you also need to drink some stuff which is not a laxative and

have a IV with the dye.

A Pet scan you are given radioactive stuff through a IV and have to sit for it

to go through your system then spend a hour getting scanned inside a tube. The

CT is more expensive then the colonoscopy and the PET Scan is extremely

expensive and I doubt any insurance company would pay for it without a good

reason. They probably would not pay for a CT without a good reason. I personally

feel the best way to detect colon cancer or to prevent it by removing any polyps

found is with the colonoscopy. They have a better view of your colon then

anything else. With your CT or PET scan they would not be able to remove any

polyps which could be cancer or precancer. If they find any and remove it you

won't feel a thing or maybe a slight pinch. The thought of having it done is

worse then the actual procedure. Please get one done ASAP. I really did not have

any symptoms except occasional constipation I was not even mentioning to my Dr.

Thankfully one day I casually mentioned it and a colonosopy was

ordered. It saved my life as it caught it at stage 2. I have been scared silly

of all these tests but now had them all I worried for nothing.

Hil

(unknown)

A question please.

Why does one have a colonoscopy and have to drink the awful solution. Would

it be appropriate to have a PET and/or CT scan which is a lot less painful.

However, I do want to do what is best to determine if there is a cancer. Also,

would blood work show the cancer.

Thank you - Bonnie

[Guest guest]

Ditto, I just had someone tell me that rather than the gallon of liquid I had to

drink, they had 3 drinks on Thurs and 3 drinks on Friday followed by the

colonoscopy Fri afternoon. Was also told that another person had pills only,

like Dianna. You don't even know what is going on - please be safe rather than

sorry.....donna

Dianna Brendle jasonsmom285@...> wrote:I took the pills to clean out for

the colonoscopy, it was great and easy. And yes, the procedure itself is a

breeze. A piece of cake. ~~Dianna

Hil hilsshop@...> wrote:I did not find a colonoscopy painful at

all. Actually the cleaning out stuff did not taste that bad just the idea of it

I think. You are given a IV and with me it just relaxes me. Some people go to

sleep with it and don't even know they had a colonoscopy. I watch mine on the

monitor and talk to the Dr while he is doing it:)

With the CT scan you also need to drink some stuff which is not a laxative and

have a IV with the dye.

A Pet scan you are given radioactive stuff through a IV and have to sit for it

to go through your system then spend a hour getting scanned inside a tube. The

CT is more expensive then the colonoscopy and the PET Scan is extremely

expensive and I doubt any insurance company would pay for it without a good

reason. They probably would not pay for a CT without a good reason. I personally

feel the best way to detect colon cancer or to prevent it by removing any polyps

found is with the colonoscopy. They have a better view of your colon then

anything else. With your CT or PET scan they would not be able to remove any

polyps which could be cancer or precancer. If they find any and remove it you

won't feel a thing or maybe a slight pinch. The thought of having it done is

worse then the actual procedure. Please get one done ASAP. I really did not have

any symptoms except occasional constipation I was not even mentioning to my Dr.

Thankfully one day I casually mentioned it and a colonosopy was

ordered. It saved my life as it caught it at stage 2. I have been scared silly

of all these tests but now had them all I worried for nothing.

Hil

(unknown)

A question please.

Why does one have a colonoscopy and have to drink the awful solution. Would

it be appropriate to have a PET and/or CT scan which is a lot less painful.

However, I do want to do what is best to determine if there is a cancer. Also,

would blood work show the cancer.

Thank you - Bonnie

[Guest guest]

what kind of pills was it? You didn't have to drink a disgusting liquid?

Nonnie

Re: (unknown)

I took the pills to clean out for the colonoscopy, it was great and easy.

And yes, the procedure itself is a breeze. A piece of cake. ~~Dianna

Hil hilsshop@...> wrote:I did not find a colonoscopy painful

at all. Actually the cleaning out stuff did not taste that bad just the idea

of it I think. You are given a IV and with me it just relaxes me. Some

people go to sleep with it and don't even know they had a colonoscopy. I

watch mine on the monitor and talk to the Dr while he is doing it:)

With the CT scan you also need to drink some stuff which is not a laxative

and have a IV with the dye.

A Pet scan you are given radioactive stuff through a IV and have to sit for

it to go through your system then spend a hour getting scanned inside a

tube. The CT is more expensive then the colonoscopy and the PET Scan is

extremely expensive and I doubt any insurance company would pay for it

without a good reason. They probably would not pay for a CT without a good

reason. I personally feel the best way to detect colon cancer or to prevent

it by removing any polyps found is with the colonoscopy. They have a better

view of your colon then anything else. With your CT or PET scan they would

not be able to remove any polyps which could be cancer or precancer. If they

find any and remove it you won't feel a thing or maybe a slight pinch. The

thought of having it done is worse then the actual procedure. Please get one

done ASAP. I really did not have any symptoms except occasional constipation

I was not even mentioning to my Dr. Thankfully one day I casually mentioned

it and a colonosopy was

ordered. It saved my life as it caught it at stage 2. I have been scared

silly of all these tests but now had them all I worried for nothing.

Hil

(unknown)

A question please.

Why does one have a colonoscopy and have to drink the awful solution.

Would it be appropriate to have a PET and/or CT scan which is a lot less

painful. However, I do want to do what is best to determine if there is a

cancer. Also, would blood work show the cancer.

Thank you - Bonnie

[Guest guest]

Ingrid

Well are you the busy lady today... 80 bales of hay. whew! Makes me

tired just thinking about it.

Just cause you have a lung nodule doesn't mean they are doing anything

to affect your health.

They found two on my lungs (which one and where I don't know) but said

they are small and had

not changed any. First saw on xray then later on scan. Will scan again

in July -- mostly to see if it might be

connected to my back pain, but I don't think it is... My back still

hurts so will say something to my

primary doc when I go in for chemo tomorrow morning. Still bugs me...

and I forgot to buy the heating pad

yesterday. Knew I should have made a list before I went to store....

I am sure you will come through this surgery just fine... Is okay to

vent, no

one likes or wants to be restricted...

Jolene

>

> matter of fact. No shortness of breath or anything. I thought of that

> the whole time I was moving the hay. I am Praying so hard it is

> nothing. But have to go through the surgery to find out. And Of

> course the lay-up. Nurse told me I will not be allowed to lift

> anything over ten pounds for at least four to six weeks. Just wish

> this did not have to happen. Guess I am just venting here. Am Praying

> for all!!! Ingrid

>

[Guest guest]

Jolene, Why are they not doing anything about your lung nodules??

They are with my nodule because I have had a rise in my CEA. They

said to remove it now. If it is cancer then it is at a very treatable

stage. If it is nothing then we will be sure. It is 1cm. So below Pet

Scan resolution. Did not draw any gloucose to it. But they want to be

careful. I am so worried.

I hope yours is not connected to your back pain. I am Praying that

we all get though this. Ingrid

> Ingrid

> Well are you the busy lady today... 80 bales of hay. whew! Makes me

> tired just thinking about it.

> Just cause you have a lung nodule doesn't mean they are doing

anything

> to affect your health.

> They found two on my lungs (which one and where I don't know) but

said

> they are small and had

> not changed any. First saw on xray then later on scan. Will scan

again

> in July -- mostly to see if it might be

> connected to my back pain, but I don't think it is... My back still

> hurts so will say something to my

> primary doc when I go in for chemo tomorrow morning. Still bugs

me...

> and I forgot to buy the heating pad

> yesterday. Knew I should have made a list before I went to store....

> I am sure you will come through this surgery just fine... Is okay

to

> vent, no

> one likes or wants to be restricted...

> Jolene

>

> >

> > matter of fact. No shortness of breath or anything. I thought of

that

> > the whole time I was moving the hay. I am Praying so hard it is

> > nothing. But have to go through the surgery to find out. And Of

> > course the lay-up. Nurse told me I will not be allowed to lift

> > anything over ten pounds for at least four to six weeks. Just wish

> > this did not have to happen. Guess I am just venting here. Am

Praying

> > for all!!! Ingrid

> >

[Guest guest]

Dear ,

Very pretty picture of you! And the dog is adorable too. It sounds like you are doing great and your life is on the way to becoming a very successful young woman. I wish you well and good luck in your future endeavors. Luv, Debbienicole santiago-rolon wrote:

hi everyone. rose asked for an update before i made my grand exit so here it goes.December I am graduating from Towson University and am very excited. I have had my own apartment going on three years and am thoroughly am enjoying being 22. For the summer I am working at a record company in Manhattan and I love it! I am learning so much and have really made an impression on two of the partners there. They have brought me to meetings with the artists and photo shoots so I have really been getting the full experience there. The other thing that is cool is that , they know I'm only here for two months and offered me a full time after I graduate.For christmas I got a dog, he is absoloutely wonderful. His name is Capone, 10months old, Jack Terrier and a very distinct personality!! I included a picture of him and hope it comes

through.My love life...right now it is non-existant but I am happy with that. I have taken the role of the observer when it comes to guys as I have slowly come to understand that none of them should be taken seriously at this age!!My sarcoid, I have been in remission for two years now. I think it will be going on three soon , somehow I have managed to lose count. Also, I no longer take prednisone as of February and I feel better. I workout four days a week and make sure that no matter where or what or who that I make time for a nap. I was a serious jock in high school and I have recently picked up my vigorous track workouts again. I really missed it, desperately, and ever since the first time I had a sarc episode my drive has never been the same. I developed a huge mental block because it really knocked me on my ass as far as competing and getting recruited and all. But, the past is past and here I am, alive and kicking and

laughing all the way.I am very blessed to have found this group when I did and for all the wonderful people that are here. I wish everyone the best. You are in my thoughts.( I think I am going to forward the pictures of Capone and I seperately as I am having problems attatching them)~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Carrots, I am so proud to have known you "when." Don't forget us when you get rich and famous! You are more lovely than ever and Capone is a doll. Tia

Ramblin' Rose

Moderator>>Reply-To: Neurosarcoidosis >To: Neurosarcoidosis >Subject: (unknown)>Date: Thu, 21 Jul 2005 18:53:33 -0400>>hi everyone. rose asked for an update before i made my grand exit so here it>goes.>>December I am graduating from Towson University and am very excited. I have>had my own apartment going on three years and am thoroughly am enjoying>being 22. For the summer I am working at a record company in Manhattan and>I love it! I am learning so much and have really made an impression on two>of the partners there. They have brought me to meetings with the artists>and photo shoots so I have really been getting the full experience there.>The other thing that is cool is that , they know I'm only here for two>months and offered me a full time after I graduate.>For christmas I got a dog, he is absoloutely wonderful. His name is Capone,>10months old, Jack Terrier and a very distinct personality!! I>included a picture of him and hope it comes through.>My love life...right now it is non-existant but I am happy with that. I>have taken the role of the observer when it comes to guys as I have slowly>come to understand that none of them should be taken seriously at this age!!>My sarcoid, I have been in remission for two years now. I think it will be>going on three soon , somehow I have managed to lose count. Also, I no>longer take prednisone as of February and I feel better. I workout four days>a week and make sure that no matter where or what or who that I make time>for a nap. I was a serious jock in high school and I have recently picked>up my vigorous track workouts again. I really missed it, desperately, and>ever since the first time I had a sarc episode my drive has never been the>same. I developed a huge mental block because it really knocked me on my ass>as far as competing and getting recruited and all. But, the past is past and>here I am, alive and kicking and laughing all the way.> I am very blessed to have found this group when I did and for all the>wonderful people that are here. I wish everyone the best. You are in my>thoughts.>> >>( I think I am going to forward the pictures of Capone and I seperately as I>am having problems attatching them)>> Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

LOLJack Marshall wrote: Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots . This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals. Can't wait to see what tomorrow brings. Jack79/IPF - UIP/dx06/05 Maine Barbara McDIPF, Sept 08Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

[Guest guest]

LOLJack Marshall wrote: Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots . This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals. Can't wait to see what tomorrow brings. Jack79/IPF - UIP/dx06/05 Maine Barbara McDIPF, Sept 08Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

[Guest guest]

LOLJack Marshall wrote: Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots . This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals. Can't wait to see what tomorrow brings. Jack79/IPF - UIP/dx06/05 Maine Barbara McDIPF, Sept 08Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

[Guest guest]

Jack ... tomorrow means you have to get your tux cleaned and your snake skin boots shined up! lol

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

(unknown)

Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots

..

This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals.

Can't wait to see what tomorrow brings.

Jack79/IPF - UIP/dx06/05 Maine

[Guest guest]

Jack ... tomorrow means you have to get your tux cleaned and your snake skin boots shined up! lol

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

(unknown)

Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots

..

This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals.

Can't wait to see what tomorrow brings.

Jack79/IPF - UIP/dx06/05 Maine

[Guest guest]

Jack

the weather here in philadelphia is weird too

one day freezing, 2 days later warm and raining

what will tommorrow bring?

Pink Joyce IPF 3/06 Pennsylvania

Donate Life

Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots

..

This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals.

Can't wait to see what tomorrow brings.

Jack79/IPF - UIP/dx06/05 Maine

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

[Guest guest]

Jack

the weather here in philadelphia is weird too

one day freezing, 2 days later warm and raining

what will tommorrow bring?

Pink Joyce IPF 3/06 Pennsylvania

Donate Life

Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots

..

This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals.

Can't wait to see what tomorrow brings.

Jack79/IPF - UIP/dx06/05 Maine

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

[Guest guest]

Jack

the weather here in philadelphia is weird too

one day freezing, 2 days later warm and raining

what will tommorrow bring?

Pink Joyce IPF 3/06 Pennsylvania

Donate Life

Yesterday morning here in Bangor, Maine when I got up at 5:00 am, it was four degrees Farenheit with 2 inches of snow on the ground. So I put on my long johns, flannel lined shirt and jeans and snow boots

..

This morning when I got up it was 50 degrees and no snow. So now I'm weaing Bermuda shorts, a T shirt and sandals.

Can't wait to see what tomorrow brings.

Jack79/IPF - UIP/dx06/05 Maine

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

[Guest guest]

Geeta...I've had you on my mind today, knowing you are leaving. We'll chat more when you get home. Have a nice long snooze!

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

(unknown)

friends,I am leaving for India in a few hrs it is going to bea long haul of 23 hrs, wish me luck!I will be back posting after I reach home.Geeta

[Guest guest]

Bethany,

I'm glad things went well for you today. Boy you got back to school really quick. Impressive! Please keep us posted, we've got your back!

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

"May you never take one single breath for granted"

To: Breathe-Support Sent: Thursday, February 12, 2009 7:04:33 PMSubject: (unknown)

school today!it was really nice.nobody was rude, i think they were just curious..i got alot of questions,mainly along the lines of "are your lungs broken?"and i answered alot of those questions :)i'm doing pre-calculus right now..i think i'm getting a tutor soon to help me catch up.anyways, it was pretty cool. i just put the tank in my purse, and walk along. but yeah! i may have pulmonary fibrosis, but pulmonary fibrosis doesnt have me! so yeah!i hope you all had a good day!

[Guest guest]

but yeah! i may have pulmonary fibrosis, but pulmonary fibrosis doesnt

have me! so yeah! That's the attitude, kid! jon 50, sarcoisosis 1/09-- Two wrongs don't make a right,but two 's make an airplane.

[Guest guest]

Glad your spirits are up.

Pink Joyce IPF 3/06 Pennsylvania

Donate Life

Subject: (unknown)To: Breathe-Support Date: Thursday, February 12, 2009, 7:04 PM

school today!it was really nice.nobody was rude, i think they were just curious..i got alot of questions,mainly along the lines of "are your lungs broken?"and i answered alot of those questions :)i'm doing pre-calculus right now..i think i'm getting a tutor soon to help me catch up.anyways, it was pretty cool. i just put the tank in my purse, and walk along. but yeah! i may have pulmonary fibrosis, but pulmonary fibrosis doesnt have me! so yeah!i hope you all had a good day!

[Guest guest]

Nothing came with your email

Andy Foote

(unknown)

------------------------------------

[Guest guest]

Nothing came with your email

Andy Foote

(unknown)

------------------------------------

[Guest guest]

I am making it tonight with a new recipe--I will post it with any corrections after I tase it. Don't like to pass on recipes that don't taste good!

Terry

(unknown)

What is the recipe that you use for hummus? I haven't advanced to that stage of food yet but would be nice to have in my recipe file for when I am.aiazeenscd 10 monthsuc 6 yrsPrednisone 5 mgAsacol 800 mg/3x per dayImipramene 20 mg per dayCanasa 1/day

[Guest guest]

Ok, understood. I wish their terrible little hearts would be pricked to know that what they do is evil and hurtful.To: MSers Life egroup <MSersLife >Sent: Wed, March 2, 2011 4:47:43 PMSubject: (unknown)

the westboro church is inter related by blood or marriage - no outsiders just "family"

that is what I mean - brain washing of the "family" - I think their so called religion is perverted

the grief cycle can not start to happen with all their venemous crapola

that is what I mean